We now have a deep freezer

We recently got an old, hand-me-down deep freezer.

And at the same time, the federal government shutdown and Pennsylvania state budget impasse have complicated SNAP benefits for families who have them.

I heard on the news that 1-in-8 Americans have SNAP (Supplemental Nutrition or “food stamps”). I heard one story this morning about an unemployed widow with a 15-year-old son whose soundbite suggested she sent him to school so he could eat breakfast and lunch.

I hope she’s sending him to school for an education, first and foremost.

I consider myself a fiscally-conservative Democrat who believes that education and healthcare should be attainable and fair. I would love to have a Ph.D., but I can’t afford to finish my masters and I refuse to go into debt for it. I also have a disability, and even when I am well-employed I often have to make choices about my medical care.

Right now, I have my own small business. I work a part-time job in the food service industry to provide some reliable income on a steady timeline. I am an adjunct instructor at my local community college, and if you break it down to an hourly rate, I probably make a similar wage at my fast food job (because of the fact that I did not have the money to finish my degrees). And I have freelance writing and editing jobs and a mini author’s assistant job.

And I’m always on the look out for more. Applied for another this morning.

I started my career in public relations, and ended up in print journalism, which led to a long career of lay-offs as newspapers died. I worked in non-profit communications and development, where I learned a massive amount of useful skills like grant writing but also experienced a ridiculous amount of toxic managerial behavior. Some people work in the non-profit sector because they want to make the world a better place, but at the same time, many of those people have either childhood trauma and/or personal insecurities that create some challenging environments in an already difficult field.

I mention all of this because I have experience with unemployment. I have experience with being the single mom with maybe enough resources to survive a month. I was a single mom raising a teenager who lost her job during the pandemic and did not find out if she qualified for unemployment until the weekend after she accepted a new job. I was unemployed for four months and had opened my home to one of my daughter’s friends who didn’t feel safe in her own home.

I applied for public assistance because I was volunteering at a non-profit that provides services for people exiting human trafficking situations and my “boss” suggested it. Because I had no income and I had an official dependent, I received more than $700/month in food stamps. And Medicaid. Which was a great help. Even though I only received food stamps for four months, I rationed them so they lasted almost a year.

I had accepted a job in the warehouse at Stitch Fix. I loved that job, and the company, but after three years they decided to close our warehouse. After three years at a wage where my take-home pay was the same as what I had made as the development manager for a small non-profit with a two-million-dollar annual budget (thanks to the fact that Stitch Fix offered their employees free medical benefits), I found myself laid off again.

And when my unemployment ran out, I once again applied for food stamps. I had gone on multiple interviews, built up my small business, but still struggled with the cost of my medical care– my estranged husband put me on his benefits but my medicine was $50-$100 a month and all my doctor’s appointments I had to pay out of pocket because of the high deductible. So I really hoped I would qualify for Medicaid again. And I did.

I also qualified for $525 in food stamps.

Around this same time, Trump got re-elected and the cheap refrigerator I bought started freezing the food in the refrigerator and not freezing the food in the freezer. But I couldn’t afford a new fridge– and I still can’t– so we started buying only what we could eat in a few days, or foods that could safely thaw and refreeze.

Lettuce is not one of them, if you were curious.

The point of all this is to ask: Regardless of how you feel about who uses food stamps or how the government distributes them or whether or not people try hard enough or work hard enough, why is no one asking why we have a system where 1-in-eight Americans qualifies for food stamps?

I have seen and heard so many things about the system, and I have known people who work in the branches of government that distribute these types of assistance and they are all people who want to help. I have met people afraid to work because they might lose assistance, and I have seen people who need the help lose it because they made too much money. (And, like me, it’s usually people who need medical care.)

I have about $2,300 left on my deductible this year, and I have spent almost an equal amount if you read my EOBs from the insurance company. I’m losing my hearing in one ear and I need a hearing test and a visit with the audiologist. The muscles in my one leg have been spasming 24-hours-a-day for almost a year now and I just blamed it on my cerebral palsy but my neurologist has concerns that previously noted damage to my spine (from all these years of walking crooked) may have caused nerve damage in my lower back. And my one finger has been doing crazy things for about a year.

That’s probably at least $6,000 worth of tests. Do I just try to schedule it all before the end of the year and finance the $2,000+ remaining of the deductible on a credit card? Or Able Pay? or do I wait until I am better off financially?

Back to the deep freezer. A friend of the family was hoping to get a decade-plus year old freezer out of his house. We took it. We took all the stuff from our cheap refrigerator that needed better freezer conditions and piled it in. And I thought– when Trump was elected an I was worried about the future of food stamps, I didn’t have a freezer to fill. I did however invest in every non-perishable food item I could tolerate.

Dried Beans. Plain-old Rice. Canned Fruit. Canned Vegs. Nutritional Yeast. Some condiments. Canned Tuna. Spam. Canned Chicken.

My childhood traumas leave me to ruminate frequently about food scarcity, financial security and general stability. I will probably always behave as if every trip to the grocery store is the last one I can afford. And I have done my grocery shopping at the Dollar Tree and the Grocery Outlet because I only had $20 left to feed us for the week.

The Office of Vocational Rehab considers me the most severely tier of worker, whereas the federal government says I do not qualify for disability because I work so much and at so many jobs. But the federal government doesn’t take into consideration that I have to work that hard to make ends meet. And I don’t always succeed and I often hurt myself doing it. And I just work past it.

But how do you determine an equitable way to decide who deserves help? And I ask a third time: Why does 1-in-eight Americans receive food stamps? What is wrong with our society if 1-in-eight people cannot afford to feed themselves according to the criteria the government sets forth?

Food for thought.

Tying for gold at Lucky Strokes Mini Golf

Earlier this week, I got a text message from Mr. Accordion.

Mr. Accordion and I were roommates during my tenure at a certain nonprofit that suffered from toxic management. It’s funny though how life leads a person on a meandering path, and we end up gaining things from experiences that hurt us at the time. I have current clients who connected with me because of that job. I ended up at Stitch Fix because of that job. And I published my novel as a distraction when I lost that job. So many of the circumstances that led to the success of Parisian Phoenix Publishing launched from a very stressful and agonizing work environment, where I shared an office with Mr. Accordion.

Mr. Accordion retired, and he has spent the last four years at various part-time jobs and spending time with his family. I have only known him about five years, but in that time he has always had a joke to share, leads on good food, and a genuine care for other people.

And the other day he invited Eva-the-no-longer-a-teenager and I for pizza and mini-golf. And who am I to say no to pizza and mini-golf? The venue in question was Lucky Strokes mini golf and driving range and Isabella’s Pizza.

They had a strange, vintage upholstered chair in the parking lot with a “free” sign and a school bus with a giant target painted on it in the back of the driving range, if I saw correctly at 175 yards.

The no-longer-a-teenager and I arrived and ordered a medium pizza with capicola and artichokes.

And after some conversation with Mr. Accordion, Eva and I hit the golf range. Now, I did set my Apple Watch to “golf” (and Omada gave me credit for “sports”). It took us 37 minutes to play all 18 holes. (In part because the people ahead of us where having some intense discussion about his marriage and how his wife wasn’t taking the couples counseling seriously. At least, that’s what Eva heard. How she heard that without her hearing aids, I don’t know.

It looked to me like the worst first date ever. She looked disinterested with her back turned, sipping her soda. He would not shut up about himself or his wife. And every time you looked at them, he was standing over to the side with his putter over his shoulder and his ball on the other side of the green.

Immediately, Eva noticed two things:

  1. I don’t even remotely line up the putter correctly.
  2. I was swarmed by small harmless bee creatures.

And then while following my little pink ball around I fell up an incline and ended up crawling around the artificial turf on my hands and knees. Speaking of my knees, my knees and legs refused enough to let me get the ball out of the hole at each green.

Instead of keeping traditional score, we kept score of who landed each hole first, and who won each hole. We ended up trying, 8 holes each with two ties. None of which would have been possible without Eva’s golfing lessons. And her tendency to sometimes hit the ball so hard I feared she might have landed it on the next green.

And I think I had a hole in one, but now I don’t remember.

On the way home we stopped at The Spot for ice cream. I haven’t been to The Spot since my Stitch Fix days.

I had a dusty road sundae.

Road Trip: Ephrata and the Cloisters

Yesterday, my friend Gayle and I embarked on an adventure. I wanted to motivate myself toward more movement and healthier living and Gayle enjoys visiting new towns via self-guided walks designed by local clubs of the American Volkssporting Association. Gayle has wanted to hit the Ephrata, Pa., walk (which is about 90 minutes away from our homes) and I love a day trip. The walk is maintained by the Susquehanna Rovers.

Gayle packed lunch. I packed sunscreen. I even tossed some electrolyte powders packets in my bag, knowing it would be a sunny summer day. I took my muscle relaxers.

Off we went.

The background

Now, as someone with a mobility disability (cerebral palsy, spastic diplegia), I suspected– or perhaps even knew– that this would end with some sort of injury or discomfort. I had hoped that having this walk, a 5K by design, would motivate me to get away from my desk and wander around the neighborhood.

That didn’t happen. I could blame the heat wave, but in reality, I doubt I would have changed my behavior even if the weather were nice.

In the end, I said to myself, “Anyone can walk a 5K.”

And in one respect, I was correct. I did it. On the other hand, it was stupid. And I’m suffering because of it. But that’s getting ahead of myself.

I wanted to use this walk to see how my movement was in a more long-term commitment. I wanted to test my breathing and my heart rate. I suspect a lot of my health issues will not resolve until I lose at least 20, if not 30, or even 35 pounds (at which point I ask myself– how did I gain this much weight so quickly?)

So this walk would help me evaluate my true status and make health-related goals.

That was my logic. Was it a tad reckless? Maybe, maybe not.

The Walk

Ephrata has a lovely main street, historic buildings and apparently monuments– none of which we saw because the 5K was mostly through residential neighborhoods. And we missed a turn somewhere and ended up shaving off about a half mile. Our time for our 2.8 mile 5K was about 31 minutes a mile, and we periodically stopped to enjoy the shade, look at weird buildings, and sometimes cuss about hills.

AVA walks are rated, and this was a 1B which means it was supposed to be easy, with sidewalks and the occasional hill. But if you looked at the “fine print,” the walk was rated “medium” for strollers and “hard” for wheelchairs. I think for the foreseeable future Gayle and I need 1A walks that are easy for wheelchairs.

So here’s my analysis of what we saw in Ephrata on the 5K:

  • A gnome garden. I like this tiered design of outdoor knick knacks. I’m not sure what sense it makes, but it seems like a concept the no-longer-a-Teenager would embrace.

  • A neighborhood egg stand, that was closed.

  • The strangest “double” homes I’ve ever seen. The walk took us through an entire neighborhood of attached, split-level homes. I own “half a double,” and some neighborhoods in my area are row homes that expand an entire block. But I have never seen neighborhoods like these. I fail to understand the logic. There are two reasons to “attach” homes– one is to lower the cost by sharing a wall, and the second is to squeeze more people into a smaller space.

These homes have the space to be detached. They are on suburban lots. So, if you are going to invest in a suburban home, why would you want (or even accept?) being attached to your neighbor. There were also attached ranch homes, with the same concept, but just without the extra stories. And some had a strange shared doorway in the middle, like a breezeway, so they were both attached and detached.

  • We did see a lot of great distant views. Mountains in the distance. Clear skies.

  • One of the first things we encountered was the Anne Brossman Sweigert Charitable Foundation, with a family sculpture out front and a sign engraved on a grave marker. (They also have not updated their website in almost 10 years according to the “grant history” tab.) Why did they place their sign on a grave marker? So it didn’t blow away? Fade?

Around the two-mile mark, we realized we had missed the turn and reached our threshold for the residential tour, and ironically, we ended up taking a street parallel to the main drag back to the hotel where the walk-box is stored.

Interlude: Early in the walk, I noticed my right leg was pulling in toward my left leg. So, minding my fitness and strength coach’s advice, I led with my knees to make sure I wouldn’t end up tripping over my own legs due to my knees facing inward. I tried stretching, to see if I could get my hips and thighs to move more outwardly, but I couldn’t come up with the right movement.

Nothing hurt, but damn everything was tight, and my legs fought me with every step. By the time we climbed the hill and stairs by the hotel, my back was starting to feel the stress. My legs didn’t want to lift. So I made it to the car and popped another muscle relaxer.

Step count: about 8,500

The Ephrata Cloister

We went to Ephrata Cloister, driving down the main drag and wondering why the walk couldn’t have shown us all these lovely local businesses and perhaps led us to a cafe where we could have rested. We had a savory-and-sweet vegan chickpea and carrot salad with a side of grapes for lunch. From there we headed into the gift shop.

At the gift shop, I found an impressive collection of wood crafts, paper folding kits for Moravian Stars, quilted cards, replacement ink for quills, Amish novels and a nice selection of Pennsylvania Dutch nonfiction books.

The no-longer-a-Teenager is mostly Pennsylvania Dutch on her father’s side. One paternal great-grandfather was Welsh, but all of her other paternal great-grandparents were Pennsylvania Dutch. Her paternal grandmother’s father spoke Pennsylvania Dutch (Leroy Buss) as his first language, learning English at the one-room schoolhouse he entered at age five. I would have loved to buy her a Pennsylvania Dutch to English dictionary or Superstitions and Folklore of the Pennsylvania Dutch, but the budget did not allow.

We visited the museum where we learned that the Cloister was a spiritual community with roots in Germany that came to Pennsylvania, just like the Quakers and the Moravians, in the early 18th century for religious freedom.** They had strict beliefs and practices, one of which was celibacy so it became impossible to keep the community alive. (The “householders” later became the German Seventh Day Baptist Church. Householders were the families on neighboring farms who supported the community and their religious beliefs without going all in on the celibacy, vegetarianism, and sleeping on a wooden block disciplines.)

We also saw a really long glass horn.

** 1720. That’s more than FIFTY YEARS before the Revolutionary War.

The tour

Gayle and I like to support local history and nonprofits, and who doesn’t love the story of a good old colonial cult. So, we embarked on the tour.

First, we watched a really information-packed but poorly acted and filmed movie. You can watch it online here. (This was where Gayle thought she lost her phone and I got a text from a client who needed me to do something later that day.) We were told the tour was 45 minutes to an hour long, depending how many questions people had, and that we should be on our way at 3 p.m., 3:15 p.m. at the latest.

Gayle was hoping the tour would send us all over the grounds walking from building to building. I was suddenly starting to hurt and could barely stand. Neither of us voiced what we were thinking to the other.

“You’ll love the tour guide,” the volunteer at the desk said. “He’s really knowledgeable and passionate.”

Our tour guide took ten minutes to get us out the door because already other members of the tour were asking stupid questions covered by the movie we had just watched. We walked out to the middle of the yard, not even a half acre away where the tour guide announced we had reached the village.

We stood outside for a long time, at first talking about architecture, then the idiots with us had to debate how old the trees might be, and whether they were “original.” I was mesmerized the whole time by a man who looked very Mennonite/new order Amish/”Dutchy.” You don’t think the Pennsylvania Dutch have certain genetic “looks,” but they do.

Now, somewhere around this time, it became difficult to know when the tour guide was telling us historical fact, and when he was expounding on his own “theories” (his word). He talked a lot about significance of numbers, how the triangle formed by the Village served as a reminder of our path to God, and the powers of the mystics. This is where I, as a journalist and a historian, started to get annoyed. He provided no proof of the sources of his ideas. (Here are some of the official lectures on the topics.)

We stood in the main living area of what became the Sister’s House. Eventually we ended up in the Meeting Room. We were *locked in* the building, so strangers who had not purchased the tour could not wander in. I know this because the Dutchy man needed to leave and he could not without interrupting the tour.

I faded in and out of the door mentally because my legs were hurting at about an eight. When we left the meeting room and entered the add-on kitchen, I was ready to fight the sweet little old ladies for a space on the small bench. My heartrate had been soaring since we started the tour (130s when standing and 110 when seated) probably in response to the pain. There was room for all of us.

Interior of the Meeting House (saal, meaning “room.”)

At this point, my plan was to sneak out of the tour when he let us out of the building and to tell Gayle to take her time as I would sit outside and read my book. But it turned out the tour was only to this building.

Our tour guide unlocked the door at 3:40 p.m.

The repercussions

By the time I went to bed, my pain levels had reached a nine. They are between a six and seven today and I’m taking it easy. I think my body has forgotten how to walk. As a person who deals with spasticity, which means my muscles in my legs never relax, I have a theory. This is the first long walk I’ve taken probably in years, certainly since I started taking muscle relaxers. It’s the first long walk I’ve taken since I started fitness training with Andrew, and even more certainly, the first I’ve taken since he had to pause our sessions several months ago. And I sit at a desk now, 8-10 hours a day, seven days a week, and walk 3,500 to 5,000 steps a day.

So, sure I overdid it.

But I still maintain that I have never moved the way I moved yesterday. I fried my adductors.

Hard to believe for several months from 2020-2021 I was a picker in the Stitch Fix warehouse where I walked miles and miles and miles every night, five days a week.

For more about this trip and some discussion of books, printing and those arts at the Cloisters, see ParisianPhoenix.com.

Two weeks in the life of Angel

I wish I had some exciting reason that it’s been two weeks without a post. The reality is that I’ve been ghostwriting a novel and that every free moment I have has been dedicated to that client who is currently paying my mortgage. Luckily, I love the client, I love the story and I love the whole experience of being a part of the project so it’s not a hardship by any means.

The book publishing entity– Parisian Phoenix Publishing— has been paying the other costs of life. If you follow the blog there and/or read the Substack newsletter, you will see we are always doing something to keep the company and its authors growing. And if you need another reminder of why and where to buy books, check out the shop we’ve curated at Bookshop.org, where you can shop online and designate your favorite independent bookseller to receive the profits from the sale.

So, rather than try to catch you up with every bit of crazy while I’ve been away, let me provide this fine list:

The Initial Joys of Summer

  1. The Teenager only has a few more days of Teenagerdom and she has spent much of the last month renovating our garage into an indoor/outdoor living space. She is hosting her birthday party out there and I can’t wait to show you the final result.

2. I have started using the outdoor patio more as the Internet extends that far and there’s really no excuse.

3. We decided to try the Papa Johns Cheeseburger Pizza and their new Spicy Lemon Pepper Wing Sauce. The boneless wings are terrible, but the sauce is out of this world. And the burger pizza– especially with the $10 promotional price point–might be our new favorite food. The Teenager has proclaimed that all pizza should have pickles.

4. I spent some more time with my cat, Fog. We normally use a “crate and rotate”-style system for all the animals. For the last year, my boy Fog, our old tripod Opie and the cat the rescue gave up on, Canyon, have been in my room. We decided to let them free roam and this meant I got to spend some time during my long work days with my man, Fog.

5. Speaking of cats, our houseguest, Paulie, still loves to bite me, but he has gotten quite forward about being in my business.

6. We pre-gamed the Teenager’s birthday by going to Dave & Buster’s for some arcade time and then visited this strange convenience store with the old style poker video machines, alcohol, vaping supplies, penny candy, ice cream, strange snacks and all the household goods one would expect from a convenience store.

7. I made some new recipes including rhubarb quick bread (think banana bread but with rhubarb) and my own twist on fried pickles. I smeared/shredded cheese on a kosher dill pickle sandwich slice and then pinched it into a piece of Italian meat before breading and frying. Both were amazing.

8. My 2015 Jetta turned over to 71,000 miles. The Teenager has been driving it for work, so it only had 55,000 on it when I got laid off from Stitch Fix in September. But in other exciting news, before the end of the month, the Teenager should pay off her 2012 Nissan Rogue which we’ve had two years when we only planned to keep it for six months. It’s pretty much ready for a demolition derby now, but it was The Teenager’s first car loan and she paid it off six months early.

And lucky number nine….

(The Celts believed 9 was a holy number, because nine was a collection of three sacred threes.)

9. Today, I got to have a lavender matcha latte with my book-making, mixed media, painting artist friend Maryann Riker of Justarip Press. We stopped at Spectacular Coffee at Easton’s Silk Mill after indulging in a green sale (yes there is such a thing!) at Vasari Oil Paint.

Six months

As I am part of the Amazon Vine reviewer program, we get a lot of packages. I spend about an average of an hour every day opening packaging, checking out products and updating what items we are ready to review. The Teenager had a moment of brilliance, and created a package-opening station in our sun room– a garbage can for packing materials, a recycling can for the cardboard once I’ve broken it down and I set my Stitch Fix tool bag on the sill. It contained my ceramic knife, my safety box cutter, a sponge/eraser and my fingerless gloves among other little items like pencils.

The safety box cutter migrated to my desk. My Stitch Fix branded fingerless gloves ended up on the floor.

But on Monday, when I went to open a pile of packages, the clear bag of tools was gone. Just gone. My guess is that it fell off of the window sill and into the garbage can when The Teenager took out the trash, and it looks like it did it before she changed the trash as the trash can is empty. And the trash has long been carted away.

It’s nothing important. But the loss of the small cosmetic-bag-sized collection of tools from the warehouse made me pause and dropped me into a sadness, a grief, that I did not anticipate.

You see on Friday, on Friday it will be six months exactly since I left the Stitch Fix Bizzy Hizzy. I have had many interviews, many hopes and still put out many applications. In my heart I still hope to make my small publishing services and book publishing operation a success and live off that, but unemployment will end very soon so the reality looms.

I still believe I can succeed.

I did not anticipate the way the universe seems to be saying, “it’s over. It’s really over. Do not cling to these thoughts and items you clung to in the warehouse.”

I have a few friends who I have kept. Many other people I had hoped would stay in touch and it doesn’t seem to be happening, but life goes on.

I am so surprised by the depth of my sadness at losing a ceramic box cutter and a spongy eraser thing.

But sometimes you really, really have to let go to move on. And in my opinion, the universe or “God” or whatever creative power you believe in, kicks you in the ass to make you do it.

So one of the products I’ve reviewed is a pack of French motivational stickers– and if you know me, you know I adore the French language. These stickers make me happy and I am plopping them onto my computer and my calendar.

Another was a small message board that I have set upon my desk and I periodically change the quote and my goal is to post quotes from my clients, because my clients and authors are the people who keep me going.

Joe recently ordered a lot of hardcover books for the upcoming Pennsylvania School Library Association conference and when he asked me how much he owed me… well, it was a nice chunk of money, ending in $6 and some off change. He immediately texted that he would get me the $6 soon and for some reason that made me cackle. So I put it on the board.

And then, more recently, I had to announce the discontinuation of my “friends and family” rate for clients and one of my clients sent me a long email supporting my decision because I am not running a charity, he said, and I need to keep a room over my head, gas in my car and (my favorite) Panera coffee in my belly. So I added his quote, “You deserve to have an adequate income,” to my board. (I also placed the board beside my enormous “I’m kind of a big deal” mug and my silly jellyfish aquarium lamp.)

Last week created a lot of stress for me. Good stress I guess because clients all needed things and checks are coming in this week. But it also taught me that I really need to protect my sanity in this endeavor.

Today, I took the checks to the bank, deposited some cash payments from clients, and took my neighbor who just had cataract surgery to run errands. We visited the municipal building, which I had only ever seen the council chambers. That allowed me to view a few Wilson borough artifacts.

The Western Addition of the City of Easton, a blue print map of building plots available, dated 1893, hung on the wall. It was indeed blue, like the slate blue of an old fashioned chalkboard, and it showed what would later become Wilson Borough.

The follow-up and the next fall

Yesterday, I visited my primary care physician. He was thrilled because my blood pressure has stayed at 100-110/70 for the last six months. I am disappointed that my weight has not budged.

Around the last snow storm, I noticed my sinus troubles got so bad that only a day of Sudafed would stop my sneezing (see more here or via the publishing company’s Substack newsletter here) and that since then the mild lightheadness and congestion have not abated. And since I took a flying leap out the warehouse door March 1, 2023 and following that with stair acrobatics at home March 13, I had to ask my doctor– could my sinuses be contributing to my fall risk more than we realize?

So, he changed up my allergy medicine to move me from OTC remedies to prescription medication.

I also mentioned that my heart rate has been stable, even when I have no caffeine or overindulge in the stuff, and that salt has a strong effect on my heart and my weight. But I was no closer to keeping my heart rate under control first thing in the morning.

He asked me to tweak my beta blocker routine to take it before I get out of bed in the morning. And to be completely attentive to it at night. For a month, I am to take both half-pill doses as close to 7 o’clock as possible to see if that prevents my heart rate from jumping from 60 to 80 when I sit up, and then from having another jump from 80 to 100 when I stand. If that balances out my heart rate, he may move me to an extended release medication to maintain my heart rate. Especially since I have a small aneurysm in my brain.

The new allergy medicine he put me on– shifting me from Zyrtec and Flonase to prescription strength Claritin and Nasonex– was ready at my pharmacy by dinner time last night.

“It’s a preferred medication of your insurance,” my doctor said, “so it shouldn’t cost you too much.”

So, the teenager and I took the dog on a walk to CVS this morning where the generics of these two medications, for a one-month supply, cost $93. I know my Zyrtec and Flonase probably cost similar– but I never pay full-price. I use coupons and extra bucks and buy the generic, and on top of all that buy the twin pack and split it with my friend Nancy.

We walk home, and I don’t really complain about the price because I need to know if sinuses are increasing my fall risk and I want to know if I can reduce that risk so the investment is worth it.

On the way home, the dog was frolicking on a small hill, and she came trotting down to catch up with the teenager. She misjudged or maybe lost her footing and raced down the hill right at me, hit me in the legs and sent me flying. I landed on the sidewalk. My knee has a hearty scrape, my hands are sore, and my nervous system is done for the day.

Welcome February or “Wow, it’s been a month!”

I didn’t realize– or perhaps deep down inside I did– that I did not write in this blog at all in the month of January. I have written in the Parisian Phoenix blog, on my Substack, for the Lehigh Valley Armchair Substack, for Kiss and Tell magazine, for press releases and social media…

But not here.

I have spent much time applying for jobs, going on job interviews, and following up with second interviews, and working with my authors at our small publishing company, attending networking events, meeting with other writers and professionals, and grocery shopping at discount retailers like Grocery Outlet and the Dollar Tree.

(Grocery budget has been $25/week, but this week I splurged and bought a baker’s dozen bagels for $9.50 at Panera because they have a sale on Tuesday, and I used my CVS coupons and their sales to buy 2 boxes of KIND breakfast bars, a box of Grape Nuts and a box of Cocoa Krispies for $13.)

My personal favorite cheap meal this month has been these gnocchi from the Dollar Tree, served with a cream sauce I made with butter, lemon, and some artichoke hearts (using the oil they were marinated in). The artichoke hearts and the Barber Foods Chicken Stuffed with Broccoli and Cheese came from Grocery Outlet. The whole meal cost me about $3 per serving. And I used up some half and half that was on its last leg.

If it weren’t for car insurance for the teen and heat (I’ve been keeping the house at a balmy 60 degrees since I had to pay for $600 in furnace repairs in December), I have enough clients to keep me afloat indefinitely even after unemployment runs out in about six weeks. But the uncertainty of it all is hard. My biggest faux pas since my lay off was dropping the oil cap into the engine compartment of my car while topping off my fluids before a winter storm.

Luckily, good old Southern Candy and her son came to my aid and he fished it out for me– took him 45 minutes and the promise of the $50 cash I had in my wallet. I could hear my Dad laughing the entire time. I swear he’s been playing practical jokes on me from the afterlife with all of these little mechanical problems.

Like he’s checking to make sure I can take care of myself.

Sometimes, Daddy, I don’t know.

We had two snowstorms in January. During one of which, the first actually, one of the Teenager’s college friends spent the night. (Photo: Here they are at about 10 p.m. having a snowball fight with one of our neighbors, a high school friend of the Teen.) The College Friend hails from Los Angeles, so this was her first snow. And we bundled her up in home-knit hats and gloves and sent her out to shovel and play in my snow boots. Because Lord knows I am not going out in that if I don’t have to.

I drove over to the Bizzy Hizzy, the now nearly empty Stitch Fix warehouse, to show my daughter the old Freestyle and Pick carts that had been set out for the trash. The carts are laminated, corrugated cardboard so I imagined they deflated pretty badly in all the rain. I explained to her how we used to pick, and showed her the pencil cans we used to hold our water bottles and the heavy-duty page protectors that held the pack slips after installation of the Big Ass Fans blew them out of the carts. Three years, evaporated and erased.

I’m still working out with Andrew at Apex Training and meeting my strength goals even if I am failing at my weight goals. The Teen says I need to be more body-positive, but I know I am regularly showing more than 500 garbage calories into my body for the emotional sensation of it. And I also know that as someone with heart and mobility issues, being overweight is not helping.

In good news though, because I share so much about my journal both as someone with cerebral palsy and someone who finds strength training cool and empowering, several other members of my gym are now setting strength goals and strength training into their routines.

While visiting Nan the other day I got to meet a really cute dog. She’s a French sheep dog. Nan and her owner both told me her breed and now I don’t remember. I asked Siri and she suggested a Wheaten Terrier or a Goldendoodle and both of those are wrong. So, I googled French sheep dog breeds and it suggested a few and I immediately recognized the word “Briard.” And it is indeed a dog that would get stuck in briars.

And last week, the Echo City guys and I went out to Pints & Pies for burgers for the guys and pizza for me. It was a very tasty pizza. I have been dreaming of it and the cold Yuengling draft I had ever since.

Pregaming Thanksgiving

If you miss my ridiculous banter, you may want to visit ParisianPhoenix.com because most of my activities now relate to the publishing company because I’m trying to develop enough business to make a living now that Stitch Fix has closed its Bethlehem warehouse.

Speaking of Stitch Fix, one of my friends who has gotten fixes religiously since I started with the company got an email today that whatever warehouse shipped her fix instead of ours did not scan the package as it left the facility so neither Stitch Fix nor the carrier has a record of it. Therefore, if she does not receive a fix today or tomorrow, she is to let them know as then they have reason to believe it is lost.

Yup. Did I ever mention that we were the most efficient, safest working warehouse in the network?

Random Cat Photo:
Touch of Gray

Anyway, back to my day. I started my day assisting the Teenager with course registration at her college. She is studying BS psychology and had a good plan. She had courses and backup courses and I planned on catching up with my NaNoWriMo word count (if you don’t know what NaNo is or you have opinions about the NaNo controversary, my take is here) before meeting Nan and a poet friend.

She could not get into ANY of her classes, nor ANY of her backups, nor ANY classes at all in her department. With my help, we found Intro to Women’s/Gender/Sexuality studies, Theory of Religion and Intro to Sociology. She’s also hoping– but probably doesn’t have a chance–to get into astronomy. The professor was on of her pet-sitting clients.

With this new course load, I think she should apply for an interdisciplinary major of her own design, the new BA in Cult Leadership.

I managed to pull 500 words for my novel before heading out to get Nan.

I decided to give Nan her “Christmas present” early. I put that in quotes because I would have gotten it for her regardless of the season. It kept popping up on the available Amazon Vine items that I can review. If you’ve heard about Nan enough, I probably don’t have to tell you she LOVES NASA. She has followed the space program since before man landed on the moon.

Nan won’t go out for the day if there’s a NASA event going on. She has cable simply so she can watch NASA TV.

I got her a decorative desk piece that has an astronaut on the moon with some sort of moon lander or rover. And the space suit has a ledge where you can place your cell phone and the lander thing is a pencil can. The most impractical gift for a blind person. It’s a sculpture you can’t see, with features for items you don’t use.

I’m relieved to say– she loved it. She loves that she can put her two pens that she keeps for sighted friends on her desk. She loves that the sculpture has enough detail that she can look at it. And she loves that for the first time, she has something space-themed she can display.

We took it up to her room and arranged it on her desk and headed to our appointment. We had made arrangements to meet a new friend, we’ll call her the Italian Poet. We were workshopping some of her poems.

Now here’s some motivation/inertia for you: If you write, paint, photograph, whatever, you must find others who share your artistic sensibilities and draw from their energy. Sometimes you share feedback, sometimes you seek inspiration together. Sometimes you learn, sometimes you teach. But the union of people in a space can build spirits and keep you going.

And after Italian Poet encouraged me to pursue my educational goals and I prodded her to finish her Ph.D., Nan and I embarked on our annual tradition: Gobbler bowls at Wawa.

We live a simple existence. Then we taste-tested a peppermint watermelon sparkling water. Nan did not approve. I did. But, as Nan says, I do seek out the weird stuff.

The Teenager used Nan and I for a photography project.

I went to the gym for leg day where I squat 120 pounds on the barbell for eight solid reps. Definitely liking that!’

A Sunday morning run to Grocery Outlet

This morning started out a little off, when I woke from some very odd dreams at 7:20 a.m. That is the latest I’ve slept since losing my job at the Stitch Fix Bizzy Hizzy September 15. For the last year-plus I’ve been setting my alarm for 4 a.m. so I have time to write before the day job. What made me sleep so late? I don’t know. I didn’t even do anything out of the ordinary yesterday. How do I know? I wrote about it here.

I then tried to do some state taxes I’m behind on filing because I’ve been locked out of my business account. One of my job interviews led to a ‘no’ Friday — and it was one I had gotten the best vibes from so I was very disappointed. As I filed for unemployment this morning and continued my job search that hung over me like a sad little cloud. I don’t want to call it a black cloud. It’s not that big of a deal. My phone didn’t charge last night and I was overall grumpy.

And then I noticed the payment to American Express I had planned as soon as I got the bill last month got hung up at my bank yesterday and even though I clearly had it scheduled, AmEx seems to think it was late and wants to charge me $29. I’m sure that will get sorted out tomorrow. I usually plan my electronic payments early, but I scheduled this one on the due date not sure when unemployment or severance would hit.

I thought about the meal plan for this week and realized I could think of nothing off the top of my head– never a good sign. Oh and the tracking information for my fix came from Stitch Fix. It shipped Friday, and I had requested it arrive Monday, and the tracking suggests it will arrive Thursday. That’s a little fucking late Stitch Fix. I have job interviews that require clothes!

So, I decided to go to Grocery Outlet to use my $5 off a $25 purchase coupon. I’ll tell you right now the unhappy ending. I forget to use my coupon. We still have today and tomorrow to use it, so I may make another purchase. I may not. $5 is not the end of the world these days. I called Nan, as I had ordered a vacuum for her, and thought she might like to go to Grocery Outlet. Of course she did, and she also loved the vacuum I picked for her.

I came home and not only put the groceries away but also tried to organize the fridge, freezer and cupboards. I had intended to make a baked brie with jalapeno cream cheese bagel for breakfast, but as I often do I ate instead “the things that had to get gone.” In this case, the last chunk of the fruit walnut bread my mother-in-law made and some flat generic diet cola.

I spent $50.14 at Grocery Outlet, and it could have been $45 but I forgot my coupon. Then we went to the Dollar Tree where I bought two packs of bagels (one plain and one everything) and a container of “limited edition birthday cake flavored milk” adding another $3.75 to the total. This will last me at least two weeks. (Also Nan gave me a pack of high fiber granola bars because she has more than she can eat.) Oh, and Joan gave us a green cabbage and some garlic from a local farm. I made the purple cabbage she gave us last week into sweet and sassy Asian slaw.

The purchases from Grocery Outlet:

  • Six inch whole wheat tortillas from Ortega, $0.99
  • Chef Boyardee, Spaghetti and Meatballs, $0.99
  • Snyders of Hanover Cheddar Sourdough Hard Pretzel pieces, $1.47
  • Rice noodles, (plain, pre-cooked, think like rice in the 90-second microwave bag), $1.49
  • Slim Jims, the super long ones, The Teenager sometimes eats these for lunch. Does it make my innards cringe? Yes, but sometimes I’m just relieved she’s eating something with protein even if it is a nasty, salty meat stick. Two at 2 for $1.00
  • KIND oat and honey with coconut snack bars, $2.77
  • Coconut Rice from Thai Kitchen, three 90-second microwave bags, 3 at $0.99 each
  • Elbow noodles, the tiny two serving packs, two at 2 for $1.00
  • i’m not sure I see the small bag of tiny vermicelli on the receipt, they were a similar price
  • Peanut Butter M&Ms, these were Nan’s, $0.97
  • Medium Egg Noodles, to go with the cabbage, $0.99
  • Snack pack of Oreos, also Nan’s, $0.79
  • Pacific Foods organic butternut squash soup, $1.97
  • Fancy French organic dijon mustard, $1.27
  • Pasta USA Macaroni and Cheese mix, 2 at $0.59 each
  • Almond Thins, Pecan variety, (we still have half that $7 wheel of Brie left), $0.99
  • Pretzel buns for sausages, 4 buns, $3
  • Laffy Taffy Tropical, two at 2 for $0.97
  • Organic Sliced Black Olives, 2 at $0.99 each
  • Stove Top Turkey Stuffing, twin pack, $1.99
  • Ocean Spray Diet Blackberry Cranberry Juice, full-sized jar, $0.77
  • Southwest Salad kit, $2.99
  • Broccoli crowns, 1 lb, $1.95
  • Organic raspberries, 2 pints at $0.99 each
  • Green pepper, $1.49/lb, $0.67
  • Small bag of radishes, $0.99
  • Boca chikn patty original, $1.99
  • Gardein stuffed turkey, $3.99 (my splurge)
  • Beyond Meat sweet Italian sausage, $4.49 (I thought these were cheaper but too late now)
  • Cinnamon Toast Crunch break-and-bake sugar cookies, $0.99

Review: The Stitch Fix client experience, from a former employee’s perspective

So, Stitch Fix was the first subscription-based, personalized clothing service. The company launched in 2010, as the lore has it on Valentine’s Day, and every year on Valentine’s Day, employees in our warehouse received the latest edition of the annual Stitch Fix t-shirt. I started with the company in their Pennsylvania warehouse, neighboring a small city named Bethlehem.

The facility itself was about a 1/4-mile long, and the smallest in the Stitch Fix network when I joined the team in November 2020. Our warehouse was nicknamed “The Bizzy.” During my time with the company, we had a network of six warehouses– ours was the second ever opened: The Bizzy (Bethlehem, Pa.), Breezy (Atlanta, Ga.), Dizzy (Dallas, Tx.), Hoozy (Indianapolis, Ind.), Phizzy (Phoenix, Az.), and Rocky (Salt Lake City, Ut.) And that doesn’t include operations in the United Kingdom.

The Rocky closed first. Bizzy is closing now. Dizzy is closing in a few more months. And Stitch Fix is pulling out of the UK.

Working for Stitch Fix

I loved working for Stitch Fix. They paid well considering the work we did. I was hired as part of an experimental shift during the pandemic, a second shift from 3:30 p.m. to midnight, to reduce the amount of people in the building at one time. We were called “The Midnight Society,” and we had badass sweatshirts. After midnight society, we moved to ten-hour cohorts to run the building seven days a week– in line with the Freestyle business, allowing clients to order their own items and have them delivered promptly. We live in a universe where those packages show up on our doorstep within a day or two. Eventually, that ended, and we were all folded into traditional day shift. I made three shift changes in two years, some of my peers made four changes in three.

The work was easy. The corporate culture was great. But all the change was hard. Many of us clung together like trauma victims, connected by the bonds of shared experience. And for me– if you know me personally or follow this blog you know this already– Stitch Fix allowed me to recover from past work experiences that shipped away at my self-esteem, explore my health issues and be honest about how my congenital disability impacted my body and my work life, and participate in a work environment where, except for some of that day shift crew that never quite accepted us, made me feel valued for my contribution and for who I am as a person in addition to my role as a cog in a very big wheel.

Even amidst closing our facility, Stitch Fix offered a lot of opportunity and support to displaced employees that they were not required to provide.

The Stitch Fix employee’s friend’s client experience

I clearly remembering sitting on my sunporch reading a Vogue when I learned that a woman named Katrina Lake had launched a clothing subscription service. I wished I could log on and subscribe to this then monthly– and only monthly– box service because I love fashion. I was watching Elsa Klensch on CNN back in the 1990s with awe. I adored Jean-Paul Gaultier and bought his then brand new perfume (it wasn’t Classique yet, it was the only one then) and a bottle of the oh-so-trendy Chanel vamp nail polish in Paris in 1995. (And the perfume spilled all over my suitcase on the flight home, leaving a wildly strong aroma and a very broken-hearted me.)

My novel universe, the Fashion and Fiends series of horror books, blends supernatural and paranormal monsters/events with the high fashion universe. It’s just a mix of art, function, commercialism and international influence that fascinates me. Here’s an excerpt from one of my academic papers on the topic, also from 2010.

So, mindlessly folding clothes in the Stitch Fix Bizzy Hizzy while listening to podcasts and building my publishing company, Parisian Phoenix Publishing, suited me just fine. I got to see the clothes, touch them, build the boxes clients would open, and watch the machine whirl around me.

Stitch Fix offers its employees a 40% discount. We don’t get any additional discounts, like the 25% buy all, and we still have to pay styling fees. But when I started at the company, I was a single mom getting on my feet after four months of unemployment and I had gained 30 pounds that I hoped to lose again.

I gave my discount to a friend. Stitch Fix allows employees to designate their discount to anyone of their choosing, but this election can only change once every six months. My friend and I opened her boxes together– sometimes in person, sometimes via Zoom. The first couple boxes were fun, but soon we both started seeing repetitions. The algorithm that Katrina Lake raves about seemed to suggest very similar pieces to those in previous boxes whether or not my friend had kept previous items. And certain notes to the stylist the algorithm would ignore, like despite “no sleeveless” or “no horizontal stripes,” those items would come in the next box.

After a year, I had to admit those excess pounds might not be going anywhere soon. I was ready to get myself some clothes. We ordered my friend’s last box with my discount. And we opened it. I have embedded the video below, and note I am wearing a top and a pair of Judy Blue jeans that I purchased from the employee store at the warehouse.

The Stitch Fix employee’s daughter’s client experience

The Teenager, who had just turned 18, comes to me and announces that she has no idea what her own style is because people have purchased all of her clothes for her thus far in her life. As part of her Christmas present, I agree to pay for six months of Stitch Fix so she can work with a stylist.

Now, let me just go ahead and ruin the ending– this was a failure. I even looked at her client file and saw a note that the algorithm would not allow her stylist access to anything my daughter wanted. I know my daughter did not interact with the quizzes, nor did she bookmark items as favorites. Instead, she uploaded photos. And I don’t think the AI can understand that.

The first fix was moderately successful, but the later ones seemed to repeat, just like my friend’s did. I actually had more luck going into Freestyle and selecting items for her. I hoped that would make it better. It didn’t. If you watch the video of The Teenager and her first fix, she’s wearing a Hiatus t-shirt from Stitch Fix that I bought for her at the employee store in the warehouse.

Finally, MY experience as a Stitch Fix client and an employee

I feel justified in saying that the algorithm does not do as strong as a job as Katrina Lake would like us to believe. I received access to my employee discount in April 2023, and in June I received word that my warehouse would close and was led to believe I would lose my job in October when the lease to the Bizzy expired.

I had interacted with the quizzes for more than a year. I clicked on photos for my inspiration board. I ordered items from Freestyle and selected items as favorites for later. In the beginning, the hits and misses I assumed were part of the process. I signed up for the annual style pass ($50) so I no longer had to worry about styling fees if I kept nothing.

And then it started– despite purchasing every item I could find that met my criteria, my stylist could find nothing that suited my needs. Despite seeing multiple of items at my station every day, my stylist reports to me that none of the warehouses have anything like that. Despite saying I don’t wear sleeveless shirts for business or that I don’t have the shoulders for open blazers or cardigans, I get sleeveless shirts and open cardigans.

My discount expires in a few weeks, and all I want is to score a couple nice interview outfits. Yet, my stylist can’t seem to find access to anything that’s not a sweater or gaudy. I set up a fix in a panic Friday when I realized I didn’t have a white blouse that fit. I have a pair of Liverpool plaid pants, a pair of Violets & Roses plaid pants, a patterned Liverpool pencil skirt and a bright pink Skies are Blue blazer– all from Stitch Fix and on record in the system as “kept” purchases and not one shirt.

I wore a sleeveless mid-century style sheath with princess seams to my job interview, Calvin Klein from Stitch Fix. But I didn’t have a blazer.

I received a Preview of my fix today. I asked for blouses to match the clothes they know I have. I received one white Calvin Klein blouse which I told them to send, but I have a cream Calvin Klein blouse which is too big and they are sending the same size. They offered two ugly old lady sweaters, that I declined. A plain black shirt that was way too boring for the price and probably a Henley. Two pairs of pants and the black Liverpool pencil skirt (and I can hear the note from my stylist: “since I couldn’t find blouses that match your skirt, I sent a new skirt), which I also declined.

I then hit up Freestyle and didn’t find much either. But a package should be on the way. I don’t have the money, but shirts are necessary in the workplace. My fix will arrive October 16.

Cautions about Stitch Fix:

  • I have worked returns. My friends work returns. Gross things get returned and Stitch Fix allows it. We have received pants with blood stains, clothes covered with animal hair, dildos and underwear. I found a pair of socks in a cardigan pocket. As a consumer you should wash any garment you buy before you wear it. Stitch Fix takes stuff right out of the return envelope and puts it right back on the warehouse floor.
  • Ants, bedbugs, spiders. Because Stitch Fix accepts returns directly from the consumer, we accept their filth and critters, too. Each warehouse in the Stitch Fix network is monitored for pests, including monthly inspections from a bedbug sniffing dogs. And a month before I lost my job, my neighbor at the table six feet to my right found a bed bug on a pair of jeans she was folding for a client.
  • The algorithm sucks. Every Stitch Fix warehouse is supposed to carry the same merchandise, yet I never received anything close to what I had hoped to get from my Fixes. When I complained that my stylist could never “find” what I wanted, I received a note that Stitch Fix often runs out of items in certain sizes. Ummm… I’m an average woman looking for a basic white office blouse.
  • The shipping times have dramatically increased since the announced closure of half the warehouses. When I used to receive items or fixes within a day or two, it now takes about a week and often more. Returns take a month or more.
  • Exchanges are slow and costly. Often they don’t have a piece if a different size when you want it. If they do, they charge you a second time and refund your money for the returned item about a month later. So if you order a shirt off Freestyle, pay $75, return it because it’s too small and ask for another, they charge you another $75 immediately. So, you order the first shirt, pay $75, wait about a week for the shirt to come, order a second, return the first, pay another $75, wait another week. Let’s say the second shirt is fine. You have $150 on your credit card. And you have to wait another 2-3 weeks to receive a refund of the other $75. That’s about five weeks debacle for one shirt.

Benefits of Stitch Fix:

  • I LOVE being able to open my Stitch Fix account and see my kept clothes. It reminds me what I have and also suggests how I can wear my items when I just don’t know what to wear. Today, the weather has turned cold. I had planned to wear my hoodie to breakfast but then Stitch Fix reminded me I have a very cute cropped brown sweater with billowy sleeves. And ironically, I think this might work with my Violets & Roses plaid pants for an interview outfit.
  • Prices are reasonable if you know what the brands usually go for and watch the Freestyle sales.
  • If clothes are damaged, they will replace them.
  • They have a wide variety of clothes at their fingertips.
  • They can usually deliver clothes for any occasion quickly, if you order a fix. Freestyle is slow as molasses.
  • They take ANYTHING back.

These are all of my videos regarding our Stitch Fix experiences: