Invisible: At the intersection of disability and childhood trauma

Author’s Note: This is the next in a series I tend to run indefinitely on my quest to understand my mind, body and disability and how they interact as I age.

Also: This post is merely me pondering “out loud” and based on my experience. I might be completely wrong with some of my ideas. That is why I consider this a quest and not something I can answer with a quick internet search or “Hey, Siri” request.

Finally, please understand that I am hesitate to discuss this topic as I don’t want my family members to be hurt or feel responsible. Especially my parents. My parents have some wonderful qualities and their flaws because they are, after all, human beings. My parents experienced their own hardships and traumas and they have both dealt with issues with their own parents, alcoholism, etc. Plus, my childhood encompassed much of the 1980s and they were young adults in the seventies. The world, as they say, was different.

As I have mentioned in early posts, disabled children of my generation and the one prior were the first to escape institutionalization or being kept hidden away at home.

Many parents of disabled children (like Marie Killilea of the Karen books) focused on raising their children to master independence and to “pass” as normal when possible. This can lead to a desire to not call attention to oneself and in many cases avoiding (instead of attempting) activities where our difficulties become obvious.

Instead of talking about our ailment(s), we try to fit in and not be a burden. We want to seem worthy of our place in a society where if the conversation turns to eugenics, we’ll, we’d be the first people edited out of existence.

But add childhood trauma to this mix and I wonder, do disabled people with this type of trauma exponentially feel more of a need to be invisible?

Mommy and Daddy have trouble getting along and sometimes hit each other when Daddy gets home from the bar— I don’t want to be another problem for them.

Am I a victim of sexual misconduct because I was a good kid who would listen to her elders or because I was already broken?

No one wants to see me cry. They get upset when I fall down and cry. Mommy teaches me to laugh when I fall. Does this cheapen the legitimacy of the pain, the bumps and bruises.

None of my childhood trauma happened because I have a disability, but it’s another truth no one wants to talk about.

All good thoughts to ponder.

Medicine in the time of Covid

I slept this morning until 8:30.

I never do that. I think the animals had started a plan as to what to do if I were dead. The three-legged cat had slowly but surely opened my bedroom door. The kittens came in and hung out in my open windows.

Last night, the teenager and I watched most of the documentary A K A Jane Roe on Hulu. The format distressed the teen as they presented Norma McCorvey’s story in her words and in the words of others (including the reverend who might be seen as her biggest adversary in the beginning)—including historical footage.

The teen found it disjointed and hard to ascertain what was “truth,” so I said with a sigh that I guess I don’t have to worry about her becoming a journalist.

We had a fantastic discussion about “when life begins,” eugenics, abortion and patriarchy and then had a little passive-aggressive disagreement about what happened to the potato chips. (Two binge eaters in the house = bad news. By the way, I’ve lost a pound. Not enough, but it’s a great start.)

This morning, the doctor’s office called me about my blood pressure check scheduled for Tuesday. They wanted to know if I still planned on coming. I said it didn’t matter to me as they had already refilled my medication.

It’s a shame my appointment isn’t today as then they might have gotten a good blood pressure reading.

And they won’t be happy about the weight I’ve gained.

So they asked me every question under the sun about my health and possibility for Covid-19 symptoms. They confirmed my medical insurance. Asked if I had a mask and if I’d be coming alone. They asked what I drive.

I am to complete my check-in online.

They will call Monday afternoon to confirm my medications.

On Tuesday when I arrive I am to call from my car. The physician’s assistant will escort me into the office when they are ready for me.

Medicine in the era of Covid-19.