A day in the life— medical update, meal plans, sunshine, animals and publishing

I make a lot of lists.

Sometimes my journals are nothing but to do lists and shopping lists. But I like lists— even if I never refer to them again, the act of making a list allows me to stop thinking about things.

If I want to refer to it later, I know where to look, but I no longer have to worry about forgetting as if I want to remember or revisit items from an earlier day I can but I am not staring at a list focusing on what needs to be addressed versus what I actually did.

Many people make lists to receive the satisfaction of checking off the things that are done. I don’t do that. Sometimes I do, but now it’s more like I am acknowledging the list versus trying to conquer it.

I used to finish my list every day or stress over the things I didn’t get to, and on top of that— the list never made me feel better or more in control.

It just exhausted me.

Trapped and the Cover for the Anthology Arrive

Parisian Phoenix’s first contemporary romance has arrived and it looks great. Read more about that here.

But I also received the cover for Not An Able-Bodied White Man with Money, which I will be blogging about on the Parisian Phoenix site this weekend.

And I have a 4 p.m. meeting today with another author who I have been hoping would join our family.

Now if only I could finalize some of our business documents to really move the projects forward.

Yesterday (Voluntary Time Off) and evaluating my health

Life at Stitch Fix’s Bizzy Hizzy has been odd lately. We’re shipping something like 8,000 fixes a day and having the opportunity for voluntary time off.

Last week, I performed at pretty damn close to 100% without pain or significant mobility issues. This week, issues started mildly during my Sunday shift and deteriorated Monday & Tuesday, leaving me at 80% and crying myself to sleep. I talked about this here.

I’m very much wondering if my menstrual cycle has something to do with it, as the Mirena IUD has done miracles for my pain and issues in that department but has made my cycle irregular. I think my body is trying to menstruate later than usual.

I was taking inventory of my recent balance, mobility and functioning issues as today I had my annual “wellness visit” that the office rescheduled from last week.

I took VTO yesterday to allow myself some rest and some time as life (and grief from my father’s death two months ago) has gotten chaotic and overwhelming.

And I made the teenager and I grilled cheese as I had promised to do, and the child acted like I had prepared filet mignon for her.

I have a feeling I will be repeating that after school today.

We also watched Miranda Sings Live on Netflix. The teenager went through a time when she watched the show, so that was weird. It always amazes me how much talent it takes to perform badly.

The doctor today

I have spent more than a decade assembling a talented and caring medical team, so now I can confidently say any issues with my medical treatment stem from the system and not from my doctors.

The doctor and his resident agreed with my assessment that it’s time for me to get into the physiatrist and that their office will advocate for me on that as well, and that my instincts and approaches are correct.

I learned that women more so than men tend to favor one side when they move or stand. As women age, this tendency can create problems. That means this is a problem normal people have and not just a result of cerebral palsy.

And most interestingly… I learned that women more so than men tend to favor one side when they move or stand. As women age, this tendency to let’s say ‘lean’ can create problems, just like what I am experiencing now with my right hip and right leg/foot. That means this is a problem normal people have and not just a result of cerebral palsy.

I reiterated to them that I do know I need to lose 20 pounds, but that we have some issues to address before that.

The psychology of emotional and physical pain

When I was turning 40, I embarked on a journey to lose five pounds and gain muscle. I inadvertently lost 30 lbs and ended up a skeleton and regained some weight to look like this:

That was about 30 pounds ago. I have no need to be that lean again, but I’d really like to see 135 lbs again— which means I need to lose 20 lbs.

I told my doctor and his resident— I know I can’t eat an entire bag of cheese puffs or Wawa bowl of mac and cheese and brisket after dinner. But I’m struggling with depression from my body pain and my father’s unexpected death.

I’m grateful I haven’t turned to alcohol like many in my family, but I have “given in” to food as a psychological crutch.

I pay almost $300 a month for a personal trainer, but I can’t work as hard as I want to because I hurt and I feel like I need answers as to how to move my body so it doesn’t hurt. Because if I could exercise more and move more, I wouldn’t sabotage myself by eating garbage (or if I did, I would be active enough to balance it).

But right now, when I come home from a ten-hour shift with my body twisted and aching badly, and wishing I could call my dad so he could make me laugh and tell me how much it sucks to get old, I grab junk food because it’s the last pleasure I have.

I can’t move without pain so if I’m going to be forced to get fat and lazy I might as well enjoy the process.

These are ugly thoughts and I know that, but I’m being honest.

The fun stuff: errands with Nan

After leaving my primary care doctor, I called Nan as we were scheduled to do some errands together. We stopped at Wawa for some hot caffeinated beverages (cafe con leche for me and vanilla chai for Nan).

Among other stops we visited Park Avenue Market and Deli, one of our favorite haunts known for its deli, salads and meats.

Although I am once again contemplating more of a vegan diet, which will make the teenaged carnivore wince, I am not ready to commit until I feel better. We must achieve discipline before we enact change.

I never got around to meal planning yesterday so I didn’t have a list. I ended up spending $36.89 and I think the results will work.

I purchased: two packs of beef jerky, one small box of minute rice for the teen, three or four teeny tiny bags of Wise snacks from popcorn to potato chips, meatballs, the biggest damn carrot I’ve ever seen, frozen vegetable medley with potatoes and garlic herb sauce, sweet potato crinkle cut fries, pork roll, Lebanon bologna, liverwurst, turkey, olive salad, a store-baked pig ear for the dog and something called “hot pepper shooters”— round hot peppers stuffed with prosciutto and provolone.

Rough meal plan

My rough meal plan for the next week or so is:

  • Sandwiches
  • Meatballs and green peppers, either as a sandwich or in pasta
  • vegetable lasagna still in the freezer from last week
  • Burgers and fries, using ground beef from the freezer and the sweet potato fries
  • Cold tortellini salad with roasted carrot, olive salad and seasoned broccoli (broccoli is in the freezer)
  • Pork roll and egg sandwiches
  • Chicken and the frozen vegetables and rice or other grain

PS— we also welcomed a new foster into the house. Her name is Babs. Meet her in this video. I need to make her a page.

Rainy Icy Friday

I don’t have many plans this weekend— defined by my work schedule as Thursday, Friday and Saturday— in part because my body has been unpredictable, the weather has been crazy and the teenager’s work schedule varies.

I went to the chiropractor at 5 p.m. on Wednesday, leaving work 30 minutes early to get the last appointment of the day. I wanted Dr. Jensen to see my body after four ten-hour shifts in Stitch Fix’s Bizzy Hizzy warehouse.

And, for the second or third week in a row, I could barely crawl home on Tuesday night but felt pretty good on Wednesday. So I feel like I’m not getting closer to solutions to my physical issues.

Yesterday I tried to do some work for Parisian Phoenix, did a lot of laundry, visited briefly with a friend I’ve missed and haven’t seen merely enough of, taught a high school student how to write a press release, watched several episodes of Cobra Kai, ran the dishwasher and went to the gym.

The teenager working on her squat form

The teenager did a lot of work on her squat form while I did some accessory work. I also weighed myself— 157 lbs. Sigh. Still 20 pounds overweight.

Then we had Taco Bell, including the new Cinnabon balls.

Today I worked on the index for the Parisian Phoenix nonfiction anthology on marginalized identities, Not an Able-Bodied White Man with Money, which I will be blogging about on the Parisian Phoenix web site later tonight. F. Bean Barker was my helper.

Indexing is only half complete and man does it allow me to interact with the text in new ways.

Louise has an appointment with a potential adopter tomorrow and today she was quite cuddly, video here. I don’t know how she’ll do in the backroom of PetSmart but all least we’ll be with her.

Nala and Louise

In the afternoon, I accompanied the teenager to her audiologist appointment for a tune-up on her hearing aids.

Then we went for shoes. The teenager needed some and I wanted to buy a warmer pair that fit more loosely — hoping that would ease the blistering and burning in my toes.

The teenager got new black Vans and a new design, the orange blossom Vans.

We ran into Target just to use the bathroom and I told the pouty teenager we could get a drink at Sonic. But turns out Sonic is still drive through only, so if you can’t have drive-in service what’s the point of visiting Sonic?

So we went to Sheetz, and had appetizers. Which would have been fine if the teenager hadn’t suggested going to see her grandmother, my mother-in-law. And her aunt— who recently destroyed her elbow falling on the ice.

We’re finishing Captain America: Civil War right now. The ice is slowly building up outside as the cold rolls into town. And Peter Parker just made his debut in the series.

The end of a short week

In less than 45 minutes— it is now almost 6:20 a.m. on a mildly snowy Thursday morning— I will be walking out my front door to get the CT scan of my head I originally had scheduled for December 30.

I am drinking my peppermint white chocolate Supercoffee, which arrived during the snow event Monday. Peppermint is my favorite flavor in coffee. Cinnamon used to rank, but there is something about the sassy, refreshing notes of warm peppermint and bitter coffee that excites me.

Last night, my Parisian Phoenix collaborator blind poet, Nancy Scott, joined the teenager and I for a dinner of Asian style cabbage and sautéed scallops over soy sauce ramen.

I have mild anxiety about the CT scan, primarily because I am unfamiliar with radiology at the nearby hospital, but also because of the anticipated cost. (You can read more about that here.)

My toe has been burning for weeks now. So much so I mentioned it to my chiropractor last week, that it burns maybe 15 minutes every 90 minutes or so while I am at work in the Bizzy Hizzy.

I thought maybe my posture is off with my hip persistently giving me trouble, but I noticed last night it’s extremely red and I think a little swollen.

Now I’m debating whether I need to call my podiatrist on top of everyone else.

The interesting news is that in the Bizzy Hizzy this week I probably performed about 65% in women’s returns processing during my overtime shift Saturday. My supervisor informed me I did 83% in Freestyle QC/ship on Sunday. Monday was a paid holiday. I managed 90% in my home department Tuesday and Wednesday— which is folding and wrapping 147 fixes.

While my pain levels are probably around 3 or 4, depending on my movements, my hip is definitely bothering me and my toe hurts all the time now. And of course, the back pain has been minor, but there, and I’ve struggled with touching my toes this week.

And I gained back the weight I’d lost.

I’m anxious to do some items for Parisian Phoenix today and maybe even write some of my fourth novel before a friend comes over for cocktails.

And please consider buying a book or two or three from Parisian Phoenix. I’m saving up for a new batch of ISBNs.

Little wins

It’s Wednesday night— which is my Friday! The Bizzy Hizzy has been a tizzy of Covid cases during this mandatory overtime week.

I’m doing my eight hours of overtime on Saturday.

Tomorrow I’m returning to the gym—the pandemic has also altered my training schedule.

And tomorrow, Georgie gets adopted! Yes, Georgie, our lovable former community cat from downtown Allentown, will be going home to a family where she will be the only pet.

I’m told Louise has an approved adoption application— but this is her third so I am not as optimistic as I should be. The person who applied for her wants two cats so FURR has suggested Khloe also be considered.

If these three cats get adopted— after Danu, Brigid and Aîné all getting adopted since December— I may weep tears of joy.

This week my body experienced all sorts of aches and pains, but I still managed to fold what I felt was a respectable amount of clothes for Stitch Fix. And today was our monthly employee luncheon— chicken Caesar wraps, tomato soup and carrot cake.

And on our final break of the day, everyone from my old shift got sweatshirts.

It’s kinda silly, but at the same token, it commemorates a special era of my life and celebrates the camaraderie we had on second shift. And believe it or not, even though we are scattered among the day shift, we still function as a team.

After work, the teenager invited me to Tic Toc family restaurant where we enjoyed grilled cheese sandwiches.

Ingram finally shipped Darrell Parry’s poetry book (Twists: Gathered Ephemera). And several other Parisian Phoenix titles are coming together. Perhaps as many as three titles releasing before the end of February.

Speaking of Parisian Phoenix, I emailed my class correspondent at Lafayette College and he ordered my first two novels.

And finally, side note… Actor Tim Daly was on the most recent episode of the podcast Hypocondriactor. I love Tim Daly. And I found myself comparing him to Anthony Stewart Head, you know… Giles on Buffy the Vampire Slayer.

I was specifically comparing Daly’s character on Madame Secretary to Head’s role as the school librarian/watcher on Buffy. Both were nerdy academics with interests in obscure topics.

Perhaps it’s time for a recap

Perhaps the dog says it best…

It’s been a week since my dad died. And I’m exhausted. We’re all exhausted. I haven’t taken my allergy medicine in a week (finally did tonight) and my head feels congested. I hope I’m not sick.

In news not related to grief, I returned to work yesterday. In retrospect, this was both good and bad. I needed rest after all of this craziness and I didn’t get it.

The checks for the incorporation paperwork and fictitious name registration for Parisian Phoenix Publishing Company have been cashed.

Darrell Parry’s poetry manuscript, Twists: Gathered Ephemera, opened to presales yesterday. And Gayle has been hard at work with cover designs for Not an Able-Bodied White Man with Money. And Joan and the residents of Plastiqueville have been hard at work with the illustrations for Trapped.

Khloe and Louise

Currently I am in bed, under the heat blanket with multiple cats on my lap.

My week has included some beautiful text messages, like one from the administrative assistant at ProJeCt, and heartfelt cards and so many flowers. Phone calls. And sympathy food! Offers of halupkis and coffee cake and delivery of alcoholic egg nog and rum cake.

I have gained back the weight I lost.

My work performance today was almost normal, but my emotional state was… what’s the word? Unstable?

I called my traveling companion and told him all my tales from the funeral— and he told me it sounded beautiful and that he thinks he would have liked my dad and wishes he could have met him.

And a couple times today I folded this sweater, the same style and color I was folding when I got the call.

My days are full of loss and laughter.

I built a little shrine. A place for my dad to have coffee. Because I anticipate that sometime soon I will feel his presence here.

My mother gave me the photo at the funeral. It was from 1975. The year I was born. Probably around the time they got married.

Sometimes you need to unleash the beast

I hope this weekend to partake in some fun activities and lighthearted blog posts, but I also need to do some administrative work for my publishing company, Parisian Phoenix Publishing.

My second novel in the Fashion and Fiends series, Courting Apparitions, releases officially November 29 (my co-founder’s birthday) and could possibly be available Black Friday. Like, damn, when did that happen?

The first book, Manipulations, is available at all the usual places online— for instance here is the link to buy it at Barnes and Noble.

My friend and fellow writer William Prystauk of the Kink Noir series and horror website Crash Palace Productions left me a truly wonderful review on Amazon and Google.

See more here.

This was my original post on his first novel, Bloodletting. Hard to believe it’s been three years.

Buy his books on Amazon.

On everyday life and health front, I went to the chiropractor yesterday and like my doctor she approved of my new technique of changing work tables to try and even out my sides. I stopped at the pharmacy and picked up my prescription for muscle relaxer. I also made my last Purple Carrot meal in the fridge: mango glazed roasted vegetables with tahini butter.

Worked went mediocre/well. The night seemed long and boring and I felt like I was getting used to my body again after the chiropractor. I QCed at about 83%.

I came home and several cats were waiting for me— including Minerva, a sweet foster who started in our second foster litter of kittens, The Roman Pride.

I took a muscle relaxer to see how it impacted my pain and my morning stiffness. It didn’t make me loopy and I think it helped with my tossing and turning.

I only got six and a half hours of sleep last night, but still managed to meet up with the teenager my trainer Dan at Apex Training to lift some weights. I felt so much more limber after. The teenager easily did 105 on the barbell deadlift and 95 on the squat. I could lift the 105 but not execute the lift. My squat form is still adjusted for my limited range of motion in my lower body so I maxed out at 85 while the teen hardly had to put any effort into it.

We came home and shared some Little Caesars pizza as I was craving their “pizza and sticks” pie. We even shared with the dog.

Let’s Be Average Today

I am in my 40s, and struggling with the effects of a life of always walking crooked thanks to cerebral palsy, a disability I have but, until recently, have known nothing about.

And issues in my spine, while not serious, are affecting my mobility and causing me pain.

But today— in part because we only worked until 7:30 pm at the Stitch Fix Bizzy Hizzy— I woke up well rested, only minimally stiff and only minimally hurting. At 8 am no less.

Our charming mutt F. Bean Barker refused to go to bed in the teenager’s room last night because one of our fosters, a former community cat named Georgie, intimidated her. Bean expected me to let her sleep in my room and when I said no she retreated to her crate in the living room. So I let her spend the night. I have spent a lot of time with this dog in the last 24 hours.

I tied a rope around her tire toy gifted to her by my trainer, Dan, at Apex Training and now it’s the best toy ever. See video here.

I was the first one out of bed which meant a swarm of hungry cats outside my door, and I couldn’t keep them all at bay. It was easier to let them in. But our foster Mars totally knows how to knock over the birdcage. Which he did. While I was on the phone with my blind friend Nan and consuming my first cup of coffee.

Nan recently started physical therapy for an issue in her shoulder causing pain and finger numbness. The physical therapist had never worked with a blind client before and was a quick study. He even discovered that some of Nan’s issue might be mobility issues in her neck— because when you’re blind you don’t have many reasons to turn your head or look up and down.

Finally, things settle down and while the parakeet is out he is safe. The teenager and I head to Apex where she gets that barbell and deadlifts 135 lbs. I still felt good at that point.

I came home, showered, and filmed this silly video with Nala, my Goffin’s cockatoo.

And then the matriarch from la Familia Velez stopped by and brought me chili which I had for a late breakfast and we talked about marketing for my Fashion and Fiends books. And my goals for Parisian Phoenix in general.

She left, and I finished proofing Darrell Parry’s soon-to-be released poetry book. I placed a few more essays in the nonfiction identity anthology.

And the poor teenager has had a hectic and exhausting couple days— so I cooked.

She has options for dinner when she returns from the diner. She’s given notice at the diner as she has accepted employment with a local pet care company.

First I made sausage and peppers to put over spaghetti.

Then I also made the Purple Carrot Peanut Tofu Stir Fry which I jazzed up with some edamame and sesame sticks.

Mostly I am just sitting around marveling at how pain free I feel. I miss that.

October 30

My husband and I celebrated our 22nd wedding anniversary today and, even though we have been separated for two-and-a-half years, we inadvertently spent it together.

My mother celebrated her 67th birthday today, and I postponed her birthday until next week because one of her brothers died on Thursday. The second brother to die of prostate cancer in about a month. And her ex-brother-in-law died last week, too.

The day started strong with the teenager and I killing our workout at Apex Training with Dan. I also ordered an Apex Training hoodie. The teenager and I benched 70lbs on the barbell, and the teen also did some hearty squats.

We signed five cats up for the “come adopt us” event with Feline Urban Rescue and Rehab. One of them was sweet Khloe. Khloe hid under the blanket with one eye poking out the whole time, until she heard my voice, then she came out. Not bad for a first day out.

Photo of me waking up with a Khloe scarf

So the husband came over to retrieve his car from the teen and do his laundry and assign his ISBN to his poetry manuscript.

He then rewarded us with pizza.

I did some more work for Parisian Phoenix and some more cleaning, and then the teenager asked me to come down to the diner for coffee and my favorite pie.

Photo: waiting for my daughter at Tic Toc Family Restaurant

This morning my legs felt more normal than they have in weeks and everything seemed to be working in coordination. But as the day wore on everything started stiffening up. It was the first time in about a month my right quad wasn’t burning all day.

So we shall see what tomorrow brings.

Chasing a dream in the autumn chill

Sometimes, as members of the human race, we have days that are full of delights from sun-up to sundown. Those days are rare, but often involve a leisurely day with the family, a vacation or a holiday.

Then there are days that are good despite— or perhaps because of — their imperfections and today was one of those days.

Maybe today was my “bones day” after all. If you don’t get the reference, it’s a prognosticating pug on TikTok (read more here).

I was originally going to blog this on the Parisian Phoenix website, but I thought I could be more honest and personal here. So here I am.

I came home from work in a lot of pain last night. I achieved 90% in my work metrics and came home, once again, in the kind of pain that leaves me crying and nauseous. Part of a marker for bad pain for me is if the pain interferes with my sleep and/or does not dissipate by morning.

I did not sleep well and I woke in pain.

But, I got up, got dressed, combed my hair and put on makeup. Because today was the Easton Book Festival. It might have been cold and rainy, but I was putting my best foot forward, even if the discomfort made it hard to put a shoe on that foot.

Now, here’s the thing.

Easton has been a part of my life for more than 25 years. Even now, I live very close to Easton. I can walk there.

Book and Puppet Company has been a part of our lives for quite some time. The teenager’s father connected with the owners of the independent bookstore. The teenager had a career as a contained character there.

Andy Laties of Book and Puppet founded the Easton Book Festival three years ago. I even appeared in the original “Read a Book” video— and they also featured a Muslim student in hijab outside the literacy center at my last non-profit job in development at ProJeCt of Easton.

My supervisor there quickly forgot the things I did well, like that placement and our involvement in the Easton Downtown Association scarecrow competition, in which they still participate. But I digress.

The teenager’s father now serves on the board of the Easton Book Festival, so when they organized a local author’s event, he invited me.

One month into Parisian Phoenix’s launch and I have a promotional spot. I didn’t sell enough books to pay for the small expenses of the event: parking, coffee, book printing (but hey, I would have needed those anyway), and the copy of the inaugural issue of the Lehigh Valley Literary Magazine I bought. And an overpriced breakfast.

But one person not only bought my book, but also came back specifically to hear me read. So that was touching.

I read a scene from the sequel to MANIPULATIONS, COURTING APPARITIONS where the villain performs a magical ritual in downtown Easton.

It was my first “reading out” in years!

I kept it very brief, because some others had run long and we were all tired.

Until the YouTube video drops— you should be able to view the Facebook live here.

I had intended to join the teenager’s father at one of the last poetry events of the festival, but I was frozen so I came home instead.

My neighbor, aka Sobaka’s mom, has now formally joined the Parisian Phoenix team as a proofread. She says we need to talk about chapters 1 & 2 of COURTING APPARITIONS tomorrow.

The teenager’s father received the copyright for his upcoming poetry chapbook so that could be going to press in a few weeks.

And tomorrow I hope to make applesauce, post some new material from Rachel Thompson on the Parisian Phoenix blog, and start typing Maryann Stephanie Ignatz’s material.

I even got to have dinner at my favorite diner with my neighbor to celebrate Jan’s official status as part of the Parisian Phoenix team.

Even with the psychological weight of pain, my gratitude abounds

Today I did some work on the Parisian Phoenix Publishing website. (I also did two loads of laundry, emptied the dishwasher, edited a press release for anti-trafficking human services non-profit ASPIRE, and cleaned a whole bunch of cat boxes before helping my daughter with her English paper and heading to the Bizzy Hizzy.)

I should type this post a little faster as it is already almost 2 a.m. and I have my alarm set for 9:30 to meet with my personal trainer Dan at Apex Training for our 27th weightlifting session.

But I have to write this, because I had FOUR colleagues approach me about my book today. I gave them my personal business card as I don’t have the publishing company cards ready yet. This oversight was by design as I didn’t plan on printing the cards until closer to the launch of the second book, when the web site would be finished and a marketing plan in place.

So, if you are from Stitch Fix and found your way here looking for information on my novel (including links on where to buy), you can click here.

Fashion and Fiends series

Also, I have to report to the world at large that after two fantastic, fully-performing days at work, my body took a functional nose dive. By the end of the night, I was at a seven or eight in pain physically and quite near my breaking point psychologically.

That is why I am so grateful to my “midnight society” colleagues at work who took the time to ask me questions about my creative ventures. Their interest really did pull me out of my discomfort. And it really makes me feel seen as a person to have so many random people approach me after I told one person about my novel (because she’s a cat person).

Last week, another colleague started reading my book in the break room.

So thank you for boosting my spirits.

More another time.