Vulnerability in the workplace and its role in building teams

Grammar police— this piece is full of tense shifts. I’m tired. Deal with it.

We’ve all had that corny job that encourages team building exercises and how uncomfortable that can be when they are telling you to trust someone that frankly you don’t trust.

It’s hard to be vulnerable with new people and new environments and this can lead to us seeming aloof or feeling alienated or shunned by the group.

Yesterday I had a painful day at work, and I’m still struggling emotionally with my father’s death, and compounding all of that is the fact that my sleep has not been that restful.

So imagine me… as the alarm goes off at 4:45 a.m., struggling to stretch out my stiff, spastic lower body and my aching spine. I went to the other side of my room to check on the cats’ food and had to use the vacuum cleaner as a cane.

I stumbled to the shower and afterwards managed to get my bra, shirt and panties on but saved the socks and pants for after coffee.

I prepare my coffee directly into my to-go mug, a FURR fundraiser item that keeps my coffee warm until my first break almost four hours later and lukewarm until lunch.

I email my neurologist asking for help getting a physiatrist appointment. I still wonder if I should be going to work at all. I tell myself if I really can’t function, I’ll call the chiropractor at 9 a.m. and see if I can get an appointment.

I decide it’s time to put on my pants.

But then my pants don’t button.

And I’m not talking about “these are snug,” these are all out as if I were trying to wear a child’s pants. Too much Taco Bell last night.

The teenager did a white wash so there is a pair of sweatpants in the kitchen. I put them on and wrestled with my socks.

I go to get my shoes. The teenager has piled the garbage on top of them. I find other shoes.

I then needed to decide between the pizza I can’t even remember when I ordered it and the pancakes from Friday for lunch.

I grabbed both.

Once at work, they have me assigned to line 5, table 8a. Now, they have the tables on line 5 labeled incorrectly. Somehow, they go 0, 1a, 2a, 3a, 5a, 8a, 4a, 6a, 7a. Someone is already working on the ninth table, which is labeled seven. So just to be clear, I ask my supervisor.

“I am to go to the sixth table, which would if you were going by the labels at the previous lines would be table five, because the actual labels are out of order?”

He looked up. “Oh, yeah. They are.”

But then someone is also at the sixth table which is labeled 8a. The lead on the line does the research and this interloper belongs on an entirely different line, but somehow ends up a few stations ahead of me.

I have to organize the station because it was set up for Freestyle not QC.

And then I see the person on line 4b, across the aisle from me, get an entire rack of refixes. That’s about three hours worth of work.

I went back to the lead who I approached about my interloper. I explained I had a disability and I was having a bad physical and emotional day and, let me paraphrase, I said I wanted refixes, too.

I got them.

The day shift support people and my normally favorite support person brought me refixes all day.

And I learned more about my favorite support person’s family history. And we discussed philosophy and gave each other a pep talk. And the day shift support person was also super supportive.

And it made me feel physically and emotionally better to share the weight of my burdens. I made 98%. Which is amazing — and I haven’t seen numbers that high since October.

My lead was pleased.

And I felt lighter.

Do until you can’t do

If you’re a regular reader here, you may recall I had a fall last week, at the hospital, when I went for a CT scan of my brain. If you missed that episode, you can read about it here

What I didn’t mention is that I also took a second rather more dramatic fall in my kitchen that same day.

I’m rather sure Dr. Nicole Jensen of Back in Line Chiropractic and Wellness Center cringed as I told her this story, and the story about my knee totally facing the wrong way.

This prompted her to adjust my ears— apparently I had some left ear congestion. The adjustment was a rather uncomfortable yank in my earlobes.

Anyway, she mentioned that I tend to “just keep doing until I can’t do no more” which is 100% true and something I learned from both my parents. They both have incredible work ethics.

On Sunday at work in the Stitch Fix Bizzy Hizzy, I believe I hit 96% in packing Freestyle orders. Yesterday, we got shipped to women’s returns processing where I struggled in an attempt to hit 70%. Today I hit about 85% in my home department (QC) despite incredible amounts of pain.

My feet were burning. My joints a little achy. My right quad screaming. A slight nosebleed. And both sides of my hips felt wrong. So I checked walking asymmetry in iHealth.

Definitely periodic issues since yesterday afternoon.

If I’m still uncomfortable and having trouble moving in the morning, I’ll go to work and call the chiropractor when she opens.

I fell down the stairs at the hospital

It’s 7:53 a.m.

A little less than an hour ago I left home to walk to the hospital for my head CT.

It was raining, with flurries mixed in, and I didn’t think to bring a hat, a hood or an umbrella. I don’t mind getting damp, and the moisture helps tame my curls.

The walk to the hospital was uneventful. I was confused where to find the radiology department so I looked up the address: 250 S. 21st Street.

Now, I always get 21st Street and 22nd Street mixed up in my head. So to be sure imaging wasn’t in a separate building, I walked down to 21st Street.

That was mistake number one.

Imaging and radiology is in the main hospital. The main hospital was built over 21st Street, so to get to the entrance I had to backtrack, and go up to hills will black ice, to 19th Street.

I walked in, waited in line, and was politely told I needed to go outside, to the left and to the left again.

In other words, imaging was next to the Emergency Room which was where I started backtracking.

Bit extra steps are good. Let’s stay positive.

I leave, go down the concrete stairs between the hospital and the parking garage, trying to confirm where I need to go. I suspected radiology was next to the ER but I had just been told “left and left again” and I get my left and right mixed up, especially when I’m nervous.

And now I’m nervous and hurrying. In winter weather.

I forgot the stairs by the hospital are built like speed bumps… one step… walk more than a side walk square… a staircase of about five steps… more single steps. All painters with yellow stripes.

I missed one. I did a lovely corkscrew spin and bounced along the sidewalk.

I got up, kept walking, fighting tears and trying not to hyperventilate.

Because physically I am not in my best shape today. (More detail here.)

I walk into radiology and I tell the admissions clerk, “I have a CT at 7:30 and I just fell down the stairs coming from the main registration desk, I’m fine but I’m a little shaken.”

She, of course, wanted to know if I needed to be examined. I said no.

Then she assumed it was icy. I said, “no, I have cerebral palsy and I just missed the step and once I go down I can’t stop it.”

Her next thought was, “why didn’t they have someone bring you through the hospital. Why did they make you go outside?”

I replied, “I just did what they told me.”

The next fun part of the journey was once again I was told that Medicaid denied my procedure. I told them I qualified for Medicaid for one month in 2020 and they have not paid for anything since that month.

“But you qualify,” they insisted. “Or it wouldn’t be there.”

Just let me have my CT scan, especially now that I’ve hurt myself.

They take me back, and I thought maybe I should go to the restroom and wash my scraped hands but the tech assures me it will be five minutes. So I figure it can wait.

The scan was very cool. I have never had a CT scan or an MRI. They stuck me in the tube and I noticed the sleek black ring inside the tube that had a bright ball in it, like a star. I was told to be still so I closed my eyes.

The machine roared like my clothing dryer, the table shifted, and I was done.

I then once again thought about the restroom but it was 7:30 and my teenager needed to be at work at 8, and I thought maybe I could catch her.

But the sidewalks were slick and now the snow was coming down. It was coating everything. So I didn’t get home in time to see her.

But, between the cold, my nerves, and the fall, I suddenly realized I needed to urinate. And as the greatest insult to my pride today, I started to pee myself five feet from the toilet.

When I removed my pants, and realized the “accident” wasn’t as bad as it felt, I saw my knee was now bleeding. I have a sore spot on my left thigh up by the hip, two scraped knees, two scraped off palms, a couple scraped knuckles and a sore spot on my left forearm.

My trainer and I agreed that maybe the gym isn’t a good idea today.

And I cracked the screen protector on my phone.

I really, really hope that when the neurologist calls to talk about my CT scan that she can needle the physiatrist about seeing me, because I need help.

I’m scared. And I need to understand what this body can do and what it can’t.

The end of a short week

In less than 45 minutes— it is now almost 6:20 a.m. on a mildly snowy Thursday morning— I will be walking out my front door to get the CT scan of my head I originally had scheduled for December 30.

I am drinking my peppermint white chocolate Supercoffee, which arrived during the snow event Monday. Peppermint is my favorite flavor in coffee. Cinnamon used to rank, but there is something about the sassy, refreshing notes of warm peppermint and bitter coffee that excites me.

Last night, my Parisian Phoenix collaborator blind poet, Nancy Scott, joined the teenager and I for a dinner of Asian style cabbage and sautéed scallops over soy sauce ramen.

I have mild anxiety about the CT scan, primarily because I am unfamiliar with radiology at the nearby hospital, but also because of the anticipated cost. (You can read more about that here.)

My toe has been burning for weeks now. So much so I mentioned it to my chiropractor last week, that it burns maybe 15 minutes every 90 minutes or so while I am at work in the Bizzy Hizzy.

I thought maybe my posture is off with my hip persistently giving me trouble, but I noticed last night it’s extremely red and I think a little swollen.

Now I’m debating whether I need to call my podiatrist on top of everyone else.

The interesting news is that in the Bizzy Hizzy this week I probably performed about 65% in women’s returns processing during my overtime shift Saturday. My supervisor informed me I did 83% in Freestyle QC/ship on Sunday. Monday was a paid holiday. I managed 90% in my home department Tuesday and Wednesday— which is folding and wrapping 147 fixes.

While my pain levels are probably around 3 or 4, depending on my movements, my hip is definitely bothering me and my toe hurts all the time now. And of course, the back pain has been minor, but there, and I’ve struggled with touching my toes this week.

And I gained back the weight I’d lost.

I’m anxious to do some items for Parisian Phoenix today and maybe even write some of my fourth novel before a friend comes over for cocktails.

And please consider buying a book or two or three from Parisian Phoenix. I’m saving up for a new batch of ISBNs.

Little wins

It’s Wednesday night— which is my Friday! The Bizzy Hizzy has been a tizzy of Covid cases during this mandatory overtime week.

I’m doing my eight hours of overtime on Saturday.

Tomorrow I’m returning to the gym—the pandemic has also altered my training schedule.

And tomorrow, Georgie gets adopted! Yes, Georgie, our lovable former community cat from downtown Allentown, will be going home to a family where she will be the only pet.

I’m told Louise has an approved adoption application— but this is her third so I am not as optimistic as I should be. The person who applied for her wants two cats so FURR has suggested Khloe also be considered.

If these three cats get adopted— after Danu, Brigid and Aîné all getting adopted since December— I may weep tears of joy.

This week my body experienced all sorts of aches and pains, but I still managed to fold what I felt was a respectable amount of clothes for Stitch Fix. And today was our monthly employee luncheon— chicken Caesar wraps, tomato soup and carrot cake.

And on our final break of the day, everyone from my old shift got sweatshirts.

It’s kinda silly, but at the same token, it commemorates a special era of my life and celebrates the camaraderie we had on second shift. And believe it or not, even though we are scattered among the day shift, we still function as a team.

After work, the teenager invited me to Tic Toc family restaurant where we enjoyed grilled cheese sandwiches.

Ingram finally shipped Darrell Parry’s poetry book (Twists: Gathered Ephemera). And several other Parisian Phoenix titles are coming together. Perhaps as many as three titles releasing before the end of February.

Speaking of Parisian Phoenix, I emailed my class correspondent at Lafayette College and he ordered my first two novels.

And finally, side note… Actor Tim Daly was on the most recent episode of the podcast Hypocondriactor. I love Tim Daly. And I found myself comparing him to Anthony Stewart Head, you know… Giles on Buffy the Vampire Slayer.

I was specifically comparing Daly’s character on Madame Secretary to Head’s role as the school librarian/watcher on Buffy. Both were nerdy academics with interests in obscure topics.

Neurology Update

So, I just received a phone call at work from my neurologist’s office. They want me to come in at 8 a.m. Wednesday, because “my” insurance company denied my CT scan.

I use the quotation marks because this letter comes from the insurance company that provided my Medicaid. I received Medicaid four months into my unemployment in November 2020, and I accepted my position at Stitch Fix one week later.

Stitch Fix provides medical insurance as of day one of employment.

To the best of my knowledge, I used Medicaid for one visit to my primary care physician that happened to be scheduled during that week.

I filled out the required paperwork to alert the county assistance office that I had a job, and insurance. I received some paperwork that implied my Medicaid would expire at the end of the year.

But as of January 1, 2021, it still seemed to be hanging around as a secondary insurance policy. Even though I never saw them pay for anything, and my primary insurance was a high deductible plan.

In Spring of 2021, I received a notice that I need to reapply for my medical assistance or it would be canceled as of 8/31/2021. I threw the paperwork away— because I don’t need Medicaid.

But the hospital and the network of doctors associated with it still insisted I had it.

So I thought maybe it would disappear December 31, 2021.

And December 28, 2021 they write the letter denying my CT scan that I photographed and posted above. I receive it around January 5, 2022.

To refresh anyone’s memory or for new readers— I have cerebral palsy but I didn’t really receive medical treatments or interventions as a child, which leaves me now trying to understand my body as it ages. I am approaching my 47th birthday.

My neurologist appointment was December 23 — you can read about that here (and more here) as it was my first ever. I now have an official diagnosis on file with my doctors.

The neurologist’s office scheduled me for a CT scan of my brain on Dec. 30. I was really excited for several reasons: I have never had any CT scan; I am very curious to see what brain damage will be revealed; and my deductible was paid for 2021.

But the office canceled it two hours before the procedure because the insurance company neither approved nor denied the claim.

I find out today that Cigna has approved the scan but Medicaid did not and the neurologist’s office didn’t want me getting a surprise bill.

They canceled a procedure that would have cost me a 10% copay, and now I will pay for it out-of-pocket as my deductible is $1,750. And my HSA will be empty as the teenager is getting hearing aids Friday.

In other physical related items:

  • Yesterday I experienced a lot of steady pain at work. By the end of the day, I couldn’t even reduce my symptoms and sleep was uncomfortable. I blame the fact that they changed our break schedule and we had our last break at 1:50 — leaving us to work three hours without a break, the last three hours of our ten hour shift.
  • I finished yesterday at about 80% of the daily metric.
  • Today, I had a high point at 3 pm of about 95% — and finished the day at 90%.
  • My back today felt better, pain at let’s say 4 instead of 8. But my toes on my right foot burn about 10 minutes out of every 90.
  • Interesting side note, I think the intense back pain involves some nerve activity as when my pain increases I can’t feel my need to urinate. Not at all. So that’s fun.
  • And the Mirena is doing it’s job. But for the first two months, I spotted most of the time. I think I had two days each month where I wasn’t spotting or bleeding. I think that has finally ended. My body seems to act like my body.
  • But today, for some reason, my right breast aches. Kind of like milk let down.
One of my orders today was 8 pounds of jeans

Exploring my Disability update and Podcast review: Disability After Dark

I am scheduled for a CT scan of my brain at 1:30 today. The neurologist’s office called at 9 a.m. and warned me that the insurance company has not authorized it yet.

Update: it is now 12:30 p.m. and the neurologist’s office has called and has canceled by CT scan.

I’m disappointed for two reasons: 1. I was excited to have to pay much less for my CT scan because my deductible was met (and do I dare to conspire that maybe the insurance company is dragging their feet so I have to pay for it?) and 2. I want to see my brain.

I would love to see a functional MRI of my brain but that will never happen as I have a dental implant and while that gives me a good structure for my missing tooth, the MRI would rip that metal out of my head.

Cerebral palsy is a condition that occurs when either at birth or after birth the brain doesn’t get enough oxygen and therefore, I am assuming here, dies.

But children are amazing creatures and brains rebuild and rewire as best they can.

In my case, I have hemiplegic cerebral palsy that causes symptoms in my lower body. Quadriplegic cerebral palsy effects both halves.

Cerebral palsy is a static condition, which means it doesn’t get worse or get better. Although, everyday wear and tear on the body can be exacerbated by awkward movements, which causes premature aging.

My neurologist assessed me and came up with some malfunctions, including these:

  • I have spasticity in my legs— specifically in my quads and calves. This means my muscles do not relax. Stretching the muscle groups forces them to move and is as close to relaxing as they get. Stillness often causes stiffness. So literally standing up from my bed and walking after a good nights sleep makes me feel like the Tin Man from The Wizard of Oz.
  • My feet naturally turn inward and I don’t have the range of motion I should have in my ankles. My left foot specifically likes to try and hang out under my right foot when I walk.
  • My feet don’t have the correct temperature sensitivity. This explains why I never feel my feet are cold until they are purple. And why once they are cold, it’s practically impossible to get them warm again.

I’ve been researching everything I can find on cerebral palsy and an interesting podcast is Andrew Gurza’s Disability After Dark. He originally started the podcast as a sex podcast for people with disabilities but, as a disability advocate, has interviewed a wide range of people and covered a wide range of topics. He’s also launching a sex toy line for people with disabilities.

Like any podcast, some episodes are stronger than others based on the guests, but I love his diversity in interviewing people with a broad range of experiences. And he is very honest about his life and brings that same level of truth out of those he features.

Merry Medical Morning

I woke up with not much voice, still not quite right and worrying that maybe I have a cold. I haven’t been sick since I had Covid— more than a year ago— but I drank lots of hot liquids, chugged some DayQuil and ventured out into the cold.

Why?

The teenager had a 9 a.m. greatly anticipated appointment for a hearing aid fitting. When they put her in the test hearing aids, her voice quieted immediately.

Apparently speech tones have been difficult for her to hear for quite some time and the pandemic made it more obvious that she was reading people’s lips.

The doctor was greatly personable and loved the teenager’s enthusiasm.

From there we went to the neurologist— the first time I have ever visited one. This visit was one of many doctor appointments in 2021 I booked as part of my fact finding mission regarding my body and my cerebral palsy.

(My temperature was 97.6, so whatever is making me feel “off” does not include a fever.)

And so I talk with the assistant, the resident and the doctor. I was very impressed with the doctor and even more impressed that she kept checking in with me— “I want to make sure I address any questions you have.”

But honestly I got scared because when she first walked in she said, “so you think you have cerebral palsy.”

As if I had googled it and just came to that conclusion with web m.d.

And I’ve heard other people say it… but never experienced it before today. When you have a visible disability that you often have to explain to people, when someone threatens to change that diagnosis it’s very unsettling. I never expected to feel so uneasy that someone might challenge the very thing that has defined much of who I am, even if I hate the fact that it intertwined with my personal identity so deeply.

But spoiler alert, after examining me and watching me walked she touched my knees gently and said, “I agree.”

Not only did she explain things I already knew about the condition (it’s static and will not change), but she pointed out that I often step on my left foot. I literally trip over my own foot. She also sat on a stool beside me— so the doctor was below me making eye contact upwards. I have never had a doctor do that before.

She referred me to the physiology department, and thinks they may recommend Botox to relax my leg muscles and prescribe braces for my feet to help them face the right direction.

She also scheduled a head CT, warning me that it will show brain damage, but that young brains compensate for damage via their elasticity. (Is that the word?) I’m excited about this because it gives us a baseline image of my brain so as I age we won’t confuse my cerebral palsy brain with, say, a stroke.

And she was impressed with me, as doctors often are.

More on this journey:

Struggling to find a groove

Change is hard.

Sunday we arrived at work to learn we couldn’t punch in because engineering was upgrading the time clock system. I managed to ship 374 items in 296 packages as part of the Freestyle department.

And my dad— who has been struggling with Covid— ended up back in the hospital.

But then Monday rolled around and I was back in my home department folding clothes.

I was ready to try and excel as the change in shifts has been hard. The ten hour day is amazingly smooth, but getting up at 5 a.m. is exhausting — even if I go to bed at 9 p.m.

And then we changed software and the computers couldn’t keep up with the new system so everyone was working at 80 percent. Okay, I can’t prove everyone, but there’s a day shift woman who told me she always hits her numbers and yesterday she only did 108 instead of 130.

On top of this I had several fixes that I struggled to put in an extra large box and half way through the day the stats went down.

I am struggling to stay motivated and moving without my average time per fix being tracked, let alone no stats at all.

And then some guy drilled each of our table and attached new brooms and butlers. We used to share one or two brooms per valley, now we have about 20.

Many many brooms.

And around 2:30 p.m., a day shift peer was talking to someone who might have been a processing lead and she started hysterically crying for a good 20 minutes.

So I was very glad when yesterday was over. Not only was my back hurting, but my right leg is acting up again and I have intense pains in one of my right toes.

Then today started. My computer doesn’t have a keyboard or a mouse. Just a keypad. And the computer can’t “see” it. Lost ten minutes looking for a mouse until a lead stole one on my behalf.

One of my favorite second shift QC support people— we’ll call him Flying J in honor of the way he buzzes through the valleys with carts under his arms like wings of an airplane— brought me refixes! You know, the fixes that needed to be fixed and come on top of the cart instead of inside.

AND he told day shift that I liked them.

And one of the day shift support people came to see me and said she would bring me as many as she could. Then she paused.

“I don’t know how to say this without offending you,” she said.

“Honey, you can’t offend me.”

“I see the way you work and I see the way you walk—”

I interrupted her. “I have cerebral palsy,” I said. “And right now, my spine is bent the wrong way. I struggle to get the fixes out of slots 7 & 8.”

I was really moved. I am always touched when people want to help.

And today was our December employee luncheon.

Meanwhile, at home, the teenager did a ritual (at my request) for my father’s recovery.

After work, we took the dog for ice cream at The Spot.

Bean Dog eating ice cream video.

Day 3 of 10-hour day shift in the warehouse: Podcast reviews

(And a foster cat and teenager update)

This new work week is certainly moving quickly although each day I come home more exhausted. I’m hurting more once I get home, but I’m fine for the first 9+ hours of my shift. If you don’t know what I’m talking about read these:

Yesterday

Sunday

The teenager kept my car as the last two of our fosters who needed to be spayed went to Canyon River Run today. That would be Mama Danu and her tabby kitten Baile from the Celtic Pride.

She hoped to bake cookies for the platters Feline Urban Rescue and Rehab plans to distribute to the many vets who assist the organization. Her eighth grade boyfriend came over to lend a helping hand so she also taught him to make bread.

Meanwhile I just kept dreaming of an iced cold Coke Zero. And an interesting thing happened — I got to work and there was a 4-pack of 20-ounce Coke Zero bottles with a post-it note declaring them free.

I brought them home. My guess is someone didn’t realize Coke Zero had been relabeled in the same red as classic Coke.

Which my metrics tanked by the end of the day which had me chugging this at 3 p.m. break.

My 4 p.m., I was trembling and about to cry. Do. Not. Repeat.

I treated the teenager to dinner at Tic Toc so she could get her last pay check. We both ate too much.

I did my physical therapy exercises and took a hot shower. By the end of the shower my right leg was very uncomfortable so I took a low dose muscle relaxer and covered my leg, knee and back with CBD Medic’s Arthritis Cream.

One more day.

So now, as promised, let me offer some thoughts on podcasts. The teenager and I compared notes on our Spotify end-of-year wrap up and she thought she was impressive with 17,000 minutes since we started using the service in mid-year. I have 88,000+.

MY FAVORITE PODCASTS I LISTENED TO SO FAR THIS WEEK:

  • This one surprises me. The Ellen Fisher Podcast. She’s a very interesting person with her journey to raise her own food in Hawaii with her brood of plant-based kids and interest in all things calm and positive. I don’t really don’t know how I feel about her podcast — but I recently listened to her episode on Mind Change. It was an interesting discussion of neuroscience facts blended with alternative healing techniques to deal with personal trauma to heal the body of disease and mental illness. The guests on the show discuss their experience that illness, whether physical or mental, is the body manifesting trauma that the person has refused to acknowledge and heal.
  • The Daily. I often force myself to listen to the Daily even when the topics don’t interest me. This week I found myself pleasantly surprised by their coverage of Stephen Sondheim’s death.
  • Snacks Daily. Snacks Daily is a brief podcast from Robin Hood, yes the investment folks. It’s an economic summary of course, but it also provides humor and the business side of the news.
  • I finished Sh**hole Countries by Radiotopia. The American host on that show grapples with the possibility that her Ghanaian parents want her to move to Ghana. Enjoyable but also not what I expected. The host uses much of her platform to talk about her queerness and human rights.
  • The Shit No One Tells You About Writing. Very useful and broad tips about writing, critiquing and publishing.
  • Africa Daily just did a good episode on fistula. I found that a surprising topic. I’m impressed. (Though they did not mention the prevalence of female genital cutting and its impact on the rate of fistula.)

Other notables: Power Hugh Hefner, American Scandal The Lewinsky Affair, Operator, Against the Odds Rock Climbers Abducted.

And here is a video of Nala the Goffins Cockatoo: Nala harassing foster cat tripod Louise

Good night all.