How this nerd had the most spectacular birthday

My 49th birthday was Monday, May 20, 2024.

And my illustrator Joseph Swarctz of the Echo City Capers series drew me this “sexy Angel” for the conference coming in the fall. I think she’s fantastic. He asked me, over lattes at Panera because we were being fancy at our business meeting because it was my birthday, if I felt any different.

I had mentioned that as I get older, I suddenly realized how old everything else around me has gotten. Like the used car I bought in 2019, it’s almost ten years old now. And don’t even get me started on The Teenager– she’s going to not be a teenager anymore next month.

The mood (and the drama?)

I expected my birthday to be a catch-up-on-work day. I had hoped my birthday would be such. And I hoped that would distract me from the fact that since my father passed away, my family no longer talks to me. My mother sent me a passive-aggressive birthday card last week and my stepmother, who shares my birthday, made it clear that she does not want me in her life, first by ghosting me for more than a year and then by calling me up in February and listing everything I’ve done that she disapproved of during our 30-year-relationship.

Both my mother and my stepmother have experienced a lot of loss in the last few years, so I’m going to remember that. This isn’t the place to talk about family history, trauma, and the list of all the terrible things that can or did happen to people. We all live, we all love the best we can, and we all make mistakes. I think that’s part of why my dad meant so much to me– he understood that.

My dad

My dad was an extremely imperfect person, and now that I reflect upon it, he would make the most amazing fiction character. He was only five-feet tall and wore black motorcycle boots, jeans and Harley-Davidson t-shirts. He had tattoos, some of which honored the important people in his life. He was an alcoholic, and when I was a kid, he drank a lot. And sometimes that led to violence between him and my mother. Violence that I witnessed.

He also could fix anything. He had this sharp, strategic mind that could solve puzzles. He liked the Pittsburgh Steelers and would play Uno with me as he laid on the couch and watched Sunday night football. Which, as a parent now, I see is the easiest way possible to spend time with a child and still do what you want to do. For a while, I even collected football cards to share something, other than Uno, with my dad.

My dad would always have friends around with motorcycles or cars that needed fixing. They would arrange trades or bring gifts, which might have been because he wouldn’t take money.

I could tell stories forever about my dad, but the point is, that it always seemed like he gave people the benefit of the doubt, even when it was clear they were a mess, and I think that’s because he understood that we all have imperfections and some of his, he couldn’t fix. He could changed his behavior in a lot of ways, but sometimes those imperfections still hold us back.

So, it’s my birthday. And the only relatives who contact me do so on Facebook– and I have one cousin who posts this fabulous picture of us kids by my grandmother’s pool. I am between my cousins in the middle of the back row.

But for someone who did not expect or intend much birthday celebrating, it was a chaotic one and I have a feeling it might all extend into next week.

The PreGame

On Saturday, I presented a workshop to the Greater Lehigh Valley Writers Group. So, some of last week I “lost” in preparation for this event, which went fabulously, though I spoke too fast and squeezed what should have been two presentations into one. I thought I could use Sunday to recoup some lost client time.

How wrong I was.

I started with a Substack newsletter for Parisian Phoenix Publishing. You can read that here. I caught up on some email and watched a replay of a webinar I missed when I went up to the Times-News on Thursday. Then, it was time to go to Barnes & Noble in the Southmont Shopping Center where Joe was selling a LOT of books. It was one of our best days there ever for Echo City Capers.

And when I got home, I thought, now I can focus on some ghostwriting for my mafia novel client.

And then the Teenager approached. “Hey, Mom. I’m going down to groom [my friend and fellow author Tiffani Burnett-Velez’s] dog. You’re coming, right?”

Well, five-plus hours later I came home with a full belly and a copy of Tiff’s first novel because we traded– her first, for my fourth. And a cookie.

The family even sacrificed a cherry pie they had purchased for themselves to celebrate my birthday. And Tiff and I talked about neurologists longer than we probably should have. Because mine is the best one ever.

And during the drive home, the Teenager mentions that she has time on my actual birthday if I want to have a little adventure in the afternoon. So, I send her a list of ideas.

My birthday

The Teenager was definitely confused and perhaps disappointed by my final choice of Palmerton, Pa., for our outing. But I have a strange soft spot in my heart for that town and after my trip to Lehighton earlier in the week it felt like an easy choice.

Our first stop was the Country Harvest grocery store because according to Google maps they had doughnuts and a coffee bar inside. And unexpectedly, or perhaps very expectedly, The Teenager and I found lots of fun items in there. Including the iced teas we both had in school, and varieties of cat food that The Teenager’s finicky cat might eat. And for some reason The Teenager wanted puffed rice, and we picked desserts from the cooler and I bought a copy of the Times-News.

Then we walked down the main drag to go have a quick slice of pizza. Imagine our surprise when we discovered an amazing taco pizza, which we chased with a walk past the park and a visit to the public library so I could use the bathroom and enjoy the beautiful architecture.

The Teenager mentioned that she recognized the town and she felt like it was a place she had visited with my father on the motorcycle. That made sense, I told her, because my dad loved to take the motorcycle along the Lehigh River and through the picturesque hills and valleys of the region. So to celebrate him, we spent some time with the crane machine, another of my dad’s favorite activities.

I think what made the day special was that all we did was walk, talk and enjoy the scenery. Toss in some desserts and a good slice of pizza and what more could I ask… well, and it turns out we also had the presence of my dad.

The Reunion Dilemma

Tonight is my 30th High School Reunion, scheduled in the casual and amazing environment of Richmond Brewing. Our classmates own the establishment and have agreed to let us assemble and celebrate without a lot of formal to-do.

But I don’t know if I’m going to go.

I was on the reunion committee. I love the food and the beer at Richmond Brewing. It should be fun.

But I’m stressed and if I’m honest, I’m scared. And I think this is probably the first time I really wished my service dog was already here. Because having that dog would relieve some of the physical barriers to attending, which might help my emotional issues.

I’m already showered and dressed and ready to mingle. But I’m struggling with my own mobility today– which if you aren’t a regular reader I have diplegic spastic cerebral palsy which means I have issues controlling my legs. Last weekend I took a medium fall. I didn’t do any permanent damage, though I did damage my expensive glasses, probably delayed healing of my sprained right pinky, and got myself some nasty bruises and bumps on the head.

But today I fell again. This is is going to sound ridiculous (my trainer Andrew can probably vouch for me here, I think he’s seen it happen) but I can’t pick up my feet today. Primarily my right one. It’s dragging. It got caught in the cracks between the sidewalk and down I went. No damage, my Apple Watch didn’t even alert.

Which is probably a good thing as I’ve been enrolled in the Women’s Heart Health and Mobility Study at Brigham & Women’s Hospital in Massachusetts and when I fall and my watch registers it, they call to check on me. I talked with them for a half hour on Monday.

I fell on the way to the gym, and my workout went fine, although at the same time, I struggled with some muscle control.

I went over to the Christ United Methodist Church for their craft and vendor fair where Joe Swarctz, our fearless illustrator and the creator of Echo City Capers, was selling the latest in children’s books. I didn’t fall, but every bump on the sidewalk or imperfection in the floor challenged my balance.

The Teenager has to work tonight, so I’ll be on my own for the reunion tonight. And I’m scared. It’s about 30 minutes up there, and with my recent layoff gas money is tight, plus I won’t be able to have a beer. And it would have been my father’s 75th birthday today, if he were still with us, so that has me in a horrible, dejected mood.

If I had my service dog, I would feel safer. I would at least feel more secure about my ability to navigate walking. And I would know that I would have another living thing there that could help me if something did happen. I know that all of my classmates at the Reunion would be helpful, but there’s a certain comfort from those who already know what you need and how to help. Because it’s a dreadful feeling when you have an accident in public, and people want to help and no one quite knows what to do or they do too much or the wrong thing.

I’m not sure what to do, but I know the choice is stressing me out.

But if my balance is already significantly compromised, I don’t know if traipsing around an old barn is a good idea.

4 months and 1 day

I want to keep this one short. I spent a couple hours on a Substack newsletter for Parisian Phoenix (read that here), handled some business, watched some TV, did some job applications and folded some wash. I’m starting a new project for an important client tomorrow and attending some classes on websites, Google and SEO practices.

Yesterday, I attended the Greater Lehigh Valley Writers Group meeting, then ran up to Stroudsburg to support William Prystauk’s horror novel release for The Hanging Girl. From there, the teenager and I stopped at Wawa for a snack before heading to The End: A Bookstore to meet up with Ralph and Joe of Echo City Capers fame.

Speaking of fame, Joe made an appearance on Channel 69 Weekend Edition of the Morning News.

But then, upon leaving The End, the Teenager hopped over a tiny pile of stones to avoid going the long way to the parking lot. I followed. And my good/stronger ankle went out on me, causing me to slip in my slightly healed walking boots, and somehow I bounced off Joe’s parked car, narrowly avoided a concrete parker marking with rebar sticking out of it and smashed my right hand, nose, glasses and face into the macadam.

It’s been four months and a day since my last fall.

My gait was perfect. My blood pressure has been trending higher, but remains in the neighborhood of 120/70 vs the former 110/65. My heartrate and EKG are fine. I just fell. Tired from overbooking, stress from losing my job, awkwardness because of the rain, or all of it who knows. Life with cerebral palsy. Heading home with a fat lip and a bloody nose.

I did take a chunk out of my expensive glasses. The metal frame of the bridge cut up my nose. And the hand I f*cked up when I dove down the steps March 1 at Stitch Fix, it’s set back a ways on recovery. It’s torn up again.

But sometimes you have to remind yourself to be grateful.

Speaking of grateful, if you follow my Instagram you may have seen this fabulous hot lunch of Maruchen Teriyaki noodles, peas, Lightlife tempeh and fresh spinach I made for The Teenager and I at a cost of about $2.50 per serving. And 30+ grams of protein.

I am also grateful that Giant has a store brand version of Bush’s Vegetarian Baked Beans as the family size can of Bush’s was on sale for $3.09 and the generic was $1.69. The Teenager says the generic tasted exactly the same. I can’t give it that much of a rave review, but I can report it was a successful substitution. What disappointed me though was the honey beans I bought on clearance at Grocery Outlet.

The Mid-Weekend Check In: 48 hours+ with the Zio and life at the publishing company

Sunday morning.

I’ve been sipping strong coffee for about 90 minutes now, munching pistachios as I take my morning beta blocker. I have been trying to get my meds to 6 a.m. and 6 p.m. I don’t want to take them at the time I get up for work, because who wants to wake at 4 a.m. on a day off? The hospital gave me them at 9:30… but in the evening I’m usually asleep by then and working on a typical day. 8:30 a.m. is my morning break at work, so that would make sense from a practical point of view, but it would also mean having a snack at 8 p.m. and not getting to sleep until 9 which means the most sleep I will ever get is 7 hours. 6 a.m. and 6 p.m. sound ideal because I usually arrive at work at 6 a.m. and have a small breakfast and 6 p.m. is dinner.

But today I slept until 7.

Oops.

But when I got downstairs, my legs felt persnickety and my blood pressure was perfect if not a little low– so I went ahead and made the strong coffee. And I took my baclofen for the first time since before I went into the hospital.

One of the generalist’s at the hospital thought the baclofen might be causing some of my issues. Which makes this a test? Maybe?

But this is not a post about my Zio heart monitor or my scabs slowly crumbling down my face, though those things are fun. My gash is healing rapidly and well. I wanted to talk a bit about my weekend and what’s up with the publishing company.

Many of these thoughts will be further explored as part of the Parisian Phoenix blog and Substack newsletter. We’ve migrated from Mailchimp to Substack for better visibility and the prospect of building more paid resources and services for writers and readers. If you didn’t read this week’s recent release, check it out here.

Friday night, a journalist friend and her partner came to visit. I had planned to go visit her, but this close to my hospitalization I wasn’t sure driving on the highway by myself for an hour was a good idea. They have also been involved with cat rescue, so she’s offered some support on realigning the cat book. I’m helping her (I hope) with some of her goals and we’re both trying to help people find ways to publish their books.

My unsolicited submissions pile is growing rapidly.

Meanwhile, the dog is keeping an eye on me.

In the afternoon yesterday, I visited my “office” at Panera where our photographer Joan touched base with me regarding her activities at the Greater Lehigh Valley Writers Group conference this coming weekend. She’s not fooling me– I know my friends are doing wellness checks.

But I had the most amazing meeting with the duo behind Echo City Capers, and we have a handshake agreement to launch some projects together which will allow Parisian Phoenix Publishing to kickstart Parisian Phoenix Kittens with a second edition of an Echo City Capers Jr. book, a children’s book from Darrell Parry (and maybe someday a puzzle book/older kid story– hint hint Darrell) and perhaps event a story in the vein of Eric Carle from Larry Sceurman.

It’s thrilling to watch a simple “let’s introduce ourselves” coffee meeting can explode into ideas and mutual support.

That little meeting went two hours and when they saw our physical books, they were pleased. They immediately saw the love and attention we give to our titles at Parisian Phoenix, and without even meeting Gayle yet, I think they “know” and trust her.

I ended my afternoon romp with a visit to Larry, to deliver some publicity materials and give him and his wife, Barbara, a copy of Thurston’s book.

When I left, I felt like my blood sugar was dropping. I found a cherry Pop Tart that the Teenager had left in my car more than a year ago and came home and made a lovely lamb dinner. (The teenager saw lamb and potatoes in the skillet and immediately claimed the leftovers.) My blood pressure was high, but it was also time to take my beta blocker.

Finally, I slithered to my bed– exhausted, when I didn’t even do much– in great anticipation to finish Katherine Ramsland’s I Scream Man and Echo City Capers YA Graphic Novel printed in Canada, Who Turned the Lights Out?

I was so tickled and delighted to read the wit, the humor and the “smarts” in this little volume, which the type is uniquely done and the paper quality gorgeous. It made me very sad to put the book down to sleep.