A mid-week restart with Postmodern Jukebox

This post is both a brief review of the Postmodern Jukebox performance at the State Theatre for the Arts and a brief update as to my current condition struggling with cerebral palsy.

Monday night I performed well at work, but by the end of the night my right leg and hip were screaming in pain, to the extent where I grew nauseous. I woke up still in pain but had no trouble performing an upper body workout with my trainer, Dan, at Apex Training.

The teenager, recovering from last week’s ear infection, and I did some barbell bench press.

But on the walk home, I was struggling with function in that leg and pain in my knee.

I knew I had a chiropractor appointment with my beloved Nicole Jenson of Back in Line on Wednesday morning so Tuesday night, I called out.

Since the warehouse is encouraging people to take voluntary time off, I called out for Tuesday, took voluntarily time for Wednesday, in addition to the planned time off I had scheduled for Thursday.

The teenager had an appointment with a new ENT today — he put her head under a microscope, pulled out her ear tubes and gave her ears a good cleaning. More importantly, he explained all the different functionality of the ears.

The audiologist gave her a hearing test and she rapidly discovered— the teenager, not the audiologist— that her musical inclinations have allowed her to inadvertently fake the hearing tests at her childhood ENT’s office.

So the audiologist said that the teenager is a good candidate for hearing aids.

We had a leisurely afternoon which included a delivery of apples from my friend Joan who has tasked me with converting them into applesauce and apple butter.

And then… we (the teenager and I) finally embarked on our date, much anticipated by me. The teenager took me out for pancakes.

And then we headed downtown to the State Theatre for the Arts to see Postmodern Jukebox. #pmjtour

The amazing parking spot we procured had a three hour limit, but both the physical meter and the parking app would only let me apply 1 hour and 24 minutes. So, as that was set to expire at 7:23, I used the app to apply that final 45 minutes from inside the theater.

On the way there we passed Hoza, the new African/Zimbabwean restaurant downtown. Very excited to try it.

But the show— blew my mind. The vocals and musicianship was incredible, the costumes a delight and the arrangements of the music on point.

To see bits of the #pmjtour I shot, click here.

And at intermission, my lovely daughter bought me that Yuengling I’ve been craving.

Fitness update: Where did that leg go?

Last week, I moved my follow up bloodwork from Friday October 15 to yesterday in part because I am planning a trip to DC over the weekend.

The morning yesterday started in a discombobulated fashion as my mornings generally do. I was so mixed up by the time my appointment rolled around that I drove right by the office.

The events of the morning had my anxiety on high, and revisiting my past issues with anxiety has not been fun. I even find myself fighting some of familiar behaviors, like stressing about how much money I have in savings and going over budget on food.

At the same time, I had a lunch appointment with my mother who recently lost a brother to cancer and anticipates losing another to the same cancer.

And I’m feeling my body thinking — my right leg isn’t working. I woke yesterday in no pain whatsoever yet something felt very wrong with my right leg, like maybe it was too close to the left one or pointing the wrong way. Very disorienting feeling.

I asked the teenager to take a look and she confirmed that it indeed look “very wrong” so we called Back in Line so my chiropractor Nicole Jensen could take a look.

This meant the whole day involved running from place to place which led to more stress, which increases the tension and the cerebral palsy stiffness in my muscles.

Nicole adjusted me again and aggressively stretched my hips. She also commended me for trying to know my body.

And at work I felt it. Keenly, painfully. Started in my hip, then my spine, then the left side of my lower back, and then the right. Everything hurt. I finished the night at 92% because of the pain.

The pain bothered me all night, and I woke up with it, and believe it or not struggling to carry the 80 lbs of cat litter I needed upstairs may have helped— by relieving tension.

Thank goodness for the gym, as my trainer Dan at Apex Training is very cognizant of how I am moving and has catered my workouts to my health levels.

I’m struggling emotionally right now, and I am physically in pain across my lower body. I can’t afford to stay home from work and I fear tonight will be worse than last night.

This morning, my bloodwork returned. My TSH is normal. My iron is creeping up way slower than I had hoped. My vitamin D was increasing but it hasn’t budged in four months.

And I also got an email with the results of the Artful Dash— officially Gayle beat me. Which she did not. I was a clear two feet ahead of her in the finishing chute.

Dahlias from a friend

Health Update: There was a Crooked Hip

I still haven’t heard from either my gynecologist or my primary care physician— and the mental and physical struggle has been rough. It’s ironic, since my daughter thought she say worms in the dog’s poop and within 24 hours she had lab results and preventative medication.

Luckily, I’ve been able to engage my chiropractor (the beyond amazing Nicole Jensen of Back in Line Wellness Center in Easton, Pa.’s College Hill neighborhood) in this journey to discover and maximize the potential of my disabled body.

(Which I am told today is World Cerebral Palsy Awareness Day, not that I ever even heard of it or noticed anybody celebrating.)

I told her this past week has been hard and strange with familiar pain and symptoms coming at the wrong time of the month and new symptoms happening now.

But I also admitted that some of these symptoms— like my swollen legs last night— could be explained by my behavior. Cheeto binge this weekend, for example.

Last night, I performed at only 83% when I had folded those clothes at 100% or higher all week despite pain. My knees had intense intermittent pain and my legs felt completely wooden, like they didn’t even have joints.

The chiropractor laughed at my ownership of my Cheeto binge and said that, yes, that might have something to do with it.

And she commented during my adjustment that my body and I are managing life and my symptoms much better in general.

But here is the “good news”—

My hip was crooked. The right side of my hip was significantly higher than my left and probably had been since the pain started last week. I attributed it to the same old pain but it was probably new and unique pain.

So then the chiropractor mentioned what I have been trying to articulate.

I used to have periodic bouts with high levels of pain when joints would seize and shift and muscles would spasm.

Now, with my exercise regimen and some of my other behavior change, I am experiencing lower levels of pain more frequently, but that pain is emotionally disturbing because I am aware of and used to the conditions that send my body into a flare and am doing everything I can to prevent those situations.

So it’s a perpetual game of anticipating what might be next. And how bad it will be or get before I find relief.

I told her I have had much success with CBD cream and she recommended trying a daily dose of the oils to see if that could help from the inside out.

I’m enthusiastically giving it a shot as over-the-counter painkillers like acetaminophen and ibuprofen don’t help.

And the “not knowing” because of slow response time from my medical team is crippling to my mental health.

Pun intended.

I actually emailed my therapist yesterday and it must have been a good email because I got a response asking if he could call me for a check in, which I said yes to, and he called to do a wellness check to make sure I was safe.

Odd how that can make a person feel “loved.”

Now my hip is back in place, I took my vitamins and my CBD oil and prepared my final Purple Carrot meal from my box. This one— apricot sticky rice— even the teenager loved.

The next phase: Reaching for Body Builder Status

This is an informal update vaguely and disorganizingly (that’s probably not a word, but I like it and it’s how I’m feeling) connected to my series about my cerebral palsy.

It’s not as “official” and well-crafted as I would like as some household/parenting issues greeted me as I walked in the door and I found it hard to recover once the dog started refusing to get in her crate and I discovered the teenager’s floor with multiple piles of kitten vomit, into which I stepped barefoot.

I finished the sequel to Karen by Marie Killilea today— With Love From Karen. That is another blog posted which I started but have postponed due to other events of the day more personal.

Late last night, I reached out to a local personal fitness trainer.

For those of you unaware, the average physical therapy can cost $350 per session, with the uninsured paying $125. If you have, like I do, high deductible medical insurance, this can add up to several thousand dollars in as little as a month.

Been there. Done that.

My amazing chiropractor (Nicole Jensen, Back in Line Wellness Center) bills me $125 a session when she gives me some brief physical therapy, advice and cracks every f*cked up bone in my body.

The high end of average cost for a personal fitness trainer is $70 per session, according to Google.

Six years ago almost to the day, I embarked on my first weight loss journey and shed 30 lbs in six weeks and looked like a skeleton.

By autumn, I looked like this:

Yes, the shadow of a person lifting two pound weights with me is the now teenager as an eleven-year-old.

I have two fitness dreams:

  1. To run a 5k
  2. To be an amateur body builder

A local business, a fitness trainer only a few blocks from my home, has a summer special and good reviews on the internet.

Goofy crop is to obscure the identity of the trainer until I get permission to post.

I reached out with this message:

“I have quite the history of on again/off again weight training.

I went through a very emotionally traumatic loss of job experience in 2020 and turned to stress/comfort/ just plain bad eating and have gained 20 pounds. And stopped training.

I need to regain my discipline so I am hoping to see if you might be a good fit as a personal trainer— theoretically one session a week and I could maintain the effort at home.

I have already improved my diet, but the damage includes anemia so that makes it hard to work out especially in this heat.

I work second shift in a warehouse.

And perhaps the most important issue— I have mild cerebral palsy in the lower body so it’s super important that I keep my body strong and flexible.

I have two dreams— to actually run a 5k and to perhaps pursue amateur body building.

Please respond if this is something you might be willing/comfortable with/knowledgeable enough to undertake.

Peruse my web site http://www.angelackerman.com to learn more about me if you have concerns.”

I am tentatively meeting with a trainer at this business at 11 a.m. Thursday for an assessment and to see if it’s a good fit.

This is a good way for me to improve my health and fitness as I’ve done so much physical therapy, I know what to do. I just need someone to make me do it. And check my form.

Who knows where this might lead? Maybe my dreams of being a body builder with cerebral palsy will come true.