Everything Wrong with America

I miss my more carefree days– which didn’t seem carefree, until now, when I have several appointments after each 8-hour workday in the warehouse, health issues to sort, a job hunt and debt to pay. Life is never simple or easy for most of us, but 2023 has, for me, felt like eternal optimism and hope while being bludgeoned. I get my proverbial sh*t together, and something outside of my control decides to parachute into my life.

When Stitch Fix announced closing the Bizzy Hizzy, they scheduled all sorts of guests and workshops for us as displaced employees. My separation date is September 15, so I have four more weeks, or two more paychecks, depending how you look at it. One of the workshops Stitch Fix hosted, and paid us to attend, was a visit from the state “Rapid Response” team to explain how unemployment and career services from the state work. They handed us a booklet that told us how to survive our layoff. (Surviving a Layoff: Your Guide to a Soft Landing and a Smooth Re-entry by Harry Dahlstrom. Mr. Dahlstrom, I’m sure you’re a very intelligent and likable person, but your advice is written for middle class Americans with two cars and their own house.)

“Remember that emergency fund with three-months pay stashed away…” Oh, Mr. Dahlstrom. Do you not have a child going to college this fall? Or medical debt? Or a used car that needs constant repairs? Or a teenager whose car insurance costs $500/month because of an accident? That’s just me. Others might have a disabled or unemployed spouse, student loans, bad credit that led to predatory loans for everyday items… or maybe they just recently got this job and had been using their credit cards to survive.

“Reduce your thermostat to 68 degrees.” Oh, Mr. Dahlstrom, mine has been at 64 for two decades.

“Trim your entertainment.” I don’t have cable. I don’t have any streaming services (though the Teenager has Spotify, which she pays for, and she also bought HBO Max and made for the year upfront.) I don’t even have home internet, relying on my phone’s hotspot and public connections. I think the last time I went to a movie was two years ago.

“Prepare a weekly menu” and “put back 10 percent of the things in your [grocery] basket.” Oh, Mr. Dahlstrom. I spend $250 on groceries for myself each month, that does not include the Teenager as she buys her own groceries. And I do get coffee or a donut out, which adds up to about $25 a month, which I consider reasonable as, as you mention, I search for discounts.

Other advice includes: “collect old debts,” “turn unwanted things into cash,” “change your lifestyle,” and “bring in the paying customers” using a talent or skill. Because my half-a-double home that I pay about $900/month for is full of useful items? I haven’t even had a vacation in about five years. And my talent? It brings in about $150/month on a good month.

“Unload the family jewels.” Mr. Dahlstrom, I’m so frugal I wouldn’t even let my husband buy me a diamond for my engagement ring. When we got married, we used Irish claddaghs so all I had to do was switch it to the other hand. I don’t own a single piece of jewelry or any item worth anything. My car is a 2015, my computer is a mid-range model, even my Brooks Brothers suit is 15 years old at this point.

But this is what’s wrong with our country. As a society, we assume everyone “poor” or experiencing financial trouble or unemployment is in that situation because they are irresponsible, stupid or did something wrong. And sometimes that poverty or situational bad luck is due to society’s expectations.

For example, starting with my generation (the GenXers) we insisted that our kids go to college and saddled them with loans to do it. Then, we flooded the market with bachelor’s degrees, which rendered them meaningless, and started pumping up the value of master’s degrees. For those of us associated with the arts or wishing to pursue an academic trajectory, a Ph.D. is now required and some perfectly talented individuals with MFAs are now trapped in a life of eternal adjunct status.

And the poor Millennials also fell victim to this higher education fiasco except the cost has skyrocketed and these poor kids are starting their lives with student loan payments that rival my mortgage and they can’t land a job with a living wage so they work in warehouses with the same people who skipped the education in the first place.

Now, add to that the way the medical system works. In my opinion, and this is just my opinion, more people than ever need some sort of medical support in their life. Whether it be disability, illness, mental health struggles or maintenance medication, it seems like more people than ever spend a ridiculous amount of their income on healthcare.

I have been extremely fortunate that my mathematical brain allowed me to calculate costs and I determined that the free to me high deductible health plan, when you included the employer contribution to my health savings account and a $50 contribution from me to that same HSA each paycheck, paid for most of my medical costs this year (except for my mental health therapist, who for some reason, the medical insurance company likes to pretend doesn’t exist. They just won’t communicate with him or pay him).

Now, before I continue on this rant, I don’t understand why healthcare in this country is primarily connected to employers and employment. Why is it an employer’s responsibility to provide access to healthcare? Eliminating this ridiculous practice might be a good first step to getting healthcare under control. If you meet certain criteria, you can qualify for government-sponsored insurance, which also dictates the level of care you receive, and the open marketplace for healthcare is expensive.

I just don’t understand why everyone isn’t pushed to the open marketplace OR why everyone can’t qualify for government insurance. If everyone went to the open marketplace and insurance companies had to compete for individuals instead of corporations perhaps the access to care would change. In other words– even a company like Stitch Fix– has thousands of employees. If insurance company had to court those individuals and families, they would have to work a lot harder to court them versus convincing one corporation to allow them to insure a large group of individuals.

I missed a month of wages after my hospitalization, which due to the one week waiting period, even with my employer-sponsored short term disability insurance, only provided three weeks of wages at less than 67% of my normal wage, and on top of that the company administering those payments misplaced my paperwork which meant I had to repeating submit paperwork and did not get the last week of those wages until one full month after I returned to work. And my doctor had to submit three sets of paperwork. Which, technically, costs $25 a form for the doctor to submit.

And because I have a congenital and permanent mobility disability, I always need physical therapy. But physical therapy sessions cost hundreds of dollars and insurance companies limit access to them. So I hired a personal trainer and pay him $25 a session (which bless him, he has now reduced his rate to contribute toward my fund to pay for my service dog which is another $5,000) and I bet Mr. Dahlstrom would say I should eliminate that from my budget as an extraneous expense.

But Mr. Dahlstrom, I imagine, does not live with a disability and has probably never experience what it’s like to have a leg that just suddenly stops working or a hip that feels like it’s waving to people from my butt. And since my muscles and my brain literally cannot communicate, I have to physically show them what to do so that movement is reduced to muscle memory and does not have to include the brain.

In closing, I’m going to end this long and winding blog post with a celebration that also highlights everything wrong with America. My friend Southern Candy from Stitch Fix turned 65 yesterday and she asked to go to Shady Maple Smorgasbord. That place was SO BIG, I think my whole d*mn town could have dined together. They had so much food and so many cooking stations I think we could have fed a village from a developing nation for a week.

The staff was amazing. The food was quite good. The gift shop was enormous. And in general, it looked like people were only taking what they could eat. But we all ate too much. I had three dinners and two desserts and spend several hours thinking I might vomit. The cajun catfish and the carrot souffle were my favorite. And I really wanted to punch an old man in the face because as I was reaching for the last piece of coconut custard pie, he snatched it away from me.

And the reality of how much food, how many steaks, how many excess calories we were all consuming filled me with such guilt and shame. Our culture, and you can disagree with me, is so centered on gluttony and selfishness. So while I was happy to spend time with my friend, and take a road trip with her, and laugh with her– I have to ask: how can such a place exist? I’m sure the intent, because Shady Maple started decades ago, was to provide a place where people could dine and have a wide variety of choice and not have to chose, or for families to dine together while pleasing difficult eaters. But this was insane.

What makes today a good day might change tomorrow

This week presented many challenges. Monday I was hurting, probably from too much computer work during my 10-hour weekend editing sessions each day. I survived Monday, but barely, only to learn that Tuesday I would be moved to a different station in the Stitch Fix warehouse.

Change is never easy– but in this particular instance, as a person with a documented disability and doctor-derived medical accommodations, I struggle in my normal environment to perform at the same level as an ordinary employee. And that’s my job, to do the work, with a reasonable amount of help.

The main consideration used by management to determine assignments on the warehouse floor is table height. Is the work surface the appropriate height to match the ergonomic needs of the employee? In my case, my performance also relies on which side of the line I am on and who is “on support” that day. I work on “the B side” which does not mean I am not a radio song. It means the conveyance system that moves the fixes to the next stage of the process is on my left side.

I rely on my left side for balance. Therefore, to minimize potential issues with my hip and ensure my balance and stability, I need to work on the side where I turn to the left to put my boxes on the line.

My original table assignment for Tuesday was on the right, or the A side.

Requesting a B-assignment got me moved from line two to line four, which meant I would no longer have my regular support team. (That’s the role of the people who deliver work and supplies to those of us who fold the clothes.) I have been told that it’s my job to remind these folks of my medical needs. And they don’t always like that. So it makes me uncomfortable. Because in my view, it’s not my job to tell someone else how to do their job.

And to make matters more fun, it’s up to the individual to decide how to provide my accommodations. The deviations are small, but the impacts are major. The cart typically arrives with eight fixes on four shelves, with five to eight boxes lying horizontally on top of the cart. Most people move the boxes (I often take them) and pile the work from the bottom of the cart on the top. Some people even put the fixes from the two bottom shelves and place them in boxes on top.

I don’t even ask that pack slips be placed with them. I have myself trained to flip them to match the new order. Which confuses everyone but me.

This particular day, my support person, who I believe is a delight, so this is no reflection of who she is as a person, decided she would place the clothes around the boxes without moving the boxes at all. She tucked them all over the boxes. Which meant if I moved the cart to my station or reached for the boxes, the clothes fell on the floor. How does this help me? Keep in mind– I go through three carts an hour.

I eventually complained to a supervisor and said something like this:

“I know it’s too late now, as we’re closing, but there really should be a system in place where Stitch Fix defines what the accommodation is for the doctor’s orders, because it really shouldn’t rely on individuals who don’t understand the disability. And maybe it’s a violation of privacy, but those of use who need the extra attention should be arranged together so support automatically knows if we’re in that section, we have an accommodation and it would also cut down on people requesting accommodations when they haven’t done the paperwork.”

The supervisor said that was a great idea and lamented that I hadn’t mentioned it earlier. I didn’t mention it because it’s basic logic.

Somehow, I survive, and I make numbers. My body is so twisted I can feel that if I move wrong I’m going to pull a muscle in my lower back. But it’s okay because I have the chiropractor on Wednesday.

And then I get the table from hell on Wednesday. It’s the right height, right side, good support people. But it’s a front-of-the-line table, so I have to keep pushing the boxes toward the end. The fan keeps blowing my pack slips, which means I need to tuck them under my craft paper roll instead of on my laptop keyboard. But I keep forgetting, which means every cart I repeat chasing a paper, and tucking the others under my craft paper roll. My scanner keeps disconnecting from my computer. And if I need to go get a large box, which is common now as we are transitioning into winter clothes, I have to walk to the back of the line to get it.

These things add ten to thirty seconds to every fix. That’s 40 minutes over the course of the day. And I finished at 91% which is bad enough to get me a warning. And so I’m stressing, which tenses my muscles, and since my neurological condition already creates issues with my muscles not relaxing just makes everything worse.

And midday, the leaders got out an inflatable beach ball so every one could bounce it around to each other. That upset me more because I don’t have time to have fun. How dare they think I might be able to survive this and have fun?

Nicole Jensen of Back in Line Chiropractic aligned my lower body and stretched out my legs and I left her able to stand up straight and move my legs without stabbing pain.

This is where the difficult mental part of disability takes over. It’s so much easier to give in, to rest, to eat ice cream and watch TV and be done. But I knew my body needed to stretch and move in order to correct whatever issues had been caused by my misalignment and muscle tightness.

My brain and my muscles don’t have good conversations– so it seems like I can to manually perform a motion for a while to teach my body how to do it, even if that is reminding it how feet go or how a gait is supposed to work. That’s why I go to the gym. Not just so someone forces me to exercise, but also so someone can make sure I am using body parts correctly.

But I have to tell you, I dreaded going to the gym. I had been in pain all day. I wanted to take a hot shower and go to bed.

Andrew texted. He had a situation at work. Maybe the universe thought I needed a break. When Nicole works on me after such bad body pain, I’m often achy the next day.

Then Thursday went fine. Great even. But the pain crept back Friday, not nearly as bad but it took me most of my day to get my metrics at work to solid ground. And Friday night I went to the gym, and despite how I was feeling, I had fun and did well with some heavy weights.

I made some salmon and trendy smashed potatoes with vegan tzaziki sauce for dinner and the Teenager loved it. I fleshed out the writer’s proof for the erotica book. And went to bed feeling like I had been successful.

This morning I got up, discovered I had low blood pressure after I took my beta blocker (oops) and had a light breakfast– coffee with PB2 and cream, PowderVitamin Electrolyte Powder Plus in strawberry cucumber and these breakfast biscuits from Olyra. I thought they’d resemble a Reese’s peanut butter cup or a Tastykake Kandykake.

They were hard, dry and the peanut butter cream was minuscule and didn’t even moisten the cookie. Terrible. And I love their yogurt breakfast biscuits so how could this taste like someone managed to shape chocolate-flavored protein powder into a cookie?

Anyway, the moral of the story is: sometimes what you can achieve one day is much less than what you achieved on a different day.

Beating the clock and Stitch Fix SNAFUs

I’m running out of steam– there are so many things to do and to talk about that I just can’t get to them all. And that’s okay.

I have commitments. I was elected president of the Greater Lehigh Valley Writers Group. I have a child enrolling at Lafayette College in a month. I met with a young editor yesterday after my day job at Stitch Fix and absorbed her energy and hopefully helped her on her journey.

The decorations and the Braille are ready for tomorrow’s Disability Pride Lehigh Valley event.

And I manged to NOT put my underwear on backwards as I did on Wednesday.

Sometimes the little wins mean a lot.

In general my blood pressure and orthostatic hypotension symptoms have improved with the increased salt in my diet. If I get a good eight hours of sleep I feel decent. I have to ask if that’s due to the salt, the rest, or my frequent missing of my calorie goals (the other night I went on an eating binge and ate 500 calories of almonds. Who does that?). It also could be my increased stress levels as I’m losing my job in seven weeks.

Seven weeks.

The first medical bills from my March hospital stay has arrived, which like everything else, makes me wonder what’s to follow. I’ve started applying for full and part-time positions–but I really want to get a part-time position in something that will give me knowledge toward building my own business or to string together writing and editing clients.

But I have no savings to pull this off.

*I have a Substack and an underpromoted, underutilized Patreon if anyone wants to support Parisian Phoenix Publishing in those ways.

Substack: Parisian Phoenix Bookish Babble

Patreon: Parisian Phoenix

(And reviewing my own creator dashboard, I set up Patreon a year ago and didn’t do anything with it. Put that on the list, in addition to updating the web site in general.)

My recent experiences as a Stitch Fix client

I have waited more than a decade to launch into my client experience with Stitch Fix. If you’ve read any of my novels, you can probably imagine why. (More about my novels here.)

I started getting fixes around my birthday, which was in May. I had given my employee discount to a friend for a little more than a year, as I did not have the income for new clothes. If you are a regular here, you’ll know that the pandemic and my recent life and lack of discipline have led to a 30ish pound weight gain on my small frame, so that factored into my decision to postpone my fixes. Why buy new clothes if I’m not healthy and back to normal?

The Teenager told me around the Back-to-School season last year that she felt like she didn’t know her own style, because she didn’t get to buy her own clothes. So, I transferred my discount to her. And an employee discount can only be transferred every six months.

This week my fourth fix came. I can’t believe it’s four as I can only remember three, but these days I’m lucky if I can spell my own name.

So I asked for my fourth fix if my stylist could send suggestions for events related to titles launching at Parisian Phoenix Kink. Edgy, kinky, sexy. I even listed brands and ordered everything vegan leather I could find on Freestyle. Like pants. And a really amazing dress. The pants worked out, but the first dress was too small, and the second I did not order in petite so it was too long and for $250 I lost patience and wiggle room on my American Express to find “just right.” I did however find a dress, that although not vegan leather, fit the aesthetic and allowed room for my expanded-since-weight-gain bust size.

With all of this information of what I’d purchased, what I’d returned and why and so many items I had “saved for later,” the AI algorithm that Katrina Lake has bragged about in every podcast appearance I have heard should be able to show my stylist what I want. It should show me what I want.

And the same week Stitch Fix announced it was closing our Pennsylvania warehouse, Gwyneth Paltrow released an episode of her Goop podcast featuring Katrina, with whom she appears to be friends and retreat buddies, bragging about the algorithm and telling the same stories of Stitch Fix’s origins I’ve heard for three years.

Shipping times across the Stitch Fix network have increased, when the company eliminated its second shift (originally implemented for pandemic social distancing, splitting the warehouse staff in half) and asked us to convert to one of two 4-day, 10-hour cycles, the logic was that operating seven days a week (especially in our region where we can ship to anywhere in the continental US pretty much within 24-48 hours) would allow Freestyle orders to land at clients’ homes quickly.

And in my experience as client and employee, it did. My daughter was using my discount at that time and there was one incident when I ordered earrings on Friday night, coincidentally on Sunday morning around 7 a.m. on packed them, and I received them Tuesday morning.

I wrote a blog post (here). And I also made an unboxing video.

Now it often takes two weeks to receive an item. And we’re not even closed yet!

So, my fix preview comes. And I am very disappointed. I can see why the algorithm has selected certain items based on my past Fix purchases, but it’s like it has completely ignored the pile of things I have ordered from Freestyle since my last Fix.

Are you all still with me? Okay. So, the box arrives and I’m soooooo excited to see what kind of party outfit my stylist picked out. I know there’s a pink dress but everything else is a surprise. I ask The Teenager if she wants to see me open it.

She says, “Sure.”

And she starts the video. I open the material inside, and I see the “first fix” card that goes out to new clients. I am not a new client. I look at the Style Card and the name is not mine, the stylist is not mine and the fix is not mine. Now, despite the fact that I work for Stitch Fix and I fold and prepare 130+ of these fixes a day… despite the fact that this box came from our warehouse… and despite the fact that I also have performed the role of the person who prints, folds and drops the little envelope in the box…

In this moment, I am a client. It’s like all knowledge I have of of the process falls out of my head. (And it’s all on video you can watch it.)

“This is not my fix,” I say, despite the fact that I have already shown the camera a bundle with a pink dress in the middle.

I had glanced at the style card and saw that Becca, the client, had received athletic clothes and sneakers and I clearly had heels in that box.

I shoved the entire fix in the return envelope without even opening it. I was so angry and disappointed.

In my disoriented anger, I did not know that there was only a brief moment before check out that I could see the style card and note from my stylist that accompanied my fix. And I zoomed right by it as I started to realize that they were my clothes. And I recalled seeing some notes from my stylist about how the system wasn’t giving her the types of clothes I wanted so she tried to build some outfits based on what I had. But I had clicked past the note without fully reading it.

And now it’s gone.

Remember, I have waited more than a decade for these fixes. I have no clothes that fit because I gained weight during the pandemic. I am losing my job and I need clothes for interviews, business and launch parties.

I email customer support and ask for a copy of my stylecard.

At 4 a.m. the next morning, as I get dressed for work, I realize: I can peel the sticker off the box, research it and probably find my own damn style card. But we change in-house warehouse management systems so often I can’t remember which app does what I need it to do. I ask a lead– because now I realize one of the people who prints the style card is the one who screwed up my whole experience. She refreshes my memory.

I look up my package and realize my cat-loving friend Tom delivered my shoes to the picker, and that I know the name of the picker who ran around the warehouse on my behalf. The person who QC’ed my package– that’s the same job I normally do– was probably in the line next to mine. And then I see it. The person who handled my package last. It’s someone who is very good at her job and even gave me some tips once we moved to regular day shift.

This person means well, but punctuates her sentences with things like, “it’s not your fault. You second shift people weren’t trained properly.” I didn’t tell her she screwed up my box, and my animosity about the whole experience faded when I saw her name at the end of the line.

And my brain thought to itself, “it figures.”

By then, customer support had emailed me a PDF of my style card. Which I could have printed at work. But they offered to mail me a copy. So I thought, “Why not?”

I thanked the customer support person who took the time to explain to me how the warehouse works (because they always blame the warehouse, no one wants to hear that the beloved algorithm is broken). And I told her, “Yes, please mail me a copy. That would be lovely.”

I haven’t received it yet, but I do keep them. But that’s a blog entry for after my separation date.

I decide that maybe I’ll order one more fix, since I paid for the style pass so I won’t lose any money. And the preview comes… and guys… this one nails it.

It’s due to arrive at the end of the week, so here’s hoping this story has a happy ending.

Festivities of Fashion: a trip to the 60’s fashion exhibit at Allentown Art Museum and the Threads of Fashion Exhibit at the Banana Factory

Even before the month went off the rails, Gayle and I made plans to visit the fashion exhibits at two of our local Lehigh Valley art centers: the Allentown Art Museum and the Banana Factory. The teenager’s work schedule allowed her to join us, and she had been to neither spot in probably a dozen or more years.

Her father and I once held memberships at both the Lehigh Valley Zoo and the art museum– as both are great places to entertain a preschooler.

Gayle wanted to see the art museum exhibit because she had some of those clothes from the Sixties, and I wanted to see it because I love post-World War II history and I have a minor obsession of fashion in the artistic sense. If you’ve read my Fashion and Fiends novels, this makes sense.

I took sooooooo many photos and honestly– hey, Joan, take note: I’d like to go back and bring a sketch book and some implements. And if I had a camera…

Our first stop had to be the Frank Lloyd Wright library. The Teenager has always loved it, and today proved no exception. She had a magnificent time pointing out how all the details fit together and complemented each other in clean, minimal design.

I am always drawn to certain items: the Tiffany glass, the writing set, the painting of the tall man with many eyes that hangs in the stairs, the man with the pipe that makes me think of Pablo Picasso, and the woman with cigar.

But then came the fashion…

So much to explore. Colors and patterns vibrating through the room.

And since the museum no longer charges admission, I bought a very bold umbrella at the gift shop.

Next, we headed to South Bethlehem’s Banana Factory. At their exhibit, featuring the work of local designer Barbara Kavchok. The work blew my mind, and the paintings and fashion illustrations that accompanied the dresses… well, if I wasn’t losing my job I would have inquired how to obtain one or two. The flowers. The ruffles. The lines. All just flabbergasting.

I had to stop in the bathroom, where I paused to take photos of the paint stains in the sink.

I had been trying to eat healthy all day, and all day my blood pressure was low and my body wobbly (to use the teen’s words) and hands shaky. So I got a chicken sandwich at Wendy’s.

Every day I find myself more ashamed of my weight and my food choices– and every day I make more excuses. It has to stop. It just has to change. My body can’t take the extra pounds.

Let’s Play: Exploring the Connexion between toys and art, embracing how play can keep our minds vibrant

One of the challenging aspects of writing for both a personal blog and my small independent press is knowing when to address a topic as a publisher and when it would be better served to come from, well, me.

Today is definitely one of those times. I don’t have it in me to write two separate pieces. I’m not even sure I have it in me to do one that conveys the sense of enthusiasm and the nature of the art I saw last night at the opening reception for “Let’s Play” at Connexions, the art exhibit curated by Maryann Riker, who has participated in Parisian Phoenix Publishing’s anthology Not an Able-Bodied White Man with Money and provided custom art work for the covers of Twists: Gathered Ephemera and The Phulasso Devotional: Engineering the Warrior Priest for Dark Times.

I asked Maryann what the average viewer would see in the works. This is what she told me:

It’s a fun, whimsical and crazy, but playful, assortment of work. As we settle into the idea of a world with COVID, I hope this exhibit gives the viewer the feeling that play is important. The brain retains plasticity as we age by providing learning and creative opportunities. It gives us new perspectives and idea. Play is vital to children and adults alike.

Maryann Riker, curator of Let’s Play at Connexions, on display now through June 25

Within the exhibit, Maryann selected several photographs by Joan Zachary featuring the residents of Plastiqueville. Joan has shot photographs for Parisian Phoenix that I can’t even list comprehensively, from author headshots to cover shoots.

Joan described the pieces in the exhibit as “while they’re quite different from each other, all depict Plastiqueville as the fun-loving, joyous world I’ve tried to create. All my creative projects attempt to build an imaginary world, filled with detail and lifelike characters (even though the tallest of them are barely seven inches in height, and most of the others are much, much smaller). I know I’ve succeeded if the viewer wants to crawl inside and live there.”

Joan herself is not a tall person, so I wonder if the choice to work with recycled toys in a small, plastic world has more to say than she realizes. One of these days we might find Joan inhabiting her plastic universe with Mr. Tiger Pants and his friends.

“Plastiqueville [is] an imaginary world populated by my random collection of little plastic people. You will see their competitive nature as they compete at Scrabble. You’ll experience their adventurous spirit as they go rafting through waters made from foil paper. And you’ll be invited into their private moments as they share their secrets. Plastiqueville is a world like no other, although it will probably look very familiar,” Joan teased.

The gallery has a second exhibit on display right now, the regional summer group show. The two presentations work well together– the group show offering scenes of spring and local views, an exterior examination of life; while Let’s Play encourages an interior dialogue of what toys mean, beyond their existence as the possessions of children. Do their vibes and their influence stay within us as adults?

The gallery itself is a fun place to visit, the hand of artists evidently at play with the eclectic blend of furniture, the items of display from jewelry to pottery, a nook for chess here, a very European feeling courtyard there. Even the music by DJ Kaos was perfect.

And anyone in the area knows the best place to get the best food is Forks Mediterranean Deli and Connexions certainly did it right. I once spent a year attending ever Hillel function at Lafayette College until they revealed the secret to their falafal– it came from Forks Mediterranean Deli.

As soon as The Teenager and I walked into the room with the refreshments we had the same thought. Surrounded by the familiar smell that could have made us drool like a dog, we both recognized it.

Chicky… and a puckle schmear, and a visit to Miller’s Hardware

Yesterday was a gorgeous Saturday morning and my coupon to Dairy Queen to get buy one, get one free Blizzards for my birthday was set to expire. The Teenager asked me if I would accompany her to the hardware store, and I said sure, if she would force me to go to Aldi for half and half, and she said, “Sure, then I can get more creamsicles with the popsicle outsides.”

It was 9:30 a.m.– The Teenager was on a morning break between pet sitting clients. She wanted to visit our neighborhood hardware store, Piscitello’s Home Center, for our first visit since the store changed hands. But first… I suggested we visit the other local hardware store in the small town a mile away from us, West Easton.

Now if you’re local to the Lehigh Valley of Pa., you might already know where I wanted to take her. You see the Teenager loves hardware stores, tools, doo-dads, mops and sponges. The Teenager took woodshop, engineering, and home repair in high school, all the hands-on, doing useful things kind of skills that she did not inherit from her father and I.

When she was about six, my brother had gotten a chain stuck on the pick up truck and Poppop on the Mountain was crawling around on the gravel parking lot trying to remove it. The Teenager– then the Wee One– crawled under the truck and gave it a yank with everything she had. Poppop laughed, and gruffly made the comment, “there’s my grandson.”

My father told that story, with such pride, at least once a year.

The Teenager doesn’t hesitate to tackle household projects so it was time to take her someplace special: Miller’s Hardware. It’s been around for more than 100 years, and our local television station even did a feature on it, click here. Most of us in the borough (Wilson) and in West Easton have homes that are 75 to 100 years old. So, to think that this little slice of living history with the bits and pieces we need to do things around our homes still exists is amazing.

They didn’t seem to take credit cards, and the cash register was very old, and Mr. Miller, whose grandfather started the business on Butler Street in Wilson and had been known for the in-house chickens, is a thin man who seems a tad slowed by age though he moves about the cluttered maze of rooms with precision.

I found some cash in my wallet that I keep for emergencies, and The Teenager bought a pair of safety googles, one of those long mixer drill attachments and some double stick carpet tape will dust glued to the box and graphic design that screamed of last century. I honestly encouraged her to buy it because of the box. The total came to $17.50.

We’re not sure how Mr. Miller did his math, but I think he sets the prices when he acquires the inventory and doesn’t increase them with inflation, because many of the prices were drawn on with marker and seemed way too low. But if it’s been on the shelf for twenty years, I think the merchandise is paid for.

I sent a photo of the tape to Gayle and asked her to give a guess when this product was made.

“1970s,” she said.

So is this double-stick carpet tape as old as I am?

Miller’s Hardware is an overwhelming and amazing gem.

But then we did have to go to the new Piscitello’s, where at one point, the Teenager almost had a part-time job if only she hadn’t worried about it conflicting with marching band season. We got a new hose, a hose splitter, some new hose nozzles and even some hose gaskets.

And then we went to Dairy Queen for blizzards. Now, with my recent health issues, I pee a lot. And even though I peed before we left the house, I had to go again already. So, The Teenager pulled over to Wawa and ate her blizzard while I ran in to use the restroom. Here is what we learned: Getting ice cream at Dairy Queen and people watching in the parking lot of Wawa might be our new favorite hobby.

And then on the way home, on the side street, right by our house, there was a turkey vulture in the middle of the road with a dead possum. And he made it quite clear, dragging that carcass around, that it was his and he was keeping it. We didn’t want to disturb him, so we sat and watched for a while, afraid to scare him away. But others didn’t share our special consideration for the vulture.

We made a video:

We did, by the way, get the half and half and popsicles so all is right with the world.

And today, The Teenager was chatting with me about her sudden appreciation for plain, old yellow mustard to which I said, “best thing on a hot dog, mustard and a puckle schmear.”

I really want my brain fog to lift. And then I offered her a piece of “chicky” because apparently my half-brain thinks chicken is too fancy a word.

Birthday, day one: Chicken and Waffles

Tomorrow is my birthday. I ended up taking voluntary time off from my day job to do some work for Parisian Phoenix Publishing and clean up the house. Neither of those activities lived up to my goals, but it’s been a very nice day.

I had more minor administrative stuff to do than I anticipated, but I did clean off the kitchen counters and use old glass beverage jars to sort and store my k-cups.

I arranged several meetings with my authors: to meet Joe Swarctz of Echo City Capers today to give him the latest shipment of Sometimes I Get… and tomorrow to see Larry Sceurman to get his copy of the final proof for Coffee in the Morning. Andrew had to cancel the gym today, so that made me a little sad, but gave me extra time not to rush around before a birthday dinner with the talented Joan Zachary.

Speaking of talent and birthdays, Gayle made me a font of my handwriting. And The Teenager already gave me my birthday present, a new pair of sewing scissors. Her dog ate the handles off my old pair. I haven’t sewn in a decade, but she has memories of me protecting those sewing scissors.

And apparently, she believes she ruined the blades long before the dog ate them. So her thoughtfulness and presentation and honestly made me tear up.

Around 10, I headed down to what is not my official spot– Big Papa’s Breakfast Bistro, on Northampton Street in Easton’s West Ward. I asked if I could sit in a corner, have a cup of coffee and work until my meeting with Joe over lunch at 11. I was welcomed. I also gave the restaurant my business card, explained who the various groups were that they would see me with, and that eventually I’d like to have events there. It was perfect. Exactly what I needed to finish some work.

And then Joe and I had another great meal.

Smug little doctor man

I might have to fire my cardiologist.

He’s personable and easy on the eyes, but he certainly had his decisions made without listening to what I had to say. And when I got home and read his notes… I don’t know if I can say I felt betrayed or even insulted. I knew what was happening while I was there. It was a gut reaction and I felt myself shutting down.

He said I was fine, my heart monitor was fine, and my EKG was fine, and then he asked if I had any more episodes. I asked for clarification on what he meant by episode and explained that as of last week my heart rate had calmed by about 20 beats per minute. And that I had two more unexplained episodes of lightheadedness that almost ended in falls.

I pointed out that I wrote everything down if he had any questions about my symptoms and also said that I bought an Apple Watch.

He didn’t seem interested in any of it, only in my episode of a-fib. And then he noticed that my primary care doctor had ordered a tilt table test. “That’s odd,” he said, looking at my record.

“He wants to rule out POTS,” I said.

He gave a little nose grunt of disapproval.

“Do you have any questions?” he asked.

Not that I was willing to ask. Based on how he seemed to be judging my primary care physician there was no way in hell I was asking questions of this man.

When I read his summary of our visit when I looked at my online chart, he blatantly called out my primary care physician for considering POTS and said my symptoms were not consistent with that, and blamed my falls on my poor balance.

I might have cerebral palsy, but I don’t have “poor” balance. It’s not “good” but it’s not “poor” and I have the physical therapy records to prove it. Actually, I was released from physical therapy today. When these episodes happen, I can feel that the problem is not my legs. So my heart looks fine, and I’m very happy about that, but I’m angry that he just attributed the whole stint in the hospital as caused by my poor balance. The night of the accident I had been showing off to my trainer Andrew how well I could stand on one leg.

When I read his notes I got even more upset, because he’s blaming my orthostatic hypotension on dehydration and makes it sound as if I don’t drink water. I said symptoms are worse on the weekend, probably because I don’t drink as much water. I drink about 60 ounces at work alone, which means on a typical weekday I drink about 80 hours of water, maybe 8 ounces of another beverage and 12 ounces of coffee. Subtract about 60 ounces water off that on Saturday and Sunday.

And he also says I drink more now, especially when my blood pressure is low, and what I said was that I keep an electrolyte powder by my bed and mix a portion of that to drink in the morning if my blood pressure drops, as suggested by my primary care physician.

So I looked at my ekg– my heart shows a normal sinus rhythm and arrhythmia.

I emailed my primary care doctor and said the cardiologist is not a match and after I get the next couple weeks of appointments done, I want to follow up with him (my PCP) to talk about my medications. And I’m also thinking of asking about a registered dietician and some nutritional resources.

Today my heart rate is up. My blood pressure is low. I have headaches and everything in my body hurts.

Mixing business with pleasure

I’ve been making friends in the writing community for decades, and collecting artists along the way. One of those writing friends is William D. Prystauk– from a chance meeting at a literary event for Kaylie Jones hosted by Laurie Lowenstein– which had to be 15 years ago.

Bill and I would meet for coffee at Lafayette College’s Skillman Library and talk writing for hours. We’ve even seen Gorbachev together. And he’s nailed my kid in the face with a frisbee, probably one of the first signs she had ADHD. She couldn’t stop talking long enough to notice the frisbee sailing toward her.

Bill is also the author of the Kink Noir series: Bloodletting, Punishment, Debauchery and Bondage. I asked him if he could bring Parisian Phoenix Publishing some inventory for the upcoming April 29 celebration of National Independent Bookstore Day we are holding in collaboration with Easton’s Book and Puppet.

While Bill is not officially one of the Parisian Phoenix authors, he did appear in our 2022 anthology, Not an AbleBodied White Man with Money. As publisher at Parisian Phoenix, I try to promote the hard work of authors that appear in our books, even if those other works do not appear in our stable. That’s one of the benefits of working with a tiny craft press.

Bill and I went to a new business in my neighborhood, Plants & Coffee. They literally opened last week. Bill and I are whores for good conversation, environment and taste-bud experiences. He tried their mango spritzer, and I went for the lavender rose basil spritzer. I love lavender. I love rose. And the mix… greenery surrounding us, the calming lavender and the exoticism of the rose, which reminds me of the Arab sections of Paris…

The shop itself is in a building where I once toured an apartment that could have come straight out of a 1970s porn set. The commercial space was most recently some sort of discount produce stand, and if I remember correctly had some makeshift arcade for a while, and prior to that what Bill referred to as the best Mexican food he’d ever had in this life at a place called “Garibaldi’s.” I remember it, but I never ate there.

So imagine my surprise when I walk into this gleaming space of black, cream and greenery. Small touches like books, retail items and couches providing so much softness and homey feel.

I will be back.

(Meanwhile The Teenager is at home getting her newly adopted rats situated.) They are fitting right in to the menagerie. She adopted them from the Harrisburg Humane Society.

And we also went for sushi at Jasmine, which I often think is Bill’s real reason for coming to see me.

All of it: the medical stuff, the Stitch Fix stuff and the friend stuff

Yesterday was Monday and I went for my second full physical therapy session. I admitted to him that the weekend got so crazy that time got away from me and I didn’t do as many stretches as the paper told me to. My therapist told me that was okay, as long as I was trying to walk as we practiced on the anti-gravity treadmill and kept stretching my hips to fight the internal rotation.

And I had another great session on the treadmill.

I also did extensive editing before and after physical therapy, to the point where I think I will have Larry Sceurman’s short stories ready for his approval tomorrow and I don’t see any reason why we wouldn’t send them to Gayle for design by early early April.

Later in the day, I went to the gym where we did primarily back and shoulders but also hip and core. That right hip, in a very specific location, was very unhappy with me. It’s something I’m going to have to look into with my physical therapist and my chiropractor and maybe my neurologist. My fitness coach Andrew wondered if it might be my IT band.

I noticed my fingers have not been tingling as they had.

I texted Gayle last night–if I made it up the stairs and to bed I would have earned my “fourteen days without a fall” graphic.

It arrived today.

I went to bed at 8 p.m. last night but couldn’t fall asleep until 9. I woke up around 2 a.m. and cuddled Louise for a while. I think she woke me, and I can’t help but wonder if she senses something about my heart rhythm. I heard my neighbor start his car at 5:45 and forced myself out of bed as my alarm was due to go off at 6.

I was exhausted. My blood pressure was perfect– 115/76– which made me think I should skip the morning coffee. But I needed to drive about 20 miles in morning highway traffic. I needed my wits about me.

A handful of peanuts, my SSRI, a beta blocker and a muscle relaxer, and a cup of coffee and I was good to go.

Hand therapy is always fascinating. Today I did the exercises I did last time (read about those here) and squeezed some putty. My therapist John took some measurements of my finger, and other than the swelling, there is only one angle that still has limited motion. So he gave me a piece of elastic and a safety pin to try and stretch it.

After hand therapy I called Nan, as I had promised to take her to the bank and to CVS. I had run out of Zyrtec the day before, and CVS had texted me and said my SSRI refill was ready. Still no word on my baclofen, the muscle relaxer prescribed by my neurologist. She had called me in late February (mere days before my first fall) and said she was sending in a prescription with six months of refills. The next day, CVS texted that they had received the prescription but the medicine was out of stock. I never heard from them again. I am almost out, but haven’t been taking it because they didn’t give it to me in the hospital.

I stopped along the way at Panera to use the bathroom and grab a cookie for breakfast. Panera makes an amazing oatmeal cookie with dried blueberries and raisins. When you consider the sodium, calories, sugar and protein, it’s one of the healthier choices. And it’s delicious. So I got one for me and for Nan.

I almost got back on the road forgetting my cookies, because I ran into a fellow library board member who called to me from across the store.

Once I picked Nan up we had a great time visiting her usual teller at the bank, whom we hadn’t seen in a while; going to the Dollar Tree (or as we like to say now the $1.25 cent store) for Easter decorations and cookies, where we ran into someone who lives in Nan’s old apartment building; and the most magic place of all– CVS.

We went to the pharmacy first. My SSRI was free, and I asked about my baclofen. They said my doctor canceled the order. I showed them the text, and I was told that was very weird and that I should call my doctor. I wonder if they asked her for a refill on the old prescription at the same time she sent a script for the new one, so she said no to their request, and they canceled both.

Nancy needed ibuprofen, a hair barrette and some Lysol wipes. I needed allergy medicine.

I had a coupon for $10 off 90 count Zyrtec or the house brand was on sale buy 1 get 1 50% off, with a $4 off coupon. I got 2-120 bottles for $40-something, versus the $60 the name brand would have cost for 90.

CVS brand pain relief was on sale, the big bottle was $19.49 and the smaller bottle was $14.49, but we had a coupon for $4 or $5 off $15 purchase, AND the smaller bottle had an expiration date of this summer versus late next spring like the bigger bottle. I had a 40% off coupon. So I thought that could cover the barrettes. The Lysol wipes were also on sale and we got the 35-count, and we had a 40-cent manufacturer coupon. (All the coupons came from the CVS app.) Nan’s total started around $32 and she ended up paying $19. In other words, she got everything for the original cost of the ibuprofen.

She loves accompanying me to CVS.

I brought Nan home, and when I got to my house I discovered that MY FIRST FIX ARRIVED FROM THE BIZZY HIZZY! I have been waiting to get a fix from Stitch Fix for 12 years! Joan opened it with me via Zoom.

I then ate a massive bowl of falafel and vegetables. I sent out a newsletter on Substack. Read that here. And attended a library board meeting tonight.

And don’t forget: Darrell Parry is hosting (and served as judge) for the Jean Corrie Poetry Reading & Ice Cream Social at Lafayette College Thursday. See the Substack or Facebook for details.