The update on life, service dogs, what it feels like to live with cerebral palsy, and other things I know at least one faithful reader is waiting for

I haven’t written in a while. Again. I’ve wanted to– I’ve started blog entries and not finished them. I’ve posted on Parisian Phoenix’s web site. Please, if you haven’t subscribe to the mailing list over there or on Substack. Or buy a book. From Parisian Phoenix directly or wherever you prefer to buy books. We have an affiliate shop on Bookshop.org, that’s another option to consider.

Meanwhile, forgive the cornucopia of prepositions in that title.

And I think it’s time to give another work friend an official nickname. I’m going to christian another work friend, the one with the stylish purple glasses that really complement her skin tone, as “Faithful Bizzy Reader.” She is one of my tribe, one of us who has migrated from Midnight Society to the Sunday cohort to traditional day shift at our Pennsylvania Stitch Fix warehouse. Those transitions, as brutal as they’ve been over the last 16 or so months, have made us a raucous bunch. At least, that’s how we behave at our lunch table. She’s noticed my sporadic posts, and today I admitted that my physical health has drained me to the point where I have nothing left to write.

The disability/cerebral palsy/dog stuff

As I’m sitting here, my Goffin’s cockatoo is grooming me, and I’m trying to get her to trim my hangnail. She’s really good at hangnails and splinters. If you never heard the story of the raisin that fixed my gait and how Nala the Goffin removed my splinter, you can read that story here.

I have dealt with various levels of pain on and off for more than a week now. I prayed that it would end with my chiropractor appointment last week, but it didn’t. It went from an eight to a two, so I was happy with the improvement, but then cycle of vacillating between slight and excruciating burning continued for days. My glutes, my lower back, my quads and sometimes my knees scream horribly. And when an “attack” comes upon me, standing there takes all my energy and makes me want to vomit. The burning sensation never goes away. My quads and lower back are throbbing with about a two of pain right now, seated in this chair at my desk. And my calves are pulsing. Maybe even spasming.

I tried taking more muscle relaxers. I tried exercise. I tried rest. Nothing seems to make it better or worse. I even brought Sobaka with me to the gym. (If you look at the photo on the right, that’s Greg who founded Apex Training with our neighbor princess dog who has been staying with us this week. Also, my name is very close to the upper left hand corner on the chalkboard wall.)

Interestingly, my trainer Andrew said my posture in some of my core related movements looked good. But man, every exercise was a struggle. Even the “pop-squats” he asks me to do, merely sitting down and popping back up as soon as my butt hits the bench required a lot of concentration. And I honestly don’t know how I survived hamstring curls as my legs haven’t wanted to cooperate with things like basic walking or stretching out my quads. But I did it. I was really hoping the extra blood flow would help.

But it didn’t. And after so many days of inconsistent pain, I just want to sleep for a week and stream TV.

My toe and my Morton’s neuroma have not been bothering me, but I did order my latest pair of shoes a half-size bigger.

And in positive news, I received an email from Susquehanna Service Dogs that they received my post-CTE (canine therapeutic evaluation) paperwork and will be reaching out to schedule a home visit. The final step between me and the waiting list for a service dog. “Both you and [The Teenager] provided awesome, valuable feedback in your emails,” my coordinator in the program wrote. “I’m glad that you had yet another chance to work with Miss Katydid– she is spunky!!”

The Stitch Fix stuff

I’ve been struggling at work. Luckily my stats, even at my worst days have remained around 100%. I’ve been on a downward spiral ever since I got sent to work in inbound processing for a day. That day, working on the back of a line on a table forcing me to pass baskets pretty far forward and to my right, shifted something. I don’t have an injury, but ever since that day, the pain I’ve grown familiar with in my hip has moved into my tailbone and quads. It’s nice that my femur no longer feels like it’s poking a hole through my pelvic bone, but now my muscles of my lower body always feel like they are overtaxed.

Anyway, whatever is happening in my body caused me to miss metrics three days in a row and now I’m in the middle of a probationary period of sorts known as “focus,” a first warning where Stitch Fix, my supervisor and myself work together to discover how Stitch Fix can “support me” because four rounds of “focus” can lead to termination.

Or I’m guessing will lead to termination.

I don’t know what to think– and once again I find myself placed in a situation where I need to be more of an advocate than I ever wanted to be. I enjoy my job. I love the people. I find the wages and benefits fair. But will it come to the point where I have to argue that 1. Their lack of following my approved medical accommodations during that day in inbound may have caused this whole situation (and I did not advocate enough for myself at the time, because I didn’t know it would f*ck me up) and 2. I have worked for the company for nearly two-and-a-half years and I have always experienced periods where I just cannot perform like the average person. Their recent change in metrics have placed me at a disadvantage, and I still have the capacity to do just as much work as the average person over longer periods of time, I just cannot do it every day. And the two days a month of grace they allow us does not fit my body.

So… keep in mind… yesterday I did 136 fixes, which is 105% of the daily minimum expectation of 130 fixes. I could have done 140, but I slowed down toward the end. In the old system, those extra fixes would have cushioned my numbers. Today, I did 130 while fighting nauseating pain and fighting for balance. I could have done 131, but again, it won’t matter. But in the old system, had I done 140 and 131, that puts me 11 fixes ahead for the weekly average, which means if I only made 120 later in the week, I would still hit my numbers.

I understand that they need consistent performance, but if you know an employee is giving 100% and that employee has a documented disability, that employee deserves a little bit of leeway.

I have a lot of questions about this “focus” concept. But, if once I get out of my focus period, how long do I have to perform at 100% before I end up clear of my record of first focus, because it’s only a matter of time before my body can’t do it. So, how long do I have to last before receiving a second focus, versus another first focus?

The fun Stitch Fix (fashion) stuff

There are several items in the Stitch Fix inventory I have wanted for a very long time. One is the Papermoon ember sweatshirt in dark gray that reads, “Weekend.” I love the cut of the Hiatus t-shirts. There is a Lagerfeld ruffle, striped tank top. Some Liverpool plaid pants. I could go on…

And since I received my discount back from The Teenager, I went on a bit of a shopping spree and bought some sale items. But, meanwhile, I kept thinking of the Skies are Blue Hannah modal blazer in magenta. It’s normally $88, incredibly silky, and the perfect color to represent Parisian Phoenix at events. Don’t confuse this with the Skies are Blue boyfriend blazer in magenta– the Hannah blazer is sleeker, softer and less boxy.

I earmarked the blazer as a favorite in my Stitch Fix account. It popped up in my proposed looks, as it does in the photo to the right. I already own that bag. I love that bag, the Urban Expressions utility tote in mustard if memory serves. I love the dress, but my middle-aged saggy mama belly couldn’t pull it off, and I would certainly wear those boots. But seeing this look made me cave and buy the blazer. Thank you employee discount! It headed out from the Breezy in Atlanta and should be here Friday.

The boring stuff

Finally, in household stuff: I still need to finish my local and state taxes, and pay the per capita tax. My drivers license renewal form came. I cleaned the air purifier in my bedroom (primarily caked with that chalky white bird dust) and must do a deeper than usual clean of the two cat boxes in my bedroom because I’m smelling ammonia in there. The Teenager had chicken quesadillas on the menu tonight. And I have a library meeting on Zoom at 7 p.m. I serve on the board of trustees at my local public library, the Mary Meuser Memorial Library.

So, there will be no sleeping for a week or streaming TV. Instead, I will attend my meeting and collapse in bed in exhaustion and get dressed out of the laundry basket in the living room because I just don’t have the strength to carry it up the stairs.

Friday Logistics Fascination and a stop at The Spot

This post is dedicated to my work friend Barb who starts her new job on Monday. I miss her, but I am so grateful to have met her that I can only wish her well and be proud of her.

Today was a pretty great day.

Well, it’s 10 minutes after midnight so I guess yesterday was a great day.

We were supposed to host three dogs this weekend, Buddy the super lovable white dog next door; Sobaka, the “Morkie” or Maltese Yorkie from across the street; and of course, Bean, our own big black mutt.

Sobaka arrived at 9, with the teenager getting her settled and then the teen returned to bed. I woke to a text message that Buddy would not be joining us after all, as his owner decided to bring him to Maine with her at the last minute.

We are very disappointed as Buddy is the dog medium enough to be a good companion for Sobaka.

The teenager has a pet sitting gig starting tomorrow (I mean in a few hours— I keep forgetting it’s the middle of the night). She will be sleeping at the home of another crazy cat lady… I mean fellow FURR foster mom.

The teenager will be watching two dogs, one very elderly; one small parrot, two personal cats and probably a dozen kittens. And a series of gardens.

It was another super flipping hot day, so I was glad I decided to bake the teenager’s “first day of summer” applesauce cake after work last night.

And I went to work today with no pain in my body!

Speaking of the Bizzy Hizzy, Stitch Fix offered us voluntary time off tonight if we reached our weekly shipping goal. We would be allowed to work a half day. So we got the job done in 3.5 hours and did a little extra.

Conveyor to OB1

I was style carding tonight— I still haven’t asked my supervisors how I’m doing. I’ve been enjoying it and it’s probably the least physically abusive work center I’ve learned.

I’ve been at Stitch Fix nine months, and my fascination with our warehouse logistics grows more with every new station I learn.

It’s hard to believe I’ll get another raise in three months.

But here’s my philosophical thought: Nothing creates a sense of deep teamwork better than people who all understand each other’s jobs and work together to achieve a mutually beneficial goal. It’s not enough to agree to a corporate goal or non profit mission. We may all have low-skill light-warehousing jobs but we all wanted to get the heck out of that hot building.

I compare my experience here with a previous (or several previous) employer(s):

  • At Stitch Fix, my bosses don’t punish, guilt trip or manipulate me regarding time off.
  • At Stitch Fix (and also at Target), they provide the training and the safety guidelines and trust us to work autonomously.
  • At Stitch Fix, I bring home the same amount in my paycheck as when I worked higher stress jobs.

I feel like on nights like this, our understanding of how the numbers work and also how we all normally perform allow us to know how attainable these goals are. And that’s exciting in a “we can do this” way.

Is the job perfect? No. I’m perfectly aware that I am a cog in a very big wheel and sweating my ass off folding clothes or putting papers in envelopes.

But I have had some awful bosses. It’s sad how bad managers can be not only blind to their own flaws but assume weaknesses in others where they don’t exist.

This is a topic I could write a book about.

ANYWAY.

Through most of this literally painless half-day, I listened to the Marc Blucas interview on the podcast Meeting Tom Cruise. He was Buffy the Vampire Slayer’s boyfriend Riley Finn. I hope to do a full review of it.

And the we finally stopped at The Spot for ice cream. The teenager drove me to work so I bought her a banana milkshake and I had a root beer float. Next time I want salted caramel soft serve with Reese’s peanut butter cups. The soft serve was delightful, the menu varied, and the prices cheap. Only downfall was the multitude of styrofoam.

Upon arriving home (after stopping to get my business cards from Gayle and I had to give her an A6 envelope box I commissioned her to doodle), we walked the dogs, ate some leftovers and watched an episode of Buffy (Doomed if you are curious).

I was cracking up on the walk because Sobaka liked to lead the pack. Well, Bean would speed up to join her because she didn’t want to be left behind. She wanted to walk side by side with Baktilda. (Yes, these are all nicknames for Sobaka.)

So then Sobaka would walk faster, but Baki has tiny legs. Bean would just keep matching her pace without breaking her stride. Baki was like the horse trainer who guides the horse around the ring and sets the pace.

Finally, the real miracle of the night— Louise is sharing her space with the dog. My bed no less! Is she making progress or can she not figure out what kind of animal Sobaka is?

Nescafé capers

Days upon days of 85, 88, today 93.

Kiss Me Kate / “Too Darn Hot” (Ann Miller)

My weekend was filled with various forms of professional work. Some work for Aspire to Autonomy, some work for The March of Gentlemen, some brainstorming for Thrive PR. Darnell and I have some big projects brewing and I can’t wait to share them with everyone.

Last night we had our casual El Camino Virtual Pilgrimage zoom meeting. Despite the heat, I have consistently walked between 6,000 and 8,000 steps a day.

In the pilgrimage group we talked a lot about where we grew up and we set a challenge to find someplace new to walk this week.

This morning, my blind friend Nan and I got together to review her writing, submit some poetry, and look at the upcoming NASA schedule. The mission to Mars launches this week and the SpaceX Dragon returns from the International Space Station.

In the afternoon the regular insanity commenced here— Sobaka came to visit, Nala kept getting off her cage to harass the cats and the dog and the teen had a zoom meeting about the future of the marching band season. Marching Band is a go!

And today I heard the words I didn’t want to hear.

“Mom, can I taste your coffee?”

The teenager

It started with a blueberry caramel signature latte from Dunkin’. That started her with the realization that with enough sugar and milk, you can barely taste the coffee. Then I figured out how to replicate the $5 iced latte in an iced coffee on sale. Then I scaled back the caramel…

And then she started on cold brew.

And today she tasted my at-home quick and easy iced coffee. Coffee snobs please skip the next few paragraphs.

When I can’t afford fancy afternoon iced coffee, I take a pint of milk, mix in a heaping teaspoon of dark roast Nescafé instant coffee, and drop in three ice cubes.

An afternoon pick-me-up and a snack as there is milk.

And the teenager liked it.

With no sugar and no flavor.

Problem is… my Nescafé jar looks like this:

So not only now do I have to fight the teenager for milk, I have to challenge her on coffee. I had to lay down the law.

I told her— look, child, until we get to the grocery store again, you can drink the Dollar Store instant coffee your dad bought. She said that would be fine.

She had two glasses this afternoon.

She may never sleep again.

Monday gratitude

Today I am grateful for:

  1. My local school district providing grab and go lunches for our kids in urban food deserts or in families facing unemployment during this pandemic.
Sample Grab and Go Meal

2. Living in a neighborhood where my neighbors and/or their dogs love to take random walks.

3. The view from my parents’ deck in the Pocono Mountains. Nothing like an after dinner coffee with your dad, admiring the horizon.

Happy Monday!

A Foggy Itch

This post is about some some difficulties…

Nothing serious. The day-to-day realities of life.

As I mentioned in an earlier post, the teenager had some medical issues. I have a dental appointment for an adjustment to my crown that was a mild nightmare before the Coronavirus pandemic. That’s on the 17th.

My favorite kitten got out and was missing for 24 hours this week. Thanks to all my neighbors who offered to help or kept and eye out for Fog.

So his brother, Misty, and I went walking in case Fog was afraid to come home.

Fog found his way home on his own, as cats often do. But he no longer had a collar.

In Nala news, (for those that don’t know, she’s my four-year-old Goffin’s cockatoo who joined our family in January) she has stopped plucking and has started barbering. This means she was pulling out her feathers, which, like with a teenager who “cuts,” releases endorphins that soothe. But barbering is the habit of eating the feathers but not removing them.

I hope this is a sign of progress.

This morning, the teenager and I went to Petco to get Fog a new collar (and we made sure all critters had tags with their name, address and phone—except Opie who eats his collar and since he’s microchipped AND is an amputee, we hope the neighborhood would “know” he belongs to us. He does have a tag, he just refuses to keep it on).

And we dognapped the neighbor’s sassy Maltese-Yorky for the day.

Lastly, I’m still struggling with some rather difficult itching. It’s a stress thing. The heat, stress, and my already overactive immune system (due to a myriad of pollen allergies and history of contact dermatitis) is prompting random hives. One or two, here or there, which despite daily antihistamines is getting worse not better.

Once a hive pops up, if I as much as touch it, it will stay and itch for days. I have some that won’t go on my belly, arms and butt right now. My thighs come and go.

So I post this things just to remind every one that despite what perfection people post to the internet, there are always struggles we all face, small and large.

Pre-Birthday Magic

Many years ago I bought a silk slip on clearance in a beautiful teal blue color that matches my current bedroom. Because it’s a full slip, and such a strange and rich color, I never found a dress I could wear with it.

Last night I decided to wear it as a nightgown. I felt so fancy.

I was so cozy in my silk slip I didn’t want to get dressed. I thought a good way to compromise would be to wear a dress. And I got a new dress from The Attic that I haven’t worn.

I did my make-up and everything.

Now to make things more interesting I managed to convince my dad that we should have a socially-distanced picnic to celebrate my birthday and my step-mom’s birthday which are both tomorrow. I really want to cook these on the grill, and I don’t have any charcoal for mine.

And I had to order these. They sound so good! And when I ordered them from Tucker Silk Mill, I ordered fresh dill, fresh ginger, fingerling potatoes, sweet potatoes, golden beets, cauliflower, and purple peppercorns. The Vietnamese purple peppercorns were a birthday splurge.

And I never had golden beets, but I don’t really note any difference between those and regular beets.

I hung a load of wash outside and noticed so many lily of the valleys. At the front of the house my roses are finally blooming. I can’t wait to bring bouquets into the house.

At work today we still didn’t come to any agreement on when I can take my vacation.

I was working on my laptop on the sun porch when two women starting taking photos of my flowers. I heard them comment how beautiful my roses and irises are. I said thank you and started them as they hadn’t seen me.

They had been worried someone would yell at them for being in my yard. I laughed. No, I said, you are welcome. They took photos!

The teenager arrived home with the lemon cardamom cake she baked at my request for my birthday.

Recipe from Spice TrainLemon cardamom cake (click photo for recipe) On my 30-minute lunch break, the teenager and I ran down to Tucker to get my impulse buy of vegetables and then headed to Dunkin’ Donuts for my free birthday coffee which they completely screwed up. The teenager got some more of her special Dunkin stones from the side of the drive through.

(For more on the teenager’s fascination with the magical uses of these particular stones… it started here: Thank You Tucker Provisions with our last visit to Tucker. Apparently each time we go to Tucker, I let my daughter pick up random rocks at Dunkin.)

But she has always valued the power in rocks.

And honestly, I’m glad they screwed up my coffee and gave me a smaller weaker drink because I submitted four grants to my executive director today so my nerves were shot. I had just enough time to bring these goodies into the house before I had to clock back in!
My provisions from Tucker

The kittens and big old Oz gathered around me while I worked. My mother-in-law gave me a birthday card with money in it and my dad sent a really cute cupcake card with a check.

Then the teenager and I walked down to CVS to get my prescription and my neighbor who owns Sobaka, the Maltese yorkie mix, joined us. This gave the teenager a chance to try the new dog training clicker I bought her from Petco.

And I got my free nail polish from CVS for my birthday.

I came home and roasted vegetables, are cake and watched Star Trek The Next Generation with my daughter.