This is another in my ongoing series about life with cerebral palsy, a disability no one I know seems to understand.
I have eaten thousands of extra calories this weekend. I can’t stop myself. My weight has hit an all-new, all-time high and I am deeply ashamed of my behavior.
I wrote my primary care physician an email midday Thursday after I called out sick from work, but before I slept 12+ hours. I told him: I know you don’t have the answers regarding my cerebral palsy and its long term effect. I know I walk funny and that has caused arthritis type issues in my hip, my SI joint specifically. I understand from working with my chiropractor (Nicole Jensen, Back In Line) who used to be a physical therapist that the instability in my lower body, especially as I compensate when I am pain, comes from these complications. But the only thing that helps the pain is the CBD creams I get online— Charlotte’s Web and CBD Medic specifically.
I have 2-6 bad days a month, usually a couple every two weeks, reinforcing the idea that my late 40-something menstrual cycle is compounding issues. I only get cramps in my back, but I’m also experiencing pain at ovulation.
And it’s bad pain. Just like all my other pain. All in my lower back.
My new gynecologist listened to my complaints of long-term anemia (which makes me too weak to properly deal with all these other struggles), heavy bleeding, pain every two weeks and massive blood clots exiting my body, and prescribed a couple ultrasounds.
The results have been in for almost two weeks and I can see them but I don’t understand them but they did find things, even if not large and scary, but internal organs are small.
I told him, I work with a personal trainer three times a week, and except for stress eating, I eat well and take all my vitamins. I even scheduled my upcoming follow-up bloodwork.
So which doctor do I need to talk to because my schedules anemia follow up is Nov. 2, and I would like to know if any of this can be treated and/or how permanent it is and/or will it get worse?
Meanwhile, my blind friend Nan and I visited Park Avenue Market, one of our favorite places. We both order liverwurst from the deli.
The man slicing our meat, who knows us at this point, comments that he doesn’t know how people can eat liverwurst.
I told him I don’t even like it. It is a little nasty, but that this liverwurst is better than off-the-rack liverwurst. That I’m not a big meat eater and I struggle with getting enough iron as I have a history of anemia. With the right cheese, it’s not so bad, especially with lettuce and good bread.
It’s inexpensive— so if I get sick of it I feed it to the dog and the dog loves me.
He laughed.
“So, you’re buying liverwurst for medicinal purposes?” he remarked.
Hey, what’s wrong with liverwurst? Especially with the right cheese…
LikeLiked by 1 person
Still not my favorite
LikeLike
I hate that you’re going through all this. I wish you could find answers and something powerful to get rid of the pain.
Just for the record I like liverwurst. Although I haven’t eaten it in a long time because I’m the only person in my family that likes it. So there’s that
LikeLike
You know, I can leave with the pain. It’s the fear that is more debilitating— is it better to exercise or rest? Will I have to quit my job? Can they help? Is this going to continue to get worse? I just want to have a conversation with someone.
And the stress eating is getting worse everyday.
I just want a few minute of someone’s time
LikeLiked by 1 person
Yes, that makes a lot of sense. I can imagine that would be the hardest part. I wish you could get somebody to freaking listen
LikeLike
I will. Eventually I will kick and scream. If someone doesn’t call tomorrow I will leave a gentle message for the gynecologist
LikeLike
As for the liverwurst— if Im really not feeling it I just get 1/4 pound
LikeLiked by 1 person
💜💜
LikeLiked by 1 person