Rebuilding

No fancy title. No big announcements . Just some subtle realness.

Though I do have a little good news. Misty came home today. He’s wobbly, but he’s his sweet-natured self. Video here.

Touch of Grey is still in the hospital.

If you missed that harrowing tale, you can read it here.

The world often seems twisted in an eternal loop of one step forward, two steps back. It makes me miss my dad.

But I noticed today amid the cat drama and everyday life— I worked with my blind friend Nan this morning— that I still have trouble with my right leg, mostly stiffness and lack of control, but no pain.

So when I headed to Apex Training for my session with Andrew, I felt anxious and emotionally exhausted but physically ready to go.

Every session Andrew challenges me more today— and I did a mixed grip barbell deadlift at 100 lbs. And for the first time, I felt like I nailed the form.

As if that weren’t enough, he had me do something I never heard of: a plank up. He wanted me to do 5, but I only did 4 1/2. Well, Greg was willing to give me credit for 4 3/4. And as the teenager says, Greg doesn’t hand out credit easily. Speaking of improvements, in Saturday’s session, I surpassed 60 seconds in a plank.

My strength, at least the physical kind, is coming back.

Dinner was a flat bread pizza — a vegetarian delight of random cheese I found in the fridge, a radish sliced thinly, and some honey with red pepper flakes.

First day back to work at the Bizzy Hizzy after my cerebral palsy-themed leave

First off: 89%

For those of you who know me or follow me regularly, I performed at 89% today after a month of short-term disability leave.

Short answer to how my day was: good. I felt pretty good and my aches and pains at the end of the day feel pretty normal.

Now, for those who want more detail, let’s start at the beginning.

On April 15, I ruptured a tendon in my left ring finger taking my socks off. The nickname for the injury is “mallet finger” because your finger looks like a mallet or “baseball finger” because if you catch a baseball wrong you can sustain this injury.

You can read a more concise summary of those events and my treatment here.

I worked with my hand like that for a week at the Bizzy Hizzy folding clothes for Stitch Fix’s clients, performing at a solid 90%. But… I realized I rely on my left side for balance and stability and using my right side to do everything exacerbated problems I was already having with my right hip and spine as complications of my lifelong battle with cerebral palsy. That has been another journey of mine— learning about my body and how I can work with it to age well.

I often wonder what I could accomplish if my body could do what other bodies do.

So I asked my family doctor if I could take a short-term disability leave from work and focus on building core strength and stretching my hips. Because with this silly finger cast, on top of all my other issues, I was falling twice a week.

Today I returned to work— one ten-hour shift in my home department (QC) before the holiday weekend. I work Sunday. We have a paid holiday Monday. And I have a doctor appointment Tuesday afternoon with the neurological physiatrist.

Returning to work today gave me a way to ease back into it, and allows me to gather data on how my body performs. I can give that info to the physiatrist. If I hurt again by Tuesday, it’s a sign that either:

  1. I am moving wrong, or
  2. I shouldn’t be doing this kind of work with my body.

I arrived at work for my 6:30 a.m. shift and friends greeted me that I haven’t seen. At first I went to the wrong table, but caught my mistake, and corrected myself.

I had a right table, good for my hand injury, and one at a good height.

But then they shut the line down and I moved to a left table that was a tad high for me.

For the first 60-90 minutes, I hit all my numbers.

Eventually, I got a text from Mr. Accordion. I hope he doesn’t mind but I’m sharing his photos because:

  1. They made my day.
  2. I love halupkis.
  3. I don’t have other art for this post.

I don’t think he knew it was my first day back to work but his periodic cooking updates made me smile. Mr. Accordion and I shared an office at my last non-profit job. And yes, he not only plays accordion but usually has it in his car.

A couple times today, I had to answer phone calls regarding the toilet explosion that happened in my house yesterday. The insurance adjuster will be here Tuesday and meet with the teenager. I am working on getting water remediation people in to make sure everything is dry.

At the end of the day, I have a weird uncomfortable feeling in my left wrist and the kind of typical aches and pains that come from being older than 40 and working in a warehouse ten hours a day.

I attribute some of my success today to my personal trainer Andrew at Apex. We did an exercise yesterday that was something he called a variation of a good morning. This had me holding a weight across the back of my shoulders and “hinging” at the waist while using my hips for most of the motion.

I tried to replicate those techniques when I bent down to get items out of the bottom of my carts.

Then, when I came home, the teenager had dinner in the oven. I received a lovely message from a former editor at The Morning Call’s short-lived weekly editions, Chronicle Newspapers.

He said I was a truly good person (for all my work fostering cats) and that he missed seeing me every day.

I thanked him and said he made my day.

He replied that there were many times when I had made his and my boss’s day.

That was my favorite job ever, and one I was very good at.

Also, I tried the blueberry muffin flavor of ready-to-drink Supercoffee. My initial reaction was that it was gross. Will give a more thorough review later.

Mercury is Still in Retrograde, right? Report card from the doctor and a toilet explosion

Today is a big day.

It is the final day of my short-term disability leave.

I set my alarm for 4:45 a.m. thinking it would be good practice for returning to work tomorrow.

By some strange circumstance, I woke naturally at 4:15 a.m., the same time I normally get up for work. I cuddled with Louise briefly and got out of bed before 4:30 a.m. I had the lovely vision of writing more of my upcoming novel.

But I heard water.

And it was more than a drip.

So I checked the bathroom, sloshing through several inches of water. I threw down some towels and organized some buckets and bowls.

But when I went downstairs, I saw several heavy drips pouring through the ceiling. And tiles started falling like hail.

I went back upstairs and turned off the water to the toilet. And I called the insurance company.

All before coffee, all before 5 a.m.

I went to my family doctor and he not only released me from my short-term disability leave but told me I’d made good use of my time— going to the gym three times a week and working with a personal trainer, visiting my therapist, resuming my SSRI in an attempt to lower my blood pressure, ease my emotions and hopefully that will help my balance. I went to the dentist, bought new floss and renewed my prescription for fluoride toothpaste. And I rested. I updated my vitamin regimen, added Flonase to my allergy regime, and bought a weekly pill dispenser to keep them all straight.

And that’s when I told him I had also done my follow up bloodwork. That made him, in his words, a happy medical provider.

From there, I went to Apex Training for my session with Andrew. We did a great mix of strength and core and challenging my posture and my mobility in ways that made me feel amazing. I left covered in sweat.

And the plumber came before I had a chance to shower.

We now have a new toilet— the old one was probably 60 years old. And pink. The teenager is upset I didn’t keep the old one. She thinks it would make a great planter next to the rose bush.

And she hates the new toilet.

Which, interestingly, the plumber does, too.

2nd visit to the hand institute… and some cats

If you read my post from earlier today, then you already know my hand specialist/orthopedic surgeon cut off my cast.

No more man with hat.

This meant I had to schedule an appointment with the very amazing staff at The Institute for Hand and Upper Extremity Rehabilitation for a new cast.

This also meant I had to cancel my session with Andrew at Apex Training.

At the time I should have been sweating, the teenager and I were cruising down the highway.

The staff member who originally wrapped my finger anxiously stood by as a newer staff member removed the temporary splint.

“You look like you’re waiting for someone to open a present,” I said.

She was that excited to see how I was healing.

My finger is straight, which means the tendon is growing in the right direction. It does not have enough tissue to have any strength yet, so another cast was put on.

I was in and out in 15 minutes, including my trip to the bathroom.

In other news, our remaining two foster who needed shots made it to the vet today. While I was rocking temporary splints.

We also took one of our personal cats, Opie.

Louise did not stop yowling (video).

Another day, another fall

Tomorrow I visit my hand specialist for my one month check up. Tuesday I see my family doctor/primary care physician about going back to work.

The increased sessions at Apex Training have shown me how weak my core has gotten as I struggle with issues in my S1 joint, lower back (retrolisthesis) and hips (femoral anteversion). But the uptick in training has helped me with balance, range of motion, and eliminating hip pain.

But I’ve also learned motion is crucial, as being active, on my feet and doing things is the only way to prevent intense stiffness.

And then after a great workout with Andrew at Apex, I fell on the way home. It’s the second time in a week I just randomly fell. Did I trip over my own two feet? Maybe. Did I just lose my balance? Maybe.

But these are the types of incidents I worry about, especially when I have a cast on my finger and work in a warehouse.

I fell a block away from home. I managed to throw myself into the grass instead of the sidewalk. That saved me scrapes and bruises. But I fell on my face and bent my glasses.

Luckily, the teenager could bend them back.

This time, the disability leave from work, is about gaining strength, learning more about my body and giving myself time to heal. But it (more of it than I expected) also is teaching me about the balance between fighting and surrendering.

Health update Thursday?

This post may not be the most exciting as I sit here stinky after a small home workout— smelling the petroleum heavy heat of asphalt. But it is a hopeful post. My roses sit heavy with blooms, and the first flowers have opened behind the bush.

Such a metaphor for life. The whole “bloom where you are planted” concept.

I have been working hard— like I want to stop, I want to vomit, my muscles burn. Andrew at Apex Training has been amazing, helping me stretch and challenge spastic muscles in my lower body.

I have had two days now with no hip or back pain, and I can drop into bed and lie anyway I want.

My weight has been up and down thank to Taco Bell and Mothers’ Day cake and ice cream and generic Takis.

But I went for my check-up bloodwork yesterday, and the phlebotomist told me my insurance doesn’t cover vitamin D unless my doctor codes it a deficiency. We skipped that, but my ferritin has risen from 28, just barely in the normal range, to 36. Still far from the middle of normal but rising.

That might be my theme for right now— rising.

And my bad cholesterol, which should be under 100, has fallen from 109 to 107. Again, not a huge leap, but progress. Progress made during a difficult, difficult time of my life.

My pill dispenser has made it easier to take all my vitamins and allergy meds. And I started the process of putting myself back on a low dose of Lexapro,

Maybe it will help.

My personal cat, Fog, decided to love me today. And I wrote a poem about buying my new socks from the Dollar Tree.

The teenager has been nursing an ear infection all week so between that and the roses bloominfection, spring has really sprung.

She returned to school today.

Today I made a leftover sandwich— some old smoked Turkey, slightly wilted lettuce and my coleslaw mix stirred into chipotle mayonnaise.

I spent the morning with my blind friend, Nan, and took her for her bloodwork.

Came home and the dog came out just in time to see that the paving crew had Taco Bell for lunch.

My trainer asked to reschedule my session today, so I told him I would do something at home.

This was my half-assed work out. My trainer asked me to select exercises and do them with intent, and instead I fought with the dog, picked some exercises I thought would move the important parts and retain the ground I made versus improve. Here is a video.

I also received a payment from my short-term disability insurance through work, and I’m grateful as this is giving me time to strengthen myself and recovery from my mallet finger. Hopefully, this will prevent further “domino effect” on my health. I see the neuro-physiatrist at the end of the month.

I’m curious what she will have to say, and I’m thinking this may be the end of my quest for answers about my cerebral palsy.

Zigzag: Random thoughts about exercise, food and friends

Yesterday before the teenager and I took our impromptu trip to Hershey to visit with Curly, I had the good fortune to have a coffee date with a neighbor who has proven herself time and time again as a reliable friend.

We met while pregnant, due dates a week apart, homes a few blocks apart, and with jobs in the same town in the next state. Even though we lived less than a block apart for most of the teenager’s life (and the fact that her son and my daughter have first names that are one letter apart and family names that are very similar and fall alphabetically beside each other), she and I have not kept in touch the greatest— but somehow— when I need her, she seems to be there.

She even worked for me for about six months when I needed a staff member that could act without much hand-holding and understood my working style. The partnership renewed our connection— and the employer recently asked her to return to the organization and she politely declined.

We had the chance to discuss these things over “coffee” at the diner where the teen used to waitress. But the day was rainy and we both wanted soup instead of coffee, so we had our mom therapy session over bowls of pepper pot.

We talked about the teenagers’ post-high school plans, the value and frustration of college, our health, medical insurance in America, and how hard it must be to be a teen in today’s world.

I mention this as a reminder of how sometimes, sharing a moment can bring laughter and release.

Our latest Hungryroot box came, and I realized for the first times in all these months of Hungryroot that the reusable nitrogen ice packs are plant food. Now I can’t wait to pour that on our compost heap.

Speaking of food subscription services, my breakfast today was Cabot cottage cheese from Grocery Outlet and a sprouted multigrain everything bagel and garlic herb probiotic cream cheese from Hungryroot.

My lunch was leftover cauliflower linguine and one meatball from Hungryroot, basil tomato sauce from ShopRite and a pile of plain lentils I made.

Turns out lentils are a great way to add plant protein to spaghetti.

And finally, my session at Apex Training today was not easy— but I did it. We did a lot of sweat-inducing balance exercises. I have been having issues with stiffness since I left work and my walk has been unstable. This morning my right leg felt off. So I told Andrew and together we thought it might be super tight. Well, by the time I left, my right leg and back were screaming.

But after a shower and an NSAID to make sure nothing is inflamed, at least I don’t feel like a pile of grinding gears needing oil.

The ordinary adventures

So, if you’re a friend of mine or a regular here, you know that I have asked my employer, Stitch Fix, for a short-term disability/ FMLA leave to deal with my ruptured tendon (mallet or baseball finger) and its impact on my right hip.

This means I’ve made a commitment to work with my family doctor, my chiropractor (Nicole Jensen at Back in Line Chiropractic and Wellness Center) and Andrew, my personal trainer at Apex Training.

And to keep my hands warm and not use my finger.

Yesterday, I saw Nicole and we discussed the state of my body and the trade-off I seem to be making— working in the Bizzy Hizzy warehouse keeps me active but causes pain, but not being in a physical job makes me stiff and makes it difficult to move, even when I take the same amount of steps I do at work.

Andrew and I are working on strength, mobility, stability and range of motion.

I had lunch with my mother yesterday, who upon her return home had her dog pass away.

In the afternoon, I spoke with my disability claims examiner and gathered paperwork for her. My eligibility confirmation came through this morning, and I think the actual leave is just a matter of paperwork now.

But paperwork sure is sucking the life out of me right now.

So this morning when the weather looked sunny and conducive to a perfect spring day, Nan and I decided to surprise the teenager and retrieve her hearing aids from the ear doctor. Then, we could grab some cold beverages and visit Bethlehem’s Monocacy Park.

The park is quiet, easy to navigate and has a creek. The birds, geese and fishermen would offer entertainment for Nan, as between the water and the animals there would be nature to hear as well as see.

It was a fantastic way to bring some stress-free moments into running errands.

After a modified upper body workout with Andrew, Joan stopped by and brought me an early birthday gift from the residents of Plastiqueville.

A hat!!!!

The hat was not for me but for my mallet finger.

And for dinner, the teenager made Hungryroot meatballs and cauliflower linguine. We used ShopRite tomato and basil pasta sauce. It turned out so lovely I had to make a slice of butter bread to sop up the sauce.

Small pleasures.

Do as I say not as I do, or fun with medical billing practices

I don’t think anyone will disagree with me when I say that medical insurance and medical billing in the United States makes no sense. It’s unfair to patients, unfair to doctors and makes the lives of medical office staff ridiculously complicated.

Let me just give a disclaimer that anything I say in this post is not a reflection of the skill of my physicians or the caliber of my care as both have been excellent.

But basing medical care on the decisions of private insurance companies attached to employment is reminiscent of the “company town” days when employees lived & worked in the same place and businesses profited on and controlled the life experience of their employees. Check out the old coal mines. I am from Pennsylvania after all.

I have spent much of the last year bouncing from specialist to specialist trying to learn how my body works as a 40-something with cerebral palsy and now, almost three weeks ago, I ruptured a tendon taking off my socks.

Last night, when I was already slipping into a fragile emotional state feeling lonely and physically broken (hey, it happens. We’re all human and have moments. Mine happen after dark while binge-watching medical dramas.), the teenager brought me the mail.

It was 9 p.m., I was curled in bed with an episode of The Good Doctor cuddling Louise, the tripod foster cat who deserves a permanent home because she’s such a doll.

I open my EOBs from my insurance company. Now, I know my recent misadventures will be expensive. I also know my therapist has recently sent me a $600 bill and apologized but said he can’t deal with my insurer anymore. But that’s another story and after almost 15 years with the same mental health professional… I will take care of it.

But this particular EOB charged me $200+ to see a specialist (fair) and a $2,000+ fee for surgery. Surgery? I walked into the office, an assistant removed my splint, he looked at me, he looked at the imaging done by Patient First, told me to get a cast and go back to work, and told me to make a follow-up for May 18 and left.

The assistant helped me put my splint back on, I left his office, went to another medical office (unaffiliated with him), filled out new patient paperwork, paid a $50 deposit, and received a cast.

Does any of that sound like surgery to you?

Being an anxious woman of a certain age with a hand injury, I did what seemed best at the time: I poured a whiskey and diet cola and grabbed the bag of sriracha pita chips and binged.

I ate all these chips, but no hummus or tea.

In the morning, I discovered I put my underwear on backward. I had two cups of coffee and a glass of water (I won’t eat until I get hungry) and called my insurance company.

“I’m not aware of having surgery so I’m confused.”

They arranged a three-way call to the doctor’s office.

The woman, who was polite and professional said, “so you’re not being treated?”

I said, “well yes I am.”

And she explained that’s a blanket term for tendon repair.

I replied, “Okay, so this was not explained to me. Let me just get some clarification. I paid the office fee, so the doctor could evaluate me, and he also gets an additional fee? Even though he sent me to a different doctor for the cast?

“Oh, she explained. “It covers any additional treatment in the next 90 days.”

Well then I hope that covers the office visits for all my check-ups and follow-up care.

I thanked them both— the representative of the insurance company and the billing clerk at my specialist’s office. But this is just another example of how the American medical industrial complex complicates and threatens patient care and a patient’s concern for if that care will financially destroy their stability.

** the title of this piece is a reference to me using binge eating as a coping mechanism

Rainy Mondays

This morning, I slept in until 6:30 a.m. and that felt like a luxury. My hip is starting to bother me less. I even managed to give the last foster cat her dewormer. Before coffee!!

I had a cup of my dark roast Supercoffee and a bowl of Cabot cottage cheese. I needed a shower, so I bathed. And then I called to see if I could move my chiropractor appointment up earlier in the week.

My plan is to confer with her about how best to strengthen my core and work with my hip. That will be Wednesday at 9:15 a.m.

Two hours had passed since my cottage cheese. I prepared my main breakfast— a vegan feast of quinoa, lentils, ancient grains, kale, pumpkin seeds, Hungryroot fresh salsa and my homemade roasted red pepper hummus as dressing. And the first batch of the days vitamins.

For dessert I had three slices of dragon fruit “chips,” which appear to be a great source of potassium and even have iron and protein. And a big glass of water.

I used my mid-morning to work on the Parisian Phoenix Publishing May newsletter.

It talks about upcoming events that will blend literature and fine arts.

I puttered about the kitchen and felt my injured hand becoming frightfully cold— so I started a second cup of Supercoffee at noon (which is way too much caffeine but it’s the only way I can keep my blood flowing without a workout and I don’t want to workout without supervision because of my recent falls and my mallet finger).

The teenager’s Keurig kept having some sort of stroke and just refused to make coffee. It acted as if it didn’t have water in it, so I unplugged it, added more water, took my fancy coffee pod out and ran the water through. Then I tried again. It took about three tries to get my coffee.

I gave myself two sesame mochi as a snack and curled up with the dog.

And after we got settled, the doctor’s office called to discuss paperwork for my employer and the disability company.

I’m watching some TV now and brainstorming ideas to make tomorrow a “writing day.” I just hope it finally starts to get warm.