A day in the life— medical update, meal plans, sunshine, animals and publishing

I make a lot of lists.

Sometimes my journals are nothing but to do lists and shopping lists. But I like lists— even if I never refer to them again, the act of making a list allows me to stop thinking about things.

If I want to refer to it later, I know where to look, but I no longer have to worry about forgetting as if I want to remember or revisit items from an earlier day I can but I am not staring at a list focusing on what needs to be addressed versus what I actually did.

Many people make lists to receive the satisfaction of checking off the things that are done. I don’t do that. Sometimes I do, but now it’s more like I am acknowledging the list versus trying to conquer it.

I used to finish my list every day or stress over the things I didn’t get to, and on top of that— the list never made me feel better or more in control.

It just exhausted me.

Trapped and the Cover for the Anthology Arrive

Parisian Phoenix’s first contemporary romance has arrived and it looks great. Read more about that here.

But I also received the cover for Not An Able-Bodied White Man with Money, which I will be blogging about on the Parisian Phoenix site this weekend.

And I have a 4 p.m. meeting today with another author who I have been hoping would join our family.

Now if only I could finalize some of our business documents to really move the projects forward.

Yesterday (Voluntary Time Off) and evaluating my health

Life at Stitch Fix’s Bizzy Hizzy has been odd lately. We’re shipping something like 8,000 fixes a day and having the opportunity for voluntary time off.

Last week, I performed at pretty damn close to 100% without pain or significant mobility issues. This week, issues started mildly during my Sunday shift and deteriorated Monday & Tuesday, leaving me at 80% and crying myself to sleep. I talked about this here.

I’m very much wondering if my menstrual cycle has something to do with it, as the Mirena IUD has done miracles for my pain and issues in that department but has made my cycle irregular. I think my body is trying to menstruate later than usual.

I was taking inventory of my recent balance, mobility and functioning issues as today I had my annual “wellness visit” that the office rescheduled from last week.

I took VTO yesterday to allow myself some rest and some time as life (and grief from my father’s death two months ago) has gotten chaotic and overwhelming.

And I made the teenager and I grilled cheese as I had promised to do, and the child acted like I had prepared filet mignon for her.

I have a feeling I will be repeating that after school today.

We also watched Miranda Sings Live on Netflix. The teenager went through a time when she watched the show, so that was weird. It always amazes me how much talent it takes to perform badly.

The doctor today

I have spent more than a decade assembling a talented and caring medical team, so now I can confidently say any issues with my medical treatment stem from the system and not from my doctors.

The doctor and his resident agreed with my assessment that it’s time for me to get into the physiatrist and that their office will advocate for me on that as well, and that my instincts and approaches are correct.

I learned that women more so than men tend to favor one side when they move or stand. As women age, this tendency can create problems. That means this is a problem normal people have and not just a result of cerebral palsy.

And most interestingly… I learned that women more so than men tend to favor one side when they move or stand. As women age, this tendency to let’s say ‘lean’ can create problems, just like what I am experiencing now with my right hip and right leg/foot. That means this is a problem normal people have and not just a result of cerebral palsy.

I reiterated to them that I do know I need to lose 20 pounds, but that we have some issues to address before that.

The psychology of emotional and physical pain

When I was turning 40, I embarked on a journey to lose five pounds and gain muscle. I inadvertently lost 30 lbs and ended up a skeleton and regained some weight to look like this:

That was about 30 pounds ago. I have no need to be that lean again, but I’d really like to see 135 lbs again— which means I need to lose 20 lbs.

I told my doctor and his resident— I know I can’t eat an entire bag of cheese puffs or Wawa bowl of mac and cheese and brisket after dinner. But I’m struggling with depression from my body pain and my father’s unexpected death.

I’m grateful I haven’t turned to alcohol like many in my family, but I have “given in” to food as a psychological crutch.

I pay almost $300 a month for a personal trainer, but I can’t work as hard as I want to because I hurt and I feel like I need answers as to how to move my body so it doesn’t hurt. Because if I could exercise more and move more, I wouldn’t sabotage myself by eating garbage (or if I did, I would be active enough to balance it).

But right now, when I come home from a ten-hour shift with my body twisted and aching badly, and wishing I could call my dad so he could make me laugh and tell me how much it sucks to get old, I grab junk food because it’s the last pleasure I have.

I can’t move without pain so if I’m going to be forced to get fat and lazy I might as well enjoy the process.

These are ugly thoughts and I know that, but I’m being honest.

The fun stuff: errands with Nan

After leaving my primary care doctor, I called Nan as we were scheduled to do some errands together. We stopped at Wawa for some hot caffeinated beverages (cafe con leche for me and vanilla chai for Nan).

Among other stops we visited Park Avenue Market and Deli, one of our favorite haunts known for its deli, salads and meats.

Although I am once again contemplating more of a vegan diet, which will make the teenaged carnivore wince, I am not ready to commit until I feel better. We must achieve discipline before we enact change.

I never got around to meal planning yesterday so I didn’t have a list. I ended up spending $36.89 and I think the results will work.

I purchased: two packs of beef jerky, one small box of minute rice for the teen, three or four teeny tiny bags of Wise snacks from popcorn to potato chips, meatballs, the biggest damn carrot I’ve ever seen, frozen vegetable medley with potatoes and garlic herb sauce, sweet potato crinkle cut fries, pork roll, Lebanon bologna, liverwurst, turkey, olive salad, a store-baked pig ear for the dog and something called “hot pepper shooters”— round hot peppers stuffed with prosciutto and provolone.

Rough meal plan

My rough meal plan for the next week or so is:

  • Sandwiches
  • Meatballs and green peppers, either as a sandwich or in pasta
  • vegetable lasagna still in the freezer from last week
  • Burgers and fries, using ground beef from the freezer and the sweet potato fries
  • Cold tortellini salad with roasted carrot, olive salad and seasoned broccoli (broccoli is in the freezer)
  • Pork roll and egg sandwiches
  • Chicken and the frozen vegetables and rice or other grain

PS— we also welcomed a new foster into the house. Her name is Babs. Meet her in this video. I need to make her a page.

Disability is a mind game

I often hear people comment about my positive attitude and my ability not to be deterred or disheartened by challenges.

But to an extent, people with a congenital disability don’t have a choice.

In my experience, people with congenital physical disabilities who have the capacity to live independently in the world learn early in life that persistent complaining doesn’t change anything, that there are limits to what can be fixed, and that the only way to succeed in an ableist world is to prove that we can contribute and that we are worthy of space.

To do that, to push those messages and to push those behaviors into the world despite whatever pain or physical challenges face us, requires a lot of strength and energy.

So mood and attitude mean everything. Because if my psychological state fades into grouchy or sad or frustrated, my energy drops. My concentration dissipates. And it’s on the subconscious level.

And it takes more energy for a disabled person to navigate the world.

Really.

It does.

For instance, my blind friend Nancy doesn’t necessarily move from point A to point B in a straight line. Often, she is having a tactile interaction with her environment that requires extra steps and physical behaviors whether that be using her white cane, trailing a wall, or following the body movements of a sighted guide. Hell, if she’s with a sighted guide she can’t even determine her own walking speed. She has to match her companion.

But this also applies to me and my cerebral palsy. Because of lower limb spasticity, my leg muscles don’t relax. I have to concentrate on my body, my posture and my movements with every step. This is exhausting.

A 2010 study by Bell and Davies concluded, “that children with mild CP had a lower physical activity level and lower energy requirements than typically developing children. However, during walking the children with CP expended significantly more energy.”

And I honestly believe I that when my “good attitude” shifts into a darker place, I don’t have the energy for that level of focus and my body revolts.

I might be wrong.

Vulnerability in the workplace and its role in building teams

Grammar police— this piece is full of tense shifts. I’m tired. Deal with it.

We’ve all had that corny job that encourages team building exercises and how uncomfortable that can be when they are telling you to trust someone that frankly you don’t trust.

It’s hard to be vulnerable with new people and new environments and this can lead to us seeming aloof or feeling alienated or shunned by the group.

Yesterday I had a painful day at work, and I’m still struggling emotionally with my father’s death, and compounding all of that is the fact that my sleep has not been that restful.

So imagine me… as the alarm goes off at 4:45 a.m., struggling to stretch out my stiff, spastic lower body and my aching spine. I went to the other side of my room to check on the cats’ food and had to use the vacuum cleaner as a cane.

I stumbled to the shower and afterwards managed to get my bra, shirt and panties on but saved the socks and pants for after coffee.

I prepare my coffee directly into my to-go mug, a FURR fundraiser item that keeps my coffee warm until my first break almost four hours later and lukewarm until lunch.

I email my neurologist asking for help getting a physiatrist appointment. I still wonder if I should be going to work at all. I tell myself if I really can’t function, I’ll call the chiropractor at 9 a.m. and see if I can get an appointment.

I decide it’s time to put on my pants.

But then my pants don’t button.

And I’m not talking about “these are snug,” these are all out as if I were trying to wear a child’s pants. Too much Taco Bell last night.

The teenager did a white wash so there is a pair of sweatpants in the kitchen. I put them on and wrestled with my socks.

I go to get my shoes. The teenager has piled the garbage on top of them. I find other shoes.

I then needed to decide between the pizza I can’t even remember when I ordered it and the pancakes from Friday for lunch.

I grabbed both.

Once at work, they have me assigned to line 5, table 8a. Now, they have the tables on line 5 labeled incorrectly. Somehow, they go 0, 1a, 2a, 3a, 5a, 8a, 4a, 6a, 7a. Someone is already working on the ninth table, which is labeled seven. So just to be clear, I ask my supervisor.

“I am to go to the sixth table, which would if you were going by the labels at the previous lines would be table five, because the actual labels are out of order?”

He looked up. “Oh, yeah. They are.”

But then someone is also at the sixth table which is labeled 8a. The lead on the line does the research and this interloper belongs on an entirely different line, but somehow ends up a few stations ahead of me.

I have to organize the station because it was set up for Freestyle not QC.

And then I see the person on line 4b, across the aisle from me, get an entire rack of refixes. That’s about three hours worth of work.

I went back to the lead who I approached about my interloper. I explained I had a disability and I was having a bad physical and emotional day and, let me paraphrase, I said I wanted refixes, too.

I got them.

The day shift support people and my normally favorite support person brought me refixes all day.

And I learned more about my favorite support person’s family history. And we discussed philosophy and gave each other a pep talk. And the day shift support person was also super supportive.

And it made me feel physically and emotionally better to share the weight of my burdens. I made 98%. Which is amazing — and I haven’t seen numbers that high since October.

My lead was pleased.

And I felt lighter.

Processing childhood trauma

Trigger warning— I’m not sure exactly where this post will go but it will discuss sexual misconduct between an adult and a child and it will touch on alcoholism.

I know some people in my family may be uncomfortable with what I am about to write — because what happens in our private lives should remain private. And I agree with that, and I prefer not to air private matters in a public forum. As a writer, I want my public space to reflect a more professional persona.

But I also know I “check a lot of boxes” for struggles and realities that may not be apparent and that other people share. And together we have strength. Commonality.

So here goes.

But please, as I’ve said in other posts that mention times in the past that include other people and the actions of other people, remember that this is my story, my experience and my feelings.

Whatever I write in this space, because I’m not even sure where it will go, I am merely trying to offer a glimpse into my grief and how that is triggering— and I hate that word ‘triggering’ — my past trauma.

And especially when people are trying to do nice things for you, it feels extra garbage-y to have your mind implode.

Gene Kelly prompted me to write this blog entry. Spotify provided me with a jazz mix that included “Singing in the Rain.” And “Singing in the Rain” left me analyzing the issues that have plagued me since childhood that overcame me this weekend.

“Singing in the Rain.” You know… “Singing in the Rain.”

I learned to whistle in the bar. There was a man, I’m not sure who it was, who used to try and get me to whistle “Singing in the Rain.” I’m not sure which bar, maybe The Red Geranium, which is also where my mom served as the afternoon bartender for a while and where the owner’s grandson almost drowned me one summer day.

I don’t even remember who taught me to whistle.

I went to the bar with my mother because my father usually stopped at a bar after work. And he often didn’t come home until he spent all his money or the bar closed. So, my mom and I would go looking for him.

Each bar had a highlight. One of my school friends hung out at Delaware House waiting for her mom. But Delaware House burned down in 1986— I think my Dad might have been there that night— and all I remember is purple-hued lighting and one time someone vomited on the sidewalk right outside the door while I was standing there.

In my memory, the fire took out my grandfather’s favorite clothing store (not true according to newspaper records)— Effross’s— though thinking harder I don’t known if that recollection is correct. Apparently, Mr. Effross died in November. My grandfather bought all his Levi’s from Mr. Effross.

My grandfather chewed Jucyfruit, enjoyed the occasional trip to Kmart, smoked Parliaments and listened to Jim Reeves. He would hand me an empty coffee can and tell me he’d pay me a penny for every cigarette butt I could find in our yard.

At one point, I spent all the time I could with him. My parents said we had moved to Pennsylvania to be closer to him and my grandmother, moving into the trailer right besides my grandparents in the trailer park.

My mother befriended an elderly man named James Wicks who lived in a trailer on the other side of us. He had no family, so my mother cared for him until his death. And we inherited his tan Chevy Citation.

On some days, while my mom went to see Wicky, I would go see my Aunt Sharon and my grandpa. I spent a lot of time with them as they served as my babysitter when my mom and dad would go for motorcycle rides or when my parents planned to go drinking.

They had cable. We did not. So if I was lucky, I might get to watch The Addams Family. My grandfather liked Highway to Heaven and Knight Rider.

At one point, my uncle had moved to another state. I seem to think I was 10, because I tend to think everything bad that happened to me happened around that time. My aunt had gone to stay with them. She and my grandpa had plans to move up there.

If I can trust my memory, I was wearing a pastel striped romper, with shorts. [Trigger warning] He asked me to come sit on his lap, so I did. He started rubbing my inner thighs. I remember his hands, and I remember how close they were getting to my romper.

There were a few other times where he touched me inappropriately in similar fashion, so I stopped sitting in his lap.

And eventually I avoided going to his house when no one else was home.

I told no one.

But then, a while later, and I don’t know if Aunt Sharon was home or not, I think she was… We ordered a pizza. My grandfather asked if I wanted to go with him to pick it up. I said yes, probably because I wanted a “jungle juice” and to play the Pac Man arcade game.

The pizza place was probably less than two miles away.

But he didn’t go to the pizza place.

He turned down a side road. And then to a dirt road. The night was dark. We had no street lights. I knew where we were, but I also knew it was the middle of nowhere.

He patted the seat beside him. It was a big old vinyl bench seat. He told me to come over and kiss him. So, as a granddaughter would, I kissed his cheek.

He told me no. That’s not how you kiss. And then his tongue was in my mouth. Deep in my mouth. Invading my mouth.

I was terrified.

I don’t remember what I did to get away. But we did go get the pizza.

I didn’t tell my mom until high school. I just avoided my grandfather. But my mom was going to ask him to drive me home from play rehearsal. And I knew I couldn’t be alone with him.

I didn’t tell my dad until I was in college. My grandfather and I had a tumultuous relationship because I called him a “selfish old bastard.” Yeah, no one knew the real reason why I said that. But my grandfather never spoke to me again.

And that hurt my dad.

One day he got drunk and asked me point blank, “what did you grandfather ever do to you, molest you or something?”

“Yeah, Dad,” I said. “Actually he did.”

And I will remember the shock on his face forever.

My father’s recent death has forced me to spend more time in memories like these than I usually allow.

I tell this story because I know others have similar stories. I tell this story because in the wake of my father’s death, I think of my grandfather more. I tell this story because yesterday morning I wept while driving to work at 5:45 a.m. because I use a country road that, in that moment, reminded me of that country road.

These stories are invisible. People don’t tell these stories. Skeletons belong in closets.

But I’m tired of these stories haunting me, circling my own head, so I’m going to leave this here.

I spent a good deal of my youth afraid of what my grandfather might do. To me.

My first kiss came from my grandfather. I didn’t even know the difference between boys and girls.

I still freak out if I have to kiss a man.

I’m grateful I had the wisdom to avoid my grandfather.

My grandfather is dead.

My father is dead. His brother is dead.

Aunt Sharon is still with us, but she has an intellectual disability that renders her an eternal child.

So this story can’t hurt any of them.

But maybe it can free me.

Because those memories still ignite fear in me.

Day 3 of 10-hour day shift in the warehouse: Podcast reviews

(And a foster cat and teenager update)

This new work week is certainly moving quickly although each day I come home more exhausted. I’m hurting more once I get home, but I’m fine for the first 9+ hours of my shift. If you don’t know what I’m talking about read these:

Yesterday

Sunday

The teenager kept my car as the last two of our fosters who needed to be spayed went to Canyon River Run today. That would be Mama Danu and her tabby kitten Baile from the Celtic Pride.

She hoped to bake cookies for the platters Feline Urban Rescue and Rehab plans to distribute to the many vets who assist the organization. Her eighth grade boyfriend came over to lend a helping hand so she also taught him to make bread.

Meanwhile I just kept dreaming of an iced cold Coke Zero. And an interesting thing happened — I got to work and there was a 4-pack of 20-ounce Coke Zero bottles with a post-it note declaring them free.

I brought them home. My guess is someone didn’t realize Coke Zero had been relabeled in the same red as classic Coke.

Which my metrics tanked by the end of the day which had me chugging this at 3 p.m. break.

My 4 p.m., I was trembling and about to cry. Do. Not. Repeat.

I treated the teenager to dinner at Tic Toc so she could get her last pay check. We both ate too much.

I did my physical therapy exercises and took a hot shower. By the end of the shower my right leg was very uncomfortable so I took a low dose muscle relaxer and covered my leg, knee and back with CBD Medic’s Arthritis Cream.

One more day.

So now, as promised, let me offer some thoughts on podcasts. The teenager and I compared notes on our Spotify end-of-year wrap up and she thought she was impressive with 17,000 minutes since we started using the service in mid-year. I have 88,000+.

MY FAVORITE PODCASTS I LISTENED TO SO FAR THIS WEEK:

  • This one surprises me. The Ellen Fisher Podcast. She’s a very interesting person with her journey to raise her own food in Hawaii with her brood of plant-based kids and interest in all things calm and positive. I don’t really don’t know how I feel about her podcast — but I recently listened to her episode on Mind Change. It was an interesting discussion of neuroscience facts blended with alternative healing techniques to deal with personal trauma to heal the body of disease and mental illness. The guests on the show discuss their experience that illness, whether physical or mental, is the body manifesting trauma that the person has refused to acknowledge and heal.
  • The Daily. I often force myself to listen to the Daily even when the topics don’t interest me. This week I found myself pleasantly surprised by their coverage of Stephen Sondheim’s death.
  • Snacks Daily. Snacks Daily is a brief podcast from Robin Hood, yes the investment folks. It’s an economic summary of course, but it also provides humor and the business side of the news.
  • I finished Sh**hole Countries by Radiotopia. The American host on that show grapples with the possibility that her Ghanaian parents want her to move to Ghana. Enjoyable but also not what I expected. The host uses much of her platform to talk about her queerness and human rights.
  • The Shit No One Tells You About Writing. Very useful and broad tips about writing, critiquing and publishing.
  • Africa Daily just did a good episode on fistula. I found that a surprising topic. I’m impressed. (Though they did not mention the prevalence of female genital cutting and its impact on the rate of fistula.)

Other notables: Power Hugh Hefner, American Scandal The Lewinsky Affair, Operator, Against the Odds Rock Climbers Abducted.

And here is a video of Nala the Goffins Cockatoo: Nala harassing foster cat tripod Louise

Good night all.

A glimpse into the addict brain

Today I had a great session at the gym, working with Dan at Apex Training. Dan wanted to isolate my right leg and try to alleviate some of the stiffness and difficulty I have had recently.

I felt amazing while working out with Dan, but as soon as I left the gym for my walk home, my troubles returned.

When I arrived at work, my supervisor stopped by. I told her it remained to be seen how the night would go. So I after the first two hours, I was a little behind. By meal, I was at 61– I should have been at 65. That’s not horrible but my numbers were in decline.

So I mentioned it to a lead.

And started the second half of the night with a refix cart.

This allowed me to pack my boxes with less twisting, and I was optimistic. I had gone into the lavatory and covered my back and leg with the CBD cream.

When I was working with the refix cart, my times improved, but the QC support staff starting bringing me regular carts. A lead had told me where to find more refixes, but what is the point of trying to improve my time and then having to load my own cart?

So I did the regular carts.

The pain returned 10 times over as the wonderful Charlotte’s Web Cream wore off. It seems to last about two hours.

After what I experienced tonight, I feel like I had a glimpse inside an addict’s mind.

When the cream lost its potency, the pain was insane and left me crying at my station. I wanted it to stop. I imagined reapplying the cream to relieve my pain.

Is that what it’s like to need a fix?

I didn’t mean to take this photo, but it’s pretty.

Stitch Fix Bizzy Hizzy at midnight

When I got home, I showered and applied CBD Medic Arthritis and poured myself a cocktail. That stuff is way stronger than the other cream.

Update later.

Opinion: Representation of Aspergers in Season Two of Chicago Med

When Grey’s Anatomy first came out, I gave it a chance— but the amount of gratuitous sex made it realize very quickly it was a medical soap opera. I’ve watched a couple seasons, but the characters always seemed immature and the medical side of the show seemed superfluous to the plot.

I loved ER, but only made it through season 11 or 12. This was before the Netflix days. But still my favorite medical drama was House MD because of the quirky central character and the difficulties the rest of the ensemble cast had dealing with him.

One of these days I should make a list of the medical dramas I have watched over the years and revisit some of them to share what I like about them.

But my current show of choice is Chicago Med, but I am losing patience with it as I fear the writers are “jumping the shark” more with every season.

The first season did a great job of establishing a wide range of characters from a wide variety of backgrounds.

And in season two, the writers introduced a new heart surgeon— a Black and (Orthodox) Jewish gentleman by the name of Dr. Latham.

As soon as the regular cast began to interact with him, I suspected he had Aspergers. He portrayed a certain type of rationality and difficulty with emotions and reading others. His approach to surgery was very routine based.

I liked the character— a lot. And he discovered his Aspergers with the help of the psychiatric staff at the hospital (which as a doctor I think he would have realized it before) but to see him digest this news was very rewarding.

But then he wanted treatments. And that upset me. Aspergers made him a great surgeon and a unique character. But because he lacked empathy with distraught patients and the nurses said he “creeped out” families, he wanted to, pardon my use of the expression, see how the other half lives.

And the treatments started to work. And I hated it. I hated the notion that a doctor was perpetuating the idea that people who are non-mainstream need to be fixed.

Fuck that.

I’m not going to say anything more, because spoilers, but let’s just say by season 3 Dr. Latham’s Aspergers was forgotten and he contributes a valuable perspective to the show. And PS— in a mass casualty event, he rocks it with triage.

The show in Season 3 had a compelling storyline with Dr. Reese’s estranged father, which started as a really good dip into psychiatric issues, but then went over the top in not one but at least two ways. I hated the outcome.

And now in Season 4, I am seeing two storyline develop that feel more crime drama than medical and that’s not what I signed up to watch.

So now it’s a question of do I finish the show or abandon it?

Why I canceled Silk & Sonder despite amazing customer service and a quality product

I subscribed to Silk & Sonder in May, a birthday present to myself.

Read about my previous experiences and thoughts here: Silk & Sonder blog posts

Silk & Sonder unboxings:

August

May

After working out some delivery issues with customer service, I loved this product. But as lives go, mine got busy and I started using my journaling time as workout time and have been unable to find a time where I am rested enough and still enough to benefit from these activities.

Each month more and more of the planner remains blank because I can’t keep up— and that stresses me out.

I think I can incorporate some of the items I really like— monthly mood and habit trackers— into my current journaling practice.

But I would love if Silk & Sonder developed an annual planner that would allow exploration of this topics without feeling like I’m starting the over every month.

And as my life gets busier, making sure my paper planner and my phone calendar match has been exceedingly difficult.

Some cats, some ramen, learning the “mailer machine” and more about childhood trauma and imposter syndrome

First, the cat picture of the day.

Misty and Oz, two of our cats

Next, let’s briefly do a Purple Carrot Update. Today I prepped the matcha overnight oats and made the ramen bowl. (Video of matcha prep here.)

The teenager vetoed the homemade miso broth and fresh ramen.

I had the leftover black pepper tofu for dinner and it was soooooooo good, even leftover.

And most Purple Carrot meals take 30 minutes to prepare, which in my kitchen has been translating to 40 minutes. Much better than the cooking marathon caused when a Hello Fresh box comes.

But now to the Bizzy Hizzy. I finally learned the “mailer machine.” It’s a folding machine. We used it to fold the postal service priority mailers that go in each fix.

We had trouble getting the machine to work— so we didn’t really get started until after first break. We folded 4401 mailers.

Basically we unpack the mailers, sort them so they are less likely to jam the machine, and feed/empty the machine. There is a zen to lining up the mailers on the rolling machine, fanning them and making sure they don’t curl.

I was sent to the mailer machine as part of Stitch Fix’s quest to know what tasks I perform best. I perform regularly at 96% in QC but unfortunately when I have bad day that plummets to 85-90%. They raised the pick goal so I only do 75% of that. Apparently I have shown both potential and inconsistency in inbound processing and returns. I apparently tanked in style carding (66%) which I would like to believe was a fluke but maybe not. And a shocking 29% in NAP binning. It was shoes. And it was very painful.

I’m told they want everyone to have two work centers they can perform 100%.

So now I’m at the mailer machine.

If I’m honest with you, and it is very hard for me to say this in public, what I hear is: “You’re not good enough for us, so since you suck at everything, let’s stick you on this machine back in the corner.”

I feel threatened. And like a failure.

And that is not what they said. At all.

But I have a disability that makes me insecure and makes me feel inferior, unworthy. And certain childhood traumas leave me feeling unwanted, and as if I am a burden to everyone.

So I am being honest. For one reason. In case someone else is fighting a similar battle and needs to know he/she/they are not alone.

Summer Reading Review: Karamo, My Story of Embracing Purpose, Healing & Hope

My daughter and I used to binge-watch the reboot of Queer Eye on Netflix— she loved the home makeovers, Bobby’s energy and style; we both loved Antoni and the food. Tan was adorable. And Jonathon is just a lovable force. And then there was Karamo, orchestrating something not quite identifiable as “culture expert.”

When his memoir, Karamo: My Story of Embracing Purpose, Healing & Hope came out (pun?) in 2019, Karamo Brown visited Lafayette College. The teenager’s father had him autograph a book for her and we excitedly attended a public lecture he gave on campus that night.

Almost two full years later, I finally finished the book.

I have recently resumed reading in general so the fault does not lie with Karamo.

The book is light, simple in phrase, and mimics Karamo’s speech.

It’s a coming of age story. It’s the experience of a Black gay man, son of immigrant parents, struggling to find himself, share his voice and help people.

He has handled so many situations others know well— issues of addiction, relationships, family, sex, parenting. He spent so long yearning to reach out into the world that he nearly self-destructed in the process.

He’s very respectful of other people, only talking about himself— not violating the privacy of his kids, his extended family or fiancé. He doesn’t share glorifying tales of his wild boy days, focusing instead of why he was behaving that way and what he learned.

He structures the chapters not chronologically but thematically which makes it easy to understand the building blocks of who he is and how he came to be.

And even before George Floyd and #BlackLivesMatter, he begged us as a society to listen to each other and be kind.