Eating of the things, talking about politics, etc.

First, let’s celebrate that I have no pain today.

Second, let’s celebrate that it’s sun-shining gorgeous out.

Third, let’s celebrate that that damn race between Dr. Oz and John Fetterman is over. Talk about two bad choices.

But it sure was exciting to take my freshly-minted 18-year-old to vote and even more exciting to hear her rant about international politics after she took my out to dinner.

M and I took her to Paris, Moscow and Kazan the summer she turned 12… and while it was a whirlwind visit, she had the brain-expanding experience I hoped she would have.

Because she knows how little of the world she’s seen, but also knows how little she can trust depictions of other cultures perpetuated by the mainstream.

I often wish I could see Russia how she sees Russia. I imagine it’s similar to my view, but also very different because I have seen parts of North and East Africa and even Yemen. But just that little pop of Russia six years ago altered her perceptions forever.

If you want to read more about that trip, click here to start in the middle.

The beginning of the trip is here.

So, last night, The Teenager took me out to dinner— at Applebee’s, she loves the fiesta lime chicken— and we tried the Cheetos cheese curds and the slamming reindeer drink.

The cheese curds were strange, super greasy and very addictive.

Other foods I have taste-tested recently include the cookie butter doughnut at Dunkin which I mention here and some new flavors of delicious Blue Diamond almonds which we bought at QuickChek, video here.

I ended up calling out sick from work today— in part because of my hip and in part because I didn’t get to sleep until 3.

I see my specialist today, and my body is definitely stiff and angled but I’m not in pain. What a thing to say— but I wanted to be in pain to explain how I feel to the doctor.

I’m trying to motivate myself to give up sugar and do a 30 day elimination diet via Whole30 as I think reducing food-related inflammation in my body could go a long way. And there are others who would like to see me try medical marijuana.

A reset? The NaNo Dilemma, a podcast/YouTube interview, and some disability philosophy

I signed up for NaNoWriMo 2022, in part because deadlines and challenges and what feels impossible sometimes motivates me. But between foster cats with diarrhea, work shift changes, health issues and mood in general, I’m losing my focus and drive. I need a reset and an evaluation of my goals more than I need a push.

I have learned in the last five years or so as I’ve “come out” of the disability “closet,” is that when you have a disability or a chronic condition you have a choice: you either withdraw from life or you become tenacious and stubborn and adaptive. I think the majority of those of us with congenital issues, especially when our parents didn’t make our physical difference the center of our existence, tend to be the latter to the point of ridiculousness. We want to do things, whatever they are, and we don’t want our bodies to hinder us.

I think people who came to body differences later in life might be more prone to accept “well I just won’t do that anymore” while younger people with catastrophic injuries have the will to keep on going, and those with issues since birth learn that if they want to experience certain things they have to work harder but in reality we need to work creatively. So the 20-year-old proclaimed paralyzed as the result of a sporting accident will be more motivated to walk again than the 60-year-old who had a car accident.

But these are really complex topics to ponder and very personalized to the emotional and financial resources a person has to support them.

If you read my personal blog, you know I have diplegic spastic cerebral palsy. If you get tired of hearing me day that, I don’t care. I’m 47-years-old and like many Generation Xers out there I’m wondering how the hell that has happened so quickly. But more importantly, and I write this without judgment, I had no real medical treatment between the ages of five and twenty.

I realized– because of my job working in the warehouse at Stitch Fix of all places– that not only do I know nothing about cerebral palsy, but my medical team might not know much either. So no wonder I have a lot of unanswered questions. This week I celebrate my two year anniversary with Stitch Fix and my journey to understand my own body will be forever tied with my warehouse job with them.

Up until December 2021, I had never seen a neurologist. Until that late December visit with a neurologist, I never even had a diagnosis on my file.

And to think, now I have TWO neurologists. I guess I just want to remind everyone, and this is why writing a cerebral palsy memoir will be one of my next projects, that we tend to view our doctors as people in a hierarchy above us and we approach them for answers and with hope of relief. Instead, we need to approach them as peers with education and insight and it’s our responsibility as patients to ferry information between them and do what we can for ourselves.

I had a fall Friday night, after a week long battle with nerve pain in my foot and leg. I agreed to cortisone shots in my foot to see if that would curb the pain in my foot (and it did) but the resulting change in sensation and muscle responsiveness has made this leg (which happens to be my good one) less reliable. Throw in lack of sleep, not enough food and a cocktail and down I went. As someone with cerebral palsy, I need to remember that normal side effects for people who have proper muscle control may manifest differently in me.

So, Saturday morning, I nestled under my new Dad blanket (if you need to hear more detail on any of this about Friday click here) and planned to work on my NaNoWriMo project. Even though I had the time, and the healthy start needed to get a flow going on the project, I didn’t write a word. And I’m wondering if, already having one novel underway and past deadline, if starting another is merely destroying any chance of focus I have.

I have 4,000 words on the NaNo project, which if you don’t know is National Novel Writing Month, and I should be at 12,000 words by now. I had hoped the new project, a new idea which is nothing like anything I’ve ever written, would shake off the bad habits of an editor/publisher debating every word and allow me to write freely. That impetus would revive my ability to write quickly and without overthinking.

And strengthen writing habits.

The jury is out.

I may abandon official NaNo in favor of sticking with a strict writing schedule of rising at 4 a.m. daily before my warehouse shift and writing from 4:15 to 5:15 a.m.

The Teenager has had two overnight clients and I think at last count it had been 16 days since she slept in her own bed. When she arrived home yesterday morning, she looked at me on the couch and her dog lazily dozing and decided we both needed fresh air. So she mentioned key words: “walk,” “ride” and “window.” The dog lost her mind.

The Teenager knows how to bribe both of us.

She recently bought a new harness and long line for the dog. So we went to a small park to try it out. The park outlaws tobacco, alcohol, fireworks, drugs and golf. But dogs are okay.

There’s a cute video on YouTube of F. Bean Barker enjoying the outdoors.

And then we went to “the Window.” Which in this case meant Dunkin as it was still early and we sampled their new Cookie Butter offerings, the cold brew and the doughnut. Both were dangerously decadent. The doughnut is 370 calories so I’m hoping it sells out to the extent where I can’t get my hands on it.

I went to the park and the window in my pajamas, because it was a gloomy Saturday and I didn’t see the point of fancying myself just to hang out with the dog.

I spent a good portion of the day doing dishes and laundry and watching “Wheeler Dealer Dream Car” on Motor Trend’s streaming channel. I subscribed to Motor Trend last month so I could binge watch the Dax Shepard redo of “Top Gear America” and I may hang on to the subscription as I enjoy the content. The Teenager finds this perplexing as she knows I have no mechanical aptitude.

She classifies my car knowledge as “it looks pretty” and “it goes fast,” but I suppose my interest is similar to my fascination with haute couture sewing. I have read my haute couture sewing guide cover to cover (and yes there is such a thing) and I can’t sew to save my life.

I suppose I am a true academic. Reading and obsessing over knowledge of things I will never have the skill to do.

Then, the Teenager found “her box” on the doorstep, her third fix from Stitch Fix!!!! So we opened that bad boy.

I think The Teenager is disappointed that her box doesn’t have more flare, but the staples she receives is really improving her day to day look. As a dog walker, I am now seeing her in these Stitch Fix selections as a way that she can maintain comfort and still look put together.

If you watch the YouTube review, you’ll see more of The Teenager in what she calls her new “math teacher sweater.” It’s a keeper. It’s about 16 hours after she received it and she’s still wearing it. Stay tuned to see if I steal her shoes and keep them.

Later in the day, I had an interview with David Figueroa of David’s Cerebral Palsy and Fitness Channel. I have explored his YouTube content and I listen to his podcast. I am working hard to take charge of my aging process and I hope my message of the importance of strength training and my approach to medical advocacy resonate with people.

We talked for an hour and a half. I’ve included a link to his YouTube channel below. Let’s hope the chaos of my house wasn’t too distracting! But one disruption I welcomed was the motorcycle that passed by while I was talking about my father.

I ended up sleeping more than nine hours last night, and woke up this morning covered in cats. I hope your time-change-hour served you as well as mine did. Here’s a photo of me with the fosters, and it’s blurry because I took it without my glasses.

Cats, doctors and Dunkin’

I was up until 2 am last night cuddling kittens and watching Gotham Garage on Netflix.

The Fluff butts of the Norse Pride are battling ringworm— the teenager and I also have that fungal delight.

When I woke this morning around 7, I saw an email from my new employer StitchFix telling me that my orientation is 6:30 am to 3 pm on Monday— and my doctors appointment for my blood pressure, itching, anxiety and cerebral palsy. But now I also have ringworm and some aching in my ribs from my fall.

I really didn’t want to start my new job with all of these things untreated. Luckily my doctor’s office had an opening today.

And I had trouble with all of the apps to do the paperwork for StitchFix. Still haven’t straightened it out.

I decided to change up my makeup for Zeus and Apollo’s adoption today. Teenager #1 and I headed to Chaar to meet their new family.

I hope they send lots of photos!

I promised the teenager an egg wrap from Dunkin on the way home but for some reason the app wouldn’t let me order eggs.

The doctor’s visit went fine and their social worker will call me to help with Medicaid and whatnot.

On the way home from the doctor, I finally got the egg wrap for the teenager, a doughnut with sprinkles for the other teenager, a glazed doughnut for my friend who was coming over, and I finally got to try the sourdough egg sandwich.

MY REVIEW

The bread is bigger than the eggs. Very spongy and I feel like it would make delicious toast. I feel like the bread would be better as a side. Or as a BLT. For $5– I’d rather have one of their other egg sandwiches.

Dunkin and Wawa got it right

I finally got to taste the Dunkin Spicy Ghost Pepper Doughnut. I’m very glad I haven’t tried it weeks ago because it was delicious.

I was a little disappointed that it wasn’t as pretty as the photo, but such is life.

The doughnut itself was their basic glazed doughnut without the glaze. More moist than their basic cake doughnut.

The ghost pepper was incorporated into a sweet icing with little bits of decorative red sugar. The pepper flavor was present from the first taste, then came the sweet icing, then the finish was a heat that hung in the throat pleasantly but didn’t destroy your mouth.

YouTube: Tasting the new items

My business partner wanted to stop at Wawa so I got an iced coffee and opted to try the French toast flavor. I loved the vanilla and cinnamon notes, and while I’d like to dial back the sweetness I can tolerate it as made. Wawa doesn’t allow as much customization of drinks compared to Dunkin.

Tasting everything

If you’ve read this blog at all you already know several things.

  1. I love to try new grocery items.
  2. I love to save money while shopping.
  3. I love The Grocery Outlet.
  4. I make a lot of ridiculous videos that combine all of these things.

So today, I hope to enjoy some “brain off” time by tasting things and making silly videos. Here is the first one: Birds Eye Cauliflower Buffalo wings vs. Morningstar Popcorn Chicken

Later in the day I did a taste test of doughnuts — Giant Bakery vs. Maple Doughnots at Grocery Outlet. Fog crashed this video so you can get the cat’s opinion, too.

The Doughnut Debate on YouTube

And of course the teenager wanted to try something so she tried the ranch flavored Pirate Booty.

Review of ranch Pirate Booty: YouTube

And now as I mentioned in an earlier blog entry, I am mixing the Positive Beverage Cucumber into a gin cocktail and chatting with one of my Sarahs.

Mixing a cocktail: recipe here

Silly, sweet Saturday

So, I have come to the conclusion that all I have to do is call Nan and ask, “Are you busy?” and she will grab her white cane and meet me by the door.

Unless NASA has something going on— like a hatch opening or a spacewalk or a launch or a capture.

Today the teenager got up early, at 8 a.m., which in teen time is somewhere between “I had no idea the sun came up this early” and “wow, I can eat breakfast at actual breakfast time.”

Speaking of breakfast, the foster kittens have learned the word “breakfast” and their little ears perk up when you say it.

The teen wanted to go to Petco and Dollar Tree, while Nan and I had our eye on a brief trip to Grocery Outlet to look for smoothies and lentil pasta. Their circular advertised Bird’s Eye steam-in-bag lentil pasta, which Nan and I both like, for 99 cents.

It normally runs $3-4 per bag.

As a blind person, Nan likes the fact that she can make lentil pasta without dealing with boiling water as one has to do with traditional pasta and it’s not a mushy mess of preservatives like canned pasta.

We were both disappointed to discover that they only had lentil/zucchini pasta with olive oil, as opposed to the “sauced” varieties.

But I get ahead of myself. As I mentioned yesterday (see Growing Up), the teenager is now driving. This trip with Nan— because of course she said yes she’d come— would be her first trip with the teen behind the wheel.

Yesterday, we not only drove several highways but I took her to Wendy’s to try the drive-through. She aced that.

We set a rendezvous time with Nan for 10 a.m. and head to the car with a sneak peak at the garden. My fancy little imported peppers have started to grow, and the massive pumpkin vine that originated in my compost heap has started to yield pumpkins not on the ground but on my fence.

Petco passed without incident and Grocery Outlet had minimum disruption as well. But the teenager found Maple Doughnuts (as a brand name) in an unlabeled decadent 12 pack that weighed at least four pounds for $1.99.

“Quality you can see since 1946,” I chuckled while reading that to Nan.

The plan quickly morphed into a trip for coffee at Dunkin’ and doughnuts from Grocery Outlet. The teenager helped us load up the car and she headed to the Dollar Tree and we contemplated beverages.

Except McDonald’s was closer and cheaper. By the time the teen returned we were still deciding because I had a coupon for “buy one milkshake and get one for a penny.” But we had doughnuts.

Nan wanted a chocolate shake but protested that she was pretty sure drinking milkshakes before 11 a.m. was frowned upon, in the same manner as day drinking.

I assured her it would be 11 by the time we received the milkshakes.

So I ordered one small chocolate and one medium strawberry milkshake and one large Diet Coke.

One of us had to pretend to be sensible.

10:35 a.m.

The drive thru is ridiculous. But that’s how it is now. The line at the McDonald’s is like a trip to the DMV whereas getting your learner’s permit at the DMV is relatively instantaneous. Another Covid-19 reality.

11 a.m. — to the minute— we receive the shakes. Nan and the teenager split a chocolate doughnut. I eat a cake doughnut with icing and crystallized sugar. And then a glazed donut with chocolate icing and a thick layer of maple icing.

A relaxed and joyful start to a sweet Saturday morning.

Cruising the Cemetery with Palmer Kiwanis

This morning I forced the Teenager out of bed, bribing her with the prospect of a dog (which happened to be a Newfoundland) and a doughnut (from Easton Baking.)

The Highmark Walk for a Healthy Community has gone virtual this year and typically we raise almost $10,000 at the office for our nonprofit. The Palmer Kiwanis are our largest/most lucrative fundraising team. They are organized by Debbie Ashton-Chase, a ProJeCt board member and one of the lovely people who own and operate the Ashton Funeral Home.

Today, on this lovely summer solstice, the Palmer Kiwanis hosted their version of the Highmark Walk at the Easton Cemetery.

At the Chapel

The weather held out and the group was jovial. They cemetery provided historical guide books which made my history nerd self very happy.