Return to the gym and other small successes after a week where cerebral palsy gave me hell

It’s a quiet Saturday morning despite absolutely roaring winds and nasty cold outside. The Teenager and I were working out some financial details last night over tequila shooters after upheaval this week (and plans to do taxes tomorrow) in light of the fact that her check engine light popped on last night. Her car has turned out to be an enormous money pit.

I’m drinking Friendly’s Arabica Mint Chocolate Chip Ice Cream flavored coffee. I adore mint in coffee, so I picked this up. It has a light and smooth flavor, so I drink it way too fast (as I am used to my bitter dark roasts) and makes the kitchen smell fantastic, especially considering it comes out of a K-cup. Both the mint flavors I have found since stumbling on the Dunkin white chocolate peppermint, have been branded Friendly’s.

The importance of exercise when you have a disability

Last night I returned to the gym, having warned my fitness and strength coach Andrew of Apex Training that he needed to leave the sadist in him at home because my body is still delicate.

(I know he’s a personal trainer, but that doesn’t seem enough to classify what he does, so I call him my coach. Life coaching has become so en vogue right now and that sort of coaching using combines listening, some psychological training and helping people get their metaphorical shit together. Personal training to me seems very goal oriented, whereas Andrew has to deal with a lot more than that. Training implies, in my mind, sharing knowledge of an activity that relates to form and tricks of the trade. It’s giving intellectual knowledge in combination with experience to help someone develop a skill, or in this case, a habit. But, having dabbled with hobby bodybuilding in the past, I have the knowledge and we’re working with non-textbook medical issues because I don’t have a “normal” body, so I need some extra support. And I love the guys at Apex for all the support they give to me.)

Andrew prepared a lovely full-body workout circuit for me that focuses on quality of movements versus high intensity or heavy weights. He and I have noticed during our now year-long relationship that the second set of an exercise is always better than the first set. And we’ve come to believe that my body– because my brain and the muscles in my lower body can’t communicate like they do in people without neurological conditions– needs to be reminded what to do. It feels like my body needs to be shown basic movements after even the most basic hiatus to break a cycle of malfunctioning, reset, and proceed in a different and better manner.

That circuit reminded my body parts how to work together again and get all those tissues and electrical connections firing. And after a week of sometimes intense pain, emotional and physical stress, and constant discomfort, the exercises allowed me to test my movement and release any sensations of immobility or fear I was clinging to. And Andrew was there to monitor my performance and make sure I didn’t hurt myself.

And let me just add, in case anyone else struggling with a disability like mine that manifests differently in people or that the medical establishment doesn’t fully understand: It is 100% true that you know your body best, but it’s also true that our experiences in bodies that do not do what standard bodies do often blind us to what we can and cannot do. This can bubble to the surface in many ways: 1. We are stubborn and should not do many of the things we attempt to do; 2. We give up too easily; and 3. Because we never see our bodies from an outsider’s perspective so we have a skewed outlook.

These are all important reasons why I have a personal trainer. All of them. I learned this from listening to my daughter talk about my body. She didn’t mention it as a young child, but as she got older she said things like, “Mom, your feet are fucky. Fix them.” She saw me fall so many times that she began to notice the signs of when I might fall. I don’t see that. I don’t see my feet from an outside perspective. And that’s why it’s emotional painful to see photographs of myself with twisted knees. And also why I asked Joan to photograph them for Not an Able-Bodied White Man with Money. And if I’m honest, why I put the photo spread in the back of the book. (See below for Amazon purchasing details or buy from us here.)

In many ways, Andrew knows my physical limitations better than I do. THAT is why I have a personal trainer. If it weren’t for him, I wouldn’t have exercised at all last night. And this is why I get angry when people cite a disability for why they can’t work out– that is specifically why you need to work out. You can’t pound weights like a powerlifter or run marathons, but bodies need to be used and challenged.

Mundane things like food and mail order packages

Rant over… My blood pressure is elevated this morning, but looking at the patterns of the last week and my list of dietary choices, I can see the role salt has had in my numbers. Dinner Thursday night had more salt than I’ve had recently, and dinner last night consisted of a canned black bean, sheep cheese and processed mole sauce lasagne with lentil noodles, laced with that sodium.

screenshot from Goodreads

Add the tequila, of which I did not have much, and the fact that I was licking salt off my hand…

I woke to a truly distressing dream that started as one of those dreams where you need to use the bathroom but can’t find one. I was wrestling a woman in a cheetah print denim dress to beat her to the toilet, and then, in the dream, I could not pee. Despite the pain and urgency of needing to pee. I suppose my mind really wanted me to wake up, because the next part of the dream haunts me even now. I saw a baby, who appeared to be blind (remarkably similar to the early 1980s hardcover, purple dust jacket edition of John Saul’s Comes the Blind Fury. And the baby had a baby. They were side by side, a newborn and a larger infant. Which took a cheese grater to my emotions, because I don’t think they were Irish twins. I had no choice but to get up after that horrific scene.

To bring things back around to happier things… and more references to Parisian Phoenix Publishing… (Please buy books!!!)

I prepared a special mail order package with a signed copy of The Death of Big Butch. I will be headed to the post office today.

What I ate Friday:

  • 4:30 a.m., one cup Friendly’s Peppermint Stick coffee, with half and half
  • 5 a.m., first breakfast, honey nut Chex with Silk protein cashew-almond non-dairy milk
  • 8:30 a.m., second breakfast, salted and roasted pistachios, mango jerky from Solely
  • 11:30 a.m., lunch, vegan tofu spring rolls and cabbage, diet Pepsi
  • 3 p.m., snack, iced coffee with half and half and cinnamon a very berry oatmeal cookie from Panera
  • 7 p.m., dinner, black bean and sheep cheese lasagne with cheddar and mole sauce on green lentil noodles and plantain chips
  • 8 p.m., tequila shooter with pink Himalayan sea salt and a slice of lemon

(and about 60 ounces of water)

I challenged the Chromebook and lost

I only got five hours sleep last night. My emotions were a mess, my body in pain, and I had a sinking suspicion some of my issues are menstrual cycle/hormone related since in addition to my S1 joint issues, I also feel all my cramps in my lower back. PMS week is supposed to start this weekend, but as a forty-something woman I think the party is starting early.

I treated the teens to iced coffee at Wawa. They have a $2 special going on right now and I gotta say I still don’t like Wawa’s iced coffee. I don’t like their flavors. The coffee tastes week. And they never put enough ice in, and I’m the woman that asks for less ice at Dunkin’.

I get to work at Stitch Fix’s Bizzy Hizzy. I see I am once again assigned to QC so I take some ibuprofen and head to my favorite table— Valley 1, line 1B, table 2B.

And after the first hour, the supervisor who also has a disability comes over.

“Angel,” he says, “would you do us a favor and move to pick?”

“Now you know I’m glad to say yes. When?”

I’m thinking after lunch. Nope. He says to go after I finish my cart— which is two fixes!

I only picked 120, and at 11:29 pm my Samsung Chromebook warned me it had 34 minutes left. It died 20 minutes later. Apparently it can’t do math. I only had two more items left to complete my cart, and one was one aisle away. We had to manually get the last items as you can’t restart a pick from the middle.

And I felt better doing all of this than I have all week. Even despite wearing rather impractical shoes.

I came home and took out F. Bean Barker (who I learned is half pitbull/half mastiff). The neighbor’s dog barked as she was mid squat and she refused to go to the bathroom, too afraid.

And then she had explosive, watery diarrhea in the dining room and downstairs bathroom. And we ran out of paper towels.

All in all— an adventurous day.

Owning up and ripping Sheetz a new one

First off, before I even start this entry let me give my poor customer service representative Justin a shout out for his professionalism, patience and calm.

Second, before I get too far let me admit that I have now reached my heaviest ever weight, about ten pounds heavier than my natural set point with no muscle tone left. Push-ups, planks and heel-touch crunches used to be my jam– I could do 20 push-ups, a sixty-second plank and 100 heel touches without feeling tired or compromised.

At one point I had visible abdominal muscles, then I had abdominal muscles like stone beneath a layer of fat. That is now done. I struggle to walk up hill. I have no muscle tone. Where I once used 25-pound dumbbells for my bicep curls, I now huff and puff with ten.

This past year has been cruel.

This is the owning up portion of today’s blog. Yesterday, I woke up exhausted and hot but still motivated myself to do an ab workout. But then, I didn’t quite meet my step goal. And ate half a Papa John’s pizza and an order of their jalapeno popper bread bites. I meant to share them with the teenager but they were way too spicy. And I ate them all, even though they were kinda gross.

Jalapeño popper bread bites

I blame Dominos for the pizza binge as they sent me a push notification that they had two new pizzas–chicken taco and cheeseburger–but both turned out to sound boring and the $5.99 promotion seemed unavailable so rather than order my free two topping I spent $26 at Papa Johns.

The Zesty Italian or Tangy Italian, or whatever pie it was, was delicious in that trashy kind of way (though I hate Papa John’s tomato sauce I am reminded now). And the meal has led to a type of intestinal distress I don’t normally experience. I also gained 3 pounds.

The teenager tells me the pizza was good, but Dominos is better in her adolescent opinion.

Speaking of adolescent behavior, the teenager went back-to-school shopping with the paternal grandparents. She wanted a milkshake from Sheetz for lunch and her grandparents vetoed that and took her to a diner she does not like. I will withhold the name here as it is a fairly popular spot.

So she came home a little upset over the meal situation as she had just had “the worst quesadilla of my life.” She pined for that milkshake as it is 90+ degrees outside and she has marching band tonight.

“Mom,” she said. “If you buy me a milkshake at Sheetz, I won’t eat anything else today.”

I told her to throw in some extra chores and we could talk. She agreed. I downloaded the Sheetz app as these days, I don’t go anywhere without looking for coupons. I went to create my Sheetz account. Now, my husband has the Sheetz card. I have the Sheetz key ring.

The Sheetz card has a security code that the key ring does not.

You need the security card. The app forces me to call customer service.

Customer service tells me I have to find my security code, have my husband call them and say it’s okay, or use the general random Sheetz card.

To which I say, “If I use a random card, I won’t get the points. Isn’t that the point of the loyalty app?”

I launch into a fiery tirade. Because our Sheetz card/account is in my husband’s name, I cannot log into the Sheetz app. I find it odd that a loyalty app would have such strict security. I merely want to look for coupons and then go buy my daughter a milkshake.

Well, poor talented and patient Justin the Customer Service rep tells me, some people have credit card information in the app.

Yes, I say, but this one does not, because this account has never downloaded the app. So it does not have anything in it. I added that I can tell him my husband’s birthday and his social security number and probably the password he used if we ever tried to set up an online account. But he still needs my husband’s permission.

So I tell him that I refinanced my car over the phone the other day, and that I stayed on the line while the previous loan holder talked to my new financer. That I gave them my permission to share my account information with my new bank.

If I can do that over the phone, I should be able to buy a damn milkshake for my kid.

As a compromise, he called my husband at work and asked if he was allowed to give me access to our Sheetz loyalty account. My husband, of course, said yes.

He told the teenager via text that the customer service people didn’t verify his identity. They asked for no proof that he was indeed my husband.

Now let me add that if I were vindictive, because after all my husband and I have been separated for 14 months, why would I go to the trouble to steal his Sheetz loyalty number which is 16 digits, hack into his account, and run up his credit card with Sheetz purchases? Perhaps I would go squander his non-existent stockpile of reward points.

The app apprised me that we had 523 loyalty reward points and Sheetz requires 500 for a free regular milkshake.

I bought myself a pretzel with nacho cheese sauce and while the cheese sauce had a barely perceptible layer of spice to it, it had no flavor whatsoever.

The teenager enjoyed her milkshake.

Their mobile order system is very convenient.

Errands and decadence

Today started from the get-go with an air that everything would be harder than it needed to be. I’ll spare you my editorializing and stick to my main message.

The other night, the teenager turned to me and asked what happened with our recent cat litter order. Now with four cats in the house I have 30-lbs of cat litter on auto ship from Petco every three weeks. I actually had this order ship early and I upped it to 60 lbs.

Petco Customer Service

Fog

It shipped on July 24. Well yesterday I tracked it, as our five litter boxes are getting low.

The UPS tracking system said “receiver has moved.” Ummm…. I haven’t moved in 17 years and I have been getting this order for more than a year.

I call customer service. I had a very sweet, very friendly representative named “Jean” who didn’t sound American. She informed me she would file the appropriate claim about the missing package.

I quietly said, “and in the mean time, what about my cat litter?”

She placed a new order, free to me, that should arrive in 5 to 7 business days.

Three 30-lb containers of cat litter arrived at noon today. Kudos to Petco.

Errands and paperwork

I finally wrote the letters freezing my Planet Fitness membership. I don’t have a printer, but the teenager does, even though it is running out of ink. I shared the letter with her on Google docs and asked her to print two copies.

Why two copies?

Because even though my home gym is in Easton, some of my paperwork says it is Mount Pocono even though I have never even seen the Mount Pocono Planet Fitness. The letters need to be certified, according to the contract, so I spent $4.10 each to send two. It’s easier than finding out I sent it to the wrong gym.

I had $33 cash and 15 cents in coins when I arrived at the post office. I told him to give me a few stamps and if he could get the total to an even number I would pay cash. At 55 cents each, the math on making that work… well he gave me 14 and it came to $15.90.

He’s probably now thinking the same thing I am— that 2 more stamps would have been the number we wanted, $17.

Ah, well. I’m still not convinced this federal coin shortage isn’t a political move to force Americans into accepting a cashless society. I’m still pissed that we moved our currency away from the gold standard.

Review: McDonald’s Iced Coffee

On the way home from the post office, I stopped at McDonald’s again for a medium iced coffee and to get my free fries Friday medium fries. I had mentioned yesterday that the caramel iced coffee tasted like a milkshake more than coffee.

So today I ordered a medium iced coffee for $1.29 (and my free French fries with a side of spicy buffalo sauce). The standard iced coffee comes with cream and liquid sugar, which confuses me because I think it is also made with whole milk.

Well I ordered mine with no sugar. I don’t like liquid sugar and I don’t put sugar in my coffee.

When I took a sip, it was awful. My Nescafé is better. But once I started eating the French fries and the buffalo sauce, my searing tonsils didn’t have any problem with the coffee any more.

Perhaps I will have to drink all of my iced coffee plain and compare them all. Get one from Dunkin, one from Starbucks and one from McDonald’s.

This is how I think they would rank:

  1. Dunkin’ Donuts
  2. Starbucks
  3. McDonald’s

So, I want McDonald’s to knock Starbucks down a peg as Starbucks coffee is bitter. But McDonald’s struck me as weird. We shall see.

Fast Food Guilt

Triple cheeseburger & iced coffee

Well, before we have the serious discussion about poverty and food insecurity in America, let’s get a bit of humor out of the way.

There is a good possibility that the teenager will come home from her grandparents’ house today, and having read this, scream at me (because she has hearing problems not because she is disrespectful), “You went to McDonald’s without me??”

But in all seriousness, I have put on ten pounds since March and most of it is “stress weight.”

Since I lost my job July 10, I havent been to the grocery store this month — except for picking up some instant coffee or a pack of toilet paper.

I received my last pay check July 17, and tomorrow there could be $400 in unemployment compensation in my account but this will be my first payment so we’ll see if the paperwork went through. It should, but the teenager’s father and some of his colleagues were furloughed in June and he returned to work this week never receiving a dime.

So while I have some savings, my financial stability right now is precarious and as the custodial parent as a teenager I worry about the future. Therefore I cling to my pennies.

I peeled the lunch meat, cheese and the tomato out of half a hoagie the teenager didn’t plan to finish because it was “gross” and made an omelet with it for dinner.

We have a small garden. We have some friends with gardens. I keep my non perishables well stocked, so while we may be only eating meat about once a week, we have food.

And most of my food insecurity comes from not knowing when I will have any income again. I still have about half my last paycheck in the bank and won’t even have to touch savings for another month. But my savings are meager, but from what I understand better than average for the typical American who can’t afford an impromptu plumbing repair.

But, you see, when I get stressed I want fast food. The more fast food I have, the more I want.

And with the ease of order ahead apps and the discounted prices, it’s hard.

I worked my way through college at McDonald’s. I worked there 5 years and gained a hatred of drive-throughs (how lazy and inconsiderate can Americans be ordering 8 Happy Meals all custom orders in the drive through) and thought I’d eaten all the McDonald’s I would ever care to eat.

At our McDonald’s, about 25 years ago, each employee working a full shift got a free meal: one medium soft drink, one large fry and one sandwich. At the time I didn’t each lettuce, so I wouldn’t typically get a plain McChicken as I don’t care for mayonnaise either. I would occasionally get a triple cheeseburger without the onions with extra pickle.

I hadn’t eaten at McDonald’s since those days and avoided fast food restaurants so vehemently that the first time my daughter got a fast food kid’s meal (at around six of seven) she exclaimed, “Mom! There’s a toy inside!”

All went well until McDonald’s came out with a stroopwaffel McFlurry. A close friend got me hooked on stroopwaffels before they became a thing in the United States. And then suddenly they were everywhere.

I’m a sucker for a stroopwaffel.

Even after 25 years, in a McDonald’s 25 miles away from my hometown, the lobby has the same exact greasy fast food smell that I remember. My uniforms and shoes all had that smell. The French fry grease smell.

Then my neighbor introduced me to the $1 beverage menu. I downloaded the app when I saw it was free french fry day.

And then I saw the McChicken on the $1 menu. My good old favorite. And it was slightly more boring than I remember it.

Fast forward to today. I ate two small meals so far today. A small whole grain pastry. Some cheese and goldfish crackers. I’m hungry. My daughter is away.

I regress you my blue collar roots and I know I can get dinner at McDonald’s for about $3. I know I could also get a $3 bagged salad, but that won’t have the protein of a big old fast food sandwich. I haven’t had fruits or veggies today. I have some lovely fresh Brussel sprouts, probably also $3.

But I cave.

Now if I really want to be cheap, I can get the $1 McChicken, a $1 large Diet Coke and I have a coupon for a $1 large fry. Except fries are really empty calories.

So ditch the fries. Then I could upgrade and get the $2 double cheeseburger instead of the fries and McChicken. But then I’m not using any coupons so I could swap the Diet Coke with the coupon I have for a 99 cent any size iced coffee. I select caramel.

But then greed and gluttony kick in, I upgrade the $2 double cheeseburger for a $3 triple cheeseburger, the same burger of my youth. I don’t need that much cheeseburger.

But I’m getting that much cheeseburger.

I also click on not one but TWO apple pies. One for me and one for the teen. $1.49. But we don’t need apple pie. I remove it.

But I’m a little heartbroken as when we were McDonald’s crew we would take the outdated hot apple pies, at pre-close, and place them on the trays that had to be for the Big Breakfast, and smother them with the soft serve before we emptied the machine. And then we added the hot caramel. So good.

But no apple pies. I exercised restraint.

But that triple cheeseburger with no onion and extra pickle was exactly as I remembered.

This was my first experience with McDonald’s iced coffee. It wasn’t iced coffee. It was more like a milkshake. Made with whole milk and caramel syrup the coffee was more like coffee ice cream. Not bad, but way too sweet and decadent to be iced coffee. Next time I’ll get one without flavor.

I know this rant doesn’t have much organization, but I realized today I was falling into the trap of many Americans with financial concerns or in poverty. There are so many cheap & tasty options out there that are so much easier than fresh cooking. And in food deserts, the cheap options of Taco Bell and the $1 McChicken are cost effective.

I have always known this truth, but I didn’t expect to be participating in it. I never thought I would revert to my fast food youth. But here I am.

I swear— tomorrow I will eat the Brussel sprouts.