So much to do and I want to binge watch Top Gear America

Today was my first Monday day shift at the Stitch Fix Bizzy Hizzy. I worked second shift, then 10-hour shifts and now I have moved to Monday to Friday 6:30 a.m. to 3 p.m. After almost a year of 10-hours, 8-hours feels so short. And it feels like we’re always on break. And transitioning from a 15-minute break to a ten minute is disorienting to say the least.

After work yesterday, I went to the chiropractor, the amazing and dedicated Nicole Jensen of Back in Line Chiropractic and Wellness Center. I feel like she’s learned my body to the extent that it’s personal to her, the challenge of keeping my misconstructed extremities functioning. I think she has this zone she gets into, where she’s plotting a strategy and it’s her against me, well, the physical form of me.

I felt my body start to compensate for my hip falling out of place yesterday. It didn’t hurt. It didn’t even feel wrong, but I noticed elements of my posture changing. A little more protest from the right side, leaning that way more heavily, occasional back pain.

I don’t have the best understanding of mechanics or physics, so my brain is slowly clicking when it comes to considering my femoral anteversion, which means the head of my femurs sit in my hip sockets kinda facing the wrong way making my legs kinda face backwards I guess, makes my bones put pressure on the socket at the wrong angle pushing it out of place? Maybe?

And me, either being a trooper or an idiot, did a 8-hour work shift on a Monday, where I performed at 95%, went to the chiropractor and then visited Andrew, my also amazing and dedicated coach at Apex Training. I think I scowled at him more than usual. The work out was brutal and ended with… what did he call them… offset dumbbell rows? Imagine kneeling on the bench and doing a dumbbell row with a 20 or 25 lb weight while holding the other leg up in the air.

Meanwhile, I reached out to David from The Cerebral Palsy and Fitness Podcast and asked if my discovery and fitness journey would be something of interest for his show, and he said yes. I also updated Andrew Gurza of Disability After Dark Podcast about my upcoming “Sex in the Text” panel at the Easton Book Festival. We had recorded an episode in June, but my parakeet (may he rest in peace, that might be what reminded me of the interview) made so much noise, we hope to rerecord an interview in November.

That’s fine with me, as so much has happened since June: my service dog application, new physical struggles and this “Sex in the Text” program for Easton Book Festival among them. I’m lagging behind on my preparations, which means I’ve been scanning my Fashion and Fiends novels for sex and jotting notes about themes, goals and techniques.

But then, my new computer Midnight came with a free trial of Apple TV, which made it ridiculously easy to subscribe to a free trial of Motor Trend‘s streaming channel. Why on God’s green Earth would I as someone with no understanding of physics or mechanics need Motor Trend? Three words: Top Gear America. It’s the only way to see Top Gear America featuring Dax Shepard and cars.

I don’t think it’s readily apparent from this blog, but I adore cars. If I had any sort of skill with tinkering, I would be more hands-on, but I am useless. But, I can still drive and appreciate cars. And I certainly admire and appreciate Dax Shepard from more than one angle. I just want to watch every available episode (there are two seasons available) and forget about the rest of the universe.

Which right now is tempting… because the episode on the Lamborghini, Bentley and Porsche SUVs had me laughing out loud. I started the hot rod episode but pried myself away for what ended up being a very trouble night of sleep. Bad dreams and body pain, to the point where I was up for an hour from midnight to 1 a.m., debating whether to pull the laptop into bed. I, instead, smeared my back and hips with CBD arthritis cream and drifted away into another uneasy three hours of sleep.

So much to do before the book festival, but the cars… and the Dax… call to me.

End of week update: the stats, the hip, the fitness, the coffee

Yesterday might summarize recent trends in my life. I know I posted a blog post before I left for my last 10-hour shift at the Stitch Fix Bizzy Hizzy. Monday I start a more traditional Monday through Friday shift. I’ll get home earlier, but I lose a day off. And I’m used to having Thursday and Friday off which is nice for running errands, making appointments with doctors and professionals, and for connecting with people regarding my business, Parisian Phoenix Publishing.

I still had my Friday nights and Saturdays, even if I had to head to bed earlier than most people want to on Saturday night. Many well-meaning friends and everyday people have made comments like “well that will be nice,” “no more long days” and “you’ll have your weekends back.”

But I’ll no longer have that feeling of “getting work over with” and I’m no longer part of a unique cohort. We worked alone in the building on Sundays, and that was peaceful, and for two hours every afternoon, we more or less finished the work the traditional day shift left behind.

So, I arrived at work yesterday morning, basking in the bliss of using my new Ninja DualBrew correctly. (I still have to buy coffee filters, but I love the ease of use, the temperature of the coffee, the different settings for the strength of coffee, AND how I can select just the right amount of coffee for me. The reservoir is cool for me, because it removes one more decision or step to screw up. I have been known to double fill the coffee pot when I forgot I already did it.)

On Sunday, I normally perform between 100 and 105 percent of daily metrics. I may have once hit 108. This Sunday, I hit 97. This annoyed me. It was the first sign that something was off. On Monday, I kept struggling. I didn’t really notice anything physically wrong but I did note that my toes on my right foot were really burning by the end of the day. Andrew, my wonderful coach at Apex Training, had asked if we could move Monday night’s session to Tuesday. I said sure.

I busted my butt for the rest of the day and hit at least 99 percent, but I may have hit 100. That’s when I noticed some residual issues in my body. Just that nagging sense that something was not right. I attributed it to working hard and not having my regular Friday appointment with Nicole Jensen at Back in Line Chiropractic and Wellness Center. She had a class on Friday, so she had moved clients.

Tuesday I could feel my right hip turned wrong. It was a weird feeling, like my leg was facing the wrong way. In reality, it might not work that way but that’s how it felt. And my right hip was very tender to the touch. I still didn’t have any pain, but movement was getting harder. So I tried to stretch my hips during the day, but by the end of the day, I had only hit 90 percent and it had been hard. I asked Andrew if we could move the Tuesday session to Wednesday, worried that this was more of a structural issue than a muscular one and working out could push me from discomfort and mobility issues to actual pain.

And a year ago, I was in pain every day and I don’t want to go back to that. Ever. I was flipping through my journal and last year at this time I was starting every journal entry with a number from the pain scale. That broke my heart to see.

I took a muscle relaxer, stretched some more and went to bed after a nice meal. Wednesday morning I didn’t move any better, but I was no longer stiff. But by the time I got to work, my gut said this hip was really struggling to do its job. And I was about to stand on it for ten hours.

At 6 a.m., I called Nicole’s office and left a message. At 9:15, they called me back and scheduled me for 5:15 p.m. I knew that if I waited until my regular Friday appointment and forced that hip to work out, it would lead to pain and harder-to-fix problems.

I emailed my boss as I couldn’t find him and it turned out that he had called out sick. I arranged to leave at 4:30. By my calculations, I hit 87 percent. My right side just didn’t have the mobility it should. The drive to the chiropractor took about 20-25 minutes, and when I got out of the car, it felt like my right leg had fused and stretching it into a step felt ridiculously hard. But still no pain.

This is when cerebral palsy plays tricks on the brain. As I’m (what feels like) dragging my leg into the chiropractor, I started wondering, “maybe I just need to stretch,” “maybe there’s nothing really wrong and I’m just lazy and my muscles stiffened.” But then I remembered the burning toes. Something was pushing my posture forward and my body was fighting it. But I still had my doubts.

Now, no one has ever gaslighted me in the medical community, except maybe my first primary care physician who referred me to the wrong specialist in the days when I had an HMO. I now always have plans where I chose my physicians myself.

When Nicole entered the room, I explained what’s going on and she quickly confirms that yes, my hip was crooked. Like really crooked. She even made a hand gesture. And that my body had done other weird things to compensate. It all moved beautifully when she manhandled it. She pondered what caused this when we had just considered potentially spacing out my weekly appointments to every other week. Did I overdo it at work? Was it missing the adjustment Friday? Was it skipping my workout?

When I got up from the table, my feet did, as Nicole put it, sexy normal feet posture. My balance has improved dramatically in the last few months, and my strength has returned, and my stamina is definitely increasing.

I stepped out of the chiropractor and took some long, beautiful, easy strides.

It. Felt. Good.

No, it felt GREAT.

So, I don’t know how Nicole would feel about this, but I went to the gym. And let me tell you– Andrew delivered a brutal work out. We did split leg squats in sets of 20 reps each leg with weights. He said I was moving better than I ever had before and I said, yes, because Nicole had straightened my body and stretched out my lower extremities. Like, literally, just did. We did military presses with 25 lb dumbbells. We did core. We did upper body exercises like IYTs. And shoulder taps and mountain climbers and rope slams.

And then, before a shower or dinner, and it’s 7:30 p.m. now, I had to deal with the hellions in my room. I had to swap out and refill three litter boxes for the six cats in my room. I had to vaccuum. I didn’t clean the bird cages, but I did feed and water everyone. And I’m still wondering how the heck those four kittens have trashed my closet without opening the door.

I wanted to blog all this last night after I ate my omelet of cheddar, peppers, homemade farm-procured, roasted tomatoes. But I was exhausted.

I like my coffee pot

That’s all I got for ya.

It’s 5:15 a.m., on my final Wednesday of my 10-hour Sunday to Wednesday shifts at the Stitch Fix Bizzy Hizzy. I loved these shifts. I love having three days off. But as of Monday, I will be Monday to Friday, “normal” 8-hour shifts, 6:30 a.m. to 3 p.m. More change.

My chiropractor had a class last week so I missed my regular adjustment and now I can feel my hip moving inward. I never expected that this journey to improve my fitness and awareness of how my body works (if you aren’t a regular I have diplegic spastic cerebral palsy) would lead to this strange zeroing in… I am starting to pinpoint these subtle differences, but I am still learning how to fix them.

I bailed on my strength coach Andrew last night. He had asked to move my Monday session to Tuesday and by Tuesday (yesterday), I just didn’t have it in me. I didn’t sleep well. My stress was through the roof. I overdid it Monday (trying to prove myself to no one but me). And to top it all off, my diet had been all processed foods. When I felt that hip turning inward, I knew my body needed me to stop.

So here we are, the final Wednesday. The third day of my life with my new Ninja DualBrew coffee pot. Unboxing video here.

The Teenager got her second fix, and she loved it. She was aghast to learn that a sweatshirt could cost $78 at full retail price, but I think this experience will teach her the difference between the workmanship of different brands. She asked me not to record her trying things on, but I wish she had because the fit and look of this fix was exponentially better than the first. Unboxing video here.

I have to leave for work in a moment, but let me say I am on my second cup of Green Mountain Dark Magic coffee, courtesy of one of the Teenager’s clients, and I must say it’s the only coffee to keep pace with my Supercoffee.

The Ninja DualBrew has been great so far. I like the brewing options, the heat and strength of the coffee, but I am making small errors in operating it. But I haven’t experienced any of the problems listed in the reviews. My four a.m. brain likes the K-cup option, and my weekend self loves the option to brew a pot. I have not tried iced coffee yet.

Do I have the strength to be the lone voice of a group?

Last fall, at work, before we even suspected they were eliminating our shift at the warehouse, our company launched what they called communities to represent and discuss certain voices across our network.

Black Lives Matter, Latinx and women were three of the communities— as was a community for people with disabilities.

I joined the community for employees with disabilities, but at the launch Zoom meeting I noticed everyone either worked in the office or worked from home. And no one represented the warehouses, but me.

The community had meetings during my work shifts, and the emails seemed focused on neurological and psychological diagnoses. And while those conditions are important and probably impact more of our population in the company than physical disabilities.

I had a brief conversation about this with my boss today as I had mentioned this flaw in the communities when one of my colleagues asked the CEO why warehouse associates across the network couldn’t have more on-the-clock time to contribute to the communities.

This same fellow employee— a member of the Black Lives Matter group— launched a series of Lunch and Learns to promote more involvement in these communities.

She came to my work station to ask me to come.

My boss said he would be there to represent Latinx. When I told him I registered, he replied, “sweet.”

But, what I realized in discussing this with him, was that people with disabilities probably don’t apply for jobs in warehouses. Because we’ve been conditioned to believe we can’t or shouldn’t do it.

That’s why we don’t have more representation in the warehouse. So while I want to know what plans the company has to accommodate people of different abilities, the reality is we need to determine what people with disabilities can do in the warehouse without impacting overall productivity.

But the next question is: am I really the best person to represent this issue? Do I have a choice?

When success means you think someone is trying to kill you

During one of my recent doctor visits, I think it was at the end of August, my physician asked how my strength/fitness personal training sessions were going.

I told him my coach Andrew at Apex Training put me through some demanding stuff so I was in agony pretty often.

My doctor laughed and said that if Andrew was doing his job well I should hate him.

Well, today was the closest I ever came to thinking he might kill me.

Now, if you are new here, please note I have diplegic cerebral palsy (which basically means that my brain and my lower body muscles don’t communicate well, which has led to some structural issues in my hips, legs, etc.

I work out three-times-a-week: Monday, Wednesday and Friday. Andrew has his full-time job, which is primarily an overnight shift, and I work at a warehouse Sunday through Wednesday, 10-hour-shifts.

Mondays are always interesting. I am 50% through my workweek and Andrew is usually sleep-deprived.

By some miracle, I work 6:30 am to 5 pm and head straight to the gym, and Andrew comes to the gym, often having not slept for almost 24 hours. But he shows up and so do I.

Tonight was a full body workout that felt twice as intense as my normal routine, but it felt amazing to push myself and even more amazing to succeed.

And because Andrew knows what I’m feeling — not only as a person working to better myself physically but also as someone still grieving the loss of her father— he forgave me for eating half a cake for my dad’s birthday.

But I also asked him if some people had stopped working out three times a week. He say yes, that several of his clients were sporadic. One changed work schedules and hadn’t committed to a new time. And two of us were regulars.

I get life being in the way. I know it’s hard. I know it’s expensive.

But I encourage you to stick to it.

I started at Apex in August 2021. Somehow despite a tight budget, I find the money.

And for all those people who can’t stick with it— I promise:

  • You will see mental and physical changes in yourself.
  • You will feel better.
  • Your body composition will change.
  • Your fortitude will grow.

And you should also see changes in your balance, stability and coordination. The things you can do, whether stamina on a long walk or moving furniture, will improve. Your confidence should increase.

And some days it will feel grueling. Some days you will be exhausted or achy and not want to do it. On those days, tell your trainer how you feel, but show up for the workout and do your best.

It feels like a new level of training

Andrew, my strength and fitness coach at Apex Training, has reached new levels of sadism.

I said that (partially) in jest because I love to see his face get that pensive squint when he’s digesting my regular updates of how my body feels and what my other professionals report about its function.

I feel like since my finger recovered from my burst tendon, I’ve reached new heights in stamina and my own strength. Last week, I hit a PR (personal record) with a 35-lb dumbbell row.

And things just feel like they are moving better. I’ve stumbled more than usual, but caught my balance 90 % of the time. I have less pain and I think I understand the pain better.

I’m working out three times a week and doing movements, with support Andrew has designed, like split leg squats that are torture (in a good way) and that I never thought I could do. I even work out after my ten-hour shifts at the Stitch Fix Bizzy Hizzy warehouse.

It’s hard, and exhausting, but I really think it helps get blood flow into all my aching parts and aids my sleep and ultimate recovery.

And today Andrew let me beat the big tire with a mace.

Speaking of Stitch Fix, the company has opted to move the Sunday to Wednesday 10-hour cohort. We get to choose which of the remaining shifts we want to transfer to and I’ll be putting in for the remaining 10-hour cohort, Wednesday to Saturday.

Frankly, the idea of working 5 days a week is horrifying. And I’m not thrilled with the prospect of losing my current shift.

But a warm gluten-free brownie sundae with Ben & Jerry’s cannoli ice cream softened the blow.

PS —

I put my underwear on backwards today. All day I kept wondering why my underpants felt so uncomfortable.

Things that make me happy… I must be old

So someone I know, who shall remain nameless unless she outs herself, tagged me in this Facebook post:

She invited me to consider it, which I would if it weren’t two hours every Friday for six weeks.

Speaking of falls, the teenager asked for some bathroom toiletry storage devices so I bought these:

The wall-mounted shelf is ridiculously sturdy. All came from Target.com.

I “treated” myself to some grip-circles to reduce the likelihood of falling. And they are pretty.

The sight of everything organized made me happy. As did dinner.

Dinner was Banza chickpea rotini with Hungryroot Alfredo sauce, fresh spinach, my homemade roasted tomatoes from the farm and chicken bruschetta burgers broken into “meatballs.”

My body feels wonderful… and other ridiculous tales

This week has been a roller coaster— but isn’t that just the way? People have been telling me I look like I’m loosing weight but I don’t know if that’s true.

The teenager took the dog for a rainy walk at Lafayette College the other day. She sent several very lovely photos.

I have many odds and ends making life out of the ordinary from little foster kitten Jean-Paul Sartre to my dear friend Nan moving from my neighborhood to a senior community.

Nancy in her new place

I ordered a kitchen scale off Target.com to measure Jean-Paul’s growth. He’s up to 1 lb 5 ounces. That was after a big breakfast of pate and kitten milk. He has a hearty appetite and screams for food like any baby does every 4 hours.

He is super inquisitive and smart. He carries tiny toys around in his mouth and plays with our dog, Bean. (Here’s a video.)

Meanwhile, guest fosters Coffee Bean & Pinto Bean are having fun in my room. Khloe and Louise do not like having babies around, but the cockatoo Nala sure does.

For some humor, let’s mention that the Teenager recently discovered that the Morningstar Farms breakfast Pattie’s I have been feeding her for almost two decades are vegetarian. She called her dad to find out if he had been in on this secret.

We never hid that they weren’t real sausages from her and she’s been able to read for a long time. The shock was real, and she’s still talking about it days later.

She didn’t have a chance to go grocery shopping for her nights in the kitchen. I suggested using my Hungryroot ancient grain gluten free pancake mix and the Morningstar sausages. It was a lovely, hearty breakfast-for-dinner. And like she had accused me of when she first discovered my fake breakfast meat, “It was all a lie.”

The teen also got her first fix from Stitch Fix and it came from the warehouse where I work, the Bizzy Hizzy. Click the photo to see her unbox.

Click to see what’s in the box

Speaking of work, I took voluntary time off on Monday and my stats were 100%, 88% and 98%. Andrew at Apex Training has been working be hard with exercises like split leg squats. My quads feel it. My balance is improving, my aches and pains feel like muscle fatigue and not deeper pain or joint issues. I have caught myself almost falling several times, and can sometimes feel my leg scissoring or even notice my left foot dragging behind before it trips me.

Even my chiropractor, Nicole Jensen of Back in Line Chiropractic and Wellness Center has made comments about how well my body is moving and how things are improving. Today she said my right side was locked up, when it’s usually my left, and that everything went back where it belonged easily.

When I hopped off the table, she told me to look at myself. “I have never seen you stand up with your feet so firmly planted and your poster straight,” she said.

And I felt it, I felt really solid.

So I don’t know if this is where I confess I tried the new Wingstop chicken sandwich. Most of my diet lately has been vegan. But last night I hadn’t had dinner, it was 8 pm and my body was devastated (in that good way). I could barely move after my shower. I considered skipping dinner.

But then I thought about my food intake for the day:

  • 4:30 am: Supercoffee dark roast with half and half
  • 5:30 am: Wawa coffee con lèche (it was a bribe to make myself go get gas)
  • 6:30 to 8:30 am: 20 oz water
  • 9 am: Kind Peanut Butter Breakfast bar and about 3 oz cranberry juice cocktail
  • 9:30 to 11:30 am: 20 oz water
  • 12:15 pm: quinoa with roast zucchini, white beans and my home canned roasted tomatoes, 6 oz Diet Pepsi
  • 2 to 5 pm: 20 oz water
  • 5:30 pm: sunflower seeds
  • 6 pm: 12 oz cucumber water

I thought a chicken sandwich would be good for protein and I saw the commercial for Wingstop’s new chicken sandwich on Hulu. It was good, not as big as I thought a sandwich from a chicken joint would be— but to be able to slather any sauce from their menu on our was really cool. I had a mango habanero sandwich and a side order of the honey hot rub boneless wings. It hit the spot.

My dream self care for cerebral palsy

Despite high heat and humidity and a general lazy attitude, I drag my ass to the gym three times a week.

I’m feeling good. Gaining strength. Still not losing weight but the stamina is improving and body parts seem to be gaining definition.

My fitness coach Andrew at Apex Training and my chiropractor and physical therapy guru Nicole Jensen at Back in Line Chiropractic and Wellness Center had a lovely conversation on social media that tickled my heart.

But then… a strange incident happened today that I take as a compliment. I was walking home from the gym when a stranger stopped me.

“I don’t mean to be all up in your business,” this stranger said to me on the street, “but you seem to not be limping. You used to really favor that one leg.”

Ummmmm… I know my town is small but I didn’t know it was that small.

That reminded me of a list I made the other day. I was thinking about what I would do to improve my fitness if I had more resources. And that should be considered self-care.

And I’m proud that I’ve made a financial and personal commitment to my training, even if I haven’t had the same discipline with my diet.

So here’s my unorthodox approach to maintaining my physical and mental health… if I had more resources.

In addition to my personal training and regular chiropractic care, I would pursue:

  • hot yoga. I’ve heard it is fantastic for stretching and relaxing the muscles.
  • Private dance lessons. My doctors and physical therapists keep telling me about stretching, and at one point I was doing these video tap-dance lessons at home. The foot movements in the tap steps are exactly what my doctors tell me to do. But more fun.
  • Massages. This is another one of those things they recommend for spastic muscles.
  • Facials. Cerebral palsy is a neurological condition so I need to make sure that I balance not only my physical health but my stress levels, too.
  • Professional Nail Care. Regular manicures would keep my confidence strong. And foot health is extremely important. And I need help trimming and maintaining my toe nails.
  • Chiropractic care. So, I go to the chiropractor every one to two weeks. It’s pretty much the one thing that provides relief to my achy joints and stiff muscles. But I would love to have a regular weekly appointment that I didn’t have to worry about payment.
  • Mental health therapy. I have an appointment with my therapist about every six weeks, but that’s another one I would like to be more frequent. Because of my mindset “slips,” my physical health will follow.
  • Competitive sports. If I had more resources, or perhaps had a job that didn’t demand so much physicality from my body, I would love to commit to a strength sport or to running a 5K with a coach to guide me.
  • Food. I love food shopping and I enjoy cooking. I just wish it were easier to afford the right kinds of food that nourish, maintain and heal the body.

Walking, workouts and waffles

I did not work a full ten hour day any day this week. But you know what? That’s okay.

My stats on Sunday were 105%, then 98 Monday, 88 yesterday and 94 today. What happened?

I don’t know. I was in pain Monday, stiff and uncomfortable yesterday and almost fell today but caught my balance.

And then Andrew at Apex put me through legs. We did split leg squats and he got to watch my hip do the funky angles it does. And I got to feel every fiber in my knees, quads and hamstrings.

Plus, I walked more than 8,000 steps today while my legs were stiff. Well after that workout they are not stiff but jelly.

The Teenager showed one of her dog walking clients some of the neighborhood dogs and their tricks— here is the video.

And then for the final event of the day we went to Waffle House as earlier this month we had heard that August 24 was National Waffle Day.

I had a scrumptious hash brown bowl with egg, cheese and jalapeños.

We split a peanut butter blueberry waffle.

These are the moments to treasure.