The celebratory and the reflective

My neighbor and the pet mama of my favorite little dog, Sobaka, had a birthday yesterday and her 700th Peleton ride. Another friend had a birthday Thursday and by happenstance I had that podiatrist appointment in her town and stopped to see her. She insisted I had to have done it on purpose, but I am terrible with birthdays. I know they are coming. I make plans days in advance but somehow, they slip by without me recognizing them.

The Teenager decided to take the bull by the horns and go shopping for our neighbor’s birthday and collected all of her favorites: Diet Coke in 20 ounce bottles, Cheez-Its and various flavors and sizes of M&M chocolates. It’s something the teenager learned from the maternal side of our family, because when my mother runs out of ideas for what to buy someone she either finds something completely ridiculous (like the whole chicken in a can that she bought my husband for Christmas one year) or stocks up on their everyday favorites. (The chicken in a can stemmed from my husband’s love of chocolate pudding in a can. Things escalated from there.) It’s like a care package, but more festive.

Now Sobaka turned eight this week so The Teenager also bought a corresponding gift bag for the dog. With extra tissue paper as Baki loves tissue paper, some treats and some little stuffed toys Baki will probably ignore because she’s too hoity toity to play.

My family has lived in this neighborhood for 20 years. Some of my neighbors have lived here their whole lives, like Little Dog’s Birthday Girl Mom and my neighbor to the right who cuts my lawn every time he cuts his. Most of my neighbors have been here as long as I have, and so we have adopted an informal mascot of the Flamingo and have the occasional girls night.

The Teenager is very excited to be old enough to attend. Last night was the Flamingo Birthday party. I was very very much looking forward to it, and very excited to share the slow progression of my service dog application with my neighbors. Very excited also to see what cocktails would be served as this particular host does not disappoint. (I ended up with a Jack Daniels canned cocktail of lemonade and honey whiskey, delicious.)

I suspected this was a recipe for disaster, but was so looking forward to relaxing with neighbors and laughing after a hard week. I had been up since 3 a.m., worked almost a full day with odd results on my metrics, went to the gym at 5 p.m. and inadvertently skipped dinner. The party started at 7, but I opted to wait for The Teenager to get home from work at 7:30 pm.

I’m skipping around chronology here, but my brain was doing this same jumps for much of the day, fatigue leaving me not quite here nor there. When I left for the gym at 4:40 — it’s about a 10 minute walk — I discovered a package from my stepmother’s business.

How honest should I be? This package struck fear into my heart. I didn’t want to open it. But I had to open it. I haven’t heard from anyone in my family for months and it seems like some people in it are getting harder to get a hold of, but I know rationally it’s a busy time of year and we’re all still recovering from the loss of our patriarch and trying to figure out how to fill that void. So of course I open the large but light box.

There is a beautiful card inside with a thoughtful inscription from my stepmother. She had a quilt made for me of my dad’s things. I cried. Because this week has been hard for me and I’ve been trying to hide just how hard and wishing I had my dad to listen and make me laugh. And not many people other than my mother and I would care, but Tuesday was my parents’ wedding anniversary.

I almost carried the bulky blanket with me to the gym because I didn’t want to put it down. Luckily, the Teenager got home in the knick of time to take it away from me.

We did a fantastic upper body workout at the gym, with some core exercises that used the legs which I very much needed. I had skipped Wednesday’s workout not knowing the source of the nerve pain. The workout pushed my arms and stretched out my extended person, who was very stiff.

Once I made it to the party, I sat by the fire pit in the yard (wearing the Teenager’s Stitch Fix mock leather jacket because I didn’t want to fight the kittens in my room to get my very stylish jean jacket) sipping my cocktail. I had rejected my first seat because the Adirondack chair made my back and hip very uncomfortable. All day my right lower back muscle had been straining oddly, and I thought maybe the cortisone shot in my foot had caused me to move my body differently.

We moved into the house for ring bologna, cheese, pretzels and chocolate-on-chocolate cake. If you are looking for me in the photo, I am second from the left with the Teenager beside me. My exhaustion kicked in high gear. The Teenager had to leave for work at 8:45 p.m., another overnight dog-owning client, so I thought it best to follow her home. Which, for the record, is across the street.

Now, I attend these parties barefoot as long as the weather allows. The Teenager and I leave the house, descend the front stairs, and reach the sidewalk. I think I took two steps on the old sidewalk and I lost my balance. Badly. Tried to regain my footing and couldn’t. I fell onto the Teenager who allowed me to ricochet off her without budging. Like a mighty tree.

And then she looked down and said, “You okay? You getting up or are you dead?”

If you don’t live with someone clumsy or someone with a condition like cerebral palsy prone to these kind of incidents, you might find that cold and cruel. It’s not. It’s practical and allows me to retain some dignity as I collect myself. My daughter knows I don’t need fuss, that I’ll let you know when it’s time to panic. It might be a little later than it should be, but eventually I’ll let you know. We might stop at the Chinese Buffet with a broken ankle, but eventually I’ll end up at Urgent Care when I need it.

I knew I stubbed my toes and my palms and my elbow was screaming, but I was praising whatever entity was watching over me that I had the heavy jacket to protect my arms. My glasses were still on my face. My face never hit the cement. We were good. I just hoped the jacket had survived.

“It will make it look cooler,” the Teenager said.

I crossed the street and took inventory. My elbow was bleeding and was very tender to the touch. My other scrapes were inconsequential. I checked my phone for clues as to what might be happening.

Holy shit.

Let me just start my saying that even with the explanations offered by Apple and Google, I don’t understand exactly how to analyze double support time, walking steadiness and walking asymmetry as recorded by my phone. I look for patterns. I know my phone does not consider me a fall risk, so I rule that algorithm-based tool out as useless for me.

I know, in general, that when my asymmetry reaches 10% or more I tend to fall. This shows two spikes, one at 53% on the walk to the gym, and another at 58% on the way to my neighbor’s house. As best I understand, this means one foot is walking faster than the other. Did the cortisone shot make it so I can’t feel my foot enough to use it? Is this foot unable to keep up with the other? This idea terrifies me.

I cleaned up as best I could and collapsed in bed struggling to get comfortable with my elbow bothering me and my back hurting worse. My brain was calculating and worrying and fighting the downward spiral.

That’s where I’m at. Except I’m cuddled on the couch in my dad blanket.

Work on the Cortisone Foot and Service Dog Update

The cats woke me up at 3 a.m. today and perhaps it was the cortisone shot but I could not for anything get back to sleep. But when I got up, the foot looked good except for some cute round bruises and I didn’t feel anything but stiff. By 4 a.m. I was drinking coffee and working on my NaNoWriMo word count for the day. And with all these photos I am taking of my feet I am sad and embarrassed that I haven’t had a pedicure since my friend left the business.

I got to work jittery from too much coffee and optimistic that I would slay the day. Until our 9:30 break, I was at 100%. No pain, though occasionally depending how I stood on my foot I could feel pressure or as if a bubble were on the bottom of my foot. By about 12:30 (which is after six-plus hours of standing) I had some ache in the toe but no nerve pain.

But my numbers had fallen to 89%.

You see, recovering from this means I know have to learn how to move my body in an efficient way again. And since I’m exhausted and trying to reclaim my performance, the combination is leading to some jerky movements that are stressing my back.

Meanwhile, my neurologist/physiatrist’s office called. They wanted to move my Friday November 11 appointment to Wednesday November 9. I asked if they wanted the same time. The nurse asked me if I wanted the same time. I told her that it didn’t matter I just needed to inform my employer.

Turns out that the doctor was not scheduled to be in the office that day and planned to come in just to see me. I told the nurse that wasn’t necessary as I had seen my podiatrist and now had a foot full of cortisone which was providing a perfectly adequate temporary solution. She insisted I needed to be seen. So I’m going in at 3:30 after work.

I forgot I had a chiropractor appointment at 3:45 that day so I moved that to Monday, November 14 because I’m not about to call the neurologist back and make her change the time.

They offered early dismissal at work today, so when I went into the system to cancel my time off for November 11, I added paid time to the day I took off yesterday and took the early out. I wanted a nap.

Fosters: Jean-Paul Sartre (almost 4 months), Giorgio (almost six months), and Tripod Louise (five years)

But when I got home…

These guys had other plans. (See photo of cats cuddling on me.) At one point, J-P didn’t realize the hand petting him was mine and he freaked out and attacked my arm as if he were defending my life. Until Louise snarled at him.

And in other news, I received an email from Susquehanna Service Dogs:

“Your application has been reviewed by the Partner Selection Committee, and we have added you to the list for a preliminary interview…”

Another form to have a medical professional fill out, this one attesting to my psychological health.

“… Our preliminary interviews provide an opportunity for you to ask questions as well as a chance for us to get to know you better. It will include two staff members, a volunteer and a demonstration dog that will be used to show you the ways in which an assistance dog can assist in mitigating a person’s disability. The interview will be held at our facility.”

So that’s exciting.

More on the service dog process here.

The Stabby Toe and the Challenging Gait

I have a neurology physiatrist appointment next Friday and I recommended my doctor to my podiatrist, who has a relative with MS.

But this blog post will be about my podiatrist visit.

I mentioned I felt kind of silly going to the doctor for an achy toe when I knew my work life had changed and my hip was giving me trouble. But three years ago I had a blister in this toe that got infected and I have a tendency to ignore things. And I’m trying very hard not to do that.

My doctor always makes me feel like a kid, in a good way. We had a mutual friend who has since passed away and that mutual friend always said that if he had a daughter he would want it to be me. Maybe that’s why this podiatrist always makes me feel like I’m part of the family. Or maybe he’s just a good guy.

I forget that I’m wearing a mask that reads “Fragile: Handle With Care.” And he’s the only person who has ever commented on it.

“So you’re fragile?” he asks.

“I am fragile,” I admit. “And I try to have a sense of humor.”

He pats my shoulder.

And the next thing he does is hand me a strange orange ball with peach fuzz.

“You can have one of these.”

He tells me a story, about a house for sale on Route 611 with what appeared to be orange trees. He stopped and took some fruit, cut it open, planted the seeds, and put what grew in his yard. He thought maybe they were Bergamot oranges, but soon found a real Bergamot and found out that wasn’t it.

It’s a flying dragon bitter orange. And he likes to give them to patients for their aromatic value.

He still has a private practice, so he can do things like pass out oranges.

I explain what’s been going on with my foot, and that my specialist can’t see me until April or maybe next week. He asks me about my other doctor, because he hasn’t heard of her. I end up writing down her name (and he asks me why I carry so many pens and I answer “because I like colors.”

Now, I 100% expected him to tell me that my toes rub and cause inflammation and pain because I walk funny. Which he did. And he reminded me to keep my big toe and my second toe separated. Which I don’t. But he immediately decided what I described was nerve pain and wondered if some of it might be sciatic or stem from a neuroma or both. And a later Google search informed me that this type of pinched nerve/nerve tumor can be caused by the pressure on the foot caused by wearing high heels, or in my case, natural toe walking.

I was skeptical before he did his exam, but I know he knows his stuff so I kept my mouth shut and listened. When you manipulate the foot in certain ways, you can make the neuroma “pop” in a way that the doctor can feel and/or hear. He thought the neurima would be over by my fourth and pinky toe. And he did feel a little something there. But when he flexed my foot to check for a neuroma below my second and third toe, my foot audibly and repeatedly crackled.

This surprised him.

He explained my options: orthotics (which I would like to talk to the other doctor before we change my walk), cortisone shots, or surgery.

I let him give me cortisone shots. I don’t normally like anything that numbs pain because I believe in the value of pain as a communication signal. But, if the shots work, it would give us a chance to see if the neuromas contribute to my body’s way of compensating for my, as the podiatrist put it, “challenging gait.”

He prepped my foot with great care. The needle was long but super fine.

He inserted it in where he expected a small neuroma to be. When the needle struck the neuroma, it pinched and burned. Not for very long, but very distinct.

He noticed me flinch.

“Did that hurt?” he asked.

“It pinched, and if a starburst had a feeling that would be it.”

He nodded. “You definitely have a neuroma.”

The needle continued its work.

“That feels like you stuck that needle right out the other end of my foot,” I said.

And it reminded me of how I described the symptom: It felt like someone stabbed a knife through my toe to the floor.

He did the second location. No pinching/burning feeling. Just three very small little starbursts.

So we shall see.

The Toe Update

I asked for a table on the left today, because my body was so stiff, my hip sore and my toe felt like someone forced a knife through it and used it to anchor me to the warehouse floor. It happened about every hour, when the clock struck 20-something for some reason and lasted about four minutes as the pain slipped up the inside of my calf and hit my knee.

By 9 a.m., I had had enough. Interestingly, whereas yesterday I did 85%, today I believe I did 95%, and at 9 a.m. I was still about 97%. The left table had alleviated most of the stress on my hip.

I called the neurological physiatrist, and they could see me in April. The person who answered the phone would leave a message for the doctor, and her nurse would give me a call. Now, for the record, I missed that call which was around 4:45 p.m. because I was in an appointment with my chiropractor. But it looks like they may see me next week.

I also called my podiatrist, whose office manager scheduled me for 2:15 p.m. Friday and asked if she had a cancellation if I could come tomorrow. I said yes.

Around this time, a form went around via email asking who might be interested in a day off tomorrow. So I filled out the form.

I rushed home to take off my shoes and socks, and the toe looked fine. Well, red and a little swollen but not as bad as it felt. When I poked my toe and bent them all, my sore toe throbbed for several minutes afterward. So I elevated it.

I could feel the stiffness in my body and the phone kept registering asymmetry. I was very much looking forward to my visit with Nicole Jensen of Back in Line Chiropractic and Wellness Center. Even lying on the table, it felt like my right hip was higher than the other. And when she put her hand against it, she verified that it was. And she pushed on it, like her palm was kneading bread. But in one motion, not back and forth. Okay, maybe the analogy is no good.

We both agreed that the toe thing needed to be sorted out, and that skipping tonight’s workout with Andrew might be best. Nicole manipulated my toe gently, and asked what hurt, and since nothing really bothered me at the angles she was working, she started adjusting my toes. They made some funky noises.

I also feel two inches taller and as relaxed as I can get when she gets done with me…

The predominant theory of what is happening: (according to Andrew, myself and Nicole) I had some intense turning inward of my left leg this week, which may be in part because of a 5-day-a-week work schedule when I’m used to a 4-day schedule in two different jobs versus just one now. Add this to the fact that my table is on the right, forcing me to constantly rely on my right side to move shipments, stand on tip toe to grab boxes and twist to get clothes. When my left leg twists, my right side compensates. And all of this might have caused me to stand forward on my toes more. The added pressure and their curvature made them rub and irritated them and maybe some nerve pain is resulting. And maybe a blister. Or not. Who knows?

But a year ago, I would have horrible pain and difficulty moving. Around the beginning of the year, I started falling. That makes me want to investigate and not take the chance that this toe could start the downward spiral all over again.

Unlike that magic splinter I got. But that’s an old story. Read it here.

Let’s hope the podiatrist has some ideas for prevention and relief.

Today was hard— my legs are twisting up

I know I haven’t written in a while, in part because I felt redundant talking about my business endeavors at Parisian Phoenix. The Easton Book Festival was a lot of fun.

I took yesterday off, pretty much just for fun, and I ended up perusing the shows on Motor Trend’s streaming channel, heading to the gym and watching the neighborhood kids Trick-or-Treat.

When I got to Apex at 2 p.m. to meet up with my coach Andrew, he noticed my leg was twisting in. It had been, at that point, one week since my last chiropractor visit. I have my next visit tomorrow. I’m trying to stretch from every seven days to every ten.

So after a rugged leg day with Andrew, I went home and checked the measurements on my phone for my walking asymmetry. I haven’t had much recorded in the last few weeks.

But Andrew was right… The asymmetry measured 4%. I’m not sure what that means, but it does coincide with my legs malfunctioning.

I woke up with sore quads from leg day. And my whole work day was a struggle because my hip was out-of-whack and my legs felt heavy. And my middle toe on my right foot kept burning.

I finished the day at 85% and it was brutal. It’s difficult for me to straighten up. On the way hope, a pain filled my toes so badly it up my leg as my foot began to spasm. Felt like some sort of nerve pain.

The phone registered 9% asymmetry and I keep getting pains down my right leg that make it hard to stand.

I took off my sock and my toe closest to my big toe is red, maybe a pinch swollen, and very tender. The flesh almost felt like it might be developing a blister, but no indication that fluid is gathering and the red pattern seems to be jagged versus the round shape caused when something rubs. The dog did stomp on it yesterday with all her weight from a leap so maybe she damaged something inside.

I washed it well and soaked it in Epsom salt but no change.

My whole body is a mess.

So much to do and I want to binge watch Top Gear America

Today was my first Monday day shift at the Stitch Fix Bizzy Hizzy. I worked second shift, then 10-hour shifts and now I have moved to Monday to Friday 6:30 a.m. to 3 p.m. After almost a year of 10-hours, 8-hours feels so short. And it feels like we’re always on break. And transitioning from a 15-minute break to a ten minute is disorienting to say the least.

After work yesterday, I went to the chiropractor, the amazing and dedicated Nicole Jensen of Back in Line Chiropractic and Wellness Center. I feel like she’s learned my body to the extent that it’s personal to her, the challenge of keeping my misconstructed extremities functioning. I think she has this zone she gets into, where she’s plotting a strategy and it’s her against me, well, the physical form of me.

I felt my body start to compensate for my hip falling out of place yesterday. It didn’t hurt. It didn’t even feel wrong, but I noticed elements of my posture changing. A little more protest from the right side, leaning that way more heavily, occasional back pain.

I don’t have the best understanding of mechanics or physics, so my brain is slowly clicking when it comes to considering my femoral anteversion, which means the head of my femurs sit in my hip sockets kinda facing the wrong way making my legs kinda face backwards I guess, makes my bones put pressure on the socket at the wrong angle pushing it out of place? Maybe?

And me, either being a trooper or an idiot, did a 8-hour work shift on a Monday, where I performed at 95%, went to the chiropractor and then visited Andrew, my also amazing and dedicated coach at Apex Training. I think I scowled at him more than usual. The work out was brutal and ended with… what did he call them… offset dumbbell rows? Imagine kneeling on the bench and doing a dumbbell row with a 20 or 25 lb weight while holding the other leg up in the air.

Meanwhile, I reached out to David from The Cerebral Palsy and Fitness Podcast and asked if my discovery and fitness journey would be something of interest for his show, and he said yes. I also updated Andrew Gurza of Disability After Dark Podcast about my upcoming “Sex in the Text” panel at the Easton Book Festival. We had recorded an episode in June, but my parakeet (may he rest in peace, that might be what reminded me of the interview) made so much noise, we hope to rerecord an interview in November.

That’s fine with me, as so much has happened since June: my service dog application, new physical struggles and this “Sex in the Text” program for Easton Book Festival among them. I’m lagging behind on my preparations, which means I’ve been scanning my Fashion and Fiends novels for sex and jotting notes about themes, goals and techniques.

But then, my new computer Midnight came with a free trial of Apple TV, which made it ridiculously easy to subscribe to a free trial of Motor Trend‘s streaming channel. Why on God’s green Earth would I as someone with no understanding of physics or mechanics need Motor Trend? Three words: Top Gear America. It’s the only way to see Top Gear America featuring Dax Shepard and cars.

I don’t think it’s readily apparent from this blog, but I adore cars. If I had any sort of skill with tinkering, I would be more hands-on, but I am useless. But, I can still drive and appreciate cars. And I certainly admire and appreciate Dax Shepard from more than one angle. I just want to watch every available episode (there are two seasons available) and forget about the rest of the universe.

Which right now is tempting… because the episode on the Lamborghini, Bentley and Porsche SUVs had me laughing out loud. I started the hot rod episode but pried myself away for what ended up being a very trouble night of sleep. Bad dreams and body pain, to the point where I was up for an hour from midnight to 1 a.m., debating whether to pull the laptop into bed. I, instead, smeared my back and hips with CBD arthritis cream and drifted away into another uneasy three hours of sleep.

So much to do before the book festival, but the cars… and the Dax… call to me.

End of week update: the stats, the hip, the fitness, the coffee

Yesterday might summarize recent trends in my life. I know I posted a blog post before I left for my last 10-hour shift at the Stitch Fix Bizzy Hizzy. Monday I start a more traditional Monday through Friday shift. I’ll get home earlier, but I lose a day off. And I’m used to having Thursday and Friday off which is nice for running errands, making appointments with doctors and professionals, and for connecting with people regarding my business, Parisian Phoenix Publishing.

I still had my Friday nights and Saturdays, even if I had to head to bed earlier than most people want to on Saturday night. Many well-meaning friends and everyday people have made comments like “well that will be nice,” “no more long days” and “you’ll have your weekends back.”

But I’ll no longer have that feeling of “getting work over with” and I’m no longer part of a unique cohort. We worked alone in the building on Sundays, and that was peaceful, and for two hours every afternoon, we more or less finished the work the traditional day shift left behind.

So, I arrived at work yesterday morning, basking in the bliss of using my new Ninja DualBrew correctly. (I still have to buy coffee filters, but I love the ease of use, the temperature of the coffee, the different settings for the strength of coffee, AND how I can select just the right amount of coffee for me. The reservoir is cool for me, because it removes one more decision or step to screw up. I have been known to double fill the coffee pot when I forgot I already did it.)

On Sunday, I normally perform between 100 and 105 percent of daily metrics. I may have once hit 108. This Sunday, I hit 97. This annoyed me. It was the first sign that something was off. On Monday, I kept struggling. I didn’t really notice anything physically wrong but I did note that my toes on my right foot were really burning by the end of the day. Andrew, my wonderful coach at Apex Training, had asked if we could move Monday night’s session to Tuesday. I said sure.

I busted my butt for the rest of the day and hit at least 99 percent, but I may have hit 100. That’s when I noticed some residual issues in my body. Just that nagging sense that something was not right. I attributed it to working hard and not having my regular Friday appointment with Nicole Jensen at Back in Line Chiropractic and Wellness Center. She had a class on Friday, so she had moved clients.

Tuesday I could feel my right hip turned wrong. It was a weird feeling, like my leg was facing the wrong way. In reality, it might not work that way but that’s how it felt. And my right hip was very tender to the touch. I still didn’t have any pain, but movement was getting harder. So I tried to stretch my hips during the day, but by the end of the day, I had only hit 90 percent and it had been hard. I asked Andrew if we could move the Tuesday session to Wednesday, worried that this was more of a structural issue than a muscular one and working out could push me from discomfort and mobility issues to actual pain.

And a year ago, I was in pain every day and I don’t want to go back to that. Ever. I was flipping through my journal and last year at this time I was starting every journal entry with a number from the pain scale. That broke my heart to see.

I took a muscle relaxer, stretched some more and went to bed after a nice meal. Wednesday morning I didn’t move any better, but I was no longer stiff. But by the time I got to work, my gut said this hip was really struggling to do its job. And I was about to stand on it for ten hours.

At 6 a.m., I called Nicole’s office and left a message. At 9:15, they called me back and scheduled me for 5:15 p.m. I knew that if I waited until my regular Friday appointment and forced that hip to work out, it would lead to pain and harder-to-fix problems.

I emailed my boss as I couldn’t find him and it turned out that he had called out sick. I arranged to leave at 4:30. By my calculations, I hit 87 percent. My right side just didn’t have the mobility it should. The drive to the chiropractor took about 20-25 minutes, and when I got out of the car, it felt like my right leg had fused and stretching it into a step felt ridiculously hard. But still no pain.

This is when cerebral palsy plays tricks on the brain. As I’m (what feels like) dragging my leg into the chiropractor, I started wondering, “maybe I just need to stretch,” “maybe there’s nothing really wrong and I’m just lazy and my muscles stiffened.” But then I remembered the burning toes. Something was pushing my posture forward and my body was fighting it. But I still had my doubts.

Now, no one has ever gaslighted me in the medical community, except maybe my first primary care physician who referred me to the wrong specialist in the days when I had an HMO. I now always have plans where I chose my physicians myself.

When Nicole entered the room, I explained what’s going on and she quickly confirms that yes, my hip was crooked. Like really crooked. She even made a hand gesture. And that my body had done other weird things to compensate. It all moved beautifully when she manhandled it. She pondered what caused this when we had just considered potentially spacing out my weekly appointments to every other week. Did I overdo it at work? Was it missing the adjustment Friday? Was it skipping my workout?

When I got up from the table, my feet did, as Nicole put it, sexy normal feet posture. My balance has improved dramatically in the last few months, and my strength has returned, and my stamina is definitely increasing.

I stepped out of the chiropractor and took some long, beautiful, easy strides.

It. Felt. Good.

No, it felt GREAT.

So, I don’t know how Nicole would feel about this, but I went to the gym. And let me tell you– Andrew delivered a brutal work out. We did split leg squats in sets of 20 reps each leg with weights. He said I was moving better than I ever had before and I said, yes, because Nicole had straightened my body and stretched out my lower extremities. Like, literally, just did. We did military presses with 25 lb dumbbells. We did core. We did upper body exercises like IYTs. And shoulder taps and mountain climbers and rope slams.

And then, before a shower or dinner, and it’s 7:30 p.m. now, I had to deal with the hellions in my room. I had to swap out and refill three litter boxes for the six cats in my room. I had to vaccuum. I didn’t clean the bird cages, but I did feed and water everyone. And I’m still wondering how the heck those four kittens have trashed my closet without opening the door.

I wanted to blog all this last night after I ate my omelet of cheddar, peppers, homemade farm-procured, roasted tomatoes. But I was exhausted.

I like my coffee pot

That’s all I got for ya.

It’s 5:15 a.m., on my final Wednesday of my 10-hour Sunday to Wednesday shifts at the Stitch Fix Bizzy Hizzy. I loved these shifts. I love having three days off. But as of Monday, I will be Monday to Friday, “normal” 8-hour shifts, 6:30 a.m. to 3 p.m. More change.

My chiropractor had a class last week so I missed my regular adjustment and now I can feel my hip moving inward. I never expected that this journey to improve my fitness and awareness of how my body works (if you aren’t a regular I have diplegic spastic cerebral palsy) would lead to this strange zeroing in… I am starting to pinpoint these subtle differences, but I am still learning how to fix them.

I bailed on my strength coach Andrew last night. He had asked to move my Monday session to Tuesday and by Tuesday (yesterday), I just didn’t have it in me. I didn’t sleep well. My stress was through the roof. I overdid it Monday (trying to prove myself to no one but me). And to top it all off, my diet had been all processed foods. When I felt that hip turning inward, I knew my body needed me to stop.

So here we are, the final Wednesday. The third day of my life with my new Ninja DualBrew coffee pot. Unboxing video here.

The Teenager got her second fix, and she loved it. She was aghast to learn that a sweatshirt could cost $78 at full retail price, but I think this experience will teach her the difference between the workmanship of different brands. She asked me not to record her trying things on, but I wish she had because the fit and look of this fix was exponentially better than the first. Unboxing video here.

I have to leave for work in a moment, but let me say I am on my second cup of Green Mountain Dark Magic coffee, courtesy of one of the Teenager’s clients, and I must say it’s the only coffee to keep pace with my Supercoffee.

The Ninja DualBrew has been great so far. I like the brewing options, the heat and strength of the coffee, but I am making small errors in operating it. But I haven’t experienced any of the problems listed in the reviews. My four a.m. brain likes the K-cup option, and my weekend self loves the option to brew a pot. I have not tried iced coffee yet.

Do I have the strength to be the lone voice of a group?

Last fall, at work, before we even suspected they were eliminating our shift at the warehouse, our company launched what they called communities to represent and discuss certain voices across our network.

Black Lives Matter, Latinx and women were three of the communities— as was a community for people with disabilities.

I joined the community for employees with disabilities, but at the launch Zoom meeting I noticed everyone either worked in the office or worked from home. And no one represented the warehouses, but me.

The community had meetings during my work shifts, and the emails seemed focused on neurological and psychological diagnoses. And while those conditions are important and probably impact more of our population in the company than physical disabilities.

I had a brief conversation about this with my boss today as I had mentioned this flaw in the communities when one of my colleagues asked the CEO why warehouse associates across the network couldn’t have more on-the-clock time to contribute to the communities.

This same fellow employee— a member of the Black Lives Matter group— launched a series of Lunch and Learns to promote more involvement in these communities.

She came to my work station to ask me to come.

My boss said he would be there to represent Latinx. When I told him I registered, he replied, “sweet.”

But, what I realized in discussing this with him, was that people with disabilities probably don’t apply for jobs in warehouses. Because we’ve been conditioned to believe we can’t or shouldn’t do it.

That’s why we don’t have more representation in the warehouse. So while I want to know what plans the company has to accommodate people of different abilities, the reality is we need to determine what people with disabilities can do in the warehouse without impacting overall productivity.

But the next question is: am I really the best person to represent this issue? Do I have a choice?

When success means you think someone is trying to kill you

During one of my recent doctor visits, I think it was at the end of August, my physician asked how my strength/fitness personal training sessions were going.

I told him my coach Andrew at Apex Training put me through some demanding stuff so I was in agony pretty often.

My doctor laughed and said that if Andrew was doing his job well I should hate him.

Well, today was the closest I ever came to thinking he might kill me.

Now, if you are new here, please note I have diplegic cerebral palsy (which basically means that my brain and my lower body muscles don’t communicate well, which has led to some structural issues in my hips, legs, etc.

I work out three-times-a-week: Monday, Wednesday and Friday. Andrew has his full-time job, which is primarily an overnight shift, and I work at a warehouse Sunday through Wednesday, 10-hour-shifts.

Mondays are always interesting. I am 50% through my workweek and Andrew is usually sleep-deprived.

By some miracle, I work 6:30 am to 5 pm and head straight to the gym, and Andrew comes to the gym, often having not slept for almost 24 hours. But he shows up and so do I.

Tonight was a full body workout that felt twice as intense as my normal routine, but it felt amazing to push myself and even more amazing to succeed.

And because Andrew knows what I’m feeling — not only as a person working to better myself physically but also as someone still grieving the loss of her father— he forgave me for eating half a cake for my dad’s birthday.

But I also asked him if some people had stopped working out three times a week. He say yes, that several of his clients were sporadic. One changed work schedules and hadn’t committed to a new time. And two of us were regulars.

I get life being in the way. I know it’s hard. I know it’s expensive.

But I encourage you to stick to it.

I started at Apex in August 2021. Somehow despite a tight budget, I find the money.

And for all those people who can’t stick with it— I promise:

  • You will see mental and physical changes in yourself.
  • You will feel better.
  • Your body composition will change.
  • Your fortitude will grow.

And you should also see changes in your balance, stability and coordination. The things you can do, whether stamina on a long walk or moving furniture, will improve. Your confidence should increase.

And some days it will feel grueling. Some days you will be exhausted or achy and not want to do it. On those days, tell your trainer how you feel, but show up for the workout and do your best.