The Reunion Dilemma

Tonight is my 30th High School Reunion, scheduled in the casual and amazing environment of Richmond Brewing. Our classmates own the establishment and have agreed to let us assemble and celebrate without a lot of formal to-do.

But I don’t know if I’m going to go.

I was on the reunion committee. I love the food and the beer at Richmond Brewing. It should be fun.

But I’m stressed and if I’m honest, I’m scared. And I think this is probably the first time I really wished my service dog was already here. Because having that dog would relieve some of the physical barriers to attending, which might help my emotional issues.

I’m already showered and dressed and ready to mingle. But I’m struggling with my own mobility today– which if you aren’t a regular reader I have diplegic spastic cerebral palsy which means I have issues controlling my legs. Last weekend I took a medium fall. I didn’t do any permanent damage, though I did damage my expensive glasses, probably delayed healing of my sprained right pinky, and got myself some nasty bruises and bumps on the head.

But today I fell again. This is is going to sound ridiculous (my trainer Andrew can probably vouch for me here, I think he’s seen it happen) but I can’t pick up my feet today. Primarily my right one. It’s dragging. It got caught in the cracks between the sidewalk and down I went. No damage, my Apple Watch didn’t even alert.

Which is probably a good thing as I’ve been enrolled in the Women’s Heart Health and Mobility Study at Brigham & Women’s Hospital in Massachusetts and when I fall and my watch registers it, they call to check on me. I talked with them for a half hour on Monday.

I fell on the way to the gym, and my workout went fine, although at the same time, I struggled with some muscle control.

I went over to the Christ United Methodist Church for their craft and vendor fair where Joe Swarctz, our fearless illustrator and the creator of Echo City Capers, was selling the latest in children’s books. I didn’t fall, but every bump on the sidewalk or imperfection in the floor challenged my balance.

The Teenager has to work tonight, so I’ll be on my own for the reunion tonight. And I’m scared. It’s about 30 minutes up there, and with my recent layoff gas money is tight, plus I won’t be able to have a beer. And it would have been my father’s 75th birthday today, if he were still with us, so that has me in a horrible, dejected mood.

If I had my service dog, I would feel safer. I would at least feel more secure about my ability to navigate walking. And I would know that I would have another living thing there that could help me if something did happen. I know that all of my classmates at the Reunion would be helpful, but there’s a certain comfort from those who already know what you need and how to help. Because it’s a dreadful feeling when you have an accident in public, and people want to help and no one quite knows what to do or they do too much or the wrong thing.

I’m not sure what to do, but I know the choice is stressing me out.

But if my balance is already significantly compromised, I don’t know if traipsing around an old barn is a good idea.

Rain, again? Personal update

I’ve been spending quite a bit of my free time working on a freelance project for a savvy dentist who writes business books in his free time. While he’s a dentist, his books combine his profession and his work in emotional intelligence and leadership with his business acumen. It’s fairly fascinating.

My life right now is not nearly as fascinating. But it is interesting to me, and it’s been good and perhaps even healing for my soul.

I mentioned a few days ago that I had hoped to develop a regular posting schedule for both my personal and business blogs and to expand my Substack newsletter. And I realized that today is Thursday, and while my particular Thursday (how dare it be so rainy and cold again today? We had such a warm and lovely yesterday) might be dull to the average person… it’s been a good day.

Yesterday I took my friend’s sister to the doctor. She’s nervous to return to her normal bus usage because of some recent knee issues. I had a nice time, and it was nice to get out of the house and drive around on a sunny warm day.

Sundried tomato spinach artichoke pasta

In the evening, I made an amazing sun-dried tomato, spinach-artichoke pasta with a few ingredients from Grocery Outlet and some leftover fresh spinach that had finally started to wither. (To read more about that grocery trip, click here.)

The artichokes, sundried tomatoes and carrots I used in the sauce (and except for the artichokes I didn’t use all) cost me $4.50. The shredded cheese I used as a topper was $1.99. And the spinach I was nursing for the last week had cost $3, but I have already gotten my money out of it. I had the noodles in the cupboard, but I suppose if you included the pasta, the whole meal might have cost $12 to serve 4, with leftovers of most of the ingredients for other meals. (And I had a can of whole black olives in the cupboard I had picked up at the Dollar Tree.

My trick for that delicious sauce was to take several of the artichokes, a clove or so of garlic, and one of the sun dried tomatoes (hand torn) into a skillet with some of the oil from the artichoke jar. I left that simmer on low while I tossed the rest of the jar of artichokes, some carrots, all the remaining spinach, and about half the jar of sundried tomatoes (and as much oil as I could spare from that jar without leaving the tomatoes exposed) into my Ninja food processor. I added a couple olives, then chopped some other olives and added them to the skillet.

Mixed the whole mess up with the pasta, added cheese to taste and delivered to the table.

As I put the leftovers away and cleaned the kitchen, I noticed the fridge was crusty so I wiped up some of those shelves (and then I went as far as to organize items so The Teenager might find them– hummus by carrots, yogurt with milk and pudding for easy snacking, cheese, beverages, bread).

Lending a hand

Yesterday, as I left my friend’s sister’s house, I literally drove my Southern Candy’s house. So I stopped and gave her a hug before heading home to the work I had from the dentist. Today, I visited another Stitch Fix colleague who had some trouble with her unemployment paperwork. She felt terrible to bothering me– but I told her– “I’m glad you felt comfortable calling, because I hope that means we all really will stay in touch. Too many lay offs mean the end of relationships.”

Believe it or not, we laughed a lot while she fought with the government web sites. She even gave me a small Wawa gift card to thank me. She said she figured I wouldn’t take gas money. I laughed and said, “These days, with us all unemployed, I’m not so sure.”

But it is nice to be reminded that we can all work together, and sometimes it’s nice to have people who you can ask for help.

When I got home, I had received a Fix. Now, I figured I would keep nothing from it because of my situation, but my StylePass is active so it costs me nothing to order and return it.

Here’s a video of the unboxing:

$7 Wheel of Brie

The Teenager and I headed to Grocery Outlet today– primarily because some of the deals looked so good but also because one of my authors gave me some cash today for some books he ordered. I spent too much but it’s hard to feel guilty when you are strategically buying food. Not just buying– strategically buying.

I spent almost $60 and $10 of it the Teenager intended to buy for herself– like the 10 (yes 10) monster slim jims. Is that the best nutritional choice? No, but at four for 97 cents, can I blame her? No. Because on most college days she doesn’t have time to eat lunch.

I got a decent amount of groceries, including the most expensive food item I think I have ever purchased at Grocery Outlet, a $7 wheel of brie. Yes, a whole wheel. I had picked up a 7-ounce wedge of brie, thinking that was a splurge, but then I saw the $2.49 wedge of the same size. I looked at the wedge… and I saw the $6.99 wheel. I looked at the Teenager. She looked at me.

She said she could eat it all tonight. I encouraged her not to do that.

We bought it.

And I’m munching on it and the sriracha almond thins I bought last week and sipping white wine that was left here by a friend in July. Life feels just about right.

So what did I get at Grocery Outlet for my $58.93?

  • Artichokes, $1.99
  • Caramel Chocolate Thins, $2.99 (Teenager)
  • Jenny Craig Cranberry Lemon Biscotti, two at 2/$1.00
  • Larger can of cream-style corn, $1.19
  • Baby corn in a can, two cans, $1.29 each
  • Strawberry Frosted Flakes, $1.49
  • Nature Valley Crunchy Granola bars, $1.99
  • Frosted Confetti Cupcake Pop Tarts, $1.49
  • Dairy Free Salmon Chowder, $1.99 (we had this for dinner last night, it wasn’t bad at all)
  • Monster Slim Jims, Sonic Chili Cheese Dog flavor, 8 at 4/$0.97
  • Sundried tomatoes, $2.49
  • Magic Spoon Protein Bars, two boxes at $1.99 each (cookies and cream/peanut butter cocoa flavors)
  • Broccoli slaw, $2.99
  • Baby carrots, $0.99
  • Light Life Teriyaki Tempeh cubes, $1.99 (I really enjoyed these over the weekend and I still have a box but they are cheap and delicious so I want more)
  • Belmont wheel of Brie, $6.99
  • Spreadable Havarti cheese, $2.49
  • Cinnamon Toast Crunch toppers yogurt, $0.80
  • Cabot Cottage Cheese, $2.49
  • Chobani Sugar Free Strawberry Yogurt, $1.00
  • Half & Half, quart, $2.79
  • Italian Shredded Cheese, 2 8-ounces packages, $1.99 each
  • Kozy Shack, Tapioca Pudding, 4-packs, $0.99
  • Pumpkin Pie Milk, individual servings, 2 bottles, $1.17 each
  • frozen vegan pork barbecue, $1.99
  • strawberry drinkable yogurts, two at $0.99 each

4 months and 1 day

I want to keep this one short. I spent a couple hours on a Substack newsletter for Parisian Phoenix (read that here), handled some business, watched some TV, did some job applications and folded some wash. I’m starting a new project for an important client tomorrow and attending some classes on websites, Google and SEO practices.

Yesterday, I attended the Greater Lehigh Valley Writers Group meeting, then ran up to Stroudsburg to support William Prystauk’s horror novel release for The Hanging Girl. From there, the teenager and I stopped at Wawa for a snack before heading to The End: A Bookstore to meet up with Ralph and Joe of Echo City Capers fame.

Speaking of fame, Joe made an appearance on Channel 69 Weekend Edition of the Morning News.

But then, upon leaving The End, the Teenager hopped over a tiny pile of stones to avoid going the long way to the parking lot. I followed. And my good/stronger ankle went out on me, causing me to slip in my slightly healed walking boots, and somehow I bounced off Joe’s parked car, narrowly avoided a concrete parker marking with rebar sticking out of it and smashed my right hand, nose, glasses and face into the macadam.

It’s been four months and a day since my last fall.

My gait was perfect. My blood pressure has been trending higher, but remains in the neighborhood of 120/70 vs the former 110/65. My heartrate and EKG are fine. I just fell. Tired from overbooking, stress from losing my job, awkwardness because of the rain, or all of it who knows. Life with cerebral palsy. Heading home with a fat lip and a bloody nose.

I did take a chunk out of my expensive glasses. The metal frame of the bridge cut up my nose. And the hand I f*cked up when I dove down the steps March 1 at Stitch Fix, it’s set back a ways on recovery. It’s torn up again.

But sometimes you have to remind yourself to be grateful.

Speaking of grateful, if you follow my Instagram you may have seen this fabulous hot lunch of Maruchen Teriyaki noodles, peas, Lightlife tempeh and fresh spinach I made for The Teenager and I at a cost of about $2.50 per serving. And 30+ grams of protein.

I am also grateful that Giant has a store brand version of Bush’s Vegetarian Baked Beans as the family size can of Bush’s was on sale for $3.09 and the generic was $1.69. The Teenager says the generic tasted exactly the same. I can’t give it that much of a rave review, but I can report it was a successful substitution. What disappointed me though was the honey beans I bought on clearance at Grocery Outlet.

The end of the first week without a full-time job (and some grocery shopping)

When I started this week, I whipped out a variety of paper planners: my monthly Silk & Sonder and my daily planner I received through the Amazon Vine program (their product reviewing service). My Silk & Sonder contains my appointments and my weekly plans, whereas I fill out the daily planner to give myself realistic expectations of what a person can achieve in a day.

I had hoped– in addition to the job hunt, freelance projects, getting caught up on phone calls (schedule the furnace maintenance, research cheaper car insurance) and cleaning my house– to embark on a strict schedule of blog posting: Monday, Wednesday and Friday for the business (Parisian Phoenix Publishing) and Tuesday, Thursday, Friday for my personal blog. Then on Sunday, I would send out my Substack.

I went to a variety of job interviews, made $165 in freelance work, and even had a professional forgive my outstanding bill in exchange for a couple hours of my time giving editorial and marketing feedback. Today I received my last paycheck and I hope I have planned everything as well as I can for upcoming lean times.

But this morning, I had the opportunity to visit with middle grade author Jess Rinker at the ever-so-lovely Plants and Coffee Easton where we talked about our experiences in the publishing industry and she revealed some of her future plans.

And I treated myself to The Popper, a jalapeno popper themed bagel with chive cream cheese, cheddar, jalapenos and potato chips.

When The Teenager got home from her college classes and work, we visited Joe Swarctz, the creative mind and illustrator behind Echo City Capers. He will be appearing on Channel 69 WFMZ Morning News Weekend Edition tomorrow and he and partner Ralph Greco Jr. will be participating in The End: A Bookstore‘s local author night in the evening. I had to deliver the copies of the Christmas book that had arrived at my house for the event.

Then, the Teenager and I headed to Grocery Outlet where we each had a $5 off a $25 purchase coupon only good for this weekend. I told her– the trick is to spend NO MORE than $26 so that the coupon works, and you only spend about $20. She was up to about $35 in minutes and even with me taking some of “her” groceries I only had $15. So I took some of hers and bought some crab cakes. In the end, she spent $23.58 and saved $24.50 and I spent $26.43 and saved $40.02.

What did we buy?

The Teenager:

  • Dental Cat Treats, $6.99
  • Dental Dog Treats, $12.99
  • A Caramel Apple, $1.99
  • Pepperoni, $2.49
  • Antiperspirant, $2.99

Me:

  • Gourmet French Caramel Chocolate Cookies, picked by The Teen, $0.97
  • Four pineapple muffins, picked by The Teen, $3.50 (she insisted they were $3)
  • A slim jim with cheese stick, picked by The Teen, $0.99
  • Snickers popcorn, $1.50
  • Rueditas Chili Lime Pretzels, $0.97
  • Waffle Crisp Cereal, picked by The Teen, $1.99
  • Ground Turkey, $2.99
  • Spicy Vegetarian Chicken Nuggets, $1.99
  • 4 Frozen Crab Cakes, $4.99
  • Minute Maid Watermelon Cooler, $1.49
  • Half Gallon of 2% Milk, $2.08
  • Teriyaki Tempeh, 2 containers, 2 servings each, $1.99 each
  • Old Bay Sausage, $3.99

After that, we went to The Dollar Tree. The Teenager spent about $15. She needed batteries and wanted to buy someone stickers.

The Teenager did not get a receipt, so based on what I saw in the kitchen and these photos:

  • Batteries
  • Stickers
  • Chef Boyardee Ravioli
  • Canned spaghetti
  • Dog food
  • 2 varieties of Asian Instant Noodles (which will go great with peas and the teriyaki tempeh!)
  • white bread
  • Jalapeno rice
  • jalapeno corn muffins
  • honey corn muffins

The Teenager did not have lunch and Little Dog’s Mom always loves her Diet Cokes from McDonald’s so I opened my app. I used $5 from my Apple Cash to get three large soft drinks and a free six piece Chicken McNuggets, and Little Dog’s Mom paid me back when I delivered her soda.

Fifteen people who don’t matter & an advocacy story with an unhappy ending

This week was hard. I thought it would be different.

So, last week 100 people got laid off. There was fanfare. We left at 9:30 a.m. with pay for eight hours. Supervisors, process leads and managers lined the walkways and wished everyone (even those returning to work on Monday) goodbye by name. There was hugging and frolicking, crying and laughing.

This week, because they laid off 100 people last week, we had to work every second of the 40-hour work week unless we took voluntary, unpaid time off Friday. And how much time depended on your department, whereas the week before everyone in the building left at the same time.

So a lot of people from support left after 9:30 a.m., returns left at 10:30, inbound left at 11:30, and QC left at 1:30. And leads and supervisors just disappeared throughout the day. One manager wished me well and said goodbye at 7 a.m. Which was rich, considering what happened at 6:30 a.m. But I will get to that.

There were only 15 of us laid off yesterday. I know numerically why 15 people are significant, but when 100 were let go the week before and then 15 each week for several weeks following, it really (in my mind) makes a statement of how impersonal and how meaningless each person is in the eyes of the company. Why not make it another large group? The psychology of realizing you are one of 15 people that the company picked to leave on this Friday, it’s awkward.

Because you’re singled out of a large group.

Now, imagine you’re me. I know I speak up when no one else will, and I know I have challenged the thought process of my leaders. I try to frame everything with logic, to explain why I’m challenging what I’m challenging, but in the end, some people don’t don’t like to reach beyond their comfort zone. And often they just don’t know what to do to fix it, or they feel helpless or they feel attacked.

Yesterday I reported to my assigned station, which has been changed over the course of the week because with the reduction in staffing we have new work patterns. And I told one process lead that I didn’t care where they put me for the week, as it’s only the last week and I don’t feel pressured to challenge my physical capabilities to meet metrics. Most people had stopped meeting their numbers on purpose.

So, on Friday morning, I reported to my table– which for the record, is a table I hated, but no one asked and I just sucked it up and did my job– and I noticed… No one else came near me.

It was my last day. And I think I might have been the only person in my little unit leaving that day (that didn’t take the day off) and now… I realize… there is no one else on either side of my line. I have no shipper, there’s no work for others. They moved everyone else and just left me there. This means all of my work will just sit on the empty line until someone moves it.

Probably because they know I have issues physically and struggle with table changes and more importantly, I have a big mouth.

I feel completely on display. I feel singled out. And at this time, other people are looking at me wondering why I am standing in the middle of a closed line. In the middle of a wide open space. Like there’s a big open field and I’m just standing there. By myself. On my very last day with the company.

And I’m thinking to myself, “See– even on your last day, you’re not part of this group. No one cares about you. You’ve seen how they treat their friends. You are an outsider and you always will be.”

My heart rate is 150/beats per minute. I’m starting to cry. I email my supervisor (although I know what needs to be done, and I will do it, but I want their to be a record, even if fleeting and electronic, a written record of the things that have happened to be because I have a disability).

I walk back to a process lead, and I said, while trying not to hyperventilate or scream or cry, “I know you probably think you’re being nice, and helpful, by not making me move, but do you have any idea how it feels to be isolated and on display on my last day here? I don’t care if it’s high or low, on the left or on the right, please find me a new table. Any table. With the group.”

And I told them– because now a group had assembled– that I would be back after I went to the restroom to collect myself.

I was told to pick any table available, and I said I would grab the first one I saw. And I did.

And that’s where I was when the boss walked up less than an hour later to say goodbye and said she hoped I felt better about everything about talking with everyone throughout the week. And I said no, I felt worse and I just wanted this day to be over. And that I didn’t blame any people, but that as we all know, every company has room for improvement and this is an area where changes should be made and I had hoped to advocate for that change. But I failed.

Or perhaps more accurately, I ran out of time.

This is why more people don’t speak up and advocate for themselves, because it’s hard. And it drains you more than you think. I only did it, at first, because my employers made changes that made me fear I would lose my job if I didn’t.

But I lost my job anyway.

Let’s return to the story about departure. Most people VTOed (accepted the voluntary time off without paid) except for those of us who knew this was our last paycheck and we needed every dime. And when we left– there were no supervisors, no leads, no managers. There was no fanfare. They just let us walk out the door.

Because the critical mass had left the week before.

And we were just a handful of random people that didn’t matter.

87% and placated

Tomorrow is my last day at the Stitch Fix Bizzy Hizzy. Tomorrow is my last day, as I told my cat Fog, that my alarm will go off at 4 a.m.

Today, I am tired. My blood pressure seems to have come down, but my ears are ringing and my chest is tight. My workout last night worked out the kinks, and while I am stiff, very stiff, I don’t have any pain and my right leg which was giving me trouble yesterday has improved.

Speaking of my right leg (and hip), I managed to get off the floor from my knees leading with my right leg and not putting my hand on the ground not once but THREE times at the gym yesterday.

But what I really wanted to right about was the fact that yesterday at work was worse than the day before. I was back to table 33, which was the table I didn’t like on Monday. The line itself on 3B seems to catch in that area, so I spend much of the day fixing other people’s boxes as they clog the line. The support post for the line is immediately at my left, which means to put my box on the line, I need to lean forward or back. And every time I need a box, I have to wiggle it around the line.

On top of that, we’ve had a couple weeks of short days, so my body has forgotten how to work eight hours. And I don’t mean that as some sort of funny statement. My body relies on routine, because my lower body muscles can’t relax (that’s what spastic really means) and my brain can’t properly communicate with them (that’s the cerebral part of cerebral palsy; the palsy is the paralysis). So this is like starting a brand new job physically (which reminds me of all the terrifying parts of starting a new job).

On top of that, my meeting with the one person staying with the company that was supposed to talk about disability advocacy within Stitch Fix and how accommodations need to be consistent and fair… Well, while I adore and respect the person I met with… I got the feeling it was about placating me and not making change. The meeting was scheduled for 15 minutes (and is not an amount of time for meaningful dialogue). He listened and performed all the good listening skills. But he didn’t write anything down. He did not suggest a call for action. He did not even say what he could or couldn’t do.

He just basically said I was right and if I needed anything to let him know.

And then his phone buzzed. He got distracted. And he kept looking at his watch. Then he apologized and explained he had another meeting and had to go.

So my requests to write a letter to corporate have been ignored. My requests to discuss this with our human resource department have been ignored.

Needless to day, I went back to my station discouraged and a tad devalued. But that’s how it goes when you’re just a cog in the wheel and in this case, the wheel has been removed from the car and the car is trying to run on three wheels.

(Yes, I know my grammar is bad today with some truly admirable run-on sentences but it’s not even 5 a.m. and I’m exhausted, stressed and emotional.)

My Stitch Fix neighbor has been moved to table 68, so I don’t have her to offer any confirmation that this stuff is happening. And I keep stationed near all the pregnant women who get to request different help based on how they are feeling each day, while I have to advocate for my approved accommodations at least once a day.

I literally left the floor yesterday and went to the break room early when the same person who style carded my fix wrong (if you want to see the video of me tossing the whole fix in the return envelope unwrapped I’ll link it) took my empty cart and replaced it with another, which IS NOT HER JOB, and did not adapt the cart to match my accommodations. She then, seconds after, went to her pregnant friend behind me, emptied the bottom four shelves of her cart which IS NOT HER JOB and is not the accommodation I’ve seen done for anyone before, and then proceeded to help her fold her fixes.

Now, remember Sassy or Spicy or whatever her nickname was? She returned to the medical field, but she was part of our second shift crew. There was a day shift girl struggling after working hard all day. So Sassy helped her. She folded some clothes and gave them to her to scan and box. Sassy was chastised and told IT WAS A GROUNDS FOR TERMINATION. But, apparently, if you are friends and pregnant the rules are different.

Look– I have no issue with these people on a personal level, friends should do nice things for friends. BUT at work, in a large group setting, these small acts of friendship or kindness when not offered to EVERYONE around you regardless of how well you know them, especially if performed by a person in a position of authority, are favoritism. And allowing peers to treat peers differently based on personal relationships is also favoritism.

And favoritism can also be referred to as discrimination, and discrimination against certain groups, like say… the disabled… well, that’s illegal. On the federal level.

I really hoped if I were polite, and filled out all the paperwork, and kept asking, I could get them to listen. I can’t believe at my age I can be that naive.

I did 87% yesterday. And I busted my ass to do it. I almost asked to use my leave, but then I remembered numbers no longer count and it’s my final days of any income. So I suffered. And left in a lot of pain.

But my process lead made me laugh which lowered my heart rate which had been elevated all day. And then Gong Obsessed threatened to take a certain returns binner and his poorly performing peers into a classroom to tutor them in how the alphabet and numbers work, because “it might help them in their next job.”

And I got a craft paper dispenser to bring home, which they gave craft paper away a few weeks ago so I’ve been waiting.

More unintended advocacy and nursing a bruised soul

Three more days.

Three more days and Mercury comes out of retrograde.

Three more days and my tenure at the Stitch Fix Bizzy Hizzy comes to an end.

I had a job interview yesterday that led to a second interview Monday.

And yesterday was the two year anniversary of Parisian Phoenix Publishing, and I found out yesterday that Parisian Phoenix did not make it to the finalist round of the Innovative Voices program of the Independent Book Publisher’s Association.

What do all these things– well, everything but the whole Mercury retrograde thing– have in common?

Me. Still talking about disability.

I’m struggling. Change happens. I get that. But I just feel like everything I’m trying to do becomes a pile of various obstacles, so am I on the wrong path? All summer I felt like maybe I was finally headed toward new beginnings and small successes, but now I have my doubts.

And even things that should be success feel like delayed failure.

I’ve gone over the finalist list for the IBPA Innovative Voices program twice now, and I asked The Teenager to take a look. And she confirmed what I thought. Every finalist is a person of color/BIPOC or representing the gay/LGTBQIA+ community. Not a single disability voice among them. And then the teenager said it, “Well, Mom, color and sexuality are how most places do their DEI.”

It has taken me 40 years to accept and embrace my disability, and now that I have not only accepted it but worked to be a voice of advocacy, I open myself up to a whole new level of hurt.

Which brings me to work today.

Monday my table got moved. Today it moved again. But surprise, surprise, I liked today’s table (even though the air was stale and hot). And then… it happened. Because I was on a different line, I had different support people. And the support person on my line did a very sloppy job of presenting my work. Meanwhile, on the other line, a different support person presented someone else with similar medical accommodations a cart that was tidy.

It might sound petty. But because the company allows each individual to work such situations out with their peers, this leads me to feel like the person who brought me my cart resents having to help me.

And so I went to my supervisor. And I reminded him that all I wanted was to be treated the same. This other person has a temporary (and technically voluntary) disability that has lasted about six weeks. I have been dealing with this for more than a year. I have been disabled and will be disabled my whole life. The person with the temporary disability gets fawned over by her peers– including one peer who literally marches up and down the aisle telling all of us to help her.

So today, she gets the work from the bottom of her cart placed into boxes with pack slips placed neatly on top, and I get my work thrown on top of the boxes which are placed on their side on the top of the cart in a great big heap.

And once again, I ask my supervisor to help me find out if Stitch Fix has a policy in place to promote consistency between disability and medical accommodations. He promises me a chat later.

I go back to my table. A lead brings my next cart, and she doesn’t address my accommodations at all.

When the outbound manager walks by, I mention this to her.

And in the afternoon, I sit down with my supervisor and a manager and we discuss again:

  • how my accommodations have been inconsistent and I don’t receive communication about how or if they will change.
  • how other people with what appears to be similar accommodations receive “better” or “more” attention than I do.
  • how too many people are given the power to make decisions about how their peers will be treated
  • how disability is an issue for any workforce, whether a person has a disability, ages into a disability or has a temporary disability.
  • how Stitch Fix’s approach to inclusion for disability (and their ‘communities’ to support such efforts) focus on mental health and neurodivergence
  • how Stitch Fix has made it difficult for me as a person with a permanent disability, especially since I was moved from the job I was hired to do and they changed how our job performance was measured.

Tomorrow I am sitting down with the health and safety manager for our facility, as he will be moving to the Phizzy in Phoenix. Whether you call it favoritism or discrimination, my experiences have been frustrating. The company maintains that medical accommodations are extremely personal, cannot be policed by leadership, and rely on relationships between peers which assume people will do the right thing.

So, what if they don’t?

I have been working with the same people for more than a year. They know. And I feel like this work-it-out-amongst-yourselves approach has led to people claiming medical accommodations when they don’t actually have then.

The $50 grocery challenge (and the first round of ‘separation’ from the Bizzy Hizzy)

So, once again, I find myself uncertain of what nicknames I have given my friends at the Stitch Fix Bizzy Hizzy. My neighbor took off today, and Southern Candy (today was her last day) went to breakfast with her department when they released us at 9:30 a.m. Yes, we worked three hours today. I brought my friend, we’ll call her Gong-Obsessed, home and headed to Grocery Outlet and The Dollar Tree to buy what Groceries I could with the $55 cash I had in my wallet.

The men’s QC department is moving to our end of the warehouse on Monday and they are taking line 1, so I will be leaving my table. I’ve been at this table, 18, for about nine months now.

Farewell, 18.

After babbling about book production to Gong-Obsessed, I headed to Grocery Outlet where I spent too much of my budget on the Teenager. I am such a mom. She has an ear infection and drippy sinuses so I bought some things to make her life more pleasant.

I totally forgot to look for my Cabot cottage cheese– which was the whole reason I went to Grocery Outlet. Cottage cheese provides a low calorie, high protein, sodium rich food which is convenient for me.

One of my strategies for economic hard times is to use cash only for grocery shopping. Pay your bills and whatever is left (after gas) is for groceries. Since I got paid today, and only have one more pay check and no future full-time work lined up, I limited myself to my cash in my wallet because whatever is in the bank is now for bills and bills only.

Once I get to the store, I buy what’s cheap and versatile. I don’t necessarily meal plan as much as organize themes. Rice can be a base carb for just about anything. That same rice with a pile of beans and a small can of chili can now stretch to feed a family. English muffins can be the base for a sandwich, or a breakfast food, or with some creativity a hamburger bun or a pizza crust. Cheese can be a quick source of protein and calcium, and while peas usually aren’t anyone’s favorite veggie, they also add a touch of protein to meals, and can be tossed into rice dishes, casseroles, cheesy or alfredo pasta, or hot/cold salads.

What I did get at Grocery Outlet:

  • Honey Flavored Navy Beans, 0.99
  • Kosher Dill Pickle Spears, 1.49
  • Six Whole-Wheat English Muffins, 1.99
  • Almond Thins Sriracha Crackers, 0.99
  • Ortega Mojo Chile Lime Sauce, 1.49 (when you’re low on food, a cheap bottle of sauce can elevate a ‘struggle meal’ into something pleasurable. I’m getting ready for lean times here.)
  • Turkey Chili, two cans, 0.47 each
  • Zesta Saltines, 0.77 (can make soup more filling, serve as breadcrumbs if need be, and it’s been ages since I had butter-on-a-saltine as a snack, and with a sick kid at home, something is just soothing about saltines.)
  • Cabot Bac’n and Cheese Dog Biscuits, 2.50 (the dog couldn’t even focus on her sit-stay when I opened these.)
  • Cocoa Cinnamon Toast Crunch Cereal, 1.99 (The teenager loves Cinnamon Toast Crunch and Cocoa Pebbles– I had to see if this would be ‘the best of both worlds.’)
  • Bananas, five, .52/lb, .94
  • Fresh blackberries (pint), 1.99
  • ‘Nano’ Cucumbers (quart), .99
  • frozen avocado chunks, 5.99 (This was the most expensive item I bought, but it’s less expensive and less waste than buying fresh avocados. I put some in a bowl, maybe 3/4 to 1 cup, thaw them in the fridge and stir them into a paste for dip, for toast, or to flavor dishes. It disappears usually within 48 hours and a bag of frozen avocado has 3-4 batches in it.)
  • Boca Chicken Patty, 1.99 (Even if you’re not a vegetarian or even if you prefer not to use processed food, fifty cents a serving and it’s a protein you can toss in the freezer and add to just about any meal in a minute.)
  • Jimmy Dean Spinach Frittata Plant-Based Egg Sandwiches, 2.99. (I originally bought these for The Teenager, because she’s going through some medication AND routine changes AND financial changes so eating has been a struggle. For 75 cents a serving, she has an easy breakfast. But now that I see they are plant-based, I might take some to work for break next week.)
  • frozen peas, 1.19
  • Birds Eye ranch-flavored cauliflower, .99 (nutritionally not the strongest choice, but add some rice and some white beans and that ranch flavor could sass up a meal)
  • Hall’s cherry flavored cough drops, .50 AND
  • Nasal decongestant spray, 1.49 (both to help get the Teenager over the hump of her ear infection and sinus congestion)
  • Goya Dulce de Leche rice pudding, four servings, 0.99 (because the Teenager doesn’t feel well and she loves rice pudding)
  • Pillsbury buttermilk biscuits in a can, two cans, .50 each (like the English muffins these can go with any meal at any time of day and be reshaped into other dough if one finds themself in a pinch)
  • Sabra classic hummus, family size, .97
  • two percent milk, half gallon, 2.08
  • shredded sharp cheddar cheese, 8 ounces, 1.99
  • Taco Bell branded “fire” shredded cheese, 7 ounces, 1.99
  • Minute Maid Watermelon beverage, half gallon, 1.49

Total at Grocery Outlet: $42.68

Technically, this gave me $12 for the Dollar Tree. Now, with all that food, why did I have to go to the Dollar Tree? Because my comfort food, especially when I am sick, is Spaghettios, and apparently I have passed that along to my daughter, because she requested Spaghettios.

Since the Dollar Tree now costs $1.25 per item and sometimes their groceries ring up as taxable, and I don’t feel like arguing with cashiers today, I capped myself at 8 items. I had enough for nine, but wanted to be safe.

I purchased:

  • Spaghettios, two cans, one with Franks Red Hot for me and one with Chicken Meatballs for the Teenager
  • A pretty nice sized bag of white long grain rice
  • A can of black olives, whole
  • Schweppes ginger ale, 1 liter, because I have a child with a sore throat at home and she ripped it out of my hands as soon as she saw it.
  • Generic diet soda, 3 liters
  • Sonic freeze pops, again, for the sick child
  • Gnocchi, because the gnocchi from the dollar store is filling and has a decent amount of protein

Total: $10.15

I still have $2 in my wallet.

Mission accomplished.

Random Thursday nonsense: a trip to the neurologist, strange items brought home from a warehouse, the start of goodbye… and caramel apple coffee.

I feel a little guilty right now because The Teenager has a sore throat and what appears to be the start of an ear infection. It’s a common occurrence for her and nothing says “back-to-school” like an ear infection on a 95-degree September day.

I had a good day, and despite my ongoing sensation of exhaustion (none of us who work at the Stitch Fix Bizzy Hizzy sleep well these days) I am experiencing an emotion I think I recognize as joy. It is bittersweet as I had to say goodbye to two work friends today, and many more will go tomorrow.

Speaking of the warehouse closure, I’m starting to feel unsure whether we are closing a business or a preschool. Today’s free pile included lanyards, insulated branded lunch bags, gift bags, inflatable guitars, bingo cards, and raffle tickets. Yesterday I brought home stickers, pipe cleaners, serving trays made out of cardboard-ish, egg carton material and I almost had a collapsible storage cubby but a random elderly colleague came over, took it out of my hand and said, “excuse me, that’s mine.” I handed it over because 1. I’m not acting petty over free things and 2. I was taken aback (but not surprised) by the gall.

My neighbor whose nickname I can’t recall had the other cubby and she offered hers to me, but I declined. She picked hers up fair and square. And really, I don’t need more random stuff.

I’m going to bounce around in this blog post, but I’ll try to use subtitles.

Sharing my words

So I went to my neurologist/physiatrist today and I gave her one of the Parisian Phoenix books, Not an Able-Bodied White Man with Money. We had talked about it the last time I saw her and she told me to email her the info because she wanted to buy it. No one has ordered that book since the last time I saw her, therefore I thought it was safe to bring her a copy.

She started flipping through it right away. She teasingly chastised me for distracting her, and I told her that next time I would save books for the end of the visit. She also mentioned she had a patient whose wife was considering approaching a breeder about a mobility dog prospect for her husband, and she (my doctor) wanted to know the name of the program where I am on the wait list.

My doctor believed it would be too much expense and too much of an undertaking for this couple to buy a dog and have it trained as a service dog, especially since they don’t even seem confident that a dog is right for them. My doctor suggested looking for a program, and I offered to speak with them if they so desired.

When I left the office, I discovered organizers of the Artful Dash on the Stirner Arts Trail here in Easton reached out via Instagram to ask if they could use photos from my blog to promote this year’s 5K. I, of course, gave them permission.

Medical stuff

Today was my last specialist appointment before my benefits change. My team and I seem to be on the same page, and they appreciate the fact that I pay attention to my body and try to implement lifestyle habits to counteract any health issues.

My gynecologist, primary care physician and my neurologist/physiatrist all agree that some of my current stiffness and bladder issues may stem from a combination of stress and change in exercise habits. Now that my increased sodium intake seems to have eliminated my orthostatic hypotension and decreased my fall risk, I am working on losing weight (ten more pounds off by Christmas I hope) and paying more attention to my urination issues. My current management of my potential incontinence symptoms includes using a toilet every time I see one, and honestly, unless I start having recurrent issues in public I’m not concerned. It could be, my neurologist said, that my theory that my days of bad spasticity means my bladder might be having spasms, too.

And the random tingling limbs so far is not a cause for concern. But, as always, I have a list of symptoms to watch for.

Random Caramel Apple Iced Coffee

We received Wawa gift cards at work last week and I stopped yesterday and got a caramel apple iced coffee. Now, I don’t normally like Wawa’s iced coffee. It’s too weak for me. But the cold brew was a $1 more and I’m cheap.

It was delicious, though I do wish the coffee were stronger and they never put enough ice in there so it’s always warm by then end. Because I don’t normally drink sugary coffee I was buzzed by the time I got to the gynecologist.