A day in the life— medical update, meal plans, sunshine, animals and publishing

I make a lot of lists.

Sometimes my journals are nothing but to do lists and shopping lists. But I like lists— even if I never refer to them again, the act of making a list allows me to stop thinking about things.

If I want to refer to it later, I know where to look, but I no longer have to worry about forgetting as if I want to remember or revisit items from an earlier day I can but I am not staring at a list focusing on what needs to be addressed versus what I actually did.

Many people make lists to receive the satisfaction of checking off the things that are done. I don’t do that. Sometimes I do, but now it’s more like I am acknowledging the list versus trying to conquer it.

I used to finish my list every day or stress over the things I didn’t get to, and on top of that— the list never made me feel better or more in control.

It just exhausted me.

Trapped and the Cover for the Anthology Arrive

Parisian Phoenix’s first contemporary romance has arrived and it looks great. Read more about that here.

But I also received the cover for Not An Able-Bodied White Man with Money, which I will be blogging about on the Parisian Phoenix site this weekend.

And I have a 4 p.m. meeting today with another author who I have been hoping would join our family.

Now if only I could finalize some of our business documents to really move the projects forward.

Yesterday (Voluntary Time Off) and evaluating my health

Life at Stitch Fix’s Bizzy Hizzy has been odd lately. We’re shipping something like 8,000 fixes a day and having the opportunity for voluntary time off.

Last week, I performed at pretty damn close to 100% without pain or significant mobility issues. This week, issues started mildly during my Sunday shift and deteriorated Monday & Tuesday, leaving me at 80% and crying myself to sleep. I talked about this here.

I’m very much wondering if my menstrual cycle has something to do with it, as the Mirena IUD has done miracles for my pain and issues in that department but has made my cycle irregular. I think my body is trying to menstruate later than usual.

I was taking inventory of my recent balance, mobility and functioning issues as today I had my annual “wellness visit” that the office rescheduled from last week.

I took VTO yesterday to allow myself some rest and some time as life (and grief from my father’s death two months ago) has gotten chaotic and overwhelming.

And I made the teenager and I grilled cheese as I had promised to do, and the child acted like I had prepared filet mignon for her.

I have a feeling I will be repeating that after school today.

We also watched Miranda Sings Live on Netflix. The teenager went through a time when she watched the show, so that was weird. It always amazes me how much talent it takes to perform badly.

The doctor today

I have spent more than a decade assembling a talented and caring medical team, so now I can confidently say any issues with my medical treatment stem from the system and not from my doctors.

The doctor and his resident agreed with my assessment that it’s time for me to get into the physiatrist and that their office will advocate for me on that as well, and that my instincts and approaches are correct.

I learned that women more so than men tend to favor one side when they move or stand. As women age, this tendency can create problems. That means this is a problem normal people have and not just a result of cerebral palsy.

And most interestingly… I learned that women more so than men tend to favor one side when they move or stand. As women age, this tendency to let’s say ‘lean’ can create problems, just like what I am experiencing now with my right hip and right leg/foot. That means this is a problem normal people have and not just a result of cerebral palsy.

I reiterated to them that I do know I need to lose 20 pounds, but that we have some issues to address before that.

The psychology of emotional and physical pain

When I was turning 40, I embarked on a journey to lose five pounds and gain muscle. I inadvertently lost 30 lbs and ended up a skeleton and regained some weight to look like this:

That was about 30 pounds ago. I have no need to be that lean again, but I’d really like to see 135 lbs again— which means I need to lose 20 lbs.

I told my doctor and his resident— I know I can’t eat an entire bag of cheese puffs or Wawa bowl of mac and cheese and brisket after dinner. But I’m struggling with depression from my body pain and my father’s unexpected death.

I’m grateful I haven’t turned to alcohol like many in my family, but I have “given in” to food as a psychological crutch.

I pay almost $300 a month for a personal trainer, but I can’t work as hard as I want to because I hurt and I feel like I need answers as to how to move my body so it doesn’t hurt. Because if I could exercise more and move more, I wouldn’t sabotage myself by eating garbage (or if I did, I would be active enough to balance it).

But right now, when I come home from a ten-hour shift with my body twisted and aching badly, and wishing I could call my dad so he could make me laugh and tell me how much it sucks to get old, I grab junk food because it’s the last pleasure I have.

I can’t move without pain so if I’m going to be forced to get fat and lazy I might as well enjoy the process.

These are ugly thoughts and I know that, but I’m being honest.

The fun stuff: errands with Nan

After leaving my primary care doctor, I called Nan as we were scheduled to do some errands together. We stopped at Wawa for some hot caffeinated beverages (cafe con leche for me and vanilla chai for Nan).

Among other stops we visited Park Avenue Market and Deli, one of our favorite haunts known for its deli, salads and meats.

Although I am once again contemplating more of a vegan diet, which will make the teenaged carnivore wince, I am not ready to commit until I feel better. We must achieve discipline before we enact change.

I never got around to meal planning yesterday so I didn’t have a list. I ended up spending $36.89 and I think the results will work.

I purchased: two packs of beef jerky, one small box of minute rice for the teen, three or four teeny tiny bags of Wise snacks from popcorn to potato chips, meatballs, the biggest damn carrot I’ve ever seen, frozen vegetable medley with potatoes and garlic herb sauce, sweet potato crinkle cut fries, pork roll, Lebanon bologna, liverwurst, turkey, olive salad, a store-baked pig ear for the dog and something called “hot pepper shooters”— round hot peppers stuffed with prosciutto and provolone.

Rough meal plan

My rough meal plan for the next week or so is:

  • Sandwiches
  • Meatballs and green peppers, either as a sandwich or in pasta
  • vegetable lasagna still in the freezer from last week
  • Burgers and fries, using ground beef from the freezer and the sweet potato fries
  • Cold tortellini salad with roasted carrot, olive salad and seasoned broccoli (broccoli is in the freezer)
  • Pork roll and egg sandwiches
  • Chicken and the frozen vegetables and rice or other grain

PS— we also welcomed a new foster into the house. Her name is Babs. Meet her in this video. I need to make her a page.

The Grateful Friday

Yesterday I cleaned a lot of my downstairs and had a relatively good work out at Apex. I haven’t felt incredibly strong lately, but my IUD must be working because I’m not in pain.

I had a good week at work, so cleaning, working on Parisian Phoenix projects and watching Cobra Kai suited me just fine yesterday.

I even found two of the dog’s Kong balls under the couch which made for a very happy dog.

Today, I was supposed to have my annual physical but my doctor’s office called yesterday and rescheduled for next week— which also means another week without answers from my CT scan and physiatrist referral. Neither the neurologist nor the physiatrist’s office has called me back.

And I need a doctor that can help me understand the motion and mechanics of my body, and not just its individual parts.

Today I scrubbed the exterior of the stove and did dishes. Then I went to help my blind friend Nan with some errands and grocery shopping.

We made plans to pick up some pizza at Little Caesars so Nan could try the Batman Calzony. No matter how I tried I couldn’t explain what it was to the blind lady. So we bought one.

But we had time to kill before the teenager got out of school even after we put groceries away. We grabbed the dog and got drinks and hash browns (for the dog) at Dunkin.

And then we surprised the teenager with the dog at school.

Then Joan stopper by to drop off some hand-me-down magazines and erotica, cupcakes and photos that Joan needed us to sort.

Now, I’m cuddling with Louise, watching Gotham Garage and enjoying kitten photos.

Little wins

It’s Wednesday night— which is my Friday! The Bizzy Hizzy has been a tizzy of Covid cases during this mandatory overtime week.

I’m doing my eight hours of overtime on Saturday.

Tomorrow I’m returning to the gym—the pandemic has also altered my training schedule.

And tomorrow, Georgie gets adopted! Yes, Georgie, our lovable former community cat from downtown Allentown, will be going home to a family where she will be the only pet.

I’m told Louise has an approved adoption application— but this is her third so I am not as optimistic as I should be. The person who applied for her wants two cats so FURR has suggested Khloe also be considered.

If these three cats get adopted— after Danu, Brigid and Aîné all getting adopted since December— I may weep tears of joy.

This week my body experienced all sorts of aches and pains, but I still managed to fold what I felt was a respectable amount of clothes for Stitch Fix. And today was our monthly employee luncheon— chicken Caesar wraps, tomato soup and carrot cake.

And on our final break of the day, everyone from my old shift got sweatshirts.

It’s kinda silly, but at the same token, it commemorates a special era of my life and celebrates the camaraderie we had on second shift. And believe it or not, even though we are scattered among the day shift, we still function as a team.

After work, the teenager invited me to Tic Toc family restaurant where we enjoyed grilled cheese sandwiches.

Ingram finally shipped Darrell Parry’s poetry book (Twists: Gathered Ephemera). And several other Parisian Phoenix titles are coming together. Perhaps as many as three titles releasing before the end of February.

Speaking of Parisian Phoenix, I emailed my class correspondent at Lafayette College and he ordered my first two novels.

And finally, side note… Actor Tim Daly was on the most recent episode of the podcast Hypocondriactor. I love Tim Daly. And I found myself comparing him to Anthony Stewart Head, you know… Giles on Buffy the Vampire Slayer.

I was specifically comparing Daly’s character on Madame Secretary to Head’s role as the school librarian/watcher on Buffy. Both were nerdy academics with interests in obscure topics.

When Sunday comes on Saturday

My first three day Thursday through Saturday weekend is now coming to a close.

I did some laundry. Did some dishes. Meal prepped for my upcoming lunches and cooked the remaining groceries so the teenager has some food if she wants it. We also discussed our upcoming dinners. I plotted my wardrobe, and I hope to finish gathering underwear and socks, that way I can put my clothes in the bathroom where I can dress without disturbing the cockatoo.

I did a whole lot of work for Parisian Phoenix Publishing, including sending Not an Able-Bodied White Man with Money off for copyright.

So, with all of our food planned for the future, the teenager and I visited McDonalds for buy one, get one free Big Macs.

Here is the video of our crazy Bean dog eating her first McDonald’s burger.

Sometimes it’s nice to do something silly.

Day 3 of 10-hour day shift in the warehouse: Podcast reviews

(And a foster cat and teenager update)

This new work week is certainly moving quickly although each day I come home more exhausted. I’m hurting more once I get home, but I’m fine for the first 9+ hours of my shift. If you don’t know what I’m talking about read these:

Yesterday

Sunday

The teenager kept my car as the last two of our fosters who needed to be spayed went to Canyon River Run today. That would be Mama Danu and her tabby kitten Baile from the Celtic Pride.

She hoped to bake cookies for the platters Feline Urban Rescue and Rehab plans to distribute to the many vets who assist the organization. Her eighth grade boyfriend came over to lend a helping hand so she also taught him to make bread.

Meanwhile I just kept dreaming of an iced cold Coke Zero. And an interesting thing happened — I got to work and there was a 4-pack of 20-ounce Coke Zero bottles with a post-it note declaring them free.

I brought them home. My guess is someone didn’t realize Coke Zero had been relabeled in the same red as classic Coke.

Which my metrics tanked by the end of the day which had me chugging this at 3 p.m. break.

My 4 p.m., I was trembling and about to cry. Do. Not. Repeat.

I treated the teenager to dinner at Tic Toc so she could get her last pay check. We both ate too much.

I did my physical therapy exercises and took a hot shower. By the end of the shower my right leg was very uncomfortable so I took a low dose muscle relaxer and covered my leg, knee and back with CBD Medic’s Arthritis Cream.

One more day.

So now, as promised, let me offer some thoughts on podcasts. The teenager and I compared notes on our Spotify end-of-year wrap up and she thought she was impressive with 17,000 minutes since we started using the service in mid-year. I have 88,000+.

MY FAVORITE PODCASTS I LISTENED TO SO FAR THIS WEEK:

  • This one surprises me. The Ellen Fisher Podcast. She’s a very interesting person with her journey to raise her own food in Hawaii with her brood of plant-based kids and interest in all things calm and positive. I don’t really don’t know how I feel about her podcast — but I recently listened to her episode on Mind Change. It was an interesting discussion of neuroscience facts blended with alternative healing techniques to deal with personal trauma to heal the body of disease and mental illness. The guests on the show discuss their experience that illness, whether physical or mental, is the body manifesting trauma that the person has refused to acknowledge and heal.
  • The Daily. I often force myself to listen to the Daily even when the topics don’t interest me. This week I found myself pleasantly surprised by their coverage of Stephen Sondheim’s death.
  • Snacks Daily. Snacks Daily is a brief podcast from Robin Hood, yes the investment folks. It’s an economic summary of course, but it also provides humor and the business side of the news.
  • I finished Sh**hole Countries by Radiotopia. The American host on that show grapples with the possibility that her Ghanaian parents want her to move to Ghana. Enjoyable but also not what I expected. The host uses much of her platform to talk about her queerness and human rights.
  • The Shit No One Tells You About Writing. Very useful and broad tips about writing, critiquing and publishing.
  • Africa Daily just did a good episode on fistula. I found that a surprising topic. I’m impressed. (Though they did not mention the prevalence of female genital cutting and its impact on the rate of fistula.)

Other notables: Power Hugh Hefner, American Scandal The Lewinsky Affair, Operator, Against the Odds Rock Climbers Abducted.

And here is a video of Nala the Goffins Cockatoo: Nala harassing foster cat tripod Louise

Good night all.

Adventures with Nancy and leaving Midnight Society

Tonight was the last official night of “Midnight Society” at the Stitch Fix Bizzy Hizzy and they closed the warehouse at 7:30 p.m.

I say last “official” night because I just heard from my supervisor (at least until the new shift starts Sunday) and my favorite security guard/philosopher that there are a handful of people who can’t transition until after Christmas— and Stitch Fix will let them continue working their traditional hours until then.

That was a really nice move on the business’s part. Too nice in my opinion. I have squeezed a couple months of doctors appointments, tests and physical therapy into two weeks. So part of me is a little jealous.

We start our new work arrangement Sunday.

In other news, my blind friend Nancy and I both had physical therapy today. And Aîné and Brigid of the Celtic Pride got spayed so they are ready for adoption!

But back to physical therapy. Nan and I went together. She’s having issues with her shoulder and numbness in her finger.

I have pain in my spine and fall a lot.

I had to ride a stationary bike for eight minutes. She warmed up on a hand contraption.

I did my Cobra poses, and my physical therapist did that thing where he presses on my spine as if pushing it back into place.

I did deadlifts with a 20 lb kettlebell. I had to lay on my stomach and bend my leg at the knee and lift it off the table. That was harder than it sounds.

I stood on a soft cushion square and moved my leg out using my hip while keeping my knee soft. I also did that kicking back.

I did bridges.

I took a giant ball, held it to the wall with my back, and squared as low as I could.

Meanwhile some teenager stood on a balance ball on one leg, tossed a ball onto a trampoline and caught it ALL while standing on one leg.

I can stand on one leg for nine seconds.

On the floor.

This kid was standing on a ball meant to destabilize you.

And throwing a ball.

I am in total envy.

Meanwhile Nan was teaching the staff to read Braille and how to use a white cane.

And the staff was heartily confused at the fact that friends would come to physical therapy together.

After physical therapy, I turned to Nan. “You what to come to my house for grilled cheese?”

Her answer was a hearty yes. I made hers with Colby Jack, Cheddar and Lebanon Bologna and mine with habanero cheddar and Vevan vegan mozza-melts.

The mozza-melts taste and melt like real cheese, but sadly they have no protein. At all. So while they are a cruelty free version of cheese, they have no nutritional value.

Sometimes you need to unleash the beast

I hope this weekend to partake in some fun activities and lighthearted blog posts, but I also need to do some administrative work for my publishing company, Parisian Phoenix Publishing.

My second novel in the Fashion and Fiends series, Courting Apparitions, releases officially November 29 (my co-founder’s birthday) and could possibly be available Black Friday. Like, damn, when did that happen?

The first book, Manipulations, is available at all the usual places online— for instance here is the link to buy it at Barnes and Noble.

My friend and fellow writer William Prystauk of the Kink Noir series and horror website Crash Palace Productions left me a truly wonderful review on Amazon and Google.

See more here.

This was my original post on his first novel, Bloodletting. Hard to believe it’s been three years.

Buy his books on Amazon.

On everyday life and health front, I went to the chiropractor yesterday and like my doctor she approved of my new technique of changing work tables to try and even out my sides. I stopped at the pharmacy and picked up my prescription for muscle relaxer. I also made my last Purple Carrot meal in the fridge: mango glazed roasted vegetables with tahini butter.

Worked went mediocre/well. The night seemed long and boring and I felt like I was getting used to my body again after the chiropractor. I QCed at about 83%.

I came home and several cats were waiting for me— including Minerva, a sweet foster who started in our second foster litter of kittens, The Roman Pride.

I took a muscle relaxer to see how it impacted my pain and my morning stiffness. It didn’t make me loopy and I think it helped with my tossing and turning.

I only got six and a half hours of sleep last night, but still managed to meet up with the teenager my trainer Dan at Apex Training to lift some weights. I felt so much more limber after. The teenager easily did 105 on the barbell deadlift and 95 on the squat. I could lift the 105 but not execute the lift. My squat form is still adjusted for my limited range of motion in my lower body so I maxed out at 85 while the teen hardly had to put any effort into it.

We came home and shared some Little Caesars pizza as I was craving their “pizza and sticks” pie. We even shared with the dog.

Another whirlwind and even less answers

This post will be a mishmash of the last 48 hours and will discuss some of the frustration of dealing with my cerebral palsy, life as Midnight Society comes to a close at the Stitch Fix Bizzy Hizzy, a brief mention of the new Wawa dinners and a thank you to the amazing teenager for her thoughtfulness in hiring a cleaner to help get the house under control.

The supply chain issues still create work shortages at the Bizzy Hizzy warehouse so as Midnight Society prepares for it’s change to day shift in December, some of us are only working about 20-25 hours a week.

I’m using the time to edit manuscripts and make more plans for Parisian Phoenix Publishing and deal with my mobility and pain issues.

The last few nights at work have been good (and last night was my one year anniversary)— I performed at 98% last night in QC folding those Stitch Fix parcels and tonight I think I surpassed 100%. But bending is still troublesome and what I believe are my quads burn the entire time I am standing.

So today was an emotional day. My sweet, amazing teenager hired a cleaner to deep clean the house. The cleaner did the upstairs yesterday and the downstairs today.

The house looks incredible.

And it was fun to interact with someone who wanted to help, loved our crazy animals and commented about how awesome my kid is.

I noticed early today that my X-rays had arrived in my St. Luke’s Hospital portal. I read them and they said my hips were fine, and the only findings on them (other than my new IUD and tampon) mentioned items in my spine.

But when the doctor’s office called at 2 p.m., he just wanted to ship me off to physical therapy. And I’m not sure that’s the whole answer. I work out. I have had physical therapy for my lumbar region already.

Two important questions physical therapy can’t answer:

1. How does this impact my ability to keep doing my job?

When I mentioned this to the person on the phone from my doctor’s office, she asked me what I wanted, mentioning that they could sign me out of work. I said no, I am looking for a more permanent answer than that.

2. How does my general crookedness factor in? The doctor’s office made this sound like no big deal, but I hurt. More often than not. So does my imperfect gait add more stress to this problem?

I’m going to talk to my trainer tomorrow, and my chiropractor Friday. I think there are more questions that need to be asked and I’m not sure what they are.

And in final ridiculous news… I tried a Wawa burger.

It was cheaper and heartier than I expected.

October 30

My husband and I celebrated our 22nd wedding anniversary today and, even though we have been separated for two-and-a-half years, we inadvertently spent it together.

My mother celebrated her 67th birthday today, and I postponed her birthday until next week because one of her brothers died on Thursday. The second brother to die of prostate cancer in about a month. And her ex-brother-in-law died last week, too.

The day started strong with the teenager and I killing our workout at Apex Training with Dan. I also ordered an Apex Training hoodie. The teenager and I benched 70lbs on the barbell, and the teen also did some hearty squats.

We signed five cats up for the “come adopt us” event with Feline Urban Rescue and Rehab. One of them was sweet Khloe. Khloe hid under the blanket with one eye poking out the whole time, until she heard my voice, then she came out. Not bad for a first day out.

Photo of me waking up with a Khloe scarf

So the husband came over to retrieve his car from the teen and do his laundry and assign his ISBN to his poetry manuscript.

He then rewarded us with pizza.

I did some more work for Parisian Phoenix and some more cleaning, and then the teenager asked me to come down to the diner for coffee and my favorite pie.

Photo: waiting for my daughter at Tic Toc Family Restaurant

This morning my legs felt more normal than they have in weeks and everything seemed to be working in coordination. But as the day wore on everything started stiffening up. It was the first time in about a month my right quad wasn’t burning all day.

So we shall see what tomorrow brings.

Hopeful Friday

It’s is almost 3:30 p.m. on a crisp autumn Friday afternoon. I normally would be standing in front of the daily work schedule at the warehouse, but today they offered us voluntary time off. And my body needs it.

I had a chiropractor appointment today, about ten days after my last one. I described my symptoms as a lot of back pain that made basic movements like stretching in front of me to move a pile of clothes from one spot to another very uncomfortable, to my left leg feeling immobile like a tree trunk while my right was very flexible but weak and prone to discomfort.

And she noted that my left hip was stiff and locked in a position out of alignment. And she concurs with my assessment that it’s time to ask my doctor for some x-rays.

She asked what I was doing this weekend as she moved my bones around and I answered I had some work to do for my publishing company and that I have to drop a copy of my novel off at the Mary Meuser Memorial Library, my local public library.

And she thought I meant an overdue library book.

So, I corrected her.

And then she and her staff, the three of them, engaged me in a lively conversation about my book as the bought copies.

I did stop at the library. I did give them a copy. The teenager is appearing in the Wilson Centennial/Halloween parade with the library staff as the library mouse.

Last night, I had an interesting text message from a former colleague who left my last place of employment around the same time the man who hired me also left. She apparently has landed in a much better place, two years later, at a similar nonprofit with a larger service area. She texted me as I was pulling into the parking lot at the Hizzy and asked me if I would consider a position in her office.

I sent her the resume I had on my phone and she talked to her boss on my behalf.

Because I was “awesome” and “under appreciated” at my last nonprofit position.

Regardless of if or when this goes anywhere, it’s always uplifting to see that someone acknowledges who you are and what you have been through.

Another thing that can be frustrating or uplifting, our dog, F. Bean Barker, the black lab, pit bull and mastiff mix

We left work early last night, after shipping about 1900 men’s fixes. I have this equation I work in my head. On nights when they offer us VTO (voluntary time off), I survey the valleys of people doing my job. I count them roughly, using my journalist-surveying the crowd skills, and then I estimate, based on who I see and their skill levels, how many fixes I think we will be able to ship an hour. Then, when the leads call out our progress announcing how many we have shipped or how many we have left, I do the math in my head.

And last night, when they suggested that we could VTO after shipping 1840 fixes, I did my calculation (and gave more extra time since most of us and very inexperienced in men’s fixues) and thought we would be done by 9:30. The leads kept suggesting about 10 p.m. But I trusted my gut. And sure enough, we got the call of VTO at 9:20.

Also today, I have been editing and doing projects for Parisian Phoenix with breaks when my eyes hurt. I use those breaks to clean, because the teenager has booked a consultation with a cleaning lady for Monday. Her idea is if we have someone help me with the vacuuming, dusting, floors, nose-printed windows, and bathroom maintenance that maybe it would be easier for me to survive my bad days and get ahead on so many projects we have.

I did some furniture rearranging and my floor scrubbing and a whole lot of laundry, including I finally took the time to empty the chest on our sun porch and move the “winter things” into the hope chest we brought downstairs to sit under the winter coats on their hooks more than a year ago.

Oz, one of our personal cats, is on my lap while I work today.

After I update my blog and the Parisian Phoenix website with the story of how I accidentally started a podcast, my next task will be to explore the handwritten manuscript that one of our authors prepared for me. I’ve been looking forward to her tale for quite some time, but I don’t have the best typing skills so I have been saving it for a day when I have a nice block of uninterrupted time.

And then, I will rest by folding laundry. And when the teenager returns home from her waitressing gig, we will have tacos for dinner.

Tomorrow FIVE of our Feline Urban Rescue and Rehab fosters are headed to Petsmart for the adoption meet and greet. These babies need homes!

We signed up: Khloe (a four or so year old female grey torbie), Slim Shady and Eminem (the bestest, sweetest kittens ever, Shady is a black female and Em is a grey tabby with white feet, male) and Mars and Minerva, the tuxedo siblings who have been in foster for more than a year.