Tag disability

My body feels wonderful… and other ridiculous tales

Angel Ackerman Leave a comment

This week has been a roller coaster— but isn’t that just the way? People have been telling me I look like I’m loosing weight but I don’t know if that’s true.

The teenager took the dog for a rainy walk at Lafayette College the other day. She sent several very lovely photos.

I have many odds and ends making life out of the ordinary from little foster kitten Jean-Paul Sartre to my dear friend Nan moving from my neighborhood to a senior community.

Nancy in her new place

I ordered a kitchen scale off Target.com to measure Jean-Paul’s growth. He’s up to 1 lb 5 ounces. That was after a big breakfast of pate and kitten milk. He has a hearty appetite and screams for food like any baby does every 4 hours.

He is super inquisitive and smart. He carries tiny toys around in his mouth and plays with our dog, Bean. (Here’s a video.)

Meanwhile, guest fosters Coffee Bean & Pinto Bean are having fun in my room. Khloe and Louise do not like having babies around, but the cockatoo Nala sure does.

For some humor, let’s mention that the Teenager recently discovered that the Morningstar Farms breakfast Pattie’s I have been feeding her for almost two decades are vegetarian. She called her dad to find out if he had been in on this secret.

We never hid that they weren’t real sausages from her and she’s been able to read for a long time. The shock was real, and she’s still talking about it days later.

She didn’t have a chance to go grocery shopping for her nights in the kitchen. I suggested using my Hungryroot ancient grain gluten free pancake mix and the Morningstar sausages. It was a lovely, hearty breakfast-for-dinner. And like she had accused me of when she first discovered my fake breakfast meat, “It was all a lie.”

The teen also got her first fix from Stitch Fix and it came from the warehouse where I work, the Bizzy Hizzy. Click the photo to see her unbox.

Click to see what’s in the box

Speaking of work, I took voluntary time off on Monday and my stats were 100%, 88% and 98%. Andrew at Apex Training has been working be hard with exercises like split leg squats. My quads feel it. My balance is improving, my aches and pains feel like muscle fatigue and not deeper pain or joint issues. I have caught myself almost falling several times, and can sometimes feel my leg scissoring or even notice my left foot dragging behind before it trips me.

Even my chiropractor, Nicole Jensen of Back in Line Chiropractic and Wellness Center has made comments about how well my body is moving and how things are improving. Today she said my right side was locked up, when it’s usually my left, and that everything went back where it belonged easily.

When I hopped off the table, she told me to look at myself. “I have never seen you stand up with your feet so firmly planted and your poster straight,” she said.

And I felt it, I felt really solid.

So I don’t know if this is where I confess I tried the new Wingstop chicken sandwich. Most of my diet lately has been vegan. But last night I hadn’t had dinner, it was 8 pm and my body was devastated (in that good way). I could barely move after my shower. I considered skipping dinner.

But then I thought about my food intake for the day:

  • 4:30 am: Supercoffee dark roast with half and half
  • 5:30 am: Wawa coffee con lèche (it was a bribe to make myself go get gas)
  • 6:30 to 8:30 am: 20 oz water
  • 9 am: Kind Peanut Butter Breakfast bar and about 3 oz cranberry juice cocktail
  • 9:30 to 11:30 am: 20 oz water
  • 12:15 pm: quinoa with roast zucchini, white beans and my home canned roasted tomatoes, 6 oz Diet Pepsi
  • 2 to 5 pm: 20 oz water
  • 5:30 pm: sunflower seeds
  • 6 pm: 12 oz cucumber water

I thought a chicken sandwich would be good for protein and I saw the commercial for Wingstop’s new chicken sandwich on Hulu. It was good, not as big as I thought a sandwich from a chicken joint would be— but to be able to slather any sauce from their menu on our was really cool. I had a mango habanero sandwich and a side order of the honey hot rub boneless wings. It hit the spot.

Walking, workouts and waffles

Angel Ackerman Leave a comment

I did not work a full ten hour day any day this week. But you know what? That’s okay.

My stats on Sunday were 105%, then 98 Monday, 88 yesterday and 94 today. What happened?

I don’t know. I was in pain Monday, stiff and uncomfortable yesterday and almost fell today but caught my balance.

And then Andrew at Apex put me through legs. We did split leg squats and he got to watch my hip do the funky angles it does. And I got to feel every fiber in my knees, quads and hamstrings.

Plus, I walked more than 8,000 steps today while my legs were stiff. Well after that workout they are not stiff but jelly.

The Teenager showed one of her dog walking clients some of the neighborhood dogs and their tricks— here is the video.

And then for the final event of the day we went to Waffle House as earlier this month we had heard that August 24 was National Waffle Day.

I had a scrumptious hash brown bowl with egg, cheese and jalapeños.

We split a peanut butter blueberry waffle.

These are the moments to treasure.

Margaritas and cat noses

Angel Ackerman Leave a comment

I might be pushing too hard.

I did (I think) 105% on Sunday at work, 105% yesterday and woke up stiff and with my right quad tight and spasms in my calf. I only did 93% today, but I feel better now. And the dip in numbers had more to do with some chaos in the warehouse versus my cerebral palsy issues.

Regardless, I must admit I was a little relieved yesterday when my fitness coach Andrew from Apex Training postponed my workout.

The teenager proposed going to Applebee’s for dinner, her treat, as she didn’t feel like cooking. She also demanded I order a cocktail as I think she wanted to make sure I drifted off to bed as early as possible. (8 p.m.)

The teenager loves Applebee’s— for a child raised in all sorts of Mom & Pop restaurants where we often knew the owners, she certainly loves her boring old franchise Applebee’s.

I realized that if you took any item with chicken tenders away from the menu, you’d lose more than half the meals available. And if you didn’t want bacon on your hamburger, you had three choices: the quesadilla burger (which we got), the plain old burger and the Beyond veggie burger (which was $14 and came with nothing but lettuce, tomato and pickle).

Boring.

The quesadilla burger was a mish-mash delight (I chose my margarita for the artificial Latin theme) but had to be eaten with a knife and fork.

When I arrived home, Opie and Fog (two of our personal cats) joined Khloe and Louise (foster cats) and Nala (Goffin’s cockatoo) and Yo-yo (parakeet) in my room for the night. Fog tries so hard to be Louise’s friend— and she is slowly (after more than a year) getting braver and more confident.

Louise (left) and Fog (bottom right)

Finally, for those that are wondering… I ruptured my tendon in my ring finger April 15 and had “mallet finger” and a cast for nine weeks. My specialist released me July 25 and expressed his disappointment that my finger was still a little off.

My finger after a ten hour shift August 15 — four full months after my accident.

I use my hands so much at work, so I still splint at night. I must say it feels like and looks like the finger is getting stronger and straighter every day.

Updates, announcements and anecdotes

Angel Ackerman Leave a comment

It’s just about to turn 5 a.m. on Tuesday morning. The last 48 hours have been emotionally difficult, and those are internal challenges I have resolved within myself but now I need to “make right” in the world.

My good friend Joan (the talented photographer) had quipped that the moon is in “Frustrato” phase and perhaps that is accurate.

Sometimes it’s nice to blame the universe instead of accepting our part in the mayhem. Because even good intentions spark fires.

I heard a podcast yesterday; I believe it was an economic one, that asked if one host was “a glass half empty or a glass half full kind of guy.” He replied, “it’s just half.”

That’s too much enigma and philosophy for pre-dawn hours. Blame the fact that my trusty espresso machine only filled half my mug.

Mug from Purr Haus in Emmaus

The teenager and I had 14 kittens in the house Saturday, Sunday and Monday offering temporary lodging for these babies whose official Feline Urban Rescue and Rehab foster families have gone on summer vacation.

They were so much fun to have around, but 11 went home last night. This led the Teenager’s officially adopted foster fail Mars of the Roman Pride distraught that his friends had gone. He screamed until the Teenager released him into “gen pop” where he plopped himself down in front of the remaining visitors.

On Friday, I had a rather grueling session at Apex Training with my coach Andrew. We did some intense work on balance and single leg muscle stability. On Saturday, the communication between my brain and my lower body felt rickety (for lack of a better description) and it was challenging to move. By Sunday, the movement felt smoother but my phone was registering spikes in walking asymmetry. But something very interesting happened Monday— I could not only stand on one leg, but I could also hold my leg in a few seconds of a quad stretch.

Yesterday, I visited the Stitch Fix employee store, which resulted in a good news/bad news scenario. I bought myself jewelry on an impulse and discovered my second holes could still accept earrings. As someone who really grew up in the 80s and graduated high schools in the 1990s, I have three sets of holes in my ears.

I bought the Teenager some new things, including some warm hiking style boots for fall and her dog walks. I bought myself an adorable pair of shorts, and I picked one size up from my pre-existing Stitch Fix clothes and they were too small.

Obviously my efforts to reduce my recent (as in pandemic era) weight gain have been not sincere enough. Sigh. I’m trying to eat better and move more without falling into a strict/restrictive mindset.

But I did eat an entire medium pizza from Domino’s the other night. It was a medium hand-tossed crust, light on the cheese, light on the garlic Alfredo sauce with red peppers and pineapple.

On the way home from work last night, I noticed that the furniture store looked abandoned— and that the sign merely said urn.

In the background of all of this, the ‘cat book’ from Parisian Phoenix has hit some unexpected difficulties prompting a delay in its production. But my quick thinking, after a few hours of pondering, have inspired an interim release of a mini cat book featuring advice and stories about the care of cats. The larger book will come later, perhaps in early 2023.

In the meantime, I am very puzzled why my sweet tripod foster Louise has decided to crate herself.

And the most surprising item of the day was receiving my first catalog for Parisian Phoenix Publishing— Uline junk mail!

I suppose the last update is that the people at Susquehanna Service Dogs have cashed my check for the application fee. I’m anxiously awaiting contact.

To say life has been hectic feels like an understatement.

Exploring Cerebral Palsy with Tylia Flores

Angel Ackerman Leave a comment

I had the great opportunity to have a FaceTime chat with the kind and personable Tylia Flores yesterday. In embracing the voice of the younger generations, I am learning about myself. Read more at Parisian Phoenix….

If any of you read my personal blog on my website, angelackerman.com, you may know of my quest over the last two years to learn more about cerebral …

Exploring Cerebral Palsy with Tylia Flores

A yummy Tuesday

Angel Ackerman Leave a comment

Tuesday already. If I had not taken voluntarily time off this week, I would be three-quarters of the way through my work week and asleep in preparation of my last day before the weekend.

Instead I slept until a leisurely 6 a.m., did some kitchen cleaning and some laundry while I waited for my coffee to brew.

I did some work on my own essay for the As the FURR Flies cat fundraising anthology — “The Unfortunate Cat Bite Hospital Vacation.”

Spoke with the teenager and headed to visit Gayle, the Parisian Phoenix Art Director, and my longstanding (and upstanding) friend. First I had to remove a tire toy the dog inserted into my purse. We had plans to scan the ink cartoon our friend Rachel had done for the anthology.

Then we went for a walk. I told Gayle not a long walk as my right hip just didn’t feel right and I felt like I had to march to avoid tripping myself. That I had not only fallen on Sunday night, but out of the damn bathtub while taking a shower yesterday.

I bought her a beverage at Déjà Brew, an eclectic local coffee shop/cafe, and nearly fell on my face because the damn floor has a massive bubble down the whole thing. I can’t even describe how huge and high this ridge was. I felt like someone had parked a tree under the tables.

Lunch was pita with hummus and harissa. Then the teenager went to visit a housebound senior to try and help her clean up a bit.

When we finished, I took the teenager to the auto parts store where the Amazon driver left her new Apple Pencil, bought us both discount Diet Cokes at McDonalds and then we headed to a place she’s wanted to visit for a long time— Exotic Dreams and Lingerie— and their neighbor. We bought some anatomically styled sour patch candies and let’s just say our dress form Esther might be donning some knotted red ropes in the future.

When we got home, I unboxed my new calendar: Video of unboxing Silk & Sonder August 2022.

The teenager went to work and I finished my story for the cat book and attended a library meeting. Then the teen made a magnificent hamburger dinner with homemade garlic parmesan gourmet fries.

And we attended a foster meeting via Facebook.

To end the night, the teenager broke an ancient ceramic bowl and I dropped a mason jar very painfully on my toe wrestling with the dog gate.

We’re both pretty exhausted tonight.

How to Deal with a Heat Wave: Ice Cream Dog Walks

Angel Ackerman Leave a comment

“You better put in that application for a service dog.”

We hadn’t even made it half-way down our block and I already stumbled and fell. The teenager, her dog, and I had left our house at 7 p.m. on just another high-90s day. We were headed to CVS for ice cream.

The CVS is a 2,000 step walk— there and back— so we thought it would be good exercise for the whole family.

Plus, I had about $3.75 in Extra Bucks and a 40% off coupon. A pint of ice cream is $6.99 at CVS so I grabbed a whole bunch of singles and a handful of change.

The dog behaved really well on the walk, but my left foot did not— it kept twisting under me. I felt like I had to lift up my feet in exaggerated steps not to fall. Like high knees marching.

I stumbled twice on the way home but did not fall again.

The teenager made her remark about the service dog. I’ve spent a lot of time with her dog this weekend and thought… just imagine if this dog were useful.

I already did 90% of the 54-page application packet. I talked to those people I want to be my support letters (the teenager and my neighbor, as they would be my literal supports) and my references: the teenager’s father, cat foster godmother (who used to be a social worker) and my long-time therapist (whose wife is a physical therapist).

That leaves one thing: the medical evaluation. My own insecurities make it very difficult for me to ask for help. And it’s taken a long time for me to learn to speak up and out and advocate for myself.

I am nervous to ask my doctor— my family doctor of more than a decade— to do it. Part of me wants to wait until my appointment on August 19. But if he says no, that only leaves me two months to find someone else.

I think I need to call the office tomorrow and leave him a message to ask if he’d do it if I bring the paperwork August 19, or sooner if he wishes.

Again, I have doubts. What if I’m not disabled enough? I don’t want to waste anyone’s time. I don’t want to take a spot away from someone who needs a dog more than me.

But I’m struggling and I’m scared and I’m getting older. And I can do so much on my own but a dog would give me that much more.

I spent a lot of time on the application. Pretty much a whole day. What do you want the dog to do? What’s your typical day? Do you work? Do you volunteer? What are your interests and hobbies? Do you own a home? Do you have pets? Who lives with you? Do you drive? Can you handle travel? Can you take care of the dog? Are you able to train the dog?

If I can get ahold of the doctor’s office, as soon as I know someone will fill out the papers— I will tell my letter-writers and references to do their thing.

My therapist and I had a chat about it. His professional association discourages therapists from doing medical evaluations for service dog applications, but since I was asking for a reference, he was okay with that. He had no idea how many things a mobility dog could do.

He mentioned that in our current times, the emotional support animal and assistance dog phenomenon seems to be getting more and more prolific but that in my case, I’d obviously put a lot of thought into it, done my research, and found a program that could really benefit me.

Fingers crossed, I guess.

Oh, and the ice cream… it was $1.86 after my discounts. I had a $5 bill, five singles and 87 cents in my pocket. I paid exact change.

Do I want a (mobility) dog?

Angel Ackerman Leave a comment

A while ago, the teenager suggested that I needed a mobility dog and someday she would train me one.

Well, with all the mishaps and falls I’ve had since April (mallet finger, smashing into a brick wall, almost breaking my glasses falling literally on my face, falling into the bathtub and whacking my head on the ceramic tile wall and my personal favorite falling through the screen door), I did some research and thought the beautiful, dog-loving teenager might be right.

I had previously blogged about why I thought a dog would help me and I also thought a first dog should come trained and the teen, approaching young adult, could learn from this one. Just like I would.

My previous post on service dogs

I requested an application from two organizations. The closest to me was Susquehanna Service Dogs near Harrisburg. They sent me an application today. I have three months to fill it out.

The flow chart of initial steps for a service dog

The application requires my demographic, medical and lifestyle information, plus the financial statement saying that I will pay the $5,000 necessary if I get into the program. I need two letters of support— they need to come from people who support me having a dog and promise to support me and the dog together for the life of the dog.

I also need three references.

And a statement from my doctor.

I just thought I’d document my thought process and journey here. Because I’m hopeful, and doubtful, excited and afraid.

Do I want a dog? Can I handle the commitment? Am I the right kind of disabled to benefit from a dog? Can a dog help me be safe? Can I maintain an active lifestyle? Will they see how a dog would protect my independence?

Navigating healthy limits: I can and I should are two different things

Angel Ackerman Leave a comment

The wounds I acquired last Monday falling through the screen door (yes, there is a blog on that) have mostly healed, except where Bean Dog accidentally scratched off my scabs. The teenager tells everyone it looks like I had a fist-fight with a bear. And we had a family debate over Indian food– the teenager, her father and I, over whether I won or lost. Consensus was I won. (The Indian food came from Nawab in south Bethlehem, who were gracious hosts despite us not knowing that had converted to reservation only for dinner.)

On Saturday, I went to the gym and hit a new personal best with Andrew at Apex Training. I think it was 110 lbs on the barbell for three reps in box squats. My torso, my thighs, everything could take the weight well, except my knees. My knees kissed as I stood up with each rep. It didn’t hurt. It quivered a little, but I definitely had to plant my feet, balance the weight, lead with my thighs and hips and force those knees slowly out. The weight didn’t bother me. My own knees terrify me.

On Sunday, I performed 111% at the Stitch Fix Bizzy Hizzy, which means I shipped 555 items. Goal is 500 for a ten-hour shift, but as I reached higher numbers and saw that 555 was possible, I went for it. After all, both 111 and 555 are lovely numbers. Three prime numbers in a row, twice. Patterns and numbers comfort me. They offer a reminder that while a million permutations might exist, that there is underlying order in the world.

Yesterday I started my shift with refixes at the table in QC that has been assigned as mine for about three weeks. My table, line 4b, table 6, has a manual conveyor line on my left, which is great for my balance but bad for my finger. I hit 162, the daily minimum expectation, but barely.

I was achy, with sore feet and a sore spine, but nothing unusual for a person standing for 10 hours a day. I notice on my phone that around 4 p.m. that my walk was asymmetrical by 1%.

I have averaged six hours of sleep lately, with borrowed kittens and the high heat, so I opted to take a muscle relaxer and sleep versus push myself at the gym. My chiropractor has suggested my recent issues with falls and lack of control in my right leg might stem from overdoing it.

Between the heat wave, the full 10-hour shifts, the general aches and stiffness and the inappropriate levels of sleep, I opted to postpone the gym, take one of my muscle relaxers and sleep. I slept much better, but I could use a solid 8 hours or more.

I’m slowly learning just because I can push myself doesn’t mean I should.

Question of the day: Am I disabled enough for a service dog?

Angel Ackerman Leave a comment

This is a hard post to write.

That’s the thing about disability— it like a kaleidoscope of worry and health and what you can and suddenly can’t and then can do. It’s a revolving door of chaos and bodily revolt.

Don’t get me wrong. I know I am lucky. Every damn day I get up, take care of myself, go to work, pursue my side business, go to the gym, and try to do what’s right for the teenager and the pets.

I can walk, even if I may never run that 5K I dream about. I work in a warehouse, even if sometimes it’s hard. I try to listen to and take care of my body. And I am grateful.

But despite all the doctors, the physical therapy, the personal trainer (thank you Apex Training), the vitamins, the stretching, the medication and the regular visits to my lovely chiropractor, Nicole Jensen of Back in Line Chiropractic and wellness center, I still “randomly” have accidents.

I trip over my own two feet and have hands that look like this:

And I fall through the old screen door in the garage.

I burst a tendon and spend 12+ weeks nursing mallet finger from taking off my socks.

I’ve broken bones, smashed teeth, fallen down stairs (most recently at the hospital).

I did this at the hospital

I’m getting older and I’m falling more. In a few more years, the teenager will be a full-fledged young adult and won’t necessarily be here to babysit me.

So I filled out a pre-qualification questionnaire. I probably won’t be disabled enough to warrant a dog, but I have the means to pay for it. I live independently and my condition cannot be mitigated with medication.

But I can walk and function you say, and I do. What could a dog possibly do?

  • Help me take off (and put on) my shoes and socks
  • Help me retrieve objects from the floor when I can’t bend.
  • Help me retrieve objects when I fall.
  • Help me get up when I fall.
  • Help me up and down the stairs.
  • Bark to alert neighbors or people in the household that I need help.*
  • And I wonder if a dog could “nudge” me if it notices I am unstable and get me to fix my gait or rest.

* this one is apparently controversial — some trainers claim barking in any form is a nuisance and that a service dog should never bother/impact the general public.

Like any topic within disability, it’s complex. But with each fall I take I feel progressively more vulnerable and fragile. It feels like another option to consider.