I have a lot of little things to say that problem don’t belong together but today is the Lehigh Valley Book Festivalat Bethlehem Area Public Library and I’m excited, a tad nervous and a bit super-focused and scatter-brained at the same time.
Parisian Phoenix Publishinghas participated in events before but we have scaled up with our efforts and this event today.
So this post will cover:
Spider-Man: No Way Home
Health and Fitness
Pie
Cats
I think that’s about right.
So the teenager and I finally came to the current end of the Marvel Comics Universe movies with Spider-Man: No Way Home. Watchingthem sequentially, and for me, many for the first time, actually made a lot more sense than when I saw some of them the first time.
I got a strange déjà vu that I had seen some of these villains before, but at the same time I was confused because the memory was vague and distant.
So let’s just say, trying not to spoil it for others like me that are woefully behind in their pip culture, that this film incorporates some older films that will be familiar to Generation X.
The primary theme of this movie, in my opinion, is time travel. The actual plot is a tad weak and melodramatic but the homage made to the previous generation of Marvel movies, and the humor employed in this movie, make it worth it.
My favorite Spider-Man is Toby Maguire. I got to see him again. And that made my heart happy. (Toby is also the Spider-Man adored and referenced by supermodel Adelaide Pitney in my chick lit/horror fiction novel, Manipulations, the first in the Fashion and Fiends series.
I had a very good visit with my chiropractor Nicole Jensen of Back in Line. She’s impressed with my progress and got things to pop and move (my right ankle that I broke more than five years ago) that haven’t popped and moved in a long time.
My Later, Andrew at Apex Training worked out every muscle he didn’t the day before (okay that’s an exaggeration) and the teenager set a new personal record in deadlifting: 225 lbs.
Finally, I get to the part I’ve been waiting for: PIE! If only I weren’t trying to be so health conscious… Because I have been visiting the amazing pie ladies Anne and Lisa at Pie+Tart for three(?) years now and their pies (and flat white coffees) have nurtured my soul through some difficult times— and a very very toxically difficult boss.
I receive their weekly email and saw their “freezer section” of leftover discounted pies included a steak and Guinness pie and a matcha custard pie. A meal inspired by two of my favorite drinks.
I was so beyond excited to eat these pies I was vibrating at “the pie hole” which is what they call their window/doorway. It has allowed them to stay in business safely during Covid because how would we survive sans pie.
I can improvise plenty of solutions for lack of toilet paper but I can’t make pie like this— not even with my Pennsylvania Dutch family connections.
I couldn’t even wait for the matcha custard to thaw. I sawed at it with a knife, broke it in pieces with my hands and microwaved a slice for 30 seconds. It was delectable.
And the steak and Guinness pie? So rich and full of meaty goodness I didn’t even have a chance to take a photo.
Oh how I love my pie friends.
And finally the updates regarding some of the cats we are fostering through Feline Urban Rescue and Rehab, Mars has taught Khloe to play and Minerva is becoming much more social. As is Louise.
My blog post yesterday received a lot of extra views and shares thanks to my discussion of the fabulousness of Nicolosi’s Pizza on Sullivan Trail.
It makes me wish I would have spent a little more time developing the back story so newcomers would understand some of my rambling at the end.
So here’s the latest installment.
Today I worked with Nan, my friend, blind poet and essayist. We did errands— the bank, retrieving laundry— and prepared some new submissions of Nancy’s poetry. We also checked out her most recent publication, “Brewing Chai” in *82 Review.
I made the decision, as founder and publisher of Parisian Phoenix Publishing, to purchase a hard copy of the magazine. One publisher supporting another.
Very exciting.
I also have two friends scheduled to get packages from the publishing company today, if the post office tracking info is accurate.
Very exciting.
And when I took Nancy home, I was able to head to the gym, Apex Training, to work with my trainer, Andrew, who along his prowess in powerlifting, does an excellent job observing my movements and targeting the muscles we think can make the most impact based on information from all the specialists I’ve seen.
And Andrew kicks my butt.
He makes me sweat. He challenges my range of motion. He also exercises the parts of me that work.
Very exciting.
Both of my trainers at Apex have been amazing.
I rushed home to shower and grab lunch as I had to get the dog into the car, pick up the teenager from school and go to the podiatrist. The dog had to go to the vet at the same I had to go to my doctor only a couple miles apart.
(One of the foster cats has worms, so every mammal in the house needs dewormer.)
This all begs the question: Why was I going to the podiatrist?
Well, I’ve known my podiatrist for 20 years. We connected in my journalist days through a mutual friend. The mutual friend nominated him for a small feature in our newspaper.
The mutual friend has passed away, and when the teenager needed a podiatrist and I couldn’t get timely care for her through my networks, this podiatrist friend of my deceased friend got her in expediently AND gave her amazing care.
I’ve been to the podiatrist once or twice myself— and I thought his brain would be a good one to pick for more information on my cerebral palsy. I made the appointment when I was still struggling with my splinter and dealing with my blistering toes.
We had a great conversation as he checked my feet and dealt with all the dead skin from blistering, and he asked me all sorts of questions about what other specialists had said. So I told him.
He’s very curious what the neuro-muscular physiatrist will have to say, and in the meantime he suggested physical therapy stretches twice a day.
And he wanted to know what the orthopedist had to say— if he could do anything. I said no that the only real option was the surgery I should have had when I was twelve.
To which he replied rather passionately that I should have had surgery when I was twelve.
At first he was angry I didn’t have more interventions as a child, but I explained how my mom was told I would die so she named me Angel, and then when I lived they told her I would never walk or talk, and then they said I had severe brain damage.
“Boy did they get that wrong,” he said.
“So that’s why my mom stopped taking me to doctors,” I explained. “Because they only gave her bad news and they were always wrong.”
“That makes sense,” he said.
(And he asked if I got my splinter out myself and I said first I tried a raisin, which fixed my hip pain, but it was my cockatoo that really got it out. And he said, “Oh this is going to be a good story.”)
This doctor has his own private practice and has been a doctor for a long time. I love that he decides how long he can take with each patient and he can be jovial and a little grouchy at the same time. Not nasty grouchy, just like-a-dad grouchy. It’s like he’s a person underneath that doctor coat.
The teenager made dinner: the chicken breast I had leftover from our last Hungryroot box, youba noodles and vegetables. And then we watched the latest Spider-Man movie which featured all the Spider-Mans.
Which, for the record, Adelaide Pitney, the supermodel from my Fashion and Fiends series, loved the Toby Maguire Spider-Man.
And since I started this blog post, both of the packages slated for my friends have arrived. My traveling companion M has received his copy of Recovery, as the book is dedicated to him and to his role in awakening my love of Africa and post-colonial critical theory.
The other package was to my therapist friend in Georgia who loves to have nice things to ponder.
Today was my 69th session at Apex Training. The teenager and I did our first workout with Andrew, as Dan is taking some time with his family.
Now I don’t like change (who does?), but once I get comfortable with it, I can embrace it.
So the teenager and I met with Greg and Andrew at the gym last week and discussed our goals and got to know each other a little better.
And today we had our first session. I have to say Andrew did a great job ascertaining how my body moved and giving me some low impact exercises that would target my problem muscles.
Then he worked with the teenager on her powerlifting form.
And I was reminded that while I was very comfortable and enthusiastic with Dan, that the shift to working with Andrew is offering some fresh perspective and new ideas. That pushes me out of some potential ruts I may have created in my fitness routines.
Today started as an average day in the Bizzy Hizzy. This was welcome in my world as we changed the clocks last night— so as far as my body was concerned it was 3:45 a.m. when my morning alarm sounded.
Yesterday they didn’t open the warehouse because of the predictions of the sloppy winter storm.
I performed as expected in Freestyle, meeting the pace they like us to keep. We ran out of work, so I went out to pick. Now, picking is the act of running through the warehouse gathering clothes. A normal cart for picking fixes holds 40 items. A direct buy cart holds 80. I picked my batch is 41 minutes. That’s pretty good.
But somehow I also managed to ship 515 items— when the goal for a 10 hour day is 500, and I left the department for 45 minutes.
I also learned from the supervisor that I have successfully made it onto the safety team.
The teenager said I could have a cupcake to celebrate.
My lead at work has started calling me a beast— basically because for two days in a row I think I’ve hit 110% of the daily metrics. But he also mentioned it when I lifted a heavy box (probably 35 or 40 lbs) from the floor and carried it to my work station.
At the moment it happened, the phrase irked me and I wanted to take some time and think about why.
I know he meant it as a compliment, in that same way we celebrate achievements in sports or the gym. But that’s not how it felt.
It felt like he underestimates what I am capable of because he knows I have a disability— but he doesn’t know I work out with a personal trainer. He doesn’t know I considered body building a hobby. He doesn’t know I used to take 1,000 pounds worth of boxes like that into a commercial kitchen’s freezer.
I am a beast. And I hope this good spell lasts long enough to figure out what to do if the issues return.
But I am a beast just for getting up and going to that warehouse on days that I hurt.
It takes way more “beast” to perform on a bad day versus a good one.
So, I’m in the midst of what feels like an incredibly long, never ending journey. I’ve posted frequently about fitness, health and disability.
And I’m getting to the point where I’ve accepted that I will never be done.
It’s probably a long shot that my body will ever be athletic or even dependable, but at least I can commit myself to doing as much as I can to be as functional as I can.
I have hemiplegic cerebral palsy, which means it only effects my lower limbs. On good days, in the right circumstances, with the right concentration, you might not even notice. But those days feel fewer and far between as I age.
I started strength training in college— and if you’ve read some of my previous posts this might be repetition for you— as one of my gym electives. My liberal arts education included gym.
I returned to it on and off, mostly for stress management and then health after The Teenager was born. That’s when I met some very awesome vegan gym owners. (I was still in my vegetarian days. I keep trying to get more into a plant-based diet again.)
I worked out at home for several years while regaining strength after broken bones. And— as I’ve shared before— I got very lean and cut.
Now I have no desire to be than thin again and no discipline left to be that lean. But I am working toward regaining my strength and muscle. Those pictures are from when I was 40. Well, I’m going to be 47 in a few months and progress is slow. I’m still at an all-time high in my weight. I have days where my hips don’t want to work. And my spine hurts most of the time.
My eating habits also don’t match my goals— but my emotional state has to improve for me to fix that.
But I keep working on all these things.
As my marriage ended, I joined Planet Fitness and that kept some of my health demons at bay. The pandemic ended that, and that’s where my weight gain exploded, too.
And I also realized my desire and discipline had faded in direct proportion to my pain and physical difficulties. If I’m going to be crippled away, why bother?
But this summer, I saw a Facebook post by Apex Training here in my neighborhood. So I reached out and Greg got in touch almost immediately. I told him my story— and this meant a lot of vulnerability for me— and he immediately recommended Dan without missing a beat.
Now I was very very intimidated. I had walked by their gym 1,000 times but usually found small gyms and local trainers pushy and unwelcoming. Like a private club.
But I hit it off with Dan and found myself impressed with his knowledge and his creativity. He’d be a gifted physical therapist.
My strength has returned but my body still doesn’t always cooperate but Dan always knows how I’m feeling just my how I’m moving.
This gym is amazing. I see a lot of guys who come together to lift, a lot of women who want to lose weight, and married couples who work out together. And the environment is very family friendly— you’ll often see Greg’s dog Gotti or the babies, Dan and Greg both have toddler sons.
The Teenager has started lifting. She has a love of pushing around heavy weights so Dan has started teaching her barbell sports. Around the same time she started accompanying me to the gym, Andrew joined the team and he has a background in powerlifting.
The Teenager squatting with Dan
Well now it’s too late to make a long story short, but I’ve been feeling better and Dan has made some creative adjustments to my sessions to try and improve my range of motion.
Dan had to cancel this morning’s session so he suggested reaching out to Andrew, but Andrew was running on fumes. We weren’t able to schedule a workout but we had a great conversation about the prospect of getting The Teenager into her own sessions with Andrew and I can continue my work with Dan.
Andrew said she has potential and that he’s impressed with the lifts he’s seen. She now squats 155 I think and deadlifts 195. But here’s what I didn’t expect… “Your work ethic,” Andrew said to me, “is inspiring to watch.”
My world has been upside down for the last three to six months. So to hear that is just a reminder of how you never know who’s watching and how you may impact others.
And while I am still searching for the right doctors as I age, I know that strength training serves as a great boon to my future mobility and health. I see the orthopedic physiatrist this week and scheduled a visit with the neuromuscular physiatrist at the end of May.
I’m hoping these doctors can teach me how my body works so I can give this information to the team at Apex and maybe I could have a future in strength sports. Or maybe I can finally jog a 5K.
But more people need to understand—
Physical therapy is a blessing for specific injury. But as we age, most of us will gain a disability if we don’t already struggle with congenital issues. Just as I look for the doctor that can help me understand my whole body and its movement, the right personal trainer can help me strengthen my whole body.
I really wish I could be with the guys at Apex Training five days a week.
And I hope anyone with a disability who wants to improve their physical condition will consider committing to work with a personal trainer.
This is another post mostly about my journey into learning more about my body and cerebral palsy.
First off, before I jump into my update, let me give a huge shout out to “the teenager” who solved an issue in my kitchen that had been a thorn in my dad’s side for more than a decade.
I once had him over for a dinner party in the early days of owning this house and during said dinner party, I set a candle on fire in the kitchen. It burned a hole in the countertop. My dad thought he’d buy a replacement as a Christmas present as the counter is probably three feet long.
Problem was it’s an unusual chunk in the corner and needed to be custom cut.
Somehow the teenager got the idea of applying special contact paper designed for counters.
It looks pretty damn cool— my dad would be very proud.
I’ll have to dig up a before photo.
In other news, my boxes of Not an Able-Bodied White Man with Money arrived. (Purchase on Amazon here.) I have an official unboxing planned and a blog entry for Parisian Phoenix but my body is having a minor revolt so the debut will be postponed until tomorrow. AND my credit card reader came.
I do love what Gayle did with the cover.
And now on to my experiment… The background… On Sunday, I performed at 99% preparing packages in Freestyle— pretty impressive considering we had computer problems and a work shortage. And we worked all 10 hours. Yesterday I worked eight hours in my home department and did 131 fixes, which I believe was 101%.
I knew I had a chiropractor appointment at 5 p.m. Monday so I asked Dan, my physical trainer at Apex Training if he would be around for a workout. I knew it might be light, after a workday in the warehouse, but wondered if my body would move differently after visiting Nicole Jensen of Back in Line Chiropractic and Wellness Center.
Nicole made sure everything was stretched and aligned and off I went.
And Dan led me in what would be a light leg workout for most— a lot of squats and floor exercises. He was impressed and honestly I didn’t have to concentrate as much as I usually do.
I woke up this morning in no real pain, and through most of my days doing women’s returns processing, my aches and pains were muscular and not skeletal.
But then, I took a small walk around the neighborhood and things started feeling off. My phone later revealed that my walk was indeed asymmetrical.
So I took a shower and plan to go to bed early as my body is stiff and achy. We’ll see how I feel in the morning.
Sometimes my journals are nothing but to do lists and shopping lists. But I like lists— even if I never refer to them again, the act of making a list allows me to stop thinking about things.
If I want to refer to it later, I know where to look, but I no longer have to worry about forgetting as if I want to remember or revisit items from an earlier day I can but I am not staring at a list focusing on what needs to be addressed versus what I actually did.
Many people make lists to receive the satisfaction of checking off the things that are done. I don’t do that. Sometimes I do, but now it’s more like I am acknowledging the list versus trying to conquer it.
I used to finish my list every day or stress over the things I didn’t get to, and on top of that— the list never made me feel better or more in control.
It just exhausted me.
Trapped and the Cover for the Anthology Arrive
Parisian Phoenix’s first contemporary romance has arrived and it looks great. Read more about that here.
But I also received the cover for Not An Able-Bodied White Man with Money, which I will be blogging about on the Parisian Phoenix site this weekend.
And I have a 4 p.m. meeting today with another author who I have been hoping would join our family.
Now if only I could finalize some of our business documents to really move the projects forward.
Yesterday (Voluntary Time Off) and evaluating my health
Life at Stitch Fix’s Bizzy Hizzy has been odd lately. We’re shipping something like 8,000 fixes a day and having the opportunity for voluntary time off.
Last week, I performed at pretty damn close to 100% without pain or significant mobility issues. This week, issues started mildly during my Sunday shift and deteriorated Monday & Tuesday, leaving me at 80% and crying myself to sleep. I talked about this here.
I’m very much wondering if my menstrual cycle has something to do with it, as the Mirena IUD has done miracles for my pain and issues in that department but has made my cycle irregular. I think my body is trying to menstruate later than usual.
I was taking inventory of my recent balance, mobility and functioning issues as today I had my annual “wellness visit” that the office rescheduled from last week.
I took VTO yesterday to allow myself some rest and some time as life (and grief from my father’s death two months ago) has gotten chaotic and overwhelming.
And I made the teenager and I grilled cheese as I had promised to do, and the child acted like I had prepared filet mignon for her.
I have a feeling I will be repeating that after school today.
We also watched Miranda Sings Live on Netflix. The teenager went through a time when she watched the show, so that was weird. It always amazes me how much talent it takes to perform badly.
The doctor today
I have spent more than a decade assembling a talented and caring medical team, so now I can confidently say any issues with my medical treatment stem from the system and not from my doctors.
The doctor and his resident agreed with my assessment that it’s time for me to get into the physiatrist and that their office will advocate for me on that as well, and that my instincts and approaches are correct.
I learned that women more so than men tend to favor one side when they move or stand. As women age, this tendency can create problems. That means this is a problem normal people have and not just a result of cerebral palsy.
And most interestingly… I learned that women more so than men tend to favor one side when they move or stand. As women age, this tendency to let’s say ‘lean’ can create problems, just like what I am experiencing now with my right hip and right leg/foot. That means this is a problem normal people have and not just a result of cerebral palsy.
I reiterated to them that I do know I need to lose 20 pounds, but that we have some issues to address before that.
The psychology ofemotional and physical pain
When I was turning 40, I embarked on a journey to lose five pounds and gain muscle. I inadvertently lost 30 lbs and ended up a skeleton and regained some weight to look like this:
That was about 30 pounds ago. I have no need to be that lean again, but I’d really like to see 135 lbs again— which means I need to lose 20 lbs.
I told my doctor and his resident— I know I can’t eat an entire bag of cheese puffs or Wawa bowl of mac and cheese and brisket after dinner. But I’m struggling with depression from my body pain and my father’s unexpected death.
I’m grateful I haven’t turned to alcohol like many in my family, but I have “given in” to food as a psychological crutch.
I pay almost $300 a month for a personal trainer, but I can’t work as hard as I want to because I hurt and I feel like I need answers as to how to move my body so it doesn’t hurt. Because if I could exercise more and move more, I wouldn’t sabotage myself by eating garbage (or if I did, I would be active enough to balance it).
But right now, when I come home from a ten-hour shift with my body twisted and aching badly, and wishing I could call my dad so he could make me laugh and tell me how much it sucks to get old, I grab junk food because it’s the last pleasure I have.
I can’t move without pain so if I’m going to be forced to get fat and lazy I might as well enjoy the process.
These are ugly thoughts and I know that, but I’m being honest.
The fun stuff: errands with Nan
After leaving my primary care doctor, I called Nan as we were scheduled to do some errands together. We stopped at Wawa for some hot caffeinated beverages (cafe con leche for me and vanilla chai for Nan).
Among other stops we visited Park Avenue Market and Deli, one of our favorite haunts known for its deli, salads and meats.
Although I am once again contemplating more of a vegan diet, which will make the teenaged carnivore wince, I am not ready to commit until I feel better. We must achieve discipline before we enact change.
I never got around to meal planning yesterday so I didn’t have a list. I ended up spending $36.89 and I think the results will work.
I purchased: two packs of beef jerky, one small box of minute rice for the teen, three or four teeny tiny bags of Wise snacks from popcorn to potato chips, meatballs, the biggest damn carrot I’ve ever seen, frozen vegetable medley with potatoes and garlic herb sauce, sweet potato crinkle cut fries, pork roll, Lebanon bologna, liverwurst, turkey, olive salad, a store-baked pig ear for the dog and something called “hot pepper shooters”— round hot peppers stuffed with prosciutto and provolone.
Rough meal plan
My rough meal plan for the next week or so is:
Sandwiches
Meatballs and green peppers, either as a sandwich or in pasta
vegetable lasagna still in the freezer from last week
Burgers and fries, using ground beef from the freezer and the sweet potato fries
Cold tortellini salad with roasted carrot, olive salad and seasoned broccoli (broccoli is in the freezer)
Pork roll and egg sandwiches
Chicken and the frozen vegetables and rice or other grain
PS— we also welcomed a new foster into the house. Her name is Babs. Meet her in this video. I need to make her a page.
I have been saving these for a night when I needed a quick dinner. It’s been a challenging week at the Bizzy Hizzy. So I’m glad I had them. The teenager and I both enjoyed them. and this multigrain flat buns are one of my favorites.
Sunday I made this:
The teenager made the meatballs out of ground bison, also from Hungryroot. The tomato sauce was Classico Italian Sausage with peppers and onions and I sautéed everything with some fresh green peppers, Brussel sprouts and sliced green olives. It was amazing. Both served with small shells and also with melted cheese as a sandwich.
The other night, the teenager and I watched Black Panther, which will be discussed in a later post. I tried this popcorn that I got at Lidl for 79 cents.
Chesapeake Bay Style popcorn. Very highly seasoned and nasty. I threw the whole bag out after trying it.
And I never waste food.
But this week has been hard— my body has been hurting in ways I’m not accustomed to. And that’s hard physically and emotionally.
Sunday I worked a decent shift at work but we left early— at 2:15 p.m. instead of 5 p.m.!
But yesterday I was moved from my normal spot on line 5 to the spot behind the shipper/style carder on line 1. It was a poorly set up table that required moving three steps from the table to the line, and then one had to rearrange the boxes to make room.
And the person receiving the boxes rejected many for no good reason AND worked so slow the line was always jammed. Finished the day in pain and at 80% of metrics.
But I got to style card too and that was fun.
Today I was back on my line, but my computer was lagging. Finished the day at 80% again.
And in pain.
I cried myself to sleep last night. Hopefully tonight will be better.
If you’re a regular reader here, you may recall I had a fall last week, at the hospital, when I went for a CT scan of my brain. If you missed that episode, you can read about it here
What I didn’t mention is that I also took a second rather more dramatic fall in my kitchen that same day.
I’m rather sure Dr. Nicole Jensen of Back in Line Chiropractic and Wellness Center cringed as I told her this story, and the story about my knee totally facing the wrong way.
This prompted her to adjust my ears— apparently I had some left ear congestion. The adjustment was a rather uncomfortable yank in my earlobes.
Anyway, she mentioned that I tend to “just keep doing until I can’t do no more” which is 100% true and something I learned from both my parents. They both have incredible work ethics.
On Sunday at work in the Stitch Fix Bizzy Hizzy, I believe I hit 96% in packing Freestyle orders. Yesterday, we got shipped to women’s returns processing where I struggled in an attempt to hit 70%. Today I hit about 85% in my home department (QC) despite incredible amounts of pain.
My feet were burning. My joints a little achy. My right quad screaming. A slight nosebleed. And both sides of my hips felt wrong. So I checked walking asymmetry in iHealth.
Definitely periodic issues since yesterday afternoon.
If I’m still uncomfortable and having trouble moving in the morning, I’ll go to work and call the chiropractor when she opens.
Angel Ackerman 