Birthday, day three: The breakfast gravy with no biscuits

Today I slept in until nearly 6 a.m., waking only when I heard The Teenager rise and leave the house for her dog walk client. I laid in bed until almost 6:20. To me, that is the ultimate laziness as I usually begin work at 6:30 a.m.

It’s been another delightful birthday day of celebration. I started the morning with breakfast with some of my Stitch Fix crew, with Southern Candy arriving at Big Papa’s early to bestow the table with some decorations.

There were cards and laughter and Southern Candy ordered her regular biscuits and gravy only to discover the biscuits were not biscuits but English muffins. So much commotion ensued of the giggling and carrying on sort, making jokes about what to call biscuits and gravy that does not contain biscuits, because English muffins with gravy sounds gross.

We had a discussion about making our own biscuits and bringing them and comparing making biscuits with shortening versus lard.

I ordered a spinach, green pepper and feta omelet hoping that the vegetables would help heal the damage done by my weekend of caffeine, sugar, fat and grease.

That might be too much to hope for as my blood pressure was 116/96.

The next item on the agenda was to take FURR foster tripod Louise to a meet-and-greet event at the Phillipsburg Petco, where she behaved like a trooper (even if she did spill her litter box so she could hide under it).

I was able to finish the last set of changes to Coffee in the Morning by Larry Sceurman on the laptop while chatting with another FURR volunteer to happens to be the only person I know eagerly and reliably waiting for my next novel.

I came home, cleaned up my room and finished Netflix’s Queen Charlotte, which, as all the Bridgerton tales do, has quite the sentimentality regarding love and relationships.

I also ate a rather large “elephant ear” with The Teenager that Little Dog’s mom had procured.

I’m off to check my blood pressure, take my evening meds, pack a lunch, and decide on dinner. But I just may allow myself a birthday beverage– as my birthday weekend officially launched with a gin gimlet with photography Joan and her other half, Randy.

Birthday, day two: Off to the races!

Yesterday was my official birthday and the festivities exhausted me so heartily that I have waited until this morning to write about it. Since the medical establishment has not discovered rhyme or reason about my recent health issues, I made the decision earlier this weekend to eat what I felt like consuming, have a good time and return to my disciplined habits tomorrow.

Currently, I am sipping my peppermint coffee, while combating a vague lightheadedness and lower blood pressure and taking my beta blocker. I miss the robustness of my strong Supercoffee dark roast and had I known my blood pressure was low, I would have made some, but I feared it was high from my diet of Sheetz spicy chicken sandwich, jalapeno poppers and a premium sampler of salty fried snacks, pastries upon pastries, and sugary candy galore… because it was my birthday.

Little Dog stayed with us for a few days and her mother returned for her yesterday, bringing with her the largest pastry I have ever seen which I later discovered was an elephant ear and what I am eating now, which appears to be some sort of blueberry scone with a touch of lemon if I am not mistaken. But someone must tell whatever bakery Jan is visiting that the term “elephant ear” is not meant to be life size.

The Teenager wanted so terribly to take me for a nice meal of my choice, but I told her– you know what I want? Some decadent road trip snacks to eat on our way to Pocono Raceway for the Sports Car Club of America Road Racing Northern New Jersey Region Joe DeLuca and Linda Gronlund Freedom Major. (scca.com)

One of my high school peers works as an official at the track, so he invited the Teenager and I to come sit in the pits and watch as many classes as we wished and potentially stay for the cookout at the end of the day.

But I get ahead of myself.

The Writing Stuff

Little Dog and I slept in until a delightful 5:30 a.m. yesterday and then I copyedited the text for the next title in production for Parisian Phoenix Publishing. (We have 11 titles out now, one a tad delayed but due out as soon as we make the final tweaks, and this new one is #13, which since it is a tarot journal seems apropos.) Anyone who wishes to make my birthday even more exciting should consider buying one or several of our books. Here is the whole list on Amazon, including one book that’s not ours but shares a title and confuses the algorithm.

I finished the text of the tarot book, sent it to Gayle to mock up some design while we wait for the author to approve the text, and then headed to a meeting at Panera Bread with Larry Sceurman to retrieve his final proof on Coffee in the Morning. As it was my birthday, Panera gave me a free pastry after I already ordered my asiago bagel with chive cream cheese and Larry paid for my refreshments due to my day of birth.

I am happy to report that the changes to Coffee in the Morning are minor, and very good catches on the part of Larry and his wife, Barbara. The team spirit at Parisian Phoenix creates an atmosphere where we all really are putting our best foot forward and making sure we all look good in the end.

From there Larry and I attended the Greater Lehigh Valley Writers Group to surprise Darrell Parry, who was giving the morning presentation and afternoon workshop on poetry. I may have left with an invitation to be the October speaker and a nomination to serve as the group’s president. More on that here.

With my commitment to attend the races, I could not stay for the afternoon workshop. I went home and collected the Teenager and we drove over to Sheetz to gather our road trip snacks, redeem birthday points for gas ($2.92 a gallon) and head to Pocono Raceway with a Spotify playlist The Teenager carefully curated.

The Racing Stuff

I have not visited Pocono Raceway in 30 years. This area used to have two major racetracks, Pocono and Nazareth, and Darrell lived about a mile from the Nazareth track. It closed shortly after we graduated college, which is also damn near 30 years ago. I am not a NASCAR or Formula One fan, but my life tends to intersect with motorsports. My dad was a diesel mechanic known to race microstock, participate in tractor pulls and ride his Harley, anything to tinker with an engine.

When the Teenager was a year old, we went to the dirt track every Friday night to watch him race and when his racetrack closed, he told me not to attend his new venue as he deemed it too dirty and not family-friendly enough for the baby. I also have vague memories of going to drag races in New Jersey during my own childhood.

Once we found Bob and Erica up at Pocono, we settled in for our first class, Ford spec. Next came I believe a GT Lite class. Then the little min-formula one type cars with the small engines. The last class we saw was the Miata spec class, with three Minis and a Chevy Aveo sharing the track with them.

I definitely enjoyed the spec classes, as the cars are so similar that the race relies more on the prowess of the driver versus the classes where the cars have so many differences. In the mixed classes, the gaps between cars are much wider and that makes the race less interesting from a spectator perspective. The slow cars tend to be less interesting to watch also as they take so long to go around the track that you almost forget they are out there.

We stopped at Wawa on the way home for water and due to sale prices I ended up with fancy Hawaiian volcanic water for the same price as Deer Park.

And the special thank you goes to Santander Bank for making me feel ancient by sending me an email to remind me that my oldest account with them dates back almost 24 years and that they wish me a happy birthday.

Birthday, day one: Chicken and Waffles

Tomorrow is my birthday. I ended up taking voluntary time off from my day job to do some work for Parisian Phoenix Publishing and clean up the house. Neither of those activities lived up to my goals, but it’s been a very nice day.

I had more minor administrative stuff to do than I anticipated, but I did clean off the kitchen counters and use old glass beverage jars to sort and store my k-cups.

I arranged several meetings with my authors: to meet Joe Swarctz of Echo City Capers today to give him the latest shipment of Sometimes I Get… and tomorrow to see Larry Sceurman to get his copy of the final proof for Coffee in the Morning. Andrew had to cancel the gym today, so that made me a little sad, but gave me extra time not to rush around before a birthday dinner with the talented Joan Zachary.

Speaking of talent and birthdays, Gayle made me a font of my handwriting. And The Teenager already gave me my birthday present, a new pair of sewing scissors. Her dog ate the handles off my old pair. I haven’t sewn in a decade, but she has memories of me protecting those sewing scissors.

And apparently, she believes she ruined the blades long before the dog ate them. So her thoughtfulness and presentation and honestly made me tear up.

Around 10, I headed down to what is not my official spot– Big Papa’s Breakfast Bistro, on Northampton Street in Easton’s West Ward. I asked if I could sit in a corner, have a cup of coffee and work until my meeting with Joe over lunch at 11. I was welcomed. I also gave the restaurant my business card, explained who the various groups were that they would see me with, and that eventually I’d like to have events there. It was perfect. Exactly what I needed to finish some work.

And then Joe and I had another great meal.

Bride of Frankenstein: My tilt table test and one heckuva week

It’s been an on-again, off-again week of how I’m feeling. Same old, same old of issues with my hip, my legs locking up, and sometimes having the clearheaded nature to function like a normal person. Some days my blood pressure is high, other days it’s pretty damn perfect. Some mornings I wake up so lightheaded I stumble like a drunk, and… say it with me now… some days I don’t.

But yesterday had one bright spot– my “partner” at Susquehanna Service Dogs who will handle the final phase of my mobility dog application emailed and asked of she could do my home visit this coming Saturday. Why, I said in reply, that’s my birthday but I can tweak my plans to accommodate a visit. And the idea of this got me very happy.

And so we set the plans.

Today, I went for my tilt table test. If I had a Dr. Frankenstein fetish, it would have been quite the event. If I had teased my hair to flow upward, I could have been a Bride of Frankenstein’s Monster, since I was strapped to a table with large straps and covered with wires and tubes.

To make it more fun, my dehydrated veins (I was not allowed to eat or drink for four hours prior to the test) would not cooperate with the poor older man who had probably done 1,000 IVs in his life. The first attempt was in the inner arm of my right side, as the left completely refused to offer up any juicy conduits.

But seriously, they hooked me up to the ekg and monitored my blood pressure every 10 minutes. They strapped me to a bed that stands 70 degrees upright, and after 10 minutes at rest, they stood me up for 45 minutes to see if anything happened. Nothing did. So perhaps smug little doctor man was right. My symptoms aren’t consistent with POTS.

You know, the man administering the study said, your beta blocker can do that. (Meaning the symptoms I described.) But, I thought to myself, I had these falls that caused injury and required medical attention before I started taking a beta blocker.

Before I laid down to start the test, my heart rate was more than 100 bpm because of some inherent stressors in my morning. In comparison, when I first wake my heart rate is usually between 52 and 65 bpm. At work, my heart rate is typically between 75 and 95. My resting heart rate average for today, according to my Apple Watch series 8, is 64. And my walking average is 130 today, which, again seems a little high.

When the bed rose, it make me feel like I was drinking alcohol. Not all out dizzy but the world swirled. But it cleared up. The scary part was when my whole right hand fell asleep– because if you have read my previous blogs you may know that my left pinky is often falling a sleep and I feel like it’s a warning sign of an impending episode.

The pressure on my head and chest when they lowered the bed made me feel like I was being crushed, and the strain of standing completely still for 45 minutes made my right toes feel like they were getting frost bite.

It looks like my ekg and other results of the study were normal. Even my blood pressure behaved.

So, with a headache from barely eating, I visited Gayle for a quick meeting (I never quite realized she lives probably 500 steps from the hospital) and then grabbed some wings and fries from Wing Stop. And now I’m completely spent.

What if after all this… maybe the only thing wrong with me is that I’m overweight and out of shape?

Then, I got an email from the service dog people rescheduling my visit to 5/25. And when I got home, I had a birthday card from my mom. And since we got in another ugly disagreement on Mothers’ Day, she sent a bunch of old letters I sent her in my birthday card. No personalized note. No mention of celebrating. Just old mail. It’s a habit she’s had lately. Her own special passive aggressive way of saying “you used to love me.”

My daughter has another way of interpreting her paper trail of past communications.

Whatever it is, it’s exhausting. Ever since my dad passed away, my mom has been even more dramatic. She’s experienced a lot of loss in the last two years, as many of us have. I’m at my wits end. I haven’t had a connection to my father’s family for about six months now, and with all my recent health problems, the lack of familial support weighs heavily on me. It’s terrifying to have a known congenital disability and have something else going on that doesn’t make sense.

And it makes one’s heart hurt when you can turn to your teenaged daughter, your soon-to-be ex-husband, your in-laws and your work friends, but your own mother can’t even give you a courtesy phone call when you are in the hospital. Or, say, maybe she sends some keepsake letters in a birthday card, so even on your birthday, you can be reminded what a disappointment you are and how rather than celebrate you, your mother would rather make your birthday about her.

I just want a mom. I just want a mom who can see who I am without constantly criticizing me, or emotionally blackmailing me, or making snide comments about how I might be living my life. When I was a kid, I idolized my mom. And there’s that little girl inside of me who still wants to.

She grew beautiful flowers. Has a beautiful smile. But I look back on my childhood, and I’ve survived so much and forgiven so much, and laughed off so many things… and to constantly have her blame me for everything that’s wrong with our relationship is just not fair.

Because in my experience as a mother, I want to be there, I want to help, and I would probably spam text my daughter if she ever fell out of contact.

But we’re all different people I guess.

Flirting with control

I have no idea what this blog post will say. I’m only writing it because I came home from work, took my blood pressure, swallowed my medication and made a cup of coffee… and wasn’t sure what I wanted to do this evening. But I knew I wanted to write. So here I am.

I titled it “flirting with control,” because I’m looking at my house and my list of phone calls I need to make (check with physical therapist, reschedule Ob/Gyn, schedule annual service and car inspection, see if I can get a rental car from the insurance company of the person who hit my car in February.) Thinking of the chores I need to do. And everything I want to achieve for the business…

And I realize, everyday I am merely flirting with the idea of having control of my own life.

My blood pressure was 115/73, which is excellently consistent. I have to say I had a few times today where I felt off– so I used the EKG function on my Apple Watch and hit the heart rate button periodically. It’s been two weeks since I had my last “high heart rate scare” and today I saw my heart rate jump from 90 (which was already on the high side for standing at my table at work) to 165 in one movement. Not gradual, just BAM, and back again. It did this at least twice. But the watch registered a 176 also around this time that I didn’t notice.

To be on the safe side, I took the voluntary time off offered for tomorrow.

I don’t feel bad. In fact, I feel 90-95% of myself. But I get tired easily, and I often get a weird sensation that I describe as lightheaded, but it’s more like my body internally swaying. And my ears have been ringing for months and my headaches are getting more frequent.

After hearing about my unfortunate experience at the cardiologist, I have been collecting opinions from people. Some requested, some not.

And among the solicited type of advice came this gem: “You might want to get a second opinion from a FEMALE cardiologist. Its known, researched, and documented that female patients have a greater chance of being untreated for cardiac concerns. Just consider.” That person even recommended a doctor, though by the time I got the name, I had already booked a doctor from my own research.

I don’t know if the average person realizes this, but with the modern computerized booking systems, most hospital networks will allow you to schedule appointments online, even with specialists you haven’t seen, because most physicians have an open scheduling block even if it is only a few appointments once a month.

So I researched female cardiologists affiliated with the hospital with which I routinely deal. I scanned their reviews and quickly discovered that the hospital has a women’s heart center and encourages, at least according to the web site, any woman with concerned to schedule an appointment.

And that’s what I did. I won’t see her until August, but by then all the other specialists will have run their tests and hopefully we will have more answers. And regardless, I want to sit with someone and review what has happened to me, what’s normal, what’s not and what of that is concerning. My current cardiologist doesn’t want to see me again for six months, and his schedule hasn’t been released that far out, so I may not even go back.

I told all of this to someone at work, and he reminded me of something he has said to me in the past. The Lehigh Valley sometimes lacks medical talent. And then he added, “and I suppose I can tell you that I always seek out female physicians.” And proceeded to explain that women have a different attention toward symptoms and how they fit together.

In the meantime, I also have a list of other professionals I want to see as I hash out my own plan for how to care for myself. I know I already mentioned a hospital-affiliated dietician, but I also want to talk to the clinical pharmacist at my doctor’s office because I don’t think I should be or need to be on some of these medications together.

Oh and I got a survey for the smug little doctor man. I gave him a 5/10. I wish I would have recorded my comments which went something like this: “I didn’t ask questions because I couldn’t put my finger on it but he seemed dismissive. I went home and read his notes and realized he had come to conclusions about my symptoms that he did not discuss with me and were based on assumptions made because of my congenital disability which contradicted the concerns of my entire care team. That was a shame as he was a charming man and his office is close to my home.”

Reflections on a Range Rover Runner

I drove to work this morning and got behind a black Range Rover covered with bumper stickers “13.1” and “26.2” and “Run.”

And I looked at the car and I thought, how white collar and/or affluent do you have to be to drive a Range Rover and run that far for a hobby? Now, if it is your hobby, I don’t mean any ill will. More power to you! Enjoy it! I applaud you!

But I think of my dad who spent much of my youth as a diesel mechanic, or I consider my mother-in-law growing up on a farm.

People aren’t meant to be sedentary and then run for a hobby. And the idea that people work in offices or as professionals is a modern construct, before that our lives were physical. We hunted, fished, farmed, foraged. Humanity as a species did not always have a WalMart. They had to make things, not buy them.

We hear all these talk about circadian rhythms, blue light, organic produce and carcinogens where in the past our ancestors worked in coal mines with canaries as the only safety equipment.

So when I get home from work after folding clothes in the Stitch Fix warehouse, my Apple Watch thinks I’ve walked 15,000 steps because that’s how much my arms move in a shift. I’m getting up before sunrise, going to the time clock and standing at a table for eight hours a day.

When I get home, it’s hard to drag myself to the gym. But I do it, because my body requires it. But run 26.2 miles? Never going to happen.

I don’t have the energy, the physical prowess or the financial resources to have that kind of free time.

Smug little doctor man

I might have to fire my cardiologist.

He’s personable and easy on the eyes, but he certainly had his decisions made without listening to what I had to say. And when I got home and read his notes… I don’t know if I can say I felt betrayed or even insulted. I knew what was happening while I was there. It was a gut reaction and I felt myself shutting down.

He said I was fine, my heart monitor was fine, and my EKG was fine, and then he asked if I had any more episodes. I asked for clarification on what he meant by episode and explained that as of last week my heart rate had calmed by about 20 beats per minute. And that I had two more unexplained episodes of lightheadedness that almost ended in falls.

I pointed out that I wrote everything down if he had any questions about my symptoms and also said that I bought an Apple Watch.

He didn’t seem interested in any of it, only in my episode of a-fib. And then he noticed that my primary care doctor had ordered a tilt table test. “That’s odd,” he said, looking at my record.

“He wants to rule out POTS,” I said.

He gave a little nose grunt of disapproval.

“Do you have any questions?” he asked.

Not that I was willing to ask. Based on how he seemed to be judging my primary care physician there was no way in hell I was asking questions of this man.

When I read his summary of our visit when I looked at my online chart, he blatantly called out my primary care physician for considering POTS and said my symptoms were not consistent with that, and blamed my falls on my poor balance.

I might have cerebral palsy, but I don’t have “poor” balance. It’s not “good” but it’s not “poor” and I have the physical therapy records to prove it. Actually, I was released from physical therapy today. When these episodes happen, I can feel that the problem is not my legs. So my heart looks fine, and I’m very happy about that, but I’m angry that he just attributed the whole stint in the hospital as caused by my poor balance. The night of the accident I had been showing off to my trainer Andrew how well I could stand on one leg.

When I read his notes I got even more upset, because he’s blaming my orthostatic hypotension on dehydration and makes it sound as if I don’t drink water. I said symptoms are worse on the weekend, probably because I don’t drink as much water. I drink about 60 ounces at work alone, which means on a typical weekday I drink about 80 hours of water, maybe 8 ounces of another beverage and 12 ounces of coffee. Subtract about 60 ounces water off that on Saturday and Sunday.

And he also says I drink more now, especially when my blood pressure is low, and what I said was that I keep an electrolyte powder by my bed and mix a portion of that to drink in the morning if my blood pressure drops, as suggested by my primary care physician.

So I looked at my ekg– my heart shows a normal sinus rhythm and arrhythmia.

I emailed my primary care doctor and said the cardiologist is not a match and after I get the next couple weeks of appointments done, I want to follow up with him (my PCP) to talk about my medications. And I’m also thinking of asking about a registered dietician and some nutritional resources.

Today my heart rate is up. My blood pressure is low. I have headaches and everything in my body hurts.

Working for the Weekend—The pluckiness of the modern author

Happy Monday everyone! I wanted to do a long blog post about Lehigh Valley Space Fest with Nan but I wore out of steam. I used up all the words in my brain on this post over on Parisian Phoenix.

And while it doesn’t detail the fun Nancy had playing with a meteorite and fondling a zero-G Smurf… it at least proves that I do do more than go to doctor appointments.

If you’re a reader, God bless you. You are the butter to the writer’s bread, the sustaining force whom we drive to please. But if you’re an author, …

The pluckiness of the modern author

Have you ever had brain surgery before?

Today I received a paycheck. I haven’t had one of those in two months. I have been keeping my house afloat on $900 in disability payments (and denied the last $450 I was entitled to because the absence management company keeps losing the fax), savings and credit cards.

In two hours I will be leaving to drive over to my hand specialist/orthopedic surgeon about my sprained pinky. Despite the therapy, despite the time that has elapsed, it’s still tender, doesn’t bend all the way and has a rather distorted knuckle. Monday is my first appointment with my cardiologist.

My heart rate has been normal most of this week. But yesterday was a little rough– heart rate variations and fatigue throughout the day. I had a lot of muscular pain in my right hip, which extended into my back and quad, and worked overtime at the Bizzy Hizzy. So, I ate a lot of snacks, took ibuprofen, drank a lot of water, and ate my sorrow in the form of about 2,000 calories of burger, onion rings and blizzard at Dairy Queen.

My boss asked me if anything had changed to cause my discomfort. And as usual, Angel hadn’t changed one thing but several. I had worked hard the day before and perhaps I overdid it, because I had been behind in my numbers. Then, I went to the chiropractor, and when she touched me, it felt different. She often has to do things to my legs I don’t understand, but that right hip often feels like my pelvic bone is at the wrong angle. And when she touched it, the way she does every week, it burned instead of ached.

After the chiropractor, I went to the gym. And Andrew subjected me to leg-and-core day. Because he loves me.

I had a nice dinner after that of kale, potatoes and chicken. And I was in bed by 8 p.m. (Don’t judge me! I wake at 4 a.m.) At a minute or two before 9, I had to use the bathroom. And these days, I can’t take my chances. For some reason, I can’t always hold it. I have some retrolisthesis, and there is some theorizing that it might press on a nerve occasionally that interrupts that signal.

I stumbled from my bed, entered the bathroom, and next thing I knew I was kissing my ceramic tile and my Apple Watch was having a tantrum on my wrist. The Teenager ran up the stairs.

“Mom, are you okay?”

The shower shelf had started to fall off the wall earlier in the day. I had decided to be proactive and I removed it. I set it against the bathroom wall to rehang. In my evening stupor, I did not have my glasses on. The pale silver shelf blended in with the beige tile and I stepped right on the damn thing.

“Mom?” the Teenager said. “Why is your watch freaking out?”

Apple Fall Detection has received some mixed reviews. But this time it nailed it. My watch progressively buzzed until I looked at the screen and responded to it.

“It looks like you have taken a hard fall.”

And there were two options. “I’m okay.” And a big red emergency button. I hit “I’m okay.”

That’s how I went from 50 days without a fall to one. Sigh.

In the last of the medical update, I’ve been receiving a lot of repeated phone calls that never leave messages. So, I answered one yesterday that looked like an important phone number. And it was 11:22, so close enough to work lunch that I could step off the floor if I needed to,

It was the neurosurgeon. My neurologist had told me she was going to refer me to neurovascular to have my aneurysm checked. Apparently, they call you and ask your symptoms so the doctor can decide if your head is going to explode and if he needs to see you tomorrow versus in a couple months. So, I answered her questions.

“Have you ever had brain surgery before?”

Oh, I don’t intend to have brain surgery at all, I think. “No.”

“Do you have any allergies to the dye used in MRIs or CTs?”

“No,” I said. “I just had my first CT with contrast and tolerated the dye well. But I have a tooth implant, so an MRI might be out of the question.”

(Which is a shame as I would love to see my brain via an fMRI.)

Questions about my symptoms. Headaches? Yes. Vision trouble? Not really. Weak arms? No. But I have a tingling pinky no one can explain. Lightheadedness or dizziness? Yes, but we attributed that to low blood pressure and side effects of the beta blocker. Slurring words? Not slurring, but completely losing. But I have a history of anemia. Incontinence? Lately, yes.

“Do you have difficulty walking?”

I chuckled. “That’s loaded question. I have cerebral palsy.”

“Oh, let me write that down for the doctor.”

“Spastic diplegia if you want to be specific,” I told her.

“When did your symptoms start?”

“Well…”

I told her they found the aneurysm after a CT scan meant to check if blood wasn’t getting to my brain properly after my second fall in March landed me in the hospital. And here we are.

I need this weekend. Badly. And I’ll be taking Nan, my blind friend the space nerd, to Lehigh Valley Space Fest on Sunday.

Barbells and heart rates

It happened again yesterday. A work colleague reminded me that she was old and 50, at which point I had to say, “well so am I.”

After some back and forth, it was determined that I am a year younger than her, as my 48th birthday is in less that three weeks and her 49th is in June.

I have so much to say, and so much on my mind, that the words overwhelm me and don’t emerge as they should. But, here is my attempt.

Let me just say– so it looks less like I am whining– that yesterday was probably the first day since late January that I did not feel my heart pounding in my chest. Even at the gym. The Apple Watch reports that even as Andrew had me standing on balance trainers while swinging the heavy ropes, my heart rate stayed at around 150 beats per minute.

Yesterday I also felt strong and steady walking around all day. My back and hip pain never got over a three, and dissipated as soon as I got home from work. I didn’t feel like I was swaying standing there at my table.

Which, if you are curious, the Apple Watch counts folding clothes as steps, especially when it’s the aerobic clothes folding we do at Stitch Fix. So, I’m now routinely getting 15,000+ steps a day. I know they are not steps, per se, but it is activity. And about five minutes a day of folding clothes the watch registers as exercise.

My blood pressure has consistently been about 98/54 upon waking, 125/80 most of the working day, and 115/70 in the evening. I keep an electrolyte beverage at my bedside (electrolyte powder plus if you are curious) and chug about six ounces before getting out of bed. I’d have more, as the doctor suggested a full 16 ounces, but I have noticed that I have a tendency toward incontinence these days. If I feel I need to use the restroom, I have to go right away or I might pee myself on the way to the bathroom. It’s happened at home several times that once I registered the sensation, I just can’t hold it until I reach the toilet. Not fun.

And my pinky still tingles at work, during exercise and during postural changes– or so I think. I’m trying to figure it out.

The tilt table test to rule out Postural Orthostatic Tachycardia Syndrome (POTS) is May 17. And my neurologist will be referring me to neurovascular for the aneurysm they found in my head on my CT scan. But good news, she said, is that she doesn’t think the aneurysm has anything to do with my symptoms.

My short term disability provided by my employer only provided two weeks pay of my one month leave, and it was only 66% of my wage at that. I’m still bickering with them over the last week, because they claim my doctor hasn’t sent appropriate notes to justify my last week. I know my doctor’s office faxed the forms twice and I sent screen shots of the office notes. Now the absence management company has switched my examiner.

This remains extra frustrating because my initial fall, on Stitch Fix property, happened March 1. I filed a claim at that point, and missed some working time because of the incident but no full days. I don’t think. They canceled that claim, and when I ended up in the hospital the evening of March 13, I had worked a full day that day so that meant my waiting week started March 14. All this bickering over $450.

In the meantime, my car insurance had been due on the day I ended up in the hospital and I ended up paying it from my hospital bed by credit card. Because I hadn’t anticipated being out of work mostly unpaid for a month, I had business and other household expenses, primarily groceries, on that card, with The Teenager’s unexpected car repairs, and a balance from the ceiling repair we had last year. By the end of April, I had $5,000 on my American Express. And not a dime in my checkbook or savings account.

I used my rest time during the weekend to research a personal loan. And I closed on that with my bank of 20+ years yesterday. I’ve been paying $300+ a month on credit card debt. This allows me to pay them off, have a bit of a cushion, and repay at a rate of 6%. That’s the one good thing about having a high credit score in a bad economy, it’s cheap and easy to borrow money. It certainly makes me uncomfortable to have “more debt” but I have to remind myself it’s the same amount of debt, just more manageable.

It’s a lot. It’s a lot to think about when you balance it all with the fact that I have a disability, work full-time, have a side business where many people depend on me, and I’m a mom. The jury is still out on whether whatever happened to be in March was a “single” event or whether now on top of everything else, I have a chronic condition.

Whatever it is, I’ll keep coming.