Three-point fall

I am so sick of disability-related posts. My goal today is to start the March newsletter for Parisian Phoenix, which I will be distributing via Substack. Yesterday felt like a beautiful spring day and today, today there is two inches of snow on the ground.

I’m tired. And sore. And stiff. I called out from work today, although I’m fairly certain I have no paid time off for it. The Teenager and I have major bills do this week, and they scare me, but I have (and she has) placed every spare penny we have into paying them. And they will be paid.

So, before I back up, and explain exactly what happened since I closed my computer yesterday afternoon, let me say that my plan has been to take better care of myself. To stop pushing myself to keep up with the people who don’t have the same issues that I have. To ask for help. To be honest– not only with others, but with myself.

I have planned to organize regular long weekends every three-to-four months to give my body time to recuperate from the stresses of being on my feet folding clothes all day, and to give myself time to finish larger projects for Parisian Phoenix Publishing. That hasn’t happened, in part because I’ve spent so much time sorting myself out with medical appointments, and also because November through February incorporates a lot of paid holiday time.

I closed my computer yesterday afternoon and The Teenager asked if I wanted to take the dog for a walk.

Now, let’s think about the conditions yesterday:

  • It was a beautiful pre-Spring day and the sun made everything alive.
  • I woke by alarm at 6 a.m. to meet Southern Candy at the diner, where I ate salty food and drank three cups of coffee so my blood pressure was creeping up.
  • I went to the orthopedist, but was unable to get an appointment with the hand rehab people.
  • I was going to the chiropractor in about an hour, for the appointment last week that I had to reschedule because of my fall.
  • I have not gone to the gym in a week because of the fall.
  • My legs are covered in painful bruises.
  • I was a little hungry.
  • I had taken Baclofen* in the morning, but not since.

Interesting side note: CVS ordered my baclofen refill last week, as they did not have it in stock, and I haven’t heard from them since.

I felt good. Nothing hurt. I hadn’t noticed any balance issues. So, although I felt a little wiped out, a short walk sounded good.

The Teenager suited up the dog and put her cat in the cat-backpack and we headed up the street. We made it halfway up the block, cat screaming in fear, when the dog noticed other dogs and got nervous. And I had what The Teenager called “a three-point fall.” I immediately assumed it was a basketball reference but she explained. I stumbled, froze in the air for a second, and then fall. I believe the fall at work was a three-point fall as well. That frozen time she witnessed was me actually making a decision what to do next. That is the second where I have to decide whether to fight the fall and try to regain my balance or use that second to frame the fall and try to control the impact.

In this case, I opted to throw the fall to the left to protect my already injured right hand.

The sidewalk and the meat of my palm met as I aimed for the grass, now a barely visible scrape. The Teenager declared we would turn around. I told her I could turn around and she could keep going, but she promptly declared this was a less-than-ideal experience for everybody.

Now, at this point, I have a new short-term disability claim open with Matrix, waiting to hear when and how often the hand rehab people want to see me. With past experience, I’m fairly certain it will be once a week. But, before committing to returning to work, I would prefer to talk to them and was hoping they would call back and see me today, and then, if necessary, I could email or hand-carry paperwork to my PCP to decide whether we would pursue the new STD claim for my hand or amend my intermittent leave parameters that cover my cerebral palsy.

My claims examiner is confused, and since I have not received all the information I need to make a decision, my answers are rather wishy-washy.

Also, the weather is calling for snow. And I have this nightmare of me leaving my house in a snowstorm when I already have mobility and hand issues.

I head to my beloved chiropractor, ready for her insight and her physical therapy knowledge. Meanwhile, my neurologist/physiatrist who I had had a brief texting conversation earlier in the day, texted and asked if anything else could be happening in my body to cause these issues. I’m typing the list of answers: lack of chiropractic care, lack of gym, lack of Baclofen, bruises on my legs, high blood pressure. I am scheduled to see her in early April.

And meanwhile– we still don’t have an answer for why my quads were burning a couple weeks ago and why my “normal” issues in my hip joints seem to be moving into my sacrum.

So when Nicole the Chiropractor gets her hands on me she declares that my hips and my sacrum are all locked up and my lower body is stiff. She gets everything moving and pushes everything around. And I stand up feeling like a jelly fish, so loose it takes me a while to remember how to walk.

I haven’t heard from the hand rehab people. The neurologist has probably finished her day. My right side is starting to ache a bit. I drive The Teenager to the post office and we stand in line behind a Karen who criticizes every customer in front of her for not using the post office correctly, gets to the counter, and very promptly gives my favorite postal clerk a hard time when she discovers that Priority Mail box she has packed her materials in is a Priority Mail box and will cost $17.10 to mail. Even before she hears this news, she badgers the postal clerk about how much it will be, and he’s confused because it’s a medium flat rate box so it’s $17.10. And she then snapped that she had to text the person receiving the package because that person will have to pay her back. The postal clerk suggests maybe she buy a different box from the postal supplies station in the lobby and then he could mail it for $10. But she grumpily agrees to pay the flat box rate.

We return from the post office– having mailed cookies to a friend of The Teenager who has joined the service– and I head into the house and realize I left my glasses in the car as my prescription sunglasses are on my face. I head back out to the garage and walk down the narrow cement steps to the car bay. Half way down, my ankle gives out, twists underneath me, and I somehow manage to lower myself to the ground without falling down the stairs.

I pick myself up. Everything feels solid. I text the neurologist. I return to the house. The Teenager expresses concern as I took too long to walk to the garage and back. I explain what happened.

She orders me out of the kitchen and she says she is going to make dinner and I am going to sit. I use the time to email my supervisors and call out for today, because I think it would be best if my body had some rest. I email my claim examiner and tell her to cancel my hand-related claim, because this whole incident is definitely something we have to deal with as a cerebral palsy issue. And I tell her if I need to contact my primary care doctor and have my intermittent leave parameters amended I will.

I ate a pile of peppermint kisses, a moon pie, and a rice krispie treat after dinner and washed it down with Diet Coke. Despite that, my weight is down more than two pounds this morning and my blood pressure is fine. My lower back and right side of my lower body hurts, but I’m hoping my morning dose of Baclofen will reduce the stress on my joints. My arm still hurts from my Tdap booster.

I don’t know what will happen next.

88%, a gut feeling, a pizza and some Stitch Fix fans

It recently came to my attention that March is Cerebral Palsy Awareness Month, in addition to Women’s History Month. So as a tribute, I fell down the stairs leaving work on March 1. Seven cement stairs.

I have a massive bruise on my thigh, a knot of a bruise on my left calf, a swollen pinky that looks like a dog bit it, and wounded pride. As many injuries do, my finger throbbed and ached most of the night.

At work, I was frustrated, cranky and tired and moving so slow. By my calculations, I did 110% on Wednesday and now 88% on Thursday. WTF? I asked myself. Meanwhile I hear my blind friend Nancy Scott’s voice in my head, “Angel, you did too much.”

Several managers came over to ask how I was, I said I was okay but my finger was swollen and would not bend. They all mentioned I might see the safety manager later in the day. I didn’t. The person checking in on me most was my process lead, who also has a disability, and I told him I knew I wouldn’t finish at 100%. But apparently he didn’t know I had thrown myself down the steps.

The conversation went something like this:

“What happened? Did you miss a step?”

“I was on the landing and I lost my footing, and I had that split second to regain my footing but there wasn’t enough room on the landing so I thought I could gain my balance by kind of trotting down the steps but I missed the first step.”

“So where did you end up?”

“At the bottom.”

“So you fell down ALL the steps.”

“Yeah.”

I think I had 24 boxes of refix yesterday so that meant I dealt with a lot of carts, which slowed me down further. And my neurologist warned me that any injury might short circuit the relationship between my mind and my body. My brain and my legs don’t have many communication skills as it is and anything going on with another part of my body will muddy up the whole situation.

My leader assured me that we could come up with a plan, but that still frustrated me, because I’m already on a probation of sorts (which stemmed from a work-related cerebral palsy “flare-up”) and I see this as an endless cycle of me doing my job and then falling behind and getting in trouble. And the more they push me, the more rapidly the situation will repeat. Another friend who used to work for a big local employer in administration said she’s glad this happened because it might make my disability more real for them.

But anyway, after work, I had a lovely conversation with Thurston, our Parisian Phoenix author who has a devotional coming out this month when a certain publisher gets herself sorted, about his book and the future.

When I got home, I removed my final band-aid of the day and had a weird gut feeling something was wrong. Like this needs a doctor wrong. So, bribing The Teenager with a pizza from one of our favorite pizza places that she forgot existed, we went to Urgent Care. Between her ear infections and my injuries, we spent a lot of time there.

The doctor seemed a little perplexed that I broke my “middle phalanx” of my pinky falling down seven cement steps. They expected more damage. What can I say? I have skills. And that friend I mentioned above? She broke several ribs falling down the stairs in her house and ended up as an inpatient in the hospital so she’s jealous right now.

So, once I get a tetanus shot and a splint, we head out. We stopped at Antonios Pizza and Ice Cream at the 25th Street Shopping Center and order a pesto pizza. We haven’t been there in 2-3 years because… Covid… life crazy… lazy… Dominos is cheap and easy and there is an app.

They recognized us! They recognized us, our order, and to prove it they pointed to the booth we used to sit in as a family.

And they love Stitch Fix! The Teenager opened the box and ate a slice in the pizzeria while we pointed out what Stitch Fix clothes we had on our body. And then I had to show off and fold my sweater into a 9×9 square.

It was the kind of small town encounter I love about our urban corner of the universe.

The ticking time bomb dove down the stairs

When I worked at the Lehigh Valley News Group and The Teenager was a tot of two-years-old we referred to as “the wee one,” I stumbled over the cart return at Wegmans after doing some grocery shopping on the way home from the office. The Wee One was with me, as she attended day care literally next door to my office. I would appear in the doorway after nap time, have snack with the kids, and return with her to my office around 3:15 where she would play on the floor beside my desk for about an hour before we went home.

I clearly remember I paid $770 a month for her to attend daycare, where I dropped her off around 7:45 and, as I mentioned, picked her up at 3.

In the Wegmans parking lot, I had removed the Wee One from the cart in the cart return and turned to return to my car– my only new car I’ve ever had a 2000 Saturn SL2. I had wanted a Saturn since they came out, and I was very pleased to finally have one after my series of mid-1980-something Ford Escorts.

I had tripped over the metal rail that supports the cart return and banged up my elbow pretty badly. (My elbows sustain a lot of damage in my falls.) I put the Wee One in the back of the car in her seat, and got into the drivers seat, and turned on the car and the air conditioning. That’s when I started to pass out.

With black spots before my eyes, I dug frantically into my purse. I couldn’t see, so I was merely feeling around for my phone. It was my Nokia flip-phone in the pre-iPhone days. I found it, but couldn’t dial. I hit the recent calls menu and dialed the first number on the list.

It was my friend, Gayle. She called the store, and I still remember the flood of cart attendants and managers that stormed into the parking lot looking for the woman and the toddler in the running car. I stumbled out. They took me, the Wee One, and the groceries into the store and called my in-laws to drive me home. The manager asked if I needed anything and without missing a beat, the Wee One said, “Ice cream.” They didn’t hear her, and she got very annoyed that she didn’t get ice cream.

That was circa-2006.

I tell that story because that was the scariest fall I ever had. The second scariest was when I broke my ankle outside the old Maier’s bread factory and almost passed out sitting on a fire hydrant waiting for my husband to arrive with the car. I was going to say today was the third scariest, but then I remembered the time when The Teenager was in kindergarten and I fell on a bad patch of sidewalk and spit out a tooth.

The most exotic fall I ever had was in Yemen.

The most embarrassing was when I fell in the middle of the Halloween parade in front of the whole damn town. That was a year ago.

But today was another first. My first official fall at Stitch Fix. If you are a regular reader, you already know I’ve been struggling with pain recently. I woke up feeling pretty mobile today, and I was even able to touch my toes at 4 a.m. so I skipped my morning dose of baclofen. I was instructed by the neurologist to take the medicine as needed, and when I saw her last, she encouraged me to take it more. I found myself wondering if the baclofen might be somehow connected to the muscle pain I’ve had.

I had a great day at work. I had another observation with my direct supervisor, which came in at 104%. I laughed loudly with my friends at breaks. I brought Thurston a hard copy proof of his book launching in a couple weeks. I may have eaten too many honey roasted pistachios, but pistachios are delicious. I finished the day at something around 110%.

I gathered my possessions, grabbed my coffee cup, and slung my purse over my shoulder. I trotted toward the door, eager to see my chiropractor at 3:45 pm and hear all about her trip to Vegas for a work-related convention. I stepped out the door, said goodbye to the security guard and took another step across the landing. I stumbled forward. I didn’t have enough space on the landing between me and the stairs– the concrete stairs– to regain my footing. The situation swirled for a minute and I tried to use the momentum to trot down the stairs and regain footing that way.

I failed. I dove down the stairs. Thank goodness my possessions broke my fall. Everyone rushed to my aid. Someone offered me a hand. Someone gathered my metal coffee mug which had rolled away. I reorganized my purse and asked everyone to give me a minute before I stood up, that I was fairly certain I was fine, but I wanted to catch my breath before getting up.

People starting asking the why and how of my fall. I assured them nothing but me made me fall. This is life with cerebral palsy.

My friend Sassy, the same friend who accompanied our colleague who had a heart attack to the hospital, was suddenly there. I notice blood. Sassy helps me find it on my pinky. Our safety manager goes to get me a band-aid. Another leader forces me into the building to file an incident report. I’m annoyed because… well, I was hoping my chiropractor Nicole Jensen could help me figure out my random intense muscle pain.

I sit down. Sassy is with me. One of our managers from second shift is there and looks concerned when she sees it’s me. The safety manager stays. My supervisor comes in. I start to get sweaty and lightheaded. This freaks me out because I’m barely hurt. I try to text my daughter to have her call the chiropractor and I can’t. My former second shift manager does it and we just end up calling The Teenager.

Sassy fans me and brings me a cone of water, but I’m too shaky to hold it. She brings me a water bottle and fans me as I joke and the safety manager delicately cleans my finger and puts on a bandaid. My supervisor starts the incident report. Thurston comes and takes my blood pressure. I’m feeling myself.

They offer to arrange an Uber for me, and to send an Uber for me in the morning.

“I’m okay,” I tell them. And I thank them for bringing me back into the building, because otherwise, who knows what might have happened on the road.

I left with the nurseline phone number. I promise to email my boss and text Sassy when I get home. Once I arrive, I shower. Luckily, no more blood. But there’s a chunk out of my finger and I think my thigh will have a massive bruise tomorrow.

It’s been eight weeks since my last fall. I had falls in November, December and January, so making it eight weeks is good. But I have no idea why it happened.

The latest fall

You know those workplace counters that say things like “X days since our last injury”?

I keep one of those in my head.

My last fall was November 3, 2022. The post-cortisone face plant. That was my last fall, until yesterday. Update counter. It had been two months since our last fall. The stumbles have been happening for about a week. I’ve noticed that’s how they “start.” I start to trip more. But I stay on my feet and I credit my workouts and my improved mobility and balance.

And then I fall.

Maybe the workouts, the chiropractor, and healthy eating do nothing to improve my odds. Maybe I would be a complete disaster without them. I don’t know. I’ve been taking my new medicine, even taking my vitamins (and I got battery-operated toothbrushes, testing the idea of getting a real electric toothbrush).

Yesterday, after a poor night’s sleep and a hard, stressful day at work (those details are recorded in an email to myself at work that I will not send unless the person who did not follow my accommodations says anything to anybody about me alerting my supervisor to her behavior), I came out of my garage, tripped over the stepping stone on the walk and landed after a corkscrew roll in the mud and concrete.

Watch the opening sequence of Netflix’s Special with Ryan O’Connell (season one, episode one) and you will get the idea.

I’m 47-years-old. I don’t like being face down on the concrete with my body in mud. And yes, my first thought was, “Damn, my sweatshirt is dirty now.”

I’m covered in minor scrapes. My hands. My right elbow (which still hasn’t fully recovered from the fall in November). My shoulder (though I can’t see to tell). My right hip. One of my left knee. Two on my right.

It shakes my spirit.

I also stepped on the scale for the first time since before Christmas. I had lost five pounds. I’ve gained those back plus two more. I keep thinking if I can get my weight down, my body might struggle less.

But then emotional eating sets in.

And so I ordered Wing Zone. Boneless wings and a BIG order of fries.

I’m not getting on a scale today.

Or tomorrow.

The celebratory and the reflective

My neighbor and the pet mama of my favorite little dog, Sobaka, had a birthday yesterday and her 700th Peleton ride. Another friend had a birthday Thursday and by happenstance I had that podiatrist appointment in her town and stopped to see her. She insisted I had to have done it on purpose, but I am terrible with birthdays. I know they are coming. I make plans days in advance but somehow, they slip by without me recognizing them.

The Teenager decided to take the bull by the horns and go shopping for our neighbor’s birthday and collected all of her favorites: Diet Coke in 20 ounce bottles, Cheez-Its and various flavors and sizes of M&M chocolates. It’s something the teenager learned from the maternal side of our family, because when my mother runs out of ideas for what to buy someone she either finds something completely ridiculous (like the whole chicken in a can that she bought my husband for Christmas one year) or stocks up on their everyday favorites. (The chicken in a can stemmed from my husband’s love of chocolate pudding in a can. Things escalated from there.) It’s like a care package, but more festive.

Now Sobaka turned eight this week so The Teenager also bought a corresponding gift bag for the dog. With extra tissue paper as Baki loves tissue paper, some treats and some little stuffed toys Baki will probably ignore because she’s too hoity toity to play.

My family has lived in this neighborhood for 20 years. Some of my neighbors have lived here their whole lives, like Little Dog’s Birthday Girl Mom and my neighbor to the right who cuts my lawn every time he cuts his. Most of my neighbors have been here as long as I have, and so we have adopted an informal mascot of the Flamingo and have the occasional girls night.

The Teenager is very excited to be old enough to attend. Last night was the Flamingo Birthday party. I was very very much looking forward to it, and very excited to share the slow progression of my service dog application with my neighbors. Very excited also to see what cocktails would be served as this particular host does not disappoint. (I ended up with a Jack Daniels canned cocktail of lemonade and honey whiskey, delicious.)

I suspected this was a recipe for disaster, but was so looking forward to relaxing with neighbors and laughing after a hard week. I had been up since 3 a.m., worked almost a full day with odd results on my metrics, went to the gym at 5 p.m. and inadvertently skipped dinner. The party started at 7, but I opted to wait for The Teenager to get home from work at 7:30 pm.

I’m skipping around chronology here, but my brain was doing this same jumps for much of the day, fatigue leaving me not quite here nor there. When I left for the gym at 4:40 — it’s about a 10 minute walk — I discovered a package from my stepmother’s business.

How honest should I be? This package struck fear into my heart. I didn’t want to open it. But I had to open it. I haven’t heard from anyone in my family for months and it seems like some people in it are getting harder to get a hold of, but I know rationally it’s a busy time of year and we’re all still recovering from the loss of our patriarch and trying to figure out how to fill that void. So of course I open the large but light box.

There is a beautiful card inside with a thoughtful inscription from my stepmother. She had a quilt made for me of my dad’s things. I cried. Because this week has been hard for me and I’ve been trying to hide just how hard and wishing I had my dad to listen and make me laugh. And not many people other than my mother and I would care, but Tuesday was my parents’ wedding anniversary.

I almost carried the bulky blanket with me to the gym because I didn’t want to put it down. Luckily, the Teenager got home in the knick of time to take it away from me.

We did a fantastic upper body workout at the gym, with some core exercises that used the legs which I very much needed. I had skipped Wednesday’s workout not knowing the source of the nerve pain. The workout pushed my arms and stretched out my extended person, who was very stiff.

Once I made it to the party, I sat by the fire pit in the yard (wearing the Teenager’s Stitch Fix mock leather jacket because I didn’t want to fight the kittens in my room to get my very stylish jean jacket) sipping my cocktail. I had rejected my first seat because the Adirondack chair made my back and hip very uncomfortable. All day my right lower back muscle had been straining oddly, and I thought maybe the cortisone shot in my foot had caused me to move my body differently.

We moved into the house for ring bologna, cheese, pretzels and chocolate-on-chocolate cake. If you are looking for me in the photo, I am second from the left with the Teenager beside me. My exhaustion kicked in high gear. The Teenager had to leave for work at 8:45 p.m., another overnight dog-owning client, so I thought it best to follow her home. Which, for the record, is across the street.

Now, I attend these parties barefoot as long as the weather allows. The Teenager and I leave the house, descend the front stairs, and reach the sidewalk. I think I took two steps on the old sidewalk and I lost my balance. Badly. Tried to regain my footing and couldn’t. I fell onto the Teenager who allowed me to ricochet off her without budging. Like a mighty tree.

And then she looked down and said, “You okay? You getting up or are you dead?”

If you don’t live with someone clumsy or someone with a condition like cerebral palsy prone to these kind of incidents, you might find that cold and cruel. It’s not. It’s practical and allows me to retain some dignity as I collect myself. My daughter knows I don’t need fuss, that I’ll let you know when it’s time to panic. It might be a little later than it should be, but eventually I’ll let you know. We might stop at the Chinese Buffet with a broken ankle, but eventually I’ll end up at Urgent Care when I need it.

I knew I stubbed my toes and my palms and my elbow was screaming, but I was praising whatever entity was watching over me that I had the heavy jacket to protect my arms. My glasses were still on my face. My face never hit the cement. We were good. I just hoped the jacket had survived.

“It will make it look cooler,” the Teenager said.

I crossed the street and took inventory. My elbow was bleeding and was very tender to the touch. My other scrapes were inconsequential. I checked my phone for clues as to what might be happening.

Holy shit.

Let me just start my saying that even with the explanations offered by Apple and Google, I don’t understand exactly how to analyze double support time, walking steadiness and walking asymmetry as recorded by my phone. I look for patterns. I know my phone does not consider me a fall risk, so I rule that algorithm-based tool out as useless for me.

I know, in general, that when my asymmetry reaches 10% or more I tend to fall. This shows two spikes, one at 53% on the walk to the gym, and another at 58% on the way to my neighbor’s house. As best I understand, this means one foot is walking faster than the other. Did the cortisone shot make it so I can’t feel my foot enough to use it? Is this foot unable to keep up with the other? This idea terrifies me.

I cleaned up as best I could and collapsed in bed struggling to get comfortable with my elbow bothering me and my back hurting worse. My brain was calculating and worrying and fighting the downward spiral.

That’s where I’m at. Except I’m cuddled on the couch in my dad blanket.

Falling isn’t the worst part

It’s Wednesday. That’s my Friday. Wednesday is typically both hectic and easy at the Stitch Fix Bizzy Hizzy (Pennsylvania warehouse).

I’ve been performing at 100% all week— probably 106% yesterday— and my body has been protesting. A lot of dull pain and stiffness. I was honest with Andrew, my fitness and strength coach at Apex Training, that I have been struggling with my leg and spine.

So, Monday night, coincidentally the only day I worked a full-hour shift this week, I went to the gym but only focused on upper body. And I felt so much better and woke up as close to I get to ready to take over the world.

And yesterday, Tuesday, I excelled at work and came home stiff but still had an enjoyable evening. I thought it might be a good idea to take one of my muscle relaxers. It’s not a strong dose, but I hoped that they would ease the stiffness and allow by body to recover.

I woke up dragging, but managed to pull myself together. I had a cup of coffee and did what I could around the house. Put on my new cat leggings from Purr Haus. More about that here. (And I believe women of a certain age should not wear graphic prints on their bums and I am in that category. I have ventured outside my comfort zone.) Grabbed my lunch out of the fridge and left for work.

Went into the building, said hello to my friends and colleagues in the main break room. Walked down the central aisle with my big yellow purse and in the middle of the room, with open space everywhere and with no one and nothing near me, I face-planted onto the hard, austere floor.

On of my Monday through Friday colleagues came to help me up. I stood tall. Went to the cubby holes where we store our stuff and put my purse down. I took my water bottle and went to the bathroom and the water filling station.

I had just lived that scene in every underdog teen movie or television show. You know the one— where the dork gets tripped by the cool kid and throws their lunch tray across the room.

In the bathroom, I noticed that I ripped my brand new pants. I had scraped my knee but no bleeding.

I went back to the break room and couldn’t stop myself from crying. One of my colleagues, part of “the Sunday cohort” with me, gave me a light hug while I collected myself, assured me the pants could be repaired, and made me laugh.

When I got to my table for the day, I noticed that not only did my thumb hurt, but I had a tiny bruise under my fingernail.

I went to my supervisor and asked if I could leave at 11 instead of 3. The whole incident has me upset.

The falling is easy. Hell, getting up and doing what you have to is easy. But the fear is getting to me. The fear of when the next fall will come, how it will happen and what will happen to me clouds my brain.

This is why I applied for a mobility service dog.