What makes today a good day might change tomorrow

This week presented many challenges. Monday I was hurting, probably from too much computer work during my 10-hour weekend editing sessions each day. I survived Monday, but barely, only to learn that Tuesday I would be moved to a different station in the Stitch Fix warehouse.

Change is never easy– but in this particular instance, as a person with a documented disability and doctor-derived medical accommodations, I struggle in my normal environment to perform at the same level as an ordinary employee. And that’s my job, to do the work, with a reasonable amount of help.

The main consideration used by management to determine assignments on the warehouse floor is table height. Is the work surface the appropriate height to match the ergonomic needs of the employee? In my case, my performance also relies on which side of the line I am on and who is “on support” that day. I work on “the B side” which does not mean I am not a radio song. It means the conveyance system that moves the fixes to the next stage of the process is on my left side.

I rely on my left side for balance. Therefore, to minimize potential issues with my hip and ensure my balance and stability, I need to work on the side where I turn to the left to put my boxes on the line.

My original table assignment for Tuesday was on the right, or the A side.

Requesting a B-assignment got me moved from line two to line four, which meant I would no longer have my regular support team. (That’s the role of the people who deliver work and supplies to those of us who fold the clothes.) I have been told that it’s my job to remind these folks of my medical needs. And they don’t always like that. So it makes me uncomfortable. Because in my view, it’s not my job to tell someone else how to do their job.

And to make matters more fun, it’s up to the individual to decide how to provide my accommodations. The deviations are small, but the impacts are major. The cart typically arrives with eight fixes on four shelves, with five to eight boxes lying horizontally on top of the cart. Most people move the boxes (I often take them) and pile the work from the bottom of the cart on the top. Some people even put the fixes from the two bottom shelves and place them in boxes on top.

I don’t even ask that pack slips be placed with them. I have myself trained to flip them to match the new order. Which confuses everyone but me.

This particular day, my support person, who I believe is a delight, so this is no reflection of who she is as a person, decided she would place the clothes around the boxes without moving the boxes at all. She tucked them all over the boxes. Which meant if I moved the cart to my station or reached for the boxes, the clothes fell on the floor. How does this help me? Keep in mind– I go through three carts an hour.

I eventually complained to a supervisor and said something like this:

“I know it’s too late now, as we’re closing, but there really should be a system in place where Stitch Fix defines what the accommodation is for the doctor’s orders, because it really shouldn’t rely on individuals who don’t understand the disability. And maybe it’s a violation of privacy, but those of use who need the extra attention should be arranged together so support automatically knows if we’re in that section, we have an accommodation and it would also cut down on people requesting accommodations when they haven’t done the paperwork.”

The supervisor said that was a great idea and lamented that I hadn’t mentioned it earlier. I didn’t mention it because it’s basic logic.

Somehow, I survive, and I make numbers. My body is so twisted I can feel that if I move wrong I’m going to pull a muscle in my lower back. But it’s okay because I have the chiropractor on Wednesday.

And then I get the table from hell on Wednesday. It’s the right height, right side, good support people. But it’s a front-of-the-line table, so I have to keep pushing the boxes toward the end. The fan keeps blowing my pack slips, which means I need to tuck them under my craft paper roll instead of on my laptop keyboard. But I keep forgetting, which means every cart I repeat chasing a paper, and tucking the others under my craft paper roll. My scanner keeps disconnecting from my computer. And if I need to go get a large box, which is common now as we are transitioning into winter clothes, I have to walk to the back of the line to get it.

These things add ten to thirty seconds to every fix. That’s 40 minutes over the course of the day. And I finished at 91% which is bad enough to get me a warning. And so I’m stressing, which tenses my muscles, and since my neurological condition already creates issues with my muscles not relaxing just makes everything worse.

And midday, the leaders got out an inflatable beach ball so every one could bounce it around to each other. That upset me more because I don’t have time to have fun. How dare they think I might be able to survive this and have fun?

Nicole Jensen of Back in Line Chiropractic aligned my lower body and stretched out my legs and I left her able to stand up straight and move my legs without stabbing pain.

This is where the difficult mental part of disability takes over. It’s so much easier to give in, to rest, to eat ice cream and watch TV and be done. But I knew my body needed to stretch and move in order to correct whatever issues had been caused by my misalignment and muscle tightness.

My brain and my muscles don’t have good conversations– so it seems like I can to manually perform a motion for a while to teach my body how to do it, even if that is reminding it how feet go or how a gait is supposed to work. That’s why I go to the gym. Not just so someone forces me to exercise, but also so someone can make sure I am using body parts correctly.

But I have to tell you, I dreaded going to the gym. I had been in pain all day. I wanted to take a hot shower and go to bed.

Andrew texted. He had a situation at work. Maybe the universe thought I needed a break. When Nicole works on me after such bad body pain, I’m often achy the next day.

Then Thursday went fine. Great even. But the pain crept back Friday, not nearly as bad but it took me most of my day to get my metrics at work to solid ground. And Friday night I went to the gym, and despite how I was feeling, I had fun and did well with some heavy weights.

I made some salmon and trendy smashed potatoes with vegan tzaziki sauce for dinner and the Teenager loved it. I fleshed out the writer’s proof for the erotica book. And went to bed feeling like I had been successful.

This morning I got up, discovered I had low blood pressure after I took my beta blocker (oops) and had a light breakfast– coffee with PB2 and cream, PowderVitamin Electrolyte Powder Plus in strawberry cucumber and these breakfast biscuits from Olyra. I thought they’d resemble a Reese’s peanut butter cup or a Tastykake Kandykake.

They were hard, dry and the peanut butter cream was minuscule and didn’t even moisten the cookie. Terrible. And I love their yogurt breakfast biscuits so how could this taste like someone managed to shape chocolate-flavored protein powder into a cookie?

Anyway, the moral of the story is: sometimes what you can achieve one day is much less than what you achieved on a different day.

Who are these descriptions for? A rant on internet image descriptions (endorsed by a blind person)

There is a new accommodation popular on the internet– image descriptions. Nancy and I were talking about it last night, because she has her cell phone now and is receiving email and interacting with the web it new ways.

She asked a question that has bothered me about these descriptions since I first encountered them– who benefits from them? Depending how the description is written, it doesn’t help and if the text near the image is well written (in an email, newsletter or blog) a description should be in the text. (But I’m also trained by my experiences with Nancy.)

If I described a selfie of me as a woman about 5′ 4″, brown eyes, glasses and brown hair in a floral dress many of those details mean nothing to a blind person. Details that matter would be I have wild curly hair that flows past my shoulders, I have uneven fingernails but smooth skin, and a long sundress with ruffles and a kick pleat on both sides. And when I walk, my gait has a scuffle to it due to my cerebral palsy.

See the difference? Pun intended.

Most of the images I see described feel like they were written for someone who had seen at one point. A congenitally blind person does not attach meaning to colors or conjure the same connection to concepts like “sky” that a sighted person does. Just like when I interact with darkness, while I use techniques Nan taught me as to not harm myself, my concept of that condition and hers are different. When the electricity goes out at night, nothing changes in Nan’s world except the television won’t work.

I feel like too many attempts to acknowledge and address the needs of the disabled focus on the experience and needs of the able-bodied who become disabled which are often different from the needs of the congenitally disabled, even if the impairment is the same. In my experience, the able-bodied community wants to fix disability and would rather see the disabled person function in the same manner as the “normal way” rather than adjust their expectations and methodology to accept a method easier on the person with the disability.

Again, in my experience, people with disability learn the “right way” and must struggle with the “right way” and even accommodations can focus on allowing the person to perform the task the “right way,” until the disabled person, a clever occupational therapist, or empathetic mentor finally discover an alternative method that might not look like the right way at all.

And sometimes that makes the able-bodied community uncomfortable. Consider the brouhaha one can often encounter when dealing with handicapped parking spaces and who deserves them and the “rules” regarding having a service dog in public.

And on top of all this, we have the able-bodied community who experiences temporary disability or permanent disability. When these people can’t go of their “right way,” that is when we start to see efforts to make the disabled experience feel more like the able-bodied one. It’s actually person who went blind at 30 or the person slowly experiencing vision loss who wants to hear about the color of my hair.

And those seem to be the type of accommodations that “catch on” and “stick.” Because it’s an activity easier for the person extending the gesture. The sighted person writing the description looks at themselves as if looking in the mirror instead of imagining how someone might find him in a dark cave. And the answer is not “with a flashlight.”

In more personal news, thanks to the hard work of my chiropractor, Nicole Jensen, and my trainer at Apex, Andrew, my body might be overcoming its last episode. It’s annoying to think I must maintain three workouts a week to keep my body from seizing up and forgetting how muscles work.

Yesterday, I could feel my leg pulling and turning wooden as I like to say. I can only describe it as I can feel it pull away from my body. It no longer listens to my nervous system and it feels like I have to pick it up and drag it with me as if it were a prosthetic.

So, after Nicole got everything aligned Wednesday, and an upper body/core session with Andrew after chiropractic care, and some reflection Thursday from my new cardiologist, I walked to the gym Friday. We did legs and some barbell squats. And some planks. I haven’t done planks in ages. Held steady for a minute.

Andrew asked me functional questions about what my legs were doing and I had to remind him, “I can only tell you what it feels like, I really on your observation to tell me what’s actually happening.”

Because with cerebral palsy, my muscles rely on repetition and routine to remember how to function. As I understand it, my brain’s instructions just don’t make it there. So my lower limbs just do what they want, until I consciously connect them all and just like learning to fold clothes into perfect little 9×9 squares as I do at Stitch Fix– it only works when the action is embedded into muscle memory and the thousand steps it takes to execute just happen without thought. THAT is what I am hoping to achieve. But as I learn what to correct and how, someone (and that’s Andrew) needs to observe me to make sure I don’t miss anything.

Just some Saturday musings.

Matrix made me cry

Not The Matrix. As in the movies. The absence management company.

I have an intermittent FMLA leave that I use when my body can’t tolerate my job. I thought, after having two different doctors fill it out at least three times (yes, I lost count) that I was approved for 40 hours a month of leave. Now, not understanding that is probably my fault.

But the curt paper pusher that told me I had 15 days to submit new paperwork could have been more patient. Apparently, my leave only entitles me to ONE episode per month of UP TO 40 hours. I called out sick in mid July and left work ninety minutes early today– so that 9.5 hours is not allowed because it’s in two episodes not one.

This is the type of bullshit one has to deal with when you try to advocate for yourself in an able-bodied world.

My hip has been inflamed– at least that’s what my darling chiropractor says, I say it feels crooked and like I’m dragging around a tree trunk– for several days now and getting progressively worse. So when my numbers slipped down to 97% today I tapped out, in part because of discomfort but also because the discomfort was causing me to fall behind and if I fall behind I will be penalized.

And the concern becomes: if I end up “not fully performing” in my end days, will I lose my severance?

But these are all my thoughts at the end of the day. At the beginning of the day I had to release my cat Fog from a crate and package a fecal sample for the vet. He has worms. I know it. I see it. As a cat rescue worker, I had the first medicine of defense, Pyrantel, but that didn’t work so he might have a tapeworm (that comes from ingesting a flea) and that requires Drontal which I don’t have. I think Touch of Grey (one of the two remaining fosters) might have worms, too.

Southern Candy didn’t come to work today for her own health reasons which had a friend and I ready to send out search and rescue dogs.

And Gayle, my friend and the art director, had eye surgery today which was pretty serious stuff but she texted that she can see so all is well so far.

Meanwhile, my neurologist responded to a message I had sent during her vacation and now she wants me to go for a urine test– but no one seems to know where I can go. And I don’t have time to go. So, if I have to go for a urine test, I thought I’d check with my doctor and see if I need other tests before my upcoming physical. They ended up ordering a urine test because the neurologist didn’t yet. But they missed the part about the other tests.

Now we’re all confused.

My neurologist is afraid I have some sort of UTI, which I think I’ve only had one of those in my entire almost-fifty-year life and I remember pain being part of that equation. Why they think I might have a UTI contributing to my issues I don’t know.

But there’s just too many things I need to figure out and organize. And I’m mentally and physically exhausted by it all.

The questions become:

  1. Why must organizing care be so complicated?
  2. Why do employers make health-related issues such a hoop-jumping process?

I’m very done with it all.

Beating the clock and Stitch Fix SNAFUs

I’m running out of steam– there are so many things to do and to talk about that I just can’t get to them all. And that’s okay.

I have commitments. I was elected president of the Greater Lehigh Valley Writers Group. I have a child enrolling at Lafayette College in a month. I met with a young editor yesterday after my day job at Stitch Fix and absorbed her energy and hopefully helped her on her journey.

The decorations and the Braille are ready for tomorrow’s Disability Pride Lehigh Valley event.

And I manged to NOT put my underwear on backwards as I did on Wednesday.

Sometimes the little wins mean a lot.

In general my blood pressure and orthostatic hypotension symptoms have improved with the increased salt in my diet. If I get a good eight hours of sleep I feel decent. I have to ask if that’s due to the salt, the rest, or my frequent missing of my calorie goals (the other night I went on an eating binge and ate 500 calories of almonds. Who does that?). It also could be my increased stress levels as I’m losing my job in seven weeks.

Seven weeks.

The first medical bills from my March hospital stay has arrived, which like everything else, makes me wonder what’s to follow. I’ve started applying for full and part-time positions–but I really want to get a part-time position in something that will give me knowledge toward building my own business or to string together writing and editing clients.

But I have no savings to pull this off.

*I have a Substack and an underpromoted, underutilized Patreon if anyone wants to support Parisian Phoenix Publishing in those ways.

Substack: Parisian Phoenix Bookish Babble

Patreon: Parisian Phoenix

(And reviewing my own creator dashboard, I set up Patreon a year ago and didn’t do anything with it. Put that on the list, in addition to updating the web site in general.)

My recent experiences as a Stitch Fix client

I have waited more than a decade to launch into my client experience with Stitch Fix. If you’ve read any of my novels, you can probably imagine why. (More about my novels here.)

I started getting fixes around my birthday, which was in May. I had given my employee discount to a friend for a little more than a year, as I did not have the income for new clothes. If you are a regular here, you’ll know that the pandemic and my recent life and lack of discipline have led to a 30ish pound weight gain on my small frame, so that factored into my decision to postpone my fixes. Why buy new clothes if I’m not healthy and back to normal?

The Teenager told me around the Back-to-School season last year that she felt like she didn’t know her own style, because she didn’t get to buy her own clothes. So, I transferred my discount to her. And an employee discount can only be transferred every six months.

This week my fourth fix came. I can’t believe it’s four as I can only remember three, but these days I’m lucky if I can spell my own name.

So I asked for my fourth fix if my stylist could send suggestions for events related to titles launching at Parisian Phoenix Kink. Edgy, kinky, sexy. I even listed brands and ordered everything vegan leather I could find on Freestyle. Like pants. And a really amazing dress. The pants worked out, but the first dress was too small, and the second I did not order in petite so it was too long and for $250 I lost patience and wiggle room on my American Express to find “just right.” I did however find a dress, that although not vegan leather, fit the aesthetic and allowed room for my expanded-since-weight-gain bust size.

With all of this information of what I’d purchased, what I’d returned and why and so many items I had “saved for later,” the AI algorithm that Katrina Lake has bragged about in every podcast appearance I have heard should be able to show my stylist what I want. It should show me what I want.

And the same week Stitch Fix announced it was closing our Pennsylvania warehouse, Gwyneth Paltrow released an episode of her Goop podcast featuring Katrina, with whom she appears to be friends and retreat buddies, bragging about the algorithm and telling the same stories of Stitch Fix’s origins I’ve heard for three years.

Shipping times across the Stitch Fix network have increased, when the company eliminated its second shift (originally implemented for pandemic social distancing, splitting the warehouse staff in half) and asked us to convert to one of two 4-day, 10-hour cycles, the logic was that operating seven days a week (especially in our region where we can ship to anywhere in the continental US pretty much within 24-48 hours) would allow Freestyle orders to land at clients’ homes quickly.

And in my experience as client and employee, it did. My daughter was using my discount at that time and there was one incident when I ordered earrings on Friday night, coincidentally on Sunday morning around 7 a.m. on packed them, and I received them Tuesday morning.

I wrote a blog post (here). And I also made an unboxing video.

Now it often takes two weeks to receive an item. And we’re not even closed yet!

So, my fix preview comes. And I am very disappointed. I can see why the algorithm has selected certain items based on my past Fix purchases, but it’s like it has completely ignored the pile of things I have ordered from Freestyle since my last Fix.

Are you all still with me? Okay. So, the box arrives and I’m soooooo excited to see what kind of party outfit my stylist picked out. I know there’s a pink dress but everything else is a surprise. I ask The Teenager if she wants to see me open it.

She says, “Sure.”

And she starts the video. I open the material inside, and I see the “first fix” card that goes out to new clients. I am not a new client. I look at the Style Card and the name is not mine, the stylist is not mine and the fix is not mine. Now, despite the fact that I work for Stitch Fix and I fold and prepare 130+ of these fixes a day… despite the fact that this box came from our warehouse… and despite the fact that I also have performed the role of the person who prints, folds and drops the little envelope in the box…

In this moment, I am a client. It’s like all knowledge I have of of the process falls out of my head. (And it’s all on video you can watch it.)

“This is not my fix,” I say, despite the fact that I have already shown the camera a bundle with a pink dress in the middle.

I had glanced at the style card and saw that Becca, the client, had received athletic clothes and sneakers and I clearly had heels in that box.

I shoved the entire fix in the return envelope without even opening it. I was so angry and disappointed.

In my disoriented anger, I did not know that there was only a brief moment before check out that I could see the style card and note from my stylist that accompanied my fix. And I zoomed right by it as I started to realize that they were my clothes. And I recalled seeing some notes from my stylist about how the system wasn’t giving her the types of clothes I wanted so she tried to build some outfits based on what I had. But I had clicked past the note without fully reading it.

And now it’s gone.

Remember, I have waited more than a decade for these fixes. I have no clothes that fit because I gained weight during the pandemic. I am losing my job and I need clothes for interviews, business and launch parties.

I email customer support and ask for a copy of my stylecard.

At 4 a.m. the next morning, as I get dressed for work, I realize: I can peel the sticker off the box, research it and probably find my own damn style card. But we change in-house warehouse management systems so often I can’t remember which app does what I need it to do. I ask a lead– because now I realize one of the people who prints the style card is the one who screwed up my whole experience. She refreshes my memory.

I look up my package and realize my cat-loving friend Tom delivered my shoes to the picker, and that I know the name of the picker who ran around the warehouse on my behalf. The person who QC’ed my package– that’s the same job I normally do– was probably in the line next to mine. And then I see it. The person who handled my package last. It’s someone who is very good at her job and even gave me some tips once we moved to regular day shift.

This person means well, but punctuates her sentences with things like, “it’s not your fault. You second shift people weren’t trained properly.” I didn’t tell her she screwed up my box, and my animosity about the whole experience faded when I saw her name at the end of the line.

And my brain thought to itself, “it figures.”

By then, customer support had emailed me a PDF of my style card. Which I could have printed at work. But they offered to mail me a copy. So I thought, “Why not?”

I thanked the customer support person who took the time to explain to me how the warehouse works (because they always blame the warehouse, no one wants to hear that the beloved algorithm is broken). And I told her, “Yes, please mail me a copy. That would be lovely.”

I haven’t received it yet, but I do keep them. But that’s a blog entry for after my separation date.

I decide that maybe I’ll order one more fix, since I paid for the style pass so I won’t lose any money. And the preview comes… and guys… this one nails it.

It’s due to arrive at the end of the week, so here’s hoping this story has a happy ending.

Today’s choices

It is 4:38 a.m. and I’m drinking dark roast coffee, double caffeinated, and thinking. I gave myself permission this week– despite being behind on publisher-related business– to work on my own novel, the fourth volume of the Fashion and Fiends series, Road Trip. I’m about one-quarter through the second draft, which is where the bones of a story usually beefs up and becomes what the reader might recognize as a full-fledged book.

Every day, despite whatever struggles have me in their grasp, I look for beauty in the moment and the world rarely disappoints me. But ever since learning my day job, Stitch Fix, is closing our warehouse and my end date is September 15, the blend of anxiety, stress and hope is taking a toll on my medical and physical health.

The dietician is right. I need more sleep and I need more salt. I had been on the path for some weight loss but the crushing heat and… everything?… has led to a tendency toward snacking again. First with almonds, then an evening cocktail. Sunday night I didn’t have the strength to eat a proper dinner so I had some nuts and some peanut butter pretzels in measured portions, and then a single serve bag of potato chips because I still felt weak and my sodium levels for the day were still garbage. And at that point I finished off the brownies. And last night, I skipped the gym because my joints were screaming and my trainer picked up a cold at work. So, I started with a nice decent, 100-calorie portion of Ritter Sport chocolate stuffed with raspberry rose filling and ate the whole damn bar.

I am pressed for the time to care for myself properly. I lack the financial stability to work less or even to pursue treatments that might help. I’m not “disabled enough” for government support and it’s hard to be in this vague middle zone.

And that doesn’t just apply to people with health issues. It’s hard to be older in our society. It’s hard to be a working parent, and perhaps harder to be a stay-at-home one because so many people either resent you for being able to do that (or don’t think about the sacrifices you make to do it) or look down at you for gaps in your professional resume.

It’s hard to balance your dreams with your job, because despite respect for the enterprising spirit, succeeding in business– especially a small one without capital or experienced backers– is hard. It’s hard to be young. It’s hard to be poor. It’s hard to be uneducated.

That’s one good thing about a mass facility shut down like the Stitch Fix Bizzy Hizzy. We can also talk about how hard it is, how sad we are, and how so much of this whole situation just sucks.

So, I hope today is a good day. Or at least better than yesterday. Because yesterday was so hard I almost cried at my station, table 18 in women’s QC. The humidity in the warehouse was stifling. I couldn’t keep up– in part because my support team did not meet my accommodation’s 100%. There were four people on the support team. One did he best but didn’t normally do that work and it took him half the shift to remember my accommodations. Then, due to his physical conditions, he didn’t always get all the items for me. I know he didn’t see them.

Another person just didn’t do them. This person tends to skip them, yet does them reliably for another person who has asked for the same accommodations as mine for a temporary situation. I worked next to this person the last time she was in this situation, and she managed to do all her work with an hour to spare and now she spends a lot of time in the bathroom and wandering around talking to people. She’s even made comments about my work performance.

Which makes me ask, to no one of course because who wants to be that jerk, if the point of reasonable accommodations is to allow a worker with a disability to perform at the same level as an employee with no such limitations, why are others given the same accommodations as me but yet have time to spend playing on their phone (I have seen so much TikTok), having long conversations not even at their stations, and slipping into the breakroom for extra rest?

I was told I could do what I needed to do as long as I met my numbers. Many of these other people are high performers who are very good at their job. I am also good at my job, but my body just cannot bend and move with expediency. So, I have to spend my “bad days” working as hard as I can and pushing until my joints scream to maintain numbers, because I cannot use my medical leave unless my numbers are firmly at 100% or I will be penalized, a.k.a written up and put on a probation of sorts. I worked so hard yesterday… my numbers hovered at 98% most of the day, so I couldn’t even use my approved medical leave.

That hurt mentally and physically.

When I first received my accommodations, I was placed at table 18 at the back of the line so the support team could leave me all the boxes coming out of the refix department (work that needed to be done over for one reason or another) and then share that work with anyone else who might have similar needs.

That stopped. I was told at first it was because there wasn’t enough work. Then it was because they were afraid I couldn’t finish it all. But I’m really thinking it’s because the other workers complained. And I wouldn’t care– but I’m struggling. And it’d be really nice to be able to go to work without wondering what I will endure and how much it will hurt.

And for the record– I usually do between 105% and 110% when my accommodations are met.

And I only got accommodations after the company switched from a weekly performance average to a daily accounting. I typically meet 100% per week, but usually once a week or so, I can only hit 95%. So after two years and several shift changes, my employer changed how I had to do my job. I used to be able to do it without accommodation.

This one hurts. (The end of the Bizzy Hizzy).

In roughly nine weeks, I will lose my job. I have been with Stitch Fix more than 2.5 years, and in that time, the people I have worked with have allowed me to grow, grieve, learn and be who I am.

And I thought I was holding up well against the stress of losing my job, with more debt than savings thanks to some life situations and my recent medical issues. But when you receive the email that lists your personal separation date, that makes it real.

September 15. Some of my friends are looking at a week before, another a week after. One person I know with 2 more years of tenure with the company has a Friday October 13th separation date. I am sooo jealous, primarily because it’s the perfect day to lose your job. But even beyond that– you could spend the whole weekend watching horror movies to commemorate the event.

Right now I am stunned. I haven’t read the copious amounts of paperwork. I’m not ready. I’m just going to be sad. It was a hard, hot day and my body didn’t want to cooperate. Luckily, Nicole Jensen of Back in Line Chiropractic and Wellness Center could make my feet and legs do feet and legs things.

Meanwhile, if anyone needs any projects done by an awesome writer and editor, get in touch.

Almost two weeks later…

Please do not expect this blog entry to tell a smooth story or to make sense. I don’t even know what will flow out of my fingers as I type this now. I did not plan anything special for this post, nor did I intend to miss nearly two weeks of writing.

After mere days of tracking my sodium and “eating normally” as the dietician suggested, my constant lightheadedness and episodes of low blood pressure significantly decreased. My physiatrist (who is also a neurologist, you may recall) saw me last Thursday afternoon for my post incident follow-up. She’s excited about my approval for the service dog, sorry that I’m losing my job, has promised to buy Not an Able-Bodied White Man with Money, and she and her nurse both appreciate the way I advocate for myself and try to do as much as I can to improve my body and my health.

Speaking of which, tracking food had led me to discover that when “eating normally” I was only getting 1500-1800 mg of sodium AND drinking 100 ounces of water in the humid, hot warehouse. I can only imagine how little sodium I was eating while sticking to “heart-healthy,” “low sodium” choices. And it might explain why I really love me a bag of salty potato chips.

The physiatrist and I had a lovely conversation about B-vitamins, apparently she’s low and had to start getting B12 shots so I mentioned that I sprinkled nutritional yeast on everything. She googled it and she plans on buying a jar.

The teenager also asked me to organize her bookshelf, a calming activity that brings me much satisfaction.

In a future blog, I hope to write The Saga of the Quail, now that the birds have gone home and I can no longer get in trouble for illegally housing game birds in a residential area.

Somewhere in the last two weeks I deadlifted 120 lbs– which is three-quarters of my current body weight.

And the “tube” to the outdoor kennel the teenager built for the cats has been popular.

She even put a cat door leading from the porch to the kitchen so the cats have access 24/7. Touch of Grey, our foster with a hysterical and sometimes volatile personality, has made the back porch/mud room her new domain.

I had a mental health therapy appointment and will have a job coaching session next week. Speaking of which, we are having a Women’s Outbound meeting at work on Monday and everyone is having their break after regardless of whether we normally break at this time. I’m guessing Stitch Fix has either decided our official end dates or they will be announcing more information regarding when and how we will receive this information.

We had a massive pot luck yesterday at work for our team and another roster, and I ate so much food I didn’t eat again for 24 hours.

Still lightheaded (and goodies from the Stitch Fix Hizzies)

I spent all day lightheaded, with it getting progressively worse all day. I altered my food today to include more sodium. I even brought my electrolyte powder to work, but no improvement. And yes– I did email my doctor. I had tried to schedule an appointment but with his current vacation schedule and his tendency to be heavily booked, I might be best served by my late August wellness visit.

When the lightheadedness threatens to become full dizziness, my heartrate is in the 110-115 beats per minute range, which scares me. But still no signs of Afib.

At work today I did 162 fixes, which was our goal when we were still on 10-hour shifts. Now it’s 164. But I spent 40 minutes at the safety team. We discussed resumes.

Speaking of Stitch Fix… my Freestyle order from last week came, or at least 75% of it came. It’s ridiculous how long it took to get here.

Now, I have to be up at 3:45 a.m. to start my ten-hour shift at 5:30 a.m. so let’s get on to the food diary…

  • 4:15 a.m.: I made 26 ounces of Supercoffee with half and half. I put it in my thermal mug and it took me three-quarters of the day to drink half of it. Then I put ice in the other half and put it in the fridge.
  • 8:30 a.m.: probably drank 24 ounces of water so far at work. First break was Cabot cottage cheese, sipping my coffee and enjoying a golden kiwi. The cottage cheese had 18% of my RDA in sodium.
  • 11:30 a.m.: Wendy’s chicken sandwich, the super basic one and I asked them to remove the mayo and add ranch and pickles, but they didn’t listen and merely removed the mayo. Added my own ranch and pickles. Had some sliced packaged apples and plaintain chips. The plaintain chips have minimal sodium and some vitamins. The chicken sandwich was processed so it had to be salty, but none of it made me feel better.
  • 1:30 p.m.: probably drank about 24 more ounces of water and drank 1/2 my mason jar of water with my electrolyte powder. I finished it after work. Also had a bag of cashews.
  • 6 p.m.: the teenager made dinner. Caesar salad with fried chicken, red peppers and cucumbers. I had two big bowls. And a glass of unsweetened iced tea, Earl Grey.

Then I packed a meatloaf sandwich on rye with creamy miso and nutritional yeast, another kiwi and licorice bites for lunch tomorrow. I also set the coffee pot to brew more Supercoffee at 4 a.m. and added some organic cacao into the coffee grounds.

Food Day 2 and 174 Fixes

My blood pressure was great all day— I only took my regular half dose of beta blocker. My heart rate had a few episodes of elevation, and I was dizzy all day every time I walked.

It was humid and hot in the warehouse. I worked a ten hour shift and folded 174 fixes. Despite the sadness and frustration filling the warehouse, the conversations happening between colleagues keep the family spirit going. And it’s a great reminder that we’re all still a team.

But with each subsequent Stitch Fix commercial on Hulu, I fight tears.

And for the record, 174 fixes is 106%.

My food diary for the day:

  • 4:30 a.m.: Water, coffee with half and half, Kind almond butter oatmeal bars. I didn’t have a chance to eat my pineapple jerky.
  • 8:30 a.m.: about more 30 ounces of water, one small banana, packages apple slices, about 3/4 of a serving of peanut butter. I didn’t have a chance to eat my pistachios.
  • 11:30 a.m.: water count is up another 20 ounces, a raspberry watermelon polar seltzer, and a packed solid salad of pesto, kale, red pepper, cucumber, pumpkin seeds, roasted chick peas, black beans, couscous, and hummus.
  • 1:30 p.m.: about 16 more ounces water, finished the seltzer, and ate three mini molasses cookies from Archway, one serving.
  • 4:30 p.m.: unsweetened Earl Grey iced tea with fresh lemon
  • 5:30 p.m.: diet caffeine free Coke, 2 everything tortillas each with avocado, nutritional yeast, and Alpha plant-based Chikn nuggets dipped in blue cheese dressing.

The synopsis of a long week

I’ve been meaning to write for days now and a week as gone by with minimal use of my own words. I’ve kept up with my editing responsibilities, but the idea of sharing my thoughts with the outside world has felt positively daunting.

Maybe it’s because I don’t know what to feel.

Brief synopsis of the week:

  • It rained during the “Wheels around Wilson” event.
  • The teenager clogged the toilet and the plumber left her with this sage advice about the new low water flow toilets: when you take a massive shit… shit, flush, paper, flush.
  • Stitch Fix gave us the financial figures and basic terms of our severance but has not announced our separation dates. That will come July 15.
  • I received an email that the selection committee of November’s TedX Conference at Northampton County Community College would like to interview me regarding my application to give a presentation at the event.
  • Coffee in the Morning, the new short story collection by Larry Sceurman, is available but be warned… we need to adjust the photos. Gayle and I aren’t happy with the printed result.
  • Shuffling & Scribbling, the Teenager’s newly released tarot journal and workbook, is available through Amazon, as Ingram will not distribute the book, claiming the book is too “low content.” So this will allow Parisian Phoenix to compare the final printed results from both IngramSpark & KDP.
  • The computer system at work is still recovering from its stroke last week so I’ve been working overtime. Making hay while the sun shines, as a farmer would say.
  • The Teenager turns 19 Friday. That means only one more year before my teenager is no longer The Teenager.