“You better put in that application for a service dog.”
We hadn’t even made it half-way down our block and I already stumbled and fell. The teenager, her dog, and I had left our house at 7 p.m. on just another high-90s day. We were headed to CVS for ice cream.
The CVS is a 2,000 step walk— there and back— so we thought it would be good exercise for the whole family.
Plus, I had about $3.75 in Extra Bucks and a 40% off coupon. A pint of ice cream is $6.99 at CVS so I grabbed a whole bunch of singles and a handful of change.
The dog behaved really well on the walk, but my left foot did not— it kept twisting under me. I felt like I had to lift up my feet in exaggerated steps not to fall. Like high knees marching.
I stumbled twice on the way home but did not fall again.
The teenager made her remark about the service dog. I’ve spent a lot of time with her dog this weekend and thought… just imagine if this dog were useful.
I already did 90% of the 54-page application packet. I talked to those people I want to be my support letters (the teenager and my neighbor, as they would be my literal supports) and my references: the teenager’s father, cat foster godmother (who used to be a social worker) and my long-time therapist (whose wife is a physical therapist).
That leaves one thing: the medical evaluation. My own insecurities make it very difficult for me to ask for help. And it’s taken a long time for me to learn to speak up and out and advocate for myself.
I am nervous to ask my doctor— my family doctor of more than a decade— to do it. Part of me wants to wait until my appointment on August 19. But if he says no, that only leaves me two months to find someone else.
I think I need to call the office tomorrow and leave him a message to ask if he’d do it if I bring the paperwork August 19, or sooner if he wishes.
Again, I have doubts. What if I’m not disabled enough? I don’t want to waste anyone’s time. I don’t want to take a spot away from someone who needs a dog more than me.
But I’m struggling and I’m scared and I’m getting older. And I can do so much on my own but a dog would give me that much more.
I spent a lot of time on the application. Pretty much a whole day. What do you want the dog to do? What’s your typical day? Do you work? Do you volunteer? What are your interests and hobbies? Do you own a home? Do you have pets? Who lives with you? Do you drive? Can you handle travel? Can you take care of the dog? Are you able to train the dog?
If I can get ahold of the doctor’s office, as soon as I know someone will fill out the papers— I will tell my letter-writers and references to do their thing.
My therapist and I had a chat about it. His professional association discourages therapists from doing medical evaluations for service dog applications, but since I was asking for a reference, he was okay with that. He had no idea how many things a mobility dog could do.
He mentioned that in our current times, the emotional support animal and assistance dog phenomenon seems to be getting more and more prolific but that in my case, I’d obviously put a lot of thought into it, done my research, and found a program that could really benefit me.
Fingers crossed, I guess.
Oh, and the ice cream… it was $1.86 after my discounts. I had a $5 bill, five singles and 87 cents in my pocket. I paid exact change.
The wounds I acquired last Monday falling through the screen door (yes, there is a blog on that) have mostly healed, except where Bean Dog accidentally scratched off my scabs. The teenager tells everyone it looks like I had a fist-fight with a bear. And we had a family debate over Indian food– the teenager, her father and I, over whether I won or lost. Consensus was I won. (The Indian food came from Nawab in south Bethlehem, who were gracious hosts despite us not knowing that had converted to reservation only for dinner.)
On Saturday, I went to the gym and hit a new personal best with Andrew at Apex Training. I think it was 110 lbs on the barbell for three reps in box squats. My torso, my thighs, everything could take the weight well, except my knees. My knees kissed as I stood up with each rep. It didn’t hurt. It quivered a little, but I definitely had to plant my feet, balance the weight, lead with my thighs and hips and force those knees slowly out. The weight didn’t bother me. My own knees terrify me.
On Sunday, I performed 111% at the Stitch Fix Bizzy Hizzy, which means I shipped 555 items. Goal is 500 for a ten-hour shift, but as I reached higher numbers and saw that 555 was possible, I went for it. After all, both 111 and 555 are lovely numbers. Three prime numbers in a row, twice. Patterns and numbers comfort me. They offer a reminder that while a million permutations might exist, that there is underlying order in the world.
Yesterday I started my shift with refixes at the table in QC that has been assigned as mine for about three weeks. My table, line 4b, table 6, has a manual conveyor line on my left, which is great for my balance but bad for my finger. I hit 162, the daily minimum expectation, but barely.
I was achy, with sore feet and a sore spine, but nothing unusual for a person standing for 10 hours a day. I notice on my phone that around 4 p.m. that my walk was asymmetrical by 1%.
I have averaged six hours of sleep lately, with borrowed kittens and the high heat, so I opted to take a muscle relaxer and sleep versus push myself at the gym. My chiropractor has suggested my recent issues with falls and lack of control in my right leg might stem from overdoing it.
Between the heat wave, the full 10-hour shifts, the general aches and stiffness and the inappropriate levels of sleep, I opted to postpone the gym, take one of my muscle relaxers and sleep. I slept much better, but I could use a solid 8 hours or more.
I’m slowly learning just because I can push myself doesn’t mean I should.
Monday. I slept pretty decently last night despite the oppressive heat. I had performed 105% in Freestyle on Sunday in the Stitch Fix Bizzy Hizzy warehouse, folding and shipping clothes while dreaming of new sundresses for myself.
I came home a little stiff and achy, a trend that seems to be back-sliding on the recent physical progress I made but the finger held up to its first day out of the splint at work.
I also came home early, as the Teenager planned a movie night for blind friend Nan to watch How to Train Your Dragon, a movie I have not yet seen despite the fact that I made a Toothless stuffed animal at Build-A-Bear.
Nan and I were to stop and pick up dinner at Wawa and the Teenager had made homemade ice cream (that honestly was on par with Cold Stone Creamery). And everyone got their desired dish from Wawa— except me— as I wanted a pre-made salad from the grab and go cooler and apparently the cooler was broken. The employees were removing all the food and the floor around it bore wet floor signs.
So I ate leftovers out of my fridge.
The audio-described version of the movie was intense. The poor man doing the description didn’t have time to breathe.
I was in bed by 8 p.m. The cockatoo had issues at 2 a.m. But all-in-all a good night.
At work today, I was tired, hot and a little bored at my regular table in QC. I did 101%.
I’m still have issues with a strange burning and tightness in my right thigh, and dealing with that is causing lower back pain.
I got home from work and tentatively poked my head around the corner in the garage— checking to see if dog was in the yard. She was not.
I walked up the stairs from the car bay to the main room of the garage. Walking across the big open space in my garage, I tripped over my own foot and fell. I did some sort of corkscrew dive and fell backwards through the screen door to exit the garage then skidded across the floor. I scraped my hand, my knuckles, my elbow and I think my leg and knee.
But then I still went to the gym. Under Andrew’s careful eye at Apex Training, I did my workout. I felt better than when I arrived, even if I am still a little stiff and achy, but such is life with cerebral palsy.
The world often seems twisted in an eternal loop of one step forward, two steps back. It makes me miss my dad.
But I noticed today amid the cat drama and everyday life— I worked with my blind friend Nan this morning— that I still have trouble with my right leg, mostly stiffness and lack of control, but no pain.
So when I headed to Apex Training for my session with Andrew, I felt anxious and emotionally exhausted but physically ready to go.
Every session Andrew challenges me more today— and I did a mixed grip barbell deadlift at 100 lbs. And for the first time, I felt like I nailed the form.
As if that weren’t enough, he had me do something I never heard of: a plank up. He wanted me to do 5, but I only did 4 1/2. Well, Greg was willing to give me credit for 4 3/4. And as the teenager says, Greg doesn’t hand out credit easily. Speaking of improvements, in Saturday’s session, I surpassed 60 seconds in a plank.
My strength, at least the physical kind, is coming back.
Dinner was a flat bread pizza — a vegetarian delight of random cheese I found in the fridge, a radish sliced thinly, and some honey with red pepper flakes.
For those of you who know me or follow me regularly, I performed at 89% today after a month of short-term disability leave.
Short answer to how my day was: good. I felt pretty good and my aches and pains at the end of the day feel pretty normal.
Now, for those who want more detail, let’s start at the beginning.
On April 15, I ruptured a tendon in my left ring finger taking my socks off. The nickname for the injury is “mallet finger” because your finger looks like a mallet or “baseball finger” because if you catch a baseball wrong you can sustain this injury.
I worked with my hand like that for a week at the Bizzy Hizzy folding clothes for Stitch Fix’s clients, performing at a solid 90%. But… I realized I rely on my left side for balance and stability and using my right side to do everything exacerbated problems I was already having with my right hip and spine as complications of my lifelong battle with cerebral palsy. That has been another journey of mine— learning about my body and how I can work with it to age well.
I often wonder what I could accomplish if my body could do what other bodies do.
So I asked my family doctor if I could take a short-term disability leave from work and focus on building core strength and stretching my hips. Because with this silly finger cast, on top of all my other issues, I was falling twice a week.
Today I returned to work— one ten-hour shift in my home department (QC) before the holiday weekend. I work Sunday. We have a paid holiday Monday. And I have a doctor appointment Tuesday afternoon with the neurological physiatrist.
Returning to work today gave me a way to ease back into it, and allows me to gather data on how my body performs. I can give that info to the physiatrist. If I hurt again by Tuesday, it’s a sign that either:
I am moving wrong, or
I shouldn’t be doing this kind of work with my body.
I arrived at work for my 6:30 a.m. shift and friends greeted me that I haven’t seen. At first I went to the wrong table, but caught my mistake, and corrected myself.
I had a right table, good for my hand injury, and one at a good height.
But then they shut the line down and I moved to a left table that was a tad high for me.
For the first 60-90 minutes, I hit all my numbers.
Eventually, I got a text from Mr. Accordion. I hope he doesn’t mind but I’m sharing his photos because:
Mr. Accordion’s ingredients Mr. Accordion at workMr. Accordion’s Halupkis ready to go in the oven
A couple times today, I had to answer phone calls regarding the toilet explosion that happened in my house yesterday. The insurance adjuster will be here Tuesday and meet with the teenager. I am working on getting water remediation people in to make sure everything is dry.
At the end of the day, I have a weird uncomfortable feeling in my left wrist and the kind of typical aches and pains that come from being older than 40 and working in a warehouse ten hours a day.
I attribute some of my success today to my personal trainer Andrew at Apex. We did an exercise yesterday that was something he called a variation of a good morning. This had me holding a weight across the back of my shoulders and “hinging” at the waist while using my hips for most of the motion.
I tried to replicate those techniques when I bent down to get items out of the bottom of my carts.
Then, when I came home, the teenager had dinner in the oven. I received a lovely message from a former editor at The Morning Call’s short-lived weekly editions, Chronicle Newspapers.
He said I was a truly good person (for all my work fostering cats) and that he missed seeing me every day.
I thanked him and said he made my day.
He replied that there were many times when I had made his and my boss’s day.
That was my favorite job ever, and one I was very good at.
Also, I tried the blueberry muffin flavor of ready-to-drink Supercoffee. My initial reaction was that it was gross. Will give a more thorough review later.
It’s the end of April and it was 35 degrees last night. The price of oil continues to skyrocket and I’m still heating my house halfway through spring.
The cold does not help the poor circulation in my hands which has intensified in my left hand because my mallet finger restricts my movement.
My hands are painfully cold, except when Andrew is making me curse him in my head at Apex Training. Today was leg day, and I was so tired that when I came home and let the dog out I turned around and lost my balance and slammed right into the brick wall between my mud room and my kitchen.
Nala, my six-year-old Goffin’s cockatoo, started shaking and plucking her feathers today. Nothing in her environment has changed except the neighbor’s dog has been barking nonstop all day. The teenager believes his distress causes her anxiety.
Speaking of the teenager, she made this thick chocolate chip cookie/blondie dessert that I topped with ice cream that Sobaka’s mom brought home from Penn State when we dog sat last weekend.
Before the teenager brought home our dog, I would never criticize a dog owner, but now that I see the difference between different dog care styles, I feel back for dogs that aren’t spoiled like Sobaka and Bean.
And I don’t know how Sobaka’s mom does it— that dog is a bed hog.
But now an update on my mallet finger:
Stitch Fix has been amazing. Because my specialist at OAA took a week to return my paperwork and then didn’t properly fill it out, the onus was on me to find jobs I could do to not hurt myself. It turned out I can QC just fine— I hit 92% just fine.
But here’s the thing… my specialist knows hands, he doesn’t know me. I don’t think he heard me when I said I have cerebral palsy and that I work 10 hours a day in a warehouse. I’m just not sure that environment is safe for me right now,
Why do I say this? Because this week drove home to me how much I rely on my left side for stability. By forcing me to work 90% on the right, I am struggling to keep my right hip in place.
I am so stiff by the end of the work day. I also end up pinching and slamming my right fingertips and by the end of the day my left fingers I can use are swollen and sore.
And I fold 750 clothing items a day, handle 150 boxes and rip open probably 500 plastic bags. That’s a lot of fingers moving.
Once I consider the risk of accidentally losing my cast and bending my finger (which would extend my healing time) and adding the increased fall risk of mine because I am aggravating known issues with my balance and mobility, I just don’t feel safe.
This is a horribly stressful feeling.
I’m going to talk with my family doctor about it. I already mentioned it to my therapist, because I wanted to confirm my thoughts were rational and not whiny or emotional.
Today’s vegan lunch: curry carrots, lentils, quinoa, my own roasted chick peas, toasted sesame seeds, green olives and a touch of Thai peanut sauce topped with pumpkin seeds
And last but not least, cats. Misty caught a mouse! Video here.
Misty and Fog, our brothers Foster Touch of Grey Foster Tripod Louise
It’s been a demanding week with my body in revolt for most of it.
I’ve succumbed to some bad moods but for the most part kept it together— and even enjoyed another pizza outing with the teenager and my blind friend Nan where we have officially determined that Nan and I think Nicolosi’s eggplant parmesan is our new favorite pizza. The teenager is in the chicken-bacon-ranch camp.
The teenager has been housesitting and her own dog F. Bean Barker seems to prefer sleeping in her crate downstairs to being in the teen’s bedroom alone with the two foster cats, Mars and Khloe.
Mars & Khloe
It has taken a few nights of sleep deprivation to discover this.
And it’s cold. And rainy. So the dog and I are both grumpy.
But this week I have started a new routine— getting up at 4:15 am so I can write for 30 minutes before work. In addition to my publishing business (Parisian Phoenix Publishing), I also need to commit to my writing.
Speaking of commitment, I’ve been trying to buy a bookshelf all week.
But I did buy a microphone for the business so that hopefully we can record some authors reading their work and have discussions with and for writers as part of our marketing material.
Nan and I got together today to run errands, see what was going on with Axiom, drink chai and read poetry. The best publication we looked at today was definitely *82 Review which featured Nan’s poem, “Brewing Chai.”
The magazine is very very diverse in its style and I am very excited to read more.
One of the best pieces I’ve read in a long time is “A Child in Need of Services” (a flash submission) where the speaker talks about the origins of their three talents, with such humor and joyful voice that you just don’t see the ending coming. The author is Amanda Skofstad.
We retrieved Nan’s laundry and I parked the car at the high school and walked the half mile in the cold rain (uphill as the teen would remind us) to the gym so the teen could have the car after school to go to work.
But I made it to the gym… for session 73 at Apex Training with my trainer Andrew. I love his current approach— a lot of back and shoulder based weight training for the upper body and creative more-or-less body weight exercises for the lower body so we can develop some muscle memory in those body parts that don’t understand how to play on a team. We also did some hex bar work and other stuff. I always feel good when I leave.
But by far, the hardest exercise for me today was wide stance squats. That had me struggling, concentrating, breathing and thinking I wouldn’t make it through. For squats. Bench squats at that.
Let me explain.
My cerebral palsy makes this the ultimate torture. Remember— my quads, hamstrings and calves never relax. My heel tendons are too short and my ankles don’t have the right mobility. My knees point in because of my femoral anteversion, and that just means the top of my femurs go into my hip sockets at the wrong angle.
So when I do that wide stance bench squat, I need to practice the most muscle control I can. I have to plant my feet and manually rotate my toes to what feels like uncomfortably out. And when I rise, I need to maintain balance, push with my upper region of my legs and force my hips out so they can force my knees out.
It’s damn hard.
But I can feel those body parts trying to cooperate and that’s exciting. If Andrew and I had more money and could work less at traditional full time jobs, I would love to train every day.
I posted this to Facebook:
I came home and stood in the rain for ten minutes holding an umbrella over the dog and she still wouldn’t pee. I took a shower, got dressed and gathered laundry. The washer wouldn’t work. My seven month old washer.
So I made myself an omelet of peppers, two eggs, heaps of Black Bear Mexican turkey, a slice of black pepper Cooper, a half slice of horseradish cheddar and piled it on my last slice of ShopRite bakery seeded rye.
The teenager came home and I googled the error code on the washer and she moved the whole wash tower and ripped the rear access panel off. When the drain pipe wasn’t back there, I had her read me the exact model number so we could Google again. We found this video, by a man with nice hands: Fixing the washer.
The teenager watched about half a minute, grabbed a bucket and ran to the front access panel. Within seconds, she had removed the whole plug apparatus and flooded the bathroom with gallons of wash water.
“How am I supposed to get that into a bucket?” she asked.
I continue watching the video. There’s a tube you empty first.
“There’s a tube!” she yells.
Oh, Pop Pop on the Mountain, wherever he is in the afterlife, is laughing his ass off now.
The apparatus is clogged with poly fill, a metal ring, quarters and other nonsense. That is fixed now. Drain hoses cleaned. Wash loads continue.
Sometimes my journals are nothing but to do lists and shopping lists. But I like lists— even if I never refer to them again, the act of making a list allows me to stop thinking about things.
If I want to refer to it later, I know where to look, but I no longer have to worry about forgetting as if I want to remember or revisit items from an earlier day I can but I am not staring at a list focusing on what needs to be addressed versus what I actually did.
Many people make lists to receive the satisfaction of checking off the things that are done. I don’t do that. Sometimes I do, but now it’s more like I am acknowledging the list versus trying to conquer it.
I used to finish my list every day or stress over the things I didn’t get to, and on top of that— the list never made me feel better or more in control.
It just exhausted me.
Trapped and the Cover for the Anthology Arrive
Parisian Phoenix’s first contemporary romance has arrived and it looks great. Read more about that here.
But I also received the cover for Not An Able-Bodied White Man with Money, which I will be blogging about on the Parisian Phoenix site this weekend.
And I have a 4 p.m. meeting today with another author who I have been hoping would join our family.
Now if only I could finalize some of our business documents to really move the projects forward.
Yesterday (Voluntary Time Off) and evaluating my health
Life at Stitch Fix’s Bizzy Hizzy has been odd lately. We’re shipping something like 8,000 fixes a day and having the opportunity for voluntary time off.
Last week, I performed at pretty damn close to 100% without pain or significant mobility issues. This week, issues started mildly during my Sunday shift and deteriorated Monday & Tuesday, leaving me at 80% and crying myself to sleep. I talked about this here.
I’m very much wondering if my menstrual cycle has something to do with it, as the Mirena IUD has done miracles for my pain and issues in that department but has made my cycle irregular. I think my body is trying to menstruate later than usual.
I was taking inventory of my recent balance, mobility and functioning issues as today I had my annual “wellness visit” that the office rescheduled from last week.
I took VTO yesterday to allow myself some rest and some time as life (and grief from my father’s death two months ago) has gotten chaotic and overwhelming.
And I made the teenager and I grilled cheese as I had promised to do, and the child acted like I had prepared filet mignon for her.
I have a feeling I will be repeating that after school today.
We also watched Miranda Sings Live on Netflix. The teenager went through a time when she watched the show, so that was weird. It always amazes me how much talent it takes to perform badly.
The doctor today
I have spent more than a decade assembling a talented and caring medical team, so now I can confidently say any issues with my medical treatment stem from the system and not from my doctors.
The doctor and his resident agreed with my assessment that it’s time for me to get into the physiatrist and that their office will advocate for me on that as well, and that my instincts and approaches are correct.
I learned that women more so than men tend to favor one side when they move or stand. As women age, this tendency can create problems. That means this is a problem normal people have and not just a result of cerebral palsy.
And most interestingly… I learned that women more so than men tend to favor one side when they move or stand. As women age, this tendency to let’s say ‘lean’ can create problems, just like what I am experiencing now with my right hip and right leg/foot. That means this is a problem normal people have and not just a result of cerebral palsy.
I reiterated to them that I do know I need to lose 20 pounds, but that we have some issues to address before that.
The psychology ofemotional and physical pain
When I was turning 40, I embarked on a journey to lose five pounds and gain muscle. I inadvertently lost 30 lbs and ended up a skeleton and regained some weight to look like this:
That was about 30 pounds ago. I have no need to be that lean again, but I’d really like to see 135 lbs again— which means I need to lose 20 lbs.
I told my doctor and his resident— I know I can’t eat an entire bag of cheese puffs or Wawa bowl of mac and cheese and brisket after dinner. But I’m struggling with depression from my body pain and my father’s unexpected death.
I’m grateful I haven’t turned to alcohol like many in my family, but I have “given in” to food as a psychological crutch.
I pay almost $300 a month for a personal trainer, but I can’t work as hard as I want to because I hurt and I feel like I need answers as to how to move my body so it doesn’t hurt. Because if I could exercise more and move more, I wouldn’t sabotage myself by eating garbage (or if I did, I would be active enough to balance it).
But right now, when I come home from a ten-hour shift with my body twisted and aching badly, and wishing I could call my dad so he could make me laugh and tell me how much it sucks to get old, I grab junk food because it’s the last pleasure I have.
I can’t move without pain so if I’m going to be forced to get fat and lazy I might as well enjoy the process.
These are ugly thoughts and I know that, but I’m being honest.
The fun stuff: errands with Nan
After leaving my primary care doctor, I called Nan as we were scheduled to do some errands together. We stopped at Wawa for some hot caffeinated beverages (cafe con leche for me and vanilla chai for Nan).
Among other stops we visited Park Avenue Market and Deli, one of our favorite haunts known for its deli, salads and meats.
Although I am once again contemplating more of a vegan diet, which will make the teenaged carnivore wince, I am not ready to commit until I feel better. We must achieve discipline before we enact change.
I never got around to meal planning yesterday so I didn’t have a list. I ended up spending $36.89 and I think the results will work.
I purchased: two packs of beef jerky, one small box of minute rice for the teen, three or four teeny tiny bags of Wise snacks from popcorn to potato chips, meatballs, the biggest damn carrot I’ve ever seen, frozen vegetable medley with potatoes and garlic herb sauce, sweet potato crinkle cut fries, pork roll, Lebanon bologna, liverwurst, turkey, olive salad, a store-baked pig ear for the dog and something called “hot pepper shooters”— round hot peppers stuffed with prosciutto and provolone.
Rough meal plan
My rough meal plan for the next week or so is:
Sandwiches
Meatballs and green peppers, either as a sandwich or in pasta
vegetable lasagna still in the freezer from last week
Burgers and fries, using ground beef from the freezer and the sweet potato fries
Cold tortellini salad with roasted carrot, olive salad and seasoned broccoli (broccoli is in the freezer)
Pork roll and egg sandwiches
Chicken and the frozen vegetables and rice or other grain
PS— we also welcomed a new foster into the house. Her name is Babs. Meet her in this video. I need to make her a page.
Yesterday I cleaned a lot of my downstairs and had a relatively good work out at Apex. I haven’t felt incredibly strong lately, but my IUD must be working because I’m not in pain.
I had a good week at work, so cleaning, working on Parisian Phoenix projects and watching Cobra Kai suited me just fine yesterday.
I even found two of the dog’s Kong balls under the couch which made for a very happy dog.
Today, I was supposed to have my annual physical but my doctor’s office called yesterday and rescheduled for next week— which also means another week without answers from my CT scan and physiatrist referral. Neither the neurologist nor the physiatrist’s office has called me back.
And I need a doctor that can help me understand the motion and mechanics of my body, and not just its individual parts.
Today I scrubbed the exterior of the stove and did dishes. Then I went to help my blind friend Nan with some errands and grocery shopping.
We made plans to pick up some pizza at Little Caesars so Nan could try the Batman Calzony. No matter how I tried I couldn’t explain what it was to the blind lady. So we bought one.
But we had time to kill before the teenager got out of school even after we put groceries away. We grabbed the dog and got drinks and hash browns (for the dog) at Dunkin.
And then we surprised the teenager with the dog at school.
Then Joan stopper by to drop off some hand-me-down magazines and erotica, cupcakes and photos that Joan needed us to sort.
Now, I’m cuddling with Louise, watching Gotham Garage and enjoying kitten photos.
Angel Ackerman 