Hospitals, dinner party, friends and games, and happy endings?

I haven’t had much time this week to eat, or rest, or even go to the gym, so I haven’t had time to read books, report on podcasts, or blog. And that’s a shame because I’ve seen some silver linings recently.

My friend in the hospital is doing well, and the staff on the cardiac floor seemed appropriately mortified at how her case was mishandled on Sunday. That doesn’t fix the long-term damage to her heart, but at least now she has the team to move her care forward in the future. And our coworkers have paraded into her room literally one after another, including her direct supervisor who turned up before she had emerged from the ICU. That makes me proud to be part of the team with whom I work.

She’s coming home from the hospital later today.

I visited my friend on Thursday evening, and again Friday after work. The Teenager had a dinner party and game night planned for the evening. My job was to stop and augment the alcohol offerings. I still need half-and-half after running out last week. Three trips to the store have yielded no such milk product. I have had tea. I have had terrible coffee at work. I have drunk my peppermint tea black. And I have resorted to, with great desperation, coffee with two percent milk. My father preferred his coffee with milk, and it’s something I just can’t adjust to.

I stopped at the new Weis market in Bethlehem near the hospital, purchased several single-serve-type bottles of various wines and a cold six pack of Sweet Baby Jesus chocolate peanut butter porter. I love a good porter or stout and DuClaw’s Sweet Baby Jesus is a solid one, though not as smooth as Samuel Smith’s Organic Chocolate Stout. That is my favorite.

I also grabbed a half gallon of Weis-branded ultra pasteurized half and half, dated March 23. Let me skip ahead to this morning and alert you that my half and half, after I freshly popped the seal, was spoiled. But, at the time of my arrival home, I felt like a successful warrior queen.

The Lovely Teenager and I received a package from Stitch Fix yesterday with our Freestyle goodies. You can see the unboxing here: (The Teen is wearing a Stitch Fix sweater from a recent fix.)

The Teenager invited a couple over for dinner and invited more friends to join us for Ransom Notes, a blend of Cards Against Humanity and a magnetic poetry kit. I didn’t take any photos of the evening, as I was distracted laughing, enjoying a beer, and socializing, something that has not happened nearly as much as it should. The Teenager expertly prepped and executed a menu of homemade mac and cheese, steak, and air-fried asparagus, with box brownies for dessert. Knowing one of our guests was vegetarian (and relieved he was not vegan), she prepared one very large standard mac and cheese, based on the recipe from the never-let-you-down Betty Crocker Cookbook. But being the carnivore and bacon whore she is, she made a second, smaller mac and cheese with bacon.

When your bird is distressed by all the commotion in the house, you show her what is happening. Photo by Joan Zachary.

Conversation flowed freely. The Teenager’s father arrived next, bearing the essentials for rum and Cokes. Our artist friend Maryann Riker followed with some Yellow Tail. Somehow Uno became the first game as choice as poor Maryann had never played this classic.

Brilliant photographer Joan Zachary arrived next with her partner, who immediately made friends with The Teenager’s extra long cat Oz. Joan joined us for a round of Cards Against Humanity, and did impressively well for her first time playing. I did not win a single black card. But I laughed my ass off.

And it was Uno we returned to to end the night, never quite reaching into the box for Ransom Notes. I guess that means we may need to host another game night.

Also, my cat Fog has been sleeping with The Teenager against his will. But they seem to be developing a relationship. Meanwhile, foster tripod Louise has permanently become my snuggle buddy, sleeping in my arms every night.

Apex 100, the strawberry Frosty and a makeshift splint

I wept tonight. I nearly wept myself into a panic attack. My guts are still fluttering. And I flung things down the stairs.

But that’s the end of the story. Let’s start at the beginning.

On Monday night, after the teenager’s car accident, I went to Apex Training for my 100th session at the gym since I started about ten months ago.

Because it was my 100th session, the my trainer picked out 6 exercises for me to do 100 times, at my own pace, breaking them into sets as I saw fit.

I was a little stiff the next day, which was yesterday, but I still managed to do 100% according to the metrics at work. But my the end of the day my right leg was unsteady.

Today I woke up very stiff, with my muscles in my lower body so tight I struggled to bend and I had even less control and stability in my right leg.

I only made about 90% today.

By the end of the day, my right quad had this dull burn to it, but it didn’t really hurt. But it was getting more and more difficult to control as my stiffness dissipated.

But the teenager and I still made it to my 101st session at Apex and celebrated by trying the new strawberry Frosty at Wendy’s. Which, by the way, is much tastier with a Wendy’s sugar cookie.

I took my custom splint off— today marks one week of wearing it and taking it off every 3 hours for occupational therapy exercises and when needed “for hygiene.” And the finger is looking steady!

I removed the splint to wipe down my hand with a wet nap before eating. I set it down carefully in my lap. And then it just disappeared. I checked the take-out bag. I checked my bra, the car compartments, the seat.

The teenager told me to stop wiggling around that it had to be in the car and we’d look at home.

We didn’t find it at home.

So I went to the kitchen and started to cry. my finger had looked so good wrapped around that Frosty cup as I smeared the Frosty on my portion of the cookie the teenager and I shared.

I checked my local CVS’s website: no splint in stock. So I checked my local Walgreen’s: no splint in stock. And so it went.

Still upset, I found a piece of wood my cockatoo had stripped from her toy and taped it to my finger.

My splint. Hopefully I’ll find a better solution in the morning.

Cute animal photos and mallet finger impact

It’s the end of April and it was 35 degrees last night. The price of oil continues to skyrocket and I’m still heating my house halfway through spring.

The cold does not help the poor circulation in my hands which has intensified in my left hand because my mallet finger restricts my movement.

My hands are painfully cold, except when Andrew is making me curse him in my head at Apex Training. Today was leg day, and I was so tired that when I came home and let the dog out I turned around and lost my balance and slammed right into the brick wall between my mud room and my kitchen.

Nala, my six-year-old Goffin’s cockatoo, started shaking and plucking her feathers today. Nothing in her environment has changed except the neighbor’s dog has been barking nonstop all day. The teenager believes his distress causes her anxiety.

Speaking of the teenager, she made this thick chocolate chip cookie/blondie dessert that I topped with ice cream that Sobaka’s mom brought home from Penn State when we dog sat last weekend.

Before the teenager brought home our dog, I would never criticize a dog owner, but now that I see the difference between different dog care styles, I feel back for dogs that aren’t spoiled like Sobaka and Bean.

And I don’t know how Sobaka’s mom does it— that dog is a bed hog.

But now an update on my mallet finger:

  • Stitch Fix has been amazing. Because my specialist at OAA took a week to return my paperwork and then didn’t properly fill it out, the onus was on me to find jobs I could do to not hurt myself. It turned out I can QC just fine— I hit 92% just fine.
  • But here’s the thing… my specialist knows hands, he doesn’t know me. I don’t think he heard me when I said I have cerebral palsy and that I work 10 hours a day in a warehouse. I’m just not sure that environment is safe for me right now,
  • Why do I say this? Because this week drove home to me how much I rely on my left side for stability. By forcing me to work 90% on the right, I am struggling to keep my right hip in place.
  • I am so stiff by the end of the work day. I also end up pinching and slamming my right fingertips and by the end of the day my left fingers I can use are swollen and sore.
  • And I fold 750 clothing items a day, handle 150 boxes and rip open probably 500 plastic bags. That’s a lot of fingers moving.
  • Once I consider the risk of accidentally losing my cast and bending my finger (which would extend my healing time) and adding the increased fall risk of mine because I am aggravating known issues with my balance and mobility, I just don’t feel safe.
  • This is a horribly stressful feeling.
  • I’m going to talk with my family doctor about it. I already mentioned it to my therapist, because I wanted to confirm my thoughts were rational and not whiny or emotional.

Today’s vegan lunch: curry carrots, lentils, quinoa, my own roasted chick peas, toasted sesame seeds, green olives and a touch of Thai peanut sauce topped with pumpkin seeds

And last but not least, cats. Misty caught a mouse! Video here.

A new pizza adventure At Nicolosi’s and a post-splinter update

First, let me start this blog entry at the end— with the pizza the teenager and I shared at Nicolosi’s.

Second, I will discuss my performance at the warehouse this week and how my body has felt now that the splinter-wound has finally healed.

So come for the food and stay for the disability talk if you desire.

It’s been at least two weeks since Nicolosi’s in Forks Township started advertising “pizza flights” on Facebook.

Now, as the teenager’s father will confirm, I love trying pizza. He and I once did a pizza tour where I ranked every pizza on a long list of qualities. This was probably 25 years ago.

When Nicolosi’s started advertising these flights— four of their specialty pizzas combined in one square pie for $20– I knew I had to try one. That’s two generous pieces of each variety you choose.

The teenager let me choose so I tried to pick flavors that would appeal to her, too: (Clockwise from top left) Eggplant parmigiana, pierogie pizza without the onions, chicken parmigiana and chicken-bacon-ranch.

I was not prepared for the Halloween decor, like the zombie pizza man, horror movie posters and plush toys from The Nightmare Before Christmas. I was prepared however for the deliciousness.

My favorite (which surprised me) was the eggplant. The staff was super friendly. The place was simple but also strongly quirky. And all of these things make me very excited to go back.

Next time, I’m ordering the garlic knots in vodka sauce and the cannoli dessert pizza.

And now an update on the random things:

Nala is doing well.
The teenager bought me the obscenely large mug from Staples. Click the photo to read about the original attraction to the mug.
I had cookies and milk at work.

Now the more serious stuff…

If you’re new here… I am in my mid-40s trying to learn how to age well with my cerebral palsy which impacts the control and structure of my legs.

As you may recall if you read my previous blog post, I had a great workout Saturday and spent the day showing my college roommate around downtown Easton.

On Sunday I woke up and my wound in the ball of my foot (from my splinter) had healed. I performed at 95% in Freestyle at work that day primarily because my printer and my computer wouldn’t cooperate and I lost 20 minutes trying to fix it.

Monday I was achy but managed to work my full 10-hour shift AND hit 100%.

But I was hurting a bit. Primarily my back. So I changed shoes and went to work Tuesday only to have my spine and both my legs start burning intensely. I still managed to hit 97%.

And I had two small falls at home yesterday.

I woke up hurting in my spine and hip. And anxiety plagued me wondering what the day would bring. I felt much better— but my right hip is uncomfortable. Fairly badly uncomfortable. But I finished my 10-hour shift and by my calculations I had 95%.

Tomorrow I visit my podiatrist. We’ll see what input he has.

The splinter update: How do a raisin and a cockatoo impact disability?

Earlier this week I visited a new doctor, where I learned about my femoral anteversion and need to gain more flexibility in my hamstrings.

After that visit, I had a miserable day at work with my hip bothering me.

But then I got a truly nasty splinter. And I wrote about the unexpected positive consequences of that here:

Part 1: A raisin and a splinter = 110%

Since then, my body has felt better than it has in 15 years (with only some minor discomfort after sitting too long and while sleeping).

And last night, between the raisin and my cockatoo (Video of her here helping me remove the splinter) I got the splinter out.

And I walked into the chiropractor today with no symptoms other than this very mild stiffness in the right hip on the groin side.

I told her the story. We laughed so hard we nearly cried.

And then she popped joints I guess she can’t normally pop.

And then she looked at my feet.

“Your feet look normal.”

We both think that the raisin and the nasty splinter DID impact my walk and my posture forcing me to stay on my heels.

So I need to practice balance and gait training, and also incorporate my doctor’s recommendation of stretching those hamstrings.

It’s so important— especially when you have a disability— to pay attention to your body and really track how you feel and all the changes.

The Grateful Friday

Yesterday I cleaned a lot of my downstairs and had a relatively good work out at Apex. I haven’t felt incredibly strong lately, but my IUD must be working because I’m not in pain.

I had a good week at work, so cleaning, working on Parisian Phoenix projects and watching Cobra Kai suited me just fine yesterday.

I even found two of the dog’s Kong balls under the couch which made for a very happy dog.

Today, I was supposed to have my annual physical but my doctor’s office called yesterday and rescheduled for next week— which also means another week without answers from my CT scan and physiatrist referral. Neither the neurologist nor the physiatrist’s office has called me back.

And I need a doctor that can help me understand the motion and mechanics of my body, and not just its individual parts.

Today I scrubbed the exterior of the stove and did dishes. Then I went to help my blind friend Nan with some errands and grocery shopping.

We made plans to pick up some pizza at Little Caesars so Nan could try the Batman Calzony. No matter how I tried I couldn’t explain what it was to the blind lady. So we bought one.

But we had time to kill before the teenager got out of school even after we put groceries away. We grabbed the dog and got drinks and hash browns (for the dog) at Dunkin.

And then we surprised the teenager with the dog at school.

Then Joan stopper by to drop off some hand-me-down magazines and erotica, cupcakes and photos that Joan needed us to sort.

Now, I’m cuddling with Louise, watching Gotham Garage and enjoying kitten photos.

Solstice magick

Before my father’s unexpected passing on Wednesday, the teenager had hoped to celebrate Yule instead of Christmas.

Today is the full moon before the winter solstice. We are approaching the celebration of the birth of the sun, who will, as the time comes, restore life to the Earth.

And today is the day my college roommate arrived for my dad’s funeral. My dad always called her curly.

But within moments of her arrival, I realized— she came to support me and rekindle our friendship now that our children older, but the universe sent her to share her energy with the teenager. Curly had a vibe that the teenager needed. I could feel the difference in the energy of the room and knew that Curly had brought peace.

After all, Curly was one of the women present for the teenager’s one year birthday ritual where she promised to help guide the teenager.

And tonight she did. And it was the perfect time for it.

We spent the night reading tarot cards and charging crystals and telling stories of our ridiculous past together— Curly, the teenager’s father and I— and then Curly went to spend the night in the teenager’s room in her father’s apartment.

It was the grounding and the relief we needed before tomorrow.

*i know the actual solstice is December 21, but to me, the full moon is the start of that celebration,


In other news:

  • I received another gorgeous bouquet, this one from my friends at Mary Meuser Memorial Library.
  • Brigid of the Celtic Pride got adopted today!!!
  • Nala the Goffins Cockatoo got so mad that I wasn’t to bed on time that she broke out of her cage, broke Yo the parakeet out of his cage, and stole his cage and wouldn’t let him back in.
  • Our cat foster godmother stopped by and actually socialized with Touch of Grey— the cat who terrifies her. ToG has come so far! She is 90% normal, friendly cat.
  • William Prystauk released his fourth novel in the Kink Noir series, Bondage.
  • Gayle, my partner at Parisian Phoenix, wrote a fascinating blog post about 2021 book projects.

Day 3 of 10-hour day shift in the warehouse: Podcast reviews

(And a foster cat and teenager update)

This new work week is certainly moving quickly although each day I come home more exhausted. I’m hurting more once I get home, but I’m fine for the first 9+ hours of my shift. If you don’t know what I’m talking about read these:

Yesterday

Sunday

The teenager kept my car as the last two of our fosters who needed to be spayed went to Canyon River Run today. That would be Mama Danu and her tabby kitten Baile from the Celtic Pride.

She hoped to bake cookies for the platters Feline Urban Rescue and Rehab plans to distribute to the many vets who assist the organization. Her eighth grade boyfriend came over to lend a helping hand so she also taught him to make bread.

Meanwhile I just kept dreaming of an iced cold Coke Zero. And an interesting thing happened — I got to work and there was a 4-pack of 20-ounce Coke Zero bottles with a post-it note declaring them free.

I brought them home. My guess is someone didn’t realize Coke Zero had been relabeled in the same red as classic Coke.

Which my metrics tanked by the end of the day which had me chugging this at 3 p.m. break.

My 4 p.m., I was trembling and about to cry. Do. Not. Repeat.

I treated the teenager to dinner at Tic Toc so she could get her last pay check. We both ate too much.

I did my physical therapy exercises and took a hot shower. By the end of the shower my right leg was very uncomfortable so I took a low dose muscle relaxer and covered my leg, knee and back with CBD Medic’s Arthritis Cream.

One more day.

So now, as promised, let me offer some thoughts on podcasts. The teenager and I compared notes on our Spotify end-of-year wrap up and she thought she was impressive with 17,000 minutes since we started using the service in mid-year. I have 88,000+.

MY FAVORITE PODCASTS I LISTENED TO SO FAR THIS WEEK:

  • This one surprises me. The Ellen Fisher Podcast. She’s a very interesting person with her journey to raise her own food in Hawaii with her brood of plant-based kids and interest in all things calm and positive. I don’t really don’t know how I feel about her podcast — but I recently listened to her episode on Mind Change. It was an interesting discussion of neuroscience facts blended with alternative healing techniques to deal with personal trauma to heal the body of disease and mental illness. The guests on the show discuss their experience that illness, whether physical or mental, is the body manifesting trauma that the person has refused to acknowledge and heal.
  • The Daily. I often force myself to listen to the Daily even when the topics don’t interest me. This week I found myself pleasantly surprised by their coverage of Stephen Sondheim’s death.
  • Snacks Daily. Snacks Daily is a brief podcast from Robin Hood, yes the investment folks. It’s an economic summary of course, but it also provides humor and the business side of the news.
  • I finished Sh**hole Countries by Radiotopia. The American host on that show grapples with the possibility that her Ghanaian parents want her to move to Ghana. Enjoyable but also not what I expected. The host uses much of her platform to talk about her queerness and human rights.
  • The Shit No One Tells You About Writing. Very useful and broad tips about writing, critiquing and publishing.
  • Africa Daily just did a good episode on fistula. I found that a surprising topic. I’m impressed. (Though they did not mention the prevalence of female genital cutting and its impact on the rate of fistula.)

Other notables: Power Hugh Hefner, American Scandal The Lewinsky Affair, Operator, Against the Odds Rock Climbers Abducted.

And here is a video of Nala the Goffins Cockatoo: Nala harassing foster cat tripod Louise

Good night all.

Sometimes you need to unleash the beast

I hope this weekend to partake in some fun activities and lighthearted blog posts, but I also need to do some administrative work for my publishing company, Parisian Phoenix Publishing.

My second novel in the Fashion and Fiends series, Courting Apparitions, releases officially November 29 (my co-founder’s birthday) and could possibly be available Black Friday. Like, damn, when did that happen?

The first book, Manipulations, is available at all the usual places online— for instance here is the link to buy it at Barnes and Noble.

My friend and fellow writer William Prystauk of the Kink Noir series and horror website Crash Palace Productions left me a truly wonderful review on Amazon and Google.

See more here.

This was my original post on his first novel, Bloodletting. Hard to believe it’s been three years.

Buy his books on Amazon.

On everyday life and health front, I went to the chiropractor yesterday and like my doctor she approved of my new technique of changing work tables to try and even out my sides. I stopped at the pharmacy and picked up my prescription for muscle relaxer. I also made my last Purple Carrot meal in the fridge: mango glazed roasted vegetables with tahini butter.

Worked went mediocre/well. The night seemed long and boring and I felt like I was getting used to my body again after the chiropractor. I QCed at about 83%.

I came home and several cats were waiting for me— including Minerva, a sweet foster who started in our second foster litter of kittens, The Roman Pride.

I took a muscle relaxer to see how it impacted my pain and my morning stiffness. It didn’t make me loopy and I think it helped with my tossing and turning.

I only got six and a half hours of sleep last night, but still managed to meet up with the teenager my trainer Dan at Apex Training to lift some weights. I felt so much more limber after. The teenager easily did 105 on the barbell deadlift and 95 on the squat. I could lift the 105 but not execute the lift. My squat form is still adjusted for my limited range of motion in my lower body so I maxed out at 85 while the teen hardly had to put any effort into it.

We came home and shared some Little Caesars pizza as I was craving their “pizza and sticks” pie. We even shared with the dog.

Let’s Be Average Today

I am in my 40s, and struggling with the effects of a life of always walking crooked thanks to cerebral palsy, a disability I have but, until recently, have known nothing about.

And issues in my spine, while not serious, are affecting my mobility and causing me pain.

But today— in part because we only worked until 7:30 pm at the Stitch Fix Bizzy Hizzy— I woke up well rested, only minimally stiff and only minimally hurting. At 8 am no less.

Our charming mutt F. Bean Barker refused to go to bed in the teenager’s room last night because one of our fosters, a former community cat named Georgie, intimidated her. Bean expected me to let her sleep in my room and when I said no she retreated to her crate in the living room. So I let her spend the night. I have spent a lot of time with this dog in the last 24 hours.

I tied a rope around her tire toy gifted to her by my trainer, Dan, at Apex Training and now it’s the best toy ever. See video here.

I was the first one out of bed which meant a swarm of hungry cats outside my door, and I couldn’t keep them all at bay. It was easier to let them in. But our foster Mars totally knows how to knock over the birdcage. Which he did. While I was on the phone with my blind friend Nan and consuming my first cup of coffee.

Nan recently started physical therapy for an issue in her shoulder causing pain and finger numbness. The physical therapist had never worked with a blind client before and was a quick study. He even discovered that some of Nan’s issue might be mobility issues in her neck— because when you’re blind you don’t have many reasons to turn your head or look up and down.

Finally, things settle down and while the parakeet is out he is safe. The teenager and I head to Apex where she gets that barbell and deadlifts 135 lbs. I still felt good at that point.

I came home, showered, and filmed this silly video with Nala, my Goffin’s cockatoo.

And then the matriarch from la Familia Velez stopped by and brought me chili which I had for a late breakfast and we talked about marketing for my Fashion and Fiends books. And my goals for Parisian Phoenix in general.

She left, and I finished proofing Darrell Parry’s soon-to-be released poetry book. I placed a few more essays in the nonfiction identity anthology.

And the poor teenager has had a hectic and exhausting couple days— so I cooked.

She has options for dinner when she returns from the diner. She’s given notice at the diner as she has accepted employment with a local pet care company.

First I made sausage and peppers to put over spaghetti.

Then I also made the Purple Carrot Peanut Tofu Stir Fry which I jazzed up with some edamame and sesame sticks.

Mostly I am just sitting around marveling at how pain free I feel. I miss that.