Adventures with Nancy and leaving Midnight Society

Tonight was the last official night of “Midnight Society” at the Stitch Fix Bizzy Hizzy and they closed the warehouse at 7:30 p.m.

I say last “official” night because I just heard from my supervisor (at least until the new shift starts Sunday) and my favorite security guard/philosopher that there are a handful of people who can’t transition until after Christmas— and Stitch Fix will let them continue working their traditional hours until then.

That was a really nice move on the business’s part. Too nice in my opinion. I have squeezed a couple months of doctors appointments, tests and physical therapy into two weeks. So part of me is a little jealous.

We start our new work arrangement Sunday.

In other news, my blind friend Nancy and I both had physical therapy today. And Aîné and Brigid of the Celtic Pride got spayed so they are ready for adoption!

But back to physical therapy. Nan and I went together. She’s having issues with her shoulder and numbness in her finger.

I have pain in my spine and fall a lot.

I had to ride a stationary bike for eight minutes. She warmed up on a hand contraption.

I did my Cobra poses, and my physical therapist did that thing where he presses on my spine as if pushing it back into place.

I did deadlifts with a 20 lb kettlebell. I had to lay on my stomach and bend my leg at the knee and lift it off the table. That was harder than it sounds.

I stood on a soft cushion square and moved my leg out using my hip while keeping my knee soft. I also did that kicking back.

I did bridges.

I took a giant ball, held it to the wall with my back, and squared as low as I could.

Meanwhile some teenager stood on a balance ball on one leg, tossed a ball onto a trampoline and caught it ALL while standing on one leg.

I can stand on one leg for nine seconds.

On the floor.

This kid was standing on a ball meant to destabilize you.

And throwing a ball.

I am in total envy.

Meanwhile Nan was teaching the staff to read Braille and how to use a white cane.

And the staff was heartily confused at the fact that friends would come to physical therapy together.

After physical therapy, I turned to Nan. “You what to come to my house for grilled cheese?”

Her answer was a hearty yes. I made hers with Colby Jack, Cheddar and Lebanon Bologna and mine with habanero cheddar and Vevan vegan mozza-melts.

The mozza-melts taste and melt like real cheese, but sadly they have no protein. At all. So while they are a cruelty free version of cheese, they have no nutritional value.

The Kit and Kaboodle Update

So, as a former journalist, I could easily write a summary of every day like a nice newspaper column and post it. I could probably even manage to maintain my sense of humor, style, and tendency to find joy in the ridiculously ordinary.

But this week, every word I wrote felt repetitious. Or perhaps every word I wanted to write felt like it had been done before.

And maybe it has. Because so much of life goes that way. The same struggles, the same events, and often the same answers. And we repeat the cycle over and over probably for two reasons.

  1. It’s hard to break a habit.
  2. And growth, the kind of change that comes from embracing a lesson, presents its own difficulties.

In today’s blog, I’m going to do a generic update, and I’m honestly not sure if any of this is repeating myself. But do you know what? Repeating myself is okay. This is a small droplet in the vast waters of the internet and there’s always the possibility someone hasn’t heard it before and may need to hear it today.

Are you listening?

Fosters: Touch of Grey, Mars and Minerva. Information on how to adopt them at http://www.felineurbanrescueandrehab.org.

All eyes on me.

Topics to come in this entry: Update on my cerebral palsy and quest to end my chronic back pain, weight training with the teenager with Dan at Apex, emotional eating, review of Purple Carrot’s vegan Thanksgiving dinner box, and the requisite animal photos.

This week’s personal training at Apex:

I know I frequently mention how amazing the trainers at Apex are. One of their strengths (weight training pun there) is to recognize the needs of each client and to match the client with the right trainer. I’m obviously not in the whiny white women who primarily want to lose weight category, and that’s how I ended up with Dan. As Dan has the unofficial knowledge of a physical therapist (because he’s had enough accidents to know the patient side of it) and he has the curiosity to read, research and think. With my cerebral palsy this is important. Dan has the observational skill to read my knees and lower body to know if it’s a bodyweight/calisthenics kind of day or a weight training day. And this is important so you can build range of motion and flexibility and not get hurt.

Anyway, Dan has been kind enough to let the teenager join my training sessions. I love throwing weights around but lack the personal discipline to do it on my own this time around. And the teenager has a natural muscle tone and build that makes her perfect for powerlifting. But she hates dumbbells and she hates routine and discipline. So as long as we tell her to go throw around that heavy object she’s fine.

And today she deadlifted 135 lbs as if it weren’t even a challenge. I honestly think she could have done 150 lbs easily.

I think I kept up with her through 115. I only did three at 115 because I was really afraid I would blow out my knees. A deadlift when executed correctly utilizes the lower body, and the weight actually (once I get warmed up) helps me lower my butt in the squatting portion, but since my knees tend to point sharply inward, I have to adjust my stance to compensate. While the main gist of the lift is to pull the weight along the shin and lift into the hips and use the legs to support the weight as the hips straighten and thrust outward with the tightening of the glutes, in my case, I have to force my knees to stay in the proper position facing my toes and not each other.

As I start to lift heavier, the dull ache in my spine is a reminder to lift the weight with my legs and not my back. I place my feet in position, point my toes slightly out and stretch my knees in line with them. And, for lack of a better description, I lock them in place and while lifting the barbell I have to concentrate on keeping my knees from turning inward. Because if they would suddenly snap where they want to be, I could not only blow out a knee but also potentially lose balance.

So I did three.

In related news, physical therapy update:

Yesterday I finally had my physical therapy appointment with the proper physical therapist now that neurology has confirmed that my balance and brain are fine. Much to my pleasant surprise, I had the same physical therapist that treated my initial bouts with back pain three years ago. He was at a different physical therapy office, then, and came recommended by my doctor as the guy who really knew back issues. What makes this a funny but pleasant coincidence is the fact that I chose this physical therapy branch because my blind friend Nancy is going there and I thought we could combine appointments and I could help her with rides.

What did my physical therapist Jeff say? Basically, that I need to do yoga. He has me doing “press-ups” 5 times a day for 10 reps. At least to start this week. Last time I had physical therapy with him, he started me super light and then made the exercises ten times harder when I returned in a week. “Press-ups” are cobra pose in yoga. I used to do yoga daily. It always seems like physical therapists are always telling me to do more of what I already or what I used to do.

Random photo of Nala the Goffin with foster cat Touch of Grey

Confession time, emotional eating:

My weight is 160lbs. This upsets me greatly. When I had gestational diabetes at six months pregnant I was 169. I was 142 on the day I brought the teenager home from the hospital and 142 for most of her toddler years. When I finally decided I needed to get my weight under control and regain strength after breaking my right hand while working at Target, I lost 30 lbs in 6 weeks. I lost too much weight too quickly and then gained weight while strength training and got ripped. Over the years, I found a set point at 135, where I could maintain muscle but be more relaxed about eating.

But then, my marriage ended. My boss at the job that allowed me to separate from my husband and support myself turned out to be a sociopath. I mean that in the kindest way possible. She was very sweet, and driven, and perfection-oriented but she had no empathy, no flexibility and no patience for any way other than hers. No views allowed other than her beliefs. This led to high blood pressure and I honestly had no energy left to take care of myself. When she fired me, it took six months for unemployment benefits to determine she was in the wrong. The pandemic was underway by then (Summer 2019). I lived on my savings, a total of $4,500, and foodstamps that kicked in three months after I lost my job.

And this was also when I ended up in the hospital for an infected cat bite and took in a second teenager who lived with us for nine months without her parents contributing to her care.

I mention this only because it is why I lost my discipline. Why I stopped caring for myself like I used to. It was easy and fun to go to McDonalds for a $1 Diet Coke and a $1 McChicken. Cheap dinner.

I thought I would turn this around when I started “picking” at the Stitch Fix Bizzy Hizzy. I walked 17,000 steps a night in the warehouse, grabbing clothes. But then I caught Covid-19. And my stamina never bounced back. So now I fold clothes. Which killed my back.

Even though I had a delightful Thanksgiving, with vegan recipes I prepared from Purple Carrot and leftover pie and wine from my in-law’s meal, I “ruined” it by drinking a big glass of wine yesterday with about 1200 calories of Trolli gummy worms. And then I tell myself, “Well, at least they had protein, iron and calcium.”

And finally, the Purple Carrot Box:

I’ve only made about half the box. The rest is still in the fridge.

I made the Purple Carrot “sausage” stuffing, vegan thyme gravy and cranberry sauce. The thyme gravy was better than I expected as I am not a gravy person. I added local granny smith apples and herbs de provence to the stuffing. The stuffing began life as caibatta rolls, root vegetables, and Fieldstone vegetarian sausage. Let me say again, if you haven’t heard it before, that the Fieldstone vegetarian sausages are amazing. The fact that they come wrapped tight in plastic “skin” casings annoys me, but they are very tasty.

Sometimes you need to unleash the beast

I hope this weekend to partake in some fun activities and lighthearted blog posts, but I also need to do some administrative work for my publishing company, Parisian Phoenix Publishing.

My second novel in the Fashion and Fiends series, Courting Apparitions, releases officially November 29 (my co-founder’s birthday) and could possibly be available Black Friday. Like, damn, when did that happen?

The first book, Manipulations, is available at all the usual places online— for instance here is the link to buy it at Barnes and Noble.

My friend and fellow writer William Prystauk of the Kink Noir series and horror website Crash Palace Productions left me a truly wonderful review on Amazon and Google.

See more here.

This was my original post on his first novel, Bloodletting. Hard to believe it’s been three years.

Buy his books on Amazon.

On everyday life and health front, I went to the chiropractor yesterday and like my doctor she approved of my new technique of changing work tables to try and even out my sides. I stopped at the pharmacy and picked up my prescription for muscle relaxer. I also made my last Purple Carrot meal in the fridge: mango glazed roasted vegetables with tahini butter.

Worked went mediocre/well. The night seemed long and boring and I felt like I was getting used to my body again after the chiropractor. I QCed at about 83%.

I came home and several cats were waiting for me— including Minerva, a sweet foster who started in our second foster litter of kittens, The Roman Pride.

I took a muscle relaxer to see how it impacted my pain and my morning stiffness. It didn’t make me loopy and I think it helped with my tossing and turning.

I only got six and a half hours of sleep last night, but still managed to meet up with the teenager my trainer Dan at Apex Training to lift some weights. I felt so much more limber after. The teenager easily did 105 on the barbell deadlift and 95 on the squat. I could lift the 105 but not execute the lift. My squat form is still adjusted for my limited range of motion in my lower body so I maxed out at 85 while the teen hardly had to put any effort into it.

We came home and shared some Little Caesars pizza as I was craving their “pizza and sticks” pie. We even shared with the dog.

Another whirlwind and even less answers

This post will be a mishmash of the last 48 hours and will discuss some of the frustration of dealing with my cerebral palsy, life as Midnight Society comes to a close at the Stitch Fix Bizzy Hizzy, a brief mention of the new Wawa dinners and a thank you to the amazing teenager for her thoughtfulness in hiring a cleaner to help get the house under control.

The supply chain issues still create work shortages at the Bizzy Hizzy warehouse so as Midnight Society prepares for it’s change to day shift in December, some of us are only working about 20-25 hours a week.

I’m using the time to edit manuscripts and make more plans for Parisian Phoenix Publishing and deal with my mobility and pain issues.

The last few nights at work have been good (and last night was my one year anniversary)— I performed at 98% last night in QC folding those Stitch Fix parcels and tonight I think I surpassed 100%. But bending is still troublesome and what I believe are my quads burn the entire time I am standing.

So today was an emotional day. My sweet, amazing teenager hired a cleaner to deep clean the house. The cleaner did the upstairs yesterday and the downstairs today.

The house looks incredible.

And it was fun to interact with someone who wanted to help, loved our crazy animals and commented about how awesome my kid is.

I noticed early today that my X-rays had arrived in my St. Luke’s Hospital portal. I read them and they said my hips were fine, and the only findings on them (other than my new IUD and tampon) mentioned items in my spine.

But when the doctor’s office called at 2 p.m., he just wanted to ship me off to physical therapy. And I’m not sure that’s the whole answer. I work out. I have had physical therapy for my lumbar region already.

Two important questions physical therapy can’t answer:

1. How does this impact my ability to keep doing my job?

When I mentioned this to the person on the phone from my doctor’s office, she asked me what I wanted, mentioning that they could sign me out of work. I said no, I am looking for a more permanent answer than that.

2. How does my general crookedness factor in? The doctor’s office made this sound like no big deal, but I hurt. More often than not. So does my imperfect gait add more stress to this problem?

I’m going to talk to my trainer tomorrow, and my chiropractor Friday. I think there are more questions that need to be asked and I’m not sure what they are.

And in final ridiculous news… I tried a Wawa burger.

It was cheaper and heartier than I expected.

Halloween 2021

As I write this, I am mourning the loss of having finished The Night Shift on Netflix. I am imbibing some generic strawberry lemonade energy drinks strongly laced with too much gin. I am craving potato chips, cuddling my cat Fog, and nursing my injuries from the day.

But perhaps I need to back up…

The photos above summarize my Halloween.

At 11 a.m., we had an appointment for Danu and her babies from the Celtic Pride— Aîné, Baile and Brigid and our newest foster, Georgie, to meet our foster cat godmother for shots, flea treatment, dewormer and microchip and OH MY GOODNESS was Georgie dramatic.

Then the teenager had a commitment to walk in the local Halloween parade and she asked me yesterday to walk with her as she paraded in costume. I will do anything my daughter asks.

And half way through the parade, I fell flat on my face to the collective gasp of the crowd. I rise, keep walking, hip and knee in pain. But I keep going.

#f*ckcerebralpalsy.

I finished the parade. Outside the teenager’s high school. Her father and herself know that the fact that I finished the parade did not mean I was okay as I have been known to do things like walk a Chinese buffet with a broken ankle.

My knee is swollen. I tripped over a mirror late in the day that struck me in the tender parts.

My back hurts.

I am craving potato chips as my body adjusts to the Mirena.

My princess, the male cat I jokingly named Fog, is curled up next to me. He is my baby.

The teenager’s dad came over and they carved pumpkins and I typed some of a manuscript for the identity anthology. We handed out candy and even the dog got to enjoy trick-or-treat.

I ordered Wawa for dinner— the teenager’s favorite ranch Mac and cheese, chicken Caesar salad and pierogie quesadilla and Blizzards from Dairy Queen for dessert.

Tomorrow the teenager is consulting a cleaning woman to take some of the stress off me.

October 30

My husband and I celebrated our 22nd wedding anniversary today and, even though we have been separated for two-and-a-half years, we inadvertently spent it together.

My mother celebrated her 67th birthday today, and I postponed her birthday until next week because one of her brothers died on Thursday. The second brother to die of prostate cancer in about a month. And her ex-brother-in-law died last week, too.

The day started strong with the teenager and I killing our workout at Apex Training with Dan. I also ordered an Apex Training hoodie. The teenager and I benched 70lbs on the barbell, and the teen also did some hearty squats.

We signed five cats up for the “come adopt us” event with Feline Urban Rescue and Rehab. One of them was sweet Khloe. Khloe hid under the blanket with one eye poking out the whole time, until she heard my voice, then she came out. Not bad for a first day out.

Photo of me waking up with a Khloe scarf

So the husband came over to retrieve his car from the teen and do his laundry and assign his ISBN to his poetry manuscript.

He then rewarded us with pizza.

I did some more work for Parisian Phoenix and some more cleaning, and then the teenager asked me to come down to the diner for coffee and my favorite pie.

Photo: waiting for my daughter at Tic Toc Family Restaurant

This morning my legs felt more normal than they have in weeks and everything seemed to be working in coordination. But as the day wore on everything started stiffening up. It was the first time in about a month my right quad wasn’t burning all day.

So we shall see what tomorrow brings.

Another day seeking answers

This is another in a series of posts about trying to learn about my cerebral palsy and improve life in my body in general.

As sometimes happen, I woke in pain. I took two Tylenol PM last night so the pain didn’t keep me awake though my cat kept trying to intimidate one of my fosters so that made the six hours of sleep I got rather restless.

I woke to an alarm at shortly after 8 a.m. as I had to be at a doctor’s appointment at 10:05ish and the office is 20 minutes away.

To read about the connection between my gynecologist and my novel, visit the Parisian Phoenix blog.

Today was the rescheduled appointment to get my Mirena IUD that will hopefully reduce my heavy menstrual bleeding and my back pain from menstrual cramps. I had another new-to-me doctor today, and this one had an amazing sense of humor.

She was also the first doctor to ask me, upon hearing I had cerebral palsy, if there was anything she needed to do or be aware of to help me. In my case, the answer is no. But if I had worse issues with my flexibility and lower limbs, this would be a good question.

This is my third IUD, although my first Mirena. So nothing unexpected happened during insertion.

There was a pinch here and there and the doctor told me to take ibuprofen for the initial cramping. And to be prepared for a period that might be weird for the next few months. Every woman reacts differently but I may see my periods lighten or even skip cycles.

I did experience some light cramping and spotting but nothing to require OTC painkillers.

But, once I got to work, my right leg seemed to be impossible to control with my quad and knee burning. My ankles also started to burn. My lower back just throbbed, regardless of whether I was twisting or standing still.

By the end of the night I struggled to reach forward or to lift the pile of clothes.

I only QCed 92 fixes. That’s almost 71% of goal. Now granted tonight we were in the men’s Hizzy for the first time ever. It took me 4.5 minutes to do fixes that in women’s takes less than 3.

And they have such nicely organized work stations with drawers.

While listening to my first podcast of the night— 60 songs that explain the 90s— i discovered that Weird Al donated the profits from “Achy Breaky Song” to the cerebral palsy foundation.

My British colleague asked why I’m not on disability. That made me wonder how bad I must look if she says that to me.

In good news, let me regale you as I drink my last pins colada lemonade gin cocktail, the teenager is very excited about the new soap dispenser she bought.

I did a thing and did a soft launch on a Parisian Phoenix podcast on Spotify. I thought my blind friend, Nancy, would like it.

And if you want some fun pet items:

Nala the cockatoo plays in the shower.

Bean Dog tries to get bone out of tire.

I walked into the teenager’s bedroom and the kittens of the Celtic Pride were all in her laundry.

Celebrating the small victories

Yesterday was a day of mixed signals.

The pain in my hips kept waking me the night before, despite a cocktail and a Tylenol PM. I woke grumpy, stiff and achy.

I didn’t keep that from affecting my workout with Dan at Apex Training.

Because here’s the thing about pain— sometimes it’s a warning that you need to stop but sometimes it’s recognition that your body is changing.

I did 75 lbs on the barbell incline press. And that reminded me that my body is not all bad.

But at the same time whatever is impacting my spine, hips & leg is making basic mobility difficult and my job folding clothes painful.

I slathered myself with my CBD Medic Arthritis ointment and somehow folded more than the requested 130 fixes QCed. I did 133.

I’m probably in half the pain I was last night.

And in seven hours I need to get out of bed and go to the gynecologist for my Mirena IUD.

A mid-week restart with Postmodern Jukebox

This post is both a brief review of the Postmodern Jukebox performance at the State Theatre for the Arts and a brief update as to my current condition struggling with cerebral palsy.

Monday night I performed well at work, but by the end of the night my right leg and hip were screaming in pain, to the extent where I grew nauseous. I woke up still in pain but had no trouble performing an upper body workout with my trainer, Dan, at Apex Training.

The teenager, recovering from last week’s ear infection, and I did some barbell bench press.

But on the walk home, I was struggling with function in that leg and pain in my knee.

I knew I had a chiropractor appointment with my beloved Nicole Jenson of Back in Line on Wednesday morning so Tuesday night, I called out.

Since the warehouse is encouraging people to take voluntary time off, I called out for Tuesday, took voluntarily time for Wednesday, in addition to the planned time off I had scheduled for Thursday.

The teenager had an appointment with a new ENT today — he put her head under a microscope, pulled out her ear tubes and gave her ears a good cleaning. More importantly, he explained all the different functionality of the ears.

The audiologist gave her a hearing test and she rapidly discovered— the teenager, not the audiologist— that her musical inclinations have allowed her to inadvertently fake the hearing tests at her childhood ENT’s office.

So the audiologist said that the teenager is a good candidate for hearing aids.

We had a leisurely afternoon which included a delivery of apples from my friend Joan who has tasked me with converting them into applesauce and apple butter.

And then… we (the teenager and I) finally embarked on our date, much anticipated by me. The teenager took me out for pancakes.

And then we headed downtown to the State Theatre for the Arts to see Postmodern Jukebox. #pmjtour

The amazing parking spot we procured had a three hour limit, but both the physical meter and the parking app would only let me apply 1 hour and 24 minutes. So, as that was set to expire at 7:23, I used the app to apply that final 45 minutes from inside the theater.

On the way there we passed Hoza, the new African/Zimbabwean restaurant downtown. Very excited to try it.

But the show— blew my mind. The vocals and musicianship was incredible, the costumes a delight and the arrangements of the music on point.

To see bits of the #pmjtour I shot, click here.

And at intermission, my lovely daughter bought me that Yuengling I’ve been craving.

Food box blunders, ear infections and a good workout

I’m feeling exceedingly optimistic today.

I “fixed” my roomba, had a therapy session that left me sobbing in my psychologist’s office, had an incredible workout (full body as I will be traveling this weekend, but we did a lot of work on hip mobility), and cooked.

The business cards for Parisian Phoenix came in. Thanks to my trusty business partner Gayle.

Perhaps the chaos of earlier this week is finally settling down.

Seen in downtown Easton

So, last Saturday I got my regular Hungryroot order. And Tuesday was Purple Carrot. I wasn’t going to get a box from them this week but they had West African Peanut Stew on the menu.

And then I got a text that Green Chef was on the way.

I promptly canceled Green Chef so there would be no more surprises as they were my least favorite. But that box was on the way.

It arrived yesterday after I left for work. I received this message today.

I certainly hope there is no more food coming.

Because the teenager came down with an ear infection and has so much phlegm in her throat that she can’t swallow. But don’t worry she took some antibiotics and some DayQuil so she could enjoy a Hungryroot burger.

I prepared a bag of greens and a Green Chef meal for Gayle as I am supposed to go to DC this weekend and I can’t physically prepare it all. And M, my host, said I can’t bring it. The result— I now can say I pay my art director in groceries.

Purple Carrot has a $75 Thanksgiving box available. I ordered one.

And today I cooked:

  • Green Chef Mojito Cauliflower
  • Purple Carrot Buffalo-style tempeh and roasted sweet potatoes and garlic
  • Brussel Sprouts

But much to my chagrin— Purple Carrot swapped out the peanut stew for a grilled tofu meal.

Addendum:

From Gayle, after making her Green Chef meal.

I came home and just put everything in the fridge. Brown bag and all.

Pat looked at the recipe when she headed to the bathroom. She made vomiting noises. Not surprising.

I thought I remembered it saying 30 minutes. About 4:30, I started working on it. I didn’t look at the recipe earlier and didn’t realize it had two sides. I was overwhelmed when I saw all the instructions on the other side. I quickly realized that they were dummy proof and that made them longer.

I got the farro on and started the oven, then cut the squash and picked the tarragon. That was the most tedious part of the whole thing. That all went in the oven and I opened the chard. It was nasty. One leaf was probably okay. Glad you gave me other chard. I’m not a fan of raw chard so I wilted it. The nasty stuff went to the compost pile.

The rest of the prep was easy. By the time the farro and squash were done, the rest was too.

I made two portions. One for another day and one for supper. I did not put the apple on the leftover portion because it was already browning.

I was left with two large piles. One was compost and the other was plastic bags. So many bags. One said to pull off the label and recycle it. The rest had no numbers, no nothing so they went in the trash.

It was nice having all the ingredients and a recipe. It was fantastic having something different to eat.