All things fitness, mobility and service dog

The last week or so I feel like my strength in the gym (Apex Training) has been dead on– the lifts have come easily and even as my feet/lower body doesn’t cooperate, I seem to get the job done without compromising my other body parts. Andrew, my fitness trainer and strength coach, has been a wonderful support and motivator as life has gotten dramatic and hectic for both of us.

Today I lifted a new PR on bench press– I am up to 80 pounds! As for flexibility and core strength, from my angle it fluctuates every day but Andrew points out a lot of his observations which suggest I am improving more than I might realize. I have noticed that I stumble less, even as my toes drag and my balance falters, knock on wood I have not fallen since Sept. 30.

I have gained back all of the weight I lost, between gin sours and peanut m&m’s and all sorts of chips from the Dollar Tree. And too much pizza! Even with The Teenager home after having her wisdom teeth plus a back molar removed, I’m still eating too much junk– milkshakes, cheese curds, the Wawa chicken fingers and french fries, Macs received for free with minimum purchase of a Diet Coke for me and a Sprite for the Teen all in the name of surgery recovery.

Meanwhile, I can see my muscles gain definition so I know if I’d stop putting junk in my body ALL THE TIME, I could really lean out and have great tone. But the immediate satisfaction of treats and savory, salty foods steals my discipline and knowledge every time.

As if that alone weren’t enough to kick my ass back where it needs to be, I’m starting to believe that the occasional out-of-breath episodes I’m having are symptoms of exercise-induced asthma. My allergies have been bad. The weight doesn’t help. And I noticed more and more that it comes on all of a sudden, even when I’m walking on a flat surface setting my own pace and not with anyone else, and I cannot get air into my lungs until I repeatedly take breaths through my nose and get a breath deep into my chest.

Today, it happened at the gym. I have never had anything like this happen at the gym. I was doing sets of 25 crunches on the exercise ball and really had trouble catching my breath at the end of the set. And I love those crunches! I normally knock them out like a beast!

Light Mobility Service Dog Update

Yesterday I was scheduled to meet with my caseworker at Susquehanna Service Dogs on Zoom. She asked if we could please reschedule for today and as I kept the end of the week open not knowing how the Teen would do with surgery, it worked out fine.

Today the Teen, myself and the caseworker met to discuss what my dog might be trained to do as a task for me, any concerns I might have, and some more updates about my lifestyle. The number one goal I have for this endeavor is to be able to go on walks by myself without fear. I miss my days of going for a 4-mile walk in the morning. I want that piece of mind. The other tasks that I asked for are help retrieving things from the ground when I can’t bend, carrying items I might have in my hand if I find myself struggling for balance, and getting a first aid kit if I need one.

Pregaming Thanksgiving

If you miss my ridiculous banter, you may want to visit ParisianPhoenix.com because most of my activities now relate to the publishing company because I’m trying to develop enough business to make a living now that Stitch Fix has closed its Bethlehem warehouse.

Speaking of Stitch Fix, one of my friends who has gotten fixes religiously since I started with the company got an email today that whatever warehouse shipped her fix instead of ours did not scan the package as it left the facility so neither Stitch Fix nor the carrier has a record of it. Therefore, if she does not receive a fix today or tomorrow, she is to let them know as then they have reason to believe it is lost.

Yup. Did I ever mention that we were the most efficient, safest working warehouse in the network?

Random Cat Photo:
Touch of Gray

Anyway, back to my day. I started my day assisting the Teenager with course registration at her college. She is studying BS psychology and had a good plan. She had courses and backup courses and I planned on catching up with my NaNoWriMo word count (if you don’t know what NaNo is or you have opinions about the NaNo controversary, my take is here) before meeting Nan and a poet friend.

She could not get into ANY of her classes, nor ANY of her backups, nor ANY classes at all in her department. With my help, we found Intro to Women’s/Gender/Sexuality studies, Theory of Religion and Intro to Sociology. She’s also hoping– but probably doesn’t have a chance–to get into astronomy. The professor was on of her pet-sitting clients.

With this new course load, I think she should apply for an interdisciplinary major of her own design, the new BA in Cult Leadership.

I managed to pull 500 words for my novel before heading out to get Nan.

I decided to give Nan her “Christmas present” early. I put that in quotes because I would have gotten it for her regardless of the season. It kept popping up on the available Amazon Vine items that I can review. If you’ve heard about Nan enough, I probably don’t have to tell you she LOVES NASA. She has followed the space program since before man landed on the moon.

Nan won’t go out for the day if there’s a NASA event going on. She has cable simply so she can watch NASA TV.

I got her a decorative desk piece that has an astronaut on the moon with some sort of moon lander or rover. And the space suit has a ledge where you can place your cell phone and the lander thing is a pencil can. The most impractical gift for a blind person. It’s a sculpture you can’t see, with features for items you don’t use.

I’m relieved to say– she loved it. She loves that she can put her two pens that she keeps for sighted friends on her desk. She loves that the sculpture has enough detail that she can look at it. And she loves that for the first time, she has something space-themed she can display.

We took it up to her room and arranged it on her desk and headed to our appointment. We had made arrangements to meet a new friend, we’ll call her the Italian Poet. We were workshopping some of her poems.

Now here’s some motivation/inertia for you: If you write, paint, photograph, whatever, you must find others who share your artistic sensibilities and draw from their energy. Sometimes you share feedback, sometimes you seek inspiration together. Sometimes you learn, sometimes you teach. But the union of people in a space can build spirits and keep you going.

And after Italian Poet encouraged me to pursue my educational goals and I prodded her to finish her Ph.D., Nan and I embarked on our annual tradition: Gobbler bowls at Wawa.

We live a simple existence. Then we taste-tested a peppermint watermelon sparkling water. Nan did not approve. I did. But, as Nan says, I do seek out the weird stuff.

The Teenager used Nan and I for a photography project.

I went to the gym for leg day where I squat 120 pounds on the barbell for eight solid reps. Definitely liking that!’

100 by Christmas

Yes, that’s Andrew and I

My trainer Andrew announced that he thought I could bench 100 lbs by Christmas. This was after I benched 80 lbs for three solid reps. It was a new personal record for me and another reinforcement that I have regained strength in 2023, despite the health issues.

I told him that after the Christmas season challenges we already have listed on the public goal board at the gym, we need to add the next goals for my birthday in late May and another set for my 50th birthday in 2025.

But, even while my strength increases, my stress eating continues. Now, I aim for 1300-1500 calories a day so that even if I “binge” I don’t do too much damage. Nowadays, I often hit 2000 calories only on a bad eating day.

Today for breakfast I did not go for my usual bagel with cream cheese, avocado or even more decadent brie. I had one serving of Cabot cottage cheese (it’s very decadent and smooth), a golden kiwi, about a cup of raspberries, and a cold matcha latte, my style, made with sweetened matcha powder, unflavored whey powder and unsweetened, organic coconut milk that was delightfully hearty and robust. The breakfast came to 400 calories– including the cup of coffee with half and half I had four hours earlier (and come to think of it, I never finished it. Not only did it have lots of satisfying fat to tide me, but it also had 27 grams of protein.

I have a networking event I plan to attend later in the day, at a brewery, so I had lunch at 2 p.m. and decided to stay with the high protein low cal effort. I used a whole wheat tortilla to hold almost a cup of chopped romaine lettuce and a serving of Penn Valley homestyle chicken salad. I added a small glass of diet Ocean Spray ruby red grapefruit juice and a dessert– Chobani zero sugar Greek yogurt. That meal was a little more than 400 calories and also 27 grams of protein, but I did not finish the yogurt.

Tomorrow I have a working interview, my second, for a job where I would need black pants. So, yesterday Southern Candy, The Teenager and I went to the thrift store. My four pairs of pants came to about $8, and three of them fit.

A day with the firecracker (some fun at the warehouse, and a trip to the doctor)

Work

I came into work today feeling my oats for some reason. I don’t even know why, but I quickly got sassy and playful. I started my day with strong numbers– but immediately I noticed one of my peers running support kept coming into my valley to give her friend work, when she wasn’t really in charge of our valley.

And the work she was bringing her friend was the easy work, the work I’m supposed to have access too and this support person didn’t share any with me. Just took it all to her friend– who has no reason to need the work that requires less bending.

I look around and I see other who have been given the same accommodation I have, but mine have not been adjusted for the day. And I don’t think the person I saw with three carts adapted has official medical paperwork. Yet, I had to trade work with a neighbor because my work did not meet my documented needs.

So I mentioned to my supervisor, maybe we could sit down with P&C (People and Culture, Stitch Fix’s HR department) to offer some final insight that the company does not seem to have appropriate, consistent policies in place to meet workers’ needs when it comes to reasonable, official ADA protected accommodations.

Not even thirty minutes later, the person who brought preferential work to her friend (who is the same person who messed up my fix last month if you were here for that saga) brought another cart of that work to my neighbor, I can’t recall if she has a name in this blog, so I’ll just call her my neighbor and fan (as she is reading my Fashion and Fiends novel series. Please buy books. I am losing my job after all.) My neighbor gave her the nastiest glare, and she walked off the floor and went to someone to complain. Then, she gave me the work.

The person who brought it to her apologized, and my neighbor explained to her very politely that I have documented medical issues. She said she didn’t know, but that’s malarkey because she told me to my face that she would only give me the work when she was certain she had enough for everyone else.

So she knows better, because she was admonished before. Even my neighbor mentioned that is really is ridiculous that every day I have to advocate for myself. And they had a really good system in place in the beginning, but too many people complained that they didn’t think it was fair.

But on the happy side, we had a popcorn chicken luncheon and left work at noon so that gave me a chance to rest before my physical and keep editing Road Trip, the fourth full novel of Fashion and Fiends.

Medical

When I arrived at my primary care physician’s office, half the office had lost power. Mercury is indeed in retrograde. I have lost four pounds recently. My blood pressure is good. I had no new complaints and I thanked the team for being so diligent and willing to listen to me throughout the craziness of 2023.

And to think– salt may have been the culprit all along.

My primary care physician read my neurologist’s notes and called her “smart” and “good” and liked her assessments and her approach to my care. So I mentioned to him that I have two questions I ask every new doctor.

  1. What do you see when you examine me?
  2. If I add you to my team, when should I call you?

This allows me to digest their observations and learn from them and know exactly which doctor to call and under what circumstances.

Then my doctor and I discussed medications, and I confirmed that I’ve felt great since weaning off my SSRI and that my new cardiologist and I agree that once I get through this job loss and transition into whatever else is next we will probably discontinue the beta blocker.

It’s always a good idea, he said, to minimize one’s medications.

I mentioned that I just didn’t think it would be a good idea to have an SSRI, a muscle relaxer and a beta blocker in my system. That’s why when he called and told me to stop the SSRI, I had already been lowering my dose.

I added to the conversation that I knew I had a responsibility to do what I could to solve the problem, because the medical establishment would eventually start throwing more pills at me if I didn’t improve. And that that is not a criticism of doctors, but an admission that I felt something was off so if I did everything I could do to give the doctors more clues, it would hopefully lead to answers.

He paused for a minute, and agreed with me, and basically thanked me for taking responsibility for myself and my health.

The Gym

Today, Andrew tried to cripple me with a leg workout. I can feel him challenging my range of motion and I love it. I did manage to deadlift about 120 lbs.

Spider-Man and Matcha Pie

I have a lot of little things to say that problem don’t belong together but today is the Lehigh Valley Book Festival at Bethlehem Area Public Library and I’m excited, a tad nervous and a bit super-focused and scatter-brained at the same time.

Parisian Phoenix Publishing has participated in events before but we have scaled up with our efforts and this event today.

So this post will cover:

  • Spider-Man: No Way Home
  • Health and Fitness
  • Pie
  • Cats

I think that’s about right.

So the teenager and I finally came to the current end of the Marvel Comics Universe movies with Spider-Man: No Way Home. Watching them sequentially, and for me, many for the first time, actually made a lot more sense than when I saw some of them the first time.

I got a strange déjà vu that I had seen some of these villains before, but at the same time I was confused because the memory was vague and distant.

So let’s just say, trying not to spoil it for others like me that are woefully behind in their pip culture, that this film incorporates some older films that will be familiar to Generation X.

The primary theme of this movie, in my opinion, is time travel. The actual plot is a tad weak and melodramatic but the homage made to the previous generation of Marvel movies, and the humor employed in this movie, make it worth it.

My favorite Spider-Man is Toby Maguire. I got to see him again. And that made my heart happy. (Toby is also the Spider-Man adored and referenced by supermodel Adelaide Pitney in my chick lit/horror fiction novel, Manipulations, the first in the Fashion and Fiends series.

I had a very good visit with my chiropractor Nicole Jensen of Back in Line. She’s impressed with my progress and got things to pop and move (my right ankle that I broke more than five years ago) that haven’t popped and moved in a long time.

My Later, Andrew at Apex Training worked out every muscle he didn’t the day before (okay that’s an exaggeration) and the teenager set a new personal record in deadlifting: 225 lbs.

Finally, I get to the part I’ve been waiting for: PIE! If only I weren’t trying to be so health conscious… Because I have been visiting the amazing pie ladies Anne and Lisa at Pie+Tart for three(?) years now and their pies (and flat white coffees) have nurtured my soul through some difficult times— and a very very toxically difficult boss.

I receive their weekly email and saw their “freezer section” of leftover discounted pies included a steak and Guinness pie and a matcha custard pie. A meal inspired by two of my favorite drinks.

I was so beyond excited to eat these pies I was vibrating at “the pie hole” which is what they call their window/doorway. It has allowed them to stay in business safely during Covid because how would we survive sans pie.

I can improvise plenty of solutions for lack of toilet paper but I can’t make pie like this— not even with my Pennsylvania Dutch family connections.

I couldn’t even wait for the matcha custard to thaw. I sawed at it with a knife, broke it in pieces with my hands and microwaved a slice for 30 seconds. It was delectable.

And the steak and Guinness pie? So rich and full of meaty goodness I didn’t even have a chance to take a photo.

Oh how I love my pie friends.

And finally the updates regarding some of the cats we are fostering through Feline Urban Rescue and Rehab, Mars has taught Khloe to play and Minerva is becoming much more social. As is Louise.

A Saturday morning fitness surprise and a delicious breakfast

So good morning all, and I have to say it’s a gorgeous Saturday and I had another great workout at Apex Training with my trainer Dan.

Me in my Best Strong t-shirt

The photo is actually from Thursday’s workout, taken by Dan so I could tag #NickBestStrongman on social media, which I did and his official Instagram account started following me.

But today, the teenager got up early and came with me to the gym. The teenager is super strong and very balanced with the use of her body, full of power, so I wanted her to have the chance to really lift.

I think she’d be an amazing powerlifter.

And she did most of my weights at the gym today without breaking a sweat. Flexibility is her weakness. Balance is mine. Well, other than the cerebral palsy.

The teenager and I did a barbell bench press of 55 pounds, and did some hex deadlifts as well.

I came home and had an almost vegan breakfast— cream of wheat, vanilla soy milk, fresh artisan cashew butter from The Peanut Company in Cape May, dried blueberries, chia seeds and the one animal product, local honey. That was so delicious.

Are disabled athletes more mindful?

Barbells might be my new obsession. Remember my new shirt from the Fitness Tee Company in Michigan?

“Let’s hit the bar.”

I bought it after my first bench press with the barbell. I have always wanted to lift barbells. I’m fascinated with power lifters, and admire women like Meg Squats. She recently had a baby, but to stay on topic, here is one of her lifting videos: 5 things I wish I knew before I started lifting.

So when my trainer first put me on the bench with a barbell, it was in part to evaluate me. What he didn’t know was my secret burning desire to do it. And it did not disappoint.

Those first couple lifts I learned so much— about form, about using “power zones” in the body, and how a simple bench press uses most of your muscle groups. Fascinating. To see other people do it hints at the complexity, but to do it yourself is a true lightbulb moment to the depth of the interactive mechanics of the human body.

Today I did my first one plate barbell deadlift. Pretty much because my trainer said, “You could totally lift that,” and pointed to the barbell on the floor.

And I said, “I’ve always wanted to.”

You could totally lift that.

Dan, my personal trainer at Apex

So he let me deadlift the one-plate (on each side) barbell. I mimicked his form, which appeared to be underhand and it was a totally different kind of effort from the dumbbell deadlifts I previously completed. Those seemed very concentrated in the butt and legs, these included more of the body in a fluid way.

I did three in that first set and returned to my dumbbell circuit— 10 lb dumbbells in a swing style motion up to a press, 10 reps, followed by 10 bicep curls— before back to the bar. This was my cool down set of the day. And I did 3 more additional sets at the barbell— a set of five, another circuit with the dumbbells, then eight at Dan’s urging, another circuit, and he asked for another eight, but I tapped out after five.

I determined that I prefer underhand grip. Overhand grip puts too much stress on my lower back. Mixed grip is awesome, too, but I think that may require some work before I can up my weight. Mixed grip forces a certain instability and requires more focus on balance, which as a balance exercise would be stellar.

But what does any of this have to do with athletes and disability— the idea I propose in the title?

I have no athletic talent what so ever. My coordination is awful. I tend to walk “all done f*cky” when my health is poor or I am fatigued. I also deal with a myriad of aches and pains from walking crooked and associated issues with my S1 joint.

But my trainer often comments on my form, well, once he reminds me to point my toes for a squat or perfect that lean for a row. He’s even commented that I’m “built for that” while we do certain exercises. That once I correct manually what my brain can’t make my body do automatically, that I use a very deliberate form.

As I’ve mentioned before my weight training is very meditative for me because I am counting (something my trainer and the teenager were discussing because she said even with a decade of band she can’t count) and my trainer said I was good at keeping count, but that many of his clients needed assistance. I am also thinking about control in every motion of the exercise— from each body movement, to pace and control.

And on top of that, I try to note feeling and body function. Though that is touchy. In a “leg day” session a week or two ago, Dan said he noticed something strained about the lift I was doing. He wanted to know if it were legs or back bothering me.

I had to do an extra rep of the exercise to answer him. Because I hadn’t noticed.

“Ankles,” I answered. “My ankles are stiff and shaky today.”

All of this makes me think, and question, how those of us will a mild physical disability like cerebral palsy might be better athletes because we don’t have talent or physical advantages. But we know our bodies and we are accustomed to acknowledging the details of our bodies and their functions.

Does the fact that I am required to concentrate on every motion make me more prone to perform that motion closer to perfection than someone who can breeze through it without thinking about it?

Compelling idea.