Yesterday, I started the day with physical therapy, having taken one of my muscle relaxers to see if that impacts the mechanics of my balance. Then, I had a lovely visit with my mom friend Janel— her oldest and my teen are one week a part and we met during pregnancy. After eating too much quesadilla at one of our favorite local diners, I went to the gym.
Now I don’t know if Andrew was particularly sadistic or if I’m just not keeping up, but it felt brutal yet satisfying. He kept throwing some serious challenges at me, but it felt like I kept nailing them.
Physical therapy and a gym session in the same day is a lot.
I’ve been reflecting a lot— on what our bodies do, what it takes to maintain them, and how different these current medications make me feel. For the better.
Today my only doctor’s appointment is my neurologist/physiatrist and I’m waiting in her office now, with no restroom in the lobby. And they are already behind, which gives me more time to think.
And I wonder— as our bodies age, ache and change, how do we even know anymore what it means to be healthy and feel good?
I think about if my medicines might have long term flaws, and worry about their interactions. I question my own expectations. And I also ask— will they be able to put the pieces together and diagnose what has happened to me? Why do I keep falling and almost passing out? Will it happen again?
Is every mood I feel a consequence of my heart? When I’m stressed, when I’m anxious, when I’m exhausted… are those my moods or are they my heart?
I feel silly for thinking and overthinking and even sillier for having some fear regarding You returning to work.
Notes from my neurologist appointment:
She shook her head at me when she came in; I told her I’ve had enough of that from my PCP
She refilled the baclofen the pharmacy says she canceled, but she likes my theory that the refills got mixed up.
She does not think the baclofen has contributed to my recent falls, and if anything I should be more regular with it.
She wants me to keep very close note of my symptoms and my blood pressure and alert her if my hands continue to tingle.
She ordered a CT scan and a CT A to make sure there’s nothing wrong with the vascular function in my head
I passed my neurological exam with flying colors
I am in the best shape she’s seen me in since we started our relationship
She will follow up to see the cardiologist’s report
She reviewed my written long to accompany my heart monitor
She concurs with my assessment– that so far this does not appear to be a cerebral palsy issue.
She said I’m “a joy to be around”
She remarked that my facial laceration is healing very well and they did an amazing job stitching it
I am doing all the right therapies.
She did not see any scissoring in my gait!!!
She’s glad they didn’t put me on blood thinners. Everyone agrees– medication that will make my bleeding and bruising worse does not correspond nicely with my fall history.
Yesterday was Monday and I went for my second full physical therapy session. I admitted to him that the weekend got so crazy that time got away from me and I didn’t do as many stretches as the paper told me to. My therapist told me that was okay, as long as I was trying to walk as we practiced on the anti-gravity treadmill and kept stretching my hips to fight the internal rotation.
And I had another great session on the treadmill.
I also did extensive editing before and after physical therapy, to the point where I think I will have Larry Sceurman’s short stories ready for his approval tomorrow and I don’t see any reason why we wouldn’t send them to Gayle for design by early early April.
Later in the day, I went to the gym where we did primarily back and shoulders but also hip and core. That right hip, in a very specific location, was very unhappy with me. It’s something I’m going to have to look into with my physical therapist and my chiropractor and maybe my neurologist. My fitness coach Andrew wondered if it might be my IT band.
I noticed my fingers have not been tingling as they had.
I texted Gayle last night–if I made it up the stairs and to bed I would have earned my “fourteen days without a fall” graphic.
It arrived today.
I went to bed at 8 p.m. last night but couldn’t fall asleep until 9. I woke up around 2 a.m. and cuddled Louise for a while. I think she woke me, and I can’t help but wonder if she senses something about my heart rhythm. I heard my neighbor start his car at 5:45 and forced myself out of bed as my alarm was due to go off at 6.
I was exhausted. My blood pressure was perfect– 115/76– which made me think I should skip the morning coffee. But I needed to drive about 20 miles in morning highway traffic. I needed my wits about me.
A handful of peanuts, my SSRI, a beta blocker and a muscle relaxer, and a cup of coffee and I was good to go.
Hand therapy is always fascinating. Today I did the exercises I did last time (read about those here) and squeezed some putty. My therapist John took some measurements of my finger, and other than the swelling, there is only one angle that still has limited motion. So he gave me a piece of elastic and a safety pin to try and stretch it.
After hand therapy I called Nan, as I had promised to take her to the bank and to CVS. I had run out of Zyrtec the day before, and CVS had texted me and said my SSRI refill was ready. Still no word on my baclofen, the muscle relaxer prescribed by my neurologist. She had called me in late February (mere days before my first fall) and said she was sending in a prescription with six months of refills. The next day, CVS texted that they had received the prescription but the medicine was out of stock. I never heard from them again. I am almost out, but haven’t been taking it because they didn’t give it to me in the hospital.
I stopped along the way at Panera to use the bathroom and grab a cookie for breakfast. Panera makes an amazing oatmeal cookie with dried blueberries and raisins. When you consider the sodium, calories, sugar and protein, it’s one of the healthier choices. And it’s delicious. So I got one for me and for Nan.
I almost got back on the road forgetting my cookies, because I ran into a fellow library board member who called to me from across the store.
Once I picked Nan up we had a great time visiting her usual teller at the bank, whom we hadn’t seen in a while; going to the Dollar Tree (or as we like to say now the $1.25 cent store) for Easter decorations and cookies, where we ran into someone who lives in Nan’s old apartment building; and the most magic place of all– CVS.
We went to the pharmacy first. My SSRI was free, and I asked about my baclofen. They said my doctor canceled the order. I showed them the text, and I was told that was very weird and that I should call my doctor. I wonder if they asked her for a refill on the old prescription at the same time she sent a script for the new one, so she said no to their request, and they canceled both.
Nancy needed ibuprofen, a hair barrette and some Lysol wipes. I needed allergy medicine.
I had a coupon for $10 off 90 count Zyrtec or the house brand was on sale buy 1 get 1 50% off, with a $4 off coupon. I got 2-120 bottles for $40-something, versus the $60 the name brand would have cost for 90.
CVS brand pain relief was on sale, the big bottle was $19.49 and the smaller bottle was $14.49, but we had a coupon for $4 or $5 off $15 purchase, AND the smaller bottle had an expiration date of this summer versus late next spring like the bigger bottle. I had a 40% off coupon. So I thought that could cover the barrettes. The Lysol wipes were also on sale and we got the 35-count, and we had a 40-cent manufacturer coupon. (All the coupons came from the CVS app.) Nan’s total started around $32 and she ended up paying $19. In other words, she got everything for the original cost of the ibuprofen.
She loves accompanying me to CVS.
I brought Nan home, and when I got to my house I discovered that MY FIRST FIX ARRIVED FROM THE BIZZY HIZZY! I have been waiting to get a fix from Stitch Fix for 12 years! Joan opened it with me via Zoom.
I then ate a massive bowl of falafel and vegetables. I sent out a newsletter on Substack. Read that here. And attended a library board meeting tonight.
And don’t forget: Darrell Parry is hosting (and served as judge) for the Jean Corrie Poetry Reading & Ice Cream Social at Lafayette College Thursday. See the Substack or Facebook for details.
My body seems to have finally adjusted to my beta blockers. My blood pressure has stabilized around 110/70 for about a week now. If I have coffee it goes up to 120/80. I lived on caffeine and sugar yesterday to keep my energy up at The Greater Lehigh Valley Writers Group The Write Stuff Conference, which you can read about here.
Today, I have to deliver cats to a Feline Urban Rescue and Rehab “Meet the Cats” event at the Phllipsburg Petco. One of the organizers has a soft spot for my sweet Minerva and all of my fosters are long-termers at this point and need homes. But this means I need to sneak up on Minerva and Louise which is practically impossible.
But Sassy, my friend who recently left Stitch Fix to return to the medical field, texted me yesterday on her birthday to invite me to breakfast this morning. And she said she would call Southern Candy to join us. I was charged with selected a place.
Well, I said, if you don’t mind coming out my way, there’s a place I’ve wanted to try, Big Papa’s Restaurant and Catering in Easton. And so we did.
I ordered the State Theatre breakfast– scrambled eggs, cherry tomatoes, these adoarble square breakfast potatoes, and spinach. They didn’t have avocado. It was listed as also having avocado, but they offered me extra spinach. Sassy ordered The Big Papa Feast with a side of toast. Southern Candy had biscuits and gravy.
Sassy’s breakfast came with French toast and it was a full order of French Toast. She ordered bacon for her meat and it was a massive pile.
And the amount of food they served Southern Candy looked like two breakfasts to me.
The staff was delightful. The decor lovely. The colors and the music a little quirky and upbeat.
And the biscuits and gravy… their effort in making them homemade showed, but Candy said while delicious, their spices in the gravy wasn’t southern. So we’re going back in a few weeks so the chef can make them her way.
And we ended up being silly and doing a fashion show.
I had my full activity session at Physical Therapy today. I did my stretches, got strapped into the gait belt, and did a series of single leg stability exercises under the supervision of the computer’s measurements.
Then we headed to the zero-G treadmill. I was advised to make my feet and pants have contrast. So, I wore my bright green shoes, my purple polka-dot knee socks, and my black-and-white cat leggings from Purr Haus in Emmaus.
He chuckled while remarking that I certainly followed directions.
The Zero-G treadmill required some rubbery pants surrounded by what resembles a surgical/Elizabethan collar (cone of shame) that get zipped into a treadmill pretty much encased in plastic. When it filled with air, it reduced my body weight. I was able to walk the treadmill at 50% of my body weight.
The reason for contrast is that the treadmill offers an image of your feet. Three views on a monitor: front, side and back. So I was able to watch my feet, move my legs, angle my feet and reinforce the improved gait pattern by watching it as I walked.
I was only on the treadmill for 15 minutes, but it that time I discovered what part of my foot I normally don’t use. It was exhausting– and exhilarating– and so fun to show the Teenager the results when I got home.
But before I got home though I had an appointment to have my stitches out and on my goodness did I have the most personable and confident resident yet. I only had three stitches but that last one gave her a terrible time. It took her thirty minutes to get all of them out. I had her laughing and she was very patient and determined, and so afraid she was going to hurt me because “if it were me I’d be jumping out of my seat!”
She said I was the best patient ever, that I sat so still and I must have a high pain tolerance.
Between the two appointments, I stopped at Dunkin for a decaf coffee and saw they had a new “egg taco.” I read the nutritional info and with 500 mg of sodium, 180 calories and 8 grams protein, it had less salt and more protein and less calories than the avocado toast. I am so sad they no longer have the hummus.
When I got home, I did some little things and ate the homemade chicken and dumplings my Pennsylvania Dutch mother-in-law is known to deliver when people in the family are sick. And then I tried to take a nap, but a little birdie was guarding me.
Here I am, looking less exhausted and beaten. My scabs were flaking off and healing nicely but some of them cracked today (vigorous chewing? It happened at lunch time) and started bleeding. I’m still impressed at how quickly the body can heal, but these stitches feel like flies on my face.
I left the house early today to visit Koch 33 Collision. In early February, a work colleague’s car happened to give mine a love bite on the entrance ramp of 22– this was early on in the days of my unknown cardiac troubles when the symptoms were starting to show. I remember not because my heart had anything to do with that situation but because I joked about minor car accidents just adding more stress to my life. The estimate will cost less than $1500, hopefully the insurance companies can agree to that.
When I came home, I made myself my first cup of coffee for the day. I have slowly been changing my morning coffee habit into a morning water habit, unless my blood pressure is low, then I go ahead and make the coffee (which my occupational therapist at hand rehab thought was hysterical).
“What?” I said. “This is my first week on this medication and my blood pressure has been low when I have to take it. They don’t know what caused my a-fib, so I can’t skip the dose, but I also can’t take a beta blocker with a blood pressure of 97/56.”
Today my blood pressure was perfect so no coffee.
The neurologist’s office called and moved my appointment up a week from 4/4 to 3/30. I mentioned the report from the physical therapist should be in my chart, and that the news looked good, and that my body had adjusted to the beta blocker so my blood pressure and my blood sugar seemed to be stabilizing.
Gayle had promised me a new graphic every week I made it without a fall. Unfortunately, I was on day seven when the last fall occurred so I never earned it. But today is day eight. So I definitely made it seven days. And I display my new badge proudly.
I worked on Larry Sceurman’s short story “The Vanity Demon” for his upcoming anthology, Coffee in the Morning. I’ve reached the point in the editing schedule where I should edit one story a day to kick back to Larry for final tweaks before sending to Gayle for layout.
Speaking of stories and Larry Sceurman, Gayle, Nan and I spoke to the Apex Writers Group last night on Zoom, about 21 people attended our presentation. The participants seemed most interested in book construction, so Larry’s book, The Death of Big Butch, allowed us to show how we used text and book design to reinforce the nostalgic feel of the 1970s.
I also received my latest copy of the Greater Lehigh Valley Writers Group newsletter, which included my first official “Podcasts for Writers” column. If you’d like to read all of it, it appears here. More of these lists will be printed and organized in my paid Substack archives.
The Teenager came home from work and we had to run some errands. Somehow, we ended up at my hand rehab appointment more than an hour early. We visited Josh Early Candies, which killed some time. But with our meager budgets we could not afford fancy chocolates.
We ended up at Grocery Outlet, but not our local store, one on the other end of the Lehigh Valley. And we hadn’t made it 20 feet into the store when I spotted Silk Very Vanilla Soy Milk in juice boxes. Now this is The Teenager’s favorite milk for drinking.
She almost bought a pop-top can of artichoke hearts to eat in the car but proclaimed that would be a new low, even by her standards. I bought myself a pack of Maple Donuts because it was time for my afternoon snack, and I seem to do better if I save a carb-y item for around 2 p.m.
The Teenager then made a noise and I wasn’t sure what was wrong and she said it was sad how happy we were wandering around a discount grocery store. I lamented that it was a shame Nan could not be with us. And I didn’t know if that would be a good time to also mention that Gayle and I had exchanged emails with a ridiculous amount of excitement about customized packing tape from Sticker Mule.
Gayle had said she had to check out the template because it was something the business should do when we had more money and I quickly said that despite the fact that we recently printed a new book, this was something we obviously needed. And then she totally outdid herself on the design, so if Sticker Mule delivers a good products, it’s going to be so amazing that you will have to order books just so you can receive a package from us.I pack a good looking parcel to start with, so this will up our game.
When I showed Gayle’s proposed design to The Teenager, the Teenager also got excited and I bet her father would, too, because he did spent most of her life to date as a shipper-receiver so our whole family has an acute appreciation and enthusiasm for packing tape.
But this is taking up way to much space– The Saga of Angel and Gayle and their Polka Dot Packing Tape.
The Teenager and I sat in the parking lot eating Maple Donuts. Maple Donuts are always delicious, but they are not maple flavored. These donuts had a sell by date of March 27 and it’s only March 21 so I knew they would be melt-in-your-mouth soft. And they had cinnamon sugar. I LOVE A GOOD CINNAMON DOUGHNUT.
I ate two cinnamon. They glided down my gullet and I couldn’t help myself from also having a plain cake doughnut. I have no self-control.
The Teenager whipped out a Silk soy milk.
“Are you going to drink that warm?” I asked.
“Room temperature,” she answered. “Do you think I ever drank these cold? How do you think they came out of my lunch box?”
,
Hearing her reminisce about having these in her lunch box reminded me of how many times I worked hard to find sales and coupons and deals to buy them for her because I knew she loved them– and other than that she only got Juicy Juice or Adam and Eve juices because I was very strict on what I fed her and Silk in juice boxes was so expensive compared to the half gallons. And sometimes I worked hard to save money on all the other groceries so I had the $10 extra to buy her favorite milk for her lunch.
And they are delicious.
The half gallons supposedly are only sold at Dollar General these days but we still haven’t found one in our area that sells them.
Once we headed to The Institute for Hand and Upper Extremity Rehabilitation, we had our cravings satisfied.
The Hand Report
When I arrived at therapy, they wrapped my hand in a moist heated pack for twenty minutes and it’s the best twenty minutes of my life. My therapist heard my tale of falling down the stairs and landing in the hospital in the hours after my previous visit, and he said I win for the most interesting story of the day.
Then, he proceeded to talk with me about things I could do at home to prevent future falls and make my life safer– because he is, at the end of the day, at occupational therapist. It was a great talk. It was an even better conversation because he gave me a hand massage during it.
My mobility has improved greatly, and even though it is still swollen, I can make a fist! I did several exercises there. My therapist mentioned that next time we will focus on strength, because he believes he can trust my previous experiences to make sure I follow through with a home rehab plan, he wants to be sure I have full hand strength so that I can fully grip the banister.
“Not that I’m picking on you,” he added.
I did four sets of exercises. First I picked up handfuls of these six-sided dice and dropped them all so that the six was facing up. Then I held the big ball in my hand and drew the alphabet in the air with only my hand and my wrist, not my arm. Then I squeezed the red ball. For the final exercise, I had two balls the size of a golf ball but a tad lighter. I rolled them across my fingers and then tried to reverse the order on the way back.
A brief summary for anyone new here: I am getting closer to 48-years-old every day. I have spastic diplegia cerebral palsy which is a bunch of fancy words that mean my leg muscles don’t relax, my brain and my lower body don’t communicate well, and my hips, knees and ankles don’t work efficiently or even have a normal constitution.
I walk funny— I have an abnormal gait where my leg scissors and I toe walk. Decades of walking funny can cause wear-and-tear on the body.
But the last six weeks have thrown some new challenges at me: high blood pressure, unusual falls and now atrial fibrillation with rapid ventricular response.
The Splinter
Last night I got a massive splinter deep in my foot, in a place so deep that we couldn’t dig it out without really tearing a hole in my foot. So I asked the Teenager to slap a raisin on it and she did.
This did draw the splinter to the surface more but I haven’t removed it yet. The start of my last raisin-splinter journey happened a little more than a year ago. Read about that here. Especially if you want to hear how my splinter improved my gait and my hip pain and how the raisin and my cockatoo got the splinter out.
The Chiropractor
I visited Nicole Jensen of Back in Line Chiropractor and Wellness Center today— where she commented how loose everything was and how my body parts were all facing the right directions.
Feet facing feet directions
She got me ready for physical therapy where I’d be the youngest person in balance therapy today.
Physical therapy for balance and fall prevention
I have spent a lot of time in physical therapy — about every two years I turn up for few weeks with a physical therapist because even though a lot of it tends to be a repeat and I know what to do, it’s important to have an outside professional evaluate my status so I know I am doing the right thing for the problem.
In this case, we discovered:
The physical therapist approved of some of Nicole’s phrases for things— like “make my feet do feet things.”
My fitness coach Andrew and I are doing all the right things at Apex Training, using my sense of my body and Nicole’s insights on what my innards are doing.
The physical therapist is also impressed at my capacity to manage to take what could be catastrophic falls with relative ease. The Teenager says it’s because I “puddle,” relinquishing myself to the process instead of fighting it and tending up.
My static balance is impressive, but my dynamic balance “throws everything off,” meaning standing still I’m good, but moving or on an unstable surface, the issues can occur.
We will be working on exercises that open the hips and rotate the knees outward. And doing some gait work with a zero-gravity treadmill.
The physical therapist was also impressed with my ability to self-correct my gait, but I don’t know if he picked up on how much focus and energy that requires.
When The Teenager was the Wee One, we had more than one stretch of time when the budget only allowed a meager sum for groceries. Our average grocery bill from 2008 to 2015 was around $250 a month. Now, I think that might get you an 18-count of eggs and a gallon of milk.
I’m shrewd and I shop with excruciating attention to detail when on a budget.
And when I tell you my cupboards are bare, I mean my cupboards are bare. The Teenager had a rough week this week financially and I’m out of work because of my injuries, heart and balance condition… so we may be living off the 1/2 a month’s wages I have in reserve.
But luckily, the cupboards are not bare. And we took my last $30 cash and a handful of change and went to The Dollar Tree to see what we could do to get some groceries that wouldn’t kill me. (I’m trying to control my salt and sugar because of all of my bizarre symptoms.)
Grocery Haul from Dollar Tree
Before we left, I calculated that with Dollar Tree’s new $1.25 prices we could get 23 items, as long as they did not include non-grocery items, because here in Pennsylvania, groceries don’t get taxed.
My main strategy was to only buy items that included more than one serving or could spread across more than one meal.
I’ll start with the loaf of bread and work clockwise:
White Bread (I have sprouted sourdough in the fridge, and some sandwich thins and who knows what else in the freezer)
Potato Gnocchi (shelf stable, high in protein, four servings per bag)
Chicken Egg Roll for me; Shrimp for The Teenager (we have homemade vegan egg rolls in the freezer that will go nicely with them)
California Blend Frozen Vegetables. (Picked for its bland diversity. Goes with anything. You could pick out the carrots, broccoli or cauliflower if you really wanted to. We have frozen asparagus and frozen baby brussel sprouts in the freezer)
Cheese ravioli (almost bought the meatballs, but they were high in sodium and only had one serving of meatballs per bag so since processed sauce is salty, I put the meatballs back)
Minute Maid Hibiscus Aqua Fresca (I use it to season my iced tea– my unsweetened home brewed tea. I use about an ounce or two at a time)
Peace Tea Peach Green Tea (“Mom, Can I have a drink?”)
** THE GOLDFISH ARE NOT FROM THE DOLLAR STORE. WE TRADED A COPY OF THURSTON’S BOOK FOR A BAG OF GOLDFISH**
Fish Sticks (Now, fish sticks don’t have much protein or nutritional value so I would recommend combining these with the next item, the mac and cheese bites. They are both boxes with 1.5 servings in, so split in half, it could work as a meal for two together)
Mac and cheese bites
Two small cans of tuna in water
a jar of honey roasted peanuts (for when I have to take my meds with food)
A big bag of long grain rice
Extra Wide egg noodles
organic valley Tomato sauce (it was the lowest in sodium)
Lower Sodium Chicken Broth
a can of black olives (great for texture, flavor or snacking)
Prego canned alfredo sauce
fried cinnamon apples in a can
a block of cream cheese style spread
Price: $26.40
That leaves $4 to buy some milk.
I haven’t lost my touch.
Ideas:
chicken flavored rice with asparagus and brussels
fish sticks and mac and cheese bites
egg rolls and rice
soup with chicken broth and noodles
ravioli with tomato sauce and olives
tuna sandwich
grilled cheese
peanut butter and jelly
chomeur pudding with apples
gnocchi with alfredo sauce olives and vegetables
tuna casserole, made with chicken broth and cream cheese
I’ve been sipping strong coffee for about 90 minutes now, munching pistachios as I take my morning beta blocker. I have been trying to get my meds to 6 a.m. and 6 p.m. I don’t want to take them at the time I get up for work, because who wants to wake at 4 a.m. on a day off? The hospital gave me them at 9:30… but in the evening I’m usually asleep by then and working on a typical day. 8:30 a.m. is my morning break at work, so that would make sense from a practical point of view, but it would also mean having a snack at 8 p.m. and not getting to sleep until 9 which means the most sleep I will ever get is 7 hours. 6 a.m. and 6 p.m. sound ideal because I usually arrive at work at 6 a.m. and have a small breakfast and 6 p.m. is dinner.
But today I slept until 7.
Oops.
But when I got downstairs, my legs felt persnickety and my blood pressure was perfect if not a little low– so I went ahead and made the strong coffee. And I took my baclofen for the first time since before I went into the hospital.
One of the generalist’s at the hospital thought the baclofen might be causing some of my issues. Which makes this a test? Maybe?
But this is not a post about my Zio heart monitor or my scabs slowly crumbling down my face, though those things are fun. My gash is healing rapidly and well. I wanted to talk a bit about my weekend and what’s up with the publishing company.
Many of these thoughts will be further explored as part of the Parisian Phoenix blog and Substack newsletter. We’ve migrated from Mailchimp to Substack for better visibility and the prospect of building more paid resources and services for writers and readers. If you didn’t read this week’s recent release, check it out here.
Friday night, a journalist friend and her partner came to visit. I had planned to go visit her, but this close to my hospitalization I wasn’t sure driving on the highway by myself for an hour was a good idea. They have also been involved with cat rescue, so she’s offered some support on realigning the cat book. I’m helping her (I hope) with some of her goals and we’re both trying to help people find ways to publish their books.
My unsolicited submissions pile is growing rapidly.
Meanwhile, the dog is keeping an eye on me.
In the afternoon yesterday, I visited my “office” at Panera where our photographer Joan touched base with me regarding her activities at the Greater Lehigh Valley Writers Group conference this coming weekend. She’s not fooling me– I know my friends are doing wellness checks.
But I had the most amazing meeting with the duo behind Echo City Capers, and we have a handshake agreement to launch some projects together which will allow Parisian Phoenix Publishing to kickstart Parisian Phoenix Kittens with a second edition of an Echo City Capers Jr. book, a children’s book from Darrell Parry (and maybe someday a puzzle book/older kid story– hint hint Darrell) and perhaps event a story in the vein of Eric Carle from Larry Sceurman.
It’s thrilling to watch a simple “let’s introduce ourselves” coffee meeting can explode into ideas and mutual support.
That little meeting went two hours and when they saw our physical books, they were pleased. They immediately saw the love and attention we give to our titles at Parisian Phoenix, and without even meeting Gayle yet, I think they “know” and trust her.
I ended my afternoon romp with a visit to Larry, to deliver some publicity materials and give him and his wife, Barbara, a copy of Thurston’s book.
When I left, I felt like my blood sugar was dropping. I found a cherry Pop Tart that the Teenager had left in my car more than a year ago and came home and made a lovely lamb dinner. (The teenager saw lamb and potatoes in the skillet and immediately claimed the leftovers.) My blood pressure was high, but it was also time to take my beta blocker.
Finally, I slithered to my bed– exhausted, when I didn’t even do much– in great anticipation to finish Katherine Ramsland’s I Scream Man and Echo City Capers YA Graphic Novel printed in Canada, Who Turned the Lights Out?
I was so tickled and delighted to read the wit, the humor and the “smarts” in this little volume, which the type is uniquely done and the paper quality gorgeous. It made me very sad to put the book down to sleep.
Are you sick of hearing about these nuisance trials and tribulations? I am a tad tired of living them, but sometimes health problems force us to pause, reflect, organize and refocus. That’s how I prefer to look at it, and since I can’t change the circumstance, what I can do is use every moment to my advantage.
Somewhere in Thursday afternoon, I realized that I would not be at work on Friday for the release of Thurston Gill’s book, The Phulasso Devotional. I had scheduled a Facebook event for the launch and planned on recording him opening the box of books at 6 a.m. and then posting it as part of the event.
But now, I was home sick, and my employer most certainly does not want me on site while I am even more of a fall risk than I normally am. I opened the box of books at home on Facebook live and while I was recording, my Zio heart monitor arrived. (if you want to see that, click here.)
The day prior, the company had contacted me that they were having problems with my insurance company, which turned out to be because they spelled my name wrong (memories of Valentine’s Day in Mrs. Sanders’ second grade class serviced, my earliest memories of “Angel” becoming “Angle”) and they were missing a digit from my member number for my insurance company.
The Teenager assisted me in applying said device, after shaving my chest, sandpapering it, and then wiping it down with alcohol. She’s nervous it’s not quite straight and left enough, and the device itself doesn’t give you much indication how or if it is working so I guess we wait and see. I figure if the placement had to be exact, they wouldn’t let you do it at home. I would assume that most medical professionals think most people are idiots who don’t follow directions. Because really– aren’t most people idiots who don’t follow directions?
Now, my friend who had the heart attack on February 15 had a heart monitor. Not this one, but similar of course. She had a thing she had to carry with her. All I have is what is on my chest. I remember my friend saying that she didn’t know if she should hit the button or not. Because the idea is, if you feel a symptom you hit the button and log the symptom in the provided booklet or in the app. But when symptoms are things like “heart racing” or “anxiety,” it’s hard to quantify that.
Compared to how I feel right this second, my heart was racing all day yesterday. But I also know my blood pressure when I got up today was 97/56. Once I got moving, it increased to 101/67. After strong coffee, black licorice, cantaloupe, a big glass of water and my beta blocker, it ended up 110/66.
In other news, my stitches have rotated a bit and don’t poke me in the lip anymore and I think the swelling has gone down. That makes life more comfortable. I’m not doing enough hand rehab, but I’ve been using and bending the fingers in ways that mimic the exercises without sitting down and making a formal effort to do them.
I return to the gym Monday, to do what I would refer to ask a gentle workout, to get back in the swing of things and see how it goes. By Wednesday I hope to do closer to a real workout, because the heart monitor has to get a good replication of my life.
Luckily, if such a thing can be lucky, one fall happened before the gym and the later one occurred after. Based on that, it looks like exertion in the gym has nothing to do with it. Unless of course, it turns out that exertion at work is equivalent to exertion at the gym, which we won’t know unless I manage to stand at a table and fold clothes for eight hours. Who has that many clothes?
I do have to clean my closet and weed out old clothes, but I don’t want to fold all my clothes.
I followed up with one of the residents at my primary care physician’s office today for my “post hospital follow-up.”
It was a pretty big outing, especially since my blood pressure has been hovering around 105/70 for most of the day, I feel weak, occasionally my heart races, my ears are ringing and my pinky keeps going numb. The Teenager would not be around to escort me to the doctor, so I did some morning chores, organized my Parisian Phoenix Publishing email box, and then read for a bit on the couch.
I had plans today to visit Book and Puppet Company in downtown Easton after the doctor, but my partner-in-crime had to schedule a doctor appointment himself.
So, instead, I asked Southern Candy if she’d like to accompany me to the Dunkin’ Donuts on Schoenersville Road because they have the widest selection of Munchkins, and we met up with Sassy, which made me happy because tomorrow is Sassy’s last day is tomorrow and I won’t get to see her as I am out on leave.
The doctor appointment didn’t leave me with many answers, but the resident was competent enough and my paperwork for short-term disability should be in the right hands. Speaking of my accident, the bruises have all come out now. The nasty one on my back is not one I can photograph myself. But I have some on both legs, my back, my elbow and my face.
As anticipated, the munchkins had cinnamon, jelly, chocolate, blueberry and glazed.
Mr. Accordion adored the jelly munchkins and now I’ve taken to them as they remind me of the good times with my roomie at the toxic non-profit with the Dr. Jekyll and Mr. Hyde CEO. That was an amazing job. I learned so much and could have done so much if the CEO could have performed as a sane manager should.
I got a text message from the home heart monitor people, apparently they had my name spelled wrong and they were missing a digit from my ID number for my health insurance.
Thurston’s book arrived and I’m hosting a Facebook live in the morning to unveil them.
And to make a completely ordinary day sound even plainer, we had vegan spinach ravioli for dinner with a spicy superfood tomato sauce from Hungryroot. It hit the spot.
Angel Ackerman 