Margaritas and cat noses

I might be pushing too hard.

I did (I think) 105% on Sunday at work, 105% yesterday and woke up stiff and with my right quad tight and spasms in my calf. I only did 93% today, but I feel better now. And the dip in numbers had more to do with some chaos in the warehouse versus my cerebral palsy issues.

Regardless, I must admit I was a little relieved yesterday when my fitness coach Andrew from Apex Training postponed my workout.

The teenager proposed going to Applebee’s for dinner, her treat, as she didn’t feel like cooking. She also demanded I order a cocktail as I think she wanted to make sure I drifted off to bed as early as possible. (8 p.m.)

The teenager loves Applebee’s— for a child raised in all sorts of Mom & Pop restaurants where we often knew the owners, she certainly loves her boring old franchise Applebee’s.

I realized that if you took any item with chicken tenders away from the menu, you’d lose more than half the meals available. And if you didn’t want bacon on your hamburger, you had three choices: the quesadilla burger (which we got), the plain old burger and the Beyond veggie burger (which was $14 and came with nothing but lettuce, tomato and pickle).

Boring.

The quesadilla burger was a mish-mash delight (I chose my margarita for the artificial Latin theme) but had to be eaten with a knife and fork.

When I arrived home, Opie and Fog (two of our personal cats) joined Khloe and Louise (foster cats) and Nala (Goffin’s cockatoo) and Yo-yo (parakeet) in my room for the night. Fog tries so hard to be Louise’s friend— and she is slowly (after more than a year) getting braver and more confident.

Louise (left) and Fog (bottom right)

Finally, for those that are wondering… I ruptured my tendon in my ring finger April 15 and had “mallet finger” and a cast for nine weeks. My specialist released me July 25 and expressed his disappointment that my finger was still a little off.

My finger after a ten hour shift August 15 — four full months after my accident.

I use my hands so much at work, so I still splint at night. I must say it feels like and looks like the finger is getting stronger and straighter every day.

Updates, announcements and anecdotes

It’s just about to turn 5 a.m. on Tuesday morning. The last 48 hours have been emotionally difficult, and those are internal challenges I have resolved within myself but now I need to “make right” in the world.

My good friend Joan (the talented photographer) had quipped that the moon is in “Frustrato” phase and perhaps that is accurate.

Sometimes it’s nice to blame the universe instead of accepting our part in the mayhem. Because even good intentions spark fires.

I heard a podcast yesterday; I believe it was an economic one, that asked if one host was “a glass half empty or a glass half full kind of guy.” He replied, “it’s just half.”

That’s too much enigma and philosophy for pre-dawn hours. Blame the fact that my trusty espresso machine only filled half my mug.

Mug from Purr Haus in Emmaus

The teenager and I had 14 kittens in the house Saturday, Sunday and Monday offering temporary lodging for these babies whose official Feline Urban Rescue and Rehab foster families have gone on summer vacation.

They were so much fun to have around, but 11 went home last night. This led the Teenager’s officially adopted foster fail Mars of the Roman Pride distraught that his friends had gone. He screamed until the Teenager released him into “gen pop” where he plopped himself down in front of the remaining visitors.

On Friday, I had a rather grueling session at Apex Training with my coach Andrew. We did some intense work on balance and single leg muscle stability. On Saturday, the communication between my brain and my lower body felt rickety (for lack of a better description) and it was challenging to move. By Sunday, the movement felt smoother but my phone was registering spikes in walking asymmetry. But something very interesting happened Monday— I could not only stand on one leg, but I could also hold my leg in a few seconds of a quad stretch.

Yesterday, I visited the Stitch Fix employee store, which resulted in a good news/bad news scenario. I bought myself jewelry on an impulse and discovered my second holes could still accept earrings. As someone who really grew up in the 80s and graduated high schools in the 1990s, I have three sets of holes in my ears.

I bought the Teenager some new things, including some warm hiking style boots for fall and her dog walks. I bought myself an adorable pair of shorts, and I picked one size up from my pre-existing Stitch Fix clothes and they were too small.

Obviously my efforts to reduce my recent (as in pandemic era) weight gain have been not sincere enough. Sigh. I’m trying to eat better and move more without falling into a strict/restrictive mindset.

But I did eat an entire medium pizza from Domino’s the other night. It was a medium hand-tossed crust, light on the cheese, light on the garlic Alfredo sauce with red peppers and pineapple.

On the way home from work last night, I noticed that the furniture store looked abandoned— and that the sign merely said urn.

In the background of all of this, the ‘cat book’ from Parisian Phoenix has hit some unexpected difficulties prompting a delay in its production. But my quick thinking, after a few hours of pondering, have inspired an interim release of a mini cat book featuring advice and stories about the care of cats. The larger book will come later, perhaps in early 2023.

In the meantime, I am very puzzled why my sweet tripod foster Louise has decided to crate herself.

And the most surprising item of the day was receiving my first catalog for Parisian Phoenix Publishing— Uline junk mail!

I suppose the last update is that the people at Susquehanna Service Dogs have cashed my check for the application fee. I’m anxiously awaiting contact.

To say life has been hectic feels like an understatement.

The Concept of That Thing, Compliments from the Chiropractor and Ingenuity in Training

Sometimes, these entries feel repetitive. I hope they don’t feel like that to you, the reader. But, in many ways, life is certainly repetitive.

Whether it be the old house always needs attention, the dog is always sick, a struggle with weight, mental or physical illness, a bad boss or money problems, each of us seems to have that troubling thing with which we grapple.

If you don’t have that thing, I would love to read your memoir (or maybe not— I might throw it across the room).

So if you keep stopping by or my blog posts keep popping up somewhere in your life, I know I’ve been talking about cerebral palsy a lot. It’s that thing for me, especially right now, as I topple through the second half of my forties.

I have spend most of my life— until the last decade really— denying that that thing made my life difficult. I laughed off accidents, tried to hide my legs, carefully picked my shoes and didn’t talk about it.

But also, and very important in the chronology, until that point, it hadn’t really been an issue. I occasionally feel down, scraped some knees and hands and laughed about it.

But then I started breaking bones, having issues with my spine and hip, and when I fall now, it’s more serious that wash up some scraped flesh and laugh it off.

So, if you don’t already realize, these blog posts are meant to be informative for those seeking situations involving demiplegic spastic cerebral palsy, but also chronicle my acceptance and journey into how to live my life with my disability instead of pretending it doesn’t exist.

We’re learning to co-exist, cerebral palsy and I, in a way that allows me to stay active, be whole, and keep myself safe.

On Monday, I had an uncharacteristic fall at work that seemed to come randomly out of nowhere. I wrote about it here. It scared me because it didn’t feel like my other falls.

I left work at 11 a.m. and came home to rest and write and emotionally decompress. I was scheduled to go to the gym at 6 p.m.

I texted Andrew, my strength and fitness coach at Apex Training. He moved my session to earlier in the day and The Teenager and F. Bean Barker accompanied me to the gym to study my walking and confer with Andrew about the possibility of a work out.

F. Bean Barker, hard at work

We scarcely made it two blocks and The Teen says, “Holy Shit, Mom. You’re right knee is hitting your left leg. You can’t feel that?”

She proceeds to mimic my gait. After half a block, she looks back at me and says, “No wonder your body hurts so much all the time, my hip is killing me already.”

It might seem mocking for her to imitate me on a city street, but for me it’s helpful since I can’t see myself move. That’s why I also like her accompanying me to various assessments as she has no problem telling doctors, “She’s having a good day today. When she’s tired that leg is much fuckier.”

She and Andrew studied me and they stared in bewilderment. They agreed that my left hip was definitely out-of-whack. The Teen left and Andrew got me stretching and doing a thorough workout that safely challenged the muscles that seemed to be malfunctioning.

As happened on Monday when I was achy, the workout made me feel better (which is why I didn’t want to cancel). I have never been good at not overdoing it, so the concept of “being gentle with myself” as my therapist says and “taking it easy” (both emotionally and physically) as my dad would remind me if he were still here, does not come easily to me. It’s especially hard because spasticity means my muscles don’t relax, so motion and exercise really can relieve my symptoms. But if my issues are joint and/or fatigue related exercise can make it worse. And I don’t often know which course of action will help.

I proposed this theory to Andrew: Since cerebral palsy means the brain and the nervous system can’t always communicate, I feel like sometimes those messages goes haywire. That’s when a good, supervised workout (where Andrew can guide my motions and direct me as to what body parts are doing unnatural things) helps my brain re-learn those communication skills. The muscles start to do what they should do because I am thinking consciously about how to do it, which helps the muscles get into the groove, and from there muscle memory takes over, and through doing, the brain resets.

Just my theory.

I woke up Thursday morning with minimal discomfort from my fall (and a new lump and bruise where I walked into a weight bench at the gym, which made Andrew feel terrible). I was looking forward to my appointment with Nicole Jensen of Back in Line Chiropractic and Wellness Center on College Hill in Easton, Pa.

Her daughter had joined her in the office. That made it interesting to have a different kind of conversation about my condition. I was a good example of two things: every patient is different and some patients have self-awareness about their body. And according to Nicole, I am one of the most self-aware in the practice. I was also an unusual example of someone who often “does better” in heels because of the fact that my heel parts (tendons? ligaments?) are so tight. I’m a toe-walker. My heels natural fall at an angle so a slight “kitten” heel replicates the shape of my feet.

I told Nicole about the latest “random” fall and this worried her, because she’s noticed (and I have tracked on a calendar) that my falls have gone from every six weeks to every two weeks. I mentioned that I applied for a mobility service dog through Susquehanna Service Dogs. She loved this. She agrees that I am the perfect candidate for this and that a dog could be a game changer.

I explained that I had mailed the application last week (Friday to be exact) and that The Teenager and Little Dog’s Mom had said they would write my letters of support (which means they support the placement of the dog with me and will take responsibility for making sure I take proper care of the dog once it is in my home). The Teenager planted the idea of a service dog in my head and it took some time, research and more falls to help me accept the idea that I have a disability and that a dog would be able not only to help, but would probably improve (and protect) my quality of life. The Teenager works for a local pet care company.

Little Dog’s Mom has known me for 20 years, trusts me to care for Her Ladyship Sobaka, and is a very responsible dog owner who takes often thrice-daily walks and has a magnificent fenced back yard. A potential service dog would have my small yard for potty breaks and the opportunity to run and play across the street at Little Dog’s house.

My doctor’s office assured me that if I bring the medical assessment form with me to my August 19 check-in, that my primary care physician would not only fill out the form but he would also do it while I was there. I asked my estranged husband of twenty years (and The Teen’s father), the president of the cat rescue where I foster (who left the social work business after decades to open Apricity Pet Care), and my therapist (who has known me for a decade and whose wife is a physical therapist) to fill out the personal reference forms. They all agreed. But back to the chiropractor…

Nicole also said to stand on one foot throughout the day to stabilize my leg muscles. Physical therapy is a fascinating science, the simplest movements can impose the greatest change. My blind friend Nancy discovered that a good portion of her shoulder pain and finger numbness stemmed from not stretching her neck up. As a blind person, she never has a need to turn her head toward the sky or ceiling or someone speaking from the stairs or seeking something on the top shelf by looking for it.

When her very clever physical therapist suggested stretching her neck regularly, her symptoms decreased significantly.

There it is. A lot of words. A lot of thoughts. I’m hoping this post will give you food for thought, reassure you that I am not totally a disaster waiting to happen and/or offer you information on my journey and hope for you if you need it.

Cracker Barrel & Vitamin D: Blending the Mundane, Building Friendship

I started my day by leaving the house at 7:15 a.m. to visit my friends the phlebotomists at Quest Diagnostics. With my history of anemia and fluctuating iron & vitamin D levels, I tend to get iron & vitamin D checks with my annual bloodwork.

My vitamin D was low during my January 2021 physical (22) so I started adding vitamin D + calcium supplements to my diet. With my multi & my slow release iron.

By June, that had jumped to 32. I stayed that level for the next six months. Today’s test would see if I had gained more— 30 is considered normal.

I started laundry before I left so I could wear my new cat t-shirt. I had a much anticipated meeting with social activist-journalist Dawn Heinbach scheduled for the afternoon at Cracker Barrel, a location I thought would be convenient as she lives several counties away. She submitted some material for the Not an Able-Bodied White Man with Money anthology. I had some books she wanted. I know she’s a cat person so I knew she would love my French pun cat shirt.

When I got home from Quest, I made an egg sandwich and took a photo to my artist friend Maryann whose mixed media postcards appeared in Not an Able-Bodied White Man with Money. She thinks all my food photographs are well-played and pleasingly styled. I told her she’ll have to come for dinner.

I put the laundry in the dryer and eventually changed into my cat shirt. I did some paperwork before I picked up my good friend Nancy to provide a ride to the doctor. Nancy is my poetry editor at Parisian Phoenix Publishing and she’s blind. She keeps me in line both with my writing and my business and occasionally has to make sure I’m facing my disability in an intelligent fashion.

While at the doctor’s office a very senior citizen’s phone went off. The ring tone was the opening notes of Usher’s “Yeah.” I had to bite my tongue to keep from laughing. He looked mortified. Did a grandchild prank him?

I finished Tylia Flores’ Handi-Capable while in the waiting room. I posted a review on Amazon.

We did a couple other Nancy errands and I pointed out I needed gas in the car, and asked if she’d mind a detour to Wawa. I think Nan made out on that one as she went home sign a turkey sandwich, some sour cream and onion potato chips and some half-and-half iced tea/lemonade.

Somehow the two of us can do absolutely nothing but laugh while doing it.

I spent the afternoon blogging and catching up on some work for the business before it was time to go to Fogelsville for my early dinner.

The sky opened, as they say.

I told Dawn I would hang out in those amazing Cracker Barrel rocking chairs. I didn’t know it would be in a deluge.

Luckily I had my umbrella in my car.

The servers came out and danced in the rain. An old man complimented my Eiffel Tower umbrella and said he and his wife were going there next.

Ever the grammar nerd, I said, “really? From Cracker Barrel right to Paris? I hope you love it.”

Dawn and I had a superb conversation about what journalism should be, and she lives in the geographic region served by my protege at Berks-Mont newspapers. We talked cats— and she did like the cat shirt. And my turkey dinner was disappointing but Dawn and I chatted for two hours. We shared a cup of coffee after dinner before going our separate ways.

I bought the teen a Scooby Doo mug and myself a coconut peanut butter candy that tasted like toffee both in flavor and mouth feel.

On the way home, my 2015 jetta played a horrible prank on me. The gas gauge and miles per gallon/miles until empty screens didn’t display any information. Luckily I got gas with Nan so I knew I had plenty. On the highway. 26 miles away from home.

Upon reaching home, I took care of some correspondence and received an update from my doctor. My vitamin D is now 37!

A yummy Tuesday

Tuesday already. If I had not taken voluntarily time off this week, I would be three-quarters of the way through my work week and asleep in preparation of my last day before the weekend.

Instead I slept until a leisurely 6 a.m., did some kitchen cleaning and some laundry while I waited for my coffee to brew.

I did some work on my own essay for the As the FURR Flies cat fundraising anthology — “The Unfortunate Cat Bite Hospital Vacation.”

Spoke with the teenager and headed to visit Gayle, the Parisian Phoenix Art Director, and my longstanding (and upstanding) friend. First I had to remove a tire toy the dog inserted into my purse. We had plans to scan the ink cartoon our friend Rachel had done for the anthology.

Then we went for a walk. I told Gayle not a long walk as my right hip just didn’t feel right and I felt like I had to march to avoid tripping myself. That I had not only fallen on Sunday night, but out of the damn bathtub while taking a shower yesterday.

I bought her a beverage at Déjà Brew, an eclectic local coffee shop/cafe, and nearly fell on my face because the damn floor has a massive bubble down the whole thing. I can’t even describe how huge and high this ridge was. I felt like someone had parked a tree under the tables.

Lunch was pita with hummus and harissa. Then the teenager went to visit a housebound senior to try and help her clean up a bit.

When we finished, I took the teenager to the auto parts store where the Amazon driver left her new Apple Pencil, bought us both discount Diet Cokes at McDonalds and then we headed to a place she’s wanted to visit for a long time— Exotic Dreams and Lingerie— and their neighbor. We bought some anatomically styled sour patch candies and let’s just say our dress form Esther might be donning some knotted red ropes in the future.

When we got home, I unboxed my new calendar: Video of unboxing Silk & Sonder August 2022.

The teenager went to work and I finished my story for the cat book and attended a library meeting. Then the teen made a magnificent hamburger dinner with homemade garlic parmesan gourmet fries.

And we attended a foster meeting via Facebook.

To end the night, the teenager broke an ancient ceramic bowl and I dropped a mason jar very painfully on my toe wrestling with the dog gate.

We’re both pretty exhausted tonight.

Do I want a (mobility) dog?

A while ago, the teenager suggested that I needed a mobility dog and someday she would train me one.

Well, with all the mishaps and falls I’ve had since April (mallet finger, smashing into a brick wall, almost breaking my glasses falling literally on my face, falling into the bathtub and whacking my head on the ceramic tile wall and my personal favorite falling through the screen door), I did some research and thought the beautiful, dog-loving teenager might be right.

I had previously blogged about why I thought a dog would help me and I also thought a first dog should come trained and the teen, approaching young adult, could learn from this one. Just like I would.

My previous post on service dogs

I requested an application from two organizations. The closest to me was Susquehanna Service Dogs near Harrisburg. They sent me an application today. I have three months to fill it out.

The flow chart of initial steps for a service dog

The application requires my demographic, medical and lifestyle information, plus the financial statement saying that I will pay the $5,000 necessary if I get into the program. I need two letters of support— they need to come from people who support me having a dog and promise to support me and the dog together for the life of the dog.

I also need three references.

And a statement from my doctor.

I just thought I’d document my thought process and journey here. Because I’m hopeful, and doubtful, excited and afraid.

Do I want a dog? Can I handle the commitment? Am I the right kind of disabled to benefit from a dog? Can a dog help me be safe? Can I maintain an active lifestyle? Will they see how a dog would protect my independence?

Navigating healthy limits: I can and I should are two different things

The wounds I acquired last Monday falling through the screen door (yes, there is a blog on that) have mostly healed, except where Bean Dog accidentally scratched off my scabs. The teenager tells everyone it looks like I had a fist-fight with a bear. And we had a family debate over Indian food– the teenager, her father and I, over whether I won or lost. Consensus was I won. (The Indian food came from Nawab in south Bethlehem, who were gracious hosts despite us not knowing that had converted to reservation only for dinner.)

On Saturday, I went to the gym and hit a new personal best with Andrew at Apex Training. I think it was 110 lbs on the barbell for three reps in box squats. My torso, my thighs, everything could take the weight well, except my knees. My knees kissed as I stood up with each rep. It didn’t hurt. It quivered a little, but I definitely had to plant my feet, balance the weight, lead with my thighs and hips and force those knees slowly out. The weight didn’t bother me. My own knees terrify me.

On Sunday, I performed 111% at the Stitch Fix Bizzy Hizzy, which means I shipped 555 items. Goal is 500 for a ten-hour shift, but as I reached higher numbers and saw that 555 was possible, I went for it. After all, both 111 and 555 are lovely numbers. Three prime numbers in a row, twice. Patterns and numbers comfort me. They offer a reminder that while a million permutations might exist, that there is underlying order in the world.

Yesterday I started my shift with refixes at the table in QC that has been assigned as mine for about three weeks. My table, line 4b, table 6, has a manual conveyor line on my left, which is great for my balance but bad for my finger. I hit 162, the daily minimum expectation, but barely.

I was achy, with sore feet and a sore spine, but nothing unusual for a person standing for 10 hours a day. I notice on my phone that around 4 p.m. that my walk was asymmetrical by 1%.

I have averaged six hours of sleep lately, with borrowed kittens and the high heat, so I opted to take a muscle relaxer and sleep versus push myself at the gym. My chiropractor has suggested my recent issues with falls and lack of control in my right leg might stem from overdoing it.

Between the heat wave, the full 10-hour shifts, the general aches and stiffness and the inappropriate levels of sleep, I opted to postpone the gym, take one of my muscle relaxers and sleep. I slept much better, but I could use a solid 8 hours or more.

I’m slowly learning just because I can push myself doesn’t mean I should.

Falling through the screen door

Monday. I slept pretty decently last night despite the oppressive heat. I had performed 105% in Freestyle on Sunday in the Stitch Fix Bizzy Hizzy warehouse, folding and shipping clothes while dreaming of new sundresses for myself.

I came home a little stiff and achy, a trend that seems to be back-sliding on the recent physical progress I made but the finger held up to its first day out of the splint at work.

I also came home early, as the Teenager planned a movie night for blind friend Nan to watch How to Train Your Dragon, a movie I have not yet seen despite the fact that I made a Toothless stuffed animal at Build-A-Bear.

Nan and I were to stop and pick up dinner at Wawa and the Teenager had made homemade ice cream (that honestly was on par with Cold Stone Creamery). And everyone got their desired dish from Wawa— except me— as I wanted a pre-made salad from the grab and go cooler and apparently the cooler was broken. The employees were removing all the food and the floor around it bore wet floor signs.

So I ate leftovers out of my fridge.

The audio-described version of the movie was intense. The poor man doing the description didn’t have time to breathe.

I was in bed by 8 p.m. The cockatoo had issues at 2 a.m. But all-in-all a good night.

At work today, I was tired, hot and a little bored at my regular table in QC. I did 101%.

I’m still have issues with a strange burning and tightness in my right thigh, and dealing with that is causing lower back pain.

I got home from work and tentatively poked my head around the corner in the garage— checking to see if dog was in the yard. She was not.

I walked up the stairs from the car bay to the main room of the garage. Walking across the big open space in my garage, I tripped over my own foot and fell. I did some sort of corkscrew dive and fell backwards through the screen door to exit the garage then skidded across the floor. I scraped my hand, my knuckles, my elbow and I think my leg and knee.

But then I still went to the gym. Under Andrew’s careful eye at Apex Training, I did my workout. I felt better than when I arrived, even if I am still a little stiff and achy, but such is life with cerebral palsy.

Some of the damage

Mallet finger update: I’ve had it with this splint

Today was my last official day working with a disability accommodation in the Stitch Fix Bizzy Hizzy warehouse. It’s Sunday, tomorrow is the Fourth of July, and I had a helluva time getting out of bed when the alarm went off at 4:15 a.m.

So I didn’t.

I was in the middle of an anxiety dream where I was with an old friend that cut off ties with me a decade ago… and I think a few people I’ve lost were in that dream.

I reset my alarm for 4:45 and started my day a little off and then the Keurig decided I only deserved half a cup of coffee. As. If.

Today was my first day working in my new splint. (If you didn’t know I lost the first one in my car, you can read that story here.)

I’ve suspected since Friday afternoon that my new splint was too tight, but I didn’t confirm it until I started to see marks on my finger, deep ridges, yesterday.

During work today it got pretty unbearable— so when they let us out early I came home, heated the teapot and dropped the custom splint into a bowl.

I poured the boiling water into the bowl and reshaped the plastic. It’s not nearly as perfectly molded as the professional job, but it doesn’t pinch my finger.

Free the Finger! Cast-free after 9 weeks

I was very apprehensive and so excited to see my doctor at OAA today to get my damn cast off for an evaluation of my mallet finger.

The teenager texted me as I sat in the exam room.

“Free the finger!”

They had a devil of a time cutting it off— apparently after even five weeks in the same cast it was firmly on.

Both the hand/orthopedic specialist and the hand rehab office it’s unusual for patients to maintain a finger cast for so long. That doesn’t make sense to me, because why wouldn’t you do everything in your power to maintain agility and strength in your finger?

Free the Finger!

the Teenager

And don’t give me that “it’s too hard” or “I need my hand to do stuff.”

I work in the Stitch Fix Bizzy Hizzy warehouse folding clothes. And after my brief stint on short term disability to deal with my balance and hip issues stemming from cerebral palsy (and made more complicated by now not being able to rely on the left side of my body with this temporary injury), I went back to work and performed at 100% and higher with my finger in a cast and restricted hand movement.

That finger had so much caked dead skin and here’s the really fascinating part— my knuckle no longer has wrinkles because it has not bent.

In the beginning of my treatment, I found my doctor cold and impersonal but as he gets to know me I like him more and I get more personable interactions from him.

He told me I should gradually increase my finger flexibility with care not to hyperextend it (otherwise known as don’t bend it backwards) and splint it at night. For the splint, I could take my cast back. And tape it in at night.

“It’s cheap, but it’s dirty,” the doctor said.

Yeah, no thanks. I lived with that grimy thing long enough.

“The other option is to return to the Hand Institute and they’ll make you a splint.”

(Which, coincidentally Cigna, my insurance, does not cover. But as I do not cheap out on my medical care, I will pay for. Because right now my HSA is empty because having a disability and doing everything you can to keep yourself ahead of that disability is expensive. So please, consider this and how lucky I am that I can support myself because if I had to really on family and government benefits to subsidize my care, I’d be crippled.)

I imagine there’s a third option— buy an over-the-counter splint. And I was going to consider that. But to me, the cost of the custom splint comes with the knowledge and enthusiasm of the people at the Institute for Hand and Upper Extremity Rehabilitation. These people love and know hands.

And if I can only teach others one concept about your health, it is this: invest in yourself, meaning, find the right medical providers for your team that understand your needs and share your personal philosophy and concerns. This requires being vulnerable in a way that might be uncomfortable and it might mean having difficult conversations with people you don’t like. But it may also lead you to better understanding of yourself and of those people who seemed like callous know-it-alls disinterested in you.

I peppered my hand specialist with questions today— rapid fire as he typed my splint referral into the computer. And he respected them. The questions.

How much movement is okay? What should I watch for? I pack boxes and fold clothes and put things on conveyer belts. Should I splint the finger at work if it starts to feel weird? Is there certain motion I should avoid?

“There are no rules,” he said. “Just be careful and the occasional splinting wouldn’t be bad. I’ll see you in a month.

He made eye contact with me as if to say, “you know your body. Follow your gut.”

But he also knows I’m the patient who kept a finger cast on longer than the average Joe. So maybe, just maybe, he trusts me.

For previous installments on my finger injury: click here.

Also: a YouTube video