Invisible: At the intersection of disability and childhood trauma

Author’s Note: This is the next in a series I tend to run indefinitely on my quest to understand my mind, body and disability and how they interact as I age.

Also: This post is merely me pondering “out loud” and based on my experience. I might be completely wrong with some of my ideas. That is why I consider this a quest and not something I can answer with a quick internet search or “Hey, Siri” request.

Finally, please understand that I am hesitate to discuss this topic as I don’t want my family members to be hurt or feel responsible. Especially my parents. My parents have some wonderful qualities and their flaws because they are, after all, human beings. My parents experienced their own hardships and traumas and they have both dealt with issues with their own parents, alcoholism, etc. Plus, my childhood encompassed much of the 1980s and they were young adults in the seventies. The world, as they say, was different.

As I have mentioned in early posts, disabled children of my generation and the one prior were the first to escape institutionalization or being kept hidden away at home.

Many parents of disabled children (like Marie Killilea of the Karen books) focused on raising their children to master independence and to “pass” as normal when possible. This can lead to a desire to not call attention to oneself and in many cases avoiding (instead of attempting) activities where our difficulties become obvious.

Instead of talking about our ailment(s), we try to fit in and not be a burden. We want to seem worthy of our place in a society where if the conversation turns to eugenics, we’ll, we’d be the first people edited out of existence.

But add childhood trauma to this mix and I wonder, do disabled people with this type of trauma exponentially feel more of a need to be invisible?

Mommy and Daddy have trouble getting along and sometimes hit each other when Daddy gets home from the bar— I don’t want to be another problem for them.

Am I a victim of sexual misconduct because I was a good kid who would listen to her elders or because I was already broken?

No one wants to see me cry. They get upset when I fall down and cry. Mommy teaches me to laugh when I fall. Does this cheapen the legitimacy of the pain, the bumps and bruises.

None of my childhood trauma happened because I have a disability, but it’s another truth no one wants to talk about.

All good thoughts to ponder.

Update on Silk & Sonder: Wheel of Life reflection and July’s courage theme

I ordered my first Silk & Sonder planner in May as a birthday present for myself. My June one got held up at the post office so July marks the first month I could fully use the planner to, uh, plan.

(To read about my previous Silk & Sonder experiences and their amazing customer service:

This month I have done less of the exercises, read less of the text and gave it less of my attention. Yet, I think the habit has rooted in making me deliberately cognizant of my routines and needs.

I’ve been slipping with making and tracking clear weekly goals for my mini habit trackers, and I don’t always fill out “one thing” or the weather, but I like seeing the monthly tracker as a method to chronicle what vitamins I take and studying the patterns of color on the mood page.

My friend and publishing partner Gayle mentioned last month that she had did a “wheel of life” exercise and in July’s courage-themed wellness planner I found the same exercise.

I was surprised by the results and what they show about me. My highest satisfaction level was in the adventure category. I thought about my travels, my fondness for road trips, my love of new cuisines and testing new restaurants. I love reading books about new topics, learning new skills, and stepping outside my ordinary routine.

My lowest rating fell in the relationships category. That’s where my biggest insecurity lies. I have troubling opening up and even more trouble trusting though I will answer any question you ask me. I’m fiercely loyal and very generous but can also be stubborn, brutal with my honesty and frugal. So with my frequent dips in self worth (probably the result of childhood trauma and life with a disability), I can be distant because I fear being left behind. The people I love and/or trust most are often the ones who are cruelest to me.

Meanwhile, education seems misleading because even though I have two bachelors and a quarter of the work done on a masters degree, I really want a Ph.D. in African Studies. And if I’m honest an MFA in creative writing. I want to learn everything and share what I learn with everyone through my writing.

Romance and family present themselves as areas of struggle. But I’m strong in my spirituality, finances and home environment probably because those are the silos of my life where I feel in control.

Health and Career are mediocre, but I do not strive to have a career.

I value my freedom and living more than my career. I have no desire to make my mark on the universe through my career.

All the Things

I don’t know whether I should apologize, explain my absence or dive right into this messy, stream of consciousness blog entry. Nothing new is happening but so many little things have brought joy to my life.

I had a great week at the Bizzy Hizzy. I spent most of my week in QC, and I hit 80% of the daily production metric except for one day when I hit 90 percent. But I just can’t seem to replicate that success. Last night I was in receiving inbound processing where I unboxed and received a pallet which included Democracy Jeans and Market and Spruce shirts. I caught a mix-up in tags. And I met a young man whose name is an abbreviated form of Jesus’ Angel because he was born three months premature as I was.

A few nights ago, I was listening to a podcast, probably Mayim Bailik’s Breakdown. They were discussing the ACE Childhood Trauma Test. So I took it. That was a mistake. It made me think about a lot of things— my past, my mental health, my relationships. I didn’t expect the results and I suppose in a way it was profound.

But as much as life may have had some dark spots, the foster cats sure bring joy. Hermes of the Greek Pride is already starting to bound with his new dad. (And even broke something expensive.) Louise the Tripod had a meet and greet with someone interested in adding a new cat to their household. And Parker and Extra Crunchy of ten little kittens are now playing and acting cat-like. Even Touch of Grey seems cheerful.

Evening with Louise

Videos:

Parker and Extra Crunchy

Touch of Grey

I picked up my new glasses, replacing my previous pair. I have abandoned my sexy librarian look and regained depth perception.

New glasses

On another podcast, I heard a host discuss someone who wrote a memoir from her 20 journals. What a joke! He said 20 as if that number is impressive. I have been journaling for 30 years! I lost count after 100 volumes.

Speaking of journals, I splurged on a Silk and Sonder self-care planner/journal. It’s a monthly subscription and I am already anxious that it will stress me out. My regular journal is more or less a bullet journal now. I think another book that requires a daily check in might not be worth the pressure. And it’s $20/month. That seems expensive. More to come. Including unboxing and review.

Speaking of unboxing, I bought myself a Lite Brite in a moment of nostalgia. #NoRegrets

Video: Unboxing my Lite Brite

The copyrights for my novels so as soon as they return from the proofreader we can start production and get Parisian Phoenix off the ground. Expect my novels hopefully this summer!

And if you miss my Goffin’s cockatoo Naughty Nala, she was in a mood today! Video: Nala steals my underwear

My neighbor let me know I appeared in Lisa Boscola’s newsletter for my role in delivering her public service award given by ASPIRE to Autonomy.

And last in a long line of rambling, I reviewed the Dunkin Double Coconut Macchiato: Video Here

What can I say? It’s real life.

Friday was a good day.

I (and teenager #1) started the day receiving our newest foster cat, Touch of Grey.

So, here’s the thing about cats. Dogs are lovable, forgiving and devoted. They want acceptance, love, and structure. Cats don’t forgive. They are more aloof and nervous and neurotic.

The same cat— example: Touch of Grey— will react strongly in different environments and will remember whatever you do to “wrong” them. She is approximately four years old, FURR had her spayed. She is a newer addition, an owner surrender because of a move.

She has had a couple other placements. She seems happy here. Cats really a lot on body language to communicate. Her signals are very strong. If you heed those warnings, life is good.

I haven’t seen her bitchy side yet, but others at the rescue have. I don’t relish the day I have to crate her.

But this is her a few minutes after we spent our first time together: Play with Grey

At 10:30 I had my regular chiropractor appointment at Back in Line Wellness Center with Dr. Nicole Jensen. For the first time in ages, I was pretty much level and because I haven’t been dealing with constant pain she was able to stretch out my hips more than ever before.

And Thursday night, I reached a new career personal best at the Stitch Fix Bizzy Hizzy. I QC’ed 116 fixes.

When I arrived at work Friday night, I felt powerful and amazing. I looked forward to knocking out the shift and getting my nails done in the morning. My favorite nurse, my favorite QC/Style Card peer and I started talking about places open late at night, Waffle House, and potentially going out one night after work. Am I making new friends?

Even if nothing else comes from it, it felt good to be included in the discussion as a newer employee and in the Covid age.

Maybe I got a little cocky with the universe, because within a few minutes at my QC station, I moved wrong and post my chiropractic adjustment my body just said “nope.” I spent the rest of the night in pain. At about 4-5.

There’s someone at work who physically reminds me of a friend whom I’ve not seen in a while. That was bothering me. Not that the person can control their appearance.

And we had these new stickers that made the night chaotic.

To counter some of the chaos, the leaders hosted a “power hour.” This meant the different QC valleys would compete to see who could get the most work done in the hour. They blasted 80s music throughout the warehouse.

I knew every word to every song. And I didn’t even remember the songs. Isn’t that funny the way that happens? A lot of the music brought me back to childhood, and to middle school, and different events of the past. The emotional fugue dulled my senses.

The music included the song Elvira by The Oak Ridge Boys. That song, and I am sharing this video from a Grammy performance in 1982 (Elvira), used to be a favorite on the jukebox in every bar my parents used to frequent. I think the experience tapped my feelings of helplessness.

Between the pain and the new stickers, I only QC’ed 99 fixes. Though I did speed up as the night went on.

But then I got home— cuddled the dog, laughed at some comedy, made Mac and cheese. All is good.

Ironing out the anxieties

Today’s blog post will ramble through my everyday activities as they often do, but I will also attempt to show how attitude, reaching out and communication can overcome life’s anxieties.

First thing this morning I saw a post from my new-ish internet friend Fausta advertising her one day free seminar on Zoom covering Mindful Self-Compassion.

We were on our way out the door first thing this morning, teenager #1 and I, to take our kitty cat osteosarcoma survivor, Opie, to a new vet, Canyon River Run, to have the lump on his neck checked.

Although in the pandemic era, we only met the vet tech, teenager #1 and I were very pleased with their service and demeanors. The prices were reasonable, too. They even called my former vet’s office (Wright’s Veterinary in Bethlehem) when I didn’t have Opie’s most up to date shots.

The vet reported that in her opinion the lump of his neck is not cancer as it is clearly in the skin and not deeper. I have to follow up because the verbal report relayed to me said it would need to be surgically removed but I don’t know if it would be a cosmetic one or a diagnostic tool to confirm her opinion.

That was the first of several anxieties addressed.

On a side note, I tried the cold brew at Wendy’s. It was quite delightful. Strong but not too bitter.

I also contacted Bird Mania, the establishment where I acquired Nala, to sow them our new photos. (They approved, Joan.) I hope to take my four baby budgies to them tomorrow as they should be young enough to hand tame and rehome.

My bird overpopulation is another anxiety addressed. Though catching and surrendering my chicks is another.

The teenagers had some issues last night, some of which remind me of college roommate situations. We shall work it all out, but since the vet took longer than I anticipated and I worked a 10-hour shift last night, my phone battery was down to 15% as the conversations continued throughout the night. I’m glad we all started a conversation about it as that’s really the only way we can initiate a solution.

Before all this started, on my first of several 10-minute breaks last night, I used my pick Chromebook to request a late start next week for Fausta’s seminar. That’s when I also noticed one of my supervisors had sent me an email requesting my presence for a chat.

Later that night. New anxiety. In several of my previous work environments, meetings never meant anything positive.

My final break came. My meeting with the leaders was 10:15 p.m. Break was 10 to 10:10 p.m. I wasn’t sure what to do with that five minutes. So, me being me, I returned to QC and folded one more fix before leaving my table at 10:15.

It turns out that my “chat” was to check in about how I’d been doing split between QC and pick. And to announce that as of Monday, they would test changing my basic schedule to move between pick and QC in a regular fashion, starting the “morning” (I assume this means the first half of my shift as we start at 3:30 p.m.) in pick and moving to QC later.

We talked a bit about numbers and strategies and once again, as I have mentioned to other leaders, I reiterated that I know I will never be the fastest though I know I will grow more efficient. I try to make up for my lack of speed and natural dexterity by being dependable and flexible and finding ways to work smarter. I also pointed out that while I haven’t hit the best metrics, my metrics are consistent.

“Can we clone you?” one leader asked.

Finally, I bought some clothes at the Stitch Fix Employee Store. I wasn’t going to visit the store this time around, but in the end my issue with ill-fitting and disappearing clothes urged me onward.

The store has been open almost two weeks so there is not much left. And some of the things I most wanted weren’t available. I wanted jeans as I’m still not thin enough to fit in my size four wardrobe from the pre-Corona days but the hand-me-down size eights are getting too baggy.

I also wanted nice t-shirts. Everything I own appears to be sleeveless or shapeless.

As Joan the photographer reported when she got her first Stitch Fix box, the Democracy Jeans are comfortable but the zippers-for-pretty get caught on everything. These are beige camo, not a print I wanted. I didn’t want a print at all. They are skinny cut, not my favorite cut either. And they are too long for me, which makes them very wrinkled.

The Michael Stars top is amazing, fits great, looks very feminine and so comfortable. And I feared it would be too big.

Finally, the yoga top/lazy woman’s sports bra thing from Free People movement actually holds everything in like a sports bra but looks really cute. It retails for $30 which is insane. But I’m a forty-something woman who is very surprised this skimpy top works for me.

Lessons learned about myself

It is 12:40 a.m. My daughter bought me ice cream— low fat diet really freezer burned ice cream but ice cream. I still need to shower. Opie, our three-legged cancer survivor cat, has a 10:45 a.m. vet appointment for the suspicious growth on his neck.

In my life, I never have time to get bored. Why in the last 24-hours, I’ve worked two work centers at the Bizzy Hizzy. I’ve also signed up for the employee store. I almost rescued a 17-year-old Maine Coon cat named Tiny (isn’t that the best name for a Maine Coon).

I had a chiropractor appointment, and she is just as excited about the recent improvements in my body as I am. I wrote a poem. Had my portrait taken. Did some foundation research for the cat foster/rescue/TNR group with whom I volunteer.

I was asked to trim the nails of a former neighbor’s cat. And I swung by the Grocery Outlet.

Even amid all this craziness— I contemplated some lessons I have learned about myself.

1. To get a good photo of me, find props. I am an eccentric person so when it comes time to take a photo, toss me an umbrella, cat, bird, etc., to see my personality.

Photo by Joan Z

2. I don’t have the patience for rescue work. I love to help people and animals, but when someone reaches out for help and either doesn’t accept it or makes it impossible to work with them, I lose all empathy.

3. I’ll never be the fastest, but I am dependable and flexible. I work in a metrics-driven warehouse. I will never be super fast and therefore efficient but so far, my supervisors seem to value my flexibility and good attitude. Which is ironic when my last boss called me “hostile.”

Which brings me to my last lesson from today.

4. Others fear you will display the same bad behavior they do. If someone has an insecurity or weakness in a certain area, they may treat you as if you have the same flaw. I once had a boss who literally removed all the paper and pens from my desk because she didn’t trust my ability to listen and take notes at the same time— despite my fifteen year career as a print journalist. And then I noticed that she only took notes when no one was speaking.

The same sort of thing may come into play if someone thinks your idea won’t work— they may believe that they would not be able to do it, so therefore you won’t succeed. That’s when you have to detail the steps and build confidence.

Kitten ruminations

I have to admit— I’m exhausted. I’ve been cleaning up after and playing with kittens for probably 3 hours this morning while spending another hour on laundry and 30 minutes on the kitchen and 15 minutes on the birds. (Though they cockatoo spent at least an hour on my shoulder.)

It’s cold and rainy and I just ate breakfast at 11:30. The teens are due home from school around 1 pm, at which point we are taking Zeus and Apollo, two of the three remaining foster kittens from the Greek Pride, to Chaar pet supply in Forks Township to live in one of their habitats for a while. And hopefully find a home.

Hermes and Apollo are both still skittish, but Apollo is definitely braver than Hermes. Apollo will sit with you— just don’t touch him! He won’t lash out on you but he will leave. And look at you like you are a presumptuous monster.

Hermes and Apollo

According to our foster godmother, Hades is doing well but still retains her feral instincts so transitioning her out of domestic life was the right call. We may get to see her in our cat-themed travels today.

The Greek Pride taught me a lot about the classic “nature vs nurture” debate. The Greek Pride has five members— Artemus, Hades, Zeus, Apollo and Hermes.

Artemus (then Artemis) came to us fully socialized. He found a wonderful family and became Artemus Gordon sidekick for a real life Jim West.

Zeus was the runt, but learned to play and frolick very quickly. Apollo and Hermes want to trust people but both became very sick and needed medicine to heal. They have bad associations with human hands and won’t let you touch them.

And then Hades… she’s the one that bit me and would walk right up as if interested in me and then run. Her behavior got increasingly aggressive instead of calmer.

Five very different cats, from the same litter, that were wired very differently. They had the same life circumstances but different outcomes.

Reminds me of some human families, including my own.

Barometer of mood

Earlier this week and late last week I was struggling emotionally— my financial status growing more precarious and my friends feeling distant, etc. Nothing any more serious than what many other people are going through.

And then Tuesday happened.

That was yesterday I think.

I had Zoom meetings, Google Meets, programs and in person meetings from 10 a.m. to 9 p.m. After a coffee meet with a marketing client, I accompanied an ASPIRE peer to our new office space in downtown Easton. I’m not sure it’s official official yet so I can’t provide details.

But I went to use the restroom.

And I forgot I had car keys in my pocket and they fell into the flushing toilet. Whooooop— right down the hole.

Well.

My first thought was, “What do I do????”

And then I realized I have the only electronic key fob currently in existence for my car.

So I stuck my hand into the toilet. Thank heavens they were there. Pulled them out, covered a paper towel with some sanitizer, wiped it down and popped the fob apart to try and dry it.

And I laughed at the situation. A few days earlier I would have cried.

In other silly news, my crew had some fun with musical instruments. YouTube videos here:

Low brass and bass drummer playing without the whole band (teenagers 1 & 2)

Recorder lesson from a blind lady and euphonium in background

Seven Nation Army

A quiet Memorial Day, reframing Monday

I noticed I was oddly content and relaxed last night and that got me thinking.

I had a great weekend.

Did I have a great weekend because it was my birthday?

Because it was a three-day weekend?

Because I’m starting my vacation and sharing the teenager’s first week of summer vacation?

Or…

Did I have a good weekend because I didn’t waste time worrying about Monday?

I’m not even sure what I did Friday, but I think it involved visiting with neighbors, watched The Call of the Wild with the teenager and ate potato chips and cheese dip for dinner.

On Saturday, I went to Tucker and got a coffee and our burger kit. (Another Trip to Tucker) I had a great time at my Dad’s just seeing the teenager gather treasures from the woods and shooting her bow and arrow. (Vacation Day 1; Birthday day 4)

Yesterday my mom and I cleaned the downstairs, I ate too much pizza and organized my closet.

So I went to bed relaxed.

And now today I worked with my friend Nan, typing her latest essay and submitting it to Pennsylvania Council for the Blind’s newsletter.

The teenager’s father stopped by with a work friend to get some furniture from my garage. Imagine my surprise when the two of them couldn’t move the hutch. My great-grandmother’s hutch. He wants to use it for storage in his small kitchen. I’d rather see it used than sitting in my garage.

So, I asked him— how did it get there if you can’t lift it?

Apparently, the teenager did it.

The teenager was sleeping. So instead of waking her up, he and his friend went to the office and got a hand truck.

She woke up when they returned and found the whole situation amusing.

While they took the hutch to the teenager’s father’s apartment, she asked me to help her move her favorite recliner outside so they didn’t have to struggle.

We did.

She went with her dad for a while so I stared scrubbing the upstairs bathroom.

I also gave Nala a shower.

When the teenager got home, she did a load of blankets and we hung them on the line.

Then we went to the Family Dollar so she could get a new planner now that the school year has ended.

And we stopped at Dunkin Donuts for iced coffee.

Here is a clip of Nala’s tantrum before her shower: Nala having a tantrum.

TV Psychotherapy

My mind has experienced a lot of shifts recently. I have changed the way I communicate thanks to some insights of the teenager, some stress at work, and a variety of great support from friends and family.

In the midst of all this, there is the Coronavirus pandemic which allows a lot of introspection for those of us who try to be self-aware.

I’m not a big television watcher. I grew up in a rural setting in a valley by the river where we had poor television reception. We didn’t receive access to cable until I was a teenager.

When I left home, my husband and I chose not to pay for cable (and this was Netflix first started and they mailed you discs and prepaid envelopes— streaming was not a thing).

So, Hulu and Netflix on my iPad have allowed me to explore decades of pop culture. And I realize that many of these reality television programs can offer a window as to how we all face our struggles and build our relationships.

While I originally started watching Gordon Ramsay, it was because I love food and he had a reputation that I wanted to understand. I also like big, athletic guys with bad attitudes and exotic accents.

But the more I watched— whether it was Hell’s Kitchen, Kitchen Nightmares, Hotel Hell or other Ramsay programs— I saw people of all backgrounds reaching toward goals of increased knowledge and skills, wanting a better life, and working to impress not only a mentor but a larger-than-life icon, a modern God.

And Ramsay pulls talent out of people and sees something in people. It’s amazing to watch.

Inspiring.

Shows like 90-Day Fiancé show how desperately people want to be loved and the lengths they will go to— whether in hope of love or acceptance or, again, that desire for a better life or a Green card.

Now, I’m watching Hoarders. I watched the first episode because I’ve been in a hoarded house and it is mind-blowing. I wanted to understand.

I have learned how our upbringings and traumas intersect and influence how we communicate and relate. That stuff, shopping, accumulating, giving up and other verbs… it’s a manifestation of our emotional walls. I would classify My Secret Addiction (or is it My Unusual Addiction?) in the same realm—how to cope.

And then you take a show like Transitions, where people explore their gender identity, and I suddenly see how much of a struggle they have to live as the person they really are versus the person they feel forced to be by family and society. That’s strength.

And why you really want a good outlook, and to see hope, enthusiasm and change, you watch Queer Eye.