“27 8×10 color photographs with circles and arrows and a paragraph on the back of each one.”

I have been writing this entry in my head for about two hours now, I even opened the phone app and literally started the file– the first keystrokes on the blank screen– in between doctor appointments. I feel a bit like the main character/Arlo Gunthrie in “Alice’s Restaurant.”

Which is a reference that probably only makes sense if you’re a Boomer or GenX like me.

In that song, the Arlo Gunthrie protagonist faces criminal charges of littering and the police department has submitted into evidence for the court case “27 eight-by-ten colour glossy photographs with circles
and arrows and a paragraph on the back of each one” only to have the judge enter the courtroom with a seeing-eye dog. (Then the joke: “it was a typical case of American
blind justice, and there wasn’t nothing he could do about it”)

If you need some more explanation… Here’s the whole song.

I woke up at 5 a.m., wide awake for two reasons. 1. My brain had flipped back on. Full force. 18 thoughts at the same time. But 65 minutes of deep sleep, even though I only slept six.

I tried to go back to sleep, I really did, but I ended up clamoring to my feet. And for some reason, I got dressed. Like really dressed. Fake satin and lace skirt, sweater, dress shirt, boots. Gained five pounds because they weighed me with my boots.

My blood pressure was high because I had two doctor appointments this morning, one of which I have been concerned about for more than a week.

I left a few minutes later than I would have preferred because I stopped to do some dishes, thought I left my phone behind, then circled back because I had had my phone the whole time. I made it almost to the office when I remembered my primary care practice had moved to a new building (luckily, more or less across the street from the old building) and when I arrived in the parking lot, I realized how big the new building was. And the signage wasn’t the best.

The inside of the building on the side that wasn’t the big physical therapy office seemed dark and unfinished, with about six self-service check-in kiosks right inside the door. So I walked around the building before heading in. And turns out those walls that looked merely framed out and not finished– that was actually decorative trim. Then I found the building directory and elevator (which took forever to go one floor) only to have it open into one of those massive waiting rooms with several practices feeding into it. Yup, definitely not the homey small feel I am used to.

And by the way, if I would have turned right and gone up the stairs, the waiting room was right there.

I finally arrive and the woman who checked me in is there for the day and needs a minute to figure things out, and a familiar face comes and helps her, then we all start talking about my hair, and before I know it, my shrink-by-proxy is wandering the waiting room looking for me.

She guides me back to her office, which is no longer a closet, and she fights with the light switch to try and lower the lights. I have confirmed that she is a MSW, and I notice she has a backpack with her name on it on a hook inside the door. [hang loose here guys– I have been interrupted from this post several times and it has tense shifts and all sorts of issues that I’m not fixing.)

Now, remember my “Alice’s Restaurant” reference? I had my Book of Kells reusable canvas tote filled with about 25 pages of spreadsheet data, a copy of my legal pad to-do list, and self-report ADHD surveys filled out blindly by Eva and I. As soon as I sat down, my MSW-shrink-by-proxy said, “I’ve talked to [primary care provider] and we believe you would benefit from an evaluation from a psychiatrist.”

Oh? The same one I wanted to see about 14 months ago?

Yes, that one.

I have been told and I knew from the beginning that the likelihood of this program helping me would be slight, and we thought it might be a way to get me further up the food chain. It did not. But that’s okay. I respected her for saying that she could not continue to experiment with medication to guess what I might tolerate and what might help.

I mentioned where my daughter receives her care for her ADHD, and my doctor’s staff made a recommendation on a physician there who might be a good fit.

So she didn’t look at my visual aids.

She sent me back into the waiting room where I intended to do my morning journaling.

A woman broke away from the medical assistant who had been sent into the waiting room to retrieve her.

“Excuse me,” she said. “I love your style. And the boots are great.”

“Thanks,” I said. “My business color is bright pink so these are my special event boots.”

“What business are you in?”

“I have a book publishing company, Parisian Phoenix.”

“I lived in Paris, and I worked in fashion for 15 years…”

Do I need to tell you that made my day?

I was about to head out to my car and grab business cards– because I had almost 45 minutes until my next appointment. But then, the medical assistant returned for me. My doctor was almost done with a patient and she thought he might get to me early. He did not.

I think she forgot it was working-with-residents day and that my doctor pretty much does everything over once the resident does it. I forgot that too. I sat in the exam room for more than 30 minutes, and then spent about 20 minutes with the resident. He opened with, “So what brings you in today?”

“I don’t know,” I answered. “Dr. Mathur has some concerns about my bloodwork and asked me to come in– I believe it was because of my low vitamin D and increasing A1C, but if you poke around in my chart, we can talk about anything you like.”

Short version: He wants me to watch my consumption of sugars/carbs, take vit. D and B12, and exercise. And he gave me all the standard advice. He asked if he could give me an exam. I said sure. He listened to my heart, looked at my knees (not sure why) and then gave me a neuro exam. Which I recognize at this point as I see a neurologist 1-2 times a year.

“Let’s see if you do this better than my neurologist did yesterday,” I said.

And he almost laughed.

He then left to “talk to Dr. [my doc]” and I didn’t see him again for more than 30 minutes. He returned with my doctor and suddenly my doctor and I are talking about veganism, my service dog, the macaroni and cheese at Chick-Fil-A, and the pizza at Spice Crust Pizzeria.

The resident smiles.

I explain to my doctor that it’s the Indian fusion pizzeria down the street. “They use what looks to be high-quality ingredients,” I add. “I bet he’ll agree.”

I gesture to the resident.

“It’s good,” he confirms.

Apparently, the resident is a “smart one,” according to my doctor, and he’s authored papers on vitamin deficiencies.

“You didn’t tell me that,” I said to the young doctor. I swear, he practically blushed.

Then we talked briefly of the medication debacle (Zoloft), and I told him why I had pursued this and the emotional regulation I experienced on Adderall.

But no one looked at my materials…

When I got home, I called the recommended psych practice and they require a good old paper referral. So once my doctor’s office faxes them that, I will get a call from them.

Well, Zoloft was a wild ride

I took my first dose of generic Zoloft yesterday at 11 a.m. I know that’s late in the day to in start an SSRI, but it was a fairly quiet day and I knew I wouldn’t get to bed before midnight. I figured that would give me plenty of time to test how well I tolerated it.

And this weekend is the Easton Book Festival, and I have tabling events and a panel. So I need to have my wits, my strength, and my charm.

I took 50 mg and forgot to eat, so I got immediately nauseated. Knowing I had a long day ahead, I made what we call an “ooey gooy egg sandwich.” I fried some peppers and tomatoes from my garden in Irish butter, added two eggs and a big heap of nutritional yeast. Meanwhile, I toasted two slices of Eva’s homemade garlic-infused bread and put a slice of smoked gouda on each side and ran it under the broiler.

The nausea did not end. I managed to keep it under control by minimizing what I ate and what I drank. Because even liquid gave me trouble. And the diarrhea started fairly immediately. And occured every couple hours,

Mentally, I had less creative spark but not the fatigue that often accompanies the drug. I did feel calmer, but that changed later… I thought everything was manageable.

I went to bed around midnight as I expected. Woke up wide awake. And it was dark outside so I looked at my watch. I hoped it was around 5 a.m. so I had enough time to get some good sleep before the alarm went off. But it was 1:15 a.m. And I was more awake than I usually feel in the morning. I got 90 minutes of sleep. None of my normal techniques for falling back to sleep worked. At 1:50 a.m., I went to the bathroom. I didn’t really need to. But I thought the walk down the hall would show me how tired I really was and I would go back to my bedroom and get some sleep.

Didn’t happen. It scared me how awake I was. And for some reason, I decided to groom my pubic hair. That killed some time. And then I thought I’d go down to the kitchen, make some Valerian tea, and then while that steeps, file my toenails. I’d drink it and go back to bed.

At 2 a.m., I start the tea. Do some chores and my belly starts gurgling. Loudly. Uncomfortably. File my toenails. Drink my tea. Watch TV. The tea makes my nausea come back full force. I almost buy an Apple Watch series 12. Mine is a series 8.

I feel the tea relaxing me so I head back to bed at 3:30 a.m. I toss and turn, realize I have hurt my shoulder sometime, and play with the cat, and repeat. At 4:15, I give up. I go downstairs and get ready for the book festival. At 5 a.m., I get dressed.

By 8 a.m. we head to the book festival, while in the car I realized I have been wired since 1:15 a.m. and that I’m still wired. This is how I expected Adderall to feel.

And I still have diarrhea. And coffee makes me sick. But I’m also calm. Eva and I describe it as my emotions being forced into a bottle, corked and put under pressure, with a layer of calm on top not letting them through, My weakness is my ankles and knees is worse. I fell after the book festival. I have eaten a Gobbler bowl from Wawa and had about 10 ounces of liquid before 4 p.m.

At 3 p.m., I fought the urge to vomit and managed to succeed in not puking. At 4:15 p.m., I was not so lucky. I barely made it to the bathroom in time to find myself puking in the toilet. I had last eaten at 9 a.m. and I was violently heaving and croaking like a frog. When I stood up, I realized I had pissed myself.

I told Eva and M– no more. I refuse to take even one more dose. M told me he didn’t often weigh in on people’s drugs but that this one is poison and I obviously can’t tolerate it.

“Stop taking that shit,” he told me.

I looked up how long the half-life is of this damn drug– single dose can last two to three days!!! So I looked up how long the side effects last if I stay on the medication. It says in most cases they abate in two to four weeks. Weeks!!! Aw, hell no! I do not tolerate lack of sleep. I struggle enough with emotional regulation so if I also did not sleep for a month, I would have a psychotic episode.

Now, I will accept that part of this is on me. I did not think to tell my new shrink-by-proxy that I am a lightweight when it comes to medication (which is part of why I am troubled by my increasing use of baclofen. I have gone from 5 to sometimes 20 mg in a dose, and 3-4 doses in a day without relief). When they put me on a beta blocker after my incident of Afib, I could not get off the couch on the dose they gave me. They told me to cut the pill in half and I was fine. Same thing happened with the sodium channel blocker. (Neither of those are still in my medication routine, so while my life insurance company has deemed me uninsurable, my cardiologist has deemed me healthy.)

I see two options: I text my doctor in the morning something like “I tried the Zoloft over the weekend. One dose. Bad side effects. Stopped.” Or I could call my shrink-by-proxy and explain what happened. Either way: I am NOT participating in any more medication roulette until they give me either a true ADHD test or a trial dose of ADHD medication. If the medical establishment is willing to play with my well-being with these ridiculous experiments, they can at least try the medication I tried and tolerated well.

It’s now 6:30 p.m. I still haven’t eaten since 9 a.m. but I have had a glass of water and about 24 ounces of electrolyte water.

Meanwhile my spreadsheet is looking wild. Because I am tracking it all.

More assessments and more unmasking

Today has already been a long day, and it’s not even noon. 11:49 a.m. but not noon.

I am holding and caressing my necklace pendant, trying to will myself to breathe and take a break. I have spent most of the day hungry and “driven by a motor” (if you do enough anxiety assessments, you recognize the language.)

I woke around seven, after getting to bed at midnight because I left the restaurant after 10 p.m. I came home, showered, reheated dinner and watched the latest episode of Doc. I went to bed, and before I drifted to sleep, I actually cuddled the cat who lives under my bed. I cuddled him for the first time, despite the fact that he has lived in my room for about five years.

I vaguely remember checking my sleep stats, weighing myself, going to the bathroom, weighing myself again, and getting dressed. I clearly remember how disappointed in myself I was for having a big fast food dinner last night and no fruits or vegetables at all yesterday and I was annoyed that I ate potato chips, because my weight stabilized after a weekend of bad eating and I probably would have hit a new low had I not eaten junk yesterday.

I came down, started laundry so my uniforms are clean for tonight and tomorrow, poured coffee, grabbed my water bottle– and had to scrub my water bottle and rinse all the dirty dishes in the sink– and then went to my desk to take my morning muscle relaxers, at double the high dose, because my movement is struggling and I’m in pain thanks to my shift at the restaurant last night. (But they gave me a floral crown.)

Working late and having an 8:30 a.m. medical appointment definitely interrupted my morning routine.

I worked on my journal pages for the morning while sitting in the doctor’s lobby. Now… what happened AT the appointment might best be summarized by my follow-up note for my long-time psychologist. Edited but presented here:

This poor woman. Her job is supposed to be to help medication management for patients who need to be monitored by a psychiatrist but are managed well enough that they don’t need heavy supervision. That sounds like a nice way to phrase it.

Last week they gave me TWO HOURS of assessments. And as I told you, I was fairly confident the psychiatrist would say I was bipolar or had GAD issues and recommend an SSRI.

He did not. So kudos to him. (His name is Dr. REDACTED by the way, which makes me happy because my dad went by that name.) He asked for deeper assessments.

So today we started with a different bipolar assessment meant to see if I have manic episodes– to which I replied, “I don’t have that kind of energy. If I did, the first thing I would do is clean my house.” 

After that one, we moved to OCD. And I can see why he asked for that one. NINE pages. (In the end I was disappointed– it wasn’t nearly as in-depth and laborious as she made it sound. There is not nearly enough standardized testing in adulthood.)

I literally said, “Great. I love paperwork. My friend is DC invites me down so we can do our taxes together.”

And she read me the first page of the Yale-Brown Assessment. Which tried my patience. I read it twice waiting for her to finish. Did I ever tell you I hate to be read to? 

The test had two columns– one for current, one for past– and the directions said to circle anything that was upsetting or disrupting to life. Well, according to the textbook definition of obsession and compulsion, nothing I do fits those categories. I absolutely know, understand and can deal with the reality that my routines do not matter or change outcomes. They are self-soothing behaviors that prevent my frustration, anger, and help me feel like my environment is under control. And I told her so. I told her that I want to be sure when I come home at the end of the day, I return to a place that I don’t need to worry about, a place where I am safe and calm. 

And she asked if I performed behaviors to achieve a goal, and I told her everything I do connects to a goal. “I am sitting here right now reminding myself that when I finish here, I get to have a cup of coffee from Panera.” 

She asked me to track my mood and my sleep– and I told her I have done both, but I periodically stop tracking mood because all it does it confirm that I worry about everything all the time and that upset me. That I last stopped probably about six months ago. And that I track my sleep every day, examine my sleep tracker every morning, and record notes every day in my journal. She asked me to take a piece of paper and make columns for mood | sleep | energy | confidence and I replied, “So, you want a spreadsheet? I have spreadsheets for everything.”

Now, I don’t know if you realize how this is going to go down. I’m going to spend the next hour working on a blog entry, then I will probably spent two hours designing a spreadsheet on Google sheets so it can be shared, that will hold the most precise data on these topics she has every seen.

And now, I am wondering if the next assessment I have to take will be to see if I am on the Autism spectrum, because numbers and spreadsheets and ABC order bring me great joy. On a scale like, in the absence of good sex, the next best high would be organizing research/data/objects. 

Oh, and I now refer to this practitioner as “shrink-by-proxy.”

And I gotta say, I respect this doctor for not jumping to the obvious conclusion. And I am now firmly in the land of medical-professionals-who-must-rule-out-all-the-things-that-I-know-are-not-the-problem” which I like better than the medical professional who assumes he just knows the answer because he’s an educated white man of a certain age.

I was not entirely accurate in my depiction of how the next almost three hours of my life would go. I came home, wrote a different blog entry completely, put my laundry in the dryer, took allergy medicine, told my daughter several stories, read someone’s comments about one of my stories, visited social media, and finally– again almost three hours after I got home– started this blog entry.

Some other thoughts from the session:

  • I will not eat or return to the run-of-the-mill activities until I design this spreadsheet.
  • I will add my pain levels to the spreadsheet and probably additional info as well because I deem it important.
  • I told them my biological siblings/father have shown evidence of ADHD
  • I explained the difference between my obession/compulsion and their criteria:
    • I follow rules rigidly, but I also break them if I know my behavior will not effect the outcome
    • My rules and routines do keep people safe (food safety, emergency preparedness) but I do not participate in them to the extent that it impacts my ability to live.
    • Keeping people safe/ maintaining a predictable environment comes from childhood trauma
    • Pattens/numbers bring me joy
    • I do not “hoard” but I will save certain items for a special occasion to the extent that they will spoil or get lost or broken– because of a scarcity mindset from insecurity caused by childhood trauma
    • I do not filter what I say or worry about what I say to the extent that I will pick “true” over “polite.”
  • Everything I do, I get done because I bribe myself with a reward when I reach the goal.

Things that didn’t come up but I wish they did:

  • I would bet money that I react to red dyes. Ask me about my childhood and my experience with Jungle Juice at the local pizzeria.
  • I have safe foods and food cycles. Same with music.
  • I have issues with sensory input and occasionally have meltdowns from overstimulation.
  • Does the world realize I have fictional characters existing in my head, telling me their story as I live my life. This alone may show how many things happen in my brain at one time.
  • I am fiercely protective of my spots: my spot on the couch, my parking spot in front of the house, where I put my possessions, how my food is organized while stored.
  • I drink my iced coffee out of old pickle jars.
  • I eat certain foods off certain dishes and with certain utensils.

I am currently very hungry but too busy to eat. My daughter has so far fed me a stale macaron and a mini cheesecake/pumpkin/coffeecake cupcake. I have had about 50 ounces of coffee and 25 ounces of water and peed at least four times since I got home. This is the precise behavior that has led to my “urge incontinence.” I thought I was getting older and therefore peeing myself when I finally realized that instead I drink insane amounts of caffeine in tandem with ridiculous amounts of water.

Off to make the coolest spreadsheet I have ever made.

Do I need to put on clothes today?

Tonight I have a long-for-me shift at the fast food restaurant. 4 p.m. to 10 p.m.

Tomorrow I have a very busy day– gynecologist appointment at 7:30 a.m., helping Nan with her stuff around 9:15 a.m., teaching in the afternoon.

Thursday, we are recording our radio program at WDVR. Then, selling chicken from 4 p.m. to 9 p.m.

So, today I wanted to send out our acceptance letters for the Greater Lehigh Valley Writers Group The Write Stuff conference, March 11-13, 2027 at the Homewood Suites by Hilton in Center Valley, Pa. And I almost sent one so far. It’s ten minutes from noon.

Did I do things? Yes. Were they important? Yes.

Just not what I intended.

One of the items I have needed to do is grab a few groceries. I have been very careful with my diet lately (which has led to a new number today, one I haven’t seen in more than a year if not since the pandemic when I started rapidly gaining weight). And my daughter made me get dressed and go to Aldi.

Why Aldi? I wanted chicken salad and shelled endamame.

They didn’t have chicken salad and only had whole edamame. I didn’t want whole. I also wanted a salad and all their greens and pre-bagged salad mixes looked past their prime. So I came home with baby carrots (which I don’t eat, and I was hoping to make carrot pickles but I didn’t get the vinegar…), plain greek yogurt (because the flavors have too much sugar, but I probably won’t eat the plain), half and half (but I did not get coffee), crab cakes, and cheese. And bologna. Cheap cheap bologna because despite my primarily vegan tendencies I just really needed a bologna and cheese sandwich.

And two boxes of protein bars since I didn’t buy much food.

I did not want to get dressed. Until later.

Yesterday, I had my annual physical with my primary care physician. It was the first appointment of the day, and he spent 45 minutes with me. I had told myself that I did not intend to bring anything up. That I wanted to get in and out, continue my own experiments into diet, exercise and sleep, and ask for follow-up bloodwork.

He went through my late June bloodwork I did for him and the mid-August bloodwork I did for the life insurance company, with me, and requested I do another A1C and some vitamin D and some stored Ferritin… He was surprised to see– that as I told him– my “bad” cholesterol and my weight change very quickly according to what I eat. It’s how I gained almost 15 pounds this winter and lost it since July.

I still think I am among a rare amount of people who really pay attention to their bodies and try to understand and improve. He also asked how long I’ve been off my blood pressure meds– and I said– “about a year,” and then I reminded him that my cardiologist knows, or at least I told her I would probably stop taking them.

“Your blood pressure is great,” he said.

“The pills didn’t help,” I replied. I was prescribed the beta blocker because of my single incidence of afib. I stayed on it because I hoped it would help my anxiety– specifically the way my heart will sometimes race for hours for no reason. But the medicine never stopped that. If anything (and I have yet to prove this, my evidence so far is purely anecdotal, it’s food. I think the right blend of high sodium and refined white carbohydrates makes my heart want to explode.)

And my blood pressure has maintained itself in a healthy zone the entire time I have been unmedicated.

But then my doctor found out, I have been having stress dreams, disrupted sleep routines and general poor sleep since incorporating more “easy food” and less of my “outside aisles of the grocery store” home cooking. And now he’s worried about sleep apnea, my tendency to display symptoms of mild clinical depression, and my inability to relax (or have fun). He offered me a temporary antidepressant, and I declined.

And then today I remembered… I have been on the waitlist for a psychiatrist appointment for almost a year. During my routine physicals last fall I talked with my entire care team (primary care, cardiologist, mental health therapist, and neurologist) about the prospect of trying a low dose of valium as a breakthrough medication.

According to my research, doctors often give valium to children with cerebral palsy to calm spasticity and help them sleep. I asked my team about it. No one has experience with that sort of thing so they referred me to psych. So I reminded my doctor of this is an email. I told him that on bad days I often take 60 mg of baclofen– so could we try a small dose of valium in a small amount of pills to see if I took 2 mg of valium instead of all the baclofen if that would calm my muscles, alleviate my twitching hamstring, settle my heart, reduce my spasticity, and allow me to (1) stretch everything, (2) sleep better and therefore (3) recover better.

Remember– my leg muscles are unable to relax. I can’t even describe what it feels like. Sometimes it feels like my calves are so tight they burn. Sometimes my thighs feel like bricks. So if my doctor thinks I might benefit from a little something… this might be the something.

And on my one tangent for today: I have been binge-watching Nurse Jackie. I never liked Jackie, found her repulsive as a person but the older I get the more I recognize the accuracy of the depiction of people in addiction. And my daughter brought up something vital to consider:

Is Nurse Jackie an unreliable narrator?

My daughter votes yes, because there’s no way that an addict taking as much shit as she does (especially as a nurse) could appear to have her shit together as well as she does.

Interesting thought.

I have reached the midpoint in the series, and I’ve never watched this much before. And she has entered rehab and thrown her husband out of the house. And I’m thinking about it.

Meanwhile, my daughter has been tracing ADHD and autism in her family tree. My daughter– from a young age– has been super keyed in to people’s minds, patterns and habits. And just like she’s freakishly good at seeing every ripple in a dog’s body language, she’s damn accurate with her psychiatric diagnoses. And she’s finishing her bachelor’s in psych at Lafayette, she’s also developed some ideas about medication (so I asked her to do one of her recent psychopharmacology assignments on valium). She’s wondering if I might have ADHD.

My response is typically that it doesn’t matter.

I have a disability. One that stems from lack of oxygen at birth. One known to affect GABA in the body.

I score fairly high on the ACE scale for childhood trauma.

My parents were alcoholics.

Did I inherit generational trauma? Probably. Do I exhibit everything from OCD to depression to anxiety? Yes. Because my brain never learned how to feel safe and/or let its guard down. I never relax. The last time I felt truly relaxed was during some good adult physical activities that I don’t get nearly enough of. And do you know how much I need to trust my partner to let that happen?

My daughter believes something interesting about this whole ADHD hypothesis. She basically said I have not allowed myself to fail enough to recognize the truth it what she’s said. AND that because of that no clinician could ever diagnose me.

Strange food for thought.

Advocate: A Difficult Day on the Health Quest

Well, if yesterday made one thing apparent… it’s that sometimes answers lead to bigger questions.

And questions often shake our foundations.

I have had an appointment every day this week before work. In the last ten days or so, I have seen my therapist, my personal trainer, my chiropractor (who has a background in physical therapy) and my primary care doctor and one of his new residents.

Yesterday was the latter.

This recounts why I was seeing my doctor. Later in this post, some of this info may be pertinent.

My heart was genuinely excited for the visit as I’ve made a lot of positive health habit changes and my primary care physician and I have a great relationship. Normally my care is a discussion and we work together to resolve my issues.

Since Covid, the practice has seemed much less organized and attentive as usual. They also recently took on some family practice medical residents. I waited in the exam room for 75 minutes.

I went into my phone to record my blood pressure on iHealth. And that’s when I noticed— iHealth has been recording my double support time and my walk asymmetry for a year. (This morning I compared my walking and balance statistics with my teenager’s and her walk is more screwed up that mine! My walk is consistent and consistently “off” but hers gets severely skewed every time she gets plantar warts. Turns out my neighbor has more issues in this area than I do, too.)

So, at 12:15 pm — as I am lusting for a glass of water and breakfast, I had nothing yet but a gargle of purple listerine— the resident enters the room and apologizes for the tardiness. I told her I was about to order GrubHub out of fear they forgot me.

I told her everything about me (as she had never met me before) and relayed that the doctor wanted to see me. I also mentioned that muscle relaxers might be a better fit to ease my periodic pain than ibuprofen or acetaminophen because it might be more due to the stress on my joints and the tightness of my muscles as a side effect of the cerebral palsy.

Now, remember, my anemia started more than 12 years ago with work stress, gaining weight and heavy menstrual bleeding. And I came to my current doctor because my former one refused to look into the source of my anemia. And that doctor made me cry. And I had started having panic attacks.

Now I am back in a similar symptom situation but I have better mental health and a way better doctor.

The resident goes and gets my doctor. I propose waiting several months to see if the anemia improves with the mesures I am pursuing now. He is worried about polyps in my colon. We agreed I will use some stool cards for a home test.

I didn’t feel heard about my request to find solutions for my body pain because then we discussed my mental health.

And he wanted me to visit their new staff psychiatrist to rule out any issues (like bipolar 2) that might require a mood stabilizer.

Now I complete understand why his said this: I had mentioned some dramatic temper incidents previous to some of my recent lifestyle changes, I had asked to restart the prescription for a very low dose of lexapro that had been prescribed for high blood pressure to see if it would even out some premenstrual mood swings, and I had mentioned some highs and lows in the past.

But I also said the isolation of the pandemic gave me the space I needed to deal with some heavy duty stress, and that good things were developing for me and I felt like this was one of the great years in my life. I talked about having rid myself of anxiety and being able to look back at that former period of my life with understanding of myself and pride. And that my therapist and I were finally looking at my childhood trauma as I scored 6/7 on the ACE test.

And he knows I have been in therapy for more than a decade. And that my therapist recommended him. Shouldn’t he let my therapist request that type of referral?

So I felt betrayed and it reintroduced feelings of anxiety and insecurity, not being sure if my medical professional was really paying attention to me and what I was saying. I had just mentioned delving into childhood trauma for the first time in my life. I am having other health issues that I need to address. So now, in my opinion, is not the time for questioning my brain chemistry.

So we agreed to discuss my anemia and my psychological state with my gynecologist (whom I see Monday) and my therapist and revisit the issue when I return in three months to discuss the follow up blood work.

This left me shaken and wanting to scream, “Stay in your lane.” I went to the doctor because he asked me to come discuss my anemia— how did a shrink come into play?

I often think this is how people get misdiagnosed, not by bad doctors, but by doctors trying to rule everything out and in the process convincing patients they need different help that they actually need. Like when people see a commercial for medicine and later “ask your doctor if (this expensive drug) is right for you.”

I emailed my therapist from my phone as soon as I got into my car. By 3:30 pm, he said he disagreed with this assessment— that I should be screened by a psychiatrist— but that we would discuss. Honestly, he is the only person I would trust with a decision like that. We all need to build teams we can trust. And this is how I advocate for myself.

When I got home, around 2 p.m., I finally had my morning coffee and made this— what I would call my “summer vegan sandwich,” courtesy of my stress shopping last week and a Hungryroot delivery. (See the teenager unboxing here.) Lightlife bacon tempeh, Hungryroot lemon tahini, romaine, deli pickle on 12-grain bread.

I didn’t take proper care of the animals (loosing almost four hours of my day to a doctor’s appointment that normally takes one hour).

I QCed 123 fixes, which is far better than the 116 the night prior. When my favorite Stitch Fix supervisor said hello, she asked how I was, I said okay. She looked at me askance and said, “only okay?”

She told me if I needed anything or if there was anything she could do to let her know. But she can’t fix the emotions in my head. So I thanked her and went back to some of my standbys— showtunes!

I listened to the soundtrack of Avenue Q as we used to in the makeshift temporary newsroom of Lehigh Valley News Group, and I can still remember one of my favorite young editors with her big headphones on, fighting her stress and her insecurities with a dose of “What do you do with a B.A. in English/It sucks to be me.”

Apparently this is the whole musical on YouTube. Check it out.

And if you just want the song… Here you go.

Speaking of the newspaper days, I’ve reached out to some Chronicle colleagues for help with promoting the FURR Pop Up Cat Café August 15. The man who hired me for that newspaper (the boss of my best boss ever) mentioned that my daughter has grown up in the blink of an eye (which he has seen thanks to Facebook).

And that brought back great memories as I think the teenager was the only baby born to a staff member during the run of those newspapers. I realized I was pregnant while planning a political debate sponsored by the newspaper in Phillipsburg, N.J.

So yesterday was hard, and I managed to avoid slipping into those old panic-prone mentalities. I am drained today but luckily only have a four hour shift.