The ordinary adventures

So, if you’re a friend of mine or a regular here, you know that I have asked my employer, Stitch Fix, for a short-term disability/ FMLA leave to deal with my ruptured tendon (mallet or baseball finger) and its impact on my right hip.

This means I’ve made a commitment to work with my family doctor, my chiropractor (Nicole Jensen at Back in Line Chiropractic and Wellness Center) and Andrew, my personal trainer at Apex Training.

And to keep my hands warm and not use my finger.

Yesterday, I saw Nicole and we discussed the state of my body and the trade-off I seem to be making— working in the Bizzy Hizzy warehouse keeps me active but causes pain, but not being in a physical job makes me stiff and makes it difficult to move, even when I take the same amount of steps I do at work.

Andrew and I are working on strength, mobility, stability and range of motion.

I had lunch with my mother yesterday, who upon her return home had her dog pass away.

In the afternoon, I spoke with my disability claims examiner and gathered paperwork for her. My eligibility confirmation came through this morning, and I think the actual leave is just a matter of paperwork now.

But paperwork sure is sucking the life out of me right now.

So this morning when the weather looked sunny and conducive to a perfect spring day, Nan and I decided to surprise the teenager and retrieve her hearing aids from the ear doctor. Then, we could grab some cold beverages and visit Bethlehem’s Monocacy Park.

The park is quiet, easy to navigate and has a creek. The birds, geese and fishermen would offer entertainment for Nan, as between the water and the animals there would be nature to hear as well as see.

It was a fantastic way to bring some stress-free moments into running errands.

After a modified upper body workout with Andrew, Joan stopped by and brought me an early birthday gift from the residents of Plastiqueville.

A hat!!!!

The hat was not for me but for my mallet finger.

And for dinner, the teenager made Hungryroot meatballs and cauliflower linguine. We used ShopRite tomato and basil pasta sauce. It turned out so lovely I had to make a slice of butter bread to sop up the sauce.

Small pleasures.

Rainy Icy Friday

I don’t have many plans this weekend— defined by my work schedule as Thursday, Friday and Saturday— in part because my body has been unpredictable, the weather has been crazy and the teenager’s work schedule varies.

I went to the chiropractor at 5 p.m. on Wednesday, leaving work 30 minutes early to get the last appointment of the day. I wanted Dr. Jensen to see my body after four ten-hour shifts in Stitch Fix’s Bizzy Hizzy warehouse.

And, for the second or third week in a row, I could barely crawl home on Tuesday night but felt pretty good on Wednesday. So I feel like I’m not getting closer to solutions to my physical issues.

Yesterday I tried to do some work for Parisian Phoenix, did a lot of laundry, visited briefly with a friend I’ve missed and haven’t seen merely enough of, taught a high school student how to write a press release, watched several episodes of Cobra Kai, ran the dishwasher and went to the gym.

The teenager working on her squat form

The teenager did a lot of work on her squat form while I did some accessory work. I also weighed myself— 157 lbs. Sigh. Still 20 pounds overweight.

Then we had Taco Bell, including the new Cinnabon balls.

Today I worked on the index for the Parisian Phoenix nonfiction anthology on marginalized identities, Not an Able-Bodied White Man with Money, which I will be blogging about on the Parisian Phoenix web site later tonight. F. Bean Barker was my helper.

Indexing is only half complete and man does it allow me to interact with the text in new ways.

Louise has an appointment with a potential adopter tomorrow and today she was quite cuddly, video here. I don’t know how she’ll do in the backroom of PetSmart but all least we’ll be with her.

Nala and Louise

In the afternoon, I accompanied the teenager to her audiologist appointment for a tune-up on her hearing aids.

Then we went for shoes. The teenager needed some and I wanted to buy a warmer pair that fit more loosely — hoping that would ease the blistering and burning in my toes.

The teenager got new black Vans and a new design, the orange blossom Vans.

We ran into Target just to use the bathroom and I told the pouty teenager we could get a drink at Sonic. But turns out Sonic is still drive through only, so if you can’t have drive-in service what’s the point of visiting Sonic?

So we went to Sheetz, and had appetizers. Which would have been fine if the teenager hadn’t suggested going to see her grandmother, my mother-in-law. And her aunt— who recently destroyed her elbow falling on the ice.

We’re finishing Captain America: Civil War right now. The ice is slowly building up outside as the cold rolls into town. And Peter Parker just made his debut in the series.

Merry Medical Morning

I woke up with not much voice, still not quite right and worrying that maybe I have a cold. I haven’t been sick since I had Covid— more than a year ago— but I drank lots of hot liquids, chugged some DayQuil and ventured out into the cold.

Why?

The teenager had a 9 a.m. greatly anticipated appointment for a hearing aid fitting. When they put her in the test hearing aids, her voice quieted immediately.

Apparently speech tones have been difficult for her to hear for quite some time and the pandemic made it more obvious that she was reading people’s lips.

The doctor was greatly personable and loved the teenager’s enthusiasm.

From there we went to the neurologist— the first time I have ever visited one. This visit was one of many doctor appointments in 2021 I booked as part of my fact finding mission regarding my body and my cerebral palsy.

(My temperature was 97.6, so whatever is making me feel “off” does not include a fever.)

And so I talk with the assistant, the resident and the doctor. I was very impressed with the doctor and even more impressed that she kept checking in with me— “I want to make sure I address any questions you have.”

But honestly I got scared because when she first walked in she said, “so you think you have cerebral palsy.”

As if I had googled it and just came to that conclusion with web m.d.

And I’ve heard other people say it… but never experienced it before today. When you have a visible disability that you often have to explain to people, when someone threatens to change that diagnosis it’s very unsettling. I never expected to feel so uneasy that someone might challenge the very thing that has defined much of who I am, even if I hate the fact that it intertwined with my personal identity so deeply.

But spoiler alert, after examining me and watching me walked she touched my knees gently and said, “I agree.”

Not only did she explain things I already knew about the condition (it’s static and will not change), but she pointed out that I often step on my left foot. I literally trip over my own foot. She also sat on a stool beside me— so the doctor was below me making eye contact upwards. I have never had a doctor do that before.

She referred me to the physiology department, and thinks they may recommend Botox to relax my leg muscles and prescribe braces for my feet to help them face the right direction.

She also scheduled a head CT, warning me that it will show brain damage, but that young brains compensate for damage via their elasticity. (Is that the word?) I’m excited about this because it gives us a baseline image of my brain so as I age we won’t confuse my cerebral palsy brain with, say, a stroke.

And she was impressed with me, as doctors often are.

More on this journey: