I wish I had some exciting reason that it’s been two weeks without a post. The reality is that I’ve been ghostwriting a novel and that every free moment I have has been dedicated to that client who is currently paying my mortgage. Luckily, I love the client, I love the story and I love the whole experience of being a part of the project so it’s not a hardship by any means.
The book publishing entity– Parisian Phoenix Publishing— has been paying the other costs of life. If you follow the blog there and/or read the Substack newsletter, you will see we are always doing something to keep the company and its authors growing. And if you need another reminder of why and where to buy books, check out the shop we’ve curated at Bookshop.org, where you can shop online and designate your favorite independent bookseller to receive the profits from the sale.
So, rather than try to catch you up with every bit of crazy while I’ve been away, let me provide this fine list:
The Initial Joys of Summer
The Teenager only has a few more days of Teenagerdom and she has spent much of the last month renovating our garage into an indoor/outdoor living space. She is hosting her birthday party out there and I can’t wait to show you the final result.
2. I have started using the outdoor patio more as the Internet extends that far and there’s really no excuse.
3. We decided to try the Papa Johns Cheeseburger Pizza and their new Spicy Lemon Pepper Wing Sauce. The boneless wings are terrible, but the sauce is out of this world. And the burger pizza– especially with the $10 promotional price point–might be our new favorite food. The Teenager has proclaimed that all pizza should have pickles.
4. I spent some more time with my cat, Fog. We normally use a “crate and rotate”-style system for all the animals. For the last year, my boy Fog, our old tripod Opie and the cat the rescue gave up on, Canyon, have been in my room. We decided to let them free roam and this meant I got to spend some time during my long work days with my man, Fog.
5. Speaking of cats, our houseguest, Paulie, still loves to bite me, but he has gotten quite forward about being in my business.
6. We pre-gamed the Teenager’s birthday by going to Dave & Buster’s for some arcade time and then visited this strange convenience store with the old style poker video machines, alcohol, vaping supplies, penny candy, ice cream, strange snacks and all the household goods one would expect from a convenience store.
7. I made some new recipes including rhubarb quick bread (think banana bread but with rhubarb) and my own twist on fried pickles. I smeared/shredded cheese on a kosher dill pickle sandwich slice and then pinched it into a piece of Italian meat before breading and frying. Both were amazing.
8. My 2015 Jetta turned over to 71,000 miles. The Teenager has been driving it for work, so it only had 55,000 on it when I got laid off from Stitch Fix in September. But in other exciting news, before the end of the month, the Teenager should pay off her 2012 Nissan Rogue which we’ve had two years when we only planned to keep it for six months. It’s pretty much ready for a demolition derby now, but it was The Teenager’s first car loan and she paid it off six months early.
And lucky number nine….
(The Celts believed 9 was a holy number, because nine was a collection of three sacred threes.)
9. Today, I got to have a lavender matcha latte with my book-making, mixed media, painting artist friend Maryann Riker of Justarip Press. We stopped at Spectacular Coffee at Easton’s Silk Mill after indulging in a green sale (yes there is such a thing!) at Vasari Oil Paint.
And my illustrator Joseph Swarctz of the Echo City Capers series drew me this “sexy Angel” for the conference coming in the fall. I think she’s fantastic. He asked me, over lattes at Panera because we were being fancy at our business meeting because it was my birthday, if I felt any different.
I had mentioned that as I get older, I suddenly realized how old everything else around me has gotten. Like the used car I bought in 2019, it’s almost ten years old now. And don’t even get me started on The Teenager– she’s going to not be a teenager anymore next month.
The mood (and the drama?)
I expected my birthday to be a catch-up-on-work day. I had hoped my birthday would be such. And I hoped that would distract me from the fact that since my father passed away, my family no longer talks to me. My mother sent me a passive-aggressive birthday card last week and my stepmother, who shares my birthday, made it clear that she does not want me in her life, first by ghosting me for more than a year and then by calling me up in February and listing everything I’ve done that she disapproved of during our 30-year-relationship.
Both my mother and my stepmother have experienced a lot of loss in the last few years, so I’m going to remember that. This isn’t the place to talk about family history, trauma, and the list of all the terrible things that can or did happen to people. We all live, we all love the best we can, and we all make mistakes. I think that’s part of why my dad meant so much to me– he understood that.
My dad
My dad was an extremely imperfect person, and now that I reflect upon it, he would make the most amazing fiction character. He was only five-feet tall and wore black motorcycle boots, jeans and Harley-Davidson t-shirts. He had tattoos, some of which honored the important people in his life. He was an alcoholic, and when I was a kid, he drank a lot. And sometimes that led to violence between him and my mother. Violence that I witnessed.
He also could fix anything. He had this sharp, strategic mind that could solve puzzles. He liked the Pittsburgh Steelers and would play Uno with me as he laid on the couch and watched Sunday night football. Which, as a parent now, I see is the easiest way possible to spend time with a child and still do what you want to do. For a while, I even collected football cards to share something, other than Uno, with my dad.
My dad would always have friends around with motorcycles or cars that needed fixing. They would arrange trades or bring gifts, which might have been because he wouldn’t take money.
I could tell stories forever about my dad, but the point is, that it always seemed like he gave people the benefit of the doubt, even when it was clear they were a mess, and I think that’s because he understood that we all have imperfections and some of his, he couldn’t fix. He could changed his behavior in a lot of ways, but sometimes those imperfections still hold us back.
So, it’s my birthday. And the only relatives who contact me do so on Facebook– and I have one cousin who posts this fabulous picture of us kids by my grandmother’s pool. I am between my cousins in the middle of the back row.
But for someone who did not expect or intend much birthday celebrating, it was a chaotic one and I have a feeling it might all extend into next week.
The PreGame
On Saturday, I presented a workshop to the Greater Lehigh Valley Writers Group. So, some of last week I “lost” in preparation for this event, which went fabulously, though I spoke too fast and squeezed what should have been two presentations into one. I thought I could use Sunday to recoup some lost client time.
How wrong I was.
I started with a Substack newsletter for Parisian Phoenix Publishing. You can read that here. I caught up on some email and watched a replay of a webinar I missed when I went up to the Times-News on Thursday. Then, it was time to go to Barnes & Noble in the Southmont Shopping Center where Joe was selling a LOT of books. It was one of our best days there ever for Echo City Capers.
And when I got home, I thought, now I can focus on some ghostwriting for my mafia novel client.
And then the Teenager approached. “Hey, Mom. I’m going down to groom [my friend and fellow author Tiffani Burnett-Velez’s] dog. You’re coming, right?”
Well, five-plus hours later I came home with a full belly and a copy of Tiff’s first novel because we traded– her first, for my fourth. And a cookie.
The family even sacrificed a cherry pie they had purchased for themselves to celebrate my birthday. And Tiff and I talked about neurologists longer than we probably should have. Because mine is the best one ever.
And during the drive home, the Teenager mentions that she has time on my actual birthday if I want to have a little adventure in the afternoon. So, I send her a list of ideas.
My birthday
The Teenager was definitely confused and perhaps disappointed by my final choice of Palmerton, Pa., for our outing. But I have a strange soft spot in my heart for that town and after my trip to Lehighton earlier in the week it felt like an easy choice.
Our first stop was the Country Harvest grocery store because according to Google maps they had doughnuts and a coffee bar inside. And unexpectedly, or perhaps very expectedly, The Teenager and I found lots of fun items in there. Including the iced teas we both had in school, and varieties of cat food that The Teenager’s finicky cat might eat. And for some reason The Teenager wanted puffed rice, and we picked desserts from the cooler and I bought a copy of the Times-News.
Then we walked down the main drag to go have a quick slice of pizza. Imagine our surprise when we discovered an amazing taco pizza, which we chased with a walk past the park and a visit to the public library so I could use the bathroom and enjoy the beautiful architecture.
The Teenager mentioned that she recognized the town and she felt like it was a place she had visited with my father on the motorcycle. That made sense, I told her, because my dad loved to take the motorcycle along the Lehigh River and through the picturesque hills and valleys of the region. So to celebrate him, we spent some time with the crane machine, another of my dad’s favorite activities.
I think what made the day special was that all we did was walk, talk and enjoy the scenery. Toss in some desserts and a good slice of pizza and what more could I ask… well, and it turns out we also had the presence of my dad.
In January 2003, my now estranged husband and I bought our house. We hadn’t been planning on buying a house. Some time in the months after we got married we moved from our first apartment to a bigger one, and I honestly don’t remember why. Maybe the rent went up in that shoddy building or maybe I got sick of incidents like the time the landlord had someone take the tires off my car thinking my car belonged to a tenant who owed him money.
Darrell and I loved our first apartment. We could pass the groceries directly from the sidewalk through the kitchen window. We could sit outside with our cat who liked to play with the neighbor’s dog. And the guy who owed my landlord money– I think he owned ‘The Cat Who Came to Visit,’ the cat who used to sneak in our open windows and sit and watch our fish tank. Or was it our lizards?
Our second apartment was in a sorta-questionable neighborhood but it was only $100 more a month than our first apartment for a lot more space and essentially what was a two-story cottage attached to an apartment building. (This was circa 2000: $475 for our one bedroom in downtown Easton, $575 for our “two bedroom” on Easton’s South Side. Compare that to today. If you want to, do a real estate search on zip 18042.)
That particular landlord and his administrative partner kept putting the property on the market because the insurance assessor kept claiming the building was worth far more than the owners thought it was worth and to prove it, they would try to sell it for that price.
Finally, I had enough. We had a great landlord in that second apartment. And we didn’t want another landlord who would take the tires off of my car.
So we bought a house. At apparently the ideal time to buy a house. It was out of our price range at $95,000 but luckily the price dropped while we were talking to our real estate agent. It dropped to $89,9000. I have never felt so old as I do today writing that.
The next year, the other half of our twin sold for $120,000. The following year (or so) an almost identical home a couple doors down (but without a garage) sold for more than $150,000. And I’m not sure, but now some of these homes are selling for $200,000. I can’t even.
Anyway, the point of this post was not to comment on the insanity of the real estate market. I wanted to tell you my definition of a “starter home.” Our home is “half a double” in town with a nice school district and in an almost completely walkable neighborhood. We have three bedrooms. We had two full baths until I asked the plumber to rip out the rotted downstairs shower in favor of a stacked washer and dryer so I don’t have to worry about falling down the basement stairs.
But now I can say I have two washing machines.
We have an enclosed (heated) sun porch, a detached garage that’s got an entire workshop, and despite some issues and small or weirdly shaped rooms, it’s a solid brick house. And when we bought it, I thought about people who called it a starter house. They implied that some day we would buy something bigger and better.
But now I think I have a different definition of starter house. It’s the house you learn on, practice maintaining, and in so many ways, the house I have both cherished and failed.
I have learned– the hard way– that the starter house teaches you about plumbing, windows, drafts, electricity, floods, patching plaster, staining floors and painting walls, all on a regular timeline to keep the house functioning. My toilets exploded a year or so ago. The toilets were probably eighty years old and my daughter sat on one too hard and cracked the tank in the middle of the night. It ran and ran and flooded the house.
Which was our second bathroom related flood in this home.
I’ve learned a lot about deferred maintenance and things I should have done and things I need to do. And the costs of owning home. Which is still way less than the cost of renting in my area. So, I use my home as a learning tool for my daughter who has taken home repair and wood shop and pays attention to every person she meets who has skills.
Because her father and I do not.
So on Wednesday, I had a job interview and a business meeting and when I got home, The Teenager had successfully patched the concrete on the garage floor. She decided to tackle replacing our faucet. Because we have an external dishwasher, it puts pressure on the faucet and they have a shorter-than-usual shelf life. We found a new one that I could review for Amazon, saving us the expense.
But we found we didn’t have the strength to remove the old one– which was regularly flooding the counters and the floor. Apparently the plumber had used a power tool to install it. The Teenager emptied the trap and removed the pipe. Unfortunately when we disconnected everything, the one piece of old pipe disintegrated.
The next day we called the plumber. Since The Teenager did most of the work already, it took the plumber minimal effort to attach everything and we really like our new faucet. Now, we just need to find another way to use the dishwasher or hand wash dishes, which I haven’t done in 20 years (20 years almost exactly as I got the dishwasher in May 2004 right before The Teenager was born).
If you miss my ridiculous banter, you may want to visit ParisianPhoenix.com because most of my activities now relate to the publishing company because I’m trying to develop enough business to make a living now that Stitch Fix has closed its Bethlehem warehouse.
Speaking of Stitch Fix, one of my friends who has gotten fixes religiously since I started with the company got an email today that whatever warehouse shipped her fix instead of ours did not scan the package as it left the facility so neither Stitch Fix nor the carrier has a record of it. Therefore, if she does not receive a fix today or tomorrow, she is to let them know as then they have reason to believe it is lost.
Yup. Did I ever mention that we were the most efficient, safest working warehouse in the network?
Random Cat Photo: Touch of Gray
Anyway, back to my day. I started my day assisting the Teenager with course registration at her college. She is studying BS psychology and had a good plan. She had courses and backup courses and I planned on catching up with my NaNoWriMo word count (if you don’t know what NaNo is or you have opinions about the NaNo controversary, my take is here) before meeting Nan and a poet friend.
She could not get into ANY of her classes, nor ANY of her backups, nor ANY classes at all in her department. With my help, we found Intro to Women’s/Gender/Sexuality studies, Theory of Religion and Intro to Sociology. She’s also hoping– but probably doesn’t have a chance–to get into astronomy. The professor was on of her pet-sitting clients.
With this new course load, I think she should apply for an interdisciplinary major of her own design, the new BA in Cult Leadership.
I managed to pull 500 words for my novel before heading out to get Nan.
I decided to give Nan her “Christmas present” early. I put that in quotes because I would have gotten it for her regardless of the season. It kept popping up on the available Amazon Vine items that I can review. If you’ve heard about Nan enough, I probably don’t have to tell you she LOVES NASA. She has followed the space program since before man landed on the moon.
Nan won’t go out for the day if there’s a NASA event going on. She has cable simply so she can watch NASA TV.
I got her a decorative desk piece that has an astronaut on the moon with some sort of moon lander or rover. And the space suit has a ledge where you can place your cell phone and the lander thing is a pencil can. The most impractical gift for a blind person. It’s a sculpture you can’t see, with features for items you don’t use.
I’m relieved to say– she loved it. She loves that she can put her two pens that she keeps for sighted friends on her desk. She loves that the sculpture has enough detail that she can look at it. And she loves that for the first time, she has something space-themed she can display.
We took it up to her room and arranged it on her desk and headed to our appointment. We had made arrangements to meet a new friend, we’ll call her the Italian Poet. We were workshopping some of her poems.
Now here’s some motivation/inertia for you: If you write, paint, photograph, whatever, you must find others who share your artistic sensibilities and draw from their energy. Sometimes you share feedback, sometimes you seek inspiration together. Sometimes you learn, sometimes you teach. But the union of people in a space can build spirits and keep you going.
And after Italian Poet encouraged me to pursue my educational goals and I prodded her to finish her Ph.D., Nan and I embarked on our annual tradition: Gobbler bowls at Wawa.
We live a simple existence. Then we taste-tested a peppermint watermelon sparkling water. Nan did not approve. I did. But, as Nan says, I do seek out the weird stuff.
The Teenager used Nan and I for a photography project.
I went to the gym for leg day where I squat 120 pounds on the barbell for eight solid reps. Definitely liking that!’
My secret hope for this weekend was to run to Washington DC and visit my traveling companion M. He has to work this weekend, so I ended up chatting with him briefly on the phone and accompanying The Teenager to Quest for bloodwork.
Like me, The Teenager has difficult veins, but I’ve had good luck with one particular Quest office I book for all my blood draw needs.
Apparently in addition to being tiny, The Teenager’s veins like to hide. They did manage to extract the goods, but it took a heat pack, some patience and some trial and error.
Since the bloodwork required fasting, we stopped at Sheetz where The Teen loaded up at carbohydrates so I swung by Dunkin for an egg wrap to balance her choices. She had a client meeting at 10 and at 9:45 the employees at Dunkin couldn’t find our order.
I told the Teen to leave me and I’d read a book in the lobby until her return. So here I am.
I’m reading The Last Train to Key West by Chanel Cleeton that I ordered through Bookshop.org. The book is the next selection for the book club at Mary Meuser Memorial Library where I serve as a trustee.
In the lobby with me, there sits three men of “Middle Eastern” descent, probably Lebanese or Syrian, all jabbering away in Arabic, one of whom The Teenager and I recently met in our local CVS.
Shortly after I arrived, the woman with two toddlers whom I saw at Quest came in. She treated her kids to donuts, probably as a bribe after sitting in their collapsible wagon at Quest.
When I started this week, I whipped out a variety of paper planners: my monthly Silk & Sonder and my daily planner I received through the Amazon Vine program (their product reviewing service). My Silk & Sonder contains my appointments and my weekly plans, whereas I fill out the daily planner to give myself realistic expectations of what a person can achieve in a day.
I had hoped– in addition to the job hunt, freelance projects, getting caught up on phone calls (schedule the furnace maintenance, research cheaper car insurance) and cleaning my house– to embark on a strict schedule of blog posting: Monday, Wednesday and Friday for the business (Parisian Phoenix Publishing) and Tuesday, Thursday, Friday for my personal blog. Then on Sunday, I would send out my Substack.
I went to a variety of job interviews, made $165 in freelance work, and even had a professional forgive my outstanding bill in exchange for a couple hours of my time giving editorial and marketing feedback. Today I received my last paycheck and I hope I have planned everything as well as I can for upcoming lean times.
But this morning, I had the opportunity to visit with middle grade author Jess Rinker at the ever-so-lovely Plants and Coffee Easton where we talked about our experiences in the publishing industry and she revealed some of her future plans.
And I treated myself to The Popper, a jalapeno popper themed bagel with chive cream cheese, cheddar, jalapenos and potato chips.
When The Teenager got home from her college classes and work, we visited Joe Swarctz, the creative mind and illustrator behind Echo City Capers. He will be appearing on Channel 69 WFMZ Morning News Weekend Edition tomorrow and he and partner Ralph Greco Jr. will be participating in The End: A Bookstore‘s local author night in the evening. I had to deliver the copies of the Christmas book that had arrived at my house for the event.
Then, the Teenager and I headed to Grocery Outlet where we each had a $5 off a $25 purchase coupon only good for this weekend. I told her– the trick is to spend NO MORE than $26 so that the coupon works, and you only spend about $20. She was up to about $35 in minutes and even with me taking some of “her” groceries I only had $15. So I took some of hers and bought some crab cakes. In the end, she spent $23.58 and saved $24.50 and I spent $26.43 and saved $40.02.
What did we buy?
The Teenager:
Dental Cat Treats, $6.99
Dental Dog Treats, $12.99
A Caramel Apple, $1.99
Pepperoni, $2.49
Antiperspirant, $2.99
Me:
Gourmet French Caramel Chocolate Cookies, picked by The Teen, $0.97
Four pineapple muffins, picked by The Teen, $3.50 (she insisted they were $3)
A slim jim with cheese stick, picked by The Teen, $0.99
Snickers popcorn, $1.50
Rueditas Chili Lime Pretzels, $0.97
Waffle Crisp Cereal, picked by The Teen, $1.99
Ground Turkey, $2.99
Spicy Vegetarian Chicken Nuggets, $1.99
4 Frozen Crab Cakes, $4.99
Minute Maid Watermelon Cooler, $1.49
Half Gallon of 2% Milk, $2.08
Teriyaki Tempeh, 2 containers, 2 servings each, $1.99 each
Old Bay Sausage, $3.99
After that, we went to The Dollar Tree. The Teenager spent about $15. She needed batteries and wanted to buy someone stickers.
The Teenager did not get a receipt, so based on what I saw in the kitchen and these photos:
Batteries
Stickers
Chef Boyardee Ravioli
Canned spaghetti
Dog food
2 varieties of Asian Instant Noodles (which will go great with peas and the teriyaki tempeh!)
white bread
Jalapeno rice
jalapeno corn muffins
honey corn muffins
The Teenager did not have lunch and Little Dog’s Mom always loves her Diet Cokes from McDonald’s so I opened my app. I used $5 from my Apple Cash to get three large soft drinks and a free six piece Chicken McNuggets, and Little Dog’s Mom paid me back when I delivered her soda.
Please do not expect this blog entry to tell a smooth story or to make sense. I don’t even know what will flow out of my fingers as I type this now. I did not plan anything special for this post, nor did I intend to miss nearly two weeks of writing.
After mere days of tracking my sodium and “eating normally” as the dietician suggested, my constant lightheadedness and episodes of low blood pressure significantly decreased. My physiatrist (who is also a neurologist, you may recall) saw me last Thursday afternoon for my post incident follow-up. She’s excited about my approval for the service dog, sorry that I’m losing my job, has promised to buy Not an Able-Bodied White Man with Money, and she and her nurse both appreciate the way I advocate for myself and try to do as much as I can to improve my body and my health.
Speaking of which, tracking food had led me to discover that when “eating normally” I was only getting 1500-1800 mg of sodium AND drinking 100 ounces of water in the humid, hot warehouse. I can only imagine how little sodium I was eating while sticking to “heart-healthy,” “low sodium” choices. And it might explain why I really love me a bag of salty potato chips.
The physiatrist and I had a lovely conversation about B-vitamins, apparently she’s low and had to start getting B12 shots so I mentioned that I sprinkled nutritional yeast on everything. She googled it and she plans on buying a jar.
The teenager also asked me to organize her bookshelf, a calming activity that brings me much satisfaction.
In a future blog, I hope to write The Saga of the Quail, now that the birds have gone home and I can no longer get in trouble for illegally housing game birds in a residential area.
Somewhere in the last two weeks I deadlifted 120 lbs– which is three-quarters of my current body weight.
And the “tube” to the outdoor kennel the teenager built for the cats has been popular.
She even put a cat door leading from the porch to the kitchen so the cats have access 24/7. Touch of Grey, our foster with a hysterical and sometimes volatile personality, has made the back porch/mud room her new domain.
I had a mental health therapy appointment and will have a job coaching session next week. Speaking of which, we are having a Women’s Outbound meeting at work on Monday and everyone is having their break after regardless of whether we normally break at this time. I’m guessing Stitch Fix has either decided our official end dates or they will be announcing more information regarding when and how we will receive this information.
We had a massive pot luck yesterday at work for our team and another roster, and I ate so much food I didn’t eat again for 24 hours.
It’s been an on-again, off-again week of how I’m feeling. Same old, same old of issues with my hip, my legs locking up, and sometimes having the clearheaded nature to function like a normal person. Some days my blood pressure is high, other days it’s pretty damn perfect. Some mornings I wake up so lightheaded I stumble like a drunk, and… say it with me now… some days I don’t.
But yesterday had one bright spot– my “partner” at Susquehanna Service Dogs who will handle the final phase of my mobility dog application emailed and asked of she could do my home visit this coming Saturday. Why, I said in reply, that’s my birthday but I can tweak my plans to accommodate a visit. And the idea of this got me very happy.
And so we set the plans.
Today, I went for my tilt table test. If I had a Dr. Frankenstein fetish, it would have been quite the event. If I had teased my hair to flow upward, I could have been a Bride of Frankenstein’s Monster, since I was strapped to a table with large straps and covered with wires and tubes.
To make it more fun, my dehydrated veins (I was not allowed to eat or drink for four hours prior to the test) would not cooperate with the poor older man who had probably done 1,000 IVs in his life. The first attempt was in the inner arm of my right side, as the left completely refused to offer up any juicy conduits.
But seriously, they hooked me up to the ekg and monitored my blood pressure every 10 minutes. They strapped me to a bed that stands 70 degrees upright, and after 10 minutes at rest, they stood me up for 45 minutes to see if anything happened. Nothing did. So perhaps smug little doctor man was right. My symptoms aren’t consistent with POTS.
You know, the man administering the study said, your beta blocker can do that. (Meaning the symptoms I described.) But, I thought to myself, I had these falls that caused injury and required medical attention before I started taking a beta blocker.
Before I laid down to start the test, my heart rate was more than 100 bpm because of some inherent stressors in my morning. In comparison, when I first wake my heart rate is usually between 52 and 65 bpm. At work, my heart rate is typically between 75 and 95. My resting heart rate average for today, according to my Apple Watch series 8, is 64. And my walking average is 130 today, which, again seems a little high.
When the bed rose, it make me feel like I was drinking alcohol. Not all out dizzy but the world swirled. But it cleared up. The scary part was when my whole right hand fell asleep– because if you have read my previous blogs you may know that my left pinky is often falling a sleep and I feel like it’s a warning sign of an impending episode.
The pressure on my head and chest when they lowered the bed made me feel like I was being crushed, and the strain of standing completely still for 45 minutes made my right toes feel like they were getting frost bite.
It looks like my ekg and other results of the study were normal. Even my blood pressure behaved.
So, with a headache from barely eating, I visited Gayle for a quick meeting (I never quite realized she lives probably 500 steps from the hospital) and then grabbed some wings and fries from Wing Stop. And now I’m completely spent.
What if after all this… maybe the only thing wrong with me is that I’m overweight and out of shape?
Then, I got an email from the service dog people rescheduling my visit to 5/25. And when I got home, I had a birthday card from my mom. And since we got in another ugly disagreement on Mothers’ Day, she sent a bunch of old letters I sent her in my birthday card. No personalized note. No mention of celebrating. Just old mail. It’s a habit she’s had lately. Her own special passive aggressive way of saying “you used to love me.”
My daughter has another way of interpreting her paper trail of past communications.
Whatever it is, it’s exhausting. Ever since my dad passed away, my mom has been even more dramatic. She’s experienced a lot of loss in the last two years, as many of us have. I’m at my wits end. I haven’t had a connection to my father’s family for about six months now, and with all my recent health problems, the lack of familial support weighs heavily on me. It’s terrifying to have a known congenital disability and have something else going on that doesn’t make sense.
And it makes one’s heart hurt when you can turn to your teenaged daughter, your soon-to-be ex-husband, your in-laws and your work friends, but your own mother can’t even give you a courtesy phone call when you are in the hospital. Or, say, maybe she sends some keepsake letters in a birthday card, so even on your birthday, you can be reminded what a disappointment you are and how rather than celebrate you, your mother would rather make your birthday about her.
I just want a mom. I just want a mom who can see who I am without constantly criticizing me, or emotionally blackmailing me, or making snide comments about how I might be living my life. When I was a kid, I idolized my mom. And there’s that little girl inside of me who still wants to.
She grew beautiful flowers. Has a beautiful smile. But I look back on my childhood, and I’ve survived so much and forgiven so much, and laughed off so many things… and to constantly have her blame me for everything that’s wrong with our relationship is just not fair.
Because in my experience as a mother, I want to be there, I want to help, and I would probably spam text my daughter if she ever fell out of contact.
7:30 a.m., Wednesday, April 5: Yesterday I was discharged from hand rehab with John at The Institute for Hand and Upper Extremity Rehabilitation. My hand strength in my right hand is stronger than my left hand, so even though my pinky doesn’t quite have all the functionality it should, John thinks with proper use and exercise at home I can handle recovery.
As John said, implying that he could trust me to monitor and invest in my own hand health, “with everything you have on your plate, this is a mere flesh wound.”
Indeed.
With that, I had my last session of rolling and smashing silly putty and twirling balls in my hand. Really, hand therapy is not that far from children’s play. As an adult, there’s not enough activities that involve silly putty.
After a weekend of high blood pressure, my body suddenly feels low– and my blood pressure is on the low side, even after coffee, and I’m light-headed and feel as if my blood sugar could be low, despite snacking on a slice of fresh pizzeria pizza (I found that real pizza versus Dominoes or frozen varieties does not have the sodium and preservatives that impact my numbers) when I took my evening dose of Lopressor. I ate breakfast, and that helped some, but not enough. I also had an 8-ounce glass of water.
So, as my primary care doctor is signing off on me returning to work on Monday and we’re still waiting for my cardiologist’s report, I’m terrified that something might happen today. But I don’t want to manifest my own misfortune. It’s interesting to note that today was supposed to be my first day back to work, but I still have physical therapy during the day this week, and I felt better knowing my cardiologist should have the info he needs by then in case we need to make adjustments to my treatment plan.
The manufacturer of the Zio sent a push notification to my phone that they received my device and will have the data to my doctor soon.
My left hip, according to my physical therapist, was tight Monday, and now my right hip is giving me issues, the kind of issues it often has when compensating for the left hip.
I should have taken a shower last night, but I thought it would be nice to shower in the morning, but then I remembered I have physical therapy and the gym today… but I might have to take two showers today. I need to see if I can shake this feeling of brain fog and lightheadedness. By then, it will be 8 a.m. and I can call my doctor’s office. They are next door to physical therapy so maybe one of the medical assistants can take my blood pressure. Because my neurologist would be mad at me if I ignore this.
8:20 a.m. After a hot shower and exposure to The Teenager’s work drama– not being able to get into a client’s house to feed the dog– my blood pressure is now high. So I don’t know whether to call the doctor or not. I put on my sports bra inside out and my shirt backwards.
8:30 a.m.I called the doctor’s office. They won’t let a nurse or medical assistant take my blood pressure because they would like a doctor there because of my history. I have an 11:15 a.m. appointment, directly after my physical therapy, with one of the residents, I think, because it says my doctor’s name but that’s not what she told me. But it usually shows the resident’s names so we’ll see.
9 a.m. I decide to play with the Stitch Fix style algorithm before leaving as I only have a couple minutes. This will be important later… because brain fog. That was another symptom I’m struggling with– I put on my sports bra inside out and my shirt backwards.
Brief interlude while I am thinking of it. My hospital EOB came yesterday, as did updates as to some of my other medical visits. It’s obscene to see the battle between medical providers and private insurance companies. When did this become an acceptable model of business? The hospital charged my insurance company almost $18, 500 for one day of services. The insurance company pays a pre-negotiated rate of $2,500 and I get bill about $300.
In a similar fashion– the medical office billed the insurance company for the resident who so patiently spent 30 minutes removing three stitches from my face. It was itemized as “surgery” and the provider billed $66, of which the insurance company paid $13. And left $1.50 for me. So this poor resident, who worked her way through medical school and had to dig the stitches out of my scabby face, isn’t even worth $30/hour?
9:40 a.m. I arrived at Physical Therapy to sit and read my book until my appointment. Yesterday, I finished Susie Bright’s How to Read/Write an Erotic Story and I have every intention of finishing Suzanne Mattaboni’s Once in a Lifetime today.
10 a.m. or there-abouts: physical therapy with Jimmy, instead of Eric, because it’s Eric’s birthday, and his colleagues suggest that this might not be his first thirtieth birthday. I am also informed that the goal today is to poke fun at Eric as much as possible because he’s not there to defend himself.
Summary of Physical Therapy: I worked hard and found myself pushing and having good balance despite the issues with my quasi-lightheadedness. As usual, my left side is tighter than my left, but I notice as the day goes on my discomfort on the right seems to be correcting itself.
I also told my physical therapist about The Institute for Hand and Upper Extremity Rehabilitation and my mallet finger that I did last year, right before Easter. I explained how I ruptured the tendon pulling my socks off. He’s now afraid to take his socks off.
10:40 a.m. I stop at the car to update my notes and drink some water. This massive Audi SUV is parked next to me, requiring that I turned sideways to slip into my car. I take my blood pressure: 122/71.
10:50 a.m. I walk down to the primary care office, and finally put the facts together that between the physical therapy office and the family practice, there is a pediatrician. That’s why I always hear screaming children though the wall. I use the rest room and open my book.
11 a.m. My doctor’s assistant takes me back to the exam room, and confirms that I will be seeing my doctor. She’s the same person I correspond with through the portal, and who fills out all my paperwork with the patience of a saint. She doesn’t weigh me and this disappoints me because I think all this healthy eating has resulted in a smidge of weight loss.
If we’re honest, I feel silly. My head still doesn’t feel right, but I’m fine… I mean I’m going to be cautious but it could be so many things: blood sugar, blood pressure, the beta blocker, allergies or even the pollution from the major industrial fire a mile away yesterday or heck even stress… but the neurologist said… Everyone in the office, including the doctor, reassured me that I did the right thing since no one wants me to fall again.
My blood pressure was 120/77, which is pretty darn close to my car reading so that proves that my monitor is reading my blood pressure accurately and the presence of the doctors does not cause my blood pressure to increase.
Alpha Books J Journal
11:10 a.m. the assistant leaves and I open up the final pages of my book. And I finish it in five minutes.
11:30 a.m. the doctor arrives. He sees my Alpha Books J journal in my lap and starts asking questions. Then he asks why I am there– that my chart just says “high blood pressure.” I explain that no, it’s actually lightheadedness that started with low blood pressure but hasn’t abated since my blood pressure returned to normal levels, and that the neurologist made me promise not to ignore symptoms like lightheadedness.
I explain that I got out of bed a tad clumsier than usual, after ten minutes of trying to force myself up despite 9.5 hours sleep, and I just attributed it to stiff cerebral palsy legs. But as I went downstairs and turned the lights on, I realized I was a tad lightheaded.
I poured a glass of water, took my blood pressure and my meds, and made a cup of weak (for me) coffee and finished my water and had fruit and toast.
I pass the doctor my list of blood pressure readings and tell him my first of the day was 102/68, followed by 108/65 an hour later.
He peruses the list I gave him and asks, “do you have some fancy blood pressure device that takes your blood pressure every hour?”
“No,” I say. “I’m just neurotic.”
He chuckles. “It’s not bad,” he says. “It gives me data to work with. I have patients I can’t get to take their blood pressure once a day.”
“I know you’re going to ask me what happens in certain situations, so I just want to see if I can anticipate the questions so I have the answers. Like there’s definitely a difference when I eat pizza from the local pizzeria that uses real ingredients versus Dominoes.”
He mentions I should track my pulse. I told him I look at it when I take my blood pressure because the neurologist mentioned it but I haven’t written it down. I haven’t noticed anything. And I didn’t tell him about the symptom diary I started. But I did come home and add heart rate to my iPhone tracking info. I really need an Apple Watch. Okay, I want an Apple Watch, but I refuse to consider buying one until my business computer is paid off and I replenish my savings and pay off the credit card bills I ran up during this hiatus from work.
He performs some basic exams, and has the nurse take my blood pressure lying down, then sitting, then standing up. If the low pressure is caused by gravitational pull on my body, or something like that, my blood pressure will drop as I quickly force myself upright.
My blood pressure spiked (142/100) suggesting that I tensed, which I did, because the sudden movement made me feel like I was swaying. And I braced my muscles, afraid I might fall.
So, the next test in our journey through Angel’s recent career as a face-diving professional, is to half the dosage of my Lopressor. My doctor thinks he found a note made while I was in the hospital that the IV medication made me dizzy and that’s why they switched me to the oral tablets. I don’t recall this, but a lot happened that night… so I asked The Teen much later, and she said no, my memory is correct. I read the note the doctor found, and I believe, though I could be wrong, that the real problem is doctors have no skill at writing and this leads to misinterpretation. Ooooh, maybe I need to start a “Clearer Writing Styles for Doctors” workshop.
And since my echocardiogram was perfect, and he reviewed it there with me, but I’d already read it, he wondered if the beta blocker was necessary at all (ironic since he was trying to get me on blood pressure medication for the last two-plus years) and/or if the Afib was an isolated incident. I dispute this theory, because I had two unexplained, nearly identical falls within two weeks.
My doctor reduced my beta blocker in half, which meant I had to remember to go buy a pill splitter because I already have the tiniest pills I ever saw. And he also suggested taking some sort of hydration beverage into my bedroom– a G2 gatorade or a Propel– to drink before getting out of bed.
And he closed with something like, “these are the kind of things I have to tell my patients who are 70 or 80, but unlike them, you’ll listen.”
Then he asks, “when is your next appointment?”
Not until August, I reply. He looks to me in disbelief. “I want to see you before that.”
And he sends a note to the cardiologist that he reduced my beta blocker and asks him to review the data from the Zio patch. The same Zio patch that just returned to the manufacturer yesterday.
I mention I will see the cardiologist May 5, if that matters when scheduling our next rendez-vous.
“I want you to check in in the next couple days,” he directs me, “and I want to see you next week.”
“How about April 20?” I ask. “It’s in the middle of now and April 5 and I already have to take the day off for some CT scans at the hospital and physical therapy.”
I’m going back April 20, at 8:30 in the morning, to meet with one of the residents. I didn’t think to check which one.
12:10 p.m. I leave and head to my friend Maryann Ignatz’s house to bring her some books she ordered and visit.
2 p.m. CVS. The computers have gone insane. I don’t think this will impact me as I peruse the aisles. My list is simple: a better lotion for scar care, an electrolyte drink, a blood pressure monitor, and a pill splitter.
Now, I have a borrowed monitor and I’d rather have an Apple Watch connected to a wireless monitor cuff…
And the only thing on the list today I need right away is the pill splitter.
So I find one for $8.49 and I have a 40% off coupon that expires today. I also find Propel dry powder packets that go into a water bottle– I think $3.49 for ten packets. On Amazon, the already constituted Propel Water in the same flavor costs $8.38 for 12 bottles, which is 70 cents a bottle or twice the price. I even placed one of my reusable water bottles by my bed, and I picked one with a screw-on lid designed for my bike so it’s less likely to spill.
The blood pressure monitors start at $62, and the $62 one provide $10 in Extra Bucks, but I don’t want to spend that much now.
And the only lotions “better” than the ones I have at home start at $10 and the ones specifically for scars are $20.
And on top of all that, the system doesn’t really register my Extra Care card, so it says I was logged in, but it didn’t use my coupon.
I never pay full price at CVS.
And we’re not going to talk about the fact that they were sold out of jelly beans.
3:30 p.m. I make a run to the bank and take the dog for a trip to Dunkin’ for Munchkins. Oh, and the teen. I eat too many jelly munchkins, drink a cold brew and eat one of their salty processed sandwiches, their completely not-a-Grilled Cheese with their sun-dried tomatoes. Not worth the money I paid. My blood pressure does not change. I cancel the gym for tonight because I still don’t feel stable.
I come home and I cut a pill. The Teenager then insists she can do it better and that I’m sloppy.
vegan tofu salad with lime dressing and cucumbers
4 p.m. I spend some time with my cockatoo, and tend to some self-care details and start laundry.
6 p.m. The Teen and I make salads with tofu nuggets and romaine and cucumbers. The Teen devours heaps of romaine and cucumber. With a homemade fresh lime dressing.
I mention to the Teen that KFC has nuggets now.
“Really, Mom?” she protests. “You expect me to eat tofu after mentioning KFC?”
And then I proceed to drop the knife several times while chopping vegetables. I’m amazed I still have all my toes. Brain fog is so real.
6:45 p.m. I text the neurologist just to update her.
7 p.m. I place my last load of laundry into the dryer and find a half pill of my beta blocker on the table.
I call the teen’s name.
“Did I not take this with dinner? Did I miss my mouth?”
“I doubt you missed your mouth,” she reassures me. “It probably just slipped out of the bottle.”
“I could count them,” I say.
“And if there is an even number, you fucked up,” she says.
It was an odd number.
7:30 p.m. I finally retire to my room hoping to start a new book as part of my pre-bed, no screens ritual. I make the bed, feed the cats, put my Propel packets in my drawer and organize my lotion (for scar massage on my finger and my face) and my water bottle. But first I have to finish this blog entry. And I notice– to my chagrin– that somehow this morning I changed my next Fix from May 18 to April 18. Hopefully I can change it back before the stylist grabs it, because my charge card needs to take a little vacation from my wallet until I rebuild my rocky finances.
And that, friends, was my day. Louise the Tripod is snuggled against me, kicking me with her back feet and snoring. I still need to give the bird water, make my Propel, brush my teeth and massage my scars. So, if you think I’ve been over here partying during this short-term disability leave, I have not.
Here I am, looking less exhausted and beaten. My scabs were flaking off and healing nicely but some of them cracked today (vigorous chewing? It happened at lunch time) and started bleeding. I’m still impressed at how quickly the body can heal, but these stitches feel like flies on my face.
I left the house early today to visit Koch 33 Collision. In early February, a work colleague’s car happened to give mine a love bite on the entrance ramp of 22– this was early on in the days of my unknown cardiac troubles when the symptoms were starting to show. I remember not because my heart had anything to do with that situation but because I joked about minor car accidents just adding more stress to my life. The estimate will cost less than $1500, hopefully the insurance companies can agree to that.
When I came home, I made myself my first cup of coffee for the day. I have slowly been changing my morning coffee habit into a morning water habit, unless my blood pressure is low, then I go ahead and make the coffee (which my occupational therapist at hand rehab thought was hysterical).
“What?” I said. “This is my first week on this medication and my blood pressure has been low when I have to take it. They don’t know what caused my a-fib, so I can’t skip the dose, but I also can’t take a beta blocker with a blood pressure of 97/56.”
Today my blood pressure was perfect so no coffee.
The neurologist’s office called and moved my appointment up a week from 4/4 to 3/30. I mentioned the report from the physical therapist should be in my chart, and that the news looked good, and that my body had adjusted to the beta blocker so my blood pressure and my blood sugar seemed to be stabilizing.
Gayle had promised me a new graphic every week I made it without a fall. Unfortunately, I was on day seven when the last fall occurred so I never earned it. But today is day eight. So I definitely made it seven days. And I display my new badge proudly.
I worked on Larry Sceurman’s short story “The Vanity Demon” for his upcoming anthology, Coffee in the Morning. I’ve reached the point in the editing schedule where I should edit one story a day to kick back to Larry for final tweaks before sending to Gayle for layout.
Speaking of stories and Larry Sceurman, Gayle, Nan and I spoke to the Apex Writers Group last night on Zoom, about 21 people attended our presentation. The participants seemed most interested in book construction, so Larry’s book, The Death of Big Butch, allowed us to show how we used text and book design to reinforce the nostalgic feel of the 1970s.
I also received my latest copy of the Greater Lehigh Valley Writers Group newsletter, which included my first official “Podcasts for Writers” column. If you’d like to read all of it, it appears here. More of these lists will be printed and organized in my paid Substack archives.
The Teenager came home from work and we had to run some errands. Somehow, we ended up at my hand rehab appointment more than an hour early. We visited Josh Early Candies, which killed some time. But with our meager budgets we could not afford fancy chocolates.
We ended up at Grocery Outlet, but not our local store, one on the other end of the Lehigh Valley. And we hadn’t made it 20 feet into the store when I spotted Silk Very Vanilla Soy Milk in juice boxes. Now this is The Teenager’s favorite milk for drinking.
She almost bought a pop-top can of artichoke hearts to eat in the car but proclaimed that would be a new low, even by her standards. I bought myself a pack of Maple Donuts because it was time for my afternoon snack, and I seem to do better if I save a carb-y item for around 2 p.m.
The Teenager then made a noise and I wasn’t sure what was wrong and she said it was sad how happy we were wandering around a discount grocery store. I lamented that it was a shame Nan could not be with us. And I didn’t know if that would be a good time to also mention that Gayle and I had exchanged emails with a ridiculous amount of excitement about customized packing tape from Sticker Mule.
Gayle had said she had to check out the template because it was something the business should do when we had more money and I quickly said that despite the fact that we recently printed a new book, this was something we obviously needed. And then she totally outdid herself on the design, so if Sticker Mule delivers a good products, it’s going to be so amazing that you will have to order books just so you can receive a package from us.I pack a good looking parcel to start with, so this will up our game.
When I showed Gayle’s proposed design to The Teenager, the Teenager also got excited and I bet her father would, too, because he did spent most of her life to date as a shipper-receiver so our whole family has an acute appreciation and enthusiasm for packing tape.
But this is taking up way to much space– The Saga of Angel and Gayle and their Polka Dot Packing Tape.
The Teenager and I sat in the parking lot eating Maple Donuts. Maple Donuts are always delicious, but they are not maple flavored. These donuts had a sell by date of March 27 and it’s only March 21 so I knew they would be melt-in-your-mouth soft. And they had cinnamon sugar. I LOVE A GOOD CINNAMON DOUGHNUT.
I ate two cinnamon. They glided down my gullet and I couldn’t help myself from also having a plain cake doughnut. I have no self-control.
The Teenager whipped out a Silk soy milk.
“Are you going to drink that warm?” I asked.
“Room temperature,” she answered. “Do you think I ever drank these cold? How do you think they came out of my lunch box?”
,
Hearing her reminisce about having these in her lunch box reminded me of how many times I worked hard to find sales and coupons and deals to buy them for her because I knew she loved them– and other than that she only got Juicy Juice or Adam and Eve juices because I was very strict on what I fed her and Silk in juice boxes was so expensive compared to the half gallons. And sometimes I worked hard to save money on all the other groceries so I had the $10 extra to buy her favorite milk for her lunch.
And they are delicious.
The half gallons supposedly are only sold at Dollar General these days but we still haven’t found one in our area that sells them.
Once we headed to The Institute for Hand and Upper Extremity Rehabilitation, we had our cravings satisfied.
The Hand Report
When I arrived at therapy, they wrapped my hand in a moist heated pack for twenty minutes and it’s the best twenty minutes of my life. My therapist heard my tale of falling down the stairs and landing in the hospital in the hours after my previous visit, and he said I win for the most interesting story of the day.
Then, he proceeded to talk with me about things I could do at home to prevent future falls and make my life safer– because he is, at the end of the day, at occupational therapist. It was a great talk. It was an even better conversation because he gave me a hand massage during it.
My mobility has improved greatly, and even though it is still swollen, I can make a fist! I did several exercises there. My therapist mentioned that next time we will focus on strength, because he believes he can trust my previous experiences to make sure I follow through with a home rehab plan, he wants to be sure I have full hand strength so that I can fully grip the banister.
“Not that I’m picking on you,” he added.
I did four sets of exercises. First I picked up handfuls of these six-sided dice and dropped them all so that the six was facing up. Then I held the big ball in my hand and drew the alphabet in the air with only my hand and my wrist, not my arm. Then I squeezed the red ball. For the final exercise, I had two balls the size of a golf ball but a tad lighter. I rolled them across my fingers and then tried to reverse the order on the way back.
Angel Ackerman 