We now have a deep freezer

We recently got an old, hand-me-down deep freezer.

And at the same time, the federal government shutdown and Pennsylvania state budget impasse have complicated SNAP benefits for families who have them.

I heard on the news that 1-in-8 Americans have SNAP (Supplemental Nutrition or “food stamps”). I heard one story this morning about an unemployed widow with a 15-year-old son whose soundbite suggested she sent him to school so he could eat breakfast and lunch.

I hope she’s sending him to school for an education, first and foremost.

I consider myself a fiscally-conservative Democrat who believes that education and healthcare should be attainable and fair. I would love to have a Ph.D., but I can’t afford to finish my masters and I refuse to go into debt for it. I also have a disability, and even when I am well-employed I often have to make choices about my medical care.

Right now, I have my own small business. I work a part-time job in the food service industry to provide some reliable income on a steady timeline. I am an adjunct instructor at my local community college, and if you break it down to an hourly rate, I probably make a similar wage at my fast food job (because of the fact that I did not have the money to finish my degrees). And I have freelance writing and editing jobs and a mini author’s assistant job.

And I’m always on the look out for more. Applied for another this morning.

I started my career in public relations, and ended up in print journalism, which led to a long career of lay-offs as newspapers died. I worked in non-profit communications and development, where I learned a massive amount of useful skills like grant writing but also experienced a ridiculous amount of toxic managerial behavior. Some people work in the non-profit sector because they want to make the world a better place, but at the same time, many of those people have either childhood trauma and/or personal insecurities that create some challenging environments in an already difficult field.

I mention all of this because I have experience with unemployment. I have experience with being the single mom with maybe enough resources to survive a month. I was a single mom raising a teenager who lost her job during the pandemic and did not find out if she qualified for unemployment until the weekend after she accepted a new job. I was unemployed for four months and had opened my home to one of my daughter’s friends who didn’t feel safe in her own home.

I applied for public assistance because I was volunteering at a non-profit that provides services for people exiting human trafficking situations and my “boss” suggested it. Because I had no income and I had an official dependent, I received more than $700/month in food stamps. And Medicaid. Which was a great help. Even though I only received food stamps for four months, I rationed them so they lasted almost a year.

I had accepted a job in the warehouse at Stitch Fix. I loved that job, and the company, but after three years they decided to close our warehouse. After three years at a wage where my take-home pay was the same as what I had made as the development manager for a small non-profit with a two-million-dollar annual budget (thanks to the fact that Stitch Fix offered their employees free medical benefits), I found myself laid off again.

And when my unemployment ran out, I once again applied for food stamps. I had gone on multiple interviews, built up my small business, but still struggled with the cost of my medical care– my estranged husband put me on his benefits but my medicine was $50-$100 a month and all my doctor’s appointments I had to pay out of pocket because of the high deductible. So I really hoped I would qualify for Medicaid again. And I did.

I also qualified for $525 in food stamps.

Around this same time, Trump got re-elected and the cheap refrigerator I bought started freezing the food in the refrigerator and not freezing the food in the freezer. But I couldn’t afford a new fridge– and I still can’t– so we started buying only what we could eat in a few days, or foods that could safely thaw and refreeze.

Lettuce is not one of them, if you were curious.

The point of all this is to ask: Regardless of how you feel about who uses food stamps or how the government distributes them or whether or not people try hard enough or work hard enough, why is no one asking why we have a system where 1-in-eight Americans qualifies for food stamps?

I have seen and heard so many things about the system, and I have known people who work in the branches of government that distribute these types of assistance and they are all people who want to help. I have met people afraid to work because they might lose assistance, and I have seen people who need the help lose it because they made too much money. (And, like me, it’s usually people who need medical care.)

I have about $2,300 left on my deductible this year, and I have spent almost an equal amount if you read my EOBs from the insurance company. I’m losing my hearing in one ear and I need a hearing test and a visit with the audiologist. The muscles in my one leg have been spasming 24-hours-a-day for almost a year now and I just blamed it on my cerebral palsy but my neurologist has concerns that previously noted damage to my spine (from all these years of walking crooked) may have caused nerve damage in my lower back. And my one finger has been doing crazy things for about a year.

That’s probably at least $6,000 worth of tests. Do I just try to schedule it all before the end of the year and finance the $2,000+ remaining of the deductible on a credit card? Or Able Pay? or do I wait until I am better off financially?

Back to the deep freezer. A friend of the family was hoping to get a decade-plus year old freezer out of his house. We took it. We took all the stuff from our cheap refrigerator that needed better freezer conditions and piled it in. And I thought– when Trump was elected an I was worried about the future of food stamps, I didn’t have a freezer to fill. I did however invest in every non-perishable food item I could tolerate.

Dried Beans. Plain-old Rice. Canned Fruit. Canned Vegs. Nutritional Yeast. Some condiments. Canned Tuna. Spam. Canned Chicken.

My childhood traumas leave me to ruminate frequently about food scarcity, financial security and general stability. I will probably always behave as if every trip to the grocery store is the last one I can afford. And I have done my grocery shopping at the Dollar Tree and the Grocery Outlet because I only had $20 left to feed us for the week.

The Office of Vocational Rehab considers me the most severely tier of worker, whereas the federal government says I do not qualify for disability because I work so much and at so many jobs. But the federal government doesn’t take into consideration that I have to work that hard to make ends meet. And I don’t always succeed and I often hurt myself doing it. And I just work past it.

But how do you determine an equitable way to decide who deserves help? And I ask a third time: Why does 1-in-eight Americans receive food stamps? What is wrong with our society if 1-in-eight people cannot afford to feed themselves according to the criteria the government sets forth?

Food for thought.

The bee, the blues, the books and the… pizza?

I will be telling parts of this story on my Substack newsletter that I plan to post tomorrow morning. I write about my publishing company, Parisian Phoenix Publishing; books, the ones we publish, books for writers and fun books to read; and writing. You can subscribe here.

I had booked a table at Books and Booze 2 at Madness Distillery in the Country Junction Plaza in Lehighton, Pa. (With a name like Madness Distillery, how could I stay away?)

I had packed the books earlier this week but left decisions about signs and other marketing materials until today, and despite sleeping decently last night, my brain would not kick in. So it took all my focus to get out the door on time.

And I had to drop Eva off at her dad’s so she could borrow his car for the afternoon.

About a mile from the house, a bee flew onto my windshield at a stoplight. I pointed him out to Eva. About four more blocks down the road, he was still sitting there. I said to Eva, “If we take him all the way to your dad’s, he’ll be more than a mile away from his hive. How will he find his way home? Will he have food? Will he be warm? How is he just sitting on that windshield?”

And then I added a final thought: “If we leave him at your dad’s, that’s like someone dropping you off in England and telling you to swim home.”

We stopped. I said my goodbyes. I waited for my daughter to cross the street. The bee had not gone. So I resumed my drive.

About 4 miles later, I got onto the highway. Little bee did not fare well as my speeds increased. He slid across the windshield (toward the top), putting one foot down and another up, trying to get his grip.

I had to speed up even more, and now we’re about 12 miles away from home. The bee is starting to curl into himself and press down into the glass. I wonder: Would it be kinder to turn on my windshield wipers and smoosh him?

I can’t stop watching him, but I have to, because I’m driving 70 miles an hour on the highway. I’m getting upset, and fighting tears as my nerves fray. I ponder exiting the road because of this bee. I call Eva. I tell her everything.

“Mom, it’s a bee.”

“He doesn’t deserve to suffer. Nothing deserves to suffer.”

“Mom, life is hard.”

I cackle. I hang up. I get one more mile, and the bee rolls into a tight marble and disappears. He was on my windshield for about 15 miles.

About this time, I realize my mother married my father 50 years ago today. My father died three years and eleven months ago. My wedding anniversary was Thursday. My husband and I married 26 years ago. We splint up six years ago. And my mother’s 71st birthday was also Thursday.

The GPS took me past the site of the dirt track where my father raced micro-stock when Eva was a toddler. Past the post office where my father got his mail. Past one road to his house. Past the diner where he ate most of his meals. Past the gas station where he bought his cigarettes. Past the other road to his house. Past the funeral home where we had his services.

My parents divorced when I was 15. But my mom always loved my dad. And I think he never got over her. So I texted her when I arrived at my destination– which was alongside the lake where my dad would drive his boat.

“You married Dad 50 years ago today. I miss him soooo much.”

I set up my table, met some of my fellow authors, and tried to shake off my nerves.

Photo by author Shannon Delaney, a family member of my dear friend Mitzi from Pocono Lehigh Romance Writers and Greater Lehigh Valley Writers Group

I counted about 20 people who attended the event– not including anyone with the other vendors at the event. I sold three books: two hardcover copies of Larry Sceurman‘s Bookworm’s Magical Journey and one advance copy of Geraldine Donaher‘s young adult Mouth Shut Head Down, which doesn’t officially launch until January.

The distillery had a sign in the window. It read “Adult Book Fair Today.” I think what they meant was “Book Fair for Adults today” or because it was a distillery, “Book Fair today. Adults only!”

But it immediately made me think I should have brought more erotica. The only erotica title I brought was Juicy Bits. Most of the authors for Booze and Books 2 were romance authors, and it looked like the most popular offerings were romances-with-shirtless-men-on-the-cover. It looked like most vendors sold 2-4 books, though I later learned that some vendors sold none. (To be fair, tables cost $10, so no one had huge expectations of kicking off a bestselling book tour at this event.)

The event is between coal country and the Poconos, so I thought my spicy horror novels would do well. I also brought our romances, Trapped: What if Skunks Were Matchmakers? and Any Landing You Walk Away From… (the author of the latter, Dawn O’Harra, is from the Poconos). I made a Halloween section on the other side of my novels, with Hugo Yelagin‘s Lovecraftian Deadlights and Eva Parry‘s tarot journal. Any Landing served as a transiton into non-fiction, and I brought Motorhome Gypsies and Coach of the Building (as the author of Coach teaches public school in the area) and then Larry Sceurman‘s fiction to appeal to any men accompanying wives and his children’s book because many romance readers are moms. And Geraldine’s book? Not even sure why I tossed that in.

Two hours into the event, my mother returned my text. “Hadn’t even given it a thought.”

When I left the event, I was hungry and pining for pizza. The GPS took me a different way home, perhaps recognizing my emotional distress from the previous route. It took me home the route I had anticipated on the way up– it took me through Palmerton, Pa., one of my favorite places. I celebrated my 49th birthday in Palmerton. Read about that here.

As I was driving away from the venue, I thought to myself: That looks like I’m heading toward Palmerton. Maybe I can find that awesome little pizza shop in Palmerton. I looked at the GPS. It told me my next turn was onto Delaware Avenue, which, if I remembered correctly, was the main street in Palmerton. And the pizza shop was on it.

Sure enough, I entered Palmerton. Pulled up right in front of the pizza shop. Went in, ordered two slices dine in, grabbed a boxed iced tea, and paid the employee $8.64 (which is roughly the price of one Grilled Club Chick-Fil-A sandwich).

15 minutes later I was back in the car.

That little detour changed my mood. Perhaps a gentle reminder that we find our own destinies and don’t have to conform to outside expectations.

A cane, a popcorn machine and a compost heap

I realized yesterday, after working for at least four hours on a political profile for Armchair Lehigh Valley on the upcoming Easton (Pa.) City Council race, that I currently spend about ten hours a week on political journalism for that publication, about ten hours a week teaching college and another twenty hours working my evening fast food job.

That’s 40 hours a week, before we consider the 30-plus hours a week I devote to my book publishing business, Parisian Phoenix (parisianphoenix.com). I thought I had everything perfectly balanced– but toward the end of the week, my sleep was starting to suffer.

And last night I fell. Not once, but twice. And not at home. Or even on the street. But at my fast food job. Both of the falls were trips. Both were quickly forgotten.

But when I got home, and when I woke up this morning, my body was struggling. And when I caught my right foot “catching” on my left ankle and almost causing a fall on the way to the restroom, I went and got my cane out of the car.

(And because I often have a lot of 21-year-olds in my house– Eva, her romantic interest, and one of her friends from high school staying with us– they thought my snake head cane was badass. They also encouraged me to change my outfit to match it as I am currently in sweatpants.)

After finishing my lesson planning for my class at Northampton Community College this week, I started the new Superman movie as I am a Superman fan. Since the movie includes Krypto the Superdog as a significant character, I restarted the movie an hour in so I could watch it with Eva.

When Eva left for work, I cleaned the cupboards and collected all the open and stale food items that were more than a couple weeks old. I also admitted what items I would never eat and I took these out to the compost heap. A lot of crackers including a box of Triscuit thins I treated myself to and forgot about.

This is really hard for me. I have experienced food insecurity and have gone mildly hungry, so I have a tendency to not waste food to an excessive degree.

I used to garden when Eva was little, and our neighborhood has terrible clay soil so I keep a compost heap under my porch. And believe-it-or-not, the regular digging and turning of the heap provides a great deal of emotional relief for me. Resuming care of the compost heap has given me some renewed vibrancy. And a lot of mosquito bites.

And if you haven’t cared for your own soil, it’s amazing to see the soil change and grow richer.

In addition to the maintenance of the compost, I also cleaned my popcorn machine. I’m hoping maybe the 21-year-olds might want to have a movie night with popcorn sometime.

All those memories of pizza and popcorn from Target Café.

A visit to Boonton, N.J.

Almost two months.

I sat down a few times to write a post and never finished.

In the last two months:

  • I celebrated my 50th birthday.
  • My personal cat of five years died suddenly.
  • My daughter turned 21 years old.
  • I spit out part of a tooth, one that I originally damaged during my big fall 15 years ago.

Even though we have other animals, and even other cats, in the house, the loss of Fog has troubled me. That’s been hard. It creates a special loneliness to have other pets around but none of them are truly mine. Now the bird would beg to differ, she would say that she is the ultimate companion and that I should have no other beasts before her. And perhaps that makes me her pet. For larger birds are even worse than cats for acting like they are the most superior of species.

Yesterday, my dear friend (and Parisian Phoenix art director) Gayle and I went to Boonton, N.J., to see if we could find the remnants of their portion of the Morris Canal.

We failed. And while I was there (specifically somewhere around point 10 on the map), I spent a few minutes studying the map to make our visit more successful, but the summer sun perhaps made it more difficult to interpret the map. I may have to return and try again.

So, Why Boonton?

I wanted to visit Boonton for several reasons. I had been discussing and researching the Morris Canal as part of my work with Maryann Ignatz, the fourth-generation proprietor of Steve’s Café/ Historic Morris House on South Main Street in Phillipsburg, N.J. Her family’s business abutted the Morris Canal and canal workers would stop for food and drink along the way.

Reason 1. I have a fascination with canals and the Industrial Revolution in the United States. The coal regions in Pennsylvania were so instrumental in feeding the cities from Philadelphia to New York. Think of all the petroleum reliance we have today– and in this era as electricity was just coming onto the scene the indsutrial sector used coal to produce steam to provide energy for travel and manufacturing.

Reason 2. I was born in Boonton and some of my family used to live there.

How the visit went

Parking is super easy and plentiful with a $1 fee to park all day. If you use ParkMobile, the fee is $1.30 and gets you exactly 24 hours.

I fell before we got fully out of the parking lot.

(But it was my first fall since April! And it didn’t register on my watch which means it wasn’t a hard fall. The impact was relatively gentle.)

Loved the Van Gogh paint job

The downtown had at least four coffee shops, some art galleries, several gyms/pilates/yooga studios, a record store, an alternative clothing shop, a bookstore (which is only open Friday, Saturday and Sunday), pizza places, convenience stores, a crystal store, a Mexican restaurant in what appears to be a classic diner, and other businesses and restaurants.

We meandered along the Rockaway River and found a couple of the spots listed on the map, but somehow completely missed that we should have explored Plane Street.

After exploring parks and looking for historical markers for about 1.5 miles, we visited Catfight Coffee– chosen for its name of course. It offered Goth-inspired decor and music from the dark end of the 1990s. ‘

The final thing we noticed was The Dog Days of Summer project. Various dog sculptures lined the downtown.

The Day the Garbage Trucks Swarmed

My shift at the restaurant Thursday evening went much easier than Wednesday— though I couldn’t bend and reach the floor and I took a lot of Baclofen.

And my left hand strangely hurt last night in the fifth metatarsal, in the same spot where I broke my right hand what had to be a decade or more ago.

Today I slept until 8 a.m. when my Goffin’s cockatoo, Nala, screamed, probably concerned that I died in my sleep.

I stripped my bed, started laundry, drank some coffee and used household chores as my warmup for a home workout. (After clearing my business email and banking stuff.)

The scale showed another pound gone. Soon I might hit the ten-pound mark.

Nothing like 30 or 40 pound cat litter boxes to practice farmer’s carry. And five trips up and down the stairs gets the heart rate up.

I did a pretty solid shoulder workout today, 22 minutes of just weights— including push press, dumbbell row, shoulder lateral raise.

Did some more wash, handled some more email and spoke with one of the Parisian Phoenix authors about a presentation we have been invited to give at Hellertown Library.

I did the dishes, started cooking some chicken livers for the dog, and made myself a big salad with lots of carrots.

I went to Panera for a while to work on my background material for the stories I am writing for Armchair Lehigh Valley regarding the May 20 primary.

And I got my schedule from the restaurant— 4 days in a row and 22 hours. I messaged my boss on Slack to warn her that that may be a struggle for me. She hired me so quickly I never had a chance to tell her about my cerebral palsy. She hired me to work 10-12 hours a week in the dining room, so I didn’t think I would have to.

But here I am, working 20+ hours all over the place.

I wasn’t sure how to bring it up, and I feel it’s better to do these things in person, but at least on Slack there’s a paper trail.

It turned out to be a great conversation. One we will continue in person. As I suspected, she’s short-staffed and I can really use the money so I didn’t want to complain.

Eva picked me up and we stopped at Grocery Outlet. And as soon as we got home, three garbage trucks swarmed us and our house.

I made a vegetable lovers DiGiorno thin crust pizza and split it with Eva and watched some more of The Pitt. Then I came up to make my bed, clean litter boxes, feed the bird, and get the cats water before my shower.

Now it is almost 8 p.m. and I plan to read until I am sleepy.

Yesterday was hard

I don’t want to write this. I am tired and I want to go to bed and pray that I am not in too much pain to sleep. I won’t post it until tomorrow (Hence referring to today as yesterday in the title.)

Nothing bad happened. It was just a bad day physically, and it’s been a long time since a day hit me this hard.

I need to write about it though, because I am under strict instructions from my doctor to pay attention and note anything unusual because she’s heard some of my symptoms and said that if I were any other patient I’d be going for tests.

And if I don’t write this blog, I will forget today was a bad day physically.

It started nicely enough. Visted Nancy Scott and noticed then that climbing the stairs felt more stiff than usual.

Ate decently. Tried a sample meal replacement bar for breakfast and ate a HUGE brunch of potato, broccoli, multi color peppers, egg and feta. Had two pieces of licorice and a whole bunch of unsweetened and barely caffeinated tea.

I noticed while changing into my work uniform that my knuckles felt achy and weak and like I was about to injure my middle finger as I did with my mallet finger/sock incident of 2022. (If you want to read more about my mallet finger, click here.) This sensation returned again at the end of the night before I showered.

I took 10 mg of baclofen. In the morning, I took five.

Left for work at 1:30. So here’s the big reveal– in addition to my publishing company, I took what was supposed to be a very part-time job at Chick-Fil-A. My reasons for selecting that particular job were very specific. That might be a good topic for another post.

Once I arrive, I grab some Coke Zero. I usually stick to unsweetened iced tea or seltzer while I’m at the restaurant, but tonight I needed something a little extra. The back of my right thigh is spasming.

I started my shift running people their food inside the restaurant. It’s not my strongest position, but I like the movement. Then, I went to the drive-thru window for an hour, before I went back to running. My legs felt very heavy and clumsy the whole time.

Then, I went on break. And I ate a fruit cup. Everything still felt hard to move.(I walked a total of 15,000 steps today and two hours of my shift registered as exercise on my Apple Watch.) While outside I started stumbling, and twice I almost pelted some cars with bags of food.

And it was cold outside! Then, the icy rain started. Eventually, I got a poncho, and after about two hours I went inside and washed my hands for five straight minutes trying to get them warm again. At this point, my lower half hurts and I can’t bend and reach the floor.

And one of my supervisors accidentally clocks me in the cheekbone with his elbow. Hard.

I finally leave, and my phone alerts me that my heart rate is high. It hovered around 120-135 most of my shift. It usually does.

My toe hurts– not sure if I’m getting a blister or the toe I almost broke or the neuroma giving me trouble.

I came home, showered and made myself some food. And took 20 mg of baclofen. Making my grand total for the day 35 mg. I think. My blood pressure is also trending upward, at 112/78.

My phone says my average walking asymmetry for the day was 2.5 percent, but I noticed there was a lot of asymmetry. Often when my numbers are bad, they are a lot higher but only happen once. This was happening frequently. It looks like it was happening a dozen times an hour.

So, I came home wet, cold, stumbling and hurting.

I record this now to improve my memory of what the bad days feel like.

The close-out of my medical fitness program

Monday is my last session as part of the Thrive medical fitness program at St. Luke’s. Working with the trainers in the program has reminded me of some hard truths– and the part that’s hard is the reality of your own habits and thinking patterns.

The numbers show some nice progress. I lost four pounds of fat and gained one pound of muscle. (And had I eaten better imagine what those numbers could have been.) My blood pressure according to their records has stayed the same, but based on my home readings has gone down and requires less medication. The strength-based tests– well, I kicked butt.

I certainly feel better, and stronger, though I still have work to do on my cardiofitness. That won’t really improve until I commit to more cardiovascular exercise, even if it is just walks around the neighborhood. I would love to return to riding my bike again, but there’s a fear factor there. It’s an activity I don’t want to do alone, which is also true of walking.

But here are the lessons:

  • When my body hurts and locks up, strength-training stretches all those muscles and gets rid of the pain.
  • I can only lose about a pound a week if I eat well and exercise at least three times a week. Diet alone won’t do it. And my food choices don’t have to be perfect but they have to be solid.
  • Salt is my nemesis. Too little and I experience orthostatic hypotension and lightheadedness, too much and I end up with as much as five pounds water weight.
  • I must be choosy about my fast food. Domino’s or Little Caesars pizza will put me in a coma, and I will sleep so well, but the impact will show on my heart rate, blood pressure and weight. Wing Stop has no benefits, only the effects of the salt. I now keep various processed chicken products in the freezer because while they are not a wholesome choice, I can make my own sauces to replicate Wing Stop and save the truly detrimental health effects. Taco Bell in small doses can be tolerated, and I usually get a cheap box deal and make the items all vegetarian. It adds some extra fiber and vegetable matter to the mix.
  • And out of all the fast food chains– I can navigate the menu at Chick-Fil-A and not notice any real impact. Their fruit cup and kale crunch salad, especially when paired with grilled nuggets, are solid choices. They also have a chicken (or vegetarian) cool wrap, which, while it is calorie dense, is easy and quick to eat– with a good portion of lettuce and cabbage. (Yes, they also have amazing salads, but those big salads are realistically three portions. That’s a lot of salad and chicken. A lot.)

Do I have the discipline to not only continue but improve upon this progress? I don’t know. Honestly. IF I made a commitment to meal planning and cooking, I could. But with money and time always an issue, I don’t know. With stress leading me to seek comfort in my favorite foods– did you know they have Sour Patch Kid Jelly Beans? Eva says they flipped Sour Patch Kids inside out… With fatigue influencing my choices– caffeine and sugary carbohydrates, anyone?

Will I get up in the morning, drink a glass of water, and commit to some sort of exercise in my home gym?

Damned if I know.

Stay tuned.

The Massachusetts Whirlwind (Day 1)

Gayle and I left my house in Pennsylvania’s Lehigh Valley at 7:50 a.m. Our destination was the Embassy Suites in Marlborough, Massachusetts, for EH Jacobs’ book signing at Tatnuck Booksellers tomorrow.

I noticed the other day that Dunkin has its spring menu out and I was very excited to have a pistachion flavored coffee. So, after about an hour on the road, we stopped in Bernardsville, N.J., for breakfast at Dunkin — and I didn’t like my coffee. Which I used to love.

For some reason, no matter how many times I told the GPS not to, it insisted on taking us over the George Washington Bridge and threw the Bronx. That was unexpected.

And somewhere early on in Connecticut, the tire pressure light came on. But briefly thereafter we stopped at a service center in Alltown that had free air, but it was too cold and windy to check the tires and deal with them. I’m fairly certain is the 60 degree to 30 degree temperature drops from the course of the last week causing issues, but it could be every time I come to Massachusetts, I don’t put enough air in my tires.

New Haven

Before we left I googled interesting bookstores around the half-way point so we can get out of the car, wander a bit and connect with some new people. New Haven popped up as the stop with the most potential based on geographic location, the time we left (Because we leave early and stuff isn’t open sometimes until 11 a.m. or noon), and the number of potential stops in the vicinity.

It’s usually done by gut feel, google search and social media. And I typically completely forget WHY I picked a place.

STOP 1: POSSIBLE FUTURES

So, if you don’t know, I have a bachelor’s degree in English/French language and literature and a second bachelor’s in international affairs. I did somewhere around a third of my master’s degree in world history– where I intended to focus on post-colonial Francophone Africa. My academic interest is in stereotypes and the racism against indigenous people, especially in the case of the French, the prejudice against Muslims. The French treated the Muslim colonial subjects as the lowest class of citizen, deeming them unfit for miscegenation (a tactic popular as part of the civilizing mission in Asia, for example) because it would weaken the French bloodlines.

Gayle and I approach this bookstore and find a mural. Gayle loves murals. We find a memorial to abolitionist Ruth Wilson Gilmore and evidence that in warmer weather this area houses a container garden.

The academic critical theorist in me loved seeing the works of Aimé Cesaire and Franz Fanon on the shelves, with memoirs of people like Josephine Baker (which I almost bought). Black novelists (stunning collection of Octavia Butler, but she is making a comeback) and quite a few Louise Ehrlich. The inventory included feminist books, Muslim books, lots of queer and other marginalized voices. And such great vibes! This one will make my bookstore and book detour list as part of my Substack newsletter/resources.

Although our other stops were only a mile away on the Yale Campus, we opted to drive as the wind was brutal.

And I did the worst parallel park job of my life on York Street. We’re not going to talk about it. But in my defense, the space was small. But I got in it!

GREY MATTER (south)

This was a really great used bookstore with reasonable prices. (Have you been to those bookstores that base their prices on the original price of the book? I don’t like those.) I bought three books– The Long Island one by Taffy what’s-her-name and two books about colonization in Africa from the 1960s. My bill was $19.

I’m not sure if I should write this… but the vibes between the two places made me think… Possible Futures was obviously the more liberal place and had a lively energy, lots of color, friendly staff who liked to chat, and a real sense of mission and place. Grey Matter felt much more conservative, dusty and stodgy and entrenched in that sense of academia and, well, whiteness. (Which one of my Africa books is by an Indian man from an Indian publishing company so I can’t wait to see his report of what was happening in Africa.)

Gayle grabbed an iced chai on the way back to the car, but sadly she dropped it before she even had a sip.

Speaking of sad, the GPS continued its revolt and took us up smaller roads to the Boston area. Route 20 looked very, very strange. The buildings were all empty at the side of road and neglected and lots of construction everywhere– Gayle thinks they are widening the highway.

We arrived at the hotel and were extremely impressed with our room. And the snacks. And the location and the friendliness of the staff. We were scheduled to meet author E.H. Jacobs and his wife at Welly’s for dinner. And I gave Ed his royalty check.

I had a lovely fig and arugula pizza and came back to the hotel for a soak in the hot tub.

I had hoped to fulfill one of Gayle’s wishes and go see Harvard’s Gutenberg Bible, but we discovered too late that they do not have Saturday hours.

The healthier side of fast food

I worked my way through school at a very busy McDonalds franchise, working full-time there after college graduation until I found my first professional job four months later. When I returned to food service in my thirties, it was at our local Target (in the cafe, making official Pizza Hut pizzas and popcorn and selling icees) so that I had the income our family needed to make ends meet yet have the flexibility to raise our daughter. And go to school. And travel. And all the quirky things I have done.

So throughout most of Eva’s childhood, we didn’t eat fast food and I certainly didn’t set foot in a McDonalds for 20 years. (When I finally did, it smelled exactly the same as I remembered.)

Once Eva started to work and drive and as the pandemic changed a lot of our shopping and eating habits, we have revisited a lot of the fast food options. (There is a reason I gained 30 pounds since then, I guess.)

I was vegetarian for about eight years before Eva was born and fast food is traditionally not a place where vegetarians find many options– I remember making vegetarian Big Macs and “grilled cheese” at McDonalds. Basically, take the meat out of the traditional burger. Frankly, I always thought that sounded gross.

So imagine my surprise when I was recently scrolling the Chick-Fil-A menu online and discovered a host of vegetarian and potentially vegan options. And I decided to work my way through them. Now, I have had Chick-Fil-A’s salads, and any of them can be made without the chicken (and cheese or bacon or egg depending on the salad). They even have three vinegar-based salad dressings.

Now, let me say that I am no longer a vegetarian but I still gravitate toward vegetarian options.

I am in love with the relatively new kale crunch side salad– kale, cabbage, and almonds with the apple vinaigrette dressing.

The fruit cup surprised me. It’s mostly apples, but it also has fresh strawberries and blueberries and a couple mandarin orange slices.

The macaroni and cheese is a unique take on a classic. It does not have the uber-creamy texture of velveeta like most fast food macaroni and cheese, but almost has a rich gruyere flavor and a thicker texture.

Yesterday I tried the vegetarian cool wrap, which is the traditional cool wrap (with cold chicken, lettuce, cabbage and shredded cheese) but with the beans and corn from the southwest salad as the protein.

I’m surprised at how many easy options there are.

And there is also applesauce.

Gunk and other updates

It is Saturday, December 28, around 8:30 a.m. when I start this. Do not expect much eloquence from me, as the gunk Eva passed on to me from her recent illness is still interfering with my ability to think and sleep. It has instead given me a lovely cough, which now after more than a week is getting “wet” and “productive.”

I FINALLY finished my medical intake at the St. Luke’s Medical Fitness program. Because of my paused membership, I’m not sure when my end date in the Thrive program is but let’s assume mid-February for now. This whole journey started in early November when I visited my neurologist-physiatrist to talk to her about my recent mobility issues and any concerns she had about me returning to an exercise program.

The older I get, the more I worry that my cerebral palsy will cause me to hurt myself because I tend not to notice when my body is doing the wrong things.

Eva has worked really hard on remodeling the garage and including a space for a home gym, so I need to pay some attention to myself in that regard. But I’m out of shape, and falling more than usual, so I’m scared.

My neurologist referred me to the medical fitness program, and I had my first medical intake appointment on November 11. My blood pressure spiked during that appointment, so they sent me home without doing the baseline exercise portion of the intake. I returned two days later, and they almost sent me to the ER because my blood pressure was still bad.

Here are the previous entries recalling all of that, when it was happening.

Two trips to the primary care doctor, two trips to the cardiologist, and two or three falls (depending how you count, one was a trip, but I still believe it happened because of balance issues which makes it a fall) later, my blood pressure seems under control again.

And of course, yesterday, when I turned up at the gym in the basement of the hospital, it was 130/90.

Since I’ve been fighting the gunk, I almost canceled the appointment, but I filled a water bottle with my electrolyte flavor, grabbed a scarf, forgot a mask, and hopped in the car. My fear was that if I canceled the appointment, the intake would have to wait until after my colonoscopy and I was worried that one thing would lead to another and I’d never get this done.

When I arrived, I forgot my water bottle in the car, still couldn’t find a mask, and realized I had no idea where my membership/gym tag was. In the back of my mind, I knew I had packed a gym bag at my last attempt and that the tag was in the gym bag. But where was the gym bag? And what bag did I use?

Lots of hand sanitizer and frequent hand washing and I refused to shake the young man’s hand. I also told him if I continued to cough and he had to send me home, I understood. But I reiterated that I had had many trials to get to this point and I would rather be sent home than continue the cycle of not trying.

Onto the fancy scale I went (168) and I know that body fat percentage was in the forties, wish I could remember what it was when I was super lean a decade ago. Turns out that information may only exist in paper journals in my attic.

39-year-old Angel … with something to prove before hitting 40

The Angel in the pictures is 45 pounds lighter than me, and I think those 45 pounds, age and stress have had a ridiculous impact on my blood pressure and my mobility. (And for the record– the sweatpants worn by Angel in the pictures were my favorite sweatpants ever.)

I have learned that my body reacts strongly to salt and sugar, and that I “do better” when I cook, and that I have no self-control with processed snack foods like potato chips and doritos.

The trainer I met with yesterday talked about maximum heart rate and how hearts slow down as we age. The highest my heart rate reached in 2024, according to my AppleWatch, was 186. 207 was the highest since I got the watch. The online calculators I have seen suggest that my maximum heart rate for my age is between 170 and 179.

The trainer, and maybe his name was Ryan but maybe I invented that, would like to see me four times a week. I still have the mental mindset to make this work, but my physical stamina and fortitude have worn me out to the point where I can talk myself out of my own efforts.

I found this post from when I started my journey with Apex Training in 2021.

Maybe, someday, I will get my discipline under control and be one of those old ladies who powerlift. Screw the whole red hat/purple dress thing.

Meanwhile, Monday is my first colonoscopy. It was supposed to be the Monday after Thanksgiving but the doctor had a death in the family. Tomorrow I start my official bowel prep, and it scares me, because I get shaky without food, and low blood pressure without salt, and I already have a mobility disability. Then they will knock me out on Monday, and I tend to have a heavy reaction to medications and anesthesia. So none of this makes me comfortable. The actual colonoscopy, that doesn’t scare me. But everything else does.

So tomorrow, unless I experience miraculous healing today, I will be expelling mucus from my lungs and all the poop from my bum.