Tag wellness

On writing, living and working (with a disability)

Angel Ackerman 1 Comment

I pride myself on being able to write just about anything at any time with no fear of writers block.

But lately, I haven’t been keeping this blog up-to-date. I think it’s because I’m doing so much that I don’t have enough stillness to think, reflect and write. I still have the thoughts, but I don’t have the time to germinate themes and record them and so I lose the moment.

Last night, I was a guest speaker at the Behind Our Eyes writing group for writers with disabilities. Nan has been a part of that group probably for most of its 19+ year existence, but I am a relative newcomer. I joined because I read Nan’s email and work so closely with her as a writer that I already knew most of the members in the creepy troll way.

Nan pointed out to the group that I was a gifted cook and bargain hunter, and that she hopes I commit more time to my disability memoir because I have some insights that the world needs to hear. And maybe they are things I also need to remember.

I overdid it last week. The last few weeks have been insane. I haven’t been eating right, or sleeping well, or giving myself any breathing room. I saw my cardiologist last week, and I mentioned to her that I don’t know if my blood pressure medications are the most efficient way to stabilize my heart rate.

The backstory

So, in March 2023, I had two bad falls down stairs in close proximity– 2 weeks apart. Neither were traditional mechanical falls of the type I am used to, those from lack of proper muscle control due to cerebral palsy. The first occurred as I was hurriedly leaving work to go to the chiropractor. I dove down the cement stairs and ended up severely spraining my pinky. Most dumb injury ever, and my pinky is still bent.

I didn’t know it at the time, but my eating habits had flooded my system with salt when I misbehaved, and then when I suddenly returned to my normal diet and drank the massive amounts of water I had always consumed, well, I washed all the sodium from my body, causing low blood pressure and dizziness (orthostatic hypotension).

With cerebral palsy impacting my gait, and allergies/congestion also challenging my balance, a sudden drop in blood pressure may have caused the fall. (I suggest this because I did almost pass out in the moments after the incident.)

Almost two weeks later, I was carrying a cup of tea upstairs when I had a nothing fall triggered by my head and not my legs. My daughter watched it happen. I plummeted out and down and into an air conditioner that was on the floor. I split open my chin directly under my lip. I definitely needed stitches so we headed to the emergency room.

I told the doctor that I knew mechanical falls and these weren’t from my legs, and he gave me some options:

  1. He could stitch me up and send me home in a matter of minutes.
  2. He could order every test and I’d be there all night.

I asked if there was an option in the middle, and he suggested starting with some bloodwork. But they also noticed my blood pressure hadn’t come down so they put me on a heart monitor and very quickly noticed that I was in Afib with OVR.

So it looked like I would be there all night anyway.

They eventually labeled the whole incident as idiopathic and put me on a low-dose beta blocker to make sure I stayed in rhythm. I invested in an AppleWatch to try and get information about what my heart was doing.

Fast forward to present-day

I have had no incidents of Afib since that initial one. But each fall, my blood pressure has risen in the autumn. Is it allergies causing stress on my body? Is it the stress of the end of the year and all the obligations of adulthood like taxes and paying for fuel oil? Is it just the looming presence of Christmas? Or is it the change in the seasons and the shorter days? Or a figment of my imagination?

In the autumn, I struggle more with anxiety. My primary care physician has talked with me several times about the impact of stress and anxiety on heart health. I have been in and out of psychotherapy for 15 years showing symptoms of depression and generalized anxiety disorder.

So I asked my primary care doctor, my cardiologist, and my psychologist if I might need an anti-anxiety med instead of the combination of other meds for high blood pressure. Because typically my diastolic pressure is typically good, and high in response to stress, but it’s not uncommon for my systolic pressure to stay high even when my heart is at rest, sometimes elevated for days even with a now higher dose of the beta blocker.

I take a muscle relaxer for spasticity several times a day and some anti-anxiety meds can also treat this, allowing me to reduce the amount of medications I am taking. A standard low-dose beta blocker and muscle relaxer for maintenance and on days that I am anxious, an anti-anxiety med instead. So now I’m on the hunt for a psychiatrist to get an evaluation.

Which brings me back to last week

Last week was brutal. I was booked every day from 8 a.m. to at least 10 p.m. And Saturday I attended Collingswood Book Festival as an author with Pennwriters Area 6. I met with clients everyday, taught my college class, went to WDIY to talk about advertising my business (and hopefully make some new friends)…

And I still worked part-time. I don’t talk much about the job I have in a local fast-food restaurant, a job I took last January because after a year of relying on Parisian Phoenix Publishing for my income, the realities of first quarter in the business world were making me nervous. And since royalties pay out three months after sales, I know how much money is coming and when.

And 90% of the time, the evening fast food job suits me perfectly and feeds me. The general manager was an English teacher until this year and understands my business and my frequent time off requests.

But last week I had two long shifts back to back where I was assigned jobs that were physically challenging for me. And I haven’t been in that much pain and discomfort in a long time.

And so even though I still have more work than time, and business can be as stressful as it is rewarding, I will try to go easier on myself. I only have two fast food shifts this week, and they are both on the longer side… but my days aren’t packed nearly as tight.

Gunk and other updates

Angel Ackerman 1 Comment

It is Saturday, December 28, around 8:30 a.m. when I start this. Do not expect much eloquence from me, as the gunk Eva passed on to me from her recent illness is still interfering with my ability to think and sleep. It has instead given me a lovely cough, which now after more than a week is getting “wet” and “productive.”

I FINALLY finished my medical intake at the St. Luke’s Medical Fitness program. Because of my paused membership, I’m not sure when my end date in the Thrive program is but let’s assume mid-February for now. This whole journey started in early November when I visited my neurologist-physiatrist to talk to her about my recent mobility issues and any concerns she had about me returning to an exercise program.

The older I get, the more I worry that my cerebral palsy will cause me to hurt myself because I tend not to notice when my body is doing the wrong things.

Eva has worked really hard on remodeling the garage and including a space for a home gym, so I need to pay some attention to myself in that regard. But I’m out of shape, and falling more than usual, so I’m scared.

My neurologist referred me to the medical fitness program, and I had my first medical intake appointment on November 11. My blood pressure spiked during that appointment, so they sent me home without doing the baseline exercise portion of the intake. I returned two days later, and they almost sent me to the ER because my blood pressure was still bad.

Here are the previous entries recalling all of that, when it was happening.

Two trips to the primary care doctor, two trips to the cardiologist, and two or three falls (depending how you count, one was a trip, but I still believe it happened because of balance issues which makes it a fall) later, my blood pressure seems under control again.

And of course, yesterday, when I turned up at the gym in the basement of the hospital, it was 130/90.

Since I’ve been fighting the gunk, I almost canceled the appointment, but I filled a water bottle with my electrolyte flavor, grabbed a scarf, forgot a mask, and hopped in the car. My fear was that if I canceled the appointment, the intake would have to wait until after my colonoscopy and I was worried that one thing would lead to another and I’d never get this done.

When I arrived, I forgot my water bottle in the car, still couldn’t find a mask, and realized I had no idea where my membership/gym tag was. In the back of my mind, I knew I had packed a gym bag at my last attempt and that the tag was in the gym bag. But where was the gym bag? And what bag did I use?

Lots of hand sanitizer and frequent hand washing and I refused to shake the young man’s hand. I also told him if I continued to cough and he had to send me home, I understood. But I reiterated that I had had many trials to get to this point and I would rather be sent home than continue the cycle of not trying.

Onto the fancy scale I went (168) and I know that body fat percentage was in the forties, wish I could remember what it was when I was super lean a decade ago. Turns out that information may only exist in paper journals in my attic.

39-year-old Angel … with something to prove before hitting 40

The Angel in the pictures is 45 pounds lighter than me, and I think those 45 pounds, age and stress have had a ridiculous impact on my blood pressure and my mobility. (And for the record– the sweatpants worn by Angel in the pictures were my favorite sweatpants ever.)

I have learned that my body reacts strongly to salt and sugar, and that I “do better” when I cook, and that I have no self-control with processed snack foods like potato chips and doritos.

The trainer I met with yesterday talked about maximum heart rate and how hearts slow down as we age. The highest my heart rate reached in 2024, according to my AppleWatch, was 186. 207 was the highest since I got the watch. The online calculators I have seen suggest that my maximum heart rate for my age is between 170 and 179.

The trainer, and maybe his name was Ryan but maybe I invented that, would like to see me four times a week. I still have the mental mindset to make this work, but my physical stamina and fortitude have worn me out to the point where I can talk myself out of my own efforts.

I found this post from when I started my journey with Apex Training in 2021.

Maybe, someday, I will get my discipline under control and be one of those old ladies who powerlift. Screw the whole red hat/purple dress thing.

Meanwhile, Monday is my first colonoscopy. It was supposed to be the Monday after Thanksgiving but the doctor had a death in the family. Tomorrow I start my official bowel prep, and it scares me, because I get shaky without food, and low blood pressure without salt, and I already have a mobility disability. Then they will knock me out on Monday, and I tend to have a heavy reaction to medications and anesthesia. So none of this makes me comfortable. The actual colonoscopy, that doesn’t scare me. But everything else does.

So tomorrow, unless I experience miraculous healing today, I will be expelling mucus from my lungs and all the poop from my bum.

Tell me to keep going.

Angel Ackerman 2 Comments

I feel unseen and unheard. I’m cold and I’m tired. And I have a headache.

The cold is easy to explain but not easy to remedy. My furnace started acting odd last winter, and I invested more than $600 into a possible fix that was nothing more than a guess and a bandaid– and it worked for last winter.

My heat is on 58-degrees right now, because I keep my heat low to save money and it doesn’t go up to 62 degrees until I’m consistently cold. And it only goes higher than 62 on special occasions.If you balk at those numbers, then you’ve never been poor.

Today the furnace refuses to work in any capacity. I called my heating people and they said they could come tomorrow, but I have special plans tomorrow (reading– the wine and book pairing at Cellar Beast Winehouse in Andreas, Pa. Buy tickets here) and I don’t want the stress of knowing if I’ll be without heat this winter. Because the furnace might really be dead. I’m hoping maybe it’s the thermostat, but that might be delusional thinking on my part.

[Help Angel heat her house this winter! Buy Parisian Phoenix books! 30 to choose from! Here’s our affiliate store on Bookshop.org— https://bookshop.org/shop/ParisianPhoenix— where you can support me, my authors and your favorite independent bookstore all at the same time without leaving your house, which I hope is warm!]

They are coming Tuesday afternoon, at my request.

If you follow this blog, you may already know that I signed up and paid for the Thrive Medical Fitness program at St. Luke’s Hospital.

Past blogs regarding this:

How I learned about the program

Medical Fitness Intake, part 1

Medical Fitness Intake, part 2

So, when I got home last night, I tracked my blood pressure for the hour after I returned and watched it come down to normal. Then, I ate Wing Stop. I had previously eaten about 850 calories that day with about 50 grams of protein and yeah, when Eva said she was starving and wanted Wing Stop I ordered it. I got a chicken sandwich, 5 boneless wings and an order of the fried corn with parmesan instead of the seasoning. I hoped I wouldn’t eat it all, but I did, which brought my protein totals for the day to around 125 grams and my calories to probably slightly more than 2,550.

My weight this morning did not change. My heart rate also appeared normal. My blood pressure before my beta blocker dose was 116/84. I skipped my morning coffee, drank a glass of electrolyte water and even wore my AppleWatch in the shower to see how my heart rate responded to the hot water.

At the doctor’s office, my weight had not changed. My heart rate was 77! That’s so ridiculously good for me as usually when I walk in the door it skyrockets. My blood pressure was 150/96. And they still have my height listed as 5′ 3″ which makes me obese. I’m 5′ 4″!

I saw a doctor that was not my own, and while he seemed like a very nice person, he didn’t see or hear me. He spent five minutes with me and prescribed a new medication. My history shows I have an issue with anxiety and my blood pressure, and I’m not saying I don’t have an issue, but no one seems to care that my blood pressure only escalates when I am outside of my house!

And I mentioned I struggle with orthostatic hypotension so I’m really concerned about changing my medications.

I am waiting for the pharmacy to fill the meds, and I made the follow-up nurse visit, but I also made an appointment with my cardiologist. But it’s hard to take care of yourself when you don’t have the same financial resources or the same “normal” body as everyone else.

I decided to cheer myself up and do something positive I made a coffee bar at the end of my desk.

Energized

Angel Ackerman 2 Comments

I’m energized in a way I haven’t been for a long time. And hopeful.

And once again I find myself greater for a strong, smart medical team that genuinely listens and cares.

It’s been a while since I had a medical update, and part of the reason for that is because of my high deductible medical plan that makes it more expensive to receive care. I am a big proponent of high deductible plans– because with an HSA they can save a lot of money, but I do not have an HSA. My current plan has out-of-pocket costs that are twice that of my previous plan. I’ll be paying $120 a month for the next two years to pay off my MRI from earlier this year.

And you haven’t seen any fitness entries because I haven’t worked out in a very long time. My coach at Apex Training took a hiatus for a family emergency and has not returned, and I no longer have the money. I have a feeling the guys at my gym would offer me some sort of deal– they have always been reasonable people, but life is so uncertain I just didn’t have it in me.

And food has also been an issue. As my food budget is also highly restricted.

These realities, especially for someone proud and stubborn like myself, are a constant reminder that it is not easy to be poor and take care of yourself, even without factoring in a disability. I believe having a mobility disability, which in my case is diplegia spastic cerebral palsy, makes me more away of how important diet and exercise are.

We all hear it all the time– that all of the body’s systems work together and that food, rest, and exercise provide the foundation and potential to fix a lot of problems. And in my case it’s easy to see the impact. It’s been about six months since I stopped working out, and my spasticity has reached a new level of inconvenience. I have spent much of my life in jobs that did not involve sitting behind a desk, and that, coupled with the lack of gym routine, has taught my muscles that we sit. And when my muscles learned something, they remember.

I need to start healthier routines. Eva is remodeling our garage and will move all of our weights, resistance bands and other equipment out there. And I am walking more. I get what I consider reasonable step counts about three times a week. I might even start walking the dog.

But about two weeks ago, I had my second episode of crippling muscle spasms after a day of walking. And I walked with a cane for a day. That also drove the reality home. I have never used a cane before.

In the midst of all of this, once I realized how out-of-shape and out-of-breath I was, I scheduled an appointment with my neurologist/physiatrist. This was a couple months ago and she couldn’t see me until Dec. 31 at 4 p.m. But they put me on a cancellation list and moved me to November 6.

My doctor arrived and immediately called me stylish, not knowing I picked my clothes to keep my weight the lightest possible and when she noticed my red boots, I had to let her know that they were on the floor next to my desk and I didn’t have it in me to look for other shoes. (But later in the visit, she acknowledged how my choice of boots also makes walking easier and the ankle height of the boot gives me more support. All part of why I love boots!)

She also commented about how long my hair has gotten, at which point I had to remind her that we hadn’t seen each other in more than a year. “Really?!?” she said. I nodded. (We set up another appointment for April so that doesn’t happen again.)

She gave me an exam and noted all my muscle tightness and had me walk around the office for her. And we talked about my hopes to improve my habits– because I know my role in my situation accounts for most of my everyday problems.

(And my cardiologist never got back to me about going off my beta blocker, but I did stop taking it. I have seen more incidents of high heart rate, but nothing significant or repeated, and most of it can be explained by diet or exercise. Eat a Little Caesars pizza? End up with a racing heartbeat. Do short stints of rapid walking? Also high heart rate.)

She suggested I resume taking my baclofen regularly and to up the dose to 10 mg if needed, up to 3 times per day. I took it regularly while working in the warehouse and have been taking it now when I feel I “need” to.

As she made a written note of all my lower body muscle issues, she asked if I might be interested in an ambulatory referral to a medical fitness exercise specialist at St. Luke’s Anderson Fitness & Sports Performance Center. “Sure,” I said.

They called me while I was driving home.

And when I learned it was $99 for the three-month fitness program and that insurance might even pay it, I really was glad I decided to go see my doctor. I made an appointment for intake evaluation on Monday and maybe soon I’ll be using my Clever Fox Fitness journal.

This is what the website says:

Medically-based exercise programs for those with a chronic disease and / or disability. Designed to increase exercise tolerance and enhance functional capacity. For all ages.
Join us and get ready to THRIVE!
$99 three-month fitness memberships are available to all patients and clients referred from St. Luke’s Weight Management, Physical Therapy at St. Luke’s, St. Luke’s Cardiopulmonary Rehabilitation, St. Luke’s Physicians and St. Luke’s Oncology.

https://www.slhn.org/fitness/fitness

All things fitness, mobility and service dog

Angel Ackerman Leave a comment

The last week or so I feel like my strength in the gym (Apex Training) has been dead on– the lifts have come easily and even as my feet/lower body doesn’t cooperate, I seem to get the job done without compromising my other body parts. Andrew, my fitness trainer and strength coach, has been a wonderful support and motivator as life has gotten dramatic and hectic for both of us.

Today I lifted a new PR on bench press– I am up to 80 pounds! As for flexibility and core strength, from my angle it fluctuates every day but Andrew points out a lot of his observations which suggest I am improving more than I might realize. I have noticed that I stumble less, even as my toes drag and my balance falters, knock on wood I have not fallen since Sept. 30.

I have gained back all of the weight I lost, between gin sours and peanut m&m’s and all sorts of chips from the Dollar Tree. And too much pizza! Even with The Teenager home after having her wisdom teeth plus a back molar removed, I’m still eating too much junk– milkshakes, cheese curds, the Wawa chicken fingers and french fries, Macs received for free with minimum purchase of a Diet Coke for me and a Sprite for the Teen all in the name of surgery recovery.

Meanwhile, I can see my muscles gain definition so I know if I’d stop putting junk in my body ALL THE TIME, I could really lean out and have great tone. But the immediate satisfaction of treats and savory, salty foods steals my discipline and knowledge every time.

As if that alone weren’t enough to kick my ass back where it needs to be, I’m starting to believe that the occasional out-of-breath episodes I’m having are symptoms of exercise-induced asthma. My allergies have been bad. The weight doesn’t help. And I noticed more and more that it comes on all of a sudden, even when I’m walking on a flat surface setting my own pace and not with anyone else, and I cannot get air into my lungs until I repeatedly take breaths through my nose and get a breath deep into my chest.

Today, it happened at the gym. I have never had anything like this happen at the gym. I was doing sets of 25 crunches on the exercise ball and really had trouble catching my breath at the end of the set. And I love those crunches! I normally knock them out like a beast!

Light Mobility Service Dog Update

Yesterday I was scheduled to meet with my caseworker at Susquehanna Service Dogs on Zoom. She asked if we could please reschedule for today and as I kept the end of the week open not knowing how the Teen would do with surgery, it worked out fine.

Today the Teen, myself and the caseworker met to discuss what my dog might be trained to do as a task for me, any concerns I might have, and some more updates about my lifestyle. The number one goal I have for this endeavor is to be able to go on walks by myself without fear. I miss my days of going for a 4-mile walk in the morning. I want that piece of mind. The other tasks that I asked for are help retrieving things from the ground when I can’t bend, carrying items I might have in my hand if I find myself struggling for balance, and getting a first aid kit if I need one.

Why I canceled Silk & Sonder despite amazing customer service and a quality product

Angel Ackerman Leave a comment

I subscribed to Silk & Sonder in May, a birthday present to myself.

Read about my previous experiences and thoughts here: Silk & Sonder blog posts

Silk & Sonder unboxings:

August

May

After working out some delivery issues with customer service, I loved this product. But as lives go, mine got busy and I started using my journaling time as workout time and have been unable to find a time where I am rested enough and still enough to benefit from these activities.

Each month more and more of the planner remains blank because I can’t keep up— and that stresses me out.

I think I can incorporate some of the items I really like— monthly mood and habit trackers— into my current journaling practice.

But I would love if Silk & Sonder developed an annual planner that would allow exploration of this topics without feeling like I’m starting the over every month.

And as my life gets busier, making sure my paper planner and my phone calendar match has been exceedingly difficult.

Update on Silk & Sonder: Wheel of Life reflection and July’s courage theme

Angel Ackerman 2 Comments

I ordered my first Silk & Sonder planner in May as a birthday present for myself. My June one got held up at the post office so July marks the first month I could fully use the planner to, uh, plan.

(To read about my previous Silk & Sonder experiences and their amazing customer service:

This month I have done less of the exercises, read less of the text and gave it less of my attention. Yet, I think the habit has rooted in making me deliberately cognizant of my routines and needs.

I’ve been slipping with making and tracking clear weekly goals for my mini habit trackers, and I don’t always fill out “one thing” or the weather, but I like seeing the monthly tracker as a method to chronicle what vitamins I take and studying the patterns of color on the mood page.

My friend and publishing partner Gayle mentioned last month that she had did a “wheel of life” exercise and in July’s courage-themed wellness planner I found the same exercise.

I was surprised by the results and what they show about me. My highest satisfaction level was in the adventure category. I thought about my travels, my fondness for road trips, my love of new cuisines and testing new restaurants. I love reading books about new topics, learning new skills, and stepping outside my ordinary routine.

My lowest rating fell in the relationships category. That’s where my biggest insecurity lies. I have troubling opening up and even more trouble trusting though I will answer any question you ask me. I’m fiercely loyal and very generous but can also be stubborn, brutal with my honesty and frugal. So with my frequent dips in self worth (probably the result of childhood trauma and life with a disability), I can be distant because I fear being left behind. The people I love and/or trust most are often the ones who are cruelest to me.

Meanwhile, education seems misleading because even though I have two bachelors and a quarter of the work done on a masters degree, I really want a Ph.D. in African Studies. And if I’m honest an MFA in creative writing. I want to learn everything and share what I learn with everyone through my writing.

Romance and family present themselves as areas of struggle. But I’m strong in my spirituality, finances and home environment probably because those are the silos of my life where I feel in control.

Health and Career are mediocre, but I do not strive to have a career.

I value my freedom and living more than my career. I have no desire to make my mark on the universe through my career.

Silk & Sonder wellness planner: “mid month” update

Angel Ackerman 2 Comments

This is (kinda) my first full month with a Silk & Sonder planner. I say “kinda” because it arrived a week into the month.

But I realized today, that even if some of my prompts are empty, and even if I stare at the same exercise day after day, that I am still performing the reflection actively and being present for/in myself.

The new July planner is, according to a tracking email I got this morning, out for delivery today. This is very exciting as I feel like now I can perhaps slowly ease into the upcoming them and actually use the planner as a planner.

I’ve experimented with various ways to log what’s important to me and honestly I still struggle with “what should be where.” I can’t determine what should be on my monthly habit tracker versus my weekly goal tracker.

I have quasi-decided that my monthly habit tracker reinforces habits I have established and the weekly goal tracker helps me tackle specific projects or establishing/renewing habits.

The other “problem” I have is using the weekly health planner— it’s been blank each planner I have received. I don’t meditate, never have and don’t intend to. I haven’t reliably reconnected with flossing. I haven’t lifted a dumbbell in months. Once upon a time I did yoga…

But that also brings up the idea of how many times can you list something as a goal and/or put it on the tracker and not do it at all.

This is indeed a journey.

#mysilkandsonder

Previous blog entries here: Silk & Sonder.

Arrival of June Silk & Sonder and some silliness

Angel Ackerman Leave a comment

Greetings my readers — apologies for the lackadaisical level of blogging but in addition to mandatory overtime at the Bizzy Hizzy my life has been a tad repetitive.

I ended a beautiful work week with hitting my QC quota not once but twice, learning that my favorite nurse is leaving to take a job in hospice, introducing my daughter to some of my Stitch Fix colleagues, finding out I have to get the Covid vaccine* and wear a special sticker in the warehouse if I want to work without a mask this summer, and binging on fried food and a Swedish fish milkshake at Sheetz.

Midnight with teenager #1 at Sheetz

The new Swedish Fish milkshake at Sheetz (my favorite junk food spot in the middle of the night — scrumptious jalapeño poppers and Wisconsin-style cheese curds) topped off my night although I was a little “drunk” on sugar when I got home and slept like garbage because of it. But the sweet flavor and the tiny gooey chunks were a lot of fun.

And to make life exciting, my replacement Silk & Sonder June journal arrived. The excellent customer service made right for the difficulties incurred by the postal service. My original June journal has been sitting in the regional post office 8 miles away for two weeks and at one point did arrive in my local post office two miles away only somehow to be rediscovered at the regional post office yesterday. The post office claims it will be delivered today.

If I end up with two I will give one to my friend Gayle who is often my partner in crime. She’s a graphic designer, a college professor and, in my opinion, a professional and talented doodler. So if we use this “self-care” journal together, it could lead to some interesting feedback.

Another random side note, teenager #1 is considering returning to therapy. She has struggled to find a good match as she is a teen but an unusually mature teen with more adult than teen problems. I have reached out to a friend of a friend (we all went to college together) about the prospect of her professionally seeing my daughter and I was suddenly struck by the notion that I am now old enough that my friends have such fully developed skills and careers that we are, well, the grown-ups in the room.

Anyway, back to Silk & Sonder, the June 2021 theme is “play.” I am numb with fear. My mother and estranged husband all insist I don’t know how to play. I had carved away this small block of time before dinner to explore more of my June Silk & Sonder planner…

I transferred the June-related notes from my May planner. The basic layout is the same but I see they do try to change up the mood tracker and some of the pages. I didn’t try last month’s recipe or complete all of the “creativity” exercises.

But I was surprised at how distressed I became when I no longer had it. I’m a little behind on all my hopes for today so as I start working with it more there will be another post. Or many.

Previous Posts on Silk & Sonder

* Now, please don’t lambast me for not wanting to get the Covid vaccine. I am very glad there are products available for those who need it or would feel safer with it. But the research on this virus is still happening, the current products on the market are not approved by the FDA and the mRNA vaccines are new technology (using the same techniques developed by crispr to genetically modify mosquitoes so they can’t carry disease and the same technology was used by a Chinese scientist to modify a female baby so she can’t catch HIV) that is not a vaccine at all.

I had an appointment to get the Johnson & Johnson vaccine as that is a more traditional (do they call it viral vector?) product. My appointment was on the same morning the FDA called for the pause, so it was canceled, not by my choice. I don’t understand the fuss about blood clots when plenty of women get blood clots all the time from hormonal birth control pills.

And if that wasn’t enough to make me think twice, the new guidance from the CDC suggests that natural immunity generated by the body after contracting and recovering from Covid, which I had in December 2020, should last for at least a year if not for life.

So I probably don’t need an experimental vaccine product, not yet.

And, I have anecdotal reports from a friend who works in Washington DC as a medical technologist who has attended events at the CDC regarding this virus, that the next round of vaccine products, boosters as it were, may allow those who have not been vaccinated to receive only one shot instead of two.

And, I think finally, I am concerned that since I had Covid, the vaccine may cause a reaction on the first dose and since I had Covid once, I’m not ready to volunteer to repeat any of that experience. In addition, vaccinated people often test positive on Covid tests when they don’t have Covid and this can cause unnecessary quarantine and prevent travel and delay necessary medical procedures as one friend can attest.