Spending time with friends to spruce up mental health

I have faced challenges recently unlike the previous difficult times in my life. I no longer live with my husband. My father passed away a year ago this past Thursday. I don’t hear much from members of my family. The health issues that come from aging with a chronic condition like cerebral palsy, while my prognosis is static, present their own difficulties. My cerebral palsy will never change, or get worse, but the complications from having spastic muscles, scissoring legs, years of toe walking and leg bones that don’t sit where leg bones were designed to sit are very real.

This week, for many reasons ranging from family stress to communication difficulties and new and old volunteer commitments, pressed my mental health beyond the point I like to go. I watched a lot of TV.

I also spent much time cuddled into my new Stitch Fix zipper hoodie. But I did peel it off to wash it today, and put it right back on my body.

And my curls came out nicely today. Thank you, curls.

Television viewing

I caught up on The Good Doctor (and while YES! Audrey Lim decided to accept her disability rather than go through a risky surgery, at the midseason episode now the team decides she has recovered some movement on her own and a new less risky surgical plan might restore her mobility. Even her new boyfriend in a wheelchair says she has to do it, and he proposes, to prove to her he’s there whether she can walk or not. The episode ends with her in surgery. If the surgery succeeds, I will be pissed. Will they then feature an interabled relationship? Why must she walk again? Why can’t we have an able-bodied fancy surgeon become a wheelchair user and excel at it? It’s ridiculous that mainstream television starts to show an able-bodied person accepting a serious disability and then again reverts to the idea that she must walk again. And disabled people know, no one complains louder, no one takes adjusting harder than an able-bodied person suddenly rendered less able.)

Wow. I didn’t expect that tangent.

With that caught up, I tried Little Women: LA and a few episodes of Little Women: Atlanta. I learned some of the varieties of dwarfism, and was forced to thing about discrimination in hiring, but as with most reality series, the focus seemed to be on drama. The Atlanta spin-off really heightened the drama. Within two episodes, we had a pregnancy with an indifferent father and jealousy and cat-fights in the clubs. Because if you use Little Women: Atlanta as a source (which I would not) apparently stripping is a great way to make a living and still collect your disability checks. I was not born with that kind of disability.

I heard a podcast featuring Randall Park and thought I would try his Netflix series, Blockbuster. That was also a disappointment. The humor fell flat for me, and I struggled with the concept. There is one Blockbuster video store still in existence, in Bend, Oregon, and USA Today wrote an article comparing the fictional last Blockbuster and the real one and honestly that just confused me more.

So, I went for Hoarders season one on Hulu. It’s amazing after having binge-watched later seasons during previous times of emotional crisis to see how unpolished the initial season is. You can see the crew determining what works and what doesn’t. The cinematography is more dramatic, but the professional only have two days to clean massive hoards and they slowly tack on more time.

At this point, I renewed my Motor Trend streaming service and will stick with Mike Brewer and Marc “Elvis” Priestley on Wheeler Dealers.

Rocking New Boots

I finally got to wear my new Marc Fisher over-the-knee boots! The Teenager worried about me leaving the house in higher-than-usual heels. They were so much fun to wear and didn’t feel any more uncomfortable than other boots.

I left my house around noon. I had promised to bring Maryann some books as her tavern is featured on the cover of The Death of Big Butch. I delivered her copies, visited for a moment (but not as long as I thought I would because the traffic and road closures in downtown Easton made it impossible to drive the three miles to her. It took FORTY minutes.), and heading for my lunch with Bill Prystauk, the author of the Kink Noir series and a long-time writing friend.

We had a lovely meal at Gap Diner in Wind Gap, Pa., a midpoint we select between his location in Stroudsburg and mine in Easton. He had a spinach and feta omelet where the rye toast had this perfect dark line around the edge but the bread remained flexible. The potatoes were also picture perfect. They had this crisp outside and looked soft on the other side. I had pepperpot soup and the buffalo chicken Caesar salad. I was a tiny tiny bit disappointed that the chicken was chicken fingers cut into bite sized pieces but honestly, the beauty of the shredded romaine and its luscious green color won me over.

It was a good eating day as the Teenager brought home fresh bagels from the bagel deli and I had had a salt bagel with piles of kale and spinach and hummus for breakfast, an iced coffee for an afternoon treat, and a dinner of heaps of vegetables (kale, squash, potatoes, sweet potatoes, cauliflower and zucchini), a vegan chicken tender and a token amount of pork.

Much better than yesterday when I ate a double steakhouse cheeseburger from DQ, cheese curds, pretzel sticks with queso and a blizzard (snickers/brownie) so large in came in a medium soda cup.

Visiting her Ladyship Maxine

From Wind Gap, I traveled out to Point Phillip through some scenic roads to visit photographer Joan and deliver her copies of Big Butch, which apparently I would trade for celery and pears. Joan and I are often trading edibles.

I met the younger stepson, the grandson, and even got to pet the adorable Maxine, a striking cat of great renown. As soon as she heard that I was the one who alerted her people to the existence of Tiki Cat cat food with shrimp, she sniffed and rubbed against my boots providing me with the ultimate blessing.

And Joan gave The Teenager, myself and her own self a Yule present: a game called Ransom Notes, basically Cards against Humanity but with magnetic word stickers. The Teenager cannot wait to play.

All in all, I think I put 50 miles on the car.

I received a phone call from a journalist trying to convince his editor to write a story on Big Butch. And I participated in a speaker phone call with The Teenager and her grandmother (my mother-in-law). She revealed that she would be having fried chicken and potato salad among the offerings on Christmas Eve so I may now have a social obligation that night. I love my mother-in-law’s fried chicken and potato salad.

More about advocating for oneself, cerebral palsy and life in the warehouse

I last checked in with this blog on Monday, December 12. Today is Friday. I have diplegic spastic cerebral palsy and my workplace recently changed the way they measure our performance. The company switched from a weekly average to a firm daily number. I work in a warehouse folding clothes, and I’ve been there more than two years. Why do I do physical work when I have a disability, skills/talents and plenty of higher education?

Because I’m tired of emotional stress and the politics in a white collar office environment. I’m tired of being underappreciated, never getting credit for the good stuff I’ve done, and I’m tired of my creative, intellectual energy benefiting some entity other than myself.

I also love the mindlessness of my current work, listening to podcasts and brainstorming my own projects during the day, and my team. Working in a warehouse environment has brought together a diverse mix of people that I wouldn’t get to interact with otherwise. And I feel like this particular company, this warehouse and my supervisor and team give people opportunity and respect when other people/companies wouldn’t.

I have been struggling with my body for about a year. And my employer has never given me any trouble due to my disability. But, I also know that I will fail in this new metric system. So I applied for workplace accommodations and intermittent FMLA leave.

The leave request ran into some complications when the fax never seemed to make it to the absence management company. On Monday I contacted my neurologist to ask if they could fax it again.

On Tuesday, I took all-day VTO and ended up getting some frustrating communication from one of my volunteer activities. The kind of stern communication that feels like a betrayal and makes you reevaluate some relationships and commitments. I spent most of Tuesday sleeping and watching Hoarders. Because nothing makes you feel more psychologically grounded than seeing the homes in Hoarders.

The neurologist’s office followed up with me on Wednesday. I contacted the claims examiner via email to update them, and it was Wednesday afternoon when I received an email with the document and uploaded it to the claims management company.

This was the same day my supervisors at work asked me to submit the accommodation form I had given them to my claims examiner. Which I happened to have a scan of that document on my phone so I did.

I received word today that my intermittent FMLA leave was approved.

As for accommodations, Wednesday a friend from my roster saw to it that I got some work that was easy for me. By my calculations I hit 101%. But I was told I hit 111% because I receive extra non-production time for talking with people about my accommodations.

Before we left on Wednesday, one of the kind people from the original day shift brought me some of the work that was already boxed for me to set at my station for the morning. I also took the time to box the items from the bottom of my previous cart and get that ready. But when I returned to work Thursday morning, someone had taken my nicely packaged work.

It also happened to be the one year anniversary of my father’s death and I was at work when I got the call that I needed to come to the hospital and say goodbye. So, my emotions are on edge because of that, my anxiety is acting up because of the issues with my leave and my accommodations and the other things in my personal life.

My friend from my roster tried to get me pre-packaged work. I took VTO at 11:30 and I thought I hit 105%. The official number was 103%. I would estimate that half my work was the stuff that is easier for me. Thanks to that friend on my roster.

Today I again took VTO, this time at noon. I packed 89 fixes, by the skin of my teeth, which should be 100%. Only 24 of those were prepackaged. So less than 30%. I received more troubling news about three-and-a-half hours into my shift that made me realize that no one that could be considered my family has invited me for Christmas. I’m 100% okay with being alone, and Christmas usually ends with me in a panic attack, but I didn’t anticipate that suddenly at 47-years-old my daughter would be my only family.

My toe has been feeling much better, but I’ve only worked part-time this week. But I think the gel protector ring is helping tremendously. No nerve pain. But my right leg definitely feels turned in and clunky.

I think my life has been challenged on every front recently. The nice thing about such challenges is that they can inspire new beginnings and allow you to mold what you want out of life and stop living to other people’s expectations.

But sometimes– no, often– it still hurts.

The Lost Week and the Random Thoughts Within

It’s been eight days since I last posted, in part because of the mandatory overtime at the Stitch Fix Bizzy Hizzy. I had some scheduling difficulties regarding the commitment and had scheduled 13 hours of OT this week and 5 next week to meet my minimum commitment of 16 hours. I was told last night that I had misunderstood the communication and we had to work 8 hours each week.

So now I will be working 10 hour days and 9 hour days for the upcoming week of my birthday.

My Silk & Sonder planner which was due to arrive May 7 is still not here with no update to the tracking information. I will probably receive the June volume before the May one. They warned this might happen, but I really really hoped to have it for my birthday. It seems like the right time.

I bought some new gel pens at the Grocery Outlet and it’s been fun experimenting with colors.

Working so much overtime reminds me of the simple pleasures in life—

  1. When you’re working mandatory overtime, it’s okay to buy coffee out. Even better if you find good deals.
  2. Teenager #1 ordered us food from Tic Toc Diner for after her shift and my shift. We had a picnic in the backyard.
  3. I have missed having my nails done. Having them done (currently I have birthday unicorns) bring me joy.
  4. There was a new season of Hoarders on Netflix. That show is mesmerizing and terrifying at the same time. I once went into a hoarded house. I have huge admiration for the people who work with those who suffer from hoarding disorder. That one experience was enough for me.
  5. Teenager #1 introduced my blind friend Nan to Spotify. Hearing Nancy’s enthusiasm and seeing my daughter’s altruism really cheered me.
  6. I had an observation at work where I scored 101%.
  7. Fresca is a fun soda.
  8. I ordered a new pair of jeans. Button fly. Because I love button fly. I hope they fit. I bought myself some things at Rainbeau and Stitch Fix and am slowly transitioning to a casual versus professional wardrobe.
  9. Teenager #2 gave me socks for Mothers’ Day. And even hand-selected every design on them!
  10. Sleep.

TV Psychotherapy

My mind has experienced a lot of shifts recently. I have changed the way I communicate thanks to some insights of the teenager, some stress at work, and a variety of great support from friends and family.

In the midst of all this, there is the Coronavirus pandemic which allows a lot of introspection for those of us who try to be self-aware.

I’m not a big television watcher. I grew up in a rural setting in a valley by the river where we had poor television reception. We didn’t receive access to cable until I was a teenager.

When I left home, my husband and I chose not to pay for cable (and this was Netflix first started and they mailed you discs and prepaid envelopes— streaming was not a thing).

So, Hulu and Netflix on my iPad have allowed me to explore decades of pop culture. And I realize that many of these reality television programs can offer a window as to how we all face our struggles and build our relationships.

While I originally started watching Gordon Ramsay, it was because I love food and he had a reputation that I wanted to understand. I also like big, athletic guys with bad attitudes and exotic accents.

But the more I watched— whether it was Hell’s Kitchen, Kitchen Nightmares, Hotel Hell or other Ramsay programs— I saw people of all backgrounds reaching toward goals of increased knowledge and skills, wanting a better life, and working to impress not only a mentor but a larger-than-life icon, a modern God.

And Ramsay pulls talent out of people and sees something in people. It’s amazing to watch.

Inspiring.

Shows like 90-Day Fiancé show how desperately people want to be loved and the lengths they will go to— whether in hope of love or acceptance or, again, that desire for a better life or a Green card.

Now, I’m watching Hoarders. I watched the first episode because I’ve been in a hoarded house and it is mind-blowing. I wanted to understand.

I have learned how our upbringings and traumas intersect and influence how we communicate and relate. That stuff, shopping, accumulating, giving up and other verbs… it’s a manifestation of our emotional walls. I would classify My Secret Addiction (or is it My Unusual Addiction?) in the same realm—how to cope.

And then you take a show like Transitions, where people explore their gender identity, and I suddenly see how much of a struggle they have to live as the person they really are versus the person they feel forced to be by family and society. That’s strength.

And why you really want a good outlook, and to see hope, enthusiasm and change, you watch Queer Eye.