I visited my neurologist/physiatrist yesterday for my four-month follow-up. Four months ago she recommended I join the Thrive medical fitness program with the hospital network. I met with her in November to discuss how I could move forward with exercise and strength training; I was scared that I would hurt myself working out alone.
According to her records, I lost six pounds! She was very happy to hear about and see for herself the gains I’d made in my strength. She reminded me that I was still “young enough” to keep making gains, whereas at a certain point the aging process makes it so that all we can do is maintain our strength.
I told her about my bumpy February, complete with several unexplained falls. She has some concerns about this, concerns that are mitigated by my fall-free March. I told her my theory that the change of seasons and sinus “stuff” might impact my balance– referring to my serious falls of March 2023– and reporting that I had not resumed taking my allergy medicine after a winter hiatus.
There are some other signs, some dealing with episodic urge incontinence and a recent bout of constipation, the strange weakness and sensations in my fingers, and my typical hyperreflexia that could suggest an issue with my spinal cord in my neck. So if anything changes or becomes more persistent, I have to let her know immediately and not “downplay” it. She referred to me as one of those patients who is “a trooper” and just keeps going.
So she wrote in my after visit summary as my main instruction to “make good decisions.”
How many of us could curtail a lot of our health problems if we followed that advice?
My next steps will be to focus on working out and continuing my progress with strength training and weight loss, reduce caffeine intake, and improve my cardiofitness. My next appointment is scheduled for the day after my cardiologist appointment, so hopefully I will have some positive trends to report to both of them.
My neurologist also made me promise that when I get my service dog, she gets to meet him/her sooner rather than later.
Today I had a lovely day with the chiropractor, then the dentist (then an iced coffee at Panera) and email exchanges with my OVR counselor.
So this will be a discussion of health, disability and my job search. I’m at the midpoint of my unemployment benefits and I’m freaking out a little.
Let’s back up…
I have only been visiting my beloved chiropractor (who used to be a physical therapist) Nicole Jenson of Back in Line Chiropractic and Wellness Center every three weeks or so, in part because without the physical labor of my warehouse job and without any complications in my gait I have not needed her. (And that’s kind of great because I also have terrible health insurance right now and no job.)
But today I went to see her, and she was very relieved to hear that my condition has been good and I have not had a fall since Sept. 30. And this was my second visit in a row with no symptoms to report. She was also very impressed with my progress with my fitness and strength coach Andrew at Apex Training. He has been pushing me hard with the weights and the core exercises all because of some pre-New Year’s resolutions we made at the gym.
Get weight under 150 (oh, how I was so close and failed so hard. I got down to 156 and stress ate my way to a new high)
Bench press 100 pounds (and I’m at 95 with more than a week to go)
Squat 150 pounds (Andrew sneaked this one in, and I have no idea if I’m near it)
Plank for 2 minutes (personal best currently at 1:10)
A dear friend pointed out that some of my exercise-induced asthma symptoms might actually be connected to caffeine intake, and Nicole definitely concurred that I needed to watch that also because of my balance issues.
And I’m still doing really well with balance and walking thanks to Andrew’s “lead with the knees” guidance.
After leaving Nicole’s, I headed to my six-month check up at the dentist. My dentist recently sold her practice– and she’s been my dentist for almost 35 years– but luckily the new dentist seems personable, smart and efficient. The staff complimented me on taking care of my beautiful teeth, to which I laughed and said, “really, let’s thank genetics because my dental habits are not what they once were.”
Then, at 1 p.m., I grabbed a KIND breakfast bar out of my bag for breakfast and headed through the Panera drive-through for an iced coffee. They offered a $3 per month subscription to their unlimited sip club for three months, and I love Panera’s iced coffee. So I treated myself. I had a meeting at Panera with the Echo City Team on Friday and I subscribed Friday a.m. I have since gone two more times.
By the time I got home, I had an email waiting from my OVR counselor. I decided that since I have some disability-related concerns about finding the right job for my next move, I would apply for assistance from the Office of Vocational Rehab. That way, the state knows I am doing everything I can to find a job. I spoke with my counselor on the phone yesterday, and had her chuckling. She said I am not her typical client, and in a way, it sounded like she was intrigued by seeing what she could do for me.
I compiled all the initial paperwork, and gave her another round today based on her subsequent requests. She’s had some interesting ideas on what her office might be able to do.
Then tonight at the gym, I was doing dumbbell rows with a 40-pound dumbbell and doing incline presses with a 35-pound dumbbell in each hand.
The last week or so I feel like my strength in the gym (Apex Training) has been dead on– the lifts have come easily and even as my feet/lower body doesn’t cooperate, I seem to get the job done without compromising my other body parts. Andrew, my fitness trainer and strength coach, has been a wonderful support and motivator as life has gotten dramatic and hectic for both of us.
Today I lifted a new PR on bench press– I am up to 80 pounds! As for flexibility and core strength, from my angle it fluctuates every day but Andrew points out a lot of his observations which suggest I am improving more than I might realize. I have noticed that I stumble less, even as my toes drag and my balance falters, knock on wood I have not fallen since Sept. 30.
I have gained back all of the weight I lost, between gin sours and peanut m&m’s and all sorts of chips from the Dollar Tree. And too much pizza! Even with The Teenager home after having her wisdom teeth plus a back molar removed, I’m still eating too much junk– milkshakes, cheese curds, the Wawa chicken fingers and french fries, Macs received for free with minimum purchase of a Diet Coke for me and a Sprite for the Teen all in the name of surgery recovery.
Meanwhile, I can see my muscles gain definition so I know if I’d stop putting junk in my body ALL THE TIME, I could really lean out and have great tone. But the immediate satisfaction of treats and savory, salty foods steals my discipline and knowledge every time.
As if that alone weren’t enough to kick my ass back where it needs to be, I’m starting to believe that the occasional out-of-breath episodes I’m having are symptoms of exercise-induced asthma. My allergies have been bad. The weight doesn’t help. And I noticed more and more that it comes on all of a sudden, even when I’m walking on a flat surface setting my own pace and not with anyone else, and I cannot get air into my lungs until I repeatedly take breaths through my nose and get a breath deep into my chest.
Today, it happened at the gym. I have never had anything like this happen at the gym. I was doing sets of 25 crunches on the exercise ball and really had trouble catching my breath at the end of the set. And I love those crunches! I normally knock them out like a beast!
Light Mobility Service Dog Update
Yesterday I was scheduled to meet with my caseworker at Susquehanna Service Dogs on Zoom. She asked if we could please reschedule for today and as I kept the end of the week open not knowing how the Teen would do with surgery, it worked out fine.
Today the Teen, myself and the caseworker met to discuss what my dog might be trained to do as a task for me, any concerns I might have, and some more updates about my lifestyle. The number one goal I have for this endeavor is to be able to go on walks by myself without fear. I miss my days of going for a 4-mile walk in the morning. I want that piece of mind. The other tasks that I asked for are help retrieving things from the ground when I can’t bend, carrying items I might have in my hand if I find myself struggling for balance, and getting a first aid kit if I need one.
My trainer Andrew announced that he thought I could bench 100 lbs by Christmas. This was after I benched 80 lbs for three solid reps. It was a new personal record for me and another reinforcement that I have regained strength in 2023, despite the health issues.
I told him that after the Christmas season challenges we already have listed on the public goal board at the gym, we need to add the next goals for my birthday in late May and another set for my 50th birthday in 2025.
But, even while my strength increases, my stress eating continues. Now, I aim for 1300-1500 calories a day so that even if I “binge” I don’t do too much damage. Nowadays, I often hit 2000 calories only on a bad eating day.
Today for breakfast I did not go for my usual bagel with cream cheese, avocado or even more decadent brie. I had one serving of Cabot cottage cheese (it’s very decadent and smooth), a golden kiwi, about a cup of raspberries, and a cold matcha latte, my style, made with sweetened matcha powder, unflavored whey powder and unsweetened, organic coconut milk that was delightfully hearty and robust. The breakfast came to 400 calories– including the cup of coffee with half and half I had four hours earlier (and come to think of it, I never finished it. Not only did it have lots of satisfying fat to tide me, but it also had 27 grams of protein.
I have a networking event I plan to attend later in the day, at a brewery, so I had lunch at 2 p.m. and decided to stay with the high protein low cal effort. I used a whole wheat tortilla to hold almost a cup of chopped romaine lettuce and a serving of Penn Valley homestyle chicken salad. I added a small glass of diet Ocean Spray ruby red grapefruit juice and a dessert– Chobani zero sugar Greek yogurt. That meal was a little more than 400 calories and also 27 grams of protein, but I did not finish the yogurt.
Tomorrow I have a working interview, my second, for a job where I would need black pants. So, yesterday Southern Candy, The Teenager and I went to the thrift store. My four pairs of pants came to about $8, and three of them fit.
My body turned to me as I went to my car after work today, and as I fiddled with the radio (calling up Natalie Merchant on Spotify singing Space Oddity), my body said to me,
“Jesus, woman, what are you doing? We need to talk.”
But seriously.
Let’s start at the beginning, shall we? But we can’t spend too much time on all this as it is 1:30 a.m. and my aching body craves sleep.
The teenager was up fairly early today so I suggested she and our almost 1-year-old pit bull/mastiff/black lab puppy walk with me to the gym, about 5 blocks away.
Now if you’re new here… I’m 46 years old, a former newspaper reporter. I have an amazing 17-year-old daughter. Her father and I separated two years ago but he lives nearby and is still an important part of our household. I have cerebral palsy. He has a club hand. I have recently started a quest to learn more about my body, restart my bodybuilding commitment (I was really into it six years ago) as an alternative to traditional physical therapy, and hopefully lose the 20 pounds I gained stress eating to cope with the toxic workplace of the last nonprofit I worked for.
So, the teenager, the dog and I walked up to the gym. F. Bean Barker is learning new manners everyday and the guys at the gym thought she was a beautiful dog.
And then the focus changed to leg day. Now, on upper body day I get to train like a normal person. On lower body day, my poor trainer has to balance my physical deficits with my desire to kick ass.
Or maybe I’m just as awkward both days, and I just never noticed.
Today was session six. It’s the last week of two sessions a week and next week we increase to three.
Please note: I have been in gyms lifting weights since college, which was about 25 years ago, and in recent years I’ve been in physical therapy to learn to walk, for balance, for the strain of my lumbar region caused by trouble with my S1 joint and my broken ankle. Every body is different. Every ailment or disability is different. It is a quest to balance what works for you, what your body needs and what hurts.
I firmly believe that nothing fixes the body like the right exercises. But for people with disabilities or health issues, it’s hard to recognize what pain you need to work through and what hurt is bad. As a weight lifter, I know muscle recovery pain. As a person with a disability, I often experience burning pain.
As a society, I feel like we invest so much money in medical tests, mental health, drugs, organic food, but we don’t want to pay for a trainer.
My trainer is getting to know me. He knows how to observe me. He asks questions about my mobility. We test exercises by going easy at first and adjusting them based on my performance.
And he reads me well.
There are times I can tell he’s afraid of pushing me too far and then I do the exercise and he makes it ten times harder because I surpassed his expectations. This makes him a good trainer because it means he’s testing my basic form and strength so I don’t get hurt. And he readsmy body language to see how I’m doing— not relying on my words.
A good trainer has to push you out of your comfort zone. But he also has to make sure everything’s executed for best impact and in a way that you don’t get hurt.
I have to admit, I hated him a little today. But I also love his full body approach. But when he tells me to do sumo squats with a 15-pound dumbbell and my toes pointed out AND make sure my knees “follow” my toes… I don’t know whether to cry or punch him.
It’s the gym— both those feelings are valid.
But let’s examine the issue. My knees face in.
This means to perform the motion he has requested, I need to move one foot at a time carefully into position. I need to really concentrate on balance. As I move, I need to keep my head up, focus on stretching the knees to position in line with my toes (which is not the way they go) while holding a weight and trying not to fall.
I was dripping sweat by the end of this session— before he hands me a kettle bell to end the work out with kettle bells swings.
When I got home, I made a massive high protein vegan pasta. See me make it here (this can also be my official “before” video.)
I ate 90% vegan today. Only animal products I had were half and half for my coffee and a pack of beef jerky at work. I almost had iced tea with local honey but the teenager spilled it when I left it on the dog crate.
This was dinner:
Speaking of dinner— tonight at the Bizzy Hizzy my team competed in the Stitch Fix olympics. We won the gold medal in the egg toss. I was relieved they weren’t real eggs.
In other news:
I almost started editing William Prystauk’s latest novel in the Kink Noir series.
My Poppy Z. Brite books have arrived.
I hurt. I hope it’s the good hurt.
My friend Joan not only brought us old linens, but scored a cat carrier and animal crate at a yard sale.
Yesterday, Black Friday 2020, I did something I never do— I went to a store. Two actually, Marshalls and Home Depot. I promised the teen.
We were already out-and-about due to agreeing to pet-sit for our cat fostering godmother: two personal indoor cats, two outdoor cats, two dogs, ten of the organization’s cats in the garage (including one kitten recovering from distemper) and 17 foster cats in the “cat alley” in her house.
Dog Lovin’
Distemper Kitten
Sweeping Cat Alley
Eddy Scritches
Eddy taste testing
Somewhere around this time of opening cat food cans, after perusing Home Depot for drain covers and paint stripper and checking out Marshall’s for Christmas gifts, the teenager goading me into ordering Little Caesars for dinner. I ate way too much pizza, watched an episode of The History Channel’s The World’s Strongest Man (Viking Challenge episode) on Hulu.
I went to bed early, as I had volunteered to go to work for an overtime shift at 6 a.m. My superpower— innate time sense—allowed me to wake at 3:56 a.m. when my alarm was set to go off at 4:30. My goodness is that an early time in the morning.
Fog and Misty were the only cats awake at that hour. Fog and I went out to the sun porch to enjoy a cup of coffee and some cuddles.
Meanwhile, Misty sat in the window sadly, expecting me to open it. When I didn’t, it either didn’t occur to him to use the door or he couldn’t figure out how to get through it.
The teenager made me a cup of iced coffee and put it in the back of the fridge so I could bring it to work with me when I left the house at 5:30 a.m. That coffee is so strong I don’t think I will ever sleep again.
It was so strange to see the sunlight streaming in the windows at the warehouse. Everyone working today was working on women’s inbound processing. So that was fun. And I even managed to run the tagging gun through my fingertip and someone manage to adhere the tag to the garment and my flesh. But it was dead skin so it didn’t bleed.
And for some reason, I felt compelled to try and remove my finger without ripping the tag off. And I did.
Angel Ackerman 