So much to do and I want to binge watch Top Gear America

Today was my first Monday day shift at the Stitch Fix Bizzy Hizzy. I worked second shift, then 10-hour shifts and now I have moved to Monday to Friday 6:30 a.m. to 3 p.m. After almost a year of 10-hours, 8-hours feels so short. And it feels like we’re always on break. And transitioning from a 15-minute break to a ten minute is disorienting to say the least.

After work yesterday, I went to the chiropractor, the amazing and dedicated Nicole Jensen of Back in Line Chiropractic and Wellness Center. I feel like she’s learned my body to the extent that it’s personal to her, the challenge of keeping my misconstructed extremities functioning. I think she has this zone she gets into, where she’s plotting a strategy and it’s her against me, well, the physical form of me.

I felt my body start to compensate for my hip falling out of place yesterday. It didn’t hurt. It didn’t even feel wrong, but I noticed elements of my posture changing. A little more protest from the right side, leaning that way more heavily, occasional back pain.

I don’t have the best understanding of mechanics or physics, so my brain is slowly clicking when it comes to considering my femoral anteversion, which means the head of my femurs sit in my hip sockets kinda facing the wrong way making my legs kinda face backwards I guess, makes my bones put pressure on the socket at the wrong angle pushing it out of place? Maybe?

And me, either being a trooper or an idiot, did a 8-hour work shift on a Monday, where I performed at 95%, went to the chiropractor and then visited Andrew, my also amazing and dedicated coach at Apex Training. I think I scowled at him more than usual. The work out was brutal and ended with… what did he call them… offset dumbbell rows? Imagine kneeling on the bench and doing a dumbbell row with a 20 or 25 lb weight while holding the other leg up in the air.

Meanwhile, I reached out to David from The Cerebral Palsy and Fitness Podcast and asked if my discovery and fitness journey would be something of interest for his show, and he said yes. I also updated Andrew Gurza of Disability After Dark Podcast about my upcoming “Sex in the Text” panel at the Easton Book Festival. We had recorded an episode in June, but my parakeet (may he rest in peace, that might be what reminded me of the interview) made so much noise, we hope to rerecord an interview in November.

That’s fine with me, as so much has happened since June: my service dog application, new physical struggles and this “Sex in the Text” program for Easton Book Festival among them. I’m lagging behind on my preparations, which means I’ve been scanning my Fashion and Fiends novels for sex and jotting notes about themes, goals and techniques.

But then, my new computer Midnight came with a free trial of Apple TV, which made it ridiculously easy to subscribe to a free trial of Motor Trend‘s streaming channel. Why on God’s green Earth would I as someone with no understanding of physics or mechanics need Motor Trend? Three words: Top Gear America. It’s the only way to see Top Gear America featuring Dax Shepard and cars.

I don’t think it’s readily apparent from this blog, but I adore cars. If I had any sort of skill with tinkering, I would be more hands-on, but I am useless. But, I can still drive and appreciate cars. And I certainly admire and appreciate Dax Shepard from more than one angle. I just want to watch every available episode (there are two seasons available) and forget about the rest of the universe.

Which right now is tempting… because the episode on the Lamborghini, Bentley and Porsche SUVs had me laughing out loud. I started the hot rod episode but pried myself away for what ended up being a very trouble night of sleep. Bad dreams and body pain, to the point where I was up for an hour from midnight to 1 a.m., debating whether to pull the laptop into bed. I, instead, smeared my back and hips with CBD arthritis cream and drifted away into another uneasy three hours of sleep.

So much to do before the book festival, but the cars… and the Dax… call to me.

A new pizza adventure At Nicolosi’s and a post-splinter update

First, let me start this blog entry at the end— with the pizza the teenager and I shared at Nicolosi’s.

Second, I will discuss my performance at the warehouse this week and how my body has felt now that the splinter-wound has finally healed.

So come for the food and stay for the disability talk if you desire.

It’s been at least two weeks since Nicolosi’s in Forks Township started advertising “pizza flights” on Facebook.

Now, as the teenager’s father will confirm, I love trying pizza. He and I once did a pizza tour where I ranked every pizza on a long list of qualities. This was probably 25 years ago.

When Nicolosi’s started advertising these flights— four of their specialty pizzas combined in one square pie for $20– I knew I had to try one. That’s two generous pieces of each variety you choose.

The teenager let me choose so I tried to pick flavors that would appeal to her, too: (Clockwise from top left) Eggplant parmigiana, pierogie pizza without the onions, chicken parmigiana and chicken-bacon-ranch.

I was not prepared for the Halloween decor, like the zombie pizza man, horror movie posters and plush toys from The Nightmare Before Christmas. I was prepared however for the deliciousness.

My favorite (which surprised me) was the eggplant. The staff was super friendly. The place was simple but also strongly quirky. And all of these things make me very excited to go back.

Next time, I’m ordering the garlic knots in vodka sauce and the cannoli dessert pizza.

And now an update on the random things:

Nala is doing well.
The teenager bought me the obscenely large mug from Staples. Click the photo to read about the original attraction to the mug.
I had cookies and milk at work.

Now the more serious stuff…

If you’re new here… I am in my mid-40s trying to learn how to age well with my cerebral palsy which impacts the control and structure of my legs.

As you may recall if you read my previous blog post, I had a great workout Saturday and spent the day showing my college roommate around downtown Easton.

On Sunday I woke up and my wound in the ball of my foot (from my splinter) had healed. I performed at 95% in Freestyle at work that day primarily because my printer and my computer wouldn’t cooperate and I lost 20 minutes trying to fix it.

Monday I was achy but managed to work my full 10-hour shift AND hit 100%.

But I was hurting a bit. Primarily my back. So I changed shoes and went to work Tuesday only to have my spine and both my legs start burning intensely. I still managed to hit 97%.

And I had two small falls at home yesterday.

I woke up hurting in my spine and hip. And anxiety plagued me wondering what the day would bring. I felt much better— but my right hip is uncomfortable. Fairly badly uncomfortable. But I finished my 10-hour shift and by my calculations I had 95%.

Tomorrow I visit my podiatrist. We’ll see what input he has.

The splinter update: How do a raisin and a cockatoo impact disability?

Earlier this week I visited a new doctor, where I learned about my femoral anteversion and need to gain more flexibility in my hamstrings.

After that visit, I had a miserable day at work with my hip bothering me.

But then I got a truly nasty splinter. And I wrote about the unexpected positive consequences of that here:

Part 1: A raisin and a splinter = 110%

Since then, my body has felt better than it has in 15 years (with only some minor discomfort after sitting too long and while sleeping).

And last night, between the raisin and my cockatoo (Video of her here helping me remove the splinter) I got the splinter out.

And I walked into the chiropractor today with no symptoms other than this very mild stiffness in the right hip on the groin side.

I told her the story. We laughed so hard we nearly cried.

And then she popped joints I guess she can’t normally pop.

And then she looked at my feet.

“Your feet look normal.”

We both think that the raisin and the nasty splinter DID impact my walk and my posture forcing me to stay on my heels.

So I need to practice balance and gait training, and also incorporate my doctor’s recommendation of stretching those hamstrings.

It’s so important— especially when you have a disability— to pay attention to your body and really track how you feel and all the changes.

What a week… work, doctors and Shamrock shakes

I’ve been trying to gather my thoughts for this blog for 24 hours now. And just when I thought I had them… The Teenager had dinner ready. Then The Teenager left for work and forgot to grab her shopping list.

I went to take a photo of it for her and got the largest splinter I’ve ever had in my life.

(And if you are looking at the photo, you’ll also see all the cracks in my toes from the blisters.)

I hobbled upstairs, dug my tweezers out of the closet and manage to very painfully remove the top half of it.

It’s so wedged deep into my foot and still very painful. I’m soaking it in Epsom salt right now.

Just another reason for my left leg not to work.

It’s already been giving me trouble today and leading to a lot of muscle pain in my back and torso. Even though it’s not responsible of me, I accepted the voluntary early time out at work today and only worked an 8-hour day.

So speaking of work…

Sunday I worked Freestyle which is a department where I can usually hit 100 percent. But Stitch Fix changed our small (#5) envelopes. They had two strips of tape instead of one. They were a tighter fit than the predecessor. And they were just sticky.

I ended the day at 86%.

Yesterday I worked in my home department of QC— at the quirky poorly set up table— and reached 100%. But today I was at a high table and only hit 80%.

Yesterday I saw a sports rehab doctor recommended by my primary care physician for his knowledge and training in orthopedic care. He was going to evaluate my hip pain. I shouldn’t say that— he did evaluate my hip pain.

He also read my x-rays, did a physical exam and used the photos and the exam to measure the extent of my femoral anteversion.

Apparently, the head of my femurs aren’t positioned correctly in my hip sockets. It’s what causes me to look like this baby when I walk:

Apparently, as the screenshot shows, it’s not uncommon in children and even more common among children with cerebral palsy. If the bones don’t rotate into the correct position on their own by age 10, often surgery follows.

A rather invasive hip surgery where the femurs are cracked, repositioned and stabilized with rods.

I have an appointment with the neuromuscular physiatrist May 31– but until then here are my thoughts.

1. I still think I am leaning forward at work causing the issue with my toes blistering. If my femurs fit into my hip sockets at the wrong angle, this lean might be “natural.”

2. The doctor I saw yesterday says nothing I do is causing damage to my body, so my activities are limited only by what I can tolerate.

3. Relieving some of the tension in my hamstrings may lessen some of my symptoms.

4. There is no clear solution on how to move forward.

So, I called Nan to discuss it and get her opinion. I learned she never had a shamrock shake. I rectified that. See video.

Nan’s first shamrock shake