End of week update: the stats, the hip, the fitness, the coffee

Yesterday might summarize recent trends in my life. I know I posted a blog post before I left for my last 10-hour shift at the Stitch Fix Bizzy Hizzy. Monday I start a more traditional Monday through Friday shift. I’ll get home earlier, but I lose a day off. And I’m used to having Thursday and Friday off which is nice for running errands, making appointments with doctors and professionals, and for connecting with people regarding my business, Parisian Phoenix Publishing.

I still had my Friday nights and Saturdays, even if I had to head to bed earlier than most people want to on Saturday night. Many well-meaning friends and everyday people have made comments like “well that will be nice,” “no more long days” and “you’ll have your weekends back.”

But I’ll no longer have that feeling of “getting work over with” and I’m no longer part of a unique cohort. We worked alone in the building on Sundays, and that was peaceful, and for two hours every afternoon, we more or less finished the work the traditional day shift left behind.

So, I arrived at work yesterday morning, basking in the bliss of using my new Ninja DualBrew correctly. (I still have to buy coffee filters, but I love the ease of use, the temperature of the coffee, the different settings for the strength of coffee, AND how I can select just the right amount of coffee for me. The reservoir is cool for me, because it removes one more decision or step to screw up. I have been known to double fill the coffee pot when I forgot I already did it.)

On Sunday, I normally perform between 100 and 105 percent of daily metrics. I may have once hit 108. This Sunday, I hit 97. This annoyed me. It was the first sign that something was off. On Monday, I kept struggling. I didn’t really notice anything physically wrong but I did note that my toes on my right foot were really burning by the end of the day. Andrew, my wonderful coach at Apex Training, had asked if we could move Monday night’s session to Tuesday. I said sure.

I busted my butt for the rest of the day and hit at least 99 percent, but I may have hit 100. That’s when I noticed some residual issues in my body. Just that nagging sense that something was not right. I attributed it to working hard and not having my regular Friday appointment with Nicole Jensen at Back in Line Chiropractic and Wellness Center. She had a class on Friday, so she had moved clients.

Tuesday I could feel my right hip turned wrong. It was a weird feeling, like my leg was facing the wrong way. In reality, it might not work that way but that’s how it felt. And my right hip was very tender to the touch. I still didn’t have any pain, but movement was getting harder. So I tried to stretch my hips during the day, but by the end of the day, I had only hit 90 percent and it had been hard. I asked Andrew if we could move the Tuesday session to Wednesday, worried that this was more of a structural issue than a muscular one and working out could push me from discomfort and mobility issues to actual pain.

And a year ago, I was in pain every day and I don’t want to go back to that. Ever. I was flipping through my journal and last year at this time I was starting every journal entry with a number from the pain scale. That broke my heart to see.

I took a muscle relaxer, stretched some more and went to bed after a nice meal. Wednesday morning I didn’t move any better, but I was no longer stiff. But by the time I got to work, my gut said this hip was really struggling to do its job. And I was about to stand on it for ten hours.

At 6 a.m., I called Nicole’s office and left a message. At 9:15, they called me back and scheduled me for 5:15 p.m. I knew that if I waited until my regular Friday appointment and forced that hip to work out, it would lead to pain and harder-to-fix problems.

I emailed my boss as I couldn’t find him and it turned out that he had called out sick. I arranged to leave at 4:30. By my calculations, I hit 87 percent. My right side just didn’t have the mobility it should. The drive to the chiropractor took about 20-25 minutes, and when I got out of the car, it felt like my right leg had fused and stretching it into a step felt ridiculously hard. But still no pain.

This is when cerebral palsy plays tricks on the brain. As I’m (what feels like) dragging my leg into the chiropractor, I started wondering, “maybe I just need to stretch,” “maybe there’s nothing really wrong and I’m just lazy and my muscles stiffened.” But then I remembered the burning toes. Something was pushing my posture forward and my body was fighting it. But I still had my doubts.

Now, no one has ever gaslighted me in the medical community, except maybe my first primary care physician who referred me to the wrong specialist in the days when I had an HMO. I now always have plans where I chose my physicians myself.

When Nicole entered the room, I explained what’s going on and she quickly confirms that yes, my hip was crooked. Like really crooked. She even made a hand gesture. And that my body had done other weird things to compensate. It all moved beautifully when she manhandled it. She pondered what caused this when we had just considered potentially spacing out my weekly appointments to every other week. Did I overdo it at work? Was it missing the adjustment Friday? Was it skipping my workout?

When I got up from the table, my feet did, as Nicole put it, sexy normal feet posture. My balance has improved dramatically in the last few months, and my strength has returned, and my stamina is definitely increasing.

I stepped out of the chiropractor and took some long, beautiful, easy strides.

It. Felt. Good.

No, it felt GREAT.

So, I don’t know how Nicole would feel about this, but I went to the gym. And let me tell you– Andrew delivered a brutal work out. We did split leg squats in sets of 20 reps each leg with weights. He said I was moving better than I ever had before and I said, yes, because Nicole had straightened my body and stretched out my lower extremities. Like, literally, just did. We did military presses with 25 lb dumbbells. We did core. We did upper body exercises like IYTs. And shoulder taps and mountain climbers and rope slams.

And then, before a shower or dinner, and it’s 7:30 p.m. now, I had to deal with the hellions in my room. I had to swap out and refill three litter boxes for the six cats in my room. I had to vaccuum. I didn’t clean the bird cages, but I did feed and water everyone. And I’m still wondering how the heck those four kittens have trashed my closet without opening the door.

I wanted to blog all this last night after I ate my omelet of cheddar, peppers, homemade farm-procured, roasted tomatoes. But I was exhausted.

My body feels wonderful… and other ridiculous tales

This week has been a roller coaster— but isn’t that just the way? People have been telling me I look like I’m loosing weight but I don’t know if that’s true.

The teenager took the dog for a rainy walk at Lafayette College the other day. She sent several very lovely photos.

I have many odds and ends making life out of the ordinary from little foster kitten Jean-Paul Sartre to my dear friend Nan moving from my neighborhood to a senior community.

Nancy in her new place

I ordered a kitchen scale off Target.com to measure Jean-Paul’s growth. He’s up to 1 lb 5 ounces. That was after a big breakfast of pate and kitten milk. He has a hearty appetite and screams for food like any baby does every 4 hours.

He is super inquisitive and smart. He carries tiny toys around in his mouth and plays with our dog, Bean. (Here’s a video.)

Meanwhile, guest fosters Coffee Bean & Pinto Bean are having fun in my room. Khloe and Louise do not like having babies around, but the cockatoo Nala sure does.

For some humor, let’s mention that the Teenager recently discovered that the Morningstar Farms breakfast Pattie’s I have been feeding her for almost two decades are vegetarian. She called her dad to find out if he had been in on this secret.

We never hid that they weren’t real sausages from her and she’s been able to read for a long time. The shock was real, and she’s still talking about it days later.

She didn’t have a chance to go grocery shopping for her nights in the kitchen. I suggested using my Hungryroot ancient grain gluten free pancake mix and the Morningstar sausages. It was a lovely, hearty breakfast-for-dinner. And like she had accused me of when she first discovered my fake breakfast meat, “It was all a lie.”

The teen also got her first fix from Stitch Fix and it came from the warehouse where I work, the Bizzy Hizzy. Click the photo to see her unbox.

Click to see what’s in the box

Speaking of work, I took voluntary time off on Monday and my stats were 100%, 88% and 98%. Andrew at Apex Training has been working be hard with exercises like split leg squats. My quads feel it. My balance is improving, my aches and pains feel like muscle fatigue and not deeper pain or joint issues. I have caught myself almost falling several times, and can sometimes feel my leg scissoring or even notice my left foot dragging behind before it trips me.

Even my chiropractor, Nicole Jensen of Back in Line Chiropractic and Wellness Center has made comments about how well my body is moving and how things are improving. Today she said my right side was locked up, when it’s usually my left, and that everything went back where it belonged easily.

When I hopped off the table, she told me to look at myself. “I have never seen you stand up with your feet so firmly planted and your poster straight,” she said.

And I felt it, I felt really solid.

So I don’t know if this is where I confess I tried the new Wingstop chicken sandwich. Most of my diet lately has been vegan. But last night I hadn’t had dinner, it was 8 pm and my body was devastated (in that good way). I could barely move after my shower. I considered skipping dinner.

But then I thought about my food intake for the day:

  • 4:30 am: Supercoffee dark roast with half and half
  • 5:30 am: Wawa coffee con lèche (it was a bribe to make myself go get gas)
  • 6:30 to 8:30 am: 20 oz water
  • 9 am: Kind Peanut Butter Breakfast bar and about 3 oz cranberry juice cocktail
  • 9:30 to 11:30 am: 20 oz water
  • 12:15 pm: quinoa with roast zucchini, white beans and my home canned roasted tomatoes, 6 oz Diet Pepsi
  • 2 to 5 pm: 20 oz water
  • 5:30 pm: sunflower seeds
  • 6 pm: 12 oz cucumber water

I thought a chicken sandwich would be good for protein and I saw the commercial for Wingstop’s new chicken sandwich on Hulu. It was good, not as big as I thought a sandwich from a chicken joint would be— but to be able to slather any sauce from their menu on our was really cool. I had a mango habanero sandwich and a side order of the honey hot rub boneless wings. It hit the spot.

Meet Jean-Paul Sartre, the kitten

Today we picked up a new foster kitten, a tiny guy I named Jean-Paul Sartre. More on his basic data here.

We spent some time introducing him to the dog, which went well. He has a carrier set up as a mini-crate as he’s only five weeks old and about a pound.

He needs one to two weeks of quarantine before exposure to other cats. I say one to two as the person who rescued him kept him for a week.

I asked one of my fellow FURR volunteers if she would consider proofing the “itty bitty how to cat book” and she said yes, so that is a huge help.

Tomorrow FURR is hosting a “who’s been in care the longest” adoption event and we have been invited to bring two of our four adults. So stayed tuned to find out who and how it goes.

Khloe

Louise

Minerva

Touch of Grey

Walking, workouts and waffles

I did not work a full ten hour day any day this week. But you know what? That’s okay.

My stats on Sunday were 105%, then 98 Monday, 88 yesterday and 94 today. What happened?

I don’t know. I was in pain Monday, stiff and uncomfortable yesterday and almost fell today but caught my balance.

And then Andrew at Apex put me through legs. We did split leg squats and he got to watch my hip do the funky angles it does. And I got to feel every fiber in my knees, quads and hamstrings.

Plus, I walked more than 8,000 steps today while my legs were stiff. Well after that workout they are not stiff but jelly.

The Teenager showed one of her dog walking clients some of the neighborhood dogs and their tricks— here is the video.

And then for the final event of the day we went to Waffle House as earlier this month we had heard that August 24 was National Waffle Day.

I had a scrumptious hash brown bowl with egg, cheese and jalapeños.

We split a peanut butter blueberry waffle.

These are the moments to treasure.

Margaritas and cat noses

I might be pushing too hard.

I did (I think) 105% on Sunday at work, 105% yesterday and woke up stiff and with my right quad tight and spasms in my calf. I only did 93% today, but I feel better now. And the dip in numbers had more to do with some chaos in the warehouse versus my cerebral palsy issues.

Regardless, I must admit I was a little relieved yesterday when my fitness coach Andrew from Apex Training postponed my workout.

The teenager proposed going to Applebee’s for dinner, her treat, as she didn’t feel like cooking. She also demanded I order a cocktail as I think she wanted to make sure I drifted off to bed as early as possible. (8 p.m.)

The teenager loves Applebee’s— for a child raised in all sorts of Mom & Pop restaurants where we often knew the owners, she certainly loves her boring old franchise Applebee’s.

I realized that if you took any item with chicken tenders away from the menu, you’d lose more than half the meals available. And if you didn’t want bacon on your hamburger, you had three choices: the quesadilla burger (which we got), the plain old burger and the Beyond veggie burger (which was $14 and came with nothing but lettuce, tomato and pickle).

Boring.

The quesadilla burger was a mish-mash delight (I chose my margarita for the artificial Latin theme) but had to be eaten with a knife and fork.

When I arrived home, Opie and Fog (two of our personal cats) joined Khloe and Louise (foster cats) and Nala (Goffin’s cockatoo) and Yo-yo (parakeet) in my room for the night. Fog tries so hard to be Louise’s friend— and she is slowly (after more than a year) getting braver and more confident.

Louise (left) and Fog (bottom right)

Finally, for those that are wondering… I ruptured my tendon in my ring finger April 15 and had “mallet finger” and a cast for nine weeks. My specialist released me July 25 and expressed his disappointment that my finger was still a little off.

My finger after a ten hour shift August 15 — four full months after my accident.

I use my hands so much at work, so I still splint at night. I must say it feels like and looks like the finger is getting stronger and straighter every day.

Updates, announcements and anecdotes

It’s just about to turn 5 a.m. on Tuesday morning. The last 48 hours have been emotionally difficult, and those are internal challenges I have resolved within myself but now I need to “make right” in the world.

My good friend Joan (the talented photographer) had quipped that the moon is in “Frustrato” phase and perhaps that is accurate.

Sometimes it’s nice to blame the universe instead of accepting our part in the mayhem. Because even good intentions spark fires.

I heard a podcast yesterday; I believe it was an economic one, that asked if one host was “a glass half empty or a glass half full kind of guy.” He replied, “it’s just half.”

That’s too much enigma and philosophy for pre-dawn hours. Blame the fact that my trusty espresso machine only filled half my mug.

Mug from Purr Haus in Emmaus

The teenager and I had 14 kittens in the house Saturday, Sunday and Monday offering temporary lodging for these babies whose official Feline Urban Rescue and Rehab foster families have gone on summer vacation.

They were so much fun to have around, but 11 went home last night. This led the Teenager’s officially adopted foster fail Mars of the Roman Pride distraught that his friends had gone. He screamed until the Teenager released him into “gen pop” where he plopped himself down in front of the remaining visitors.

On Friday, I had a rather grueling session at Apex Training with my coach Andrew. We did some intense work on balance and single leg muscle stability. On Saturday, the communication between my brain and my lower body felt rickety (for lack of a better description) and it was challenging to move. By Sunday, the movement felt smoother but my phone was registering spikes in walking asymmetry. But something very interesting happened Monday— I could not only stand on one leg, but I could also hold my leg in a few seconds of a quad stretch.

Yesterday, I visited the Stitch Fix employee store, which resulted in a good news/bad news scenario. I bought myself jewelry on an impulse and discovered my second holes could still accept earrings. As someone who really grew up in the 80s and graduated high schools in the 1990s, I have three sets of holes in my ears.

I bought the Teenager some new things, including some warm hiking style boots for fall and her dog walks. I bought myself an adorable pair of shorts, and I picked one size up from my pre-existing Stitch Fix clothes and they were too small.

Obviously my efforts to reduce my recent (as in pandemic era) weight gain have been not sincere enough. Sigh. I’m trying to eat better and move more without falling into a strict/restrictive mindset.

But I did eat an entire medium pizza from Domino’s the other night. It was a medium hand-tossed crust, light on the cheese, light on the garlic Alfredo sauce with red peppers and pineapple.

On the way home from work last night, I noticed that the furniture store looked abandoned— and that the sign merely said urn.

In the background of all of this, the ‘cat book’ from Parisian Phoenix has hit some unexpected difficulties prompting a delay in its production. But my quick thinking, after a few hours of pondering, have inspired an interim release of a mini cat book featuring advice and stories about the care of cats. The larger book will come later, perhaps in early 2023.

In the meantime, I am very puzzled why my sweet tripod foster Louise has decided to crate herself.

And the most surprising item of the day was receiving my first catalog for Parisian Phoenix Publishing— Uline junk mail!

I suppose the last update is that the people at Susquehanna Service Dogs have cashed my check for the application fee. I’m anxiously awaiting contact.

To say life has been hectic feels like an understatement.

How to Deal with a Heat Wave: Ice Cream Dog Walks

“You better put in that application for a service dog.”

We hadn’t even made it half-way down our block and I already stumbled and fell. The teenager, her dog, and I had left our house at 7 p.m. on just another high-90s day. We were headed to CVS for ice cream.

The CVS is a 2,000 step walk— there and back— so we thought it would be good exercise for the whole family.

Plus, I had about $3.75 in Extra Bucks and a 40% off coupon. A pint of ice cream is $6.99 at CVS so I grabbed a whole bunch of singles and a handful of change.

The dog behaved really well on the walk, but my left foot did not— it kept twisting under me. I felt like I had to lift up my feet in exaggerated steps not to fall. Like high knees marching.

I stumbled twice on the way home but did not fall again.

The teenager made her remark about the service dog. I’ve spent a lot of time with her dog this weekend and thought… just imagine if this dog were useful.

I already did 90% of the 54-page application packet. I talked to those people I want to be my support letters (the teenager and my neighbor, as they would be my literal supports) and my references: the teenager’s father, cat foster godmother (who used to be a social worker) and my long-time therapist (whose wife is a physical therapist).

That leaves one thing: the medical evaluation. My own insecurities make it very difficult for me to ask for help. And it’s taken a long time for me to learn to speak up and out and advocate for myself.

I am nervous to ask my doctor— my family doctor of more than a decade— to do it. Part of me wants to wait until my appointment on August 19. But if he says no, that only leaves me two months to find someone else.

I think I need to call the office tomorrow and leave him a message to ask if he’d do it if I bring the paperwork August 19, or sooner if he wishes.

Again, I have doubts. What if I’m not disabled enough? I don’t want to waste anyone’s time. I don’t want to take a spot away from someone who needs a dog more than me.

But I’m struggling and I’m scared and I’m getting older. And I can do so much on my own but a dog would give me that much more.

I spent a lot of time on the application. Pretty much a whole day. What do you want the dog to do? What’s your typical day? Do you work? Do you volunteer? What are your interests and hobbies? Do you own a home? Do you have pets? Who lives with you? Do you drive? Can you handle travel? Can you take care of the dog? Are you able to train the dog?

If I can get ahold of the doctor’s office, as soon as I know someone will fill out the papers— I will tell my letter-writers and references to do their thing.

My therapist and I had a chat about it. His professional association discourages therapists from doing medical evaluations for service dog applications, but since I was asking for a reference, he was okay with that. He had no idea how many things a mobility dog could do.

He mentioned that in our current times, the emotional support animal and assistance dog phenomenon seems to be getting more and more prolific but that in my case, I’d obviously put a lot of thought into it, done my research, and found a program that could really benefit me.

Fingers crossed, I guess.

Oh, and the ice cream… it was $1.86 after my discounts. I had a $5 bill, five singles and 87 cents in my pocket. I paid exact change.

Do I want a (mobility) dog?

A while ago, the teenager suggested that I needed a mobility dog and someday she would train me one.

Well, with all the mishaps and falls I’ve had since April (mallet finger, smashing into a brick wall, almost breaking my glasses falling literally on my face, falling into the bathtub and whacking my head on the ceramic tile wall and my personal favorite falling through the screen door), I did some research and thought the beautiful, dog-loving teenager might be right.

I had previously blogged about why I thought a dog would help me and I also thought a first dog should come trained and the teen, approaching young adult, could learn from this one. Just like I would.

My previous post on service dogs

I requested an application from two organizations. The closest to me was Susquehanna Service Dogs near Harrisburg. They sent me an application today. I have three months to fill it out.

The flow chart of initial steps for a service dog

The application requires my demographic, medical and lifestyle information, plus the financial statement saying that I will pay the $5,000 necessary if I get into the program. I need two letters of support— they need to come from people who support me having a dog and promise to support me and the dog together for the life of the dog.

I also need three references.

And a statement from my doctor.

I just thought I’d document my thought process and journey here. Because I’m hopeful, and doubtful, excited and afraid.

Do I want a dog? Can I handle the commitment? Am I the right kind of disabled to benefit from a dog? Can a dog help me be safe? Can I maintain an active lifestyle? Will they see how a dog would protect my independence?

Here Kitty Kitty

Yes, that is a kitten. Yes that is a photo by the amazing Joan Zachary. Yes, that is the teenager.

Please check out this blog post about the upcoming book to benefit Feline Urban Rescue and Rehab. Yes, I am helping to write it, putting my journalism skills to work. And I am offering cat wisdom and reprinting a flash fiction I wrote in high school.

As The FURR Flies, an anthology of cat stories, heart-warming tales from cat rescuers, cat resources and cat advice has gone from in the pipeline to …

Here Kitty Kitty

Rebuilding

No fancy title. No big announcements . Just some subtle realness.

Though I do have a little good news. Misty came home today. He’s wobbly, but he’s his sweet-natured self. Video here.

Touch of Grey is still in the hospital.

If you missed that harrowing tale, you can read it here.

The world often seems twisted in an eternal loop of one step forward, two steps back. It makes me miss my dad.

But I noticed today amid the cat drama and everyday life— I worked with my blind friend Nan this morning— that I still have trouble with my right leg, mostly stiffness and lack of control, but no pain.

So when I headed to Apex Training for my session with Andrew, I felt anxious and emotionally exhausted but physically ready to go.

Every session Andrew challenges me more today— and I did a mixed grip barbell deadlift at 100 lbs. And for the first time, I felt like I nailed the form.

As if that weren’t enough, he had me do something I never heard of: a plank up. He wanted me to do 5, but I only did 4 1/2. Well, Greg was willing to give me credit for 4 3/4. And as the teenager says, Greg doesn’t hand out credit easily. Speaking of improvements, in Saturday’s session, I surpassed 60 seconds in a plank.

My strength, at least the physical kind, is coming back.

Dinner was a flat bread pizza — a vegetarian delight of random cheese I found in the fridge, a radish sliced thinly, and some honey with red pepper flakes.