October 30

My husband and I celebrated our 22nd wedding anniversary today and, even though we have been separated for two-and-a-half years, we inadvertently spent it together.

My mother celebrated her 67th birthday today, and I postponed her birthday until next week because one of her brothers died on Thursday. The second brother to die of prostate cancer in about a month. And her ex-brother-in-law died last week, too.

The day started strong with the teenager and I killing our workout at Apex Training with Dan. I also ordered an Apex Training hoodie. The teenager and I benched 70lbs on the barbell, and the teen also did some hearty squats.

We signed five cats up for the “come adopt us” event with Feline Urban Rescue and Rehab. One of them was sweet Khloe. Khloe hid under the blanket with one eye poking out the whole time, until she heard my voice, then she came out. Not bad for a first day out.

Photo of me waking up with a Khloe scarf

So the husband came over to retrieve his car from the teen and do his laundry and assign his ISBN to his poetry manuscript.

He then rewarded us with pizza.

I did some more work for Parisian Phoenix and some more cleaning, and then the teenager asked me to come down to the diner for coffee and my favorite pie.

Photo: waiting for my daughter at Tic Toc Family Restaurant

This morning my legs felt more normal than they have in weeks and everything seemed to be working in coordination. But as the day wore on everything started stiffening up. It was the first time in about a month my right quad wasn’t burning all day.

So we shall see what tomorrow brings.

Another day seeking answers

This is another in a series of posts about trying to learn about my cerebral palsy and improve life in my body in general.

As sometimes happen, I woke in pain. I took two Tylenol PM last night so the pain didn’t keep me awake though my cat kept trying to intimidate one of my fosters so that made the six hours of sleep I got rather restless.

I woke to an alarm at shortly after 8 a.m. as I had to be at a doctor’s appointment at 10:05ish and the office is 20 minutes away.

To read about the connection between my gynecologist and my novel, visit the Parisian Phoenix blog.

Today was the rescheduled appointment to get my Mirena IUD that will hopefully reduce my heavy menstrual bleeding and my back pain from menstrual cramps. I had another new-to-me doctor today, and this one had an amazing sense of humor.

She was also the first doctor to ask me, upon hearing I had cerebral palsy, if there was anything she needed to do or be aware of to help me. In my case, the answer is no. But if I had worse issues with my flexibility and lower limbs, this would be a good question.

This is my third IUD, although my first Mirena. So nothing unexpected happened during insertion.

There was a pinch here and there and the doctor told me to take ibuprofen for the initial cramping. And to be prepared for a period that might be weird for the next few months. Every woman reacts differently but I may see my periods lighten or even skip cycles.

I did experience some light cramping and spotting but nothing to require OTC painkillers.

But, once I got to work, my right leg seemed to be impossible to control with my quad and knee burning. My ankles also started to burn. My lower back just throbbed, regardless of whether I was twisting or standing still.

By the end of the night I struggled to reach forward or to lift the pile of clothes.

I only QCed 92 fixes. That’s almost 71% of goal. Now granted tonight we were in the men’s Hizzy for the first time ever. It took me 4.5 minutes to do fixes that in women’s takes less than 3.

And they have such nicely organized work stations with drawers.

While listening to my first podcast of the night— 60 songs that explain the 90s— i discovered that Weird Al donated the profits from “Achy Breaky Song” to the cerebral palsy foundation.

My British colleague asked why I’m not on disability. That made me wonder how bad I must look if she says that to me.

In good news, let me regale you as I drink my last pins colada lemonade gin cocktail, the teenager is very excited about the new soap dispenser she bought.

I did a thing and did a soft launch on a Parisian Phoenix podcast on Spotify. I thought my blind friend, Nancy, would like it.

And if you want some fun pet items:

Nala the cockatoo plays in the shower.

Bean Dog tries to get bone out of tire.

I walked into the teenager’s bedroom and the kittens of the Celtic Pride were all in her laundry.

Food box blunders, ear infections and a good workout

I’m feeling exceedingly optimistic today.

I “fixed” my roomba, had a therapy session that left me sobbing in my psychologist’s office, had an incredible workout (full body as I will be traveling this weekend, but we did a lot of work on hip mobility), and cooked.

The business cards for Parisian Phoenix came in. Thanks to my trusty business partner Gayle.

Perhaps the chaos of earlier this week is finally settling down.

Seen in downtown Easton

So, last Saturday I got my regular Hungryroot order. And Tuesday was Purple Carrot. I wasn’t going to get a box from them this week but they had West African Peanut Stew on the menu.

And then I got a text that Green Chef was on the way.

I promptly canceled Green Chef so there would be no more surprises as they were my least favorite. But that box was on the way.

It arrived yesterday after I left for work. I received this message today.

I certainly hope there is no more food coming.

Because the teenager came down with an ear infection and has so much phlegm in her throat that she can’t swallow. But don’t worry she took some antibiotics and some DayQuil so she could enjoy a Hungryroot burger.

I prepared a bag of greens and a Green Chef meal for Gayle as I am supposed to go to DC this weekend and I can’t physically prepare it all. And M, my host, said I can’t bring it. The result— I now can say I pay my art director in groceries.

Purple Carrot has a $75 Thanksgiving box available. I ordered one.

And today I cooked:

  • Green Chef Mojito Cauliflower
  • Purple Carrot Buffalo-style tempeh and roasted sweet potatoes and garlic
  • Brussel Sprouts

But much to my chagrin— Purple Carrot swapped out the peanut stew for a grilled tofu meal.

Addendum:

From Gayle, after making her Green Chef meal.

I came home and just put everything in the fridge. Brown bag and all.

Pat looked at the recipe when she headed to the bathroom. She made vomiting noises. Not surprising.

I thought I remembered it saying 30 minutes. About 4:30, I started working on it. I didn’t look at the recipe earlier and didn’t realize it had two sides. I was overwhelmed when I saw all the instructions on the other side. I quickly realized that they were dummy proof and that made them longer.

I got the farro on and started the oven, then cut the squash and picked the tarragon. That was the most tedious part of the whole thing. That all went in the oven and I opened the chard. It was nasty. One leaf was probably okay. Glad you gave me other chard. I’m not a fan of raw chard so I wilted it. The nasty stuff went to the compost pile.

The rest of the prep was easy. By the time the farro and squash were done, the rest was too.

I made two portions. One for another day and one for supper. I did not put the apple on the leftover portion because it was already browning.

I was left with two large piles. One was compost and the other was plastic bags. So many bags. One said to pull off the label and recycle it. The rest had no numbers, no nothing so they went in the trash.

It was nice having all the ingredients and a recipe. It was fantastic having something different to eat.

Getting sick of electronic devices and words

I haven’t written in a while and I may keep this one skeletal.

I called out sick from work on Thursday and skipped my workout as I woke up in the same pain I had when I went to bed.

I thought I would rest in bed with my laptop and work more on the Parisian Phoenix website, my erotica collection, or even book four of the Fashion and Fiends series, Road Trip.

But instead I had my first Big Mac ever (which is especially odd since I worked my way through college at a McDonalds), ate too much candy and slept for 12 hours straight. The cats did not know what to make of that.

Are you curious how I responded to the Big Mac? See that here.

Friday I moved a little slow but still got decent numbers in QC folding clothes and after work ate too many cheese curls.

But, in my defense, they were amazing cheese curls— sour cream and cheddar— that I found at my local Dollar Tree.

Speaking of food, I also made my final Green Chef meal. Video here. I cheated a bit, adding beef tips, and forgot the pecans and the vegan aioli but it still tasted great.

Tonight I made Purple Carrot’s Fieldstone sausages with roasted fingerling potatoes and vegetables. Another great dish. I also made a side of “leftover sauce” pasta, mixing up every scrap from the fridge.

This morning, the teenager and I met up with Dan at Apex training and I did some lower body while Dan taught the teen to do barbell squats. He started by giving her the bar and evaluating her form and then he gave her some weight.

I think she used some muscles in her knees and legs that she has never used before, not with that range of motion. Let’s just say she was walking like me on the way home.

Then we treated ourselves to some egg sandwiches, grabbed the dog and went to the Feline Urban Rescue and Rehab Yard sale and cake auction. The child spent all my money— but we didn’t buy any cake. She got dog supplies and the massive dog now has a mermaid flotation device and a puffer jacket. And I have my third tea pot in two years. The teenager kills my tea pots.

Even the cats got goodies. See the new water fountain here.

I never saw a cake auction before and it was certainly more fun than the livestock auctions I’ve seen.

The dog was so tired she couldn’t keep her eyes open in the car on the way home.

Then I came home and made a video I’ve been putting off. I kept planning to get a little dressed up, do my makeup, set up a cozy spot on the sunporch and made a video of me reading a little of my novel.

Instead, I did it in sweatpants on the couch with the dog. See it here.

A Saturday morning fitness surprise and a delicious breakfast

So good morning all, and I have to say it’s a gorgeous Saturday and I had another great workout at Apex Training with my trainer Dan.

Me in my Best Strong t-shirt

The photo is actually from Thursday’s workout, taken by Dan so I could tag #NickBestStrongman on social media, which I did and his official Instagram account started following me.

But today, the teenager got up early and came with me to the gym. The teenager is super strong and very balanced with the use of her body, full of power, so I wanted her to have the chance to really lift.

I think she’d be an amazing powerlifter.

And she did most of my weights at the gym today without breaking a sweat. Flexibility is her weakness. Balance is mine. Well, other than the cerebral palsy.

The teenager and I did a barbell bench press of 55 pounds, and did some hex deadlifts as well.

I came home and had an almost vegan breakfast— cream of wheat, vanilla soy milk, fresh artisan cashew butter from The Peanut Company in Cape May, dried blueberries, chia seeds and the one animal product, local honey. That was so delicious.

My daughter won’t approve

So, my daughter asked me if I plan on returning to my vegetarian habits when she leaves home.

I said no, but the more I think about it— the answer might be yes.

I probably eat 75% plant-based naturally. I even eat quite a few vegan meals, like the Hungryroot zucchini falafel I had for lunch yesterday in a sweet potato wrap with green chili sauce and lemon tahini.

As the teenager likes to remind me; I put beans or vegetables in just about every meal.

I find plant-based cuisine quicker to prepare, very versatile and easier for me to get the nutrients I need. And harder to overeat. Easier to stay lean.

And easier to avoid processed or fatty foods.

But the volume of food needed to gain muscle and stay satiated when weight training is intimidating. If I weren’t at the gym— I know I could keep a good diet. But I’m already struggling with my macros so it makes me nervous.

This is when I turn toward Simnett Nutrition, Gaz Oakley the Avant Garde Vegan and even Abbey Sharp on YouTube.

I also ordered a Green Chef meal box. This accompanies the meals and groceries I have delivered from Purple Carrot and Hungryroot.

I “do” Purple Carrot and Hungryroot once a month each and I was jonesing for an extra Purple Carrot box last night at 1:30 a.m. but I missed my order cut off and found a discount code for 50% off a Green Chef box so…

And the teen and I are supposed to go grocery shopping at noon today. I intend to go to the gym, hit the weights hard, and come home and meal plan. I need to make it harder to abuse myself with food.

Speaking of the gym… My Nick Best/Best Strong t-shirt by Barbell Apparel arrived Tuesday night and I am so excited to wear it to the gym. Nick Best is a strong man athlete up there with Brian Shaw and Edie Hall, but Nick is in his fifties. I can relate to his philosophy:

Age is just a number.

Nick Best

Unboxing the Best Strong t-shirt can be seen on YouTube here: T-shirt and my new novel unboxing.

I posted the photo on Instagram and Nick Best’s Instagram liked it and followed me!

Order my novel here:

Some cats, some ramen, learning the “mailer machine” and more about childhood trauma and imposter syndrome

First, the cat picture of the day.

Misty and Oz, two of our cats

Next, let’s briefly do a Purple Carrot Update. Today I prepped the matcha overnight oats and made the ramen bowl. (Video of matcha prep here.)

The teenager vetoed the homemade miso broth and fresh ramen.

I had the leftover black pepper tofu for dinner and it was soooooooo good, even leftover.

And most Purple Carrot meals take 30 minutes to prepare, which in my kitchen has been translating to 40 minutes. Much better than the cooking marathon caused when a Hello Fresh box comes.

But now to the Bizzy Hizzy. I finally learned the “mailer machine.” It’s a folding machine. We used it to fold the postal service priority mailers that go in each fix.

We had trouble getting the machine to work— so we didn’t really get started until after first break. We folded 4401 mailers.

Basically we unpack the mailers, sort them so they are less likely to jam the machine, and feed/empty the machine. There is a zen to lining up the mailers on the rolling machine, fanning them and making sure they don’t curl.

I was sent to the mailer machine as part of Stitch Fix’s quest to know what tasks I perform best. I perform regularly at 96% in QC but unfortunately when I have bad day that plummets to 85-90%. They raised the pick goal so I only do 75% of that. Apparently I have shown both potential and inconsistency in inbound processing and returns. I apparently tanked in style carding (66%) which I would like to believe was a fluke but maybe not. And a shocking 29% in NAP binning. It was shoes. And it was very painful.

I’m told they want everyone to have two work centers they can perform 100%.

So now I’m at the mailer machine.

If I’m honest with you, and it is very hard for me to say this in public, what I hear is: “You’re not good enough for us, so since you suck at everything, let’s stick you on this machine back in the corner.”

I feel threatened. And like a failure.

And that is not what they said. At all.

But I have a disability that makes me insecure and makes me feel inferior, unworthy. And certain childhood traumas leave me feeling unwanted, and as if I am a burden to everyone.

So I am being honest. For one reason. In case someone else is fighting a similar battle and needs to know he/she/they are not alone.

FURR’s first ever kittens and coffee “pop-up cat café” raises nearly $2,500 and yields adoption applications

OMG.

We planned this event in a little more than a month.

We received donations from Wegmans, Target #2536, Wawa, Easton Baking, Philly Pretzel and Keystone Snacks. Just Born also offered candy but the pick up is next week. We will use that for a future event.

So many friends and family members baked. I have leftover coffee cake and oatmeal chocolate chip cookies for breakfast. I bought sweets, coffee, a cutting board, a t-shirt (don’t declaw!) and a mug.

When we “opened” at 2 p.m., a horde of people charged the room! There was a line more than half way through the building and no spaces left in the parking lot!

And everyone was patient and polite. The room was so full we couldn’t do all the activities we had planned— there wasn’t space. We only sold about ten cups of coffee but made almost $400 in food and drink donations, as we let everyone set their own prices.

A man came in from the basketball game next store and asked if we took Venmo. I said I had Venmo and had plenty of cash or I could get the card reader. He Venmoed me $20— I gave him $20 from my own pocket. He took a cupcake and a can of Sprite and gave the organization the whole $20!

People just wanted to pass around kittens and cuddle them. And the kittens all laid peacefully in strangers’ arms!

And everyone loved playing with kittens!

We made almost $1,500 in admission donations. Hundreds of people came.

In 2.5 hours, our unofficial count says we raised almost $2,500 for these kittens.

Photos to come.

I just keep picturing in my mind the faces of all these people of all shapes, sizes and ages cuddling kittens. Everyone turns into a softy when those babies curl up against you.

At the end of the event, the teenager’s father and I were taking stuff to the car when I saw a group of teen boys— I assumed athletes— coming out of the gym/the basketball game. We had soooo many cupcakes left I told them to go into our room and tell the people there Angel said they could have cupcakes.

And as we left the event some other young men asked if we needed help. So all in all, it was lovely to see polite & friendly young people. Especially since this last pandemic year has been so hard on our youth.

I am grateful for all the FURR volunteers who staffed the event. I am super proud of my daughter for her hard work. And I loved working with my partner in crime, Janel.

What a success!

Stress, leg day, wins for the cat cafe, taste testing and EZ Pass Drama

In 45 minutes, I need to leave for work. It’s Thursday and I feel like I haven’t stopped moving all week. I’m behind on my own commitments and starting to feel panicked.

The pop up kitten cafe fundraiser for Feline Urban Rescue and Rehab is this Sunday.

Although it has required effort from many people, in the last few days this has become my baby.

In the last 24 hours, we received commitments from Just Born candy and Target #2536 (the same Target where I used to work and that experienced a fatal shooting in the parking lot last weekend).

This brings our list of supporters to:

  • Many individual bakers
  • Easton Baking Company
  • Philly Pretzel
  • Wawa
  • Wegmans
  • Giant Food Stores
  • Keystone Snacks
  • Chocolate Works
  • Target
  • Just Born

Today the teenager and I will be heading to Keystone Snacks to get the Veggie Chips donation.

So that’s the fundraiser but meanwhile real-life goes on. I haven’t worked on William Prystauk‘s upcoming novel in his Kink Noir series, Bondage, in several days. Our personal cat, kitty cancer survivor Opie has a very goopy, wet eyes. This is very unusual for Opealope so I gave him a couple treatments with a chamomile tea eye wash for cats grown and prepared by our fellow foster, Granola Cat Lady.

Despite all this (and only 5 hours sleep from sharing my bed with the teenager’s dog, F. Bean Barker), I still made it to Apex Training for leg day and some warm-up core work. My body was very stiff after that, not really from the workout but because my period is late and doing things to my body.

Although I have to admit I fell on the way to the gym and broke the screen to my iPhone. After 3.5 years I now get to test my SquareTrade insurance.

The other big news is that the teenager installed a new toilet seat in the upstairs bathroom. The old one had screws so stripped it kept falling off while you were sitting on it. Bad news is: our bathroom is 1950s Flamingo Pink. The new toilet seat is white— the only one they had. I hate white toilet seats on colored bowls but I also hate “falling in.” And now that she’s seen it, the teenager agrees.

I finally tried my Emmi Roth cheddar cheese snacks from Hungryroot which were supposed to be for tuna artichoke melts but I couldn’t bring myself to use such fancy cheese on a grilled cheese sandwich. A colleague and I were talking about snacks & cheese so I brought her some and we tried it at the Bizzy Hizzy.

She loved it so much she googled where to buy it. Apparently it’s only available in Wisconsin and Switzerland. It literally melts in your mouth.

After work I went to Sheetz and ordered a pina colada lemonade with immunity boost with my bonus points. It tasted like candy, too thick to be refreshing but definitely very summery. I added some mango vodka when I got home. (Here’s a video if you want to see me talk to myself in a parking lot at midnight.)

And finally, not sure if I mentioned it on the blog, but I’m another step closer to resolving the great EZ Pass Drama of Summer 2021. Did you ever procrastinate something so long it bit you in the ass?

Yeah, so that’s what happened to me.

So, our Nissan Ultima (oh how I loved that car) died suddenly. My husband and I were still together and only had one car. He replaced the Ultima was a used Nissan Juke— a car he had wanted for a while. We moved everything from the Ultima into the Juke.

I had ordered an EZ Pass when I started work on my master’s in world history at West Chester University and was driving down the turnpike at least once a week.

So I knew that the EZ Pass was connected to my car— the Ultima— but I never really used it. I forgot about it. And then I bought my Jetta because I hated the Juke. Our family didn’t really go anywhere. I worked retail so I never really got time off. I had stopped working on my master’s as money got tight and my marriage continued to fail.

I neither returned nor updated the EZ Pass.

My husband returned the box of random things from the Ultima and I, with other things on my mind, tossed the transponder in my car hoping to remember to update it.

I never did.

At this point, I don’t even remember how to access my EZ Pass account.

This summer, the teenager took her grandmother to Cape May. She pulled up to the first toll booth and the toll collector yelled at her for trying to pay the toll.

Being a dutiful child, she trusted the toll collector who told her she had an EZ Pass.

Two weeks later, we get two violations from NJ EZ Pass. $30 in missed tolls and $55 in administrative fees. My daughter and I send a check, but I also send an email stating that I understand I hadn’t updated the EZ Pass, but my daughter had tried to pay the toll and the toll collector yelled at her.

They cashed the check.

Then a couple weeks after that I get a letter from PA Turnpike EZ Pass stating I had insufficient funds in my account and they were threatening to ticket me. Now, my EZ Pass was on a credit card. That credit card expired one month before my daughter’s trip.

I call the number. Because I don’t know my account pin or my transponder number, I am forced to leave a message and they say they will call me back. That was Monday.

A couple days ago I get another letter from NJ EZ Pass. They claim I didn’t pay one of the two violations. I send another email and send them a screen shot from my banking app of the cashed check.

It’s now Thursday. I go to PA EZ Pass and try to remember all my account info. I easily succeed. I look at the “insufficient funds.” $5.37 cents. They also demand $35 to load my account fully. Even though I haven’t used it in three years.

And you can’t just pay what you owe.

I then go to the “manage vehicles” tab, add the Jetta and delete the Ultima. That took five minutes. Had I done that years ago, I could have avoided the whole drama.

Week Four of Physical Training at Apex and more thoughts on Disability

When I turned up at the Apex Gym today for my first session of the week, I was accompanied by the teenager and her dog. They were both impressed— and in the dog’s case confused— that my trainer Dan was wearing his baby.

I am always impressed with the different bodies I see at the gym and the attention both trainers give to their clients.

There was a woman at the gym finishing her session when I arrived. She was working hard with some dumbbells, with her back to me. She was older than I was, and overweight, probably at least obese by BMI standards (because I am overweight by BMI standards).

But she was uneven, with 80% of her excess weight in her legs.

And just like with me, Dan supported her and challenged her as if we were athletes. You could tell she was proud of herself, and I was proud of her.

And I couldn’t wait to tell my trainer Dan that I can already feel my body moving better. In his eyes, he calls it “a little increased mobility” and to me, I feel like my knees are moving the correct direction.

I told him that I got to pick at the Stitch Fix Bizzy Hizzy and covered about 6,000 steps and pulled 216 items in less than three hours. Now those aren’t stellar numbers, but I haven’t left QC in months. And I didn’t hurt.

If this Apex experience doesn’t teach me to participate in exercise and strength training daily, nothing will.

Today’s workout t-shirt was “let’s hit the bar” by The Fitness Tee Company and my trainer Dan let out an enthusiastic battle cry. We did hit the bar, and we added weight to it. I really enjoy bench press.

In other news, I listened to the latest podcast from the NYT Daily Sunday Read, “The Man who filed 180 disability lawsuits.” It looked at the “industry” of people hired by lawyers to find non-ADA-compliant businesses. And sue them.

I need to digest this more, but the reporter interviewed a small restaurant that almost lost everything because of such a lawsuit, in what seemed a situation where a new restaurant just had everything go wrong.

But the reporter also interviewed the litigant who said businesses have a responsibility to know the law better (my note: it’s almost 300 pages) and that being disabled is expensive so these lawsuits help pay for his equipment and care.

Link to the podcast on Spotify.

Luau luncheon at the Bizzy Hizzy

Changes are brewing at work. Tomorrow I learn the infamous mailer machine and QC Valley 0 has been transformed into a test site to see if QC centers can prep their own boxes as they fold each fix.

I’m terrified of this. I have a really awkward relationship with packing tape.