Small goals for a rainy day

I don’t have the energy and the endurance that I once did. I can no longer drive myself to clean the house in a frenzy or bake all my bread from scratch.

I’ve gotten older.

My… constitution?… does not maintain consistency. Whereas it used to be my moods that swung, now my body’s functionality waxes and wanes.

So far today I have:

  • Folded laundry, and done another load
  • Did the hand wash dishes
  • Cleaned most of the stuff off the corner table
  • Had a glass of water, and a glass of iced tea
  • Cleaned the cat boxes in my room
  • Fed the bird
  • Vacuumed
  • And made amazing vegan flautas with Hungryroot cashew cheddar

I started Five Days at Memorial on Apple TV while I hung out with the dog.

And made great strides cuddling foster Jennifer Grey.

FURR Foster Jennifer Grey

With my walking being so unstable, I’m extra proud to announce that Friday night I squatted 135 lbs.

I started taking the Baclofen my neurologist prescribed and we’ll see if that makes walking easier.

And I’ve been sleeping 9-10 hours a night over the last few days so hopefully that also means my body is getting some recovery time.

Last but not least, I’ve been trying really hard to reduce sugars, refined carbohydrates and processed foods from my diet to test if that will lower the amount of inflammation in my body.

Eating of the things, talking about politics, etc.

First, let’s celebrate that I have no pain today.

Second, let’s celebrate that it’s sun-shining gorgeous out.

Third, let’s celebrate that that damn race between Dr. Oz and John Fetterman is over. Talk about two bad choices.

But it sure was exciting to take my freshly-minted 18-year-old to vote and even more exciting to hear her rant about international politics after she took my out to dinner.

M and I took her to Paris, Moscow and Kazan the summer she turned 12… and while it was a whirlwind visit, she had the brain-expanding experience I hoped she would have.

Because she knows how little of the world she’s seen, but also knows how little she can trust depictions of other cultures perpetuated by the mainstream.

I often wish I could see Russia how she sees Russia. I imagine it’s similar to my view, but also very different because I have seen parts of North and East Africa and even Yemen. But just that little pop of Russia six years ago altered her perceptions forever.

If you want to read more about that trip, click here to start in the middle.

The beginning of the trip is here.

So, last night, The Teenager took me out to dinner— at Applebee’s, she loves the fiesta lime chicken— and we tried the Cheetos cheese curds and the slamming reindeer drink.

The cheese curds were strange, super greasy and very addictive.

Other foods I have taste-tested recently include the cookie butter doughnut at Dunkin which I mention here and some new flavors of delicious Blue Diamond almonds which we bought at QuickChek, video here.

I ended up calling out sick from work today— in part because of my hip and in part because I didn’t get to sleep until 3.

I see my specialist today, and my body is definitely stiff and angled but I’m not in pain. What a thing to say— but I wanted to be in pain to explain how I feel to the doctor.

I’m trying to motivate myself to give up sugar and do a 30 day elimination diet via Whole30 as I think reducing food-related inflammation in my body could go a long way. And there are others who would like to see me try medical marijuana.

End of week update: the stats, the hip, the fitness, the coffee

Yesterday might summarize recent trends in my life. I know I posted a blog post before I left for my last 10-hour shift at the Stitch Fix Bizzy Hizzy. Monday I start a more traditional Monday through Friday shift. I’ll get home earlier, but I lose a day off. And I’m used to having Thursday and Friday off which is nice for running errands, making appointments with doctors and professionals, and for connecting with people regarding my business, Parisian Phoenix Publishing.

I still had my Friday nights and Saturdays, even if I had to head to bed earlier than most people want to on Saturday night. Many well-meaning friends and everyday people have made comments like “well that will be nice,” “no more long days” and “you’ll have your weekends back.”

But I’ll no longer have that feeling of “getting work over with” and I’m no longer part of a unique cohort. We worked alone in the building on Sundays, and that was peaceful, and for two hours every afternoon, we more or less finished the work the traditional day shift left behind.

So, I arrived at work yesterday morning, basking in the bliss of using my new Ninja DualBrew correctly. (I still have to buy coffee filters, but I love the ease of use, the temperature of the coffee, the different settings for the strength of coffee, AND how I can select just the right amount of coffee for me. The reservoir is cool for me, because it removes one more decision or step to screw up. I have been known to double fill the coffee pot when I forgot I already did it.)

On Sunday, I normally perform between 100 and 105 percent of daily metrics. I may have once hit 108. This Sunday, I hit 97. This annoyed me. It was the first sign that something was off. On Monday, I kept struggling. I didn’t really notice anything physically wrong but I did note that my toes on my right foot were really burning by the end of the day. Andrew, my wonderful coach at Apex Training, had asked if we could move Monday night’s session to Tuesday. I said sure.

I busted my butt for the rest of the day and hit at least 99 percent, but I may have hit 100. That’s when I noticed some residual issues in my body. Just that nagging sense that something was not right. I attributed it to working hard and not having my regular Friday appointment with Nicole Jensen at Back in Line Chiropractic and Wellness Center. She had a class on Friday, so she had moved clients.

Tuesday I could feel my right hip turned wrong. It was a weird feeling, like my leg was facing the wrong way. In reality, it might not work that way but that’s how it felt. And my right hip was very tender to the touch. I still didn’t have any pain, but movement was getting harder. So I tried to stretch my hips during the day, but by the end of the day, I had only hit 90 percent and it had been hard. I asked Andrew if we could move the Tuesday session to Wednesday, worried that this was more of a structural issue than a muscular one and working out could push me from discomfort and mobility issues to actual pain.

And a year ago, I was in pain every day and I don’t want to go back to that. Ever. I was flipping through my journal and last year at this time I was starting every journal entry with a number from the pain scale. That broke my heart to see.

I took a muscle relaxer, stretched some more and went to bed after a nice meal. Wednesday morning I didn’t move any better, but I was no longer stiff. But by the time I got to work, my gut said this hip was really struggling to do its job. And I was about to stand on it for ten hours.

At 6 a.m., I called Nicole’s office and left a message. At 9:15, they called me back and scheduled me for 5:15 p.m. I knew that if I waited until my regular Friday appointment and forced that hip to work out, it would lead to pain and harder-to-fix problems.

I emailed my boss as I couldn’t find him and it turned out that he had called out sick. I arranged to leave at 4:30. By my calculations, I hit 87 percent. My right side just didn’t have the mobility it should. The drive to the chiropractor took about 20-25 minutes, and when I got out of the car, it felt like my right leg had fused and stretching it into a step felt ridiculously hard. But still no pain.

This is when cerebral palsy plays tricks on the brain. As I’m (what feels like) dragging my leg into the chiropractor, I started wondering, “maybe I just need to stretch,” “maybe there’s nothing really wrong and I’m just lazy and my muscles stiffened.” But then I remembered the burning toes. Something was pushing my posture forward and my body was fighting it. But I still had my doubts.

Now, no one has ever gaslighted me in the medical community, except maybe my first primary care physician who referred me to the wrong specialist in the days when I had an HMO. I now always have plans where I chose my physicians myself.

When Nicole entered the room, I explained what’s going on and she quickly confirms that yes, my hip was crooked. Like really crooked. She even made a hand gesture. And that my body had done other weird things to compensate. It all moved beautifully when she manhandled it. She pondered what caused this when we had just considered potentially spacing out my weekly appointments to every other week. Did I overdo it at work? Was it missing the adjustment Friday? Was it skipping my workout?

When I got up from the table, my feet did, as Nicole put it, sexy normal feet posture. My balance has improved dramatically in the last few months, and my strength has returned, and my stamina is definitely increasing.

I stepped out of the chiropractor and took some long, beautiful, easy strides.

It. Felt. Good.

No, it felt GREAT.

So, I don’t know how Nicole would feel about this, but I went to the gym. And let me tell you– Andrew delivered a brutal work out. We did split leg squats in sets of 20 reps each leg with weights. He said I was moving better than I ever had before and I said, yes, because Nicole had straightened my body and stretched out my lower extremities. Like, literally, just did. We did military presses with 25 lb dumbbells. We did core. We did upper body exercises like IYTs. And shoulder taps and mountain climbers and rope slams.

And then, before a shower or dinner, and it’s 7:30 p.m. now, I had to deal with the hellions in my room. I had to swap out and refill three litter boxes for the six cats in my room. I had to vaccuum. I didn’t clean the bird cages, but I did feed and water everyone. And I’m still wondering how the heck those four kittens have trashed my closet without opening the door.

I wanted to blog all this last night after I ate my omelet of cheddar, peppers, homemade farm-procured, roasted tomatoes. But I was exhausted.

Baked Flavors: A Ben & Jerry’s Review and a CVS saving spree

It’s 8 p.m. on a Wednesday night. I just finished a rather strange Chinese take-out meal after a long work week and a hearty work-out with Andrew, my strength and fitness coach at Apex Training.

Hit another PR I believe, a 35 lb dumbbell RDL.

My performance at work has been stronger (by my calculations Sunday was about 104%, Monday 98% I think, 100% yesterday and 99% today). I finally replaced the company-issued box that Gayle doodled for me with a stadium backpack with my supplies divided by department. My box has gotten super messy and it was ripping.

Amidst all that, I still find myself dwelling on the fact that Friday, September 30, is my dad’s birthday.

It makes me so sad. It’s the first one without him here. He missed the teen’s high school graduation, her 18th birthday, her first car accident, buying her first car.

He missed the flood in my house, my dead car battery, and all the other things that happen day to day.

So now is the perfect time to review ice cream.

Last week I had $5 in Extra Bucks at CVS about to expire, and they were having an ice cream sale— so I got 3 pints of Ben & Jerry’s, a bottle of unsweetened flavored sparkling water and an 8 ounce bag of pistachios and almonds for $12.78. It was $30 before my deals.

I picked all “bakery”/cookie flavors.

Over time I made these conclusions:

  • Half Baked (chocolate and vanilla ice cream with gobs of chocolate chip cookie dough and brownies) was a disappointment. The chocolate ice cream overpowered the vanilla. There weren’t enough cookies and brownies and the ones we did find tasted dry.
  • Thé Tonight Dough (caramel and chocolate ice cream with chocolate cookie chip cookie dough, chocolate cookie swirls and peanut butter cookie dough) came recommended by Andrew. The cookie chunks were significantly better than the Half Baked, and the Teen and I both wished there was more caramel ice cream.
  • Netflix and Chill’d (peanut butter ice cream with salty pretzel bits, salted caramel and brownie chunks) might have been our favorite. The peanut butter ice cream complimented the pretzel and brownie accents perfectly.

And finally, in closing, walking home from the gym tonight with the pink & blue swirls of sunset before me, I noticed some changes in our neighborhood. On one hand, the neighbor boy who spray painted his name on their front walk is a senior in high school and his graffiti has faded.

And at another house, designs in sidewalk chalk suggest that the babies born to the kids who were the Teenager’s neighborhood playmates are old enough to stake their claim to playing outside and repopulating our block with youth.

I look forward to it.

Finally a visit to Mythic Beasts and Brews: Turns out they are passing out homemade chocolate chip cookies

The Teenager is working on her college application and wanted to find a coffee shop to force her out of the house so she would have less distractions. Originally, she wanted to go to Three Birds in downtown Easton, one of our favorite spots, but by the time she got out of work, they would be closed.

I know of places on the other end of the Lehigh Valley open in the evening, but couldn’t think of anything close to home. So, I googled.

Monsieur Google suggested several local Starbucks.

Sigh.

Not that I don’t enjoy a flat white every once in a while, but we wanted something a little more unique and potentially eclectic.

A little more poking around the internet and I remembered Mythic Beasts and Brews, a ten minute walk from our house. Or, as the teenager says, “Mom, it’s closer to the house than the high school.”

The atmosphere is coffee shop meets role-players’ game den, which is exactly what it aims to be. There are four of five large tables for gamers and a few little spots for those of us who have retired our game master and PC gear.

Yes, the teenager’s father and I played White Wolf back in the day.

The Teenager ordered chai, which will make our blind friend Nancy very happy to hear that we have found yet another source of chai. I decided to take the 20-sided die challenge. Whatever you roll is your drink, $4, and it’s 50 cents to reroll.

I rolled a 12, which is a large Irish cream macchiato. That is a good selection for me.

We enjoyed our visit, and we especially enjoyed the free homemade chocolate chip cookies.

Karaoke adventures

Both the Teenager and my blind friend Nan are musically-inclined. My daughter turned 18 in June and Nan turned significantly older than that in July.

I promised to take them to karaoke. It took a couple months to find an environment suitable for an eighteen-year-old that was also scheduled early enough for Nan and I.

Thursday was the night. After all, under my current schedule, Thursday is my Saturday night.

And it turned out there were two options in the same town. I found about one rather late in a new restaurant but hosted by someone I know. The other was at a more familiar location, one my family has visited since the Teenager was a baby. Literally, car-seat-on-the-table.

I picked SoMa Downtown Grill, formerly sports pub Delahanty’s on the Square. It will always have a soft spot in my heart because I remember when the building was a wreck and the owners received press coverage from my newspaper for their efforts to rehab it.

My favorite items on the menu were discontinued during their rebrand to SoMa but that has forced me to find new favorites on my visits. I knew this would be a family-friendly location for The Teenager to make her karaoke debut and one familiar enough for me to navigate with Nancy.

I even put a little effort into my outfit and wore my Stitch Fix jewelry. And my new “ultra flare” jeans from Target that I cut off at the bottom because they were regular and not “short.”

Meanwhile, Nan was practicing Leann Rimes in her new suite in her new independent living situation.

And I had no intention of singing.

The only time I ever sang karaoke it was with my friend Ken, who hosted the event (and DJed my wedding). I waited years to try and ended up singing Crystal Gayle’s “Don’t it make my brown eyes blue.”

The Teenager and I busted Nan out from her place and headed to New Jersey, where we arrived early and settled in for some dinner for The Teen and I, and an Angry Orchard for Nan. I joined her with a Yuengling draft. We ordered a goat cheese crostini appetizer for the table, which was a delight.

Nan was the second singer of the evening, with Leann Rimes’ “Blue.”

It took a while for the Teenager to commit, but she and I did a duet of Barenaked Ladies’ “If I had a million dollars,” of course, as Murphy would have it, her microphone was off and she asked me to take the part I don’t normally do in our car duets. So she tried again and drug me up there for “1985” by Bowling for Soup.

Khloe

And now that’s stuck in my head.

We spent exactly what I had in cash in my wallet without even trying and Yuengling was on special and I didn’t even know it. We were home by 9:30.

And of course, my cat Fog came running to chastise me for being out later than usual and Khloe leapt onto my chest as soon as she got the opportunity.

Things that make me happy… I must be old

So someone I know, who shall remain nameless unless she outs herself, tagged me in this Facebook post:

She invited me to consider it, which I would if it weren’t two hours every Friday for six weeks.

Speaking of falls, the teenager asked for some bathroom toiletry storage devices so I bought these:

The wall-mounted shelf is ridiculously sturdy. All came from Target.com.

I “treated” myself to some grip-circles to reduce the likelihood of falling. And they are pretty.

The sight of everything organized made me happy. As did dinner.

Dinner was Banza chickpea rotini with Hungryroot Alfredo sauce, fresh spinach, my homemade roasted tomatoes from the farm and chicken bruschetta burgers broken into “meatballs.”

My body feels wonderful… and other ridiculous tales

This week has been a roller coaster— but isn’t that just the way? People have been telling me I look like I’m loosing weight but I don’t know if that’s true.

The teenager took the dog for a rainy walk at Lafayette College the other day. She sent several very lovely photos.

I have many odds and ends making life out of the ordinary from little foster kitten Jean-Paul Sartre to my dear friend Nan moving from my neighborhood to a senior community.

Nancy in her new place

I ordered a kitchen scale off Target.com to measure Jean-Paul’s growth. He’s up to 1 lb 5 ounces. That was after a big breakfast of pate and kitten milk. He has a hearty appetite and screams for food like any baby does every 4 hours.

He is super inquisitive and smart. He carries tiny toys around in his mouth and plays with our dog, Bean. (Here’s a video.)

Meanwhile, guest fosters Coffee Bean & Pinto Bean are having fun in my room. Khloe and Louise do not like having babies around, but the cockatoo Nala sure does.

For some humor, let’s mention that the Teenager recently discovered that the Morningstar Farms breakfast Pattie’s I have been feeding her for almost two decades are vegetarian. She called her dad to find out if he had been in on this secret.

We never hid that they weren’t real sausages from her and she’s been able to read for a long time. The shock was real, and she’s still talking about it days later.

She didn’t have a chance to go grocery shopping for her nights in the kitchen. I suggested using my Hungryroot ancient grain gluten free pancake mix and the Morningstar sausages. It was a lovely, hearty breakfast-for-dinner. And like she had accused me of when she first discovered my fake breakfast meat, “It was all a lie.”

The teen also got her first fix from Stitch Fix and it came from the warehouse where I work, the Bizzy Hizzy. Click the photo to see her unbox.

Click to see what’s in the box

Speaking of work, I took voluntary time off on Monday and my stats were 100%, 88% and 98%. Andrew at Apex Training has been working be hard with exercises like split leg squats. My quads feel it. My balance is improving, my aches and pains feel like muscle fatigue and not deeper pain or joint issues. I have caught myself almost falling several times, and can sometimes feel my leg scissoring or even notice my left foot dragging behind before it trips me.

Even my chiropractor, Nicole Jensen of Back in Line Chiropractic and Wellness Center has made comments about how well my body is moving and how things are improving. Today she said my right side was locked up, when it’s usually my left, and that everything went back where it belonged easily.

When I hopped off the table, she told me to look at myself. “I have never seen you stand up with your feet so firmly planted and your poster straight,” she said.

And I felt it, I felt really solid.

So I don’t know if this is where I confess I tried the new Wingstop chicken sandwich. Most of my diet lately has been vegan. But last night I hadn’t had dinner, it was 8 pm and my body was devastated (in that good way). I could barely move after my shower. I considered skipping dinner.

But then I thought about my food intake for the day:

  • 4:30 am: Supercoffee dark roast with half and half
  • 5:30 am: Wawa coffee con lèche (it was a bribe to make myself go get gas)
  • 6:30 to 8:30 am: 20 oz water
  • 9 am: Kind Peanut Butter Breakfast bar and about 3 oz cranberry juice cocktail
  • 9:30 to 11:30 am: 20 oz water
  • 12:15 pm: quinoa with roast zucchini, white beans and my home canned roasted tomatoes, 6 oz Diet Pepsi
  • 2 to 5 pm: 20 oz water
  • 5:30 pm: sunflower seeds
  • 6 pm: 12 oz cucumber water

I thought a chicken sandwich would be good for protein and I saw the commercial for Wingstop’s new chicken sandwich on Hulu. It was good, not as big as I thought a sandwich from a chicken joint would be— but to be able to slather any sauce from their menu on our was really cool. I had a mango habanero sandwich and a side order of the honey hot rub boneless wings. It hit the spot.

Walking, workouts and waffles

I did not work a full ten hour day any day this week. But you know what? That’s okay.

My stats on Sunday were 105%, then 98 Monday, 88 yesterday and 94 today. What happened?

I don’t know. I was in pain Monday, stiff and uncomfortable yesterday and almost fell today but caught my balance.

And then Andrew at Apex put me through legs. We did split leg squats and he got to watch my hip do the funky angles it does. And I got to feel every fiber in my knees, quads and hamstrings.

Plus, I walked more than 8,000 steps today while my legs were stiff. Well after that workout they are not stiff but jelly.

The Teenager showed one of her dog walking clients some of the neighborhood dogs and their tricks— here is the video.

And then for the final event of the day we went to Waffle House as earlier this month we had heard that August 24 was National Waffle Day.

I had a scrumptious hash brown bowl with egg, cheese and jalapeños.

We split a peanut butter blueberry waffle.

These are the moments to treasure.

Margaritas and cat noses

I might be pushing too hard.

I did (I think) 105% on Sunday at work, 105% yesterday and woke up stiff and with my right quad tight and spasms in my calf. I only did 93% today, but I feel better now. And the dip in numbers had more to do with some chaos in the warehouse versus my cerebral palsy issues.

Regardless, I must admit I was a little relieved yesterday when my fitness coach Andrew from Apex Training postponed my workout.

The teenager proposed going to Applebee’s for dinner, her treat, as she didn’t feel like cooking. She also demanded I order a cocktail as I think she wanted to make sure I drifted off to bed as early as possible. (8 p.m.)

The teenager loves Applebee’s— for a child raised in all sorts of Mom & Pop restaurants where we often knew the owners, she certainly loves her boring old franchise Applebee’s.

I realized that if you took any item with chicken tenders away from the menu, you’d lose more than half the meals available. And if you didn’t want bacon on your hamburger, you had three choices: the quesadilla burger (which we got), the plain old burger and the Beyond veggie burger (which was $14 and came with nothing but lettuce, tomato and pickle).

Boring.

The quesadilla burger was a mish-mash delight (I chose my margarita for the artificial Latin theme) but had to be eaten with a knife and fork.

When I arrived home, Opie and Fog (two of our personal cats) joined Khloe and Louise (foster cats) and Nala (Goffin’s cockatoo) and Yo-yo (parakeet) in my room for the night. Fog tries so hard to be Louise’s friend— and she is slowly (after more than a year) getting braver and more confident.

Louise (left) and Fog (bottom right)

Finally, for those that are wondering… I ruptured my tendon in my ring finger April 15 and had “mallet finger” and a cast for nine weeks. My specialist released me July 25 and expressed his disappointment that my finger was still a little off.

My finger after a ten hour shift August 15 — four full months after my accident.

I use my hands so much at work, so I still splint at night. I must say it feels like and looks like the finger is getting stronger and straighter every day.