Return to the gym and other small successes after a week where cerebral palsy gave me hell

It’s a quiet Saturday morning despite absolutely roaring winds and nasty cold outside. The Teenager and I were working out some financial details last night over tequila shooters after upheaval this week (and plans to do taxes tomorrow) in light of the fact that her check engine light popped on last night. Her car has turned out to be an enormous money pit.

I’m drinking Friendly’s Arabica Mint Chocolate Chip Ice Cream flavored coffee. I adore mint in coffee, so I picked this up. It has a light and smooth flavor, so I drink it way too fast (as I am used to my bitter dark roasts) and makes the kitchen smell fantastic, especially considering it comes out of a K-cup. Both the mint flavors I have found since stumbling on the Dunkin white chocolate peppermint, have been branded Friendly’s.

The importance of exercise when you have a disability

Last night I returned to the gym, having warned my fitness and strength coach Andrew of Apex Training that he needed to leave the sadist in him at home because my body is still delicate.

(I know he’s a personal trainer, but that doesn’t seem enough to classify what he does, so I call him my coach. Life coaching has become so en vogue right now and that sort of coaching using combines listening, some psychological training and helping people get their metaphorical shit together. Personal training to me seems very goal oriented, whereas Andrew has to deal with a lot more than that. Training implies, in my mind, sharing knowledge of an activity that relates to form and tricks of the trade. It’s giving intellectual knowledge in combination with experience to help someone develop a skill, or in this case, a habit. But, having dabbled with hobby bodybuilding in the past, I have the knowledge and we’re working with non-textbook medical issues because I don’t have a “normal” body, so I need some extra support. And I love the guys at Apex for all the support they give to me.)

Andrew prepared a lovely full-body workout circuit for me that focuses on quality of movements versus high intensity or heavy weights. He and I have noticed during our now year-long relationship that the second set of an exercise is always better than the first set. And we’ve come to believe that my body– because my brain and the muscles in my lower body can’t communicate like they do in people without neurological conditions– needs to be reminded what to do. It feels like my body needs to be shown basic movements after even the most basic hiatus to break a cycle of malfunctioning, reset, and proceed in a different and better manner.

That circuit reminded my body parts how to work together again and get all those tissues and electrical connections firing. And after a week of sometimes intense pain, emotional and physical stress, and constant discomfort, the exercises allowed me to test my movement and release any sensations of immobility or fear I was clinging to. And Andrew was there to monitor my performance and make sure I didn’t hurt myself.

And let me just add, in case anyone else struggling with a disability like mine that manifests differently in people or that the medical establishment doesn’t fully understand: It is 100% true that you know your body best, but it’s also true that our experiences in bodies that do not do what standard bodies do often blind us to what we can and cannot do. This can bubble to the surface in many ways: 1. We are stubborn and should not do many of the things we attempt to do; 2. We give up too easily; and 3. Because we never see our bodies from an outsider’s perspective so we have a skewed outlook.

These are all important reasons why I have a personal trainer. All of them. I learned this from listening to my daughter talk about my body. She didn’t mention it as a young child, but as she got older she said things like, “Mom, your feet are fucky. Fix them.” She saw me fall so many times that she began to notice the signs of when I might fall. I don’t see that. I don’t see my feet from an outside perspective. And that’s why it’s emotional painful to see photographs of myself with twisted knees. And also why I asked Joan to photograph them for Not an Able-Bodied White Man with Money. And if I’m honest, why I put the photo spread in the back of the book. (See below for Amazon purchasing details or buy from us here.)

In many ways, Andrew knows my physical limitations better than I do. THAT is why I have a personal trainer. If it weren’t for him, I wouldn’t have exercised at all last night. And this is why I get angry when people cite a disability for why they can’t work out– that is specifically why you need to work out. You can’t pound weights like a powerlifter or run marathons, but bodies need to be used and challenged.

Mundane things like food and mail order packages

Rant over… My blood pressure is elevated this morning, but looking at the patterns of the last week and my list of dietary choices, I can see the role salt has had in my numbers. Dinner Thursday night had more salt than I’ve had recently, and dinner last night consisted of a canned black bean, sheep cheese and processed mole sauce lasagne with lentil noodles, laced with that sodium.

screenshot from Goodreads

Add the tequila, of which I did not have much, and the fact that I was licking salt off my hand…

I woke to a truly distressing dream that started as one of those dreams where you need to use the bathroom but can’t find one. I was wrestling a woman in a cheetah print denim dress to beat her to the toilet, and then, in the dream, I could not pee. Despite the pain and urgency of needing to pee. I suppose my mind really wanted me to wake up, because the next part of the dream haunts me even now. I saw a baby, who appeared to be blind (remarkably similar to the early 1980s hardcover, purple dust jacket edition of John Saul’s Comes the Blind Fury. And the baby had a baby. They were side by side, a newborn and a larger infant. Which took a cheese grater to my emotions, because I don’t think they were Irish twins. I had no choice but to get up after that horrific scene.

To bring things back around to happier things… and more references to Parisian Phoenix Publishing… (Please buy books!!!)

I prepared a special mail order package with a signed copy of The Death of Big Butch. I will be headed to the post office today.

What I ate Friday:

  • 4:30 a.m., one cup Friendly’s Peppermint Stick coffee, with half and half
  • 5 a.m., first breakfast, honey nut Chex with Silk protein cashew-almond non-dairy milk
  • 8:30 a.m., second breakfast, salted and roasted pistachios, mango jerky from Solely
  • 11:30 a.m., lunch, vegan tofu spring rolls and cabbage, diet Pepsi
  • 3 p.m., snack, iced coffee with half and half and cinnamon a very berry oatmeal cookie from Panera
  • 7 p.m., dinner, black bean and sheep cheese lasagne with cheddar and mole sauce on green lentil noodles and plantain chips
  • 8 p.m., tequila shooter with pink Himalayan sea salt and a slice of lemon

(and about 60 ounces of water)

A Monday mammogram, a dose of anxiety, some more commentary on cerebral palsy (and fitness) and a really yummy dinner

I had a mammogram scheduled for this morning with my “regular” radiology tech. I went into work late, which meant I could sleep in and isn’t that the best way to start a Monday morning? At five a.m. I woke and starting cuddling my foster cat, Tripod Louise, debating whether or not I should get up. I normally rise for work at 4 a.m. so I have time to do Parisian Phoenix stuff or creative writing before clocking into my shift at 6:30 a.m.

But as I lay there at 5 a.m. today, I realized that I had set up the delay feature on my amazing coffee pot, and yes I still adore my Ninja K-cup, travel mug, and standard carafe brewer. I had coffee waiting in the kitchen. If I waited much longer it might not be fresh. If I fell back to sleep, it might not even be hot.

I fed the fat cats their weight management food and went downstairs where I promoted my latest idea, the photo scavenger hunt book. Check Parisian Phoenix’s submission page for more info.

I arrived at the hospital for my mammogram at 8:05 a.m. I went into the lobby and grabbed my registration number. Luckily it was two away from the last number I heard called. I started rooting through my purse for the doctor’s order and found it crumpled and stained with coffee.

A Dose of Anxiety

While I don’t normally suffer from panic or anxiety, when my stress levels increase I am prone to physical sensations of anxiety. And I had forgotten how stressful I find doing any outpatient procedure at the hospital. Grab a number, sit in the main lobby, go to the registration office, go across the hall to radiology, check in at radiology, get called to mammography, traverse the hall, get changed, go into the mammography suite, chat with the tech, get smooshed.

It’s a lot of steps in rapid succession. I could feel my hard pounding and had to keep inhaling deeply through my nose to keep my chest from closing up.

Was I nervous? No. Afraid? No. Shy? No.

It was pressure. I felt rushed and out of control.

Building Up Another Woman

Once in the mammography suite, I learned my favorite tech would be retiring in eight days and staying on per diem because if she works one day a month she will maintain her medical insurance.

I told her I was happy for her, but also disappointed, because she did my first mammogram and she always made me feel comfortable. I told her I’m sure she helped a lot of women and that I hoped she enjoyed every minute of her retirement.

She called me sweet.

And she remembered me by my tattoo. Which is on my breast.

Foster Kitten Jennifer Grey and Bean the Dog

When I left the hospital, I got the sweetest text that our foster kitten Jennifer Grey (who moved to the Teenager’s room last night for better socialization) is adjusting well.


Forgive me, but I’m finding myself too exhausted to continue,

so from this line down, I am writing about Monday on Tuesday


4:30 a.m. Tuesday, drinking exceedingly strong coffee as prepped on the delay setting by the Teenager.

Measuring Challenge at Work

My anxiety from my hospital visit followed me to work. I clocked it 9:07, which made it hard to do the math of where my numbers should be for the day, but I settled on a total of 85 fixes. And I hit 85 fixes. I was at a table on the right, not my regular table on the left, which meant a subtle shift of balance and more pressure on my right hip. The warehouse outbound supervisor herself brought me 22 refixes, or the work already in a box, which were pivotal in keeping my numbers where I wanted them.

I heard rumblings among my colleagues that no one is hitting “full performance,” so I’m not the only one. We were joking at lunch that in a few months they may reduce their workforce by 50% if they dismiss everyone not meeting the new numbers. I don’t think they’ll do that. The company has always been more than fair in the past. At lunch, Southern Candy gave me homemade fudge. I ate too much of the deliciousness and spent the next couple hours a little queasy.

The murmurings report that employees that are shared to other departments must still hit 90% of the new numbers and that their performance in those other departments will count toward their monthly miss-the-mark allowance.

The goal for my department is 16.25 per hour, but does not include time off for our ten-minute paid breaks. So I use my own numbers. Hour one should be 17, hour two also 17, then ten minute break, and 15 to finish the third hour to reach the official numbers. It’s two more hours until my lunch, and I try to maintain 17 per hour to “make up” for our final ten-minute break of the day.

So I missed two hours and 37 minutes of work yesterday. If I divide one hour (60 minutes) by 16.25, I get 3.7 minutes per box. (For argument’s sake, let me point out that doing the same using 17 unites is 3.5 minutes. So we are talking about the impact of seconds, but it adds up.) I missed 157 minutes of work, so using their numbers I should have lowered my goal by 42.5 fixes but I couldn’t do that math in my head. We are six days into the new system and I’ve already missed my two days a month. I thought I made it with 85 fixes, but my official target might have been 87.5. That means I did 97%. We’ll see what they say today.

I know I talk a lot about the numbers at work, but honestly it’s part of what I love about the job. 1. Numbers don’t lie. You can discuss why the numbers are what they are and develop strategies to meet them. I find calculating the numerical benchmarks to be soothing and an objective way to see how my day is going. And, while my employer would hate to hear this, it’s a good reminder that sometimes you can’t work harder only smarter and not everyone had the capacity to hit 100% of arbitrary numbers every day.

The calculations and my podcast keep my mind busy and allow me to brainstorm what I need to do for my publishing business. If I have to work full-time, I would rather work the blue-collar warehouse job than a white-collar office job that destroys my intellectual capacity and short-circuits my brain with stress. 2. I preserve my creative energy for myself. Listening to publishing-related podcasts, various sources of news, other creators and even some bizarre non-fiction stories keeps my mental focus on my goals and allows me to give my full effort to my employer while still working toward my personal goals.

3. I love the clothes. I have followed Stitch Fix since they launched, when The Teenager was a preschooler and I still had a subscription to vogue. I love seeing, touching and preparing the clothes for their clients. I love seeing the fixes, their color combinations, their textures and I love imagining the person who would wear them. I also like to make judgments of whether or not we could be friends based on their box. Because if you’re on fix #72 and I think all the clothes are hideous, that’s your style and we can’t blame the stylist or the algorithm. And since I write fiction in the fashion world, I love seeing the new trends and which items become perennial offerings.

I also took two muscle relaxers, after not taking them during the weekend. I’ve been curious if some of the strange feelings I have in my legs are from when the muscle relaxers wear off or from missing a couple chiropractor appointments due to other doctors’ visits. The jury is out– but the bottom line is with the muscle relaxers, working out and chiropractic care my body moves easier.

A much awaited visit to Back in Line Chiropractic

After work, I filled my water bottle and headed to my friends at Back in Line Chiropractic and Wellness Center. Not only is former physical therapist and chiropractor Nicole Jensen super smart and personable, but the staff contributes some extra care as well. When my schedule got out of control, office staff person B (as I don’t know if she would want me calling her out in a public forum) made sure I got not only one but two appointments so I could survive the holiday season with my mobility in tact.

I apologized to Nicole for letting three weeks go by without an appointment, and reassured her that I did not fall out of love with her. I summarized how life had gotten away from me, and by the time my trainer Andrew noticed that my legs were turning inward in an unusual fashion and I noticed I felt like the Tin Man in the Wizard of Oz, I luckily had called B and had my appointment on the books.

The noises my body made were brutal, but it’s a weird feeling when you stand up and your feet and legs feel loose, move freer and have a more easygoing gait. It’s disorienting. But it’s a good reminder than sometimes I need more help than I realize.

Nicole then shipped me off to Andrew at Apex Training.

The brutal workout at Apex

I love Andrew. I really do. I respect the way he has learned my quirks and can read my form. He has learned ways to troubleshoot what my podiatrist calls my “challenging gait” due to my cerebral palsy. But last night was a killer core and shoulders work out. It was awesome, and murderous. I am gaining so much upper body strength and am very impressed with my lower body function gains.

We missed some workouts recently because Andrew caught a cold and then took some family time for the holidays, but I told him it wasn’t fair that he was punishing me with heavy weights when we lifted and high reps in the more cardio-based exercises. After all, he had canceled not me.

Needless to say, when I got home I ate the lovely dinner The Teenager (lamb, broccoli and hand-cut, homemade parmesan fries) prepared and collapsed in bed. To wake at 3:56 a.m. before my 4 a.m. alarm.

End of week update: the stats, the hip, the fitness, the coffee

Yesterday might summarize recent trends in my life. I know I posted a blog post before I left for my last 10-hour shift at the Stitch Fix Bizzy Hizzy. Monday I start a more traditional Monday through Friday shift. I’ll get home earlier, but I lose a day off. And I’m used to having Thursday and Friday off which is nice for running errands, making appointments with doctors and professionals, and for connecting with people regarding my business, Parisian Phoenix Publishing.

I still had my Friday nights and Saturdays, even if I had to head to bed earlier than most people want to on Saturday night. Many well-meaning friends and everyday people have made comments like “well that will be nice,” “no more long days” and “you’ll have your weekends back.”

But I’ll no longer have that feeling of “getting work over with” and I’m no longer part of a unique cohort. We worked alone in the building on Sundays, and that was peaceful, and for two hours every afternoon, we more or less finished the work the traditional day shift left behind.

So, I arrived at work yesterday morning, basking in the bliss of using my new Ninja DualBrew correctly. (I still have to buy coffee filters, but I love the ease of use, the temperature of the coffee, the different settings for the strength of coffee, AND how I can select just the right amount of coffee for me. The reservoir is cool for me, because it removes one more decision or step to screw up. I have been known to double fill the coffee pot when I forgot I already did it.)

On Sunday, I normally perform between 100 and 105 percent of daily metrics. I may have once hit 108. This Sunday, I hit 97. This annoyed me. It was the first sign that something was off. On Monday, I kept struggling. I didn’t really notice anything physically wrong but I did note that my toes on my right foot were really burning by the end of the day. Andrew, my wonderful coach at Apex Training, had asked if we could move Monday night’s session to Tuesday. I said sure.

I busted my butt for the rest of the day and hit at least 99 percent, but I may have hit 100. That’s when I noticed some residual issues in my body. Just that nagging sense that something was not right. I attributed it to working hard and not having my regular Friday appointment with Nicole Jensen at Back in Line Chiropractic and Wellness Center. She had a class on Friday, so she had moved clients.

Tuesday I could feel my right hip turned wrong. It was a weird feeling, like my leg was facing the wrong way. In reality, it might not work that way but that’s how it felt. And my right hip was very tender to the touch. I still didn’t have any pain, but movement was getting harder. So I tried to stretch my hips during the day, but by the end of the day, I had only hit 90 percent and it had been hard. I asked Andrew if we could move the Tuesday session to Wednesday, worried that this was more of a structural issue than a muscular one and working out could push me from discomfort and mobility issues to actual pain.

And a year ago, I was in pain every day and I don’t want to go back to that. Ever. I was flipping through my journal and last year at this time I was starting every journal entry with a number from the pain scale. That broke my heart to see.

I took a muscle relaxer, stretched some more and went to bed after a nice meal. Wednesday morning I didn’t move any better, but I was no longer stiff. But by the time I got to work, my gut said this hip was really struggling to do its job. And I was about to stand on it for ten hours.

At 6 a.m., I called Nicole’s office and left a message. At 9:15, they called me back and scheduled me for 5:15 p.m. I knew that if I waited until my regular Friday appointment and forced that hip to work out, it would lead to pain and harder-to-fix problems.

I emailed my boss as I couldn’t find him and it turned out that he had called out sick. I arranged to leave at 4:30. By my calculations, I hit 87 percent. My right side just didn’t have the mobility it should. The drive to the chiropractor took about 20-25 minutes, and when I got out of the car, it felt like my right leg had fused and stretching it into a step felt ridiculously hard. But still no pain.

This is when cerebral palsy plays tricks on the brain. As I’m (what feels like) dragging my leg into the chiropractor, I started wondering, “maybe I just need to stretch,” “maybe there’s nothing really wrong and I’m just lazy and my muscles stiffened.” But then I remembered the burning toes. Something was pushing my posture forward and my body was fighting it. But I still had my doubts.

Now, no one has ever gaslighted me in the medical community, except maybe my first primary care physician who referred me to the wrong specialist in the days when I had an HMO. I now always have plans where I chose my physicians myself.

When Nicole entered the room, I explained what’s going on and she quickly confirms that yes, my hip was crooked. Like really crooked. She even made a hand gesture. And that my body had done other weird things to compensate. It all moved beautifully when she manhandled it. She pondered what caused this when we had just considered potentially spacing out my weekly appointments to every other week. Did I overdo it at work? Was it missing the adjustment Friday? Was it skipping my workout?

When I got up from the table, my feet did, as Nicole put it, sexy normal feet posture. My balance has improved dramatically in the last few months, and my strength has returned, and my stamina is definitely increasing.

I stepped out of the chiropractor and took some long, beautiful, easy strides.

It. Felt. Good.

No, it felt GREAT.

So, I don’t know how Nicole would feel about this, but I went to the gym. And let me tell you– Andrew delivered a brutal work out. We did split leg squats in sets of 20 reps each leg with weights. He said I was moving better than I ever had before and I said, yes, because Nicole had straightened my body and stretched out my lower extremities. Like, literally, just did. We did military presses with 25 lb dumbbells. We did core. We did upper body exercises like IYTs. And shoulder taps and mountain climbers and rope slams.

And then, before a shower or dinner, and it’s 7:30 p.m. now, I had to deal with the hellions in my room. I had to swap out and refill three litter boxes for the six cats in my room. I had to vaccuum. I didn’t clean the bird cages, but I did feed and water everyone. And I’m still wondering how the heck those four kittens have trashed my closet without opening the door.

I wanted to blog all this last night after I ate my omelet of cheddar, peppers, homemade farm-procured, roasted tomatoes. But I was exhausted.

Are disabled athletes more mindful?

Barbells might be my new obsession. Remember my new shirt from the Fitness Tee Company in Michigan?

“Let’s hit the bar.”

I bought it after my first bench press with the barbell. I have always wanted to lift barbells. I’m fascinated with power lifters, and admire women like Meg Squats. She recently had a baby, but to stay on topic, here is one of her lifting videos: 5 things I wish I knew before I started lifting.

So when my trainer first put me on the bench with a barbell, it was in part to evaluate me. What he didn’t know was my secret burning desire to do it. And it did not disappoint.

Those first couple lifts I learned so much— about form, about using “power zones” in the body, and how a simple bench press uses most of your muscle groups. Fascinating. To see other people do it hints at the complexity, but to do it yourself is a true lightbulb moment to the depth of the interactive mechanics of the human body.

Today I did my first one plate barbell deadlift. Pretty much because my trainer said, “You could totally lift that,” and pointed to the barbell on the floor.

And I said, “I’ve always wanted to.”

You could totally lift that.

Dan, my personal trainer at Apex

So he let me deadlift the one-plate (on each side) barbell. I mimicked his form, which appeared to be underhand and it was a totally different kind of effort from the dumbbell deadlifts I previously completed. Those seemed very concentrated in the butt and legs, these included more of the body in a fluid way.

I did three in that first set and returned to my dumbbell circuit— 10 lb dumbbells in a swing style motion up to a press, 10 reps, followed by 10 bicep curls— before back to the bar. This was my cool down set of the day. And I did 3 more additional sets at the barbell— a set of five, another circuit with the dumbbells, then eight at Dan’s urging, another circuit, and he asked for another eight, but I tapped out after five.

I determined that I prefer underhand grip. Overhand grip puts too much stress on my lower back. Mixed grip is awesome, too, but I think that may require some work before I can up my weight. Mixed grip forces a certain instability and requires more focus on balance, which as a balance exercise would be stellar.

But what does any of this have to do with athletes and disability— the idea I propose in the title?

I have no athletic talent what so ever. My coordination is awful. I tend to walk “all done f*cky” when my health is poor or I am fatigued. I also deal with a myriad of aches and pains from walking crooked and associated issues with my S1 joint.

But my trainer often comments on my form, well, once he reminds me to point my toes for a squat or perfect that lean for a row. He’s even commented that I’m “built for that” while we do certain exercises. That once I correct manually what my brain can’t make my body do automatically, that I use a very deliberate form.

As I’ve mentioned before my weight training is very meditative for me because I am counting (something my trainer and the teenager were discussing because she said even with a decade of band she can’t count) and my trainer said I was good at keeping count, but that many of his clients needed assistance. I am also thinking about control in every motion of the exercise— from each body movement, to pace and control.

And on top of that, I try to note feeling and body function. Though that is touchy. In a “leg day” session a week or two ago, Dan said he noticed something strained about the lift I was doing. He wanted to know if it were legs or back bothering me.

I had to do an extra rep of the exercise to answer him. Because I hadn’t noticed.

“Ankles,” I answered. “My ankles are stiff and shaky today.”

All of this makes me think, and question, how those of us will a mild physical disability like cerebral palsy might be better athletes because we don’t have talent or physical advantages. But we know our bodies and we are accustomed to acknowledging the details of our bodies and their functions.

Does the fact that I am required to concentrate on every motion make me more prone to perform that motion closer to perfection than someone who can breeze through it without thinking about it?

Compelling idea.

Training Update: Finishing Week Three at Apex Training

My body turned to me as I went to my car after work today, and as I fiddled with the radio (calling up Natalie Merchant on Spotify singing Space Oddity), my body said to me,

“Jesus, woman, what are you doing? We need to talk.”

But seriously.

Let’s start at the beginning, shall we? But we can’t spend too much time on all this as it is 1:30 a.m. and my aching body craves sleep.

The teenager was up fairly early today so I suggested she and our almost 1-year-old pit bull/mastiff/black lab puppy walk with me to the gym, about 5 blocks away.

Now if you’re new here… I’m 46 years old, a former newspaper reporter. I have an amazing 17-year-old daughter. Her father and I separated two years ago but he lives nearby and is still an important part of our household. I have cerebral palsy. He has a club hand. I have recently started a quest to learn more about my body, restart my bodybuilding commitment (I was really into it six years ago) as an alternative to traditional physical therapy, and hopefully lose the 20 pounds I gained stress eating to cope with the toxic workplace of the last nonprofit I worked for.

So, the teenager, the dog and I walked up to the gym. F. Bean Barker is learning new manners everyday and the guys at the gym thought she was a beautiful dog.

And then the focus changed to leg day. Now, on upper body day I get to train like a normal person. On lower body day, my poor trainer has to balance my physical deficits with my desire to kick ass.

Or maybe I’m just as awkward both days, and I just never noticed.

Today was session six. It’s the last week of two sessions a week and next week we increase to three.

Please note: I have been in gyms lifting weights since college, which was about 25 years ago, and in recent years I’ve been in physical therapy to learn to walk, for balance, for the strain of my lumbar region caused by trouble with my S1 joint and my broken ankle. Every body is different. Every ailment or disability is different. It is a quest to balance what works for you, what your body needs and what hurts.

I firmly believe that nothing fixes the body like the right exercises. But for people with disabilities or health issues, it’s hard to recognize what pain you need to work through and what hurt is bad. As a weight lifter, I know muscle recovery pain. As a person with a disability, I often experience burning pain.

As a society, I feel like we invest so much money in medical tests, mental health, drugs, organic food, but we don’t want to pay for a trainer.

My trainer is getting to know me. He knows how to observe me. He asks questions about my mobility. We test exercises by going easy at first and adjusting them based on my performance.

And he reads me well.

There are times I can tell he’s afraid of pushing me too far and then I do the exercise and he makes it ten times harder because I surpassed his expectations. This makes him a good trainer because it means he’s testing my basic form and strength so I don’t get hurt. And he reads my body language to see how I’m doing— not relying on my words.

A good trainer has to push you out of your comfort zone. But he also has to make sure everything’s executed for best impact and in a way that you don’t get hurt.

I have to admit, I hated him a little today. But I also love his full body approach. But when he tells me to do sumo squats with a 15-pound dumbbell and my toes pointed out AND make sure my knees “follow” my toes… I don’t know whether to cry or punch him.

It’s the gym— both those feelings are valid.

But let’s examine the issue. My knees face in.

This means to perform the motion he has requested, I need to move one foot at a time carefully into position. I need to really concentrate on balance. As I move, I need to keep my head up, focus on stretching the knees to position in line with my toes (which is not the way they go) while holding a weight and trying not to fall.

I was dripping sweat by the end of this session— before he hands me a kettle bell to end the work out with kettle bells swings.

When I got home, I made a massive high protein vegan pasta. See me make it here (this can also be my official “before” video.)

I ate 90% vegan today. Only animal products I had were half and half for my coffee and a pack of beef jerky at work. I almost had iced tea with local honey but the teenager spilled it when I left it on the dog crate.

This was dinner:

Speaking of dinner— tonight at the Bizzy Hizzy my team competed in the Stitch Fix olympics. We won the gold medal in the egg toss. I was relieved they weren’t real eggs.

In other news:

  • I almost started editing William Prystauk’s latest novel in the Kink Noir series.
  • My Poppy Z. Brite books have arrived.
  • I hurt. I hope it’s the good hurt.
  • My friend Joan not only brought us old linens, but scored a cat carrier and animal crate at a yard sale.

Lower body & kitten bodies

Today marked my first lower body work out with Dan at Apex. I did something I rarely do and wore a little tennis style athletic skirt to the gym. I don’t like wearing shorts. There are two reasons why.

1. I honestly don’t like my flesh touching various surfaces: hot car leather, wooden chairs, the concrete if I sit on my steps, of course “thigh rub.” You get it.

2. But I also don’t like to see my lower body in motion. It’s a visual reminder of my physical issues.

So exposing my legs to a relative stranger was a way of me making myself vulnerable. But if Dan is going to monitor and critique my form, he can see my knees.

Lower body. I was so… not anxious, not scared. Maybe trepidation? We did pretty standard upper body exercises. Easy starting point. Dumbbells. I was happy with it. Very happy. (See more here.)

Dan brought his six-month-old son. What a happy, charming, beautiful baby. He didn’t mind seeing my knees.

And right away, Dan put me at ease. I’m impressed by the depth of his knowledge— my physical therapists have explained the same info to me so I know he’s done his homework on normal physiology.

Our exercises yesterday included a supported squat using some overhead ropes (that was amazing! I felt like I could move like a normal person. I could have done that all day.); some mild lifts with a plate that was like a full body deadlift, slowing stretching out the whole self; and some squats with a resistance band moving up and down from a bench. Many of these movements required great concentration on my part but I knew from past physical therapy that he was nailing it.

He apologized for not working me harder but he wants to focus on getting everything moving and flexible again so I don’t get hurt.

That is exactly what I need right now. I shouldn’t be working out hard. I just want to establish the habit, get my metabolism working again, and oil the machine, so to speak. I am so thrilled. Giddy.

And I walked slowly home with no falls.

As my rest period at home, I finally wrote the solicitation letter for FURR’s Coffee and Kittens pop-up cat café August 15 at Forks Community Center. The organization is working hard, my former employee and friend Janel and I are brainstorming away and reaching out to potential sponsors.

I hope to have FURR volunteers give five minute talks or demonstrations on various cat topics: TNR, basic cat care, how much cats can reproduce, declawing and cat scratching behavior, working with hissy spitties, cat body language, trimming nails, seniors for seniors, why kittens aren’t easy.

Activities will include live kittens in play pens to cuddle, cat story time (I will read cat stories), and musical chairs with cat-themed music. We hope to have some raffles— the chance to name some kittens, hopefully some prizes. And cat merchandise for sale.

And of course refreshments.

Did I mention live kittens????

The teen and Bernadette

Owning my personal fitness

It’s Monday. And wow is it a Monday!

Before I continue, let me get the usual disclaimers/introductions out of the way.

Like many people, I had a rough 2020– I’m actually grateful to Covid for slowing down my life and allowing me to survive some severe emotional stress that caused me to have high blood pressure, develop a bad comfort eating habit and end up anemic. I had a difficult job experience, lost that job, and now work in the Stitch Fix Bizzy Hizzy and deal with my daughter’s crazy dog, my stubborn cockatoo and a bunch of foster cats. I’m forty-something, a single mom, 20 lbs overweight and struggling to understand my body, specifically my cerebral palsy.

My day started with chasing the “pig pony” dog Bean (we call her that because she snorts like a pig and is the size of a small pony) around the neighborhood because she decided to jump the fence and ignore her recall commands.

I’m in my kitchen now, eating a public-school issued bowl of Cheerios with an out-of-date white milk leftover from the teenager’s recent school dates. I met with my trainer today (and my friend Janel who is helping me set up the FURR Coffee and Kittens event at Forks Community Center August 15).

I headed up the hill to Apex Training to meet with my trainer Dan. I finally remembered to ask Dan if it’d be okay if I wrote about him and our work together and he said yes, so I no longer have to be sneaky.

I’m comfortable with Dan. He’s laid back but he knows his stuff, understands the movements and the physiology, and keeps a careful eye without making you feel stared at or inadequate.

He almost seems apologetic that we’re going slow and using 5 and 10 pound dumbbells and not lifting at a pace that makes it a cardiovascular event. But that’s what I love! The anemia, when combined with the cerebral palsy especially, makes it so easy to get tired and clumsy and hurt oneself.

Today, we did some upper body work. 30 minutes, slow and steady. 3 sets of 2 exercises each. Pretty standard way to set up a 30-minute work out hitting the triceps, biceps, chest and upper back.

Five years ago when I did this, I did a lot of cardio, did calisthenic ab exercises every day and did ten to fifteen minutes of lifting focusing on just one muscle (i.e. biceps or triceps) not the whole group.

Like I said, I know what to do, but I’m a person and people get lazy. I need Dan right now, as I’ve said, for several goals:

  1. Restart the consistent habit of training.
  2. Increase energy.
  3. Improve strength, flexibility and agility.
  4. Build muscle and tone body.
  5. Lose weight.

Many of us tell ourselves we can save money and do it ourselves but the reality is there is a big difference between we are able vs. the commitment of we will.

I fully intended to eat a banana every day to get more nutrients into my body as I recover from anemia. Did I?

Does it look like I did?

But back to the training… I find the actual activity of lifting, when I am working with a class facilitator or fitness trainer, meditative. Everyone should focus on their movements when strength training, but I really have to with my disability. Focus is required to make sure all the body parts move as they should. I have to count the reps, remember to breathe, and control the motions all at the same time.

When you are doing all of that, your mind empties. And you just flow with the movements of your body and the feeling in your muscles.

Like today was “oh hello triceps, are you still under all that arm jiggle?”

When I left Dan I was sweating. I was limber. I felt invincible. I was walking home reminding myself how powerful I am.

I fell.

I lost my balance on the sidewalk and just fell about half a block from my house.

My right arm is scraped from the back of my shoulder almost to my wrist. The upper shoulder stings the worst. It’s been two hours and it still stings. I also bounced on my hip and upper thigh— so that is already starting to bruise.

I called out from work tonight. Based on where I’m at in my menstrual cycle and the summer sun, I’m going to blame anemia for this lapse in balance especially since all day yesterday I had no energy. Anemia is awful. Anemia with a mobility disorder is a nightmare.

But this is why I’m working out.

I own my weaknesses. Let’s fight!