A mish mash of disability related updates related to my life with cerebral palsy
I’m somewhere around week seven with my weight training with Apex Training and dreaming of a day when my stiff limbs might become those of a Paralympic powerlifting. I want to be a barbell athlete.
I missed Saturday’s session— I normally train 45 minutes on Tuesday, Thursday and Saturday. But I picked up an overtime shift at the Stitch Fix Bizzy Hizzy.
I told Dan, my very talented and diligent trainer, that I would do a home workout over the weekend. I did not. And the lack of long hours and the mix of chores and resting I did over the weekend meant that I was not tired nor was I sore for Tuesday’s workout.
And he says he went easy on me, but he had me doing incline bench presses with 25 pound dumbbells. Now, for comparison, about 4-5 years ago when I was lean and strong, I was just ready to make the jump to 25 pound dumbbells but I couldn’t afford to buy them.
That’s when the teenager and I joined Planet Fitness, which lasted until the pandemic. Almost two years.
Yesterday was upper body day at the gym. That’s probably a good thing as my premenstrual hormones left me so stiff today I couldn’t bend at the waist or walk well. It also might have been impacted by the severe thunderstorm we had.
But somehow I hit 129 in QC at work. 130 is goal. At 11:41 p.m. my supervisor stopped by for an observation. I told her I almost called out but I knew she had to see me on a bad day. But when I started folding the clothes, I hit 35 in the first two hours (goal would be 32.5). But then I slipped and only got to 64 by lunch (goal is 65).
By third break I was at 97, which is shockingly on point. And at 11:41, she rolls up with her laptop. I’m both relieved and terrified.
She needs to see my struggle.
The cart I was working in had 3 refixes— out of 8. I don’t know why they call them refixes. They are fixes that are messed up and need fixing. So I guess the fixes need to be fixed again.
It was arduous. I was tired, sore and stiff. I had two damaged items of clothing and I wondered if she would think I damaged them. (Yes, I know I am insecure. My therapist says I “sell [myself] short].”)
I QC’ed in my observation at a rate of 115%.
And my boss had a suggestion to alleviate my struggle.
When I hurt I need to ask for refix carts. Those are the fixes coming out of the refix department once they are corrected. They come boxed on top of the cart so I don’t need to bend to get them.
They really do want to help.
And finally…
A few weeks ago, I asked the teen how her dad’s arthritis was. He has a club hand, so his left hand does most of his daily tasks. As a result, he has bad arthritis between his thumb, wrist and forefinger.

Turns out, his mother gave him Charlotte’s Web CBD cream and he swears by it. So I ordered some. And I ordered the CBD Medic Arthritis Cream as well.
They arrived today. So I took a shower, suffered through the contorting needed to shave my legs, and upon return to my room, I slathered the Charlotte’s Web cream on the knot in my back. The relief was instant, and I don’t want to think it had anything to do with the gin and limoncello cocktail I am drinking.
More details to come on the creams but it is so nice to go to bed without pain. And I think the knot in my back is loose. But I also must remind you—cocktail.
Can I touch my toes?
Yes.
And I didn’t even bend my knees.
This might be the best thing since Epsom salt.