This is part of a continuing serious about my journey even though I am more than midway through my 40s to understand my disability—cerebral palsy— after a lifetime of pretending it doesn’t exist
Since the teenager subscribed to the family plan of Spotify, my horizons have expanded.
I’ve found so many more podcasts, playlists and music than my 40-something brain can handle. But this allows me to learn new things.
For instance, that July is Disability Pride Month, but not Disability Awareness Month. And there is a Cerebral Palsy Day in October.
Disability Pride month started in 1990 to celebrate the updates to legislation mandating accessibility for those with special needs. And it even has a flag— black with rainbow zig zigs like a child’s depiction of lightning bolts.
How can you be proud of a disability? That sounds like it is anthropomorphizing the disability. Like it has a life. It does something.
I’m not proud of my disability. And I’m not proud to have it. It’s embarrassing and frustrating and, as I mentioned in my review of Netflix’s Special (read it here), when you have a mild disability people can’t see the depth of your struggles.
But I am proud that I get my ass out of bed every morning and do what has to be done.
And for the record, today is a hard day.
And one action I took, although small, I feel is mighty. I added a disability category on this blog and I organized it under the parent category “fitness.”
I started opening old posts and adding the tag, but I had to go get my second Covid shot (Pfizer) and then my neighbor accidentally cut the cable wires so now we have no internet.
And on our phones, the teenager and I share three gigs of cellular data. #singlemom
Anyway, no amount of stretching made my body relax. My back and lower limbs throbbed most of the day. And then after the Covid shot, my arm slowly got heavier and more sore. Now I hate to lift it.
The person who gave me the shot told me to use the arm and drink lots of water. I worked in women’s returns processing at the Stitch Fix Bizzy Hizzy where I opened and hung clothes from more than 100 priority mail envelopes. More than 500 items.
The warehouse was probably 90+ degrees but thankfully not too humid.
When I have these days, I tend to bend by doing lunges (to stretch my body and redistribute my weight), do calf raises in place, stand on one foot, and try to stretch my hips and back as much as possible.
But still the pain level seemed to keep increasing.
So in the car I turned on the heated seat and blasted the air conditioning while drinking some cucumber flavored water.
And took two Tylenol PM to ease the pain enough to sleep.
Funny part is— yeah as if it is funny— I don’t think it’s my cerebral palsy causing the pain. My period is due in four days. I think it’s menstrual cramps.
Everything wrong with my body seems to start in my lower back and hips. Hell, my daughter came into this world through back labor. Is that focus on my back part of the CP?
I used to take a lot of ibuprofen, then Aleve, then meloxicam. After a while, I realized. None of it helped.
I was listening to Dax Shepherd’s Armchair Expert last night and they did a special episode on medical misinformation. They had some pretty rough feelings toward chiropractors. They pointed out that chiropractors can be good or bad, but that the field itself isn’t very regulated or science-based. They turned the conversation to physical therapists. They liked physical therapists.
What about chiropractors who have a physical therapy background? My chiropractor can find muscle tension and stretch out things I didn’t even know I had. And my body seized up from being crooked and she straightens it out.
I guess I have a good one.