Well… That’s a first

Every week, usually during the weekend, I walk down to my local CVS. It’s about a half mile away, and between my daughter and I, we usually have a prescription to retrieve. And if you buy items at CVS regularly, it triggers a variety of digital coupons that can have a domino effect and yield good deals.

Today I had about $5 in ExtraBucks, plus a $2 off a $12 purchase, plus some digital manufacturer coupons in the CVS app, and some product-specific CVS coupons that I planned to add to a 30% your full-price purchase coupon.

I bought a 90 count of Total Home kitchen trash bags (which were similar in price to a 100 bag box at Target), plus eight-gallon trash bags that were expensive for the number of bags in the box. BUT– I had a $5 off $15 coupon for Total Home trash liners AND the 30% total full-price purchase coupon, and the $20 box of 13-gallon bags would guarantee I hit the minimum after the 30% reduction.

Eva needed large bandages and some first aid cream, which was also full price. My bill came to about $43 and after coupons and discounts was $20.31.

On the walk home, I stumbled walking up my least favorite hill. I could feel my feet dragging but just didn’t have the strength to fight them. Here’s the odd thing– I lost my balance because my toes were dragging upward along the sidewalk. My arms went out, and normally at this point I do a bit of a corkscrew roll to minimize the damage as I attempt to fling myself onto grass.

But today something very unusual happened.

I recovered my balance. My hands hit the ground, but my body bent more like a hinge instead of crashing into the concrete. I didn’t even scrape my palms. I bent; I stood up. I walked home.

Never in my life have I recovered my balance once I put out my hands and braced for the fall.

Never. Ever.

Now, when I got up this morning, I gave myself a stern talking to because I did not go to 8:30 a.m. Boot Camp with Greg at Apex, my favorite local private gym. My back hurt and I was groggy and a host of other excuses. So I made myself promise that I would walk to CVS.

I need to do some straight leg deadlifts and other exercises for my back and legs but I’m not that motivated yet. And I stumbled at home trying to walk around the vacuum cleaner at the bottom of the stairs (Eva got a new vacuum cleaner, well, her third of the same model) and tripped after the CVS trip over a huge cardboard box right in front of my eyes. But neither led to a fall. Let me repeat, neither led to a fall.

I’m having more leg, hip and knee pain than usual, perhaps due to the dampness, the rain and the drop in temperature. Who knows?

I checked my phone and before I left for CVS in the first place my walking asymmetry spiked to 36% and before and after the near-miss fall registered at 2%. Now, let me reiterate (as my favorite doctor would say) that these phone figures are far from precise or even scientific, but they do seem to accurately reflect trends in my gait. My fall risk/walking steadiness consistently gets classified as “okay.”

But when you look at the last six months, you can see a drop. And while both are still within the range for “okay,” I wonder about it.

And for the record, last night, at my four-hour shift for my very part-time job that has somehow become 23 hours a week (thanks to some staffing issues and I can understand that), I worked at least five different positions.

I did some standing still, then a lot of walking around across a nice stretch of distance, and then I stood still some more until 2.5 hours into my shift, I was asked to cover a break delivering food inside the restaurant. At the beginning of that change, twice over the first five minutes, the asymmetry registered as seven percent. Did I notice it? No. Did it happen beyond those two instances? No. And after that 30 minutes, I went back to a position where I primarily stood still but also did a lot of stocking which meant moving to various storage locations and lifting boxes of various weights.

And the pace of the restaurant means my heart rate is usually between 120-130 for my whole shift. I noticed last night it reached 172 bpm. That’s my maximum heart rate at my age! My heart is supposed to be physically incapable of doing more than 170 bpm.

As I promised my doctor, I have been taking my allergy medicine, watching my blood pressure and taking the appropriate prescriptions and taking my baclofen. I’ve been good about taking at least 10 mg before my shifts.

PS– the anecdotal evidence is mounting that the Twinings Sleep + vanilla and cinnamon tea with melatonin not only tastes like a baked good, but it also increases the amount of deep sleep I get. I will still keep Traditional Medicinals Valerian in my rotation, but Twinings is a definite win.

PPS– I ate almost a whole can of salt & vinegar Pringles last night and gained a pound overnight. And because of how Omada measures your success as an average of the whole week, they have my weight listed as 163.5. It was 161.5 yesterday and 162.5 today.

The Day the Garbage Trucks Swarmed

My shift at the restaurant Thursday evening went much easier than Wednesday— though I couldn’t bend and reach the floor and I took a lot of Baclofen.

And my left hand strangely hurt last night in the fifth metatarsal, in the same spot where I broke my right hand what had to be a decade or more ago.

Today I slept until 8 a.m. when my Goffin’s cockatoo, Nala, screamed, probably concerned that I died in my sleep.

I stripped my bed, started laundry, drank some coffee and used household chores as my warmup for a home workout. (After clearing my business email and banking stuff.)

The scale showed another pound gone. Soon I might hit the ten-pound mark.

Nothing like 30 or 40 pound cat litter boxes to practice farmer’s carry. And five trips up and down the stairs gets the heart rate up.

I did a pretty solid shoulder workout today, 22 minutes of just weights— including push press, dumbbell row, shoulder lateral raise.

Did some more wash, handled some more email and spoke with one of the Parisian Phoenix authors about a presentation we have been invited to give at Hellertown Library.

I did the dishes, started cooking some chicken livers for the dog, and made myself a big salad with lots of carrots.

I went to Panera for a while to work on my background material for the stories I am writing for Armchair Lehigh Valley regarding the May 20 primary.

And I got my schedule from the restaurant— 4 days in a row and 22 hours. I messaged my boss on Slack to warn her that that may be a struggle for me. She hired me so quickly I never had a chance to tell her about my cerebral palsy. She hired me to work 10-12 hours a week in the dining room, so I didn’t think I would have to.

But here I am, working 20+ hours all over the place.

I wasn’t sure how to bring it up, and I feel it’s better to do these things in person, but at least on Slack there’s a paper trail.

It turned out to be a great conversation. One we will continue in person. As I suspected, she’s short-staffed and I can really use the money so I didn’t want to complain.

Eva picked me up and we stopped at Grocery Outlet. And as soon as we got home, three garbage trucks swarmed us and our house.

I made a vegetable lovers DiGiorno thin crust pizza and split it with Eva and watched some more of The Pitt. Then I came up to make my bed, clean litter boxes, feed the bird, and get the cats water before my shower.

Now it is almost 8 p.m. and I plan to read until I am sleepy.

Yesterday was hard

I don’t want to write this. I am tired and I want to go to bed and pray that I am not in too much pain to sleep. I won’t post it until tomorrow (Hence referring to today as yesterday in the title.)

Nothing bad happened. It was just a bad day physically, and it’s been a long time since a day hit me this hard.

I need to write about it though, because I am under strict instructions from my doctor to pay attention and note anything unusual because she’s heard some of my symptoms and said that if I were any other patient I’d be going for tests.

And if I don’t write this blog, I will forget today was a bad day physically.

It started nicely enough. Visted Nancy Scott and noticed then that climbing the stairs felt more stiff than usual.

Ate decently. Tried a sample meal replacement bar for breakfast and ate a HUGE brunch of potato, broccoli, multi color peppers, egg and feta. Had two pieces of licorice and a whole bunch of unsweetened and barely caffeinated tea.

I noticed while changing into my work uniform that my knuckles felt achy and weak and like I was about to injure my middle finger as I did with my mallet finger/sock incident of 2022. (If you want to read more about my mallet finger, click here.) This sensation returned again at the end of the night before I showered.

I took 10 mg of baclofen. In the morning, I took five.

Left for work at 1:30. So here’s the big reveal– in addition to my publishing company, I took what was supposed to be a very part-time job at Chick-Fil-A. My reasons for selecting that particular job were very specific. That might be a good topic for another post.

Once I arrive, I grab some Coke Zero. I usually stick to unsweetened iced tea or seltzer while I’m at the restaurant, but tonight I needed something a little extra. The back of my right thigh is spasming.

I started my shift running people their food inside the restaurant. It’s not my strongest position, but I like the movement. Then, I went to the drive-thru window for an hour, before I went back to running. My legs felt very heavy and clumsy the whole time.

Then, I went on break. And I ate a fruit cup. Everything still felt hard to move.(I walked a total of 15,000 steps today and two hours of my shift registered as exercise on my Apple Watch.) While outside I started stumbling, and twice I almost pelted some cars with bags of food.

And it was cold outside! Then, the icy rain started. Eventually, I got a poncho, and after about two hours I went inside and washed my hands for five straight minutes trying to get them warm again. At this point, my lower half hurts and I can’t bend and reach the floor.

And one of my supervisors accidentally clocks me in the cheekbone with his elbow. Hard.

I finally leave, and my phone alerts me that my heart rate is high. It hovered around 120-135 most of my shift. It usually does.

My toe hurts– not sure if I’m getting a blister or the toe I almost broke or the neuroma giving me trouble.

I came home, showered and made myself some food. And took 20 mg of baclofen. Making my grand total for the day 35 mg. I think. My blood pressure is also trending upward, at 112/78.

My phone says my average walking asymmetry for the day was 2.5 percent, but I noticed there was a lot of asymmetry. Often when my numbers are bad, they are a lot higher but only happen once. This was happening frequently. It looks like it was happening a dozen times an hour.

So, I came home wet, cold, stumbling and hurting.

I record this now to improve my memory of what the bad days feel like.

“Make Good Decisions”

I visited my neurologist/physiatrist yesterday for my four-month follow-up. Four months ago she recommended I join the Thrive medical fitness program with the hospital network. I met with her in November to discuss how I could move forward with exercise and strength training; I was scared that I would hurt myself working out alone.

According to her records, I lost six pounds! She was very happy to hear about and see for herself the gains I’d made in my strength. She reminded me that I was still “young enough” to keep making gains, whereas at a certain point the aging process makes it so that all we can do is maintain our strength.

I told her about my bumpy February, complete with several unexplained falls. She has some concerns about this, concerns that are mitigated by my fall-free March. I told her my theory that the change of seasons and sinus “stuff” might impact my balance– referring to my serious falls of March 2023– and reporting that I had not resumed taking my allergy medicine after a winter hiatus.

There are some other signs, some dealing with episodic urge incontinence and a recent bout of constipation, the strange weakness and sensations in my fingers, and my typical hyperreflexia that could suggest an issue with my spinal cord in my neck. So if anything changes or becomes more persistent, I have to let her know immediately and not “downplay” it. She referred to me as one of those patients who is “a trooper” and just keeps going.

So she wrote in my after visit summary as my main instruction to “make good decisions.”

How many of us could curtail a lot of our health problems if we followed that advice?

My next steps will be to focus on working out and continuing my progress with strength training and weight loss, reduce caffeine intake, and improve my cardiofitness. My next appointment is scheduled for the day after my cardiologist appointment, so hopefully I will have some positive trends to report to both of them.

My neurologist also made me promise that when I get my service dog, she gets to meet him/her sooner rather than later.

Balance Assessment at Susquehanna Service Dogs

About three years ago, Eva– my daughter, in the beginning of her career as a pet caregiver and dog trainer– said she wanted to train me a service dog. She wanted something to babysit me once she left home or when I was home alone.

She showed me some videos and I did some research and thought she had a point. When she leaves home, I will be a 50-something woman living alone with a history of falls and accidents. The presence of a dog in my life would keep me active and prevent spasticity issues, improve my gait as a dog’s gait never falters, and perform small tasks like bringing me my phone or picking items off the floor.

I have no doubt that with the right puppy and the time, Eva could train a service dog. But I suggested that for our first experience in the realm of service dogs, we should apply to an official service dog program.

Working with a program would teach us how the dogs are trained, give us support, guarantee good breeding and the physical fitness of the dog, and have some added legitimacy should people question my dog’s work.

Now there are no rules that prevent individuals from training their own service dogs. I think this is why one can encounter a variety of “fake” service dogs doing public access work. [I saw two service animals in the same restaurant this week. One looked like a well-trained Labradoodle with a handler who wasn’t cognizant of her surroundings. The Labradoodle was lying across the main floor area of the restaurant and not tucked under a table. The second was a small dog, perhaps some sort of schnauzer who barked and begged and whined and scratched at its owner’s leg for food the entire time. So, either that handler was having a medical emergency and the dog’s alerts were being ignored or the dog was not properly trained. A working dog should not make noise in public and it should not be distracted by food.]

I understand that training a dog with an agency or a professional trainer is expensive, but people who insist on using dogs for public access that are not properly trained make life harder for those people who have working dogs that don’t misbehave. Improperly trained dogs with public access are the dogs more prone to cause an incident with another dog.

And once I pay for my dog– which will take ALL of my savings– if that dog is attacked or threatened while working in public, that could impact its ability to do its job in the future. My dog might become afraid and unable to focus on its job. So I will have invested all of my money in a dog that won’t leave the house.

In the United States, there are no rules or governing agencies that regulate service dogs. There are, however, rules about what people can ask to a handler of a service dog– Does this dog do work that mitigates your disability? What tasks does the dog do? That’s it.

I have chronicled my service dog adventures on this blog. Here are most of the entries. (I am also working on a disability memoir.) There’s a lot to the process. My dog will be a light mobility dog.

They say the average placement takes four years start-to-finish. We filled out the application with Susquehanna Service Dogs in Summer 2022. I went to their facility and had an interview, fill out a survey of my life and health every six months, did an assessment while working with a dog where they recorded me, brought Eva with me to do public access work in a mall, passed a home visit, collaborated with a case worker to develop a plan of what my dog would actually need to do, and now yesterday, I went back to the facility with Eva for a balance assessment.

They had a mobility professional join us– I believe she was a physical therapist– and I worked with the dog and showed them how I get up off the floor and answered questions about my life and recent fall history. I love when Eva can come because she can tell them her insights. Apparently, she was annoyed because physically I was having a good day yesterday.

I worked with Captain. What we learned was that my dog will need to walk on my right. The dogs are trained to walk on the left, but when the dog is on my left I struggle to walk in a straight line. When the dog is on my right, my posture and ambulation is much more natural.

We also decided that my dog will be guided by a leash, versus a strap or a mobility harness. A mobility harness is rigid and has the most feedback between human and dog. In the photos, I am using a red strap on the far right. The strap was okay, and it’s an intermediary step between the harness and the leash, but it didn’t feel natural. (And the benefit of using leash only is that it gives the dog more freedom and space to get out of the way when I fall. Some dogs are trained to do things when a handler starts to fall, but I want my dog out of the way.)

It also seems like I’m at the proper place in the timeline. The next step: When they have a group of dogs that are flexible enough to work on the right and the right size to work with me, I will get to meet them. It might take a few meetings to find the right dog. Once the right dog is selected and assigned, I believe they will do any specialized training while boarding on site and then I go to their facility for a three-week training session.

The dog itself has to be two-years-old and fully grown and cleared by a veterinarian before entering the work force. Moibility dogs have some of the hardest and most physical jobs out there for service dogs.

The close-out of my medical fitness program

Monday is my last session as part of the Thrive medical fitness program at St. Luke’s. Working with the trainers in the program has reminded me of some hard truths– and the part that’s hard is the reality of your own habits and thinking patterns.

The numbers show some nice progress. I lost four pounds of fat and gained one pound of muscle. (And had I eaten better imagine what those numbers could have been.) My blood pressure according to their records has stayed the same, but based on my home readings has gone down and requires less medication. The strength-based tests– well, I kicked butt.

I certainly feel better, and stronger, though I still have work to do on my cardiofitness. That won’t really improve until I commit to more cardiovascular exercise, even if it is just walks around the neighborhood. I would love to return to riding my bike again, but there’s a fear factor there. It’s an activity I don’t want to do alone, which is also true of walking.

But here are the lessons:

  • When my body hurts and locks up, strength-training stretches all those muscles and gets rid of the pain.
  • I can only lose about a pound a week if I eat well and exercise at least three times a week. Diet alone won’t do it. And my food choices don’t have to be perfect but they have to be solid.
  • Salt is my nemesis. Too little and I experience orthostatic hypotension and lightheadedness, too much and I end up with as much as five pounds water weight.
  • I must be choosy about my fast food. Domino’s or Little Caesars pizza will put me in a coma, and I will sleep so well, but the impact will show on my heart rate, blood pressure and weight. Wing Stop has no benefits, only the effects of the salt. I now keep various processed chicken products in the freezer because while they are not a wholesome choice, I can make my own sauces to replicate Wing Stop and save the truly detrimental health effects. Taco Bell in small doses can be tolerated, and I usually get a cheap box deal and make the items all vegetarian. It adds some extra fiber and vegetable matter to the mix.
  • And out of all the fast food chains– I can navigate the menu at Chick-Fil-A and not notice any real impact. Their fruit cup and kale crunch salad, especially when paired with grilled nuggets, are solid choices. They also have a chicken (or vegetarian) cool wrap, which, while it is calorie dense, is easy and quick to eat– with a good portion of lettuce and cabbage. (Yes, they also have amazing salads, but those big salads are realistically three portions. That’s a lot of salad and chicken. A lot.)

Do I have the discipline to not only continue but improve upon this progress? I don’t know. Honestly. IF I made a commitment to meal planning and cooking, I could. But with money and time always an issue, I don’t know. With stress leading me to seek comfort in my favorite foods– did you know they have Sour Patch Kid Jelly Beans? Eva says they flipped Sour Patch Kids inside out… With fatigue influencing my choices– caffeine and sugary carbohydrates, anyone?

Will I get up in the morning, drink a glass of water, and commit to some sort of exercise in my home gym?

Damned if I know.

Stay tuned.

The Massachusetts Whirlwind (Day 1)

Gayle and I left my house in Pennsylvania’s Lehigh Valley at 7:50 a.m. Our destination was the Embassy Suites in Marlborough, Massachusetts, for EH Jacobs’ book signing at Tatnuck Booksellers tomorrow.

I noticed the other day that Dunkin has its spring menu out and I was very excited to have a pistachion flavored coffee. So, after about an hour on the road, we stopped in Bernardsville, N.J., for breakfast at Dunkin — and I didn’t like my coffee. Which I used to love.

For some reason, no matter how many times I told the GPS not to, it insisted on taking us over the George Washington Bridge and threw the Bronx. That was unexpected.

And somewhere early on in Connecticut, the tire pressure light came on. But briefly thereafter we stopped at a service center in Alltown that had free air, but it was too cold and windy to check the tires and deal with them. I’m fairly certain is the 60 degree to 30 degree temperature drops from the course of the last week causing issues, but it could be every time I come to Massachusetts, I don’t put enough air in my tires.

New Haven

Before we left I googled interesting bookstores around the half-way point so we can get out of the car, wander a bit and connect with some new people. New Haven popped up as the stop with the most potential based on geographic location, the time we left (Because we leave early and stuff isn’t open sometimes until 11 a.m. or noon), and the number of potential stops in the vicinity.

It’s usually done by gut feel, google search and social media. And I typically completely forget WHY I picked a place.

STOP 1: POSSIBLE FUTURES

So, if you don’t know, I have a bachelor’s degree in English/French language and literature and a second bachelor’s in international affairs. I did somewhere around a third of my master’s degree in world history– where I intended to focus on post-colonial Francophone Africa. My academic interest is in stereotypes and the racism against indigenous people, especially in the case of the French, the prejudice against Muslims. The French treated the Muslim colonial subjects as the lowest class of citizen, deeming them unfit for miscegenation (a tactic popular as part of the civilizing mission in Asia, for example) because it would weaken the French bloodlines.

Gayle and I approach this bookstore and find a mural. Gayle loves murals. We find a memorial to abolitionist Ruth Wilson Gilmore and evidence that in warmer weather this area houses a container garden.

The academic critical theorist in me loved seeing the works of Aimé Cesaire and Franz Fanon on the shelves, with memoirs of people like Josephine Baker (which I almost bought). Black novelists (stunning collection of Octavia Butler, but she is making a comeback) and quite a few Louise Ehrlich. The inventory included feminist books, Muslim books, lots of queer and other marginalized voices. And such great vibes! This one will make my bookstore and book detour list as part of my Substack newsletter/resources.

Although our other stops were only a mile away on the Yale Campus, we opted to drive as the wind was brutal.

And I did the worst parallel park job of my life on York Street. We’re not going to talk about it. But in my defense, the space was small. But I got in it!

GREY MATTER (south)

This was a really great used bookstore with reasonable prices. (Have you been to those bookstores that base their prices on the original price of the book? I don’t like those.) I bought three books– The Long Island one by Taffy what’s-her-name and two books about colonization in Africa from the 1960s. My bill was $19.

I’m not sure if I should write this… but the vibes between the two places made me think… Possible Futures was obviously the more liberal place and had a lively energy, lots of color, friendly staff who liked to chat, and a real sense of mission and place. Grey Matter felt much more conservative, dusty and stodgy and entrenched in that sense of academia and, well, whiteness. (Which one of my Africa books is by an Indian man from an Indian publishing company so I can’t wait to see his report of what was happening in Africa.)

Gayle grabbed an iced chai on the way back to the car, but sadly she dropped it before she even had a sip.

Speaking of sad, the GPS continued its revolt and took us up smaller roads to the Boston area. Route 20 looked very, very strange. The buildings were all empty at the side of road and neglected and lots of construction everywhere– Gayle thinks they are widening the highway.

We arrived at the hotel and were extremely impressed with our room. And the snacks. And the location and the friendliness of the staff. We were scheduled to meet author E.H. Jacobs and his wife at Welly’s for dinner. And I gave Ed his royalty check.

I had a lovely fig and arugula pizza and came back to the hotel for a soak in the hot tub.

I had hoped to fulfill one of Gayle’s wishes and go see Harvard’s Gutenberg Bible, but we discovered too late that they do not have Saturday hours.

The Ups and Downs of February

Lately, I’ve felt like nothing about my life is out-of-the-ordinary or interesting. Maybe that’s true, maybe it’s not.

But this week has been a humdinger. On Monday night, I came home from my supplementary part-time job (because as I’ve heard other people phrase it, “Winter is a hard time for small business” and I found what I think might be an awesome 10-hour-a-week job for me– if my body can handle it). I took a few Tylenol PM because my body was aching and I hadn’t used that particular medication in a long time. But, it’s spring kinda-sorta, and I haven’t been consistent with any antihistamines so I choked on the damn pills because of the allergy-related mucus.

Now, that’s not the end of the world, except I managed to recoil away from the bathroom sink and hit my face on the wooden shelf we use as a cabinet. I hit right along the cheekbone and it hurt like heck and managed to leave a narrow bruise almost parallel to my nose.

Now– some update/backstory as I move forward here– I am two months in to my three-month program at St. Luke’s medical fitness program Thrive. I have worked with several of the trainers (Alex, Claudia, Jim) and I can feel a difference since I returned to the gym. And this week I trained with Alex after several weeks primarily with Jim and Alex noticed I needed to up a bunch of my weights and he’s looking into changing my program.

Jim taught me some stretches for my IT band, because I’ve been having some new issues with spasms in that region, and my chiropractor had determined during our visit Wednesday that I had locked up my right knee. That’s totally new.

My blood pressure and heart rate has been weird. My heartrate has been high at random periods and at one point on Monday it dropped from 120 to 60 and went back up to 130 which could be a sign of afib. And then my blood pressure would come in at 120/65, which normally my blood pressure is 115/70 or 95/65 and now it’s blending the two.

I really have the feeling that to keep my weight and blood pressure under control I have to be very meticulous about what I eat. I am still struggling with that same five pounds. If I do my strength training and my workouts, walk at least 5,000 steps a day, and eat what a lot of people would call “clean” foods, I can lose weight and keep my blood pressure low (with an occasional salty snack when it dips too low). But even if I skip a workout, the weight comes back. It got so frustrating– that nothing ever changes– that I stopped tracking in my fancy fitness journal. And if I’m discouraged now, what happens in April when my program ends?

Thursday evening I had another great workout with Alex. I was mentioning that it had been almost two years to the day since I had my afib incident. I’m really starting to wonder if the change in the weather, and allergies, has something more to do with all this.

Thursday night I came home, showered, and went to bed, only to discover that one of the household cats was in my room and did not want to be. So I got up to let her out. And when I turned to get back into bed I don’t know if I tripped over something or if I misjudged where the space was to walk, but I fell.

Onto a stainless steel litter box.

Hard.

I took a photo of the bruise on the back of my knee today (it’s Sunday) and it’s blurry because it’s at a strange angle. I have another on my arm, that one’s less vivid but bigger.

On Friday, I did a lot of work for Parisian Phoenix Publishing and even agreed to pick up some extra hours Saturday night at the part-time job. Then, I had a really nice business meeting to brainstorm some strategy for 2025 and that included a beer and some wings (and some really yummy thin Triscuits. I had never had thin Triscuits before).

But then Saturday, I woke up with some sort of gastrointestinal issue. It didn’t seem severe enough to be a stomach bug, but I couldn’t come up with any food items that would have given me food poisoning. So I found someone to cover my shift and slept most of the day (and read Fourth Wing when I was awake).

Because I barely moved yesterday my body is painfully protesting walking. My lower body muscles don’t receive messages from my brain like they are supposed to, that’s due to the cerebral palsy. When I have a lazy day like I did yesterday, my legs literally forget what to do. There will be stretching today.

And it’s interesting that I think spring might have something to do with the stuff that keeps happening in March– because March is Cerebral Palsy Awareness Month.

The healthier side of fast food

I worked my way through school at a very busy McDonalds franchise, working full-time there after college graduation until I found my first professional job four months later. When I returned to food service in my thirties, it was at our local Target (in the cafe, making official Pizza Hut pizzas and popcorn and selling icees) so that I had the income our family needed to make ends meet yet have the flexibility to raise our daughter. And go to school. And travel. And all the quirky things I have done.

So throughout most of Eva’s childhood, we didn’t eat fast food and I certainly didn’t set foot in a McDonalds for 20 years. (When I finally did, it smelled exactly the same as I remembered.)

Once Eva started to work and drive and as the pandemic changed a lot of our shopping and eating habits, we have revisited a lot of the fast food options. (There is a reason I gained 30 pounds since then, I guess.)

I was vegetarian for about eight years before Eva was born and fast food is traditionally not a place where vegetarians find many options– I remember making vegetarian Big Macs and “grilled cheese” at McDonalds. Basically, take the meat out of the traditional burger. Frankly, I always thought that sounded gross.

So imagine my surprise when I was recently scrolling the Chick-Fil-A menu online and discovered a host of vegetarian and potentially vegan options. And I decided to work my way through them. Now, I have had Chick-Fil-A’s salads, and any of them can be made without the chicken (and cheese or bacon or egg depending on the salad). They even have three vinegar-based salad dressings.

Now, let me say that I am no longer a vegetarian but I still gravitate toward vegetarian options.

I am in love with the relatively new kale crunch side salad– kale, cabbage, and almonds with the apple vinaigrette dressing.

The fruit cup surprised me. It’s mostly apples, but it also has fresh strawberries and blueberries and a couple mandarin orange slices.

The macaroni and cheese is a unique take on a classic. It does not have the uber-creamy texture of velveeta like most fast food macaroni and cheese, but almost has a rich gruyere flavor and a thicker texture.

Yesterday I tried the vegetarian cool wrap, which is the traditional cool wrap (with cold chicken, lettuce, cabbage and shredded cheese) but with the beans and corn from the southwest salad as the protein.

I’m surprised at how many easy options there are.

And there is also applesauce.

Pre-Snowstorm at the Modern Laundromat

Preamble: New Job

So, life got more hectic than usual this week. That’s a large statement on my behalf because my life is normally chaotic, but I promise this is not hyperbole.

I started a very part-time job this week (two days a week, short shifts) and the details of that shall remain for a separate post. But needless to say, the interview, the job offer, my acceptance, and my orientation happened in less than a week.

Winter is a terrible time for retail– and book sales follow retail trends– and my political journalism work won’t resume for another month. With the trials our furnace put us through this autumn and the illness that knocked us out of commission in December, I needed some predictable income even if it does only add $150 a week to the household coffers.

The Flat Tire

On Tuesday, Eva and I had a tight schedule– I had a morning meeting, Eva had some lunch dog walks and a therapy appointment and when she was due to get home, I would head out the door to my gym appointment at St. Luke’s fitness.

But when I got out of my meeting I had a flat tire with a screw sticking out of it. Luckily, a man in the parking lot had a portable air compressor and filled my tire. Then I picked up Eva, drove her to her dad’s to get his car, and then drove to the tire place.

Did I mention it had started snowing?

I had not slept much because of all the goings-on so I opted to cancel my gym appointment.

The Bedroom Reno/Redo

I’ve needed to deep clean my room for a while. I live with a bratty Goffin’s cockatoo and have three cats who live in my bedroom, so it’s always gross. I vacuum and clean cat boxes every other day if not every day but there’s still dust on everything, whether it be plaster dust, dust dust, bird dander or bird seed.

Eva painted my room originally about six years ago in Behr Diva Glam, which later turned out to be a pretty close match for “Parisian Phoenix Pink.” At that time, we painted the trim almond and ripped out the carpets but we never finished the old hardwood floors. Nala, my naughty Goffin’s cockatoo, has been peeling paint off the wall and eating window trim, and when we first painted the room we had an issue where the paint didn’t quite stick.

So, somehow, one thing led to another and the upstairs of our house has been scheduled for a deep clean. But somehow even that deep clean has gotten out-of-hand. Like maybe I should have gotten a bagster or dumpster.

We ripped down everything from curtains to bedding and Eva repainted my room and updated the color scheme. I managed to find the exact color I used to have. Eva also cleaned and updated the electrical outlets and switches. We also have a new ceiling fan to go in there eventually.

Eva decided to go ahead and learn how to refinish the wood floors and she stained them Behr “espresso” water-based poly/stain combo. This room has not had the floors done since we’ve owned it, but we also did not want to wait for the oil to dry or asphyxiate ourselves while doing this in winter.

Today, before the impending snow storm, Eva and I opted to take all of the curtains, bedding and animal beds and stuff to the laundromat.

The Modernity of the Laundromat

So, I haven’t gone to the laundromat in 20+ years– even our apartments either had a laundry room or a washer/dryer hookup. But I have retained the habit of collecting “sacred laundry quarters” for parking, Aldi, tolls, emergencies like a cup of cheap coffee.

I know of at least three laundromats within a half-mile of my house and I googled them. I decided on So Fresh N So Clean for its location across from Wawa and Home Depot and between the former salon where my favorite nail tech used to work and Papa John’s pizza in the old health food store.

I expected, thanks to the web site, that there was wifi and that I could pay for my wash with my quarters or digital options or use the change machine to get more quarters. But I did not anticipate the app. The app attempted to tell me what washers and dryers were free and texted me when my laundry was almost done.