One of the very first things I did when I opened my bank account for my business, Parisian Phoenix Publishing, was to buy my art director Gayle a pastry at my favorite pie shop. But the next thing I did was head to Patreon and support Andrew Gurza, a queer man with cerebral palsy who records the podcast “Disability After Dark.”
I requested to join him on the podcast, thinking it would be a great way to promote my business and share my experiences. I wanted Andrew to know how much his honesty means to me and how much I leaned on his support– even though he didn’t know me– in my journey to accept my identity as a person with a disability, in this case spastic diplegic cerebral palsy.
I had to reschedule once due to a doctor’s appointment with my current hand injury, and he had to reschedule once due to his IBS flares. He even started a podcast to talk about various GI issues and he called it, “This Shit is Real.” And I admire him for that openness. A recent and very occasional complication with my CP has been incontinence. Sometimes I can’t feel when I have to pee until it’s the very last second. And that is scary.
We finally had our chat today, and we barely scratched the surface of what both of us could say, and I know by the end I was talking too fast. Nala even behaved, but then my parakeet Yo-yo starting singing.
I hope he can salvage the audio.
I was so excited to have that chat with him as I have listened to the podcast for more than a year now. And he asked if he could contact me again so we can talk about book publishing.
Andrew can contact me anytime! The world needs more people that force discussions that we all need to have. We need to release ourselves from sensations of shame, anxiety and insecurity and accept each other and the perspectives we bring to the table.
I had a notebook because I wanted to write down the brilliant insights I knew we would have together and we had a great, great talk. But I babbled. And now I don’t have much to share with you.
So I guess we’ll have to wait for Andrew to release the episode.