On the Eve of Ida: A Disability Storm of Meeting Expectations in the Workplace

I left for work today with the remnants of Hurricane Ida dumping sheets of rain on the Lehigh Valley, and I was honestly thinking that I’m grateful to have a job I like and a wage that keeps me from feeling like I’m on the verge of poverty.

With my past stressful work experiences I like the challenges and the environment at my warehouse job.

Because this post discusses my disability and its impact on my work performance and the struggle this creates for my employer to be fair, I am not naming that employer. If you read my blog with any sort of regularity, you know who it is. Let me be clear: I am NOT critiquing my employer or my local warehouse’s management.

I want to share the thoughts and questions as they run through my head.

I essentially fold clothes for a living. I often wonder what would happen if we made piece rate instead of the current wage. I make $18 per hour to fold clothes, but the expectation is that I will fold at least 90 items per hour. Now, I’m oversimplifying.

Most of the time, I reach 96-99% of this number. Tonight and Monday— 99%. Friday might have been 97%. But 3-4 days a month I only do 85.

My supervisor keeps asking what “they” can do to help— especially since in my weekly observations I routinely get 108%. It really bothers them that I am not at 100% or even consistant. My supervisor periodically makes it sound like she has to defend me in HR meetings.

I want to be able to say you are fully performing.

Supervisor

I have cerebral palsy, arthritis in my S1 joint and am also struggling with anemia. How do I explain this converges with my menstrual cycle not once but twice a month to leave me fighting pain and discomfort no medication I’ve found can touch?

How do I (and why do I have to) explain that cerebral palsy means the messages between my brain and my body don’t fire correctly and that my muscles stiffen?

How do I explain that anemia prevents me from moving any faster?

They give me examples of accommodations— sitting throughout the night, for example. (That would make my back stiffen even worse.)

I was told tonight that every employee needs to meet three areas of expectation— attendance (I got that), “culture” (meaning I have a good attitude and demonstrate their corporate values) and job performance.

I need to meet the numerical metrics in two work centers. So far, after ten months, I am 96-99% on one. And I seem to be a C student in all the others.

I get it. It’s a warehouse. You need metrics. We need to meet the numbers. But I’m so damn close. It’s not like I’m miles away. 99%.

I hope they really help me succeed. There was discussion today of potentially needing to take a medical accommodation form to my doctor. The problem with that is— my doctor doesn’t understand CP. I am still looking for the same answers my employer wants.

Am I wrong to want to do physical work when I don’t have the same body as everyone else?

Why I canceled Silk & Sonder despite amazing customer service and a quality product

I subscribed to Silk & Sonder in May, a birthday present to myself.

Read about my previous experiences and thoughts here: Silk & Sonder blog posts

Silk & Sonder unboxings:

August

May

After working out some delivery issues with customer service, I loved this product. But as lives go, mine got busy and I started using my journaling time as workout time and have been unable to find a time where I am rested enough and still enough to benefit from these activities.

Each month more and more of the planner remains blank because I can’t keep up— and that stresses me out.

I think I can incorporate some of the items I really like— monthly mood and habit trackers— into my current journaling practice.

But I would love if Silk & Sonder developed an annual planner that would allow exploration of this topics without feeling like I’m starting the over every month.

And as my life gets busier, making sure my paper planner and my phone calendar match has been exceedingly difficult.

Le Creuset: A broken skillet and a whole lot of memories

Last week, my Le Creuset skillet affectionately known as Baby fell off the kitchen counter and the handle snapped off the pan.

For our tenth anniversary, my husband and I bought each other Le Creuset at Williams Sonoma in lovely Marseille Blue.

My husband got a tea pot, as we had struggled to find a decent one for his evening peppermint tea and my Traditional Medicinals Valerian Nighty Nite.

My daughter melted the tea pot.

The skillet means a lot to me. Always has. This skillet was one of those purchases that I splurged on and wondered if it would be worth it.

I also have some Lodge cast iron cookware I picked up at Target for a fraction of the cost. Is Le Creuset worth the extra money? I honestly don’t know. But I do know my Le Creuset skillet never disappoints me.

I’ve been cooking in it since 2009.

So I filed a claim with Le Creuset. They got back to me and said the injury sustained by Baby was not a manufacturer’s defect and therefore not covered under their warranty.

But they offered to send me a new one if I destroy the old one.

And I realize… one can’t destroy a cast iron skillet and it seems very wrong to relegate to a landfill. And I can’t throw it out. I can’t.

Some of the best times of my now defunct marriage revolve around that skillet and I told the customer service rep that.

Your claim does not fall under our Limited Lifetime Warranty coverage. Our warranty only covers manufacturer defects. The damage to your item was caused by falling onto a hard object or hard surface. What we would like to do as a one-time courtesy is to offer to replace the item for you at no charge.

Samantha, customer service, Le Creuset

She says a new one is in the mail. I am so surprised at how upset the idea of “losing this one” makes me.

Are disabled athletes more mindful?

Barbells might be my new obsession. Remember my new shirt from the Fitness Tee Company in Michigan?

“Let’s hit the bar.”

I bought it after my first bench press with the barbell. I have always wanted to lift barbells. I’m fascinated with power lifters, and admire women like Meg Squats. She recently had a baby, but to stay on topic, here is one of her lifting videos: 5 things I wish I knew before I started lifting.

So when my trainer first put me on the bench with a barbell, it was in part to evaluate me. What he didn’t know was my secret burning desire to do it. And it did not disappoint.

Those first couple lifts I learned so much— about form, about using “power zones” in the body, and how a simple bench press uses most of your muscle groups. Fascinating. To see other people do it hints at the complexity, but to do it yourself is a true lightbulb moment to the depth of the interactive mechanics of the human body.

Today I did my first one plate barbell deadlift. Pretty much because my trainer said, “You could totally lift that,” and pointed to the barbell on the floor.

And I said, “I’ve always wanted to.”

You could totally lift that.

Dan, my personal trainer at Apex

So he let me deadlift the one-plate (on each side) barbell. I mimicked his form, which appeared to be underhand and it was a totally different kind of effort from the dumbbell deadlifts I previously completed. Those seemed very concentrated in the butt and legs, these included more of the body in a fluid way.

I did three in that first set and returned to my dumbbell circuit— 10 lb dumbbells in a swing style motion up to a press, 10 reps, followed by 10 bicep curls— before back to the bar. This was my cool down set of the day. And I did 3 more additional sets at the barbell— a set of five, another circuit with the dumbbells, then eight at Dan’s urging, another circuit, and he asked for another eight, but I tapped out after five.

I determined that I prefer underhand grip. Overhand grip puts too much stress on my lower back. Mixed grip is awesome, too, but I think that may require some work before I can up my weight. Mixed grip forces a certain instability and requires more focus on balance, which as a balance exercise would be stellar.

But what does any of this have to do with athletes and disability— the idea I propose in the title?

I have no athletic talent what so ever. My coordination is awful. I tend to walk “all done f*cky” when my health is poor or I am fatigued. I also deal with a myriad of aches and pains from walking crooked and associated issues with my S1 joint.

But my trainer often comments on my form, well, once he reminds me to point my toes for a squat or perfect that lean for a row. He’s even commented that I’m “built for that” while we do certain exercises. That once I correct manually what my brain can’t make my body do automatically, that I use a very deliberate form.

As I’ve mentioned before my weight training is very meditative for me because I am counting (something my trainer and the teenager were discussing because she said even with a decade of band she can’t count) and my trainer said I was good at keeping count, but that many of his clients needed assistance. I am also thinking about control in every motion of the exercise— from each body movement, to pace and control.

And on top of that, I try to note feeling and body function. Though that is touchy. In a “leg day” session a week or two ago, Dan said he noticed something strained about the lift I was doing. He wanted to know if it were legs or back bothering me.

I had to do an extra rep of the exercise to answer him. Because I hadn’t noticed.

“Ankles,” I answered. “My ankles are stiff and shaky today.”

All of this makes me think, and question, how those of us will a mild physical disability like cerebral palsy might be better athletes because we don’t have talent or physical advantages. But we know our bodies and we are accustomed to acknowledging the details of our bodies and their functions.

Does the fact that I am required to concentrate on every motion make me more prone to perform that motion closer to perfection than someone who can breeze through it without thinking about it?

Compelling idea.

A little bit of life updates: from warehouse work to cat fostering

This particular blog post will touch on brief updates of multiple areas of my life.

1. My new phone: The refurbished iPhone Xs sent to be my Square Trade has developed a green line in the display. I went to report it and their website is down for maintenance.

2. The laundry room project: The teenager has selected a color with the help of her grandmother, polka dot skirt.

3. Hungryroot and Purple Carrot: Yesterday’s meal kit was Purple Carrot’s Palestinian Spiced Peppers with Crispy Seitan and Tomato Caper Relish and Lemon Dill Rice. We also cooked the Chicken Bruschetta Burgers from Hungryroot. Everything was amazing.

4. Work and/or Disability: starting Thursday night my body was stiff and my right leg is giving me so much trouble. It appears to be the perfect blend of weather (tropical storms), hormones (ovulation) and disability (cerebral palsy). I was very uncomfortable.

But my numbers at the Stitch Fix Bizzy Hizzy have been consistently decent— I QC’ed 46 fixes from 3:30 to 6:30ish, and then picked an M cart in 20 minutes before clocking out at 7:05. The night prior I was on “mailer machine” (a folding machine that operates with a lot of compressed air) that they call creased lightning.

5. Foster Cats: someone expressed interest in Louise. Here’s a video of her last night: Louise

FURR Khloe
FURR Shady

6. The Gym (Apex Training): I did my first one plate barbell deadlift. I’ve always wanted to do barbell lifts. So far I’ve done bench press and deadlifts. Today I did four sets: one of three so my trainer could evaluate the weight of the lift, a set of five, another of eight, and a final of five.

He didn’t tell me how much weight that was— but my research from Mr. Google says the bar is 45 pounds and the plates are 20 kg. That together it’s 135 pounds?

First Experience in Home Improvement vs. Home Repair

My husband and I moved into this house in late January 2003. As with any older house, there is an endless list of things that need to be done— from bathroom sinks that flood the house to ceramic walls that fail to sewer lines that crack and hot water heaters that fail. And back decks that threaten to collapse.

Home ownership is not for the feint of heart.

But this is the first time in almost 20 years I am undertaking a home improvement project versus a home repair. And it’s a small one, but it’s still a roller coaster.

I’ve been through two small mom-and-pop appliance stores. Times have changed. I used to go to a family-owned appliance store (Schaffer’s Appliance in Easton) where I could walk in the door (like Norm from Cheers) and they didn’t know my name but they knew my Maytags.

I could walk in and say, “I need the stove to match my refrigerator” and they usually knew off the top of their heads what model I had. If not, they had a small box— like a recipe box from back in the day— where an index card listed my name, contact info and all my appliances.

I miss those days.

When my original Maytag Performa washer (circa 2000) died about four or five years ago, Schaffer’s had sold the business to another small shop. But now that shop has closed.

When my original refrigerator (alsoMaytag circa 2000) died two years ago, the replacement came from Best Buy and the experience was decent but I hate the fridge. When Schaffer’s delivered a fridge, they delivered it cold. They ran it at the shop to make sure it was good to go.

So now I’m building a laundry room.

I ordered a Samsung washer dryer combo from Lowe’s, based on various reviews I read online. At first, I had some issues ordering as I did it online and I’m not sure I got all the connectors/plugs.

Last night I received a call from Lowe’s asking if I really meant to order a washer and a dryer. I got nervous I accidentally ordered two pair. The person on the other end assured me I only ordered one pair.

The very nice person called back stating that they didn’t have my dryer, in any color, but they could deliver the washer. I told him I had a washer so I didn’t need two washers. I needed a dryer.

This confused him.

I’m building a new laundry room, I explained, so the combo has to be stackable. The old dryer has been dead for three years, but the washer is fine. It’s just not stackable and it’s not coming up from the basement.

So we canceled my order and he said I could come into the store and special order something but that Samsung could take months.

This made me grouchy, but such is life.

He called back at 8 p.m. and said he mentioned my plight to his manager and she found that model of washer/dryer that someone had recently canceled and I could have it.

So appliance delivery on again.

But out of three handymen with electrical experience I contacted only one even contacted me. My neighbor offered to help, but with the time frame, I have about ten days to figure this out.

Thumpy thumpy Tuesday: Tales of Plumbing, Food & Fitness

I set my alarm for 7:15 a.m. today which when you are used to working second shift is ungodly early.

Why would I do such a thing?

Because today is plumbing day! Lehigh Valley Plumbing, owned by Alan, is the plumber who bought the business of my previous plumber when he retired. Why are there no young plumbers left?

Today is the day Alan came to rip out my old, rusty fairly utilitarian and industrial shower in my downstairs bathroom so I can convert it into a half bath and laundry room.

He also needs to fix the sink in that bathroom but he’s doing that another day. I think it’s because he didn’t have the right part. Though he could be waiting to see how the washer and dryer fit.

Work in progress

Turns out the bottom of the shower is a massive concrete slab. Alan couldn’t move it by himself and, like so many other employers, can’t find people willing to work.

The teenager tried to wrestle up some help, but our firefighter neighbor is sick and his teenaged son didn’t have time.

I figured I could ask the guys at the gym— and offer to pay cash.

But then the teenager said, as she and the other teenager started to maneuver it. “Mom, it’s not that heavy.”

**It’s at least 100 pounds. Maybe 200.

“We can do it, Mom.”

The plumber looked aghast. But we did it. We totally carried it out the back door, rolled/maneuvered it down the steps, and used the hand truck to move it to the front of the house.

Shower slab

To celebrate our success I made smoothies:

  • Fresh mango
  • Plain Greek yogurt
  • Frozen orange juice concentrate
  • Vanilla extract
  • organic vanilla milk
  • Fresca

Then, I headed to the gym. Dan had me doing upper body supersets including 20 lb dumbbell each arm incline bench presses where he had to assist. But damn it was a good workout.

Came home and made an ooey gooey egg sandwich on multigrain thin with cheese, avocado and Hungryroot’s spinach artichoke dip.

Today has been filled with drills, saws, banging and now an overloaded washing machine making thump stuff

Review: Finished the first week of Purple Carrot

Purple Carrot now wins the distinction of being the first meal kit delivery service I have used that I have managed to make all the recipes without getting sick of them or sick of the effort.

Hungryroot is a very close second because I still didn’t eat half their food— some of their entrees are in the freezer and I still have tofu, green chile sauce and lemon tahini in the fridge.

Today I finally finished Thursday’s ramen— and I made the last recipe: Tropical Avocado Cakes. Except just like when I make falafel or from-scratch veggie burgers or my zucchini cakes, they turned out like hash or home fries instead of patties.

Quinoa-white bean-garlic-avocado and lime zest patties with purple cabbage, mango and avocado in lime juice and scallions for dressing and a pickled jalapeño-vegan/soy free mayo aioli. I mixed it all into a big pile and gobbled it up.

Just me and the animals

The teenager and I did some cleaning today— all getting ready for the plumber to start building my laundry room on Tuesday.

The bathroom off the kitchen now looks like this:

But on Tuesday the shower is coming out to make room for a stackable washer dryer.

Meanwhile, after the gym and while the teenager was off at the diner doing her work thing, Feline Urban Rescue and Rehab foster cat tripod Louise and I did some more work on the fourth volume of the Kink Noir series by William Prystauk, a gritty erotic look at all the definitions of love with a hearty dose of darkness.

Then FURR Khloe came to relieve her. Apparently I need babysitting.

FURR Khloe

At 6:30 pm, I harnessed up the dog and we went to try a $3 pumpkin spice cold brew at Dunkin and pick up the teenager at work. The woman in the drive thru gave Bean a munchkin but she didn’t like it— probably because it was round. This mutt can’t eat round items.

And then old neighbors stopped by and we got to visit and hang out in another neighbor’s yard while there was quoits happening.

Isn’t that what Saturday should be?

Let’s Shellybrate: a wedding in the midst of rain

I noticed last night that I was exceedingly tired and falling asleep at 8 p.m. Today my right hip and leg felt weird. Like nerve discomfort weird.

Being me, I ate some Cool Ranch Doritos and went to bed. I slept from 11:30 p.m. to after 9 a.m. The teenager noticed that my left foot was not doing what a left foot should be doing.

But the teenager and I had an important wedding— an old Target café peer who worked as a barista and made all my favorite drinks.

So we drove the 70 miles to coal country and saw this wonderful woman get married.

Grandpa Jack’s Toast