This is how we start 2023?

It’s 4 a.m. on Sunday, January 1, 2023.

The Teenager is on an overnight for a client, petsitting. Her dog is sleeping in her crate in the living room below my bedroom. I have Louise, the sweet foster tripod cat, sleeping in my arms. Bean, the Teenager’s dog, whimpers.

You see, I normally get up for work at 4 a.m. She knows this. I fall back to sleep and wake to barking at 5 a.m. Poor Bean thinks no one is home and she will be left to rot in the crate. So, I get up, let the dog out, and make coffee.

I struggled with my mental health yesterday. I was prone to depression, anxiety and even anger. I had to see some people whom I no longer trust, and whom I feel betrayed me. I’m stressed about some recent financial upheavals: an unexpected medical bill that I should have expected, uncertainty about heating the house and the borough announcing that the garbage service we have used for the last 20 years has changed, the rules have changed and the days have changed and the rumor is that the price has tripled– starting tomorrow.

All first world problems. Except for the relationships gone wrong. It hurts when people don’t listen to you or respect you.

I hit a new PR on the squat at the gym yesterday, 145 lbs. Everything felt like it was moving well, and I even did impressively on my hamstring curls (and my right hamstring is reminding me of that fact today.)

Our New Year’s Eve involved finally remembering to retrieve our medicines from CVS. I grabbed a couple of clearance Russell Stover Christmas hearts with three milk chocolates inside. And I used my 40% off coupon to buy a Duncan Hines EPIC Fruity Pebble Cake Kit. The Teenager was soooooo excited she baked it right away. We washed down the cake with some leftover Jewish Christmas cookies from Little Dog’s Mom. She makes incredible cookies.

Little Dog Sobaka, Little Dog’s Mom and I listened to the recent Christmas episode of This American Life, where comedian Alex Edelman discusses his first and only Christmas. It’s a great story of experiencing Christmas as an Orthodox Jew. It also looks like Little Dog’s Mom will be able to accompany The Teenager and I to the Harrisburg Mall on January 25 for my Canine Therapeutic Evaluation with Susquehanna Service Dogs.

I also made this weird little treat: I took a sprouted flat bread, spread it with vegan cashew cheddar, sprinkled it with organic parmesan and herbs de provence and drizzled it with cold-pressed extra virgin Lebanese-imported olive oil and toasted it.

But this morning, things took a turn. I texted the Teenager about a run to Dunkin on her way home. She arrived with her tea, my bagel and some hashbrowns.

“Where’s my coffee?” I asked.

But quickly it became apparent that the Teenager was doubled over in pain. I have never seen her like that. On Monday, the Teenager and her uncle came down with a fairly violence stomach bug that seems to have originated with the Christmas Eve gathering at my mother-in-law’s. The Teenager’s cousin and her family got it. My husband got it. I did not. Though I did fart heavily most of the week. My guts did churn a bit so I think I managed to fight it off.

As a consequence, the Teenager did not eat for about three days and her meals since then have been tiny but frequent. The smell of the hash browns in the Dunkin bag triggered intense pain. The Teenager nibbled a protein bar with her hash browns and laid down for a nap. I am waiting for her to come back downstairs. Here’s hoping she’s okay.

Of course, her dog became extremely distressed that The Teenager was not well. And the Teenager did not want to dog all over her in her discomfort. So, I opted to take the dog and run to Dunkin to get my missing cold brew.

“Bean,” I said, “Do you wanna go for a ride?”

The dog looked at me confused, as if saying, “did you say what I think you said?”

“Do you want to go for a ride?”

The dog leapt to her feet and ran to the front door and then the back not sure if we were going to the garage or the street. We headed into the garage. Bean hopped in the car. Dunkin made me a fresh cold brew and I bought the dog some munchkins which I fed her at every stop sign along the way home.

Christmas Eve Phase 2: A Trip to Bethlehem and Nazareth

My mother-in-law mentioned that she was making fried chicken and potato salad for Christmas Eve dinner, so I of course said I would come. If there is something I love, it’s her fried chicken and potato salad. She also made ham and a honey glaze. And stuffed shells. I put honey glaze on my chicken.

My brother-in-law made figgy pudding. That was tasty.

My mother-in-law always has a heap of homemade Christmas cookies and the family fruitcake recipe is unbelievably tasty. And the goofy sugar/coconut/strawberry JellO crystal cookies are one of my favorites.

The Teenager says she likes when I come to family functions, because I liven them up a bit with my big mouth.

The kids opened presents– the eldest great-grandchild received a learn-to-tie-your-shoelaces wooden shoe (The Teenager received the same but in book form at that age) and “The Old Lady Who Swallowed The Fly” finger puppets (as The Teenager also did as a child, except the Teenager received a creepy old lady doll with a creepy gaping mouth). I tried to engage the whole family in a sing-along of There Was An Old Lady Who Swallowed The Fly, because all the children in the family, I believe even back to my husband and his siblings, were raised with that morbid song.

No one went for it.

If you don’t know the song, here’s a version on YouTube.

I’ll give you some nice holiday photos of the tree and The Teenager opening her exciting new clamps from her uncle, who always knows what she needs for her growing tool collection. And she also kept swapping out the baby Jesus in the manger for first a goose and then a turkey.

With our bellies bursting with cookies and figgy pudding– so yummy, I do love figs, we left Bethlehem to travel to Nazareth to visit one of my former Target colleagues who now works there. We exchanged some Christmas hugs. I put gas in the car. And The Teenager got a salted caramel hot chocolate.

This low-key holiday is working out perfectly.

Christmas Eve Phase 1: Celebration of Life and Friendship

I am determined this year to explore new Christmas traditions, so when my Jewish neighbor invited me to deliver Christmas cookies to her deceased family members in the cemetery I said sure. And even though it’s 9 degrees outside (yes, that’s Farenheit), I had a great time.

The neighbor in question is “Little Dog’s Mom,” who made a reservation for my dear Sobaka to visit in April. This is exciting! We always love to have the Morkie (maltese-yorkie) come to spend the weekend. She’s such a fun little dog. And total side note, speaking of dogs, I have been scheduled for my Canine Therapeutic Evaluation with Susquehanna Service Dogs on January 25.

This means The Teenager and I, because you must bring at least one support person, are heading to Harrisburg Mall to work with a service dog. It’s a test to see if the dog helps me or provides a challenge. And also gauges how I will interact with a service dog in public.

The three of us— Little Dog’s Mom, myself and The Teenager— bundled up and piled into Little Dog’s Mom’s car for the ride to nearby Easton Cemetery.

Little Dog’s Mom carefully explained each cookie, and lined them up nicely, while explaining that the squirrels and other animals would get a nice treat.

She tried to give everyone their favorites, and having lost my father last Christmas— which to me still qualifies as “just last Christmas”— it touched me to commune with relatives who have left this Earth even if they aren’t mine.

The outing had some levity after that as Little Dog’s Mom told us about a flamingo Christmas sweatshirt she had contemplated buying with her 40% off coupon at CVS.

We stopped to look at it, and The Teenager surprised her by buying it for her with our 40% off coupon. Then Little Dog’s Mom let me use her 40% off coupon to buy one for us.

To thank us, Little Dog’s Mom took us to McDonald’s for diet cokes.

So thanks to her, we are feeling bubbly.

Festive Friday’s life (and cerebral palsy) updates

My traveling companion M is in town so I stopped very briefly to say hi. He’s staying at a hotel between Sheetz and Wawa, and he’s never been to either, so I have a Pennsylvanian duty to educate him.

His hotel has a few artisanal touches in an otherwise uninteresting and rather lackluster environment.

I received a message from M last night while I was at Barnes & Noble at the Noble Quills poetry open mic where Darrell was featuring. (See YouTube video below.)

My most-exhausting-work week ended with a few lessons. I noticed that no pair of shoes I own will alleviate the foot pain I am experiencing, though experimenting with different tape/toe separator arrangements I can select the type of pain I prefer to experience. With this in mind, I have purchase three different varieties of toe separators from CVS today. ($22 worth of merchandise that I got for $15 and I paid with my HSA debit card.) I achieved 101%, 101%, 94% and 100%.

I had my follow-up with the neurologist-physiatrist today. The Baclofen appears to help my stiffness, and though I do experience a weird jerky stiffness at the end of the day after I sit and then get up, I have not fallen and I seem to move easier. She filled out my accommodations paperwork… so hopefully I will get a share of the easier work. I offered several ideas of how to provide easy accommodations. (I shared the same letter with my doctor and Stitch Fix.) The doctor remarked that my gait had noticeably improved and I think she laughed when I told her I preferred walking in cowboy boots because of the sound and the feel. (She was wearing a mask, so I can’t be sure.) She also seemed to make a quiet noise of approval upon the mention of a service dog.

I had an hour between appointments and in that time, I hung out with The Teenager’s dog (F. Bean Barker). It was Festive Friday at work so I wore my favorite “Fleece Navidad” Christmas sweater.

I then met with my therapist. He was one of three people who served as references for my service dog application and because I mentioned I had a therapist on my medical team, they sent him a psychiatric evaluation to fill out. He wanted to review it with me, because he wasn’t sure of the weight of his role in the whole process. He was much relieved to hear that I had had the in-person interview last week (read more about that here) and that I had received the email an hour earlier stating that my home visit and canine therapeutic evaluation would be scheduled early in the new year.

So I said I would approach the paperwork as if they just wanted to know if I was stable enough to care for myself and the dog.

By the time I returned home from that appointment, the UPS man had left a special package on my doorstep. It was Larry Sceurman’s debut novella, The Death of Big Butch. And some other books from Parisian Phoenix Publishing. As is my custom, I did an unboxing on film.

Buy Parisian Phoenix books from Barnes & Noble here.

The Teenager and I did some chores around the house and loaded up the car with the dog and the books and made deliveries: to the author (where books were signed) and to people anticipating the release. And, because Larry lives near a 7-Eleven, the teenager needed to stop for a Mountain Dew Slurpee.

She happens to have one of her new sweaters on from her latest fix.

And the joy of bringing Larry his books warmed my Grinchy heart.

And watching Larry decide how to sign his books, debating which of his signatures should be his author-specific nomenclature, also had an impact. I’m proud of his book. I’m proud of the product the Parisian Phoenix team made– and I’m told the effort and the quality of the book are more than Larry had ever expected to see from his stories. After all, when he pitched his stories to me, Larry had figured he had a short story anthology to offer the world.

And poor Larry, I told him he had a novella in Big Butch, and still had enough stories for the anthology, and that one of the longer anchor stories in the anthology really should be a full length novel. He’s stuck with me for a while.

Barbara gave us some cut-out cookies. Buttery, not thick not thin, with a lemony or vanilla-y hint of something so scrumptious. Roll-otts as my Pennsylvania Dutch in-laws would say.

Larry and Barbara also gave me a large bag of cat toys, which we gave to foster Khloe for right now. She’s protecting them and sleeping with them like a dragon hoarding treasure.

Maybe I’m naive or egotistical, but I really love the craft model of publishing I’m creating– including my authors in every stage of the process and creating a book we all believe in, from the author to the publisher, the artists to the designer. I never thought publishing could empower, but I’m learning so much that I never realized I wanted to explore. Talents always feel better when you share them.

Life in Valley 2

Forgive me if this post contains typos or other errors as it is literally 1 a.m. and a wage of fatigue just washed over me. I think I might be too tired to write this.

Last night, the work center board at the Stitch Fix Bizzy Hizzy proclaimed that I would work QC.

QC is the quality control work center. Once the fixes are picked, the QC team inspects and folds the pieces and prepares them for the shipper.

It is the most stationary, sedentary work center I have worked in so far at the Bizzy. But I like it—except it kills my spine. It causes me a lot of pain to stand still for 8 hours. And yes, the give us mats and offer a variety of table heights to make it more comfortable.

After our two hours in training, I packed 36 fixes at a rate of 8+ minutes per fix.

Tonight when I arrived at work, scheduled for QC again, my favorite nurse asked how I did in QC last night. I told her it was hard on my S1 joint (she already knows I have cerebral palsy) but I liked it. But then I like to learn new things and face new challenges.

Now I don’t remember her exact word choice, but she commented on my good attitude and the fact that I am “always happy.”

I fought years. “Thank you for seeing that, as I’m having a hard time right now.”

And she offered me prayers.

Then she commented on how I try to do everything, and I shrugged and reminded her that this was my whole life— that I’ve always had a disability so things never come easy.

And then she pointed out that in her line of work she’s seen people give up facing less.

With that pep talk, I headed to QC valley 2. Now tonight I was on the right side of the valley and liked it. I QC’ed a total of 59 fixes at a rate of between 5.9 and 7.2 minutes per fix. Only two of my boxes were returned and both were do to issues with the paper. A supervisor told me nice folding! And I even tried to highlight whatever was pretty in each fix/folded item.

On first break I took 400 mg of ibuprofen to help prevent back trouble. And it helped! Or maybe I just really am getting stronger post-Covid.

At the end of my shift, I was hungry for chocolate so I grabbed a chocolate chip Pop Tart. As I was walking out, my favorite nurse offered me a cookie.

I didn’t want to touch her cookies, so she piled some into a tissue while using a tissue as a glove.

Best thumbprint cookie ever

And I never tasted anything quite like that thumbprint cookie. I haven’t had thumbprint cookie in years.

I went out to my car and found one final surprise; my mileage was 33399. I like numerical patterns and that number sequence was super cool.

33399

So the day that had a rocky start had a strong finish.