24 hours in my Covid life

Friday, December 11, 2020

I received my diagnosis this morning, after realizing on Wednesday that the symptoms I had attributed to my everyday health problems.

9 p.m.: after spending most of the day in bed, I finish Netflix’s The Crown and start Hillbilly Elegy because I see Glenn Close is in it.

10 p.m. I turn out my light and go to bed early, struggling to get comfortable because of the muscle and joint pain.

Saturday, December 12, 2020

2 a.m. I wake up, can’t get back to sleep. I play on my phone. I close my eyes and imagine myself drawing healing energy out of the cosmos and suddenly a vision of ocean waves floods me.

Around 3 a.m. I fall asleep again

8 a.m. I wake. I need to pee. But the way my body feels, the walk to the bathroom seems impossible. And I know once I walk out my door, the cats will want food.

8:30 a.m. I return to my room after using the bathroom. The kittens escape. I leave the door open so they can return and cats come in and out.

9 a.m. Some friends text to see how I’m doing. I respond and now I’m exhausted and need a rest.

9:30 a.m. the teenager is up. I asked if she can bring me coffee after I rest. She says sure.

10 a.m. I rest and she brings coffee. And my medicine.

10:30 a.m. I finish the coffee and engage in a Facebook discussion about Covid, sparked by a friend who chastises those who don’t wear masks and don’t want to abide by the mandate of no indoor gatherings. Sobaka’s mom offers to get me groceries at Shoprite. I ask for coffee.

11:00 a.m. I shower and feel human again briefly. I am grateful for these new soap products that contain eucalyptus. My other neighbor texts she is at Dunkin and wants to know my order.

11:15 a.m. I discover one of my closest friends has symptoms of Covid but hadn’t received his test results. I feel awful convinced he got it from me, but he assures me we might have gotten it from the same place. Now he has to cancel his surgery that was scheduled for Monday.

11:30 a.m. I’ve annoyed the teenager. I’m watching the cats frolic and check on the neighbor who came over for coffee earlier in the week. Her son left her home because he’s afraid I exposed them.

11:45 a.m. The teenager is chastising me for having an absurd method of organizing my tea. I’m going out to the porch to wait for my Dunkin’.

12 Dunkin arrives. I go back to bed with Kittens and a sugarplum macchiato

12:20 enjoying my Dunkin’, watching kittens play (Sugar Plum Macchiato and kittens )

12:30 p.m. more texting with friends, despite large macchiato am feeling fatigued. Watching the cockatoo pick through the leftover parakeet food I gave her.

12:50 p.m. done uploading YouTube videos. Debating watching TV versus napping like the kittens. Kitten video: Loki And Vale play

1 p.m. I decide to curl up and nap like my foster kittens. They snuggle up to me but as a side sleeper I find it impossible to get comfortable. As I face my left, my right hip, knee and even ankle burn. I roll onto my back and it feels like every vertebrae in my spine is protruding. I lie still and wait for everything to calm down. My knee is the only thing that refuses to settle.

1:10 pm I’m restless (probably from the caffeine). I remember my neighbor is out grocery shopping with my credit card and that I should have my ringer on in case she encounters a problem. several friends are texting— one had symptoms like mine and is still waiting on her Covid results. The cats are laying on me as if to force me to sleep.

Another friend texts and mentions egg nog and I am excited that my former colleague is making some homemade egg nog and bringing me a quart or two. My knee still burns as does my right sinus under my eye. I need to pee.

1:15 p.m. headed to the bathroom. The birds are oddly still.

1:25 p.m. I watch more of Hillbilly Elegy. There are some intense scenes of drug abuse, domestic violence and child abuse.

1:45 p.m. the teenager brings me some Twizzlers left over from Halloween, I ask her to let the cockatoo out for a few minutes, and my dad calls to check on me.

1:50 p.m. watching more of Hillbilly Elegy. I can’t believe Glenn Close’s performance. She’s magnificent. The older she gets the more beautiful she is. The kittens sleep at my feet. The cockatoo sits nicely on my chest.

2:30 p.m. I finished the movie, which is based on a memoir of the same name. No wonder some of the scenes were so disturbing— real life is often more painful than anything the mind can make up. My cockatoo keeps dozing off.

2:40 p.m. time to use the bathroom again and see if I can get this sleepyhead bird to go to her cage.

2:50 p.m. Sobaka’s mom is at McDonald’s so I try to place a mobile order but the GPS on my phone knows I’m still at home so the McDonald’s app is fighting with me. Gives me a funky code. It really is amazing what one can do from a sick bed with a credit card.

2:55 p.m. sneezing again. Forgot my tissues downstairs

3 p.m. watching some YouTube videos while the teenager finishes vacuuming and cleaning her room.

3:15 p.m. we received our McDonald’s order and our groceries. I distributed food to the teens by dropping it outside their bedroom doors. You can tell Sobaka’s mom isn’t a coffee drinker because she bought the cutest little can of coffee. She bought us orange juice with extra vitamin C and zinc! Now that is thinking! She also got me a big old chunk of raspberry coffee cake.

3:20 p.m. In trying to get the groceries into the kitchen and the food to the kids, I forget that our cat Fog shot past me onto the sunporch.

3:50 p.m. After watching Canadian dietician Abbey Sharp’s review of Kelly Ripa’s diet, I lie down for a nap. Instantly the kittens start playing and my feet become civilian casualties.

4 p.m. The teenager comes into my room to chastise me about the cat. Apparently the Christmas tree (which was unbalanced and the two teens had tried to stabilize it with a rope tied to a plant hanger) is now on the floor. I’m sorry, but the reality is that I don’t care.

4:05 p.m. I don’t think it’s even possible TL sleep but my eyes hurt so I will try. Maybe listen to a podcast. I check my playlist. I see episode #2050 of Car Talk has posted. Yes! I will listen to this!

4:30 p.m. Another friend texts to check on me

4:40 p.m. Despite how tired I feel I can’t sleep. The teenager brings up my clean laundry and I hear chuckles and conversation from downstairs. Both teenagers are cleaning. I am starting to get cranky and bored. I guess I’ll watch more television. Maybe I should try and play a video game on my phone. My favorite comedian at the moment is Jim Breuer. He happens to be next on my YouTube list. (Jim Breuer “Playing with Kids.”)

4:45 p.m. the cockatoo is screaming at me

4:55 p.m. the friend who got me thinking about egg nog texts again

5:05 p.m. more random YouTube. I might be getting hungry.

5:30 p.m. M texts to check on me, inquiring about my oxygen stats. Asks about my fatigue and joints.

5:35 p.m. teenager two comes to ask if I have dirty dishes (I don’t) and makes me a fresh cup of tea

5:50 p.m. Gayle texts. The video I posted to YouTube earlier has reassured everyone that I am recovering.

6:15 p.m. suddenly remembered I never updated the bios for my foster kittens to post online

6:35 p.m. off to use the bathroom before I sneeze

6:50 p.m. made a funny video with Nala and Vale: Cockatoo dancing with kitten

7 p.m. heated up some leftovers

7:10 p.m. eating alone in my room

7:15 p.m. brief text with M— as he is a medical technologist I asked him if the virus starts by attacking the weaknesses I already had in my body. He replied that I have “an excellent understanding of virology.” I also realize that except for tired, I felt normal going down to make my dinner.

7: 20 p.m. my neighbor in the other half of my house texts. The Covid test she got yesterday since I made her coffee earlier this week came back negative. Lots of friends texting all at the same time.

7:25 p.m. teenager #1 comes to visit. She plays with Nala-bird.

7:35 p.m. a crash downstairs. Teenager goes to investigate— Vale goes with her.

7:40 p.m. Teenager brings Vale back. I think I hear my neighbor’s car. Nope. But apparently this is what I do now.

7:45 p.m. I think I might have hives. I’ve been noticing them all day but now I’m seeing them instead of feeling itchy. Suddenly I have a coughing fit.

7:50 p.m. bathroom

8 p.m. guess I’ll watch more TV

The beginning of an official Covid diary

Yesterday my doctor informed me that I have Covid-19, to read about the symptoms that led me to get a test you can review my blog entries from the last few days.

I’m too tired to rehash it all. I sleep a lot and lay it bed watching TV on my iPad. I don’t feel feverish, but I have trouble staying warm.

My main symptom is intense muscle aches and joint pain so getting up and moving is hard and exhausts me.

According to my doctor I can reenter the world and return to work December 21. My employer says I should wait until December 28.

Covid positive

So I woke up a little before 10 a.m. to this message from my doctor:

I was a little shocked to see it, but also relieved. If you’ve read my blog posts this week you’ll know that I’ve been experiencing a lot of intense symptoms. It was a difficult week or forgetting my medications (Covid brain fog?), not enough sleep (thank you to the gas company and their jackhammers) and symptoms easily explained by my cerebral palsy (muscle aches and joint pain) and status as a 40-something woman (frequent urination).

So at least with a positive Covid test, I no longer fear that my body has lost more of it’s functionality. I am relieved to be sick. I suppose other folks struggling with chronic ailments and disabilities understand.

My doctor will call in about two hours. I have some planning to do, with her advice. Meanwhile it is interesting to see everyone’s reactions.

Some people offer meals or groceries which can be left on the porch. Some people call to check on my symptoms. Others offer what got them through the illness. Others calculate when they saw me last and want tests. Others know they have been around me but will watch for symptoms to get tested.

A taste of withdrawal

Yesterday was crazy difficult.

On Tuesday morning, I got up early and took the Norse Pride to the vet for a post-ringworm follow-up.

I forgot to take my medicine and vitamins. I have taken Zyrtec just about every day since this pandemic started. I am allergic to pollen, mold, dust, and just about everything else including cats.

During the coronavirus shut down I started taking my medication because spring was blossoming and I didn’t want people to think I had Covid.

Around the same time, my doctor had prescribed a low dose of Lexapro for my stress-induced high blood pressure.

So on Wednesday a.m., when I got home from work, I cuddled the animals and watched some more of the Crown. I got to bed a little after two.

Somewhere around 7:30 a.m., I heard the school bus. I rolled over to go back to sleep and — no exaggeration— a jackhammer started opening the street two doors from mine with a ferociousness that shook my house.

Thank you, UGI.

So five hours sleep.

And again because my routine is off I forgot to take my medicine.

I only picked 120 last night and I was terrified about the state of my health.

I was experiencing allergy symptoms (after all I now have 14 cats in my house), exhaustion, every muscle and joint in my body was aching. I couldn’t think. My forehead was sweating but my hands were cold. My hands and feet were tingling randomly as if they had fallen asleep.

I started the night strong with just about 40 fixes picked by first break, but at the end of the night even the ones that should have taken 15 minutes took me 30.

Every break my joints locked up and it took me time to get moving again without pain. And my numbers kept dropping.

I started to worry that maybe I had a fever and the nurse didn’t notice because I tend to have a low temperature. One thermometer earlier in the day said I was 94.5. That is impossible.

Luckily, I had some chili from a friend for dinner and a $2 latte from Dunkin.

Somehow I still managed to walk 24,000 steps but man— that brief episode of withdrawal scared me. A lot.

I came home and took all my vitamins and my medicine and slept about 7.5 hours. Hopefully that will put me on the mend.

Note: I found out later, these were Covid symptoms.

Bubble gum soda, Bizzy Hizzy and the wildlife

I was up blogging and cuddling kittens last night until almost 2:30 a.m.

And then I woke at 9 a.m. to a flurry of text messages— similar, but not as stressful as, yesterday.

We had a meeting regarding some new contributors for Lady Boss Magazine. In the middle of it, teenager #1 texted home from school that her grades had “magically gone to shit” and that she would go to guidance to see if she could transition to fully online as whereas teenager #2 needs to be in school for success, teenager #1 can be self-directed but needs a regular routine more than an in-person teacher.

By the way, there is no transition required— starting tomorrow teenager #1 is fully online.

Meanwhile little foster kitten Vale of the Norse Pride no longer wishes to stay in my bedroom with his siblings. This feisty Ruby wants to explore the house and hang out with the big cats.

Vale and Opie

And the highlight of my day was discovering A-Treat Bubble Gum Soda. It was surprisingly delightful and not as sickeningly sweet as I feared. (See the video.) here: Bubble Gum ATreat taste test

And as if this wasn’t enough to force me into sugar overload — the Bizzy Hizzy (Stitch Fix’s Bethlehem warehouse) had bagels, Oreos and butterscotch Krimpets. Not to be confused with crumpets. Everyone went berserk over them. The bagels were sad, the toasters broken and the cream cheese stingy and rather sour tasting.

Despite every joint in my body below my rib cage throbbing (I hope to goodness it is due to the forecasted rain tomorrow), I binned about 600 items in women’s non-apparel and 900 in apparel. I worked really hard to make the women’s non apparel bins (NAP) look like the concepts and photo on the training board. Organize items like books on a shelf.

This English major can handle that.

And I learned that our inventory devices are “hammers” and their brand name is Thor.

I’m surrounded by Norse legends.

I only walked about 10,000 steps instead of my normal 22,000.

My listening material tonight included a comedy roast I didn’t like, Dax Shepherd interviewing astronaut Scott Kelly, Trevor Noah discussing racism in the housing market, something about how the Metropolitan Museum of Art refuses to count the value of its paintings, and a fashion podcast lamenting how in a pandemic world the absence of fashion shows puts a lot of people out of work.

Well, chances are the models were already starving.

And on the way home, there were two occasions where wildlife crossed the road in front of me.

First a deer.

Then a fox.

I’m taking my aching bones to bed.

How to Survive During a Pandemic

This one might be hard to write.

First, let’s publicize the good news. The Mighty published my “how to go to the doctor during Covid” essay that they accepted in June: What to expect. The Mighty is a social media site for people with disabilities and their caregivers.

Last night, I interviewed for a position in my local Stitch Fix warehouse. I was told I could expect an offer in coming days.

Stitch Fix would be less grueling than any of the other warehouse opportunities (Chewy, Amazon, FedEx, UPS) and less irritating than retail since we never have to interact with the customers.

I am very grateful for the opportunity, and if nothing else comes along in the next few days, I will accept it— and I asked for second shift in hopes of continuing to build Thrive Public Relations and fulfill my volunteer commitments (ASPIRE to Autonomy, Feline Urban Rescue and Rehab, Mary Meuser Memorial Library and the county Drug and Alcohol Advisory Board).

I don’t know if I can physically handle the job as I am a forty-something with issues in her S1 joint thanks to decades of life with cerebral palsy. But if I get the position I want, I’ll be walking more than 10 miles a day so I’ll lose weight.

I’ll be talking to my doctor (already had a talk with my chiropractor) about what might happen to my body.

And I have to admit that I’m annoyed and frustrated that I lost my job about 15 weeks ago and unemployment hasn’t even looked at my case yet do to the backlog. The wage at StitchFix will be almost exactly what unemployment would have paid me.

And that, my friends, is about 65% of my former salary.

So this “good news” is scary. But that is life as it stands in this body, in this region, in this country, in this world right now.

Inspired by Vu Le, Nonprofit AF

I attended a Zoom Meeting today with Vu Le of Nonprofit AF hosted by The Gruvin Foundation. Now I know it seems odd for a writer and communicator from the Lehigh Valley to spend time with a foundation focused on Ocean County, N.J., but I had a hunch Vu Le would have a message that transcended geography.

But before I get how right I was, let me celebrate the fact that I attended the meeting in true 2020 remote work fashion—

My Zoom Face

While below the waist, I spotted pajamas.

Let me just say that Vu Le speaks the truth and boldly proclaims what those of us who rely on traditional nonprofit institutions to employ us cannot say.

It’s time for the nonprofit sector to be bolder and more assertive.

Vu Le, Nonprofit AF

He so eloquently described what could be improved about the nonprofit sector. From the basic concepts such as fundraisers should not be judged on how much money they bring in and we should reflect upon the greatest needs in the community versus pushing our own mission.

Le advocates for a change in the ecosystem so that nonprofits stop functioning in silos and foundations and philanthropists stop generating mistrust and wasting time and resources.

For instance, Le reminds us all that GRANT PROPOSALS are a WASTE OF TIME since most never get funded. He poses the question— what if nonprofits employed the same tactics as funders?

A hungry family comes to the food pantry. Before they receive food they have to prepare the following:

  1. Compose an essay detailing how hungry they are.
  2. Include a logic model of exactly how all food will be used.
  3. Prepare outcomes of how this food will benefit your children.

We don’t do that, right?

So, Le asks, why do funders do it to us?

He compares the current nonprofit environment to The Hunger Games and like the book series, he challenges those in the sector to end the game and take down the system.

Vu Le speaking, hosted by Gruvin Foundation

Some more of his simple but mind blowing, completely logical ideas to improve inequality in this country:

  • The “easiest” way to fix society is to elect more women of color. It’s the only way to balance the voice is old white men.
  • The wealthy need to pay their fair share of taxes.
  • Remove corporate influence from politics.
  • Change the two-sided narrative so it’s harder to argue.

Then he reminded us all of this fact: If most social injustice and issues that nonprofits seek to correct effect primarily people of color, why is it that typically…

Non profit boards are white

Non profit staff is white

Donors are white

So white people should allow more people of color decision-making capacity in programs to benefit them. To continue to paraphrase Le, white folks need to stop taking jobs as executive directors for programs that don’t have any impact on white people.

And if funders are only participating in philanthropy to receive the tax breaks, they need to accept that the money is no longer theirs. They need to allow those communities facing the issues at hand to make decisions on how it is spent.

And one of the best ways to promote change in the sector is to encourage funders to give general operating expense funds and let the people doing the work decide where it is needed.

Again, these ideas are not mine but belong to Vu Le of the blog “Nonprofit AF.”

Educational Videographer

There are elements of every week that feel harder than the previous week.

I think I have determined that if I don’t move enough and I sit at desks and in similar circumstances my spine cannot handle it. Perhaps I am a candidate for a standing desk.

I spent yesterday cold and in pain, rotating my chores with cuddling kittens.

The teenager went with her uncle today to build a cat litter box for her room. She’s on her way home so I’m anxious to see how it went.

I was trying to determine what to do with my day when I got an email from my friend Gayle— yes, the same Gayle with whom I walk and who is designing ASPIRE to Autonomy’s annual report— “If only you lived closer…”

And me being me, I said “I’ll be right over.”

What was her dilemma?

Filming how to video mini lectures for her classes in the graphic design department at Northampton Community College.

It was fun to help her discuss magazine layout, master pages and style sheets in one video and cutting and scoring in the next.

Then we went for a walk. Gayle had new shoes she needed to break in before her 9-mile walk on Friday. And my back did just fine on the 4,000 step promenade.

Gayle has new sneakers

She took me for a walk to Fountain Hill, past the house where she used to live. We stopped to talk to Violet who used to feed all the stray cats and I noticed a pretty cool stick. And I stopped at Dunkin on the way home as the Eagles were playing so I got a $1 iced coffee.

The times they are a-changing

So, today is my estranged husband’s 46th birthday. Our daughter— the teenager— worked very hard on a custom gift.

She had $1.80 to her name and wanted to go to Dollar Tree and purchase wrappings.

I told her I could get her to $2.12 for tissue paper and a gift bag.

Now I keep a change purse separate from my wallet. But I usually leave it in my car. I also keep a half-pint “jelly” mason jar in center console in my car for my quarters. Because I believe in “parking quarters.” I think that shows how old I am.

I also keep a pint-sized canning jar in the kitchen for the spare change I forget to leave in the car or the coins that go through the wash or fall in the couch.

I always use that money at Dollar Tree, because even when you’re broke you can afford something at The Dollar Tree using the change from the jar.

So I took the jar with me into the store.

I gave the teenager enough change to have $3.18. That way she could also get a bow.

The cashier said she’d rather have coins than the teen’s dollar.

And then she asked what I had in the jar.

I told her that was my change.

“We buy change,” she said.

And the look in her eye was like I was gripping a golden ticket to Willy Wonka’s chocolate factory. I was holding a jar of nickels, dimes and pennies.

The line was getting very long but I counted out a dollar in small change and took my daughter’s paper money back.

“That” mom

The teenager is a junior at our local public high school, plays low brass and usually makes the honor roll.

Her entire school career we’ve had “the rule.” You get one bail out per school year. One Mom-SOS request to bring an item to school— band music, mouthpiece, lunch, whatever.

Today, on the first official day of in-person hybrid public education she forgot her school-issued Chromebook.

7:36 a.m. (one minute before the late bell rings) — text message— “Mom SOS.”

I go up to her room and find her refurbished MacBook Air and her school Chromebook. Both stacked nicely on her newly organized desk. Neither plugged in.

“Is it charged?” I text.

She assures me it is.

I try to resist the kittens gathering at my feet. It’s hard— but I have a mission.

I grab her wallet (as she has my keys attached to it at this moment) my wallet, and my flip flops.

I am now “that mom.” I always prided myself on being dressed and groomed before walking my kid to school. But today, I am still as I was when I rolled out of bed: crisp white t-shirt now speckled with some Fiero dust (spicy Taki-style corn snacks in fire-breathing chili lime flavor), no bra, and yoga pants.

When did I become this?

It’s raining lightly, the crickets are singing.

I park the car near the school and buzz the office (which, with me were several late coming students). It’s a small school so the employee in the office pretty much knows most of the parents and all of the kids.

From my sequestered hallway in the vestibule I hand her the computers and noticing the lack of cords she asks me, “Chargers?”

She knows teenagers. She sees it every day.

“She claims they are charged.”

The office employee nods. I realize I really should know her name, but I suppose it’s not a bad thing as I have not become one of “those parents” in addition to “that mom.”

“Those parents” are always at the school dropping things off or calling to talk to someone about their child.

The woman at the window asks if my daughter is coming for the machines, so I text her. (Is this not blatant disregard for the “no phones in school” policy?)

She says she doesn’t think she can unless someone gives her permission. I relay this. The woman in the office calls.

I have not said my daughter’s name out loud this whole time.

It’s a small public school.

I am instructed to leave the technology on the narrow table beside me in the hall. I exit. I see the teenager approaching from inside the locked doors. I wave from the rainy outdoors.

I walk home in the rain— my middle aged self in a white t-shirt. I figure the child will want to drive later so I leave the car there.

Funny part is, it was raining on her orientation day last week so I let her friend use my umbrella. Her friend also had it with her today.

I get home a little soggy and my daughter’s cat is in my spot.

Misty

And to think my daughter asked me — “why are you up this early?”

Apparently for an SOS.