A day in the life— medical update, meal plans, sunshine, animals and publishing

I make a lot of lists.

Sometimes my journals are nothing but to do lists and shopping lists. But I like lists— even if I never refer to them again, the act of making a list allows me to stop thinking about things.

If I want to refer to it later, I know where to look, but I no longer have to worry about forgetting as if I want to remember or revisit items from an earlier day I can but I am not staring at a list focusing on what needs to be addressed versus what I actually did.

Many people make lists to receive the satisfaction of checking off the things that are done. I don’t do that. Sometimes I do, but now it’s more like I am acknowledging the list versus trying to conquer it.

I used to finish my list every day or stress over the things I didn’t get to, and on top of that— the list never made me feel better or more in control.

It just exhausted me.

Trapped and the Cover for the Anthology Arrive

Parisian Phoenix’s first contemporary romance has arrived and it looks great. Read more about that here.

But I also received the cover for Not An Able-Bodied White Man with Money, which I will be blogging about on the Parisian Phoenix site this weekend.

And I have a 4 p.m. meeting today with another author who I have been hoping would join our family.

Now if only I could finalize some of our business documents to really move the projects forward.

Yesterday (Voluntary Time Off) and evaluating my health

Life at Stitch Fix’s Bizzy Hizzy has been odd lately. We’re shipping something like 8,000 fixes a day and having the opportunity for voluntary time off.

Last week, I performed at pretty damn close to 100% without pain or significant mobility issues. This week, issues started mildly during my Sunday shift and deteriorated Monday & Tuesday, leaving me at 80% and crying myself to sleep. I talked about this here.

I’m very much wondering if my menstrual cycle has something to do with it, as the Mirena IUD has done miracles for my pain and issues in that department but has made my cycle irregular. I think my body is trying to menstruate later than usual.

I was taking inventory of my recent balance, mobility and functioning issues as today I had my annual “wellness visit” that the office rescheduled from last week.

I took VTO yesterday to allow myself some rest and some time as life (and grief from my father’s death two months ago) has gotten chaotic and overwhelming.

And I made the teenager and I grilled cheese as I had promised to do, and the child acted like I had prepared filet mignon for her.

I have a feeling I will be repeating that after school today.

We also watched Miranda Sings Live on Netflix. The teenager went through a time when she watched the show, so that was weird. It always amazes me how much talent it takes to perform badly.

The doctor today

I have spent more than a decade assembling a talented and caring medical team, so now I can confidently say any issues with my medical treatment stem from the system and not from my doctors.

The doctor and his resident agreed with my assessment that it’s time for me to get into the physiatrist and that their office will advocate for me on that as well, and that my instincts and approaches are correct.

I learned that women more so than men tend to favor one side when they move or stand. As women age, this tendency can create problems. That means this is a problem normal people have and not just a result of cerebral palsy.

And most interestingly… I learned that women more so than men tend to favor one side when they move or stand. As women age, this tendency to let’s say ‘lean’ can create problems, just like what I am experiencing now with my right hip and right leg/foot. That means this is a problem normal people have and not just a result of cerebral palsy.

I reiterated to them that I do know I need to lose 20 pounds, but that we have some issues to address before that.

The psychology of emotional and physical pain

When I was turning 40, I embarked on a journey to lose five pounds and gain muscle. I inadvertently lost 30 lbs and ended up a skeleton and regained some weight to look like this:

That was about 30 pounds ago. I have no need to be that lean again, but I’d really like to see 135 lbs again— which means I need to lose 20 lbs.

I told my doctor and his resident— I know I can’t eat an entire bag of cheese puffs or Wawa bowl of mac and cheese and brisket after dinner. But I’m struggling with depression from my body pain and my father’s unexpected death.

I’m grateful I haven’t turned to alcohol like many in my family, but I have “given in” to food as a psychological crutch.

I pay almost $300 a month for a personal trainer, but I can’t work as hard as I want to because I hurt and I feel like I need answers as to how to move my body so it doesn’t hurt. Because if I could exercise more and move more, I wouldn’t sabotage myself by eating garbage (or if I did, I would be active enough to balance it).

But right now, when I come home from a ten-hour shift with my body twisted and aching badly, and wishing I could call my dad so he could make me laugh and tell me how much it sucks to get old, I grab junk food because it’s the last pleasure I have.

I can’t move without pain so if I’m going to be forced to get fat and lazy I might as well enjoy the process.

These are ugly thoughts and I know that, but I’m being honest.

The fun stuff: errands with Nan

After leaving my primary care doctor, I called Nan as we were scheduled to do some errands together. We stopped at Wawa for some hot caffeinated beverages (cafe con leche for me and vanilla chai for Nan).

Among other stops we visited Park Avenue Market and Deli, one of our favorite haunts known for its deli, salads and meats.

Although I am once again contemplating more of a vegan diet, which will make the teenaged carnivore wince, I am not ready to commit until I feel better. We must achieve discipline before we enact change.

I never got around to meal planning yesterday so I didn’t have a list. I ended up spending $36.89 and I think the results will work.

I purchased: two packs of beef jerky, one small box of minute rice for the teen, three or four teeny tiny bags of Wise snacks from popcorn to potato chips, meatballs, the biggest damn carrot I’ve ever seen, frozen vegetable medley with potatoes and garlic herb sauce, sweet potato crinkle cut fries, pork roll, Lebanon bologna, liverwurst, turkey, olive salad, a store-baked pig ear for the dog and something called “hot pepper shooters”— round hot peppers stuffed with prosciutto and provolone.

Rough meal plan

My rough meal plan for the next week or so is:

  • Sandwiches
  • Meatballs and green peppers, either as a sandwich or in pasta
  • vegetable lasagna still in the freezer from last week
  • Burgers and fries, using ground beef from the freezer and the sweet potato fries
  • Cold tortellini salad with roasted carrot, olive salad and seasoned broccoli (broccoli is in the freezer)
  • Pork roll and egg sandwiches
  • Chicken and the frozen vegetables and rice or other grain

PS— we also welcomed a new foster into the house. Her name is Babs. Meet her in this video. I need to make her a page.

Joy, pain and food

First some recent food:

From Hungryroot.

I have been saving these for a night when I needed a quick dinner. It’s been a challenging week at the Bizzy Hizzy. So I’m glad I had them. The teenager and I both enjoyed them. and this multigrain flat buns are one of my favorites.

Sunday I made this:

The teenager made the meatballs out of ground bison, also from Hungryroot. The tomato sauce was Classico Italian Sausage with peppers and onions and I sautéed everything with some fresh green peppers, Brussel sprouts and sliced green olives. It was amazing. Both served with small shells and also with melted cheese as a sandwich.

The other night, the teenager and I watched Black Panther, which will be discussed in a later post. I tried this popcorn that I got at Lidl for 79 cents.

Chesapeake Bay Style popcorn. Very highly seasoned and nasty. I threw the whole bag out after trying it.

And I never waste food.

But this week has been hard— my body has been hurting in ways I’m not accustomed to. And that’s hard physically and emotionally.

Sunday I worked a decent shift at work but we left early— at 2:15 p.m. instead of 5 p.m.!

But yesterday I was moved from my normal spot on line 5 to the spot behind the shipper/style carder on line 1. It was a poorly set up table that required moving three steps from the table to the line, and then one had to rearrange the boxes to make room.

And the person receiving the boxes rejected many for no good reason AND worked so slow the line was always jammed. Finished the day in pain and at 80% of metrics.

But I got to style card too and that was fun.

Today I was back on my line, but my computer was lagging. Finished the day at 80% again.

And in pain.

I cried myself to sleep last night. Hopefully tonight will be better.

My cat Fog

The Grateful Friday

Yesterday I cleaned a lot of my downstairs and had a relatively good work out at Apex. I haven’t felt incredibly strong lately, but my IUD must be working because I’m not in pain.

I had a good week at work, so cleaning, working on Parisian Phoenix projects and watching Cobra Kai suited me just fine yesterday.

I even found two of the dog’s Kong balls under the couch which made for a very happy dog.

Today, I was supposed to have my annual physical but my doctor’s office called yesterday and rescheduled for next week— which also means another week without answers from my CT scan and physiatrist referral. Neither the neurologist nor the physiatrist’s office has called me back.

And I need a doctor that can help me understand the motion and mechanics of my body, and not just its individual parts.

Today I scrubbed the exterior of the stove and did dishes. Then I went to help my blind friend Nan with some errands and grocery shopping.

We made plans to pick up some pizza at Little Caesars so Nan could try the Batman Calzony. No matter how I tried I couldn’t explain what it was to the blind lady. So we bought one.

But we had time to kill before the teenager got out of school even after we put groceries away. We grabbed the dog and got drinks and hash browns (for the dog) at Dunkin.

And then we surprised the teenager with the dog at school.

Then Joan stopper by to drop off some hand-me-down magazines and erotica, cupcakes and photos that Joan needed us to sort.

Now, I’m cuddling with Louise, watching Gotham Garage and enjoying kitten photos.

Rainy Icy Friday

I don’t have many plans this weekend— defined by my work schedule as Thursday, Friday and Saturday— in part because my body has been unpredictable, the weather has been crazy and the teenager’s work schedule varies.

I went to the chiropractor at 5 p.m. on Wednesday, leaving work 30 minutes early to get the last appointment of the day. I wanted Dr. Jensen to see my body after four ten-hour shifts in Stitch Fix’s Bizzy Hizzy warehouse.

And, for the second or third week in a row, I could barely crawl home on Tuesday night but felt pretty good on Wednesday. So I feel like I’m not getting closer to solutions to my physical issues.

Yesterday I tried to do some work for Parisian Phoenix, did a lot of laundry, visited briefly with a friend I’ve missed and haven’t seen merely enough of, taught a high school student how to write a press release, watched several episodes of Cobra Kai, ran the dishwasher and went to the gym.

The teenager working on her squat form

The teenager did a lot of work on her squat form while I did some accessory work. I also weighed myself— 157 lbs. Sigh. Still 20 pounds overweight.

Then we had Taco Bell, including the new Cinnabon balls.

Today I worked on the index for the Parisian Phoenix nonfiction anthology on marginalized identities, Not an Able-Bodied White Man with Money, which I will be blogging about on the Parisian Phoenix web site later tonight. F. Bean Barker was my helper.

Indexing is only half complete and man does it allow me to interact with the text in new ways.

Louise has an appointment with a potential adopter tomorrow and today she was quite cuddly, video here. I don’t know how she’ll do in the backroom of PetSmart but all least we’ll be with her.

Nala and Louise

In the afternoon, I accompanied the teenager to her audiologist appointment for a tune-up on her hearing aids.

Then we went for shoes. The teenager needed some and I wanted to buy a warmer pair that fit more loosely — hoping that would ease the blistering and burning in my toes.

The teenager got new black Vans and a new design, the orange blossom Vans.

We ran into Target just to use the bathroom and I told the pouty teenager we could get a drink at Sonic. But turns out Sonic is still drive through only, so if you can’t have drive-in service what’s the point of visiting Sonic?

So we went to Sheetz, and had appetizers. Which would have been fine if the teenager hadn’t suggested going to see her grandmother, my mother-in-law. And her aunt— who recently destroyed her elbow falling on the ice.

We’re finishing Captain America: Civil War right now. The ice is slowly building up outside as the cold rolls into town. And Peter Parker just made his debut in the series.

Saturday morning— gym, meal plan & prep

The teenager and I headed to the gym this morning for the first time in a while. I did a gentle lower body workout to stretch everything and get my body rolling after the chiropractic adjusted just about everything yesterday. Even my ears.

The teenager wanted to find her max weights for powerlifting— which seem to be 100 pounds on bench and at least 155 on squats.

Tomorrow I head back to work after a weekend of falls and rest.

So that means meal planning and meal prep.

Our Hungryroot box came yesterday and since the app showed they didn’t have much product, I focused our box on mostly proteins.

With leftovers from last week’s box, the new box and pantry items I had in the house, I made this:

  • Chickpea rotini and beef meatballs with marinara and superfood tomato sauce.
  • Lemon pesto broccoli
  • Homemade pesto hummus
  • Omelet (with green olives)
  • Tempeh bacon
  • Brown bread

We also have leftover pizza and pancakes.

So for breakfast after the gym, the teenager had omelet with mozzarella and tempeh bacon on organic, sprouted everything bagels. I went vegan and had my bagel with my hummus and tempeh bacon.

And last night, the teenager and I went to my stepmom’s for Christmas and I got my hand bag. I have been admiring this Urban Expressions work tote since I started at Stitch Fix. I have one now.

Little wins

It’s Wednesday night— which is my Friday! The Bizzy Hizzy has been a tizzy of Covid cases during this mandatory overtime week.

I’m doing my eight hours of overtime on Saturday.

Tomorrow I’m returning to the gym—the pandemic has also altered my training schedule.

And tomorrow, Georgie gets adopted! Yes, Georgie, our lovable former community cat from downtown Allentown, will be going home to a family where she will be the only pet.

I’m told Louise has an approved adoption application— but this is her third so I am not as optimistic as I should be. The person who applied for her wants two cats so FURR has suggested Khloe also be considered.

If these three cats get adopted— after Danu, Brigid and Aîné all getting adopted since December— I may weep tears of joy.

This week my body experienced all sorts of aches and pains, but I still managed to fold what I felt was a respectable amount of clothes for Stitch Fix. And today was our monthly employee luncheon— chicken Caesar wraps, tomato soup and carrot cake.

And on our final break of the day, everyone from my old shift got sweatshirts.

It’s kinda silly, but at the same token, it commemorates a special era of my life and celebrates the camaraderie we had on second shift. And believe it or not, even though we are scattered among the day shift, we still function as a team.

After work, the teenager invited me to Tic Toc family restaurant where we enjoyed grilled cheese sandwiches.

Ingram finally shipped Darrell Parry’s poetry book (Twists: Gathered Ephemera). And several other Parisian Phoenix titles are coming together. Perhaps as many as three titles releasing before the end of February.

Speaking of Parisian Phoenix, I emailed my class correspondent at Lafayette College and he ordered my first two novels.

And finally, side note… Actor Tim Daly was on the most recent episode of the podcast Hypocondriactor. I love Tim Daly. And I found myself comparing him to Anthony Stewart Head, you know… Giles on Buffy the Vampire Slayer.

I was specifically comparing Daly’s character on Madame Secretary to Head’s role as the school librarian/watcher on Buffy. Both were nerdy academics with interests in obscure topics.

Hungryroot meal prep for week ahead

On Saturdays, I tend to make my work lunches and make a loose meal plan for the week ahead.

I ordered an extra Hungryroot box after the snafu of last week’s shipment as we have almost eaten everything in the pantry and freezer.

And since I have heard there is mandatory overtime this week and I have already signed up to work next Saturday, I ordered a box to be delivered this coming Friday.

I have a $15 credit currently on my account and should see an additional $87 credit hopefully Monday.

Meal prep with Hungryroot groceries: superfood blend, salmon, kohlrabi noodles, beef meatballs, turkey meatballs and tortellini

I put most of the teenager’s food into one big divided container so she can design lunches.

For myself:

  1. one lunch of kohlrabi noodles with marinara, shredded parmesan, nutritional yeast, two beef meatballs and two turkey meatballs
  2. one lunch of kohlrabi noodles with thai peanut sauce, superfood blend, and broccoli
  3. one lunch of teriyaki salmon, superfood blend, sesame ginger sauce and sesame seeds
  4. One lunch of tortellini in kale pesto with shaved Brussel sprouts

Dinners will include nachos or tacos with chicken, cuban beans and avocado. Another of burgers, sweet potato fries and my “popcorn” cauliflower, and some sort of stir fry or grain bowl with the remaining brussels and/or cabbage, one of the leftover sauces and tofu burgers.

But by the time I made everything, I forgot to save a meal for today. So the teenager and I tried Hungryroot organic peanut butter on her homemade cinnamon raisin bread with a side of the dark chocolate banana bites also sent by Hungryroot.

Her assessment of the peanut butter: “I don’t hate the peanut butter.”

The bites?

“These don’t taste like banana.”

I looked at the package. “That’s because they are salted caramel chocolate cashews.”

The verdict?

Teenager very much likes the cashews and doesn’t mind the bananas, though the cashews are infinitely better.

Simplify: a health update and a Dunkin review

I went to the chiropractor yesterday. Nicole at Back in Line Chiropractic and Wellness Center warned me that she “beat me up” more than usual.

That’s amusing to me as I was in an incredible amount of discomfort and she eliminated 90% of it.

I explained everything going on— my stress, my lack of good sleep, the possibility I had omicron, not eating right or taking my vitamins, not stretching or working out, and working overtime.

But as soon as she touched the back of my right hip, the tenderness immediately told me there was an issue I hadn’t thought of: my hip.

I need to remember that when I struggle to use my legs I might have an issue with my hip.

This post explores the last time I had this same issue: click here.

And if you look at that entry, you will see my mental health had declined in similar proportion to what I experienced earlier this week.

Pain and shifts in mobility really do have profound effects on our mental health.

So maybe next time instead of focusing on all the things that are going wrong and contributing to my lack of function and mental health, I need to be quicker to ask for medical intervention because — as I already know— I can’t trust my pain.

My pain recently didn’t feel that bad. But all the signs, including 65% work performance indicated otherwise.

I really need that physiatrist appointment to get scheduled.


In cheerier news, I recap some of this in a YouTube video I did yesterday while trying the “brown sugar cookie” latte and new egg bites at Dunkin.

See the video here.

If you want the PowerPoint version of my impressions:

  • The Brown Sugar Cookie flavor is boring. To me, it tasted a bit caramelized and like “toasted white chocolate” syrups. I miss peppermint for Christmas and pistachio for spring. These flavors now only come in peppermint mocha or pistachio mocha. I don’t like mocha in my coffee. Unless my friend and colleague Mary Barnes, now deceased, was the barista making a salted caramel mocha about eight years ago before everything came in salted caramel mocha. Starbucks always introduced it for the holiday season. But back to Dunkin and Brown Sugar Cookie, the teenager compares it to gingerbread. I didn’t get the spice of ginger.
  • The bacon cheddar egg bites… these were expensive but at 17 grams of protein and 280 calories they can substitute for a meal. But $4.99 for two miniature donut shaped eggs? Cute, definitely. Firm and crisp on the outside. Soft on the inside. Smoky, cheesy flavor. Again, boring. Strange mouth feel. But a very practical and utilitarian option.

Rebuilding

My blog entry Monday focused heavily on the decline of my mental and physical health— and how I attributed that decline to the death of my father on December 15 (three weeks ago today) and the stress that has put upon me, my family, and my routine. I also think I may have had a bout with Omicron pre-Christmas which may be part of why my body cannot seem to get appropriate physical rest.

I shared these things because these tribulations are key for the story arc; success and overcoming mean nothing without context.

And if you are someone fighting with similar discombobulation, you might find comfort in my words.

That post is here.

The last few days the pain in my spine has been increasing and my control over my legs is lessening. To walk requires more concentration and effort than I am used to. According to my iPhone, my walking symmetry was a mess yesterday morning. And now today, as temperatures plummet, my right knee has shooting pain.

I am guessing— and purely guessing— that my stress level is exacerbating the spasticity in my lower limbs making legs that can’t relax even more tense.

I haven’t been eating right, and with the lack of good food, I don’t take my vitamins. And when I do eat enough to take my vitamins… Well, I may have eaten half a Hawaiian Luau deep dish pizza from Little Caesar’s.

I cried with my psychologist yesterday in a long-awaited therapy session where he had to recount to me all my strengths while simultaneously making me laugh.

But this gave me the courage to call out sick from work today, sleep in and start the day with my Yoga cobra pose physical therapy sessions (and then take a much needed shower).

In waking up slowly, I had the opportunity to gently force my lower limbs into motion. Walking feels a little more natural.

I had a chiropractor appointment scheduled for Friday and they literally just called today to see if I’d rather come in today. They say it is due to the threat of inclement weather but I think they read my mind.

My last chiropractor appointment was at least two weeks ago, because of the holidays, and I wonder if something might be pressing on a nerve since my right quad is burning again.

And still no work from the physiatrist about securing an appointment or the neurologist about whether my insurance will allow my CT scan.

In other news, Hungryroot gave me a $96 credit for the box that arrived late, less than cold and covered with chemical goo. I didn’t anticipate an issue with them and I had already gone ahead and ordered a new box which arrives tomorrow.

My timid tripod foster cat Louise still insists on cuddling me whenever I am in or on my bed. This upsets foster cat Khloe who likes to believe she is my favorite.

And the dog, F. Bean Barker, ate some more of my furniture.

And I’m starting to think my cat fostering peer might be the only one keeping up with my Fashion and Fiends series as she posted a review on Amazon recently.

The teenager submitted a photo of her and her grandfather for the high school yearbook baby photos. This photo was taken at the West End Fair where my dad was participating in a tractor pull. It was the first major outing I undertook with the baby by myself.

Nan will be coming over soon so we can do some more work on Not an Able Bodied White Man with Money. Which we will do over turkey bacon and omelets.

Let’s hope the next few days bring my body and my mind some relief.

When Grief Manifests as Panic

It hasn’t even been a month since my employer eliminated second shift in favor of a seven-day-a-week operating schedule.

It has been about six weeks since my doctor ordered tests to try and pinpoint the cause of my spine, hip and leg pain. And about five weeks since the x-rays revealed a spine, that as my doctor said, wouldn’t be a problem if I were 70 or 80.

My dad died almost three weeks ago.

It has been several weeks since Omicron has soared across the world— and I discovered today, today, that Omicron grows best in nostrils and doesn’t take so well in lungs.

Did I have Omicron before Christmas? When I had stopped taking my allergy meds because of the funeral and had a congested head?

We had ten new cases of Covid at work today. This is the highest count ever. Most of the people who attended my father’s funeral have it. Curly, my college roommate, went home from my house to discover her teenage son had it.

My psychologist tested positive. My trainer did, too. My neighbor did. My other neighbor’s employer did.

It’s been almost two weeks since my neurologist appointment.

It’s been five days since my Hungryroot order shipped.

It’s been four days since my head CT was canceled.

It’s been four days since foster cat Danu went to Pet Supplies Plus.

Danu, gentlest cat ever

My grief has heightened my anxiety and has me lost in feelings that I am surrounded by love but I lack enough support. My feelings swirl in my chest and manifest as panic, panic I am too often stuffing away or channeling into tears.

My Hungryroot order came around noon today, after being shipped on Thursday. And the cooling gel pack exploded. Coating all the food. The food arrived bathed in some sticky chemical and warm. I contacted customer service but they warn they are busy and may take 48 hours to get back to me.

And in the meantime, I don’t know if it’s safe to eat the food. At least, the food in packaging. My guess is no. I hope they refund my money. But I ate everything in the pantry over the weekend and now I am out $100 and have no food.

And as I threw items away, I noticed the chicken they shipped me was dated, use by 12/21/21 and they sent it 12/28/21.

Sigh.

Then I got a text from my cat foster godmother: Danu was missing her rabies shot so she had to come home.

Normally I can handle this. But my numbers at work were around 65%, my body pain felt like my bones were burning, and then another member of the cat group sent a long message about how monitoring the medical records of the cats is important.

The vet was supposed to give Danu and all of her kittens the rabies vaccine when they were spayed and neutered. The vet didn’t. I didn’t notice. I screwed up.

Between the medical issues, the family drama, the grieving process and the shift change, I can’t get it life under control.

The second I empty the dishwasher, reload it and run it again, the sink is full. The toilets are dirty. The cats eat the dry food in the gravity feeder as soon as I fill it. The dog keeps eating things.

I’m not sleeping well.

And I have no time left to do anything I enjoy.

So my business plan for Parisian Phoenix is lagging behind.

I pick myself up and look at the positives every day, and every night I fall into bed defeated.

But this too shall pass.