Karaoke adventures

Both the Teenager and my blind friend Nan are musically-inclined. My daughter turned 18 in June and Nan turned significantly older than that in July.

I promised to take them to karaoke. It took a couple months to find an environment suitable for an eighteen-year-old that was also scheduled early enough for Nan and I.

Thursday was the night. After all, under my current schedule, Thursday is my Saturday night.

And it turned out there were two options in the same town. I found about one rather late in a new restaurant but hosted by someone I know. The other was at a more familiar location, one my family has visited since the Teenager was a baby. Literally, car-seat-on-the-table.

I picked SoMa Downtown Grill, formerly sports pub Delahanty’s on the Square. It will always have a soft spot in my heart because I remember when the building was a wreck and the owners received press coverage from my newspaper for their efforts to rehab it.

My favorite items on the menu were discontinued during their rebrand to SoMa but that has forced me to find new favorites on my visits. I knew this would be a family-friendly location for The Teenager to make her karaoke debut and one familiar enough for me to navigate with Nancy.

I even put a little effort into my outfit and wore my Stitch Fix jewelry. And my new “ultra flare” jeans from Target that I cut off at the bottom because they were regular and not “short.”

Meanwhile, Nan was practicing Leann Rimes in her new suite in her new independent living situation.

And I had no intention of singing.

The only time I ever sang karaoke it was with my friend Ken, who hosted the event (and DJed my wedding). I waited years to try and ended up singing Crystal Gayle’s “Don’t it make my brown eyes blue.”

The Teenager and I busted Nan out from her place and headed to New Jersey, where we arrived early and settled in for some dinner for The Teen and I, and an Angry Orchard for Nan. I joined her with a Yuengling draft. We ordered a goat cheese crostini appetizer for the table, which was a delight.

Nan was the second singer of the evening, with Leann Rimes’ “Blue.”

It took a while for the Teenager to commit, but she and I did a duet of Barenaked Ladies’ “If I had a million dollars,” of course, as Murphy would have it, her microphone was off and she asked me to take the part I don’t normally do in our car duets. So she tried again and drug me up there for “1985” by Bowling for Soup.

Khloe

And now that’s stuck in my head.

We spent exactly what I had in cash in my wallet without even trying and Yuengling was on special and I didn’t even know it. We were home by 9:30.

And of course, my cat Fog came running to chastise me for being out later than usual and Khloe leapt onto my chest as soon as she got the opportunity.

3/4 of the year: The August medical update and ‘the feels’

Yesterday Nancy (my blind friend, poetry editor and my sassy mentor/ partner in crime) and I were in her bank. The other local branch of this big name bank had had some sort of building emergency. That office was temporarily closed, so the customers were lining up with us. The bank was understaffed (the man in charge had a lovely amiable personality and told us all if we wanted a job he needed two tellers immediately. I turned to Nan and asked if she wanted to apply. She laughed).

We were fourth in line, with a small brown man with an accent in front of us. He overheard me tell Nan something indirectly about my weight (the fact that I had worn jewelry made me jingle and I had on heels so I was unusually tall). And I said something about finally having the mindset to make an effort even if I hadn’t lost any of my stress-induced pandemic weight.

The man in front of us softly said, “you look great” (and when we left I got cat-called so it had to be true, I suppose). A few minutes later the man mentioned that seeing Nancy reminded him of the story of Jesus healing the blind man.

Now, before I continue this story, picture us in the chaos of an old-fashioned bank building, the arched ceilings and the old mega vault. Picture the long line, socially-distanced. Picture awkwardly-gaited me and the little old lady with the white cane on my arm.

I have heard the stories of disabled people dealing with religious folks who want to pray for them or with them. And this man muttered something about blindness being a blessing. And Nan mentioned something about disability teaching lessons to those around us and reminding us to have patience.

“It’s a blessing,” the man said.

Easy for him to say. It reminded me of something I heard on a podcast interview with a martial artist who has cerebral palsy. “I can do anything anyone else can do,” he said.

I mean, it’s the crap we always hear. And we can do anything anyone else can. But we also can’t. There’a footnote to that statement no one ever told me: you can’t expect to do it the same way they do it. You won’t look like them or necessarily achieve the same things in the same order. The able-bodied will never understand how different simple tasks that come easily for others can feel impossible to us. I spent my whole life trying to do what everyone else did, they way I saw them do it. But I didn’t understand that the physics of my body is very different from anyone else’s.

My legs and arms are often covered with brushes and scratches from bumping into things. I stumble and fall. But, I haven’t had a serious fall since August 3. That’s exciting. My average since the mallet finger has been every two weeks. I’ve now made it almost three. Today, I have my follow-up with my doctor, and I had called his office when I started the application process for a mobility dog through Susquehanna Service Dogs.

I’ve blogged about this most recently here. I connected some of my earlier posts about the process and decision here.

I asked his staff if he could fill out the medical form, because if he didn’t think he was the right person I could call my neurology physiatrist. She was/is amazing but I only met her once, two months ago. I have been with my primary care physician for 14 years.

His staff checked with him and they assured me that he not only fill out the form but that he would do it at my already scheduled appointment today. I normally see my doctor twice a year, in winter for my physical and in summer to review bloodwork and health issues that may pop up during the year.

When I ruptured my tendon in April, I visited him because my entire system was thrown off balance with the injury and although the specialist had allowed me to return to work (rightfully so), my hip was in pain and I was falling all the time. He signed me out of work for a short recovery leave of about three weeks, so I could work with Andrew, my strength and fitness coach at Apex Training, my occupational therapists at The Institute for Hand and Upper Extremity Rehab, and my talented chiropractor and physical therapy guru Nicole Jensen of Back in Line Chiropractic and Wellness Center.

I have documented this journey and have started writing my cerebral palsy memoir, Gravity is a Harsh Mistress with clever title by my estranged but still strange husband. Blog posts with connections to cerebral palsy are listed here.

My primary care doctor followed up with me after my specialist visit and allowed me to return to work at the end of May, even though my finger was still in a cast. We made this decision because the effort I gave Andrew had paid off and my hip was no longer bothering me. In addition, I had my first meeting with my physiatrist a few days later and I wanted to see how I felt after a week back-to-work to relay that information to her.

Anyway, point is, I haven’t seen my primary care doctor since May. He hasn’t seen my healed finger. He hasn’t heard about some of my rather dramatically majestic recent falls.

My weight today was 155, which is more than five pounds less than what it was at the gynecologist’s office last week.

I arrived early. I was in my exam room before my appointment time. My friend Gayle was bringing me her laptop so I could work on the cat book edits. I told her to put it in my car as I didn’t have time to run to her house and didn’t know how long my appointment would be. She ended up at the wrong medical practice. There are two similar St. Luke’s affiliated family practices in neighboring buildings.

I was texting her and making notes waiting for the doctor. I noticed my phone buzz again. My mom had sent a photo via text. That’s odd, I thought to myself. Mom hasn’t said much to me since the Teenager and I surprised her companion on Father’s Day. She didn’t even text me when she went to Florida to visit family. So, what was this?

I opened it.

I shouldn’t have. It was my father’s tombstone. My mother, despite having divorced more than 30 years ago, visits my father’s grave regularly. She’s grieving him, as many people are, and she is also grieving two of her brothers who died in the weeks before my father.

I couldn’t hold back tears. I have not visited my father’s grave since the funeral, and even then I did not get out of the car. I don’t see the point. The funeral had alienated me, and I didn’t feel like I “belonged,” and that’s not due to my family. But my father wasn’t there anymore. It was a corpse. And I had no need to see it formally placed in dirt. He was gone. And no ceremony will change that. Even now, I’m crying again.

Several times I regain my composure and several times I lose it, until eventually the doctor knocks on the door. So, I had to explain.

I mean, I suppose I didn’t have to, but it seemed only fair.

That meant we spent the first ten minutes of my appointment talking about boundaries, grief, and therapy. I’ve been with my psychologist even longer than I’ve been a patient of my doctor and the two of them know each other and speak so sweetly and kindly about each other.

We moved on then I think first to my recovered mallet finger. We reviewed my bloodwork. I told him I had to go get more iron, as my previous bottle had run out and I was using a different iron that didn’t seem to be working as I told Nan yesterday that I “almost bought a pair of potato chips.” Now, when you’ve had a history of iron issues and anemia, word confusion is a symptom. And I have been using wrong words in speech for at least a week. So either the iron is dipping or I should be screened for early onset dementia.

I almost bought a pair of potato chips.

I used this opportunities to ask if there were any other adjustments he wanted to make to my vitamin regimen. He suggested sticking with the 2000 ius of Vitamin D3 (which I take with calcium).

Next, we tackled the form for the service dog. Much to my relief, he thought the dog would be extremely helpful for me. And he also commended me for the work I do to take care of myself. In the evaluation for the service dog process, I was telling stories from the gym and mentioned how my ankle finally popped for my chiropractor Wednesday night, and how after my last fall I asked the Teenager to evaluate my walk, then she told Andrew this info at the gym, and he monitored my movement, until the next day I went to the chiropractor and she had to maneuver my hip back where it belonged.

She said I needed to do more single leg muscle stability work, which I then told Andrew, and I relayed to the doctor the horrible exercises Andrew made me do. And my doctor chuckled.

He once told me that he doesn’t worry about me because he knows if he tells me to do something I will do it. And I think Andrew and Chiropractor Nicole see the same commitment in me. My doctor today said this is why I am in better shape than many of his patients, despite my issues.

He handed me the completed form, which is the type of thing the office signs decry “requires 7-10 days” and payment of form fees. I am so grateful for my team, their respect and their guidance.

Meanwhile, while I am setting up my annual physical for February 2023, I see a text from Gayle. Remember Gayle? Apparently, she forgot my current car was a Volkswagen and was wandering in the parking lot looking for a silver Nissan. (My last car was a red Altima.) I didn’t have my Stitch Fix parking permit on my mirror. The car was clean because The Teenager has her own vehicle now. And there were four silver cars– none of the Nissans– in the parking lot.

She meandered around so long that a staff member came out and asked if she was sick or needed help. When I left the building, Gayle was next to my car. I had been with the doctor for an hour.

“You’re still here?” I said.

“I’ve been out here 45 minutes,” she said. “So when you replied to my text I figured I might as well stay and say ‘hi.’ What’s five more?”

Only you, Gayle. Only you.

Moldy cabbage & DQ Blizzards: Happy Birthday to Nan

I have been trying to cook a cabbage for weeks. I envisioned fried cabbage and this fancy edamame and rice ramen I had in the cupboard from a past Hungryroot shipment.

The cabbage was bigger than my head and had a bit of mold on it, so the teenager said I couldn’t eat it. I cut a huge chunk out of the side and sautéed it anyway.

“Mom,” the teenager said, “that doesn’t solve the problem.”

I wanted cabbage. I’m the one allergic to penicillin and molds. So if I’m willing to eat it, I’ll live.

But I was not willing to feed it to Nan. I called her up to tell her the story, and I knew I’d either missed her birthday or it was coming up in the next few days and I had to ask.

I’m terrible with birthdays.

It turns out it’s today. Happy 69th, Nan! You’re still my coolest blind friend (and my only blind friend).

The teenager and I hopped in her Nissan Rogue and took Nan out to DQ for blizzards— we offered to take her for fancy ice cream but she wanted Dairy Queen.

It turned out the teenager had Avenue Q in the compact disc player and Nan had never heard it, so we listened a while and now Nan plans to look up the rest on Spotify.

Wait. What? The teenager is using discs and the old lady is using Alexa to stream music on Spotify?

In other news, I’m 85% done with my service dog application. I’m about 85% certain I want to do it. Several people have expressed support whom I did not expect.

The ordinary adventures

So, if you’re a friend of mine or a regular here, you know that I have asked my employer, Stitch Fix, for a short-term disability/ FMLA leave to deal with my ruptured tendon (mallet or baseball finger) and its impact on my right hip.

This means I’ve made a commitment to work with my family doctor, my chiropractor (Nicole Jensen at Back in Line Chiropractic and Wellness Center) and Andrew, my personal trainer at Apex Training.

And to keep my hands warm and not use my finger.

Yesterday, I saw Nicole and we discussed the state of my body and the trade-off I seem to be making— working in the Bizzy Hizzy warehouse keeps me active but causes pain, but not being in a physical job makes me stiff and makes it difficult to move, even when I take the same amount of steps I do at work.

Andrew and I are working on strength, mobility, stability and range of motion.

I had lunch with my mother yesterday, who upon her return home had her dog pass away.

In the afternoon, I spoke with my disability claims examiner and gathered paperwork for her. My eligibility confirmation came through this morning, and I think the actual leave is just a matter of paperwork now.

But paperwork sure is sucking the life out of me right now.

So this morning when the weather looked sunny and conducive to a perfect spring day, Nan and I decided to surprise the teenager and retrieve her hearing aids from the ear doctor. Then, we could grab some cold beverages and visit Bethlehem’s Monocacy Park.

The park is quiet, easy to navigate and has a creek. The birds, geese and fishermen would offer entertainment for Nan, as between the water and the animals there would be nature to hear as well as see.

It was a fantastic way to bring some stress-free moments into running errands.

After a modified upper body workout with Andrew, Joan stopped by and brought me an early birthday gift from the residents of Plastiqueville.

A hat!!!!

The hat was not for me but for my mallet finger.

And for dinner, the teenager made Hungryroot meatballs and cauliflower linguine. We used ShopRite tomato and basil pasta sauce. It turned out so lovely I had to make a slice of butter bread to sop up the sauce.

Small pleasures.

Real friends eat fried chicken for breakfast even in the car

Thursday is my Saturday for those who don’t know or can’t keep track of my schedule.

Since my schedule change— from second shift to day shift— I have met with my friend Nancy (poet and essayist and blind lady with a wicked sense of humor and simple approach to life’s joys) usually every other Thursday to work on her writing commitments.

Recent changes in her life have made that every Thursday now, as I help her with some errands, and then I changed trainers at the gym and the teenager now works out with us so Nan gets Thursday morning while the teen is at school.

It’s automatic in my brain. As automatic as my standing Friday morning chiropractor appointment.

But what happens when we get together is never ordinary. Or the same two weeks in a row.

Like today we were going to see if our local Family Dollar had the individual creamers she likes. Except they weren’t open. So we opted to go to ShopRite.

And somehow— I got turned about driving there and thought I was on the wrong road but I wasn’t. So we zigzagged all over the place and eventually I had to Google map the grocery store.

We finally made it to ShopRite and the first thing I saw was a single serve bottle of orange juice— which Nancy is always looking for.

Then I saw fried chicken, still warm out of the oven. $9 for eight pieces. I had to get it. And I knew damn well I’d probably end up eating in the car.

Nan and I went through the various salads and deli meats— I picked out some broccoli slaw and ultra sharp cheddar for Nan and some black pepper Cooper for myself.

And next we saw small partial loaves of rye bread in the bakery. And muffins.

And so it went.

We found the items we needed, items we didn’t and a slew of things that we want to buy in the future.

The cashier actually addressed Nancy and understood to speak so Nancy could locate her.

And then we were in my car eating warm fried chicken at 9:15 a.m. Nan hadn’t had fried chicken in ages, and she kept saying she didn’t want any. But I insisted and handed her a drumstick.

She said it was delicious and that she’d forgotten that she likes fried chicken. And I said I’d be good on the fried chicken front for probably at least six months if not a year.

And then she pulled wet naps out of her purse.

After retrieving Nan’s laundry and taking her groceries home, I brought Nan back to my house for chai and well, the plan was poetry. But we got sucked into NASA briefings (crew4 and Axiom) on YouTube.

Nan listened to the briefings and pet the dog while I cooked some random items for her to share with the teenager and I. Nan enjoys my cuisine so when she comes over I try to send her home with a meal.

Sometimes you need to have fried chicken with a friend, in the car, for breakfast.

A visit to the podiatrist

My blog post yesterday received a lot of extra views and shares thanks to my discussion of the fabulousness of Nicolosi’s Pizza on Sullivan Trail.

It makes me wish I would have spent a little more time developing the back story so newcomers would understand some of my rambling at the end.

So here’s the latest installment.

Today I worked with Nan, my friend, blind poet and essayist. We did errands— the bank, retrieving laundry— and prepared some new submissions of Nancy’s poetry. We also checked out her most recent publication, “Brewing Chai” in *82 Review.

I made the decision, as founder and publisher of Parisian Phoenix Publishing, to purchase a hard copy of the magazine. One publisher supporting another.

Very exciting.

I also have two friends scheduled to get packages from the publishing company today, if the post office tracking info is accurate.

Very exciting.

And when I took Nancy home, I was able to head to the gym, Apex Training, to work with my trainer, Andrew, who along his prowess in powerlifting, does an excellent job observing my movements and targeting the muscles we think can make the most impact based on information from all the specialists I’ve seen.

And Andrew kicks my butt.

He makes me sweat. He challenges my range of motion. He also exercises the parts of me that work.

Very exciting.

Both of my trainers at Apex have been amazing.

I rushed home to shower and grab lunch as I had to get the dog into the car, pick up the teenager from school and go to the podiatrist. The dog had to go to the vet at the same I had to go to my doctor only a couple miles apart.

(One of the foster cats has worms, so every mammal in the house needs dewormer.)

This all begs the question: Why was I going to the podiatrist?

Well, I’ve known my podiatrist for 20 years. We connected in my journalist days through a mutual friend. The mutual friend nominated him for a small feature in our newspaper.

The mutual friend has passed away, and when the teenager needed a podiatrist and I couldn’t get timely care for her through my networks, this podiatrist friend of my deceased friend got her in expediently AND gave her amazing care.

I’ve been to the podiatrist once or twice myself— and I thought his brain would be a good one to pick for more information on my cerebral palsy. I made the appointment when I was still struggling with my splinter and dealing with my blistering toes.

We had a great conversation as he checked my feet and dealt with all the dead skin from blistering, and he asked me all sorts of questions about what other specialists had said. So I told him.

He’s very curious what the neuro-muscular physiatrist will have to say, and in the meantime he suggested physical therapy stretches twice a day.

And he wanted to know what the orthopedist had to say— if he could do anything. I said no that the only real option was the surgery I should have had when I was twelve.

To which he replied rather passionately that I should have had surgery when I was twelve.

At first he was angry I didn’t have more interventions as a child, but I explained how my mom was told I would die so she named me Angel, and then when I lived they told her I would never walk or talk, and then they said I had severe brain damage.

“Boy did they get that wrong,” he said.

“So that’s why my mom stopped taking me to doctors,” I explained. “Because they only gave her bad news and they were always wrong.”

“That makes sense,” he said.

(And he asked if I got my splinter out myself and I said first I tried a raisin, which fixed my hip pain, but it was my cockatoo that really got it out. And he said, “Oh this is going to be a good story.”)

This doctor has his own private practice and has been a doctor for a long time. I love that he decides how long he can take with each patient and he can be jovial and a little grouchy at the same time. Not nasty grouchy, just like-a-dad grouchy. It’s like he’s a person underneath that doctor coat.

The teenager made dinner: the chicken breast I had leftover from our last Hungryroot box, youba noodles and vegetables. And then we watched the latest Spider-Man movie which featured all the Spider-Mans.

Which, for the record, Adelaide Pitney, the supermodel from my Fashion and Fiends series, loved the Toby Maguire Spider-Man.

And since I started this blog post, both of the packages slated for my friends have arrived. My traveling companion M has received his copy of Recovery, as the book is dedicated to him and to his role in awakening my love of Africa and post-colonial critical theory.

The other package was to my therapist friend in Georgia who loves to have nice things to ponder.

Very exciting.

Sometimes the bad, and the cold, can be good

Working 10-hour day shifts after a year of second shift has certainly proved challenging (and this weekend will be one of those challenges as we change the clocks in the wee hours of Sunday morning). And I do appreciate the long weekends, but not the 6:30 a.m. start times.

My “weekends” (Thursday, Friday, Saturday) get hectic— usually one day for errands and medical appointments, one day for chores, and (only quasi-joking) one day for cats.

I woke today at 5:30 a.m. in part because my cat Fog seemed to be in the middle of a panic attack, banging on my door and screaming, wondering why I was still in bed. I thought I might snuggle back under the covers when the garbage man rolled up and decided to bang cans and recycling around underneath my bedroom window.

Now that I’m on day shift and normally wake at the ridiculously ungodly hour of 4:45 a.m., 5:30 a.m. is technically sleeping in. And while the garbage man and his predawn ruckus used to piss me off when I went to bed at 2 a.m. after clocking out at midnight, “he” is merely a minor inconvenience now.

But I woke with a strange chill as I crawled out of bed— but I am always cold so I thought nothing of it.

I picked up Nan and 9 a.m. and as we were working in my dining room, I asked, “Are you okay, I’m cold.”

And she confirmed that it was cold but it was okay.

But I said no, that I couldn’t feel my toes and we needed to nudge the heat even though it was approaching 50 degrees outside.

But the thermostat read “56” even though the heat was set at “62.” And I realized that my fuel oil company, Deiter Brothers, had sent me an email that I would receive my automatic delivery fuel drop in the next day or two.

Obviously, we didn’t make it.

We were out of oil.

I confirmed it and called Deiter Brothers and brought Nan out to the sunporch where it was 60 degrees and sunny.

And the dog kept us warm.

After I took Nan home, I did a headcount on our personal and foster cats and sure enough everyone was someplace warm.

I folded some laundry on the porch, now a toasty 64, and the oil man arrived as I sipped a cup of coffee to stay warm.

And much to my surprise— I had enough summer prepaid gallons left to fill the tank. If I didn’t, my locked in rate would have been $2.399 a gallon. Which seems insane compared to the current price of oil.

This is only the second time in the twenty years I’ve lived in this house that automatic delivery let us run out.

So now we’re toasty again— thanks to the oil delivery man priming the furnace and getting us running again.

I shared some good laughs with Nan, got some good animal cuddles and appreciated the sunshine more than I might have otherwise.

Informal weekend update: Canning with the Blind

This weekend was hectic and quiet at the same time.

Saturday Nan and I canned some corn relish/salsa with some farm fresh corn on the cob. My mother-in-law, having grown up on a farm, knows her corn and has a gift for picking delicious corn.

Nan, as a lifelong blind person, has a fascination with all things cooking. She always says that she doesn’t understand how people learn these things. I told her I don’t quite remember how I learned to can, though I do know I always had an interest in gardening and in preserving the rich variety of foods we have in this region.

But it was fun to see Nan respond to the tools involved in canning.

Yesterday, Mars and Minerva attended an adoption event with our cat rescue group Feline Urban Rescue and Rehab. Meanwhile, the teenager and I volunteered with the FURR kitten event and backpack distribution through the Verizon Store in Forks Township. Our foster Touch of Grey came from there. They actually have foster cats free roaming the store!

The teenager and I finally got our FURR t-shirts. I’m very excited. The teenager looks really good in hers.

Meanwhile, at home, our foster tripod Louise has been very cuddly and at my side relatively non-stop.

Louise

And I finished the proof for Manipulations. The book designer (my partner Gayle) will check out the file tomorrow.

My friend Bill sent me the manuscript for his next book in the Kink Noir series, Bondage. I’ll start my review sometime this week.

And finally, I made a list of all the authors and books that I hope to publish via Parisian Phoenix.

I was shocked how many titles were on the list. I hope I have the resources and the marketing prowess to do these books justice.

Review: A For Abled Podcast

Another piece in my understanding cerebral palsy series

Technology can offer an opportunity for a great equalizer or perpetuate a divide. In both cases, there is a complexity that arises.

That sounds vague.

But allow me to try and explain.

My friend Nancy, a talented poet and essayist, is blind. She has seen the rise of all sorts of technology from computers, to tablets, to the gambit of “smart” devices. She has experienced that when looking for accessibility, those helping her (whether it be staff at organizations for the blind or everyday customer service employees) view people without what they deem standard technology— smart phones, online banking, PayPal, computers— as lazy, poor or stupid.

I’m thinking about this, in part, because of the podcast A is For Abled. I listened to the debut 2019 episode (recorded on October 6 which the podcaster announced is world cerebral palsy day) at the Stitch Fix Bizzy Hizzy last night.

I am realizing more and more that platforms that YouTube, Spotify, Facebook, etc., provide more and more opportunities to connect with real people so many of the “products” people put out there are amateur. And I am not knocking on that.

But when people talk about there experiences you need to keep in mind that memories are not the best source of fact.

The first episode of A is for Abled discusses the host’s background— Kyle, his sister Cheyenne and his mother have a pretty comprehensive discussion about their family attitude toward Kyle’s cerebral palsy, his upbringing, public vs. private school in regards to disability resources and quality of education, sibling relationships, the various therapy and surgeries Kyle has had and society’s reactions to disabled children and more specifically Kyle’s gait, which they call “swagger.”

Kyle was 32 in 2019, so this makes him more than a decade younger than me. His mother was 19 when she had him and he is the oldest child. They are also African American so they make some comparison/contrast between society’s reaction to the disabled and the reaction to African Americans.

Apparently the show has completed two seasons. And it sounds like Kyle’s condition is very similar to mine.

Between his family, his therapy, his various exercise classes that his mom encouraged him to try (yoga, aqua aerobics, tai chi), private school and surgery, Kyle had a lot of interventions I didn’t have.

Things A for Abled pointed out (I have not fact checked these statements):

  • Like Karen Killilea (if you don’t know who I am referring to I talk about the Karen books here), Kyle had surgery (twice) for his hips to straighten them.
  • People with cerebral palsy often develop arthritis in their thirties.
  • People with cerebral palsy get worse as they age because the muscles and tendons continue to tighten. That’s why physical therapy and stretching is so important.
  • Hot Yoga not only provides the much-needed stretching and flexibility but also the heat automatically loosens the muscles.

To explore A is For Abled, find their website here.

Happy 4th: Holidays are for family (and/or naps)

This will be another long day-in-the-life style blogs. I never seem to know what will resonate with people so have it all, right? I’ll bold key words to allow easy skimming.

Cat Stuff

Adult FURR (Feline Urban Rescue and Rehab) fosters Louise & Khloe are still competing for my attention and unsure if they like each other. Two very different cats with very different personalities. Both really cuddly and are going to be great additions to any household.

Click here to see Khloe on YouTube

Click here to see Louise on YouTube

Parker and Extra Crunchy of the ten little kittens that got sick with distemper are now neutered and ready for adoption. They are such loves, especially fond of human snuggles as they were syringe fed.

Click here to see Parker and Crunchy on YouTube

And of course Touch of Grey (another adult foster) still thinks she’s the boss. She definitely is more cat than dog and we have good reason to believe she has neurological issues which may contribute to her agressive mood swings but the teenager is working with her.

Click here to see TOG on YouTube

My original Saturday morning plan was to prepare an outline of the coffee and kittens fundraiser, but our cat foster godmother had two kittens for us. One black kitten from a very feral litter, but he was not hissy spitty and one who turned up with a litter of small kittens who obviously was older than them and had been on his own. That one looked a little like Crunchy but was feisty.

I nicknamed them Fuzznuts and Fluffballs in my head, not knowing their gender. I also considered our “cats are gods” theme, but these two were not a litter so we didn’t want to use a whole pantheon for them. I considered Elohim and Yahweh, but my daughter vetoed it. I worried someone might get offended.

But foster godmother said, “people always get offended.”

A DMX song came on the radio in the car on the way home. DMX passed away recently and rappers also have that badass cat attitude. We knew the black kitten was a girl and the grey a boy.

“What about DMX and Diam’s?” I suggest.

“Mom, no one knows who Diam’s is,” she replied.

Latifah? Salt and Pepa? Then it him me.

“Eminem and Slim Shady,” I said.

“Mom, they’re the same person.”

“It doesn’t matter. The black one can be Shady and the other can be Em.

So now we literally have a cage of two kittens, Em(inem) and (Slim) Shady in our living room.

Grocery Shopping

The teenager went to work at Tic Toc Family Restaurant at three, and I went for Nan, my blind friend. We had plans to visit Park Avenue Market for deli salads and meats and the Lidl for boring things like milk, cheese and half and half.

I casually walk through the store explaining every item I see, from snack items to spices to peanut butter in squeeze tubes and olives in plastic snack cups. I love food and I love weird so this is why Nan and I consider grocery shopping fun.

At Park Avenue, Nan indulged in some meatloaf and ham. I got the pickled Brussel sprouts, liver wurst, bacon maple potato salad, cranberry horseradish, and violet candy. And crab stuffed flounder we had for dinner tonight.

These will resurface tomorrow when Nan and I work and have lunch together.

At Lidl, Nan got yogurt, lemonade, milk, Mac and cheese and those amazing home baked cookies. I got produce, cheese, breads, chips, seltzer, butter and Brussel sprouts among others.

And when I brought Nan home I discovered someone hit and run my car. This happened in July 2019, too. But that was a full side swipe. At work. In a church parking lot.

Someone hit my car. Sigh.

Nails and fun with Beth

I came home and put the groceries away and got ready to leave for my friend Beth’s house, formerly Nails by Bethy at Hyperion Salon. She recently started a new career in commercial insurance (I think) and so won’t have time or stamina to maintain my fingers and toes.

Some past posts with Beth nails:

1. Winter nails

2. Acrylic At Home Maintenance

3. First set of acrylics

But tonight I was headed to her house for “cocktails, dinner and board games.” She agreed to have my pineapple coconut rum drink ready when I arrived. I met some of her friends. Beth made chicken poblano with black beans, rice, coleslaw and pickles. And as I mentioned yesterday, we all played Cards Against Humanity when my family arrived. Her father brought the teenager over so she could be my designated driver.

Brunch with Mom

My mom and I have a tumultuous relationship probably due to trauma we’ve experienced in our lives. My mom has not had an easy life. Let’s face it, most typical folks don’t.

We had a talk last weekend and I agreed to visit her today. She offered to take me out to a swanky breakfast and let us stay for the parade for Independence Day that would be passing by her house. I don’t really like parades, and I’m sick of eating out.

So I requested a grilled cheese on rye instead.

She obliged.

It was delicious.

The teenager brought the Bean dog to visit Mimi and Mimi’s dog, Dog, was a gracious host. Dog is a miniature poodle.

Once we arrived home, I read a little more Karen by Marie Killilea before I opted to take a nap. I then stripped my bed, worked on the fundraising outline and went for a walk with Buddy and Sarah.

I stumbled on the sidewalk, but did not fall. Knowing I had borderline anemia made me feel better that my cerebral palsy wasn’t running amok.

For dinner, in my continued effort to eat more vitamin rich food to combat anemia, I made the crab-stuffed flounder, brown rice with pistachios, and sautéed some leftover green beans and the cabbage, kale and carrots in a Green Goddess Salad I bought on clearance at Lidl yesterday. I topped it with some rather stale sesame sticks purchased at Forks Mediterranean Deli at our last visit (which was too long ago).

My goal for the rest of the night is to work on the Wheel of Life in my July Silk & Sonder planner and finish Karen.

Happy Independence Day.

Remember that the founding of this country can be seen from many perspectives: as destroying the lives and cultures of indigenous populations, as a place to promote white Christian values, and/or as a place where people came to live according to what they felt was right.