Tag cerebral palsy

Spider-Man and Matcha Pie

Angel Ackerman 1 Comment

I have a lot of little things to say that problem don’t belong together but today is the Lehigh Valley Book Festival at Bethlehem Area Public Library and I’m excited, a tad nervous and a bit super-focused and scatter-brained at the same time.

Parisian Phoenix Publishing has participated in events before but we have scaled up with our efforts and this event today.

So this post will cover:

  • Spider-Man: No Way Home
  • Health and Fitness
  • Pie
  • Cats

I think that’s about right.

So the teenager and I finally came to the current end of the Marvel Comics Universe movies with Spider-Man: No Way Home. Watching them sequentially, and for me, many for the first time, actually made a lot more sense than when I saw some of them the first time.

I got a strange déjà vu that I had seen some of these villains before, but at the same time I was confused because the memory was vague and distant.

So let’s just say, trying not to spoil it for others like me that are woefully behind in their pip culture, that this film incorporates some older films that will be familiar to Generation X.

The primary theme of this movie, in my opinion, is time travel. The actual plot is a tad weak and melodramatic but the homage made to the previous generation of Marvel movies, and the humor employed in this movie, make it worth it.

My favorite Spider-Man is Toby Maguire. I got to see him again. And that made my heart happy. (Toby is also the Spider-Man adored and referenced by supermodel Adelaide Pitney in my chick lit/horror fiction novel, Manipulations, the first in the Fashion and Fiends series.

I had a very good visit with my chiropractor Nicole Jensen of Back in Line. She’s impressed with my progress and got things to pop and move (my right ankle that I broke more than five years ago) that haven’t popped and moved in a long time.

My Later, Andrew at Apex Training worked out every muscle he didn’t the day before (okay that’s an exaggeration) and the teenager set a new personal record in deadlifting: 225 lbs.

Finally, I get to the part I’ve been waiting for: PIE! If only I weren’t trying to be so health conscious… Because I have been visiting the amazing pie ladies Anne and Lisa at Pie+Tart for three(?) years now and their pies (and flat white coffees) have nurtured my soul through some difficult times— and a very very toxically difficult boss.

I receive their weekly email and saw their “freezer section” of leftover discounted pies included a steak and Guinness pie and a matcha custard pie. A meal inspired by two of my favorite drinks.

I was so beyond excited to eat these pies I was vibrating at “the pie hole” which is what they call their window/doorway. It has allowed them to stay in business safely during Covid because how would we survive sans pie.

I can improvise plenty of solutions for lack of toilet paper but I can’t make pie like this— not even with my Pennsylvania Dutch family connections.

I couldn’t even wait for the matcha custard to thaw. I sawed at it with a knife, broke it in pieces with my hands and microwaved a slice for 30 seconds. It was delectable.

And the steak and Guinness pie? So rich and full of meaty goodness I didn’t even have a chance to take a photo.

Oh how I love my pie friends.

And finally the updates regarding some of the cats we are fostering through Feline Urban Rescue and Rehab, Mars has taught Khloe to play and Minerva is becoming much more social. As is Louise.

Mars and Khloe
Mars and Khloe
Minerva

A visit to the podiatrist

Angel Ackerman Leave a comment

My blog post yesterday received a lot of extra views and shares thanks to my discussion of the fabulousness of Nicolosi’s Pizza on Sullivan Trail.

It makes me wish I would have spent a little more time developing the back story so newcomers would understand some of my rambling at the end.

So here’s the latest installment.

Today I worked with Nan, my friend, blind poet and essayist. We did errands— the bank, retrieving laundry— and prepared some new submissions of Nancy’s poetry. We also checked out her most recent publication, “Brewing Chai” in *82 Review.

I made the decision, as founder and publisher of Parisian Phoenix Publishing, to purchase a hard copy of the magazine. One publisher supporting another.

Very exciting.

I also have two friends scheduled to get packages from the publishing company today, if the post office tracking info is accurate.

Very exciting.

And when I took Nancy home, I was able to head to the gym, Apex Training, to work with my trainer, Andrew, who along his prowess in powerlifting, does an excellent job observing my movements and targeting the muscles we think can make the most impact based on information from all the specialists I’ve seen.

And Andrew kicks my butt.

He makes me sweat. He challenges my range of motion. He also exercises the parts of me that work.

Very exciting.

Both of my trainers at Apex have been amazing.

I rushed home to shower and grab lunch as I had to get the dog into the car, pick up the teenager from school and go to the podiatrist. The dog had to go to the vet at the same I had to go to my doctor only a couple miles apart.

(One of the foster cats has worms, so every mammal in the house needs dewormer.)

This all begs the question: Why was I going to the podiatrist?

Well, I’ve known my podiatrist for 20 years. We connected in my journalist days through a mutual friend. The mutual friend nominated him for a small feature in our newspaper.

The mutual friend has passed away, and when the teenager needed a podiatrist and I couldn’t get timely care for her through my networks, this podiatrist friend of my deceased friend got her in expediently AND gave her amazing care.

I’ve been to the podiatrist once or twice myself— and I thought his brain would be a good one to pick for more information on my cerebral palsy. I made the appointment when I was still struggling with my splinter and dealing with my blistering toes.

We had a great conversation as he checked my feet and dealt with all the dead skin from blistering, and he asked me all sorts of questions about what other specialists had said. So I told him.

He’s very curious what the neuro-muscular physiatrist will have to say, and in the meantime he suggested physical therapy stretches twice a day.

And he wanted to know what the orthopedist had to say— if he could do anything. I said no that the only real option was the surgery I should have had when I was twelve.

To which he replied rather passionately that I should have had surgery when I was twelve.

At first he was angry I didn’t have more interventions as a child, but I explained how my mom was told I would die so she named me Angel, and then when I lived they told her I would never walk or talk, and then they said I had severe brain damage.

“Boy did they get that wrong,” he said.

“So that’s why my mom stopped taking me to doctors,” I explained. “Because they only gave her bad news and they were always wrong.”

“That makes sense,” he said.

(And he asked if I got my splinter out myself and I said first I tried a raisin, which fixed my hip pain, but it was my cockatoo that really got it out. And he said, “Oh this is going to be a good story.”)

This doctor has his own private practice and has been a doctor for a long time. I love that he decides how long he can take with each patient and he can be jovial and a little grouchy at the same time. Not nasty grouchy, just like-a-dad grouchy. It’s like he’s a person underneath that doctor coat.

The teenager made dinner: the chicken breast I had leftover from our last Hungryroot box, youba noodles and vegetables. And then we watched the latest Spider-Man movie which featured all the Spider-Mans.

Which, for the record, Adelaide Pitney, the supermodel from my Fashion and Fiends series, loved the Toby Maguire Spider-Man.

And since I started this blog post, both of the packages slated for my friends have arrived. My traveling companion M has received his copy of Recovery, as the book is dedicated to him and to his role in awakening my love of Africa and post-colonial critical theory.

The other package was to my therapist friend in Georgia who loves to have nice things to ponder.

Very exciting.

A new pizza adventure At Nicolosi’s and a post-splinter update

Angel Ackerman 1 Comment

First, let me start this blog entry at the end— with the pizza the teenager and I shared at Nicolosi’s.

Second, I will discuss my performance at the warehouse this week and how my body has felt now that the splinter-wound has finally healed.

So come for the food and stay for the disability talk if you desire.

It’s been at least two weeks since Nicolosi’s in Forks Township started advertising “pizza flights” on Facebook.

Now, as the teenager’s father will confirm, I love trying pizza. He and I once did a pizza tour where I ranked every pizza on a long list of qualities. This was probably 25 years ago.

When Nicolosi’s started advertising these flights— four of their specialty pizzas combined in one square pie for $20– I knew I had to try one. That’s two generous pieces of each variety you choose.

The teenager let me choose so I tried to pick flavors that would appeal to her, too: (Clockwise from top left) Eggplant parmigiana, pierogie pizza without the onions, chicken parmigiana and chicken-bacon-ranch.

I was not prepared for the Halloween decor, like the zombie pizza man, horror movie posters and plush toys from The Nightmare Before Christmas. I was prepared however for the deliciousness.

My favorite (which surprised me) was the eggplant. The staff was super friendly. The place was simple but also strongly quirky. And all of these things make me very excited to go back.

Next time, I’m ordering the garlic knots in vodka sauce and the cannoli dessert pizza.

And now an update on the random things:

Nala is doing well.
The teenager bought me the obscenely large mug from Staples. Click the photo to read about the original attraction to the mug.
I had cookies and milk at work.

Now the more serious stuff…

If you’re new here… I am in my mid-40s trying to learn how to age well with my cerebral palsy which impacts the control and structure of my legs.

As you may recall if you read my previous blog post, I had a great workout Saturday and spent the day showing my college roommate around downtown Easton.

On Sunday I woke up and my wound in the ball of my foot (from my splinter) had healed. I performed at 95% in Freestyle at work that day primarily because my printer and my computer wouldn’t cooperate and I lost 20 minutes trying to fix it.

Monday I was achy but managed to work my full 10-hour shift AND hit 100%.

But I was hurting a bit. Primarily my back. So I changed shoes and went to work Tuesday only to have my spine and both my legs start burning intensely. I still managed to hit 97%.

And I had two small falls at home yesterday.

I woke up hurting in my spine and hip. And anxiety plagued me wondering what the day would bring. I felt much better— but my right hip is uncomfortable. Fairly badly uncomfortable. But I finished my 10-hour shift and by my calculations I had 95%.

Tomorrow I visit my podiatrist. We’ll see what input he has.

A new day at the gym

Angel Ackerman Leave a comment

Today was my 69th session at Apex Training. The teenager and I did our first workout with Andrew, as Dan is taking some time with his family.

Now I don’t like change (who does?), but once I get comfortable with it, I can embrace it.

So the teenager and I met with Greg and Andrew at the gym last week and discussed our goals and got to know each other a little better.

And today we had our first session. I have to say Andrew did a great job ascertaining how my body moved and giving me some low impact exercises that would target my problem muscles.

Then he worked with the teenager on her powerlifting form.

And I was reminded that while I was very comfortable and enthusiastic with Dan, that the shift to working with Andrew is offering some fresh perspective and new ideas. That pushes me out of some potential ruts I may have created in my fitness routines.

Now excuse me, I’d like to go shower.

Rocking the Beast

Angel Ackerman Leave a comment

Today started as an average day in the Bizzy Hizzy. This was welcome in my world as we changed the clocks last night— so as far as my body was concerned it was 3:45 a.m. when my morning alarm sounded.

Yesterday they didn’t open the warehouse because of the predictions of the sloppy winter storm.

I performed as expected in Freestyle, meeting the pace they like us to keep. We ran out of work, so I went out to pick. Now, picking is the act of running through the warehouse gathering clothes. A normal cart for picking fixes holds 40 items. A direct buy cart holds 80. I picked my batch is 41 minutes. That’s pretty good.

But somehow I also managed to ship 515 items— when the goal for a 10 hour day is 500, and I left the department for 45 minutes.

I also learned from the supervisor that I have successfully made it onto the safety team.

The teenager said I could have a cupcake to celebrate.

My lead at work has started calling me a beast— basically because for two days in a row I think I’ve hit 110% of the daily metrics. But he also mentioned it when I lifted a heavy box (probably 35 or 40 lbs) from the floor and carried it to my work station.

At the moment it happened, the phrase irked me and I wanted to take some time and think about why.

I know he meant it as a compliment, in that same way we celebrate achievements in sports or the gym. But that’s not how it felt.

It felt like he underestimates what I am capable of because he knows I have a disability— but he doesn’t know I work out with a personal trainer. He doesn’t know I considered body building a hobby. He doesn’t know I used to take 1,000 pounds worth of boxes like that into a commercial kitchen’s freezer.

I am a beast. And I hope this good spell lasts long enough to figure out what to do if the issues return.

But I am a beast just for getting up and going to that warehouse on days that I hurt.

It takes way more “beast” to perform on a bad day versus a good one.

The splinter update: How do a raisin and a cockatoo impact disability?

Angel Ackerman Leave a comment

Earlier this week I visited a new doctor, where I learned about my femoral anteversion and need to gain more flexibility in my hamstrings.

After that visit, I had a miserable day at work with my hip bothering me.

But then I got a truly nasty splinter. And I wrote about the unexpected positive consequences of that here:

Part 1: A raisin and a splinter = 110%

Since then, my body has felt better than it has in 15 years (with only some minor discomfort after sitting too long and while sleeping).

And last night, between the raisin and my cockatoo (Video of her here helping me remove the splinter) I got the splinter out.

And I walked into the chiropractor today with no symptoms other than this very mild stiffness in the right hip on the groin side.

I told her the story. We laughed so hard we nearly cried.

And then she popped joints I guess she can’t normally pop.

And then she looked at my feet.

“Your feet look normal.”

We both think that the raisin and the nasty splinter DID impact my walk and my posture forcing me to stay on my heels.

So I need to practice balance and gait training, and also incorporate my doctor’s recommendation of stretching those hamstrings.

It’s so important— especially when you have a disability— to pay attention to your body and really track how you feel and all the changes.

The raisin and the good day

Angel Ackerman Leave a comment

So, if you read yesterday’s post, you know I have a massive splinter in my foot.

What you don’t know is that the teenager told me to put a raisin on it.

Apparently, she saw it on TikTok* and my follow up research suggests that there is something in the chemical construction of the raisin that helps the splinter get out.

*edit: The teenager informed me that the raisin came from a discussion in English class not TikTok.

So I went to work with a raisin under the ball of my foot.

And stood on it for 10-plus hours.

They made those of us on 10-hour shifts in outbound stay the whole day even though everyone else in the building went home at 3. There was probably 10 of us left behind.

But here’s the amazing thing—

We had a meeting and I still managed to fold 175 fixes. The goal for a ten hour day is normally 162, but the 15-minute meeting drops it to 157-158.

My process lead called me a beast.

My supervisor confirmed I did 110% of the daily minimum expectation.

Nothing, other than the splinter, hurt. For the first time, the first day, in years if not decades, I didn’t have some body part malfunctioning.

Did the splinter in the ball of my feet change my alignment?

I slept well last night but still didn’t even get 7 hours sleep. I ate the same meals I’ve been eating all week.

And yesterday I was miserable.

So what changed?

Something to ponder.

I came home and checked the splinter. There was no swelling where the raisin had been.

I took a shower (because I worked so hard today I was smelly), soaked my foot in Epsom salts and applied a fresh raisin to the swollen pocket.

And then the dog forced me off my spot on the couch.

What a week… work, doctors and Shamrock shakes

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I’ve been trying to gather my thoughts for this blog for 24 hours now. And just when I thought I had them… The Teenager had dinner ready. Then The Teenager left for work and forgot to grab her shopping list.

I went to take a photo of it for her and got the largest splinter I’ve ever had in my life.

(And if you are looking at the photo, you’ll also see all the cracks in my toes from the blisters.)

I hobbled upstairs, dug my tweezers out of the closet and manage to very painfully remove the top half of it.

It’s so wedged deep into my foot and still very painful. I’m soaking it in Epsom salt right now.

Just another reason for my left leg not to work.

It’s already been giving me trouble today and leading to a lot of muscle pain in my back and torso. Even though it’s not responsible of me, I accepted the voluntary early time out at work today and only worked an 8-hour day.

So speaking of work…

Sunday I worked Freestyle which is a department where I can usually hit 100 percent. But Stitch Fix changed our small (#5) envelopes. They had two strips of tape instead of one. They were a tighter fit than the predecessor. And they were just sticky.

I ended the day at 86%.

Yesterday I worked in my home department of QC— at the quirky poorly set up table— and reached 100%. But today I was at a high table and only hit 80%.

Yesterday I saw a sports rehab doctor recommended by my primary care physician for his knowledge and training in orthopedic care. He was going to evaluate my hip pain. I shouldn’t say that— he did evaluate my hip pain.

He also read my x-rays, did a physical exam and used the photos and the exam to measure the extent of my femoral anteversion.

Apparently, the head of my femurs aren’t positioned correctly in my hip sockets. It’s what causes me to look like this baby when I walk:

Apparently, as the screenshot shows, it’s not uncommon in children and even more common among children with cerebral palsy. If the bones don’t rotate into the correct position on their own by age 10, often surgery follows.

A rather invasive hip surgery where the femurs are cracked, repositioned and stabilized with rods.

I have an appointment with the neuromuscular physiatrist May 31– but until then here are my thoughts.

1. I still think I am leaning forward at work causing the issue with my toes blistering. If my femurs fit into my hip sockets at the wrong angle, this lean might be “natural.”

2. The doctor I saw yesterday says nothing I do is causing damage to my body, so my activities are limited only by what I can tolerate.

3. Relieving some of the tension in my hamstrings may lessen some of my symptoms.

4. There is no clear solution on how to move forward.

So, I called Nan to discuss it and get her opinion. I learned she never had a shamrock shake. I rectified that. See video.

Nan’s first shamrock shake

Gym Update: By Now, You Probably Know I Love The Guys at Apex Training

Angel Ackerman Leave a comment

So, I’m in the midst of what feels like an incredibly long, never ending journey. I’ve posted frequently about fitness, health and disability.

And I’m getting to the point where I’ve accepted that I will never be done.

It’s probably a long shot that my body will ever be athletic or even dependable, but at least I can commit myself to doing as much as I can to be as functional as I can.

I have hemiplegic cerebral palsy, which means it only effects my lower limbs. On good days, in the right circumstances, with the right concentration, you might not even notice. But those days feel fewer and far between as I age.

I started strength training in college— and if you’ve read some of my previous posts this might be repetition for you— as one of my gym electives. My liberal arts education included gym.

I returned to it on and off, mostly for stress management and then health after The Teenager was born. That’s when I met some very awesome vegan gym owners. (I was still in my vegetarian days. I keep trying to get more into a plant-based diet again.)

I worked out at home for several years while regaining strength after broken bones. And— as I’ve shared before— I got very lean and cut.

Now I have no desire to be than thin again and no discipline left to be that lean. But I am working toward regaining my strength and muscle. Those pictures are from when I was 40. Well, I’m going to be 47 in a few months and progress is slow. I’m still at an all-time high in my weight. I have days where my hips don’t want to work. And my spine hurts most of the time.

My eating habits also don’t match my goals— but my emotional state has to improve for me to fix that.

But I keep working on all these things.

As my marriage ended, I joined Planet Fitness and that kept some of my health demons at bay. The pandemic ended that, and that’s where my weight gain exploded, too.

And I also realized my desire and discipline had faded in direct proportion to my pain and physical difficulties. If I’m going to be crippled away, why bother?

But this summer, I saw a Facebook post by Apex Training here in my neighborhood. So I reached out and Greg got in touch almost immediately. I told him my story— and this meant a lot of vulnerability for me— and he immediately recommended Dan without missing a beat.

Now I was very very intimidated. I had walked by their gym 1,000 times but usually found small gyms and local trainers pushy and unwelcoming. Like a private club.

But I hit it off with Dan and found myself impressed with his knowledge and his creativity. He’d be a gifted physical therapist.

My strength has returned but my body still doesn’t always cooperate but Dan always knows how I’m feeling just my how I’m moving.

This gym is amazing. I see a lot of guys who come together to lift, a lot of women who want to lose weight, and married couples who work out together. And the environment is very family friendly— you’ll often see Greg’s dog Gotti or the babies, Dan and Greg both have toddler sons.

The Teenager has started lifting. She has a love of pushing around heavy weights so Dan has started teaching her barbell sports. Around the same time she started accompanying me to the gym, Andrew joined the team and he has a background in powerlifting.

The Teenager squatting with Dan

Well now it’s too late to make a long story short, but I’ve been feeling better and Dan has made some creative adjustments to my sessions to try and improve my range of motion.

Dan had to cancel this morning’s session so he suggested reaching out to Andrew, but Andrew was running on fumes. We weren’t able to schedule a workout but we had a great conversation about the prospect of getting The Teenager into her own sessions with Andrew and I can continue my work with Dan.

Andrew said she has potential and that he’s impressed with the lifts he’s seen. She now squats 155 I think and deadlifts 195. But here’s what I didn’t expect… “Your work ethic,” Andrew said to me, “is inspiring to watch.”

My world has been upside down for the last three to six months. So to hear that is just a reminder of how you never know who’s watching and how you may impact others.

And while I am still searching for the right doctors as I age, I know that strength training serves as a great boon to my future mobility and health. I see the orthopedic physiatrist this week and scheduled a visit with the neuromuscular physiatrist at the end of May.

I’m hoping these doctors can teach me how my body works so I can give this information to the team at Apex and maybe I could have a future in strength sports. Or maybe I can finally jog a 5K.

But more people need to understand—

Physical therapy is a blessing for specific injury. But as we age, most of us will gain a disability if we don’t already struggle with congenital issues. Just as I look for the doctor that can help me understand my whole body and its movement, the right personal trainer can help me strengthen my whole body.

I really wish I could be with the guys at Apex Training five days a week.

And I hope anyone with a disability who wants to improve their physical condition will consider committing to work with a personal trainer.

The experiment: chiro followed by personal trainer

Angel Ackerman Leave a comment

This is another post mostly about my journey into learning more about my body and cerebral palsy.

First off, before I jump into my update, let me give a huge shout out to “the teenager” who solved an issue in my kitchen that had been a thorn in my dad’s side for more than a decade.

I once had him over for a dinner party in the early days of owning this house and during said dinner party, I set a candle on fire in the kitchen. It burned a hole in the countertop. My dad thought he’d buy a replacement as a Christmas present as the counter is probably three feet long.

Problem was it’s an unusual chunk in the corner and needed to be custom cut.

Somehow the teenager got the idea of applying special contact paper designed for counters.

It looks pretty damn cool— my dad would be very proud.

I’ll have to dig up a before photo.

In other news, my boxes of Not an Able-Bodied White Man with Money arrived. (Purchase on Amazon here.) I have an official unboxing planned and a blog entry for Parisian Phoenix but my body is having a minor revolt so the debut will be postponed until tomorrow. AND my credit card reader came.

I do love what Gayle did with the cover.

And now on to my experiment… The background… On Sunday, I performed at 99% preparing packages in Freestyle— pretty impressive considering we had computer problems and a work shortage. And we worked all 10 hours. Yesterday I worked eight hours in my home department and did 131 fixes, which I believe was 101%.

I knew I had a chiropractor appointment at 5 p.m. Monday so I asked Dan, my physical trainer at Apex Training if he would be around for a workout. I knew it might be light, after a workday in the warehouse, but wondered if my body would move differently after visiting Nicole Jensen of Back in Line Chiropractic and Wellness Center.

Nicole made sure everything was stretched and aligned and off I went.

And Dan led me in what would be a light leg workout for most— a lot of squats and floor exercises. He was impressed and honestly I didn’t have to concentrate as much as I usually do.

I woke up this morning in no real pain, and through most of my days doing women’s returns processing, my aches and pains were muscular and not skeletal.

But then, I took a small walk around the neighborhood and things started feeling off. My phone later revealed that my walk was indeed asymmetrical.

So I took a shower and plan to go to bed early as my body is stiff and achy. We’ll see how I feel in the morning.

For more on this topic, click here.